I just walked 500 miles with FND and learned that my thoughts and what I tell my brain matters so much both with my mental health and managing fnd symptoms. I never thought this was something i would be able to do but getting uncomfortable for a while taught me so much about my anxiety and even more about what can trigger fnd symptoms and how to overcome them. And dont get me wrong, im still struggling, i still have symptoms, my anxiety still is horrible. It didnt cure me, but it was a huge step for me.While a long hike like that isnt for everyone with FND, just getting out of your comfort zone little by little and realizing that you're experiencing discomfort, not danger, can shift everything. Good for you going to the gym, especially if it terrifies you. Before you know it, youll be comfortable there and have taught your brain that this big scary loud place never needed to be scary 😊
Hi my name is Liz and I have this and epilepsy. I've been suffering with this for years but didn't know what it was until recently. I just wanted to say thank you so much for making videos about and posting your journey. You're a true inspiration. 💖 I've been feeling so hopeless latley after many medical tests done wjich turn out normal and 3 visits to the hospital where they dont even know how to treat me or understand me the past year. No doctors or hospitals will take me seriously. I had an extremley rough life and alot of emotiomal trauma growing up as well, but now I have a beautiful wife, 4 children, and am also deeply into anything spirituality related, but this condition had been getting in my way of living, functioning and even going out or getting up some days. I've been watching your videos since last night and can relate so much to everything you've been through with this condition and otherwise. Thank you for giving me hope 💖
Great topic! Recently diagnosed with FND and have been finding myself wanting to learn more about the human brain. I talked to my physical therapist and told her I was considering to experiment by listening to binaural beats. I seem to have “connectivity” issues in my brain but also my heart and I depend on a pacemaker for my heart. I’m curious to see if anyone else with FND has had any improvements from music therapy or specifically binaural beats? I don’t have a psychological component to my disorder but I believe mind set is very important in anyone’s healing mental and/or physical. I have improved my overall thinking many years ago and although FND still came into my life, it has helped me deal with all these major changes in a more positive way. Wishing so much love to anyone out there struggling ❤🙏 Also I love Michael Sealey!! I’m really proud of you too Cassey. All of your goals are great ones to have and yes we need to give ourselves grace while we try to achieve those things ❤
Thanks for sharing that Jessica! I really enjoy binaural beats as well. Theres a meditation app caller brain tap or mind fit but they use binaural beats with their meditations. My chiropractor would have me do sessions with it if i was having seizures and it would help me calm down!
Playing or learning to play an instrument can be very helpful as a distraction technique for FD/FND symptoms. You can just add it to your 'toolkit' of coping strategies. Plus it's great fun regardless of whether you're a beginner or proficient.
Hi Cassy. What a great video. This is your best one so far. There's so much to unpack and discuss here. Definitely use the pool as much as possible. I've taken my first steps towards learning the skill of freediving because apart from looking like amazing fun it occurred to me that with sufficient time and practice the necessary breathing and relaxation techniques can induce something akin to a meditative state due to the need for every muscle in the body to relax in order to conserve oxygen as much as possible. Plus you can practice on your bed, you don't have to be in a pool to do the exercises. Gyms are a tricky one. I tend to workout at home but I also use a crossfit gym from time to time. Crossfit is useful because it's non judgemental, very community oriented and supportive (if it's a decent gym at least). Nobody is comparing pecs or making cringey tiktok videos . So much of this video resonated with me tbh. This condition is in my opinion something we have to learn to live with and manage rather than obsessing about 'beating'. Find a lifestyle that supports your health requirements and live it with a clear conscience. I'm close to full withdrawal from amitriptyline right now and it's been a tough couple of weeks but I kept reminding myself that it's OK do less, spend more time lying on the bed etc. I had to forgive myself for being ill. It's taken a long time that understand I haven't somehow failed at life but rather I'm just not always living it in a manner that's conducive to managing the FD. Anyway, next week I begin hypnotherapy. There's quite a bit of positive feedback about its application for treating this condition. Hopefully I'll be able to share this feedback with you in the near future. Keep doing what you're doing Cassy. I'll remember to include you in my prayers.
Wow thanks for sharing! I really enjoyed reading your comment. I love what you’ve been doing. Youre so pro active it’s amazing. You have such a positive approach!
