Bravo to you even attempting to find volunteer work, i totally get the desire to do something that makes you feel like you have a place in society again. Im dealing with the same feelings and hopes. The right thing will come your way though! Hopefully the right thing comes both our ways! I cant watch the whole video tonight because its way late now, but just wanted to comment and say that as of like halfway through the video, everything youre saying resonates. You're definitely not alone in these feelings and concerns! Also we assume people are judging us but in reality, most people dont give other people a second thought, theyre so wrapped up in themselves and their thoughts and appearances. Wear headphones if they help and don't worry about what other people think. We have to talk to ourselves with the same conpassion we would talk to a beat friend with. If the headphones helped, youd encourage your best friend to wear them and use words to build her back up, and say things like 'screw the haters, you do you!'
Hi Cassey, glad I found your channel and have subscribed, I have had FND for 5 plus years and know exactly how debilitating it is, stay strong woman, I get your symptoms too and it's horrible but we are stronger for going through this, much love from Australia. Peace ✌️
Firstly, thank you Cassey for sharing and being so honest, with us and others. Regardless of how they receive it, we find it so helpful. ❤ I'm half way through your video and I'm heartbroken for you and your most recent experiences. So, so unfair. Every instance you've had lately have been discrimination and ableism. It is *not* you and those studios broke the law, at least UK law. It's odd you released this today because for the first time in months/years I admitted to myself and my partner that I was lonely. I've had a similar journey to you over the past 3 years (diagnosed now for 7 months, I'm struggling to come to terms with it all still) and I turned 30 this month, so everything you're saying is validated and reflected back! I was a self-employed wedding photographer before sudden disablement and now I'm trying to sell my photographs of Nature via dropshipping and as little input needed from me as possible. Hoping that will mean I'm more likely to sustain the business. Your art is lovely and lately I realised, people like us, maybe we aren't made for their normal world, but it's okay because we can create our own world with our own ideal working scenarios and a life we enjoy for us, not because it's what we think we should do. Yes, it's tiring working out new ways to do things and rebuilding the bloody wheel everytime but look at you, making these helpful videos for us. A TH-camr or an artist don't have "normal" lives either, and they may not be disabled, it just suits them and their brain better, and that's okay! Especially because theyre making the world a better place in their own way. Don't worry about what other people are saying or thinking. *It is your life!* I could write an essay here but I may DM you instead. Would IG be an OK place to reach out? ❤ P.s, do you have SuperThanks enabled on your videos? On TH-cam are you signed up to allow ads before your videos? Try Ko-fi too. Also, have you considered setting up a Patreon? There you could get paid, get help with video ideas for the next month, hear from customers what they'd want to see in your videos in the future, share videos early exclusively (and get feedback before publishing on TH-cam) and have another community thet supports you even more than we can! This money can help you live and enable you to keep making videos until you become monetised by TH-cam. Your abilities and equipment; with camera work, editing, publishing and advertising are all skills that you can utilise to work from home/for yourself and in many sectors. Like I said...I should probably just message you! 😂🎉
Hiya! Wow thank you for the lovely message! I really enjoyed reading it. A wedding photographer! Very cool. I would love to connect on instagram. You have some really good ideas 🥰 my instagram is @ casseyklie , I look forward to hearing from you ❤️
@casseyklie I'm glad, I hoped it helped in some tiny way! ❤ I was writing out a message on here but I closed the app so it deleted it but basically, check these TH-camrs out: Zara Beth - has autism, FND and Tourettes and disussses them all, mobility aids, daily life etc. Jessica Kelgren-Fozard: (@jessicaoutofthecloset) She has multiple chronic illnesses and disabilities, she talks about chronic illness life, tips, mobility aid choosing, holidays etc. Gemma Hubbard: @wheelsnoheels a spinal cord injury survivor from the age of 8, she's hugely motivated me and taught me to use a wheelchair! Also, her lifestyle and her working as a TH-camr might inspire you to do the same and bring the same level of support to the world. 🎉❤ They're all women between 20-40, with chronic conditions, going about life and work in very different ways to everyone else, bringing us along for the ride and hugely motivational for me. You may find great help, comfort and support from these videos, and the wider disabled YT community.
