It’s nice to see you back. I have been following you for a while. I also had COVID before my FND got bad, but I feel my FND was more from a nervous breakdown and just escalated from there. I never hit my head (unless as a child counts). My symptoms came on more when I took a medication a psychiatrist gave me. I only took it for 2 days and the 3rd day it was only half a dose before I quit. I hate taking medication because I fear side effects. From there it was like a switch, it seams like I developed turrets. I don’t actually know the root cause, but I’ve learned to live with it and be grateful that i don’t get full blown seizures and my gait is fine. I hope you keep posting because it does help others process what we are going through. Merry Christmas!
@@alinabohn765 hi lovely, thanks for writing and sharing that. Its so interesting the things that can trigger it. I do believe it’s quite complex and can have many factors to it. Thanks for the kind words. Happy holidays 🫶💫
It is really nice to see a video from you. I don't know anyone in my real life with FND, and it is nice to hear other people's experiences even if it is just online. FND has really slowed down the trajectory of my life also and it has made me scared to go out in the world. I've also had lots of testing, for some reason doctors love to tell you to take the same test again except with their people or whatever, but it has all come back normal (hence the FND diognosis). I was diognosed with Tourette's syndrome by some quack neurologist first before my dad discovered FND online and found someone to test and diognose me with it. If you are looking to get diognosed with POTS you want to get a tilt table test. I wish you the best of luck and hopefully you'll be able to get more appointments and testing now. I'm about to try dialectical behavioral therapy to see if it helps with my mental health and FND. I've heard that ketamine alongside therapy can help with neurological disorders like FND, but I didnt find ketamine helpful.
@@whimsyelf7832 hiya! Thanks for sharing. It’s so funny that drs do that. Thinking that they might know better. What was ketamine therapy like? I’ve been thinking about psychedelic therapy! Sending lots of love 💕
@casseyklie I did intranasal ketamine under the brand spravato and it's done in a clinical setting. I did it for a month a couple times a week and found it didn't help my mental health. I found the trips were upsetting and I would question reality and fundamental rules of the world and society. But everyone has different experiences. I also read after the fact that you are supposed to do it alongside therapy for it to be most effective.
That's awesome that you are able to go & get checked out & be heard. Ive had fnd 2 yrs now everyday is a challenge but gotta keep trying ive been my own advocate, since Drs. In michigan do not understand fnd. Keep up the good work & wish you luck look forward to hearing your update. Merry Christmas & a Blessed New year🌲🙏
Nice to see you back on the channel, hope you are well now. I am Usman and have been following you for a year,!!! Cassey you look like better confident
It’s nice to see you back. I have been following you for a while. I also had COVID before my FND got bad, but I feel my FND was more from a nervous breakdown and just escalated from there. I never hit my head (unless as a child counts). My symptoms came on more when I took a medication a psychiatrist gave me. I only took it for 2 days and the 3rd day it was only half a dose before I quit. I hate taking medication because I fear side effects. From there it was like a switch, it seams like I developed turrets. I don’t actually know the root cause, but I’ve learned to live with it and be grateful that i don’t get full blown seizures and my gait is fine.
I hope you keep posting because it does help others process what we are going through.
Merry Christmas!
@@alinabohn765 hi lovely, thanks for writing and sharing that. Its so interesting the things that can trigger it. I do believe it’s quite complex and can have many factors to it. Thanks for the kind words. Happy holidays 🫶💫
It is really nice to see a video from you. I don't know anyone in my real life with FND, and it is nice to hear other people's experiences even if it is just online. FND has really slowed down the trajectory of my life also and it has made me scared to go out in the world. I've also had lots of testing, for some reason doctors love to tell you to take the same test again except with their people or whatever, but it has all come back normal (hence the FND diognosis). I was diognosed with Tourette's syndrome by some quack neurologist first before my dad discovered FND online and found someone to test and diognose me with it. If you are looking to get diognosed with POTS you want to get a tilt table test. I wish you the best of luck and hopefully you'll be able to get more appointments and testing now. I'm about to try dialectical behavioral therapy to see if it helps with my mental health and FND. I've heard that ketamine alongside therapy can help with neurological disorders like FND, but I didnt find ketamine helpful.
@@whimsyelf7832 hiya! Thanks for sharing. It’s so funny that drs do that. Thinking that they might know better. What was ketamine therapy like? I’ve been thinking about psychedelic therapy! Sending lots of love 💕
@casseyklie I did intranasal ketamine under the brand spravato and it's done in a clinical setting. I did it for a month a couple times a week and found it didn't help my mental health. I found the trips were upsetting and I would question reality and fundamental rules of the world and society. But everyone has different experiences. I also read after the fact that you are supposed to do it alongside therapy for it to be most effective.
That's awesome that you are able to go & get checked out & be heard. Ive had fnd 2 yrs now everyday is a challenge but gotta keep trying ive been my own advocate, since Drs. In michigan do not understand fnd. Keep up the good work & wish you luck look forward to hearing your update. Merry Christmas & a Blessed New year🌲🙏
@@MarieBlackburn-l9t yes stay strong! Use your voice and stand up for yourself and never give up on that. Happy holidays love 💕
It's really good to see you again. I love your updates. It helps to feel less alone
@@filmfan3697 bless your heart 💜 that makes. Me happy to hear. Sending so much love
@@casseyklie And to you x
glad to see you and I wish you have a fruitful journey to Vancouver keep us informed about your progress . Merry Christmas and a happy new year.
@@amanigh2189 thank you so much! Hope you have a peaceful holiday 🫶
I have been wondering how you are. Very glad to see you again!!!
@@flower-forest awe you warm my heart! Sending love ❤️
Nice to see you back on the channel, hope you are well now.
I am Usman and have been following you for a year,!!! Cassey you look like better confident
@ Hi Usman! Thanks for the follow I so appreciate it.
@@casseyklie keep posting videos