Surviving Akathisia - My Experience and Tips
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- เผยแพร่เมื่อ 12 ก.พ. 2023
- In this video I talk about my experience with akathisia in protracted withdrawal. I also share my tips on how I best cope with it when it's happening. If you are in akathisia, please know that IT WILL END. I know everything in your body will convince you otherwise, but it's all lies. It will end, and you will be okay.
Please note that I am not a medical practitioner, and cannot offer any kind of medical advice. These are my experiences and what I have learned through my own research and communication with others going through this. I wish you all so much love, light, and healing.
![Akathisia [Antipsychotic induced movement disorder]](http://i.ytimg.com/vi/izxq9vLyWA4/mqdefault.jpg)
![Akathisia [Antipsychotic induced movement disorder]](/img/tr.png)
Anyone reading this suffering from akathisia i healed from akathisia twice don't give up ❤
Thank you. There was a time I thought I was autistic cause I literally flap my hands constantly, and do other things.
What medicine cured you plz tell
Which medications?
@@firstchoicetuber3757 nothing just time cured it
How long did it take you to heal and what did you don’t heal yourself ?
Everything about this experience is harrowing. I never knew this level of terror existed within our own body.
It’s a different dimension of it entirely. You’re not alone and it will subside. Sending you so much love.
What do u do im have had it for year
@@rachelleshadley7143get off the antipsych meds and start taking anticholinergics. Physostigmine and Benzatropine work really well for some, possibly even enough to go into remission from akathisia. Either way, know that you are not alone!!!
There really will never be words. It's like being set on fire and there is no bucket of water to save you. You just have to run around screaming and in a constant state of near death and terror. No one can help you. You are completely alone. And if you "heal" you are just traumatised by the thought of it until the end of your days. I hurt for all of us..
Very well put. There are no words.
I’m here now. Omg
MICRODOSE amanita muscaria it will stop akathisia
@@planetbspace it saved my life
Damn this was validating 😢😭🩵💜
Big hug Matt, so important to find a grounding meganism going through this. I can hear you know yourself and let that be a guide and the warmth and understanding of the people closest to you.
So HUGE of you to offer support ❤ to those suffering with this. I am sending you healing vibes for better & better days & more healing & for you to get through this. 🤗
I'm crying watching this, you describe it very well . I have akathisia since a year now due to cyamemazine withdrawals . It's finally getting better now and I can get some relief. I'm happy I found this video, I know I'm not alone in this .
I wish you the best , you're strong
I know this might sound crazy, but benzo withdrawal gave me hypoglycemia. Sometimes, if I am experiencing akisthesia eating something sugary will lesson the severity in about 5-10 minutes.
Doesn’t sound crazy at all. Happened to me too!
I met a sweet young man with it at the mental hospital, you described it perfectly. He was really sweet. It was really hard to see him pace all the time or he would sit for 1min then tell me I can’t sit down. We never made fun of him or anything. I’m really worried it’s gonna happen to me I’m on Prozac and Ativan. Other medications made my eyes roll up and gave me dystonia. Thank you so much for sharing this is so helpful. Sending love
thank you so much for making this video. 💗 It was very comforting listening to you speak about it, although I wish you never had to experience Akathisia in the first place. hope all is well!
It fantastic you are telling your story. I don't doubt that it is helping many many people. Keep on following your heart.
I had this from alcohol post acute withdrawal syndrome. It was horrible. Now ive committed myself to being sober forever.
Oh yeah, same here it was absolutely horrid 😢
@Amethyst93xo I'm so sorry you went through this too. Thank you for your comment though. I'm not glad you went through this, but glad to know others went through this through quitting alcohol. No one has ever mentioned this can be a symptom and I had to look it up for myself.
Wanted to say I really appreciate your videos and hearing your story. I'm two months into benzo withdrawal and while my symptoms are not nearly as severe as yours, I feel like I'm experiencing a lighter version of all of them. So I can understand and relate to most of what you describe. Especially the terror that I could have never known prior to this. I hope you continue making videos.
Thank you Andi that truly means a lot to me. I hope your symptoms subside soon. Wishing you rapid healing.
Akathisia is the most dreadful experience I have ever gone through.
Like you, I don’t get a lot of windows but it has reduced over time, and changed.
I feel it more focally now, if that makes sense, it’s like I have an adrenaline/cortisol pump connected to the back of my neck, or head, or spine.
It spreads from there and causes distress, previously it was diffuse and all encompassing.
I’m 1 year off the causative agent and 1 month off all psych meds.