@@casseyklieaww yay, I didn't want to overstep but I felt like I wanted to offer whatever support I can and reach out personally ❤ it's late in the UK now, I will message tomorrow. You're a star 🌟 🤩
Cassey, thank you so much for sharing your story. I can relate to soo many aspects of your experience and it’s not easy. It’s hard enough to manage fnd, all the more when opportunities are getting harder to come by. I’m also at a similar spot where i’ve moved in with my parents, can’t work anymore or drive and it starts to hinder our self worth. But i want to let you know that you’re making a huge impact already by sharing your experience. You’re a beautiful person and you’re doing the best you can. Sending so much love your way ❤️❤️❤️
Hi Casey. Its lovely to see your video. I watched some of your videos in the past and I found them really helpful. I am so very sorry about what happened with that Yoga studio. Its disgusting the way they treated you. I really felt for you. I relate to everything you said. Its funny because I struggle with the same things you do. When I watched you, I felt so much compassion and empathy for you. And at the same time I realised that I have the same thoughts as you, that I don't have a place in society and that people are over it. People rally round us to start with but then decide it's gone on too long. Like you saiid, I felt immense sympathy for you and yet I cant apply it to myself. I, too, feel like a burden and don't know how to explain to people that I can't do simple tasks or why because I cant even understand it myself! Anyway, you've helped me feel less alone and I hope I can help you feel less alone. You're not alone and you are a very kind, compassion person.
Hi Casey, I fully understand these types of struggles too. Sometimes I feel like a huge burden on my family. Six of my children live with me, 4 are adults. Most times I don't even ask them to make me food anymore because after 4yrs now, they seem tired of helping me all the time. I have not left my house for 2.5 yrs because of how I am treated in public. We gotta keep looking for the glimmers of happiness!
No need to apologise, we understand, we are all going through this, different symptoms and new ones arrive, we are the strongest people, its night time here now in the uk and i am dreading sleep as i know il wake up ill in the early hours of the morning shaking and sick.. sending u love
You should read up on Human Rights in Canada because I believe those yoga studios have exercised discrimination based on disability, which is illegal. Take care of yourself.
I understand you perfectly, at the moment I am also looking for work, I hope to find a job soon, I send you a lot of strength, you are a very valuable girl, you don't need to prove anything to anyone❤❤❤
I was just finally diagnosed with FND a day ago. My symptoms have not been near as bad as yours but it has been hell not knowing what was wrong with me.
You have a lot a weight in your shoulders. Stop pretending you don’t .😢 learn from what you say, love the videos you make ❤by the way, So raw an uncut for some that can see the same problem you have keep pushing but not to hard 💩.be your tru nature 🌕🌞 don’t feel like your going to hurt people because of who you are be as “light” as a feather 🪶and has hard as a rock🤘🗿 think Dwayne the Dwayne the freaking rock Johnson You are the freakin Rock Johnson don’t be the rock that don’t move❤🕊️🌳🍃🥲🌱 If one door close another door may be close😂😢 but don’t cry yet Because you hold the key 🔑to the door you haven’t made🚪 Go look for the door that needs to be made,that will fit your key Go get what you need from where you haven’t gone it a journey of judge or be judge 😅 give yourself the benefit of the dougt of what was said in stone Manage stress and inflame of the nervous system. Sorry if went a little crazy 😆😁
Bravo to you even attempting to find volunteer work, i totally get the desire to do something that makes you feel like you have a place in society again. Im dealing with the same feelings and hopes. The right thing will come your way though! Hopefully the right thing comes both our ways!
