i'm autistic too! i do think that the pressure to perform socially "correctly" caused more stress on my body and probably contributed to how little i'm able to do nowadays. i do work full time, but i believe my ability to do that is dependent on the fact that i work remotely and also don't have to deal with the public. even then i'll admit i don't have energy to do much outside of work so i see friends/people very infrequently. i need a lot of time alone to recharge and minimize stress. it's taken time but i know this is my new normal and the thing that prevents me from totally burning out. it seems like i have to take life in very small increments compared to other people. if i compare myself to others, it does make me feel bad, but i know that every time i try to live the way they do i totally crumble! (also, i learned about something called "demand avoidance" recently in relation to ASD, i'm still learning more but i wonder if you'd relate to it? in hindsight i think many of my problems working prior to my current job were that there were too many explicit and implicit demands.) my ASD diagnosis is i think 7 years old now. over time that one in particular causes less shame than it used to, and i've found that by being more open i wind up collecting more neurodivergent people in my life which helps. for example, i can ask for feedback on a situation that i had a hard time "reading" and we can all put our heads together without feeling embarrassed. i've found that pretty helpful. i do deal with shame still. i've found that shame only festers when you don't talk about it, so talking about it like you're doing here is really useful - not just for your own sake but for other people. i know i feel less alone hearing about these experiences. anyway wishing you well!
Hi from France nisukr. Thanks so much talking about autism. I Think I have a neurological trouble but I don’t have any medical answer at the moment. I’ m still following psychological therapy and physical therapy. I’ll give you news of my health. French scientists are very late about autism and high potential….It is so sad. 🥲 This is why I read every day all I find on « you tube » about FND and neurological conditions.
I know how hard it must be sometimes to make a video and post it but, when I read the comments you’re getting, you are so much making a difference and helping people. Thanks for taking the time to share 😇
Thank you so so much for your videos. I can't tell you how much they are helping me. I'm not diagnosed with FND, I've been diagnosed with various mental illnesses but I live just like you and I feel the same as you do, have similar symptoms. I've taken all my stress into my body and the fatigue is insane as is doing the simplest of tasks. Take care.
Hi Casey. Don’t feel ashamed about your self. I have felt shame as well not being able to hold down a full time job for most of my life. If you feel shame then it’s true that you want to work if you could so good is inside of you whoever you are able or not. I am part of the way through an Autism assessment and it explains quite a lot of things. Also spiky education history on a very part time basis. This and that but finding it hard to apply in the real world then now I realise my inner self guided me to Graphics and visual communication. Still part time. As well had to live off the UK equivalent of disability. Over the years I have done part time voluntary work helping others. Some examples, graphics for charities, types of support work some even involved helping traumatised soldiers, pushing wheelchairs for shopping, helping research for an Autism Awareness course. Again it is different for everyone in terms of what suits and how much one is capable of. With me a few hours a week. By the way I saw you videos showing your spasms. I felt OMG, OMG that is me except milder. Just to let you know as a child my father was killed in a shotgun accident, at nine I was badly burned in a house fire, at 11 I was run over by a car. Hospitalised by both. But the most hard thing I have had to put up with is body tension and spasms because the torture has been so long term. I have only learned recently that Functional Neurological Disorder is common with Autism. I have been referred to a neurologist and wondering what is it all about. Again you are a humanly valuable being. It is not your fault. You have all good reason to value yourself. Good luck with all the art progress. Love and light to you.
