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Yike that medication was horrible to come iff of abd actually caused my fnd 😔

Thank you for sharing. I have a diagnosis of Bipolar 1, severe GAD, mild learning difficulties following stroke, and some other medical issues. Antidepressants did not work at all and some made me feel worse. Pregabalin did improve my anxiety symptoms for quite a few years, as did Diazepam. However i heard that they were addictive, so asked my psychiatrist to reduce and discontinue these. The Doctors did this, however i felt too quickly. I was left suffering severe itching causing insomnia, bad nausea leading to weight loss, almost fainting due to pulse of 130, restlessness but also fatigue. It has been quite annoying that even months after the last dose my symptoms have not really gone away. I am actually taking three extra antihistamines and an extra antipsychotic! This medication has the worst protracted withdrawals of all the medications ive been on - and i have been prescribed a lot! I am not taking medication for anxiety now, nor do i wish to. I am happy to take my Bipolar meds and my physical health meds to prevent another stroke. Thats all. Physical withdrawals from Pregabalin have been shocking and four months after my last dose are still there! Im glad you are doing this very slowly. If you did it as quick as me youd be suffering a lot more. Doctors should be aware of this and plan a taper to minimize suffering. Good health to you! God Bless.

I take this drug to help control my cataplexy which is associated with narcolepsy apposed to depression, however I have also been diagnosed with depression. I have been taking 175mg modified release daily for about 17 years. Recently maybe due to other events in my life I have been questioning certain side effects. Does anybody feel that this drug numbs your brain’s ability to fully understand consequence? I live in the UK and since Covid have no support from my specialist and i feel they don’t really understand or want to listen to me It’s totally ruining my life and having spend so long on this drug I feel I need more input from people who actually take it so videos like this are so helpful to me If anyone can offer any advice please please do

Thank you for sharing your experience <3 It means a lot and makes me feel less alone in saying that there's hope. I'm on 300mg, and I can't help but tend to abuse it there and then, and hearing about other's reactions to their withdrawal honestly makes me anxious even with me floating around the idea that I have Xanax as a plan B to taper down but thank you for this, you encouraged me to see though.

I've had 2 failed back surgeries (laminectomy) in 2021 and 2023 and have had weakness and pain 24/7 on both legs. Was taking Gabapentin 100 mg since 2020 but doesn't help. My PCP prescribed Pregabalin 150 mg 2 x day but because of reading and watching side effects, I opted not to take them and just keep bearing with the pain. Afraid to take the risk since I had a heart attack/ triple bypas/stroke in 2020!

I have always exercised... I had a panic attack in the car because I worried too much about my disabled son... this medicine or whatever they call it... gave me real nightmares... pressure on my chest... cardiac arrhythmia... restless even when I was in bed.. depression and anxiety we will always have, it is part of life.. just live with it and deal with it..

I’ve been on it for 24 years, yes 24 years and I can tell you right now the withdrawal effects are so bad when you miss a dose they have almost driven me to suicide. Electrical shocks in the brain, nausea, unable to think clearly, heightened anxiety, trembling.

Hello, please learn about Islam and read the Holy Quran. It is the best book I advise you to read in your entire life. Thank you.

Quarter reductions are no joke, I was told it was a small reduction! A month into my taper and starting to get over some of it

Thank u , u don’t look bad at all on your tapering , you seem pretty happy and you are thankful , that’s nice hope you are doing great by now

I'm on 1mg of klonopin. Thinking of starting a taper. I'm hoping a slow taper of a decrease of .25 every two to three months. She wants to add gabapentin during the taper. Any opinions on my plan, please feel free. Best to you in your taper!

Thank you for sharing. My 32 yo son just got diagnosed in August and we as a family have been trying to learn more about FND.

Thank you for sharing with us

I am NOT a medical professional. Lol. But, maybe ask around about Trintellix for another drug that works on Serotonin as well. It is a unique one. But, not used for seizures. Helps brain fog, and you feel like yourself I think. Not too numbed out.

this medicine destroyed my moms liver!

Good for you to be on asexual spectrum

What if I manifestes almost everything, but at the same time get sick and even I belive and manifest as I can, health go still down, chronic infection

Cassey, have you ever put a 9 volt battery up to that nose ring? Try it!

I am currently coming off clonazepam I’m on an 8 week weaning off , i as taking it for 4 years for my anxiety and I found out it causes dementia for prolonged usage .

Im on week three off venlafaxine my psychiatrist didn't wean me properly the withdrawal was so hard but i got through it thank goodness 🎉 What helps me now is a clean diet no sugar carbs and low salt & taking a supplement called ashwagandha has helped tremendously. Im finally starting to feel again ! One day at a time we'll recover ! ❤

I tried coming off pregablin for generalized anxiety and depression I take 450mg three times a day,with theses symptoms I get very bad diarrhea, shaking hot and cold,can't balance properly and slurred speech headache and hallucinations paranoia these symptoms,soon stops when I start taking pregablin again

It works great for my Vertigo which is a crippling disease of the inner ear that I have had my entire life! 🤪

Been on 600 mg a day for 6 years ,DONT TAKE IT ,,your body get addictive to it without you knowing, trying to come off is terrible side affects horrible

What to do being scary on this withdrawal symptoms 😢😱 Even this is not prescribed for anxiety 🤔

I clicked the link because I thought it was a word from the astral. Do you take any THC products, Psilocybins or LSD? Great review, thanks for posting ♥ I'm grateful for the whole thing, the whole universe, even with the ups and downs and struggles and triumphs and confusion its wonderful!