I cant watch the whole video tonight because its way late now, but just wanted to comment and say that as of like halfway through the video, everything youre saying resonates. You're definitely not alone in these feelings and concerns!
Also we assume people are judging us but in reality, most people dont give other people a second thought, theyre so wrapped up in themselves and their thoughts and appearances. Wear headphones if they help and don't worry about what other people think. We have to talk to ourselves with the same conpassion we would talk to a beat friend with. If the headphones helped, youd encourage your best friend to wear them and use words to build her back up, and say things like 'screw the haters, you do you!'
Awe much love! Thank you for the kind words 💗
Hi Cassey, glad I found your channel and have subscribed, I have had FND for 5 plus years and know exactly how debilitating it is, stay strong woman, I get your symptoms too and it's horrible but we are stronger for going through this, much love from Australia. Peace ✌️
Thanks for tuning in 💕💕
Firstly, thank you Cassey for sharing and being so honest, with us and others. Regardless of how they receive it, we find it so helpful. ❤
I'm half way through your video and I'm heartbroken for you and your most recent experiences. So, so unfair. Every instance you've had lately have been discrimination and ableism. It is *not* you and those studios broke the law, at least UK law.
It's odd you released this today because for the first time in months/years I admitted to myself and my partner that I was lonely. I've had a similar journey to you over the past 3 years (diagnosed now for 7 months, I'm struggling to come to terms with it all still) and I turned 30 this month, so everything you're saying is validated and reflected back! I was a self-employed wedding photographer before sudden disablement and now I'm trying to sell my photographs of Nature via dropshipping and as little input needed from me as possible. Hoping that will mean I'm more likely to sustain the business.
Your art is lovely and lately I realised, people like us, maybe we aren't made for their normal world, but it's okay because we can create our own world with our own ideal working scenarios and a life we enjoy for us, not because it's what we think we should do. Yes, it's tiring working out new ways to do things and rebuilding the bloody wheel everytime but look at you, making these helpful videos for us. A TH-camr or an artist don't have "normal" lives either, and they may not be disabled, it just suits them and their brain better, and that's okay! Especially because theyre making the world a better place in their own way. Don't worry about what other people are saying or thinking.
*It is your life!*
I could write an essay here but I may DM you instead. Would IG be an OK place to reach out? ❤
P.s, do you have SuperThanks enabled on your videos? On TH-cam are you signed up to allow ads before your videos? Try Ko-fi too. Also, have you considered setting up a Patreon? There you could get paid, get help with video ideas for the next month, hear from customers what they'd want to see in your videos in the future, share videos early exclusively (and get feedback before publishing on TH-cam) and have another community thet supports you even more than we can! This money can help you live and enable you to keep making videos until you become monetised by TH-cam. Your abilities and equipment; with camera work, editing, publishing and advertising are all skills that you can utilise to work from home/for yourself and in many sectors. Like I said...I should probably just message you! 😂🎉
Hiya! Wow thank you for the lovely message! I really enjoyed reading it. A wedding photographer! Very cool. I would love to connect on instagram. You have some really good ideas 🥰 my instagram is @ casseyklie , I look forward to hearing from you ❤️
@casseyklie I'm glad, I hoped it helped in some tiny way! ❤ I was writing out a message on here but I closed the app so it deleted it but basically, check these TH-camrs out:
Zara Beth - has autism, FND and Tourettes and disussses them all, mobility aids, daily life etc.
Jessica Kelgren-Fozard: (@jessicaoutofthecloset) She has multiple chronic illnesses and disabilities, she talks about chronic illness life, tips, mobility aid choosing, holidays etc.
Gemma Hubbard: @wheelsnoheels a spinal cord injury survivor from the age of 8, she's hugely motivated me and taught me to use a wheelchair! Also, her lifestyle and her working as a TH-camr might inspire you to do the same and bring the same level of support to the world. 🎉❤
They're all women between 20-40, with chronic conditions, going about life and work in very different ways to everyone else, bringing us along for the ride and hugely motivational for me. You may find great help, comfort and support from these videos, and the wider disabled YT community.