So glad I found this channel ❤
I have it focally too but it travels all over. Sometimes it’s my calves, thighs, buttocks, stomach, biceps, lower arms. It travels like this all the time. Very odd. Anything from tickle, buzzing, internal itch, burning. Not sure how common it is for it to manifest like that, it’s very dynamic. Can be mild or pretty bad. I hope it means good things are happening in my brain.
Losing composure. And you don't understand how important composure is until you try to sit down and you can't. When you're trying to fall asleep and you can't. Losing your mind while trying to keep it together.
When you said im so sorry it made me want to cry . Same to you friend
I’ve been following your story for the first time. I’ve shed tears. I’m one of the ones that got akathisia from coming off of SSRIs and benzos…. You described it very well. Your videos are very calming. Thank you.
Thank you. Sending love back. We can recover.
Excellent account of a truly indescribable and tortuous experience. Thank God I only dealt with this for a week. As soon as I stopped the medication, it went away.
You were very lucky!
Your description is dead on. I'm glad you made it. It is so hard knowing people are dealing with this right now. It's the saddest thing ever. BLESS YOU
I still have it on and off. But the constant part is over. The gratitude I feel to not be in it is beyond words. It is literal Hell. It is like being tortured with no end in sight. I pray for everyone going through it every day ❤️
@@Heymattmarin my constant has been over for a long time, also. I can't stand knowing people are going through this. I desperately want to help them. I, too will never stop being thankful for peace.
How long did it last
Thank you so much for this series. I don’t even understand how you have the executive function to remember that much or be able to put yourself together to make these videos. It’s astounding to me.
I’’m just barely two months into full-blown akathisia that’s constant (mental/cognitive and physical), plus I was c/t off low-dose seroquel and lamictal right after the akathisia started. I didn’t know any better and listened to the docs, as they said once I was off the causation med it would go away.
Two months in and still waiting for relief, although I’ve been told my case isn’t as bad as many others. The derealization/memory and executive function issues, and inability to focus on much are my top complaints right now. Would just love a break at least.
I’d love to connect if you’re ever open to that. I’m sure you get requests constantly and that you have limited energy, so that’s okay.
Thanks again for this. It helps a little bit to know we’re not alone in the fight. 💜
Hey Ashley. I’m so sorry you’re going through it. I remember the constant akathisia well and I would not wish it on my worst enemy. And I want you to know that every second you survive this is a testament to the superhuman strength that’s inside of you. You should be proud of yourself.
It took me almost three years to be able to start making these videos. My journey has been longer than most people who deal with withdrawals from these drugs. That being said, I do believe we all heal from this with time. It’s impossible to believe while you’re in it, but try to connect with that truth as much as you can.
I am happy to connect and provide support. Let me know a good way to reach you. Sending love to you ❤️
I can't even think right now. When I write comments I have to reread them because I often type gibberish. I wish I could do videos of what horrific things Im going through, but I get severe anxiety from not being able to fully explain something to someone who doesn't feel it or understand it. All of this is torture. The agony. And people telling you to sit down, breathe, etc... What!!! Or people tell me to think about my parents. I can't even think about myself. Oh gosh.
Hey Matt, you definitely are a great blessing... - powerful words to hurting souls
That means a lot to me ❤️ ✨
@@Heymattmarin please write that book!
I’m so sorry you are going through this Matt. Your descriptions are so spot on. I experienced severe Akathisia too. And it’s gone. So please know, it will end and hang on. You will get through this and heal. ❤️
I love cold therapy and it has helped me greatly over the years. I actually have a cold plunge tub now and do it every day for health.
I'm going through this I was ripped off meds my life is horrendous now don't know how long I can do this
I don’t know how long I can do this either; how long did it last for you?
How long did it last
@@pamelabellingham5034. How are you doing today?
I have struggled with mental health for the last 22 years the last year I developed twitching and spasms and jerks I think from seroquel . Long story short online doctor kept me on it and the last couple of weeks I been in and out of hospital,doctor offices stayed 4 days in a in patient I have a doctor appointment apperently with good doctors in a few days after that I see a Neurologist I hope they can help. I quit drinking because I started drinking more because of the twitching and I think it made it worse plus I been drinking last 16 years its time to quit . Anyways you are right do not feel bad for having a illness you are not in control of it do whatever you need to do to make it better .