@@casseyklie Well as cheesy as it sounds, the classic line from the the movie 'The Shawshank Redemption' is perfectly applicable here : 'either get busy living or get busy dying' . All the best Cassey, looking forward to your next update.
I ve struggled daily for 2 years with FND , i live on the living room floor I can’t sit in a chair or sleep in bed it’s to painful, I can hardly walk , the fatigue is horrendous and my ability to stand is getting worse , I just feel like it’s getting worse ,I’m not a weak minded person I was agoraphobic unable to leave the house for 4 years and I overcame that , i have not had a drink nearly 8 years feb 17 - I can’t seem to get anywhere with this . If I did a little bit I be so drained and tired the nxt few days I don’t know how to get around this at all I have not had a good day since been I’ll it’s either a really bad day or a bad day , is anyone same as me reading this .
I’m sorry to hear you’re having such a tough time. This is definitely not an easy illness. I think that healing time looks different from person to person. I hope you can find joy in little things and celebrate small wins. I’m rooting for you❤️
Look into the DNRS program this programmed really help me. I was having extreme fatigue/mysterious illness/ chemical sensitivities and a lot of other symptoms. there are other programs out there too. There’s somatic therapy too.
Wicked video!...as I was watching this video I was relating to nearly everything you were saying 😮 Things about school... wanting to be ill...being alone wanting to do my art work...over thinking my thoughts life...stress. A brilliant book I think you would like is called the 'The power of now' can't remember the name of the author 🤔 Anyway Throughout Christmas and new years I've been having a really rubbish time too with my seizures and not sleeping feeling numb, the worst I've had all year.😴😅 I watched/listened to the video last night, the audiobook 'sleep hypnosis' from your link. And guess what?...yh I fell asleep!! Whoop 🙌 Soooo.... wanting to thank you for your truthful talk and sharing your experiences. Keep the videos coming! Best one I have watched and related to so far. 🤜💥🤛
Thank you for watching and your kind words! It means so much. Im glad the sleep hypnosis helped. Ive read the power of now!! Such an awesome book. I wishing you well! 💝
Cassey, Great video! The mic works so much better now. Love to hear that you feel inspired and more confident lately. Sorry if I sound like a mom, but I see you blossoming. And it is beautiful. I see you as an extremely spiritual being and that can be difficult in a mostly non-spiritual world. (Well in North America anyway) You are inspiring others as well. As for manifesting our illnesses- I still don't know what I think. This is no exaggeration but I've been depressed since age 7 or 8. Not diagnosed or treated until i was 35. 15 years later, I was finally getting to the bottom of things and feeling a sense of healing. It is glorious. But as my mind & soul healed BAM! FND showed up. I'm like "for real?!?" One of my therapists suggested that maybe my body is catching up to my mind. That definitely lends toward a conversion disorder way of thinking, which I know many bristle at, but I'm open to anything at this point! Whatever I have to do to get better is ok with me. I'm 2 years into this and recently the physical symptoms have become less frequent (yay!) But now, the cognitive deficits are more obvious (boo....) So my goal is to find someone who can help me work on improving those. I also believe that humans are mind, body & spirit. And I want to further integrate those 3 parts of me. I wish you continued healing and all the best of things in 2024!
Awesome I’m so glad the mic quality is better. I’m all for the mom vibes! Thank you for your kind words and sharing your view. I’m so glad to hear things are somewhat getting better. It’s a slow journey but as things get better and we heal it’s so rewarding. Happy new years. I appreciate your on going support 🥰❤️
![ปฏิเสธไม่ไหว (Crush on you) - LIPTA feat. No One Else [Official MV]](http://i.ytimg.com/vi/NBw1jF342vw/mqdefault.jpg)
I just walked 500 miles with FND and learned that my thoughts and what I tell my brain matters so much both with my mental health and managing fnd symptoms. I never thought this was something i would be able to do but getting uncomfortable for a while taught me so much about my anxiety and even more about what can trigger fnd symptoms and how to overcome them. And dont get me wrong, im still struggling, i still have symptoms, my anxiety still is horrible. It didnt cure me, but it was a huge step for me.While a long hike like that isnt for everyone with FND, just getting out of your comfort zone little by little and realizing that you're experiencing discomfort, not danger, can shift everything. Good for you going to the gym, especially if it terrifies you. Before you know it, youll be comfortable there and have taught your brain that this big scary loud place never needed to be scary 😊
Wow good for you! This is awesome to read. I love the positivity.
