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It can be fairly common for people to experience dizziness after surgery along with fatigue. Even people who do not have any form of dysautonomia can have symptoms of orthostatic hypotension after surgery or illness. That's why doctors won't make a diagnosis until symptoms have been consistent for more than 6 months. That being said, I hope you have discussed the dizziness and other symptoms with your surgeon during follow up visits or with your PCP. It is not uncommon to need a supplement or even nutritional changes after surgery to help your body adjust. Best of luck with your recovery.

Thank you 😊

@@monathomas1777 You're very welcome. Best wishes for a speedy recovery.

If you explore our channel - th-cam.com/channels/UZMfU6I2622J6Fv50oFaiQ.html and our website, www.dinet.org, there are many videos and articles discussing treatments, medications and self-help.

Sadly, you don't. Heat intolerance is a symptom that can be treated as a symptom. You can manage symptoms but you can't get rid of them unless the underlying cause is cured. The best thing to do is find the treatment or treatments that help with the symptom. I wish there was a way to get rid of many of the symptoms of dysautonomia and they will improve over time with treatment. In the meantime, treat the heat intolerance by trying different things until you find some relief. Best of luck

Syncope is a loss of consciousness and/or a loss of control of your body, frequently described as "going limp" Many people report being able to hear things around them but being unable to stand or speak or control their bodies - including incontinence for some. Any symptoms like dizziness without being incapacitated is considered presyncope.

Don't think of exercise, think only of small movements, gentle stretching. You won't get hurt and you will still get the benefits of circulation and muscle tone. There is a product called Exercise bands. They are like very big rubber bands. Start out with the lowest strength (resistance) and you can do the movements (stretches) laying down if you need to. You can stretch your legs and arms this way. Just one suggestion. If you can sit up in a chair, there is something called "Chair yoga" that can be helpful. With all of these things, you start with the smallest movements until they get easy to do. And don't do anything before you clear it with your doctor. But keep trying to find ways to move gently to help you stay as healthy as possible.

Thank you for sharing your experience. Presyncope and syncope is a common symptom for most of us. It is very difficult to deal with and very scary. I'm so glad to hear that the video help your friends and family to understand what you go through. For many of us, the episode doesn't last a very long time, so the initial episode can be over quickly even though the fatigue, headache and feeling unwell lasts much longer. Thank you for sharing. Best wishes.

I'm sorry to hear you haven't found anything to help yet. But don't give up. It takes finding just the right combination of treatments, sometimes medicine with lifestyle changes, to minimize symptoms. It is not easy and requires a lot of patience, but remember that effective treatment is different for each person, so you have to keep trying different things including things like nutrition, hydration, movement, etc. Hang in there.

Try to stay positive. It definitely makes a difference. Focus on and be thankful for every little thing that you can do. Feeling down/depressed definitely makes me physically worse. Often this is brought on from trauma to the body whether it’s physical, emotional or both. Both in my case and for me cutting out a toxic family member who was causing severe stress helped me more than anything. Triggers of mine: caffeine, too much sugar/carbs, alcohol, dehydrated/not enough salt, not eating frequently enough, too hot or too cold, poor sleep, stress, pushing myself too far, not taking enough breaks and weather changes. I share my triggers in hopes that it will help you or someone else. It took me years to understand them all. I’ve also found grounding, especially at the beach (possibly from the salt?)beneficial for inflammation and pain.

Yes, for some people it is required to maintain the right balance of electrolytes and fluids and to help minimize symptoms.

Sorry to hear that you have chronic pain. Autonomic dysfunction is fairly common for people with spine issues. Thanks for sharing

So glad you found it helpful. Happy travels.

Yes, they ae the same. It is also sometimes called Neurally Mediated Syncope.

It is tough for us to understand what is happening in our body sometimes, so it makes sense that it is very difficult for other people to "get it". It is great that you are appreciative. I have personally found that asking people for very specific things gets me better results - everything from "it would be great if you could come here instead of going out today" or "if you go past a store, could you pick up milk for me?" to "could you put aside about 15 minutes in the next day or so to help me wash my kitchen floor?" Whatever it is that might be most helpful to you. Just a thought. Best wishes

I have that too, where I'm freezing but sweating like crazy. It doesn't always happen but if I'm stressed, it kicks in right away and I'll have to change my shirt cause I'll sweat right thru it

I'm sorry to hear that you are experiencing all of that. But as @candyland8903 points out, this is unfortunately a common symptom that happens with this disorder. I am going to assume you have been diagnosed with HyperPOTS since you posted your comment on this video. HyperPOTS is directly related to dysfunction that centers around the adrenal gland function. So rises and falls of the body's chemicals like aldosterone, norepinephrine, etc are behind the symptoms you are experiencing. It takes a lot of patience to find the right combination of medication and lifestyle changes that will alleviate some of the more difficult symptoms because treatment is different for each person. Some people suffer with GI symptoms as their worst, others these surges of adrenaline or decreases in the body's natural chemicals. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Understanding what your body is experiencing is extremely important so that you can better inform your doctor what is happening and to better participate in your treatment. I wish you both the very best. Thank you both for posting.

@@DysautonomiaInformationNetwork I actually have not been diagnosed... Doctors are telling me it's not abnormal

@@CoderNessCCS We can't diagnose you obviously, but we can strongly encourage you to look for a new doctor if the one you have now is telling you that a BP of 212/191 is normal or purple and blue arms are common. Find a cardiologist that will listen and take your symptoms seriously. It is not uncommon to have to go to a few doctors before finding one you can have good communication with but it is essential if you are to get to the bottom of your symptoms. I wish you the very best.