Hi Cassey, I'm sorry this has happened to you ! I have recently been diagnosed with Functional Neurological Disorder .The first time this in September 2022 happened to me I could not ,walk ,talk ,think and it was presenting symptoms of a stroke also I was hallucinating, like you all physical tests came back as normal and had no answers for me and I was wrongly put in a psychiatric ward for two weeks without any help or medication eventually over the weeks it had calmed down by itself . Still no diagnosis was given . Then on Christmas eve it happened again which put me in hospital until the 10th January as they gave me physio to help me walk again not perfect but ok now. The thing that troubles me is that it can happen without any warning ! Like you I have been told there's not any answers as to why or how this has happened . Find it a bit scary to be honest . Enjoyed your video I was just like you when in Hospital. Hope your well would be good to hear of your experiences and how often FND rears its ugly head . All The Best Stephen x P.S I was diagnosed with ADHD in October 2022 which evidently I have had all my life :(
I feel like in the west, or at least with my experience in the United States, there is a very individualist culture. We are expected to be self suficient and totally independent, but humans are naturally social creatures that have relied on eachother to become the worldwide, successful creatures we are. It's a myth that humans should be independent, and a lot of cultures value living with family, supporting the disabled and elderly, and working with your community. I think it's really sad we live under governments, corporations, and societies that make us feel like we need to work for them when they should work for us. Don't feel shame for needing support from others, everyone does. It's natural. Perhaps try making friends with people online who have similar experiences as you with disability and fnd and what not. I think also redefining success is important. Society says being successful is having money, working all the time and getting farther in your job, having a family and a white picket fence in front of your big suburban house. However, that doesn't have to be how you define success. Success can be learning to love yourself, learning to be kind to yourself, learning about the world around you and supporting the people you love the best you can with what you have. Being disabled/neurodivergent is kind of like being a fish on land told to race with wolves. Everyone judges you for not being able to run, much less walk, but you weren't built to walk on land, you were build to swim, and most of the wolves in the world won't take you to a river. Does that make sense? The world isn't built for people like us and getting accommodations can feel like a struggle, but focus on your strengths and what you can do, not what you can't. You like repetitive tasks and finding time away from people, maybe a remote job that is repetitive would be good for you. I hope none of this sounded like unsolicited advice or rubbed you the wrong way, I'm just also another fish expected to run on land trying to find my way. Things will get better, you just have to wait it out sometimes.
I can really relate to you I have felt the same way and didn't realize this and now I'm in a rehab center I need to change my style of living and I'm 65 years old and I shake my body shake when I stand up I pull up my pants up in the bathroom my Medicaid waiver caregivers help me get dressed etc
Hi Cassey. I feel the same thing than you. I feel very ashamed as a wife, as a mother. My husband takes care of me: I’m so lucky to have my husband. He knows I ´ m a chronical ill since my birth…. I enjoy very much talking English with you. I hope we will get better health both and all the FND ills in the future. Take care of you Cassey. Friendly. Chris. 🌈🌈🌈🌈🌈🌈🌈
@@casseyklie Do you understand my English Cassey? Because sometimes when I’m very tired or under stress ( very often), I look for my words in French… 😂🤣😂🤪 I’ve got memory problems too.
Iv got tics now functional outbursts shout use bad language click lock in body bladder problems and b u name it completely wrippen through my central nervous system now
Casey hello hope you are ok . .. we talked about Prof John stone before .. please please if you get time .. look for Hi ren on you tube .. artist ren .. song Hi ren .. I know you and others reading will get it .. sending love and peace 💖
You need to slap yourself in to reality, most of the shame you have is self created. You need to re- wire that brain. I find myself sometimes feeling stress or worry, sometimes that causes me to feel really weak or sometimes I feel numbness but I find it easy when I trie to feel my brain. Yeah it sounds weird but when I get stress, I can feel like a cloud roaming inside my head. I focus on feeling of that cloud, what I do is to feel it and then relax it. Sort of like if it was a muscle make it tense and then relax. But in order to do this you must stop thinking completely and focus on feeling your head.. idk try it, see if it helps. I hope you know there is path to getting better but sometimes you need to create it. Don’t let the outside world affect how you feel, you have control . Chase that stress little by little you can re-wire that brain.that stress will become in to nothing. regain control of you brains un subconscious impulses and trained that brain to create better path ways
Hi Cassey. You’re not alone to live this kind of Life. I never had a full time job. I have got three children: Anthony, 26 years old, Aurore, 23 years old and Adrien, 16 years old. My husband is a policeman. I decided to Take care of my children by myself and most of my friends didn’t understand my choice because I had a degree in Spanich Litterature (Three years nivel in a French university called licence in French). So I could be a teacher with a more year of studies… And before my condition just 15 days after my second pfizer injection on July of 2021, I was a Nanny. I loved my job but I don’t know if I will be able to work again….I feel loneliness too. 🥲 Friendly. Chris.