Ive been watching your videos for months now and really appreciate the information you spread about this awful injury. I was on lexapro for a work injury. I've had 2 major spine surgeries and have injuries to my brain, cervicalx3, thoracic, lumbar x3 and both legs have ridiculopathy and bilateral sciatca. I lost my family's insurance after being off work over 1 year. Sept 5th will be 3 years sonce i was injured and got put on lexapro in 2020 for my " anxiety" thinking i could possibly lose my 18 year career over the injury happening. Im feb 2023 i ran out of lexapro and had no more income to pay to see a dr and pay cash for the meds. So i quit 10mg lexapro cold turkey. I had the few weeks of achy symptoms, tired etc.. then at 3 months a whole new world of symptoms started and lasted for a few months. Right when i feel like the cemicals are almost rebalanced BOOM, on came these exact symptoms. I cant even look in a mirror anymore casue i dont recognize who i see. The doom and terror are terrifying. Almost everyday i have severe panic and feel like im trembling from the inside out. I feel like i need to move, walk, but cant cause of my injuries. I do rock back and forth constantly and fear im going to die from this every day. Im 7 months off the ssri and still feel horrible daily. Will this impending doom feeling, and suicidal ideation ever go away? I feel like my husband and daughter would be better off if i wasnt here anymore, every single day and my soul is exhausted. Just a mom/ wife trying to survive. The only answers online is to get back on the meds and i NEVER want to go through this, ever again. Any advice?
U need to see a psychiatrist as soon as possible. Try a combo of mirtazapine, benzodiazepines and beta blockers
I experienced this the other night in the ER after they gave me Compazine for a migraine. It's the worst feeling imaginable but it does pass! It doesn’t feel like it will but it will pass.
With my episodes, which can last up to 17 hours at times, I get a vocal tic. I repeat sounds…to me, there are no words to express the horror within it…I think that is why I do it…or, my brain does it. I have to make sounds to get out the absolute terror I am experiencing.
I truly feel we go into an altered state…you mentioned another dimension…I feel when I’m in it, I do slip into an alternate dimension. That kind of torture…how can we not pop out of our body for relief of some kind?
Thank you for sharing, Matt. So much Love to You.
I relate. I’m so sorry you’re in it too. Sending love to you.
Your hair looks lovely😊
hey a fellow matt lol! ive been through similar experience,(ofc everyone experiences akathisia differently) it started from an injection of abilify maintena. the withdrawal caused the worst version of it. not only the akathisia it destroyed my memory which has never came back (i researched this and i believe i have tardive dementia).. the subjective torment of akathisia is impossible to explain and they downplay it so bad in the medical system. it took me over 2 years to heal. paced till my feet bled. indescribable feelings of my chest being ripped apart that my brain blocked out, this part only lasted about 6 months... im now four years out and pretty much completely back to normal. if it wasn't for support groups and my family i wouldn't be here. i did intermittent fasting and took a supplement called nutri-calm that seemed to help me a bit. the medical system did absolutely NOTHING to help me.. i noticed you mentioned cold showers too. those helped me as well.
I’m happy to hear that you’ve made it to the other side. Thank you for sharing your story with me!
I have been going through this for almost 3 months now. Started when my psychiatrist lowered my prozac dose and then ive tried several meds and nothing is helping and i finally told my dr. Today that i want to stop meds and let my brain and body heal. 😭 This has been the worse time of my life and all i wanna do is sleep. I am terrified of being off meds after being on them for 3 years, but i just cant do it anymore. The pharmaceutical system should be telling people about this, and the doctors could care less of course! I feel like im losing my mind😢 Thank you for sharing your story, its helps to know at least i am not alone.
I’m so sorry you’re in it too. Please keep going and see the other side of this injury. You can do this ❤️
Have you heard of kratom? Please research it. Remember, the FDA hates it as they cannot patent nature, and it replaces many of their drugs. I, personally, used it to come off of opiates, cymbalta, adderall, and more. Kratom saved me from many of these horrific withdrawal symptoms.
Your so lucky that your family cated enough to check into it instead of them discrediting the things you know your feeling. I would love to speak to you regarding these issues.
Happy to schedule a call sometime if you’d like. There’s also a support group zoom on Inner Compass Exchange specifically for families/friends supporting someone in psych med withdrawal. That could be a good place for them to start.
I’m sorry your went through this I’m 17 months out ctd viibryd and 3 mg k 3mg lunesta. I was on the benzo in the sleep made for 12 years. I got cold turkey it off them in 2018 they put me on Zyprexa because they said that I was bipolar schizophrenic because my skin burn then I got put onto Latuda also that gave me extreme Akathisia. Then the doctors tried all 2nd gen antipsychotic meds the didn’t know what aka was. I’ve had this shit for a long time now I pray to God it’s going to get better you look healthy I pray that you stay at peace. Prayers ❤ happy Valentine’s Day my friend
I’m so sorry you’ve had to go through this too. I wouldn’t wish it on my worst enemy. I know you will get better, we all will. We just keep going. So much love to you and happy Valentine’s ❤️
Oh wow I hope you are hanging in there. How often do you get the akathisia?