@@casseyklieaww yay, I didn't want to overstep but I felt like I wanted to offer whatever support I can and reach out personally ❤ it's late in the UK now, I will message tomorrow. You're a star 🌟 🤩
Cassey, thank you so much for sharing your story. I can relate to soo many aspects of your experience and it’s not easy. It’s hard enough to manage fnd, all the more when opportunities are getting harder to come by. I’m also at a similar spot where i’ve moved in with my parents, can’t work anymore or drive and it starts to hinder our self worth. But i want to let you know that you’re making a huge impact already by sharing your experience. You’re a beautiful person and you’re doing the best you can. Sending so much love your way ❤️❤️❤️
Much love!
Hi Casey. Its lovely to see your video. I watched some of your videos in the past and I found them really helpful. I am so very sorry about what happened with that Yoga studio. Its disgusting the way they treated you.
I really felt for you. I relate to everything you said. Its funny because I struggle with the same things you do. When I watched you, I felt so much compassion and empathy for you. And at the same time I realised that I have the same thoughts as you, that I don't have a place in society and that people are over it. People rally round us to start with but then decide it's gone on too long. Like you saiid, I felt immense sympathy for you and yet I cant apply it to myself. I, too, feel like a burden and don't know how to explain to people that I can't do simple tasks or why because I cant even understand it myself!
Anyway, you've helped me feel less alone and I hope I can help you feel less alone. You're not alone and you are a very kind, compassion person.
Awe, sending you so much love 💗
@@casseyklie ah, and you too! Thank you! ♥️
Hi Casey, I fully understand these types of struggles too. Sometimes I feel like a huge burden on my family. Six of my children live with me, 4 are adults. Most times I don't even ask them to make me food anymore because after 4yrs now, they seem tired of helping me all the time. I have not left my house for 2.5 yrs because of how I am treated in public. We gotta keep looking for the glimmers of happiness!
Awe I am sorry to hear that you are struggling too. But yes, finding joy in the small things day to day 💗
No need to apologise, we understand, we are all going through this, different symptoms and new ones arrive, we are the strongest people, its night time here now in the uk and i am dreading sleep as i know il wake up ill in the early hours of the morning shaking and sick.. sending u love
@@philcooke87 much love 💗
You should read up on Human Rights in Canada because I believe those yoga studios have exercised discrimination based on disability, which is illegal. Take care of yourself.
I understand you perfectly, at the moment I am also looking for work, I hope to find a job soon, I send you a lot of strength, you are a very valuable girl, you don't need to prove anything to anyone❤❤❤
Thank you lovely, good luck in your search for work! 💗
I was just finally diagnosed with FND a day ago. My symptoms have not been near as bad as yours but it has been hell not knowing what was wrong with me.
It can be so tough. Hang in there 🫶
You have a lot a weight in your shoulders. Stop pretending you don’t .😢 learn from what you say,
love the videos you make ❤by the way,
So raw an uncut for some that can see the same problem you have
keep pushing but not to hard 💩.be your tru nature 🌕🌞 don’t feel like your going to hurt people because of who you are be as “light” as a feather 🪶and has hard as a rock🤘🗿 think Dwayne the Dwayne the freaking rock Johnson
You are the freakin Rock Johnson don’t be the rock that don’t move❤🕊️🌳🍃🥲🌱
If one door close another door may be close😂😢 but don’t cry yet
Because you hold the key 🔑to the door you haven’t made🚪
Go look for the door that needs to be made,that will fit your key
Go get what you need from where you haven’t gone it a journey of judge or be judge
😅 give yourself the benefit of the dougt of what was said in stone
Manage stress and inflame of the nervous system. Sorry if went a little crazy 😆😁
What a lovely message, thank you 💗💗