You can tell people you're an artist, content creator, and you love to be in nature. I feel so much shame and guilt especially in asking for help.
i'm autistic too! i do think that the pressure to perform socially "correctly" caused more stress on my body and probably contributed to how little i'm able to do nowadays. i do work full time, but i believe my ability to do that is dependent on the fact that i work remotely and also don't have to deal with the public. even then i'll admit i don't have energy to do much outside of work so i see friends/people very infrequently. i need a lot of time alone to recharge and minimize stress. it's taken time but i know this is my new normal and the thing that prevents me from totally burning out. it seems like i have to take life in very small increments compared to other people. if i compare myself to others, it does make me feel bad, but i know that every time i try to live the way they do i totally crumble! (also, i learned about something called "demand avoidance" recently in relation to ASD, i'm still learning more but i wonder if you'd relate to it? in hindsight i think many of my problems working prior to my current job were that there were too many explicit and implicit demands.)
my ASD diagnosis is i think 7 years old now. over time that one in particular causes less shame than it used to, and i've found that by being more open i wind up collecting more neurodivergent people in my life which helps. for example, i can ask for feedback on a situation that i had a hard time "reading" and we can all put our heads together without feeling embarrassed. i've found that pretty helpful. i do deal with shame still. i've found that shame only festers when you don't talk about it, so talking about it like you're doing here is really useful - not just for your own sake but for other people. i know i feel less alone hearing about these experiences. anyway wishing you well!
Thank you for your words!
Hi from France nisukr.
Thanks so much talking about autism. I Think I have a neurological trouble but I don’t have any medical answer at the moment. I’ m still following psychological therapy and physical therapy.
I’ll give you news of my health.
French scientists are very late about autism and high potential….It is so sad. 🥲
This is why I read every day all I find on « you tube » about FND and neurological conditions.
I’m not aloud to work drive cook I feel trapped in this FND journey
I know how hard it must be sometimes to make a video and post it but, when I read the comments you’re getting, you are so much making a difference and helping people. Thanks for taking the time to share 😇
Thank you so much!!
I feel like I’m physically drowning
I’m so proud of u FND warriors
Thank you so so much for your videos. I can't tell you how much they are helping me. I'm not diagnosed with FND, I've been diagnosed with various mental illnesses but I live just like you and I feel the same as you do, have similar symptoms. I've taken all my stress into my body and the fatigue is insane as is doing the simplest of tasks. Take care.
Awe thank you for sharing, Im glad I could help a bit
Hi Casey. Don’t feel ashamed about your self. I have felt shame as well not being able to hold down a full time job for most of my life. If you feel shame then it’s true that you want to work if you could so good is inside of you whoever you are able or not. I am part of the way through an Autism assessment and it explains quite a lot of things. Also spiky education history on a very part time basis. This and that but finding it hard to apply in the real world then now I realise my inner self guided me to Graphics and visual communication. Still part time. As well had to live off the UK equivalent of disability.
Over the years I have done part time voluntary work helping others. Some examples, graphics for charities, types of support work some even involved helping traumatised soldiers, pushing wheelchairs for shopping, helping research for an Autism Awareness course. Again it is different for everyone in terms of what suits and how much one is capable of. With me a few hours a week.
By the way I saw you videos showing your spasms. I felt OMG, OMG that is me except milder. Just to let you know as a child my father was killed in a shotgun accident, at nine I was badly burned in a house fire, at 11 I was run over by a car. Hospitalised by both. But the most hard thing I have had to put up with is body tension and spasms because the torture has been so long term. I have only learned recently that Functional Neurological Disorder is common with Autism. I have been referred to a neurologist and wondering what is it all about.
Again you are a humanly valuable being. It is not your fault. You have all good reason to value yourself. Good luck with all the art progress. Love and light to you.
Thank you for sharing your story and thank you for your kind words. My heart goes out to you
Hi I’m back I truly understand
Hi Cassey, I'm sorry this has happened to you ! I have recently been diagnosed with Functional Neurological Disorder .The first time this in September 2022 happened to me I could not ,walk ,talk ,think and it was presenting symptoms of a stroke also I was hallucinating, like you all physical tests came back as normal and had no answers for me and I was wrongly put in a psychiatric ward for two weeks without any help or medication eventually over the weeks it had calmed down by itself . Still no diagnosis was given . Then on Christmas eve it happened again which put me in hospital until the 10th January as they gave me physio to help me walk again not perfect but ok now. The thing that troubles me is that it can happen without any warning ! Like you I have been told there's not any answers as to why or how this has happened . Find it a bit scary to be honest . Enjoyed your video I was just like you when in Hospital. Hope your well would be good to hear of your experiences and how often FND rears its ugly head .
All The Best
Stephen x
P.S I was diagnosed with ADHD in October 2022 which evidently I have had all my life :(
Hey Stephen, Thanks for sharing a bit of your story. Im so sorry that It has been tough for you. Im wishing you the best!
@@casseyklie ❤
My daughter has just been diagnostics with FND.