I had Akathisia after restarting Prozac for my Panic Disorder. I never had it before on Prozac, but was the worse feeling not being able to keep still. Feel so sorry for anyone with this. The only thing that stopped mine was a low dose of Mirtazapine no higher than 15 mg. Seemed to reset my brain, and worked almost straight away. Just to give hope to others. I came off Mirt and I am Akathisia free for years now.
I’m so glad that worked for you ❤️
I have struggled with akathisia for three months as a side effect of antipsychotic medication
I'm off the medication now but still experiencing aka
It's been really taking a toll on me and sometimes it gets hard to stay positive and hang in there
I’m so sorry you’re going through it too. I know it’s impossible to believe, but please know that it will end. It’s unbearable every second that it’s going on, but I promise you it will stop if you just keep surviving until it does. Sending you a lot of love, and if you ever need to talk I got you.
@@Heymattmarin Thanks mate! Your reply honestly means a lot. Much love to you too
@@Heymattmarin Hey man! Would u be down to talk?
@@TheKash700 yeah absolutely! What’s a good way to reach you?
Hi @@Heymattmarin do you have a website, or a place to request like a one on one talk/coach session with from time to time? I sort of have the innner aka while I am tapering, its tough and brutal, would love to have someone to talk to when stuff gets hard
Thank you. I went through it and it is sheer misery from another place I'm the brain.
Hi, how are feeling now ? It’s been six months since you made this video. I am having akathesia right now and it is the worst thing I have ever felt and you describe it so perfectly. Although I don’t think mine is as bad as yours. But I feel and relate to everything you are describing.
I feel like my skin is crawling, like I have the urge to bite my tongue, like I want to squeeze my finger nails. It’s the weirdest fn worst feeling in the world.
Sounds like it could be tardive dyskinesia. That’s a common side effect in this process. I’m so sorry you’re going through it. I’m slowly improving, I still have very bad waves. It will get better for all of us. Keep going!
R u healed
It's like a pain throughout the nervous system. I felt it after ingesting a Risperidone paste (anti-psychotic). The worst thing is that they tell you in the emergency room that you have to wait for that effect/sensation to reduce. When that terror stopped in my body, I would say that I had lived the worst and the best day of my life.
Matt you are keeping me alive right now. I pace without caring what others say. It is the only thing like you say Matt that seems to bring it down a tiny bit. I cant even shower, but sometimes I have found that going to my backyard and using the cold water hose is how I can shower. My parents were embarrased and said the neighbors could see me. Its not like im naked. Anyway, do what you need to in order to survive peeps, just like Matt said because he is right others would not survive a damn second of the torture. In my case telling my family and close friends have not always been good. They immediatly start telling me to get back on the meds and stop listening to conspiracies 🤦♀️ I get anxiety and despair to levels that are beyond unbearable. People from support groups and Matt's videos, have been keeping me alive man. Truly. Some people from the support groups we text or call each other during crisis and its better than being all alone.
Also, I struggle with existencial dread even death dread so can you imagine how terrible it is to feel complely stuck.
In Australia I was injected by law for sleep deprivation now my life is ruined too.
I’m so sorry. I know many people who were injected or drugged against their will and ended up with iatrogenic injuries. The system needs complete overhaul and reform. Have you thought about sharing your story? Sending you love.
If this is the first video you’ve seen by this guy you can learn a lot from him. Watch all of his content- highly intelligent and insightful. Better than many doctors,
Thank you, that means a lot ❤️
R u healed now how to keep going?? Im dying
@@DanielleRambo-yl1qe no, still dealing with a lot of symptoms and regular akathisia. You literally just survive it one day at a time until it ends. And it does.
"You do what you need to do, boo boo" literally made me cry
Wow…. What you are going through and went through makes my antidepressant withdrawal seem like a cake walk. I just mainly have agitation but it does go away with movement, though it does not cause me to move, twitch, or pace.
This is the worst experience I’ve ever experienced in my life! It felt has if I was shooting up overloads of cortisol and adrenaline! I tried killing myself but kept holding on for dear life and walked my dog like 10 times a day! I felt utter sense of dread 24/7 everything made me feel utter terror even things that use to bring me joy, like I couldn’t even look at my dog, look at my phone, look at the sky, talk or answer my phone, 24/7 panic attacks! It was far beyond anxiety! It was utter terror and utter madness! I wanted to die so badly just so I could finally stop moving and rest! It wouldn’t shut off!!! And my psychiatrist was so ignorant and never even heard about Akasticia! I had to learn about on my own and educated her about it! I don’t even know how I pulled out of it and survived
I’m so sorry you’ve had to experience it. It’s truly a different dimension of suffering.
