DINET - Dysautonomia Information Network

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Mental Health and Chronic Illness: Part 2

44:22

Mental Health and Chronic Illness: Part 1

33:12

POTS: Subtypes 101

1:17:44

DINET Dyscussion: How To Submit Your Patient Stories

2:53

Nutrient Imbalances and Dysautonomia

2:03

Disability Pride Month

2:36

Living With Dysautonomia: Patient Stories

It is common to feel alone when living with a chronic illness. This unique video shares the experiences of those living with dysautonomia. While the information should not be taken as medical advice, we hope it helps those in similar situations feel less alone. Our goal is to provide a variety of perspectives that show how much chronic illness can impact our lives.
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มุมมอง: 681

วีดีโอ

Mental Health and Chronic Illness: Part 2

44:22

Mental Health and Chronic Illness: Part 2

มุมมอง 125ปีที่แล้ว

Mental health plays a big part in our lives with chronic illness. We often face challenges dealing with anxiety, depression, grieving our old selves, being a caregiver or having to rely on someone to help us, and more. Join DINET and two licensed therapists who also happen to be caregivers to those with chronic illnesses. Tina Borsa, LCMHC, and Lori Lohrmann, MA, are professionals with years of...

Mental Health and Chronic Illness: Part 1

33:12

Mental Health and Chronic Illness: Part 1

มุมมอง 220ปีที่แล้ว

1:17:44

POTS: Subtypes 101

มุมมอง 1.6Kปีที่แล้ว

POTS is the most recognized type of dysautonomia but it isn't the end of the story. Understanding the many subtypes of POTS and the differences in symptoms and treatment is a vital part of management. This important session will be led by Susanne Rimm, retired/disabled RN living with HyperPOTS. Susanne has over 20 years of clinical experience that she will bring to this discussion, as well as y...

DINET Dyscussion: How To Submit Your Patient Stories

2:53

DINET Dyscussion: How To Submit Your Patient Stories

มุมมอง 98ปีที่แล้ว

As a part of this year's DINET Dyscussion Series, DINET will be sharing videos from people living with all forms of dysautonomia for October Awareness Month (October 2023). Sharing is EASY with our step-by-step tutorial! Videos need to be sent by Thursday, October 12th at 11:59 PM EST. Submissions will premiere on our TH-cam channel on Thursday, October 26th at 1PM EST. 1. Record a 3-minute vid...

2:03

Nutrient Imbalances and Dysautonomia

มุมมอง 587ปีที่แล้ว

Could a nutrient or vitamin imbalance be contributing to your dysautonomia symptoms? Dr. Svetlana Blitshteyn, Founder of the Dysautonomia Clinic, and Standing Up to POTS shares a list of nutrients you can test for if you have dysautonomia. "The following nutrient imbalances may be worth investigation, as they have been associated with POTS, exacerbation of POTS-like symptoms, or common POTS com...

2:36

Disability Pride Month

มุมมอง 231ปีที่แล้ว

July is Disability Pride Month to celebrate the passing of the Americans with Disabilities Act (ADA) on July 26th, 1990. This video briefly explains its history and the significance of the disability pride flag colors.

4:05

Self Help Treatment Options for POTS

มุมมอง 600ปีที่แล้ว

Are you tired of trying different prescription meds that do more harm than good? This video shares different treatment options to try on your time, at your pace that may help alleviate some of your dysautonomia symptoms. To take a more in-depth look at these options, visit the link below! www.dinet.org/info/pots/just-my-cup-of-tea-…-self-help-options-for-managing-pots-symptoms-r238/?fbclid=IwAR...

4:43

Long COVID

มุมมอง 310ปีที่แล้ว

This video shares a basic overview of long COVID and helpful resources for those dealing with the condition or post COVID POTS. To learn more about long COVID and find clinics, visit the link below! longcovidalliance.org/what-is-long-covid-the-physical-and-psychological-symptoms-and-management/

3:32

Vagus Nerve

มุมมอง 744ปีที่แล้ว

The vagus nerve may pop up from time to time in the dysautonomia community and for good reason. This video shares a brief overview of the vagus nerve and how it pertains to your autonomic nervous system. To learn more about the vagus nerve, visit the link below! www.medicalnewstoday.com/articles/318128#What-is-the-vagus-nerve

3:00

Dyspnea

มุมมอง 526ปีที่แล้ว

This video gives a brief overview of dyspnea, the medical term used to describe shortness of breath. Visit the link below for a more in-depth explanation of dyspnea! www.medicalnewstoday.com/articles/314963

2:22

Dysmotility

มุมมอง 581ปีที่แล้ว

Dysmotility can be a common, painful symptom of POTS and other forms of dysautonomia. This video briefly shares an explanation of the condition. To learn more about dysmotility, visit the link below! muschealth.org/medical-services/ddc/patients/digestive-diseases/small-intestine/dysmotility?fbclid=IwAR3orLJmaxPTvctZRXWSJfRsRxuZj277x64yMVpRDMzCtzUtoSn1z5Vb27U

3:27

Receiving A New Diagnosis

มุมมอง 280ปีที่แล้ว

Receiving a new diagnosis can come with many mixed emotions. This video shares the struggle many of us go through during and after finding out the name of a new illness.

2:50

Tips for Getting Through a Flare

มุมมอง 946ปีที่แล้ว

This video shares some of our favorite ways to help get through a flare.

Utilizing Technology For Chronic Illness

3:10

Utilizing Technology For Chronic Illness

มุมมอง 383ปีที่แล้ว

This video shares our favorite ways to implement technology in your life to make living with chronic illness a little easier. For the full article and more ideas, visit the link below! www.dinet.org/content/living-with-dysautonomia/technology-education/optimized-living/?fbclid=IwAR0K0gIPAvpowvqF7T0m49Vxy-3VpQvYXRrQd-uoIOG8Pj_I30Eug2ye_lo