I feel like in the west, or at least with my experience in the United States, there is a very individualist culture. We are expected to be self suficient and totally independent, but humans are naturally social creatures that have relied on eachother to become the worldwide, successful creatures we are. It's a myth that humans should be independent, and a lot of cultures value living with family, supporting the disabled and elderly, and working with your community. I think it's really sad we live under governments, corporations, and societies that make us feel like we need to work for them when they should work for us. Don't feel shame for needing support from others, everyone does. It's natural. Perhaps try making friends with people online who have similar experiences as you with disability and fnd and what not. I think also redefining success is important. Society says being successful is having money, working all the time and getting farther in your job, having a family and a white picket fence in front of your big suburban house. However, that doesn't have to be how you define success. Success can be learning to love yourself, learning to be kind to yourself, learning about the world around you and supporting the people you love the best you can with what you have. Being disabled/neurodivergent is kind of like being a fish on land told to race with wolves. Everyone judges you for not being able to run, much less walk, but you weren't built to walk on land, you were build to swim, and most of the wolves in the world won't take you to a river. Does that make sense? The world isn't built for people like us and getting accommodations can feel like a struggle, but focus on your strengths and what you can do, not what you can't. You like repetitive tasks and finding time away from people, maybe a remote job that is repetitive would be good for you. I hope none of this sounded like unsolicited advice or rubbed you the wrong way, I'm just also another fish expected to run on land trying to find my way. Things will get better, you just have to wait it out sometimes.
Thank you for your lovely words.
I can really relate to you I have felt the same way and didn't realize this and now I'm in a rehab center I need to change my style of living and I'm 65 years old and I shake my body shake when I stand up I pull up my pants up in the bathroom my Medicaid waiver caregivers help me get dressed etc
Hi Cassey.
I feel the same thing than you. I feel very ashamed as a wife, as a mother. My husband takes care of me: I’m so lucky to have my husband. He knows I ´ m a chronical ill since my birth….
I enjoy very much talking English with you.
I hope we will get better health both and all the FND ills in the future.
Take care of you Cassey.
Friendly.
Chris.
🌈🌈🌈🌈🌈🌈🌈
Hi Chris! Thanks for writing :) Im so glad you have a loving husband! wishing you well
@@casseyklie
Do you understand my English Cassey?
Because sometimes when I’m very tired or under stress ( very often), I look for my words in French…
😂🤣😂🤪
I’ve got memory problems too.
She cried when watching your viseos. Ty, i hope she reaches out to you. Watch Dene’ Brown on the topic of shame. Love you little lady❣️
Awe Im glad I can be of some help
Iv got tics now functional outbursts shout use bad language click lock in body bladder problems and b u name it completely wrippen through my central nervous system now
Thank u
Try ruqya..it's actually demon possession
Casey hello hope you are ok . .. we talked about Prof John stone before .. please please if you get time .. look for Hi ren on you tube .. artist ren .. song Hi ren .. I know you and others reading will get it .. sending love and peace 💖
I’m a Christian woman of god I never use bad language it’s making do animals noises I’m so ashamed kindness suzy q Buck
You need to slap yourself in to reality, most of the shame you have is self created. You need to re- wire that brain. I find myself sometimes feeling stress or worry, sometimes that causes me to feel really weak or sometimes I feel numbness but I find it easy when I trie to feel my brain. Yeah it sounds weird but when I get stress, I can feel like a cloud roaming inside my head. I focus on feeling of that cloud, what I do is to feel it and then relax it. Sort of like if it was a muscle make it tense and then relax. But in order to do this you must stop thinking completely and focus on feeling your head.. idk try it, see if it helps. I hope you know there is path to getting better but sometimes you need to create it. Don’t let the outside world affect how you feel, you have control . Chase that stress little by little you can re-wire that brain.that stress will become in to nothing. regain control of you brains un subconscious impulses and trained that brain to create better path ways
Great comment thanks. I find your "feel your head" point very interesting.
Hi Cassey.
You’re not alone to live this kind of Life.
I never had a full time job.
I have got three children:
Anthony, 26 years old, Aurore, 23 years old and Adrien, 16 years old. My husband is a policeman. I decided to Take care of my children by myself and most of my friends didn’t understand my choice because I had a degree in Spanich Litterature (Three years nivel in a French university called licence in French). So I could be a teacher with a more year of studies…
And before my condition just 15 days after my second pfizer injection on July of 2021, I was a Nanny.
I loved my job but I don’t know if I will be able to work again….I feel loneliness too. 🥲
Friendly.
Chris.