Thank you for posting these videos and your strength to persevere!!!
Been dealing with this on and off for a few months now… it hit me like a ton of bricks on Jan 27th.. funny enough, the day after my first therapy session, which I started because I had been having panic attacks while driving to work which I didn’t used to have.. at least not on roads I was familiar with and traveled every week for the past two years. I couldn’t understand why my anxiety was getting worse all of a sudden, so I decided to finally try therapy, and then the next day Akathisia hit me. I didn’t know what it was at the time. I just thought it was the most insane level of anxiety I had ever felt in my life, but I couldn’t find a reason for it. I was just in my house, with nothing to be anxious about.. Intense, all-consuming compulsion to pace around my room, inner and outer restlessness, felt out of my mind, confused, terrified, mental agony. Couldn’t sit, lay down, or relax, which means I also couldn’t sleep for more than 1 - 4 hours a night at most.. that was my every waking moment almost with only occasional moments of reprieve that lasted for two weeks straight. Couldn’t go to work, could barely force myself to eat, complete hell… eventually it subsided, and a doctor put me on Buspar for anxiety / panic attacks after the fact. I was doing better on it for 3/4 weeks. But the day after I hit the 4 week mark the Akathisia came back. I’m just now learning what it is.. but I’m still confused what could have caused the onset the first time as I wasn’t on any medication then. Unless my anxiety just got to a point where my nervous system was just so heightened for so long that it eventually developed into Akathisia after a particularly bad panic attack (?) I’m not even sure that’s possible.. or if I have some underlying autoimmune disease that’s causing encephalitis, and that’s what triggered it.. still trying to figure it out. But it’s been back again for the last 3 days and I can barely leave my house let alone go to work.. my doctor said to start tapering off the Buspar, but again, I don’t know for sure that’s why it came back as I wasn’t on it the first time it happened.. some days I just sit in my shower with the water pouring over me with all the lights off to feel any amount of soothed from it. I’m also taking a beta blocker occasionally when it gets real bad that seems to help sometimes, even for just a short while.. I just hope it doesn’t stick around for a long time this go around; it is truly the most insane suffering I’ve ever felt when I’m in it and I wouldn’t wish this on my worst enemy.. you and anyone else that has ever felt this is incredibly strong for enduring it. I pray that it lifts for both of us soon. Please let me know how you’re doing now and if you have any more useful insight you might be able to share with me that you’ve learned about what the hell we’re going through, I’d love to hear it. Or even just some encouragement, I think we both need it.. my family doesn’t know what to do or how to help me.. and my doctor told me to see a psychiatrist.. I don’t know if I need a psychiatrist, a neurologist, or just some patience to get through this as it did mostly go away for about a month there before it came back.. so I’m kinda stuck trying to pass the days and hoping it will dissipate again.. thanks for describing this phenomenon so well, I’m learning as much as I can to try and get through it. Take care of yourself 🖤
I am so sorry you are going through this. I can’t tell you how much I relate as I read this. It is indescribable suffering. There are no words. You are SO strong to be surviving this and I’m truly proud of you and anyone else making it through. This will end for you one day and you will have a life you can’t even imagine right now on the other side. Keep going. I am happy to talk if you ever want/need support. Just let me know a good way to reach you. Hang in there and if it’s all you can do right now, just keep surviving.
PSSD suffers typically experience akathisia for an intense 2 months before the ‘crash’. I know you guys can experience it for years, I’m so sorry. We experience complete emotional blunting. I hope you’ve had ad least some kind of ‘window’ recently. Please don’t leave the ‘prescribed harm’ community behind Matt. Thank you for your story.
I experienced akathisia briefly when given prochlorperazine at a hospital. Thankfully, it only lasted several hours and improved steadily as the drug cleared my body, but it was the single worst experience of my life. It was like the most intense possible depression, terror, anxiety, restlessness, and agitation combined into a single experience. I can't even begin to imagine how people survive prolonged bouts of it. Like you mention in the video, I remember thinking to myself "I didn't even know it was possible to feel this terrible. How is this real?"
I have struggled from akathisia for years due to Latuda. I just recently figured out that's what it is. It's truly horrible and people in my life don't understand. I have found ice packs helpful.
You’re immeasurably strong to be surviving this. If you need someone to talk to who understands and has been through it (and still goes through it some days), I am here. You’re not alone. It will end.
Latuda did it to me too!!! First and only time I've ever had akathisia. I wouldn't wish it on my worst enemy!
I wound up in the hospital with akathisia after Latuda. Screamed my head off after 3 days straight of it. It’s a deadly condition.
