Hyperadrenergic POTS (hyperPOTS)
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- เผยแพร่เมื่อ 11 มิ.ย. 2022
- This video shares a basic overview of a POTS subtype called Hyperadrenergic POTS (hyperPOTS).
Visit the link below for more detailed information about hyperPOTS!
www.dinet.org/info/pots/hyper...
"Increased urine output upon standing." Can you talk more about this? I'm dealing with chronic dehydration we think caused by too frequent urine output.
I'm really shocked that one of the main symptoms of this was not listed....( I was confirmed/ diagnosed with Hyper POTS at Mayo Clinic via a catecholamine test).... Adrenal surges is a MAJOR symptom and EXTREMELY difficult to manage, even with medication and lifestyle.... I mean, it's right there in the name : hyper adrenergic AKA hyper-adrenaline
The video begins with explaining that HyperPOTS involves increases & decreases in adrenal function. It also discusses changes in renin, aldosterone, norepinephrine and epinephrine - all chemicals released by the adrenal gland. These surges and drops in these chemicals are what cause the symptoms you experience. I think the confusion here is that the video states the characteristics of these surges and drops i.e; anxiety, sweating, tremors, etc. Those are the symptoms experienced within the body - the cause are the adrenal surges and drops of these chemicals because of the dysfunction inherent in hyperPOTS. I hope that explains the difference. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Thank you for reaching out.
I have hyper pots and one thing i noticed compared to regular pots is that i have very high blood pressure not low blood pressure 😢
Same. What we’ve found is that once I get IV fluids, my blood pressure drops (most of the time). Doesn’t matter how much water I drink I or that I eat salt stick fast chews like they’re candy. The only time that doesn’t happen is when I start out with my BP very low that day., which is rare but it does happen. We’ve added clonodine to my beta blocker (the bb I’ll be getting switched to is Bystolic). The clonodine is .1 so I can take it anytime I get a spike. I’m getting a port next week to get daily IVs and I bet there’s a good chance it’ll level out after that. I didn’t put 2 and 2 together until I started getting IV therapy before and after I’d get on/off planes. I was passing out after about 2 hours in and when I got off the plane……whoa Nelly that was a fun game 😏. I have become in a perpetual state of dehydration. I could drink 2 gallons of water a day. The only thing that helps me is IV therapy. Idk if you’ve tried it but I’d bet you dollars to donuts you’ll see a difference even if you do it just once a week. I’m so far gone, I need the port and home health. But try just saline with an IV company and see what happens.
In my active stand test my bp went up to 172/120 😬 it came down over a few minutes to about 134/89. My cardiologist is not an expert in POTS but i assumed this is hyperadrenergic POTS. The HR went up more than 30bpm too. I didn't get any symptoms other than Acrocyanosis.
I was mistaken. It went to 135/100 . The distolic remained high throughout.
I'm sorry for the late response. Those are some really high numbers. Usually high HR and severe fluctuations of BP alone won't return a diagnosis of POTS or hyperPOTS. But certainly a cardiologist should be ruling out everything else that could be causing that. If after that POTS or hyperPOTS is considered, you may want to read up on it if you haven't already. You may read some other symptoms that seem unrelated but may be. Go to dinet.org and click on the Information Resources tab at the top of the page. You can scroll through the topics and read about both forms of dysautonomia. Best of luck and again, I apologize for the late response.
@@DysautonomiaInformationNetwork no problem at all. Thank you.
@@squareformathello did you find a treatment for it please cause no doctor could diagnosed this syndrome in my country i live in a very retarded country anyone please help with a treatment i am living hell i dont go to university anymore am all the time on bed my family don’t believe that i am sick anymore no doctor is believing me please any treatment
I get dizzy faint every day. Low bp but also really low hr. Blood poolw in cakves. My sodium so easily easily electrolyte drinks and vitassium. My legs guve out
My heart rate is is never under105 resting ... ibe beendiagnosed with pots. Can anyone sharedwhet meds thier on.... wishing you all a good health.
Why does hyper pots patients have low aldosterone and renin? I was diagnosed with hyper pots and another doctor told me I had low aldosterone and renin but nobody could ever explain why. I was prescribed fludrocortisone to help with one of those low hormones or whatever. It has helped with being light headed upon standing.
