This video shares 5 things you learn while going through a chronic illness journey. Have some others you'd like to share? We'd love to hear them in the comments below!
1. Learning to grieve your old self 2. Learning to accept your limitations 3. Learning to deal with the ups and downs 4. Learning who your true friends are 5. Learning to advocate for yourself
My son has NCS & Epilepsy, but I also have Fibromyalgia & am disabled with chronic issues and everything you said is spot on for every person with a chronic illness! You definitely nailed this, as only someone who’s going through it can understand. 💜
On the part about having an advocate if you can't do it...this has become a very big problem since COVID. People are isolated from the get go and if you happen to be an adult, the doctors and nurses rarely will pick up the phone and call even if you ask down to outright demanding. When you are sick it is really hard to even have the energy to argue. I know the poor staff is overwhelmed. That is why I want to help them make sure everything is correct.
Excellent info - I can relate to all 5 things!
1. Learning to grieve your old self
2. Learning to accept your limitations
3. Learning to deal with the ups and downs
4. Learning who your true friends are
5. Learning to advocate for yourself
Thank you so very much. I feel seen, esp.#2.
My son has NCS & Epilepsy, but I also have Fibromyalgia & am disabled with chronic issues and everything you said is spot on for every person with a chronic illness! You definitely nailed this, as only someone who’s going through it can understand. 💜
On the part about having an advocate if you can't do it...this has become a very big problem since COVID. People are isolated from the get go and if you happen to be an adult, the doctors and nurses rarely will pick up the phone and call even if you ask down to outright demanding. When you are sick it is really hard to even have the energy to argue. I know the poor staff is overwhelmed. That is why I want to help them make sure everything is correct.