@@aliciam6725 it’s unbelievable. I still can’t believe it and I’ve lived it. I’m glad you made it through. Surviving it is superhuman ❤️
And there it is… Latuda.
I know a lot of people are scared to try more medication with this. But switching medications helped me cover the symptoms back up and get better. During the Akathesia benzos helped but it's easy to max out on those until their not effective and then you have to dose off slowly.
And it can cause more akathasia.
Hi How long before the benzos started to Work for you.its been a week for me and still no improvement
@@soufall5118get off them
Matt. It’s me Paula from SanDiego 🏝️ Thanks sooo much for your support. I’ve had akathisia for 30 months. The pacing was ruthless in the beginning. It’s simmered down a lot more of a inner restlessness now. Ihad the mental one with it. Can I ask? I get muscle spasms and weird brain symptoms with it when it starts up. Did you ever get like a brain cloudy fog / dr/dp. At the same time?? So frickin scary. Sorry to bug. I’m 69 mama and wife. It’s been hell. It’s probably the worst symptom right now. So I hope it leaves. Matt your a doll. Such a great person and gorgeous. We love you. ❤. Aloha. P.
I had HORRIBLE brain fog and dpdr. It’s gotten a lot better. Please keep going, healing is happening even when it doesn’t feel like it ❤️ aloha ✨
@@HeymattmarinThanks hun Aloha✨
Thank you thank you...
Thank you for sharing your story i have akathisia because of antipsychotics. How long before the benzos started to Work for you im taking them for a week now and still nothing has changed
Mine was induced by benzo withdrawal. Benzos didn’t help me much and harmed me a lot. For some people it’s important to come off them very slowly.
@@Heymattmarin thank you i'll keep this in mind before coming of them
@@Heymattmarin Maybe you've mentioned this and I missed it but: which bento did you take and how much and for how long? Thanks!
@@user-wb2yv7ll9d I took Ativan as needed first and then klonopin daily for 3 years.
Hi Matt, I hope you are doing better. I wanted to ask you if you have experienced horrific intrusive thoughts/ phobias? I don't really hear many people talking about this symptom. Mine are excruciating, literally just hearing a word or looking at an object triggers them, 24/7. Even when I close my eyes to try to sleep I just get a carousel of terrifing images. It started when I got the akathisia. Akathisia plus this mental torture is just another level of insanity.
Oh yes. One of my worst symptoms. It will get lighter and lighter over time.
@@Heymattmarin I've read so much on ocd/intruisve thoughts and they all say the same thing, not to engage with the thoughts. How do you deal with this symptom?
@@marcordonholzknecht it’s a practice. You get better at it over time. I deal with it by acknowledging that it is largely chemical brain damage, and I have no control over it. Acceptance is big, and also a practice.
@@Heymattmarin thank you🙏
I had this from post acute withdrawal from SSRI (lexapro) magnesium L theanine and Inositol was recommended to me to help with the movements. It has helped and the akathisia has lessened. I now take Lamictal 25mg morning and Zyprexa 2.5mg nightly. So far so good. Good luck to you all. I know all too well how horrid this movement disorder is.
I had akathisia for a long time. i would say its completly gone now. its really just extreme anxiety that makes you pace and rock and move. at this point it is reduced to anxiety and sleep problems which i never had before taking doctor poison. i just hope to get back to normal by new years 2024
I would rock back n forth too as well as pace
How long did u have it
Hi Matt, how did you deal with when your belly was really distended?
My son has this too, he look pregnant and I don't know how to help him best. The hospital wanted to give him statins but I think they make things worse.
I’m sorry he’s dealing with this. Honestly a lot of it has been time, and I use several supplements to help with gut issues. I will be making an all things gut video soon to talk about what I did. It’s important to note that what worked for me could either help, do nothing, or make it worse for others. So much love to you and your family ❤️
Are there any people who have it mildly like me? Any degree of it is terrible but for me it’s this focal weird electric uneasy feeling concentrating for example in my lower back or upper back. I don’t have to move, I just cannot focus on anything else but the feeling. It makes the spot where it concentrates kind of tense up and hurt and sometimes there is this jump out of skin feeling there. Sometimes it moves to my upper back. Sometimes these sensations completely go away. Sometimes they are replaced by inner vibrations.