@Ethan Corum they put me on a beta blocker to help with the high blood pressure and high heart rate. I take fludrocortisone for the low aldosterone. If you have any other questions or need more clarification, let me know.
My aldosterone is low too. Why is this??
@Ethan Corum what medicine and dose are you on?
@@ReesesCupsAreGood Hi! I’ve just been diagnosed with hyperPOTS. What dose are you taking for the beta blocker? My regular resting heart rate is the low 60s sometimes 50s when I’m sleep.
@@Aklassicdiva I am on 2 beta blockers a day now but resting bp under 50,cant be good?
I'm a medical coder and I experienced 212/191 BP for the TTT, I get really cold and I sweat and freeze at the same time, I have GERD and I was diagnosed with overactive bladder and urgency incontinence after I got COVID. I get purple and blue arms and my pulse can change from 63-116 in a matter of a couple minutes, just lying there. Please help me.
I have that too, where I'm freezing but sweating like crazy. It doesn't always happen but if I'm stressed, it kicks in right away and I'll have to change my shirt cause I'll sweat right thru it
I'm sorry to hear that you are experiencing all of that. But as @candyland8903 points out, this is unfortunately a common symptom that happens with this disorder. I am going to assume you have been diagnosed with HyperPOTS since you posted your comment on this video. HyperPOTS is directly related to dysfunction that centers around the adrenal gland function. So rises and falls of the body's chemicals like aldosterone, norepinephrine, etc are behind the symptoms you are experiencing. It takes a lot of patience to find the right combination of medication and lifestyle changes that will alleviate some of the more difficult symptoms because treatment is different for each person. Some people suffer with GI symptoms as their worst, others these surges of adrenaline or decreases in the body's natural chemicals. There is a great article on our site about HyperPOTS, written by an RN who has HyperPOTS. The article gives a much more detailed explanation. It's a great resource. You can read it at this link if you are interested. www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/ Understanding what your body is experiencing is extremely important so that you can better inform your doctor what is happening and to better participate in your treatment. I wish you both the very best. Thank you both for posting.
@@DysautonomiaInformationNetwork I actually have not been diagnosed... Doctors are telling me it's not abnormal
@@CoderNessCCS We can't diagnose you obviously, but we can strongly encourage you to look for a new doctor if the one you have now is telling you that a BP of 212/191 is normal or purple and blue arms are common. Find a cardiologist that will listen and take your symptoms seriously. It is not uncommon to have to go to a few doctors before finding one you can have good communication with but it is essential if you are to get to the bottom of your symptoms. I wish you the very best.
Why is there increased urine output upon standing?
It isn't necessarily an increase in the amount of urine, but rather the sudden, very unpleasant feeling of the bladder being full when a person stands. The dysfunctional transmission signals from bladder to brain can cause a person not to receive the signal that their bladder is filling up. Also, a person with POTS can frequently have difficulty fulling emptying their bladder, so even after voiding, a patient can suddenly feel they have to go again. On top of these factors, people with POTS are frequently on a high sodium diet and increased fluid intake. There is a great article on our site about hyperPOTS if you would like to learn more:
www.dinet.org/info/pots/hyperadrenergic-pots-hyperpots-an-overview-of-a-pots-subtype-r220/
I hope this answers your question.
My potassium keeps coming up low, I think it's due to the intense shaking/ shivering in my entire body.
I have the same thing but I also have shivering when I am lying down
I'm suffering from this. I shiver and my BP goes high @@berguzarkorel5350
Um. I had no idea that this could even exist. My dr might not be outing the pieces together?
I wonder.... does the condition effect rem sleep....reddit off i go
What about getting those symptoms even while sitting or laying down? Is that a different type of POTS?
It may be pheochromocytoma/paraganglioma.
did you go to a doctor?
yes that is what I have...but they keep telling me it is all in my head.In the Netherlands you cannot ask for tests..
M.T. You have to find a Pots specialist. Every treatment is different for patients. One could help someone and the same treatment does nothing for the next.
It can be a tough diagnosis for some.