Hi my name is Liz and I have this and epilepsy. I've been suffering with this for years but didn't know what it was until recently. I just wanted to say thank you so much for making videos about and posting your journey. You're a true inspiration. 💖 I've been feeling so hopeless latley after many medical tests done wjich turn out normal and 3 visits to the hospital where they dont even know how to treat me or understand me the past year. No doctors or hospitals will take me seriously. I had an extremley rough life and alot of emotiomal trauma growing up as well, but now I have a beautiful wife, 4 children, and am also deeply into anything spirituality related, but this condition had been getting in my way of living, functioning and even going out or getting up some days. I've been watching your videos since last night and can relate so much to everything you've been through with this condition and otherwise. Thank you for giving me hope 💖
Awe wow thank you for sharing a bit of your story. Youre so strong. Im rooting for you. One day at a time 💗
Thank you so much! 💖
Great topic! Recently diagnosed with FND and have been finding myself wanting to learn more about the human brain. I talked to my physical therapist and told her I was considering to experiment by listening to binaural beats. I seem to have “connectivity” issues in my brain but also my heart and I depend on a pacemaker for my heart. I’m curious to see if anyone else with FND has had any improvements from music therapy or specifically binaural beats? I don’t have a psychological component to my disorder but I believe mind set is very important in anyone’s healing mental and/or physical. I have improved my overall thinking many years ago and although FND still came into my life, it has helped me deal with all these major changes in a more positive way. Wishing so much love to anyone out there struggling ❤🙏 Also I love Michael Sealey!! I’m really proud of you too Cassey. All of your goals are great ones to have and yes we need to give ourselves grace while we try to achieve those things ❤
Thanks for sharing that Jessica! I really enjoy binaural beats as well. Theres a meditation app caller brain tap or mind fit but they use binaural beats with their meditations. My chiropractor would have me do sessions with it if i was having seizures and it would help me calm down!
Playing or learning to play an instrument can be very helpful as a distraction technique for FD/FND symptoms. You can just add it to your 'toolkit' of coping strategies. Plus it's great fun regardless of whether you're a beginner or proficient.
@@casseyklie oh cool! I’ll check it out. Even if it doesn’t end up helping me with FND. I enjoy how I feel when I listen to them. Take care!
Inflamation in the brain is serious, if some parts are damaged person cant visual, or thinkn"good" thoughts 😊
Hi Cassy. What a great video. This is your best one so far. There's so much to unpack and discuss here. Definitely use the pool as much as possible. I've taken my first steps towards learning the skill of freediving because apart from looking like amazing fun it occurred to me that with sufficient time and practice the necessary breathing and relaxation techniques can induce something akin to a meditative state due to the need for every muscle in the body to relax in order to conserve oxygen as much as possible. Plus you can practice on your bed, you don't have to be in a pool to do the exercises.
Gyms are a tricky one. I tend to workout at home but I also use a crossfit gym from time to time. Crossfit is useful because it's non judgemental, very community oriented and supportive (if it's a decent gym at least). Nobody is comparing pecs or making cringey tiktok videos . So much of this video resonated with me tbh. This condition is in my opinion something we have to learn to live with and manage rather than obsessing about 'beating'. Find a lifestyle that supports your health requirements and live it with a clear conscience. I'm close to full withdrawal from amitriptyline right now and it's been a tough couple of weeks but I kept reminding myself that it's OK do less, spend more time lying on the bed etc. I had to forgive myself for being ill. It's taken a long time that understand I haven't somehow failed at life but rather I'm just not always living it in a manner that's conducive to managing the FD. Anyway, next week I begin hypnotherapy. There's quite a bit of positive feedback about its application for treating this condition. Hopefully I'll be able to share this feedback with you in the near future. Keep doing what you're doing Cassy. I'll remember to include you in my prayers.