Not a medical professional, but those all sound like withdrawal symptoms. People get them to varying degrees of intensity. It will heal ❤️
Damn I went through kpin and Xanax withdrawal 4mg of each a day over a year . And didn’t know that’s what this was called. I would lay in bed and hold my left leg up until it was hurting so much then drop it on the bed. Only way to get relief in the legs. Had 24/7 impending doom anxiety but man after getting through it all my anxiety went away good luck to everyone
I have had very bad Akathesia related to Phenergan and Tigan, which not only caused a severe panic and doom feelings. But also a fast heart rate and I couldn’t sit still in a wheelchair. . Then I was put on Respiridol and got Akathesia. Then, I was put on Abilify and it wasn’t supposed to cause Akathesia. I got the worst attack ever. For 5 years it got so bad that it went from 5 hours a day to the whole day, where the panic, severe anxiety and doom wouldn’t go away. I wanted to commit suicide and ended up in the mental hospital, locked up. This was in 2006. Now, every time I get an anxiety attack, it’s just like the Akathesia. But the worst attack I had was when in Rehab for a broken ankle, the nurses never got my medications. So, I was up the whole night. Then, in the morning, I had a severe panic attack, the scary doom feeling and was rocking back and forth. I couldn’t stay still to get my blood drawn and wasn’t able to participate in my occupational and physical therapy. Then I started having worse olfactory hallucinations. It was the most horrible feeling. It took 2 weeks to get my mind straight. I complained to the owners with a horrible review. Because, it’s not right, not to treat my mental health correctly. I am sure if I was diabetic and on Metformin, I would have gotten that. The facility had 9 hours to make sure that the pharmacy delivered my medications. They were so flippant, as well. That was until they saw wat a mess I was in the morning. Then, my paranoia came in really bad. I was constantly switching rooms, because my roommates had Alzheimer’s and were peeing on the floor and moving my elevated toilet seat. It was a slipping hazard for me and a risk of contamination of my surgery. There were plenty of rooms I could be put in without a room mate. I told the owner that I would never go back to his facilities. My Akathesia Ana Schizoaffective disorder was completely ignored. Not to mention that I could have slipped or gotten a bad infection in my surgical wound on my ankle. It was awful because I was temporarily confined to a wheelchair.
I also was working with the Akathesia. But was lucky enough to have a job where I could do all of my work in the morning and then do nothing when the Akathesia was at it’s worse. But, I started having trouble driving, when I used to be a good driver. I had a lot of scary situations and near misses. Now, I absolutely hate driving and have been scared since then. I also hate crowds, night clubs and have to be home to take my medications. I am so brittle. That it talks nothing to start having the panic and doom feelings. This will never completely go away. If I take my meds earlier, I will fall asleep. My psychiatrist doesn’t want me to take the Clonazepam, except in a dire situation. It doesn’t work when I get that bad, anyhow. So, I just don’t take it.
It sounds like you’ve had a really hard ride. Medical trauma is very real, I relate to that. I send you so much love and I wish you healing in your journey ❤️
@@Heymattmarin Thank you. Things can be hard sometimes. 😫
Ps. There is also audiobook 'Niacin, the real story'. But I recommend to read read then apply and finally get well❤
Found you through the video for Dr Witt or whatever his name is. Wish I could have him as a doc but there’s not much that can be done for Withdrawal Akathisia that has lasted over 5 yrs now.
I hear you. Just want to send you some love and reassurance- people go through this for very long periods of time sometimes and still fully recover. Please keep going ❤️
Oh wow, what did you withdraw from?
@@user-wb2yv7ll9d the two that I was on the longest were klonopin and Prozac
@@Heymattmarinit’s been 13 months since I gone cold turkey off klophin it’s terrible 😢
Suboxone did this to me. I felt like a crazy person.
Since taking Escitalopram I've had like constant muscle twitches. Nerve pains. Prickling sensations all over. Burning in legs. SUCKS...
ended up getting akathisia from a compazine in a migraine cocktail, hoping it ends sooner rather than later
Im bewildered
It's the worst thing I know but I'm relieved it has a name now wow.its been bad wuu breath I ain't never stoping my meds no matter how much they wat it does I will never feel that again ever no no 😊
Peep game u said do wat ever I need to do bu bu shuuu it's
Htem hu hu
I literally only looked into akathisia the last few days and I’m in tears because I have always thought that it’s only me that experiences this situation, I’ve never had the words to explain it to any medical professionals. It’s been years of hell I don’t know how it will end
I’m so sorry you’ve been through it too. It ends. Please keep going ❤️
From my experience the tips i have tried and have limted akathisia alot but didn't cease it :
1-if you are taking antipsychotic ask your psychiatrist to switch to quatpine (serqouel) which is the only antipsychotic that almost doesn't cause akathsisa.
Serqouel made sleepy but my psychiatrist combine it with bupropion hydrocholride 150 ml and things have worked better.