I do a couple every week just for buzz and really good sleep, do drink with them. Just doing one day I get 2 days of withdrawal. Itching, moody, fog. Could not imagine someone doing this shit all the time

Miss you and hope you are well

I don’t understand why anybody can say it feels so real. don’t even remember the beginning. Don’t even remember the end and nothing in between. You just wake up. Glad I woke up though.

This makes me feel AMAZING. I have so much energy and it doesn’t affect my appetite and sleep.

I have just been prescribed Effexor,, i am really afraid after reading those negative feedbacks😢

Have you been tested for covid or cirs or lyme?

No need to apologise, we understand, we are all going through this, different symptoms and new ones arrive, we are the strongest people, its night time here now in the uk and i am dreading sleep as i know il wake up ill in the early hours of the morning shaking and sick.. sending u love

I's very hard isn't it and gets us down, I got better for around a month now its back worse, a new one is my body builds up inside like I'm about to jolt and then it doesn't and makes me feel really sick, before I would jolt but now I don't, I have had tremors, pins and needles in legs and arms difficultly walking and speech, it's so hard dealing with it and feel all of you x

I was also given Pregabalin because I have FND, chronic pain, GAD. Worked well aside from the neuropathy for a month or two, then it felt like a waste of time. I just started gaining weight, tired, depressed. I realised my seizures were still happening while on it until I moved out of an abusive household, now it’s mostly tics and tremors. So I decided to taper off and I didn’t expect for it to be a living hell. Withdrawals from Pregabalin have probably been the worst I’ve ever experienced. I’ve come off multiple benzos including Xanax, stimulant, illicit medications (years and years ago) and nothing has been this severe. I have also come off pristiq finally but I had to take Effexor to get off it and I’m not game enough to try stopping that altogether. I’ve come off seroquel too, never ending insomnia. I feel like my body and mind just wants me to di3. This just sucks so badly.

bose quiet comfort headphones are the ones that are really common for autistic people. they are normal headphones with active noise cancelation and they are a lifesaver. i literally can not leave the house without them

Thank you for sharing. I'm 45 and have only just started having seizures and FND is suspected, going through all the tests now- but I have been having tics, tremors, spasms etc for a long time that got written off as anxiety. Some of your footage is what I think I look like as well so its very helpful, thank you.

I wish I was as brave as you are. This is my second year taking 150 mg and no clue when will be able to come off this drug :((

Hi Cassey. I hope you continue to heal and feel better and better. Can I ask if you were put on venlafaxine or pregabalin first?

I found you and I’ve been on 4 mg daily, 10 yrs, can I successfully get off this medication without it taking years I’ve heard my brain will never heal from taking it for so long, so I’m not sure what to do from leaving this world

Its nice and comfortable

Appreciate U 😢 Stay safe and well 🙏

Good luck! I'm on Cymbalta, which is similar. I've gone off before but am back on for pain management. I had brain zaps going off, but it wasn't horrible. However a dear friend had a horrible experience getting off her SNRI. Getting off these meds is different for everyone. Wishing you the best.

I absolutely remember hating the drug Effexor for multiple reasons. I was in my early twenties when I first tried it and it was kinda like a Hail Mary kinda drug to try for my untreatable depression and anxiety but if I remember correctly the side effects were way worse than any benefit from the medication and too had a really ruff time weening off of it. This was unfortunately taken alongside several other medications that were fogging my cognitive functions but I didn’t really know how bad it was until I was able to get away from them. And while I took Effexor I also began ECT or better known as Electric Shock Therapy which was the thing that finally pushed my mind and body too far and my life changed for the worse. I had to drop out college and get on Social Security Disability Benefit and I’m still on it about 18 years later. Now I share FND, Graves Disease, endometriosis, degenerative disc disease, etc. I’m actually feeling better now than I have in decades and I owe my change in the positive direction actually to the fact that I was in the lowest place of my life when I lost my father 3 years ago and I had no other choice but to take advocacy for myself because I was in isolated hell and couldn’t even walk to the bathroom on my own. Now I’m gardening and spending most of my time with my art and my spiritual practices IE meditation mindfulness and loving kindness ❤❤❤I love you everyone, and know that it’s never time to give up, every single moment is a great opportunity to start over again.❤

What were your first symptoms years ago?

Hi Cassey, please be careful coming off though glad U doing it very slowly, U might need to stay one 1 med at least if U feel worse, work with DR and a specialist in coming off, it's hard though just be careful U don't get worse, therapy may help also, take care and I'm happy for you 😊

Always amazed at how similar our stories are. Came off this medicine after 2 or 3 yrs. It was hard. We are currently medication free for maybe 6 weeks now. It's a challenge for sure but we are just taking it 3 seconds at a time some days. Good luck!!!

Hang in there. I’m only half way through but I know about the emotions thing. I find that all my emotions and love for music gets crushed by medication. Good luck! If you can exercise or go for long walks I find that super helpful also.

wish you a speedy one. You sound so genuine, that it mde me listen to it despite little relation to the Subject Matter . Do share your journey!

Hi sweetheart, I have just been diagnosed with FND about 2/3 weeks ago. It all started with me about 3/4 years ago. 🌻 It's so difficult to live with. 🌻 Keep being you and keep doing what your doing sweetheart 🌻 I'm from Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿 in UK 🇬🇧. Your amazing x I'm thinking of documenting my journey. 🌻 Sending big hugs x 🤗

I was just finally diagnosed with FND a day ago. My symptoms have not been near as bad as yours but it has been hell not knowing what was wrong with me.