Top 5 POTS Treatments

This video shares the top 5 most helpful treatment options for managing POTS symptoms. We recommend this video for those who are newly diagnosed or would like to learn more about dysautonomia.
Links to the more in-depth videos that are mentioned can be found below.
Increasing Hydration
• Staying Hydrated With ...
High Sodium Foods
• High Sodium Foods
Compression Garments
• Compression Garments 101
Most Common Symptom Triggers
• Top 10 Symptom Trigger...

[@c.518]

My mother has had dizzy spells for years. And chest pains on and off. But im just now realizing that a lot of her problems are when she stands up. She is wearing a heart monitor and was notified that her heart jumped to 184 late at night. After reading some comments i think that it might have been when she needed to go to bathroom. I'm going to bring this up to heart doc and ask him to test her sitting vs standing, also request the table tilt. Thx for the info. I have been binging these types of videos and reading comments to learn

[@DysautonomiaInformationNetwork]

I'm so glad that you found the video and info helpful. Best of luck finding relief for your mom, starting with a diagnosis.

[@neilgrimaldi7304]

Hey all, just wanted to say that I have found the Sauna to be very helpful. I go my rec center and spend ~40min at 195 degrees 2-4 days per week. I then follow it up with a cold shower. I think it has stabilized my heart-rates quite a bit and there's lots of info about sauna being good for inflammation and nervous system etc. It mimics cardio w/o all the oxidative stress. I do know alot of people with POTS struggle w/ temp changes so ease in slowly and be cautious!

[@DysautonomiaInformationNetwork]

Thanks for sharing Neil. You are right though, heat intolerance is one of the most common symptoms with dysautonomia and the sauna can lower BP as well. On the surface that sounds like a good thing, but a word of caution to be very, very careful because fluctuations of BP are also common with dysautonomia and can be very dangerous if not watched closely. We are very happy to hear that you have found something that works for you and thanks for sharing with others.

[@michellee6812]

Thank you 😘!

[@DysautonomiaInformationNetwork]

You’re welcome 😊

[@NickShepherd1]

thanks 🙂

[@jfjdjdji723]

Thank you for the simple rundown! I'm new, and the amount of info to swim through gets overwhelming. Thank you for these reminders! 🎉

[@DysautonomiaInformationNetwork]

It can be very overwhelming. That's why we try and keep these videos as simple overviews of the topics. If you want more in-depth info or research information, please check our website - www.dinet.org We appreciate the kind words.

[@davidrogers3920]

Thanks for this video - a great summary!
I was wondering if anyone has any experience in trying to improve their POTS by improving their Autonomic Nervous System by doing things like:
- improving sleep (which is hard to do w/ POTS)
- meditation - improves reaction to stress, slows your heart rate down
- avoiding inappropriate lights - bright blue and red lights (any may help with sleep)
- exercise can improve autonomic tone (hard to do w/ POTS so you need to do gradual increases in duration and intensity)
- slowing your heart rate down. You can even slow your heart rate down whilst exercising by breathing in through your nose and out through your mouth that syncs w/ your exercise movements.
- cold therapy (ppl w/ POTS are often intolerant of the cold, so you need to be very gradual in cold exposure)
- breathing exercises like the Wim Hoff Method can even change the blood pH a bit, like from 7.4 to 7.5 (more alkaline) and help improve your Autonomic Nervous System.

[@DysautonomiaInformationNetwork]

Most people living with dysautonomia try some or all of these things to manage the symptoms.

[@TL-ch1xd]

At times my body just gets worse from it all, but I try when my body’s system isn’t too unstable and allows it.

[@TL-ch1xd]

I am also helped by intermittent fasting (I only eat during some hours every evening per day). My system has gotten used to it, I don’t feel hungry when I don’t eat.

[@DysautonomiaInformationNetwork]

Thank you for sharing something that works for you. Fasting is not for everyone, but it does work for some people. Smaller, more frequent meals works too. What doesn't work for people with dysautonomia is eating very large meals. Digestion takes an increase in circulation to the intestines and digestive track. So asking your body to digest large meals can cause an increase in symptoms. We are very happy to hear you have found something that works for you. Thank you for sharing.

[@misfittoytower]

@@DysautonomiaInformationNetwork Recommending small, frequent meals is a great way to give more people insulin resistance and diabetes. 🙄

[@KenApperson]

Sounds like autoimmune problems

[@maggiew6200]

Diet is a big thing!
Stop eating crap eat healthy!

[@The-Tired-Student]

They don't work. My life is still horrible.

[@DysautonomiaInformationNetwork]

I'm sorry to hear you haven't found anything to help yet. But don't give up. It takes finding just the right combination of treatments, sometimes medicine with lifestyle changes, to minimize symptoms. It is not easy and requires a lot of patience, but remember that effective treatment is different for each person, so you have to keep trying different things including things like nutrition, hydration, movement, etc. Hang in there.

[@konichiwa373]

Try to stay positive. It definitely makes a difference. Focus on and be thankful for every little thing that you can do. Feeling down/depressed definitely makes me physically worse.
Often this is brought on from trauma to the body whether it’s physical, emotional or both. Both in my case and for me cutting out a toxic family member who was causing severe stress helped me more than anything.
Triggers of mine: caffeine, too much sugar/carbs, alcohol, dehydrated/not enough salt, not eating frequently enough, too hot or too cold, poor sleep, stress, pushing myself too far, not taking enough breaks and weather changes. I share my triggers in hopes that it will help you or someone else. It took me years to understand them all.
I’ve also found grounding, especially at the beach (possibly from the salt?)beneficial for inflammation and pain.