Wow thanks for sharing! I really enjoyed reading your comment. I love what you’ve been doing. Youre so pro active it’s amazing. You have such a positive approach!
@@casseyklie Well as cheesy as it sounds, the classic line from the the movie 'The Shawshank Redemption' is perfectly applicable here : 'either get busy living or get busy dying' . All the best Cassey, looking forward to your next update.
I ve struggled daily for 2 years with FND , i live on the living room floor I can’t sit in a chair or sleep in bed it’s to painful, I can hardly walk , the fatigue is horrendous and my ability to stand is getting worse , I just feel like it’s getting worse ,I’m not a weak minded person I was agoraphobic unable to leave the house for 4 years and I overcame that , i have not had a drink nearly 8 years feb 17 - I can’t seem to get anywhere with this .
If I did a little bit I be so drained and tired the nxt few days I don’t know how to get around this at all I have not had a good day since been I’ll it’s either a really bad day or a bad day , is anyone same as me reading this .
I’m sorry to hear you’re having such a tough time. This is definitely not an easy illness. I think that healing time looks different from person to person. I hope you can find joy in little things and celebrate small wins. I’m rooting for you❤️
@@casseyklie thanks for kind message, I think I just have to except situation and thankyou for doing the videos take care
Look into the DNRS program this programmed really help me. I was having extreme fatigue/mysterious illness/ chemical sensitivities and a lot of other symptoms. there are other programs out there too. There’s somatic therapy too.
Gupta program
@@carriejuranek7209 thank you I will take a look at it ,I appreciate your message
Wicked video!...as I was watching this video I was relating to nearly everything you were saying 😮
Things about school... wanting to be ill...being alone wanting to do my art work...over thinking my thoughts life...stress.
A brilliant book I think you would like is called the 'The power of now' can't remember the name of the author 🤔
Anyway
Throughout Christmas and new years I've been having a really rubbish time too with my seizures and not sleeping feeling numb, the worst I've had all year.😴😅
I watched/listened to the video last night, the audiobook 'sleep hypnosis' from your link.
And guess what?...yh I fell asleep!!
Whoop 🙌
Soooo.... wanting to thank you for your truthful talk and sharing your experiences.
Keep the videos coming!
Best one I have watched and related to so far.
🤜💥🤛
Thank you for watching and your kind words! It means so much. Im glad the sleep hypnosis helped. Ive read the power of now!! Such an awesome book. I wishing you well! 💝
Cassey, Great video! The mic works so much better now. Love to hear that you feel inspired and more confident lately. Sorry if I sound like a mom, but I see you blossoming. And it is beautiful. I see you as an extremely spiritual being and that can be difficult in a mostly non-spiritual world. (Well in North America anyway) You are inspiring others as well.
As for manifesting our illnesses- I still don't know what I think. This is no exaggeration but I've been depressed since age 7 or 8. Not diagnosed or treated until i was 35. 15 years later, I was finally getting to the bottom of things and feeling a sense of healing. It is glorious. But as my mind & soul healed BAM! FND showed up. I'm like "for real?!?" One of my therapists suggested that maybe my body is catching up to my mind. That definitely lends toward a conversion disorder way of thinking, which I know many bristle at, but I'm open to anything at this point! Whatever I have to do to get better is ok with me. I'm 2 years into this and recently the physical symptoms have become less frequent (yay!) But now, the cognitive deficits are more obvious (boo....) So my goal is to find someone who can help me work on improving those.
I also believe that humans are mind, body & spirit. And I want to further integrate those 3 parts of me. I wish you continued healing and all the best of things in 2024!
Awesome I’m so glad the mic quality is better. I’m all for the mom vibes! Thank you for your kind words and sharing your view. I’m so glad to hear things are somewhat getting better. It’s a slow journey but as things get better and we heal it’s so rewarding. Happy new years. I appreciate your on going support 🥰❤️
What if I manifestes almost everything, but at the same time get sick and even I belive and manifest as I can, health go still down, chronic infection
Happy New year Cassey !! Tanks for your Video !! It's inspire me very much!! 😃🙏💞
Thank you for watching ❤️
Hi. So, I thought at one time FND stems from genetics 🤔✌🏻
Im not sure! I haven’t heard that anywhere but it could be possible!