The video begins with explaining that HyperPOTS involves increases & decreases in adrenal function. It also discusses changes in renin, aldosterone, norepinephrine and epinephrine - all chemicals released by the adrenal gland. These surges and drops in these chemicals are what cause the symptoms you experience. I think the confusion here is that the video states the characteristics of these surges and drops i.e; anxiety, sweating, tremors, etc. Those are the symptoms experienced within the body - the cause are the adrenal surges and drops of these chemicals because of the dysfunction inherent in hyperPOTS. I hope that explains the difference. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Thank you for reaching out.

People with autonomic dysfunction can have baroreflex abnormalities causing fluctuations in BP. Depending on the type of dysautonomia, it can cause severe and dangerously high blood pressure. That said, most people with the more common types of dysautonomia experience drops in BP with changes in position.

I really hope it helps. Start slowly & take your time building. It can be frustrating because we just want to go back to how it was before, but know in advance that it is a slow, steady journey that works. Best of luck.

The best way is to get a prescription from your doctor. A medical supply store will measure you & give you garments with the right amount of compression to help you. Other than that, I would say to go to a store in person so you can feel the amount of compression yourself. If you buy online, make sure the product allows returns so you can try a few if needed. It may take a little longer but be patient & you'll get tge right fit.

@@DysautonomiaInformationNetwork great advice - thanks!

Smell has a very strong, but individual effect on people. So although it isn't generally reported as a trigger, nausea is. So any smell could hit you in a way that makes you feel nausea even if you didn't in the past.

There is no set diet for dysmotility per se. But eating a diet rich in whole grains, fruits, vegetables & avoiding too much red meat is generally considered healthy for all of us. But with dysmotility, you should check with your doctor for a referral to a nutritionist to help you construct a meal plan specific to eliminating your symptoms.

Cervical instability can present in people with HSD, but there are also other causes of cervical instability. If you have symptoms you should be seen immediately by a physician. Cervical instability, regardless of the cause, should be treating promptly. Best of luck.

We are glad you found the video helpful. Yes, compression garments around the abdomen are not a good fit for someone with reflux, if it increases your symptoms. You can still benefit from compression garments around your legs. They will still help with blood pooling.

You may be able to try the special compression tights they make for maternity. If that's too much you might try maternity support panty hose. They will be less, but some compression.

by the way Jobst makes them. I've used their socks which are good but not these, they also come in 5 colors. Mrs. K.

i get at night! between 10pm and 7am heart rate jumps temp every timei wake up ! scary its been a year. it got wost last dec

There are many things that can cause changes in your heart rate. For most types of dysautonomia there is more involved that waking up. Have you been checked for sleep apnea? With apnea a person can stop breathing and the body wakes itself up - usually with a pounding heart rate, frequently sweating and other symptoms, It can be a very scary sensation and it is certainly worth discussing with your doctor,

i did go to my doctor, in jan did ecg whore a heart molter in feb results were noirmal i dont hv any disconfort last sat night 230 am my heart rate rose wen i was awake to 85 checked bp 145 85 5 min later 133 81 p of 73 to 85 middle night p... my p is usually 60 heart rate fluctuates lots 60 to 85 dont know why

wen i wake up, several times my pulse is dfrom 70 to 85 then it goes bk down to 60 65 then sun morning middle night p stays 80s 70s even awake

Again, I would talk to your doctor about having a sleep study done for apnea. The heart monitor that a person wears to track your heart rate wouldn't pick up what happens to you when you sleep. It may explain your symptoms.

Thanks so much for sharing. Pickle juice is loaded with electrolytes as well as salt.

Anxiety and presyncope symptoms are usually tied to an anxiety attack. Although there are similarities between the episodes of presyncope related to POTS, they are very different. Presyncope with anxiety can happen regardless of your body position (sitting, standing, laying down, etc) and does not have the changes in HR, BP and other symptoms common to people with dysautonomia. So the answer is yes, acute anxiety can make you feel that you are on the verge of fainting and it feels terrible. But if you are unsure of whether you are having anxiety symptoms or a medical condition, you should speak with your doctor. Best of luck. Presyncope from any cause is not a good feeling.

Yes it is possible to have both. Many DINET members report episodes of tachycardia and bradycardia within the same episode. For instance, a HR that climbs to 160 and then drops to 52. As with other symptoms, you should be sure to mention it to your doctor so that any other causes can be ruled out.

Thank you for sharing your tips. Great ideas.

I'm sorry that is happening, especially while driving. Any feelings of being faint when behind the wheel should be taken very seriously. It is highly unusual to have syncope symptoms while sitting that are related to dysautonomia. You didn't say whether you were diagnosed with a form of dysautonomia, only that you had symptoms in the past. So the symptoms you are experiencing recently, the flushing, vision changes, pre syncope, etc could be caused by any number of things. If you do have a dysautonomia diagnosis, I would bring these new symptoms to your doctor. If you do not have a diagnosis, I would make an appointment with your primary physician. They should do a workup including EKG, labs, etc to see what shows up. They should be able to send you to a cardiologist who is well versed in dysautonomia if they suspect thats the cause. Finally, and I know this isnt easy but you really shouldnt drive until you have an answer. Fainting when youre behind the wheel could be disastrous for you & others on the road. Let us know how you do.

These are absolutely symptoms of dysautonomia, all very well documented. That said, there are also many other disorders with overlapping symptoms. ,Also, the majority of people with dysautonomia have comorbidities. But your comment is wildly inaccurate & false.

Yes, there are many GI issues that people with dysautonomia live with, including nausea and diarrhea. Constipation and a delay in emptying are also common symptoms. These symptoms are usually treated separately from the other symptoms of dysautonomia (dizziness, syncope, etc.)