2-have activites on pc as watching youtube reading an E book studying pdf for college or playing chess online that will limit your pacing time until you get through these .
I was bakeracted so much like thirty times the last five years and they put me on meds over and over again and put shots in me I’ve been in hell for so long. They shocked my brain 50 times doing ECT I just wanted to make it stop, i lost all my memories and can barely think about anything besides the way I feel. All they had to do was take me off the meds but instead they put me on every single anti psychotic. It happened over and over again. My family ignores me won’t comfort me and my mother blamed the devil the entire time. NEVER do MEDS. I caused this to happen to me over and over again
Your experience is the only thing i have found similar to ny experience and i dont know what anything i just found out ur struggle recently idk
How long did it last? I have had it for two years from a drug "fluphenazine". Its the worst thing i have gone through in my entire life, i am surprised im still alive. Akathisia gives no rest... But atleast now its gotten better after two years and im believing it will end soon, i hope. Been taking artane and propranolol, doesn't take it away but helps a little bit to endure it.
I’m so sorry. It’s literally beyond words what it’s like to go through aka. You are strong beyond measure to be surviving it, seriously.
I still have it. It’s on and off, and I’m grateful it’s not constant like it used to be, but I still deal with it somewhat regularly. I had it really badly last night for a few hours. I hope you get relief and healing from this very soon. I’m with you.
@@Heymattmarin Thanks. I hope you heal too.
Hey man I have been off an ssri and clonazepam for 10 months. I have been dealing with a terror and undulating type of energy and electric for months and months and I finally know what it means. I have thought I just lost my abilities and now this is my normal anxiety. I feel like I’m going crazy. I can’t do anything to relieve it. I’m losing hope man.
@@matthewrobinson2242 So sorry for you Mr Robinson. I think these terrible side effects go away with time. My akathisia has been healing at a very slow pace. Im still having it but it keeps getting better. Its not easy but just hold on.
@@matthewrobinson2242 hi how you doing now. ?
Interested in knowing if anyone has had success with topical magnesium ?
Are you taking any medication right now or off medication?!
Off completely
Going thru muscle jerks and insomnia and occasional pacing. Could really use a quick conversation if you’re ever available
I’m very much so still in the healing process myself and trying to survive so I’m not doing support calls right now. I’m sorry. I’m sending you a lot of love on your journey. Please keep going.
#Stayalive
When i get sick i get no window
how do you stay sane through all this? It's endless physical torture coupled with zero sleep. experiencing it now, and don't know when this torture will end....
I hear you and I’m with you. I’m so sorry you’re going through this. I do my best to stay sane, though I feel like I don’t always succeed. I have regular meltdowns if I’m being honest. The most important thing for me has been finding community and really building my support system. My friends/family keep me alive through the worst symptom days. Reaching out to people in the withdrawal community and being very transparent to the people I’m close with has been vital for me. Other than that, I do my best to navigate the experience, but it’s a minefield. My body is still so incredibly hypersensitive, and I just have to accept things rather than try to change them. The more I try to fix or heal the symptoms, the worse they get. It’s a challenge unlike any other, and I still struggle a lot with accepting it. I have also found working with a coach who has experience in this recovery process to be very helpful. There are many out there who do this kind of work. Angie Peacock has been very helpful and encouraging for me. I am also happy to do a call with you sometime and offer you what I’ve learned on my own journey, if that would be helpful at some point. You have my support, and I’m here walking this journey with you. I hope you get relief really soon.
@@Heymattmarin thanks I have bad flashback after quiting these devilish drugs. It's a rare side effect and many other debilitating side effects like looping songs, self created images, alien thoughts.I don't know wat to do. It's like my brain does its own things. It's very serious and I don't know if I'm waiting for recovery in vain. Ppl who only have severe physical symptoms are still suffering (housebound) after 3 years. Things seem very bleak for me
@@germainedenon311 I know how hopeless it feels, but some of us just take a lot longer to heal. It’s not fair. But it WILL be a thing of the past one day, even though that feels beyond impossible. It cannot be put into words how desperate and lonely I feel a lot of the time, so I completely understand. I’m with you. Keep going.
I have burning mouth and so many meds for three years, constant nausau starving from oral surgeon pulling teeth ruined bone. I cant taje it. Go nowhere. Its awful 😢
I’m so sorry love. I pray for your healing
Hey Matt! I was curious on how you are doing now? 🦋💎💖🇨🇦👩🏻
will be making an update soon
I just cut my foot open and I still can’t stop pacing
I’m so sorry. I’ve been there. It will pass ❤️
I got NO ONE.
In november i CT Antipsychotiks and an SSRI. I took both for years and still had it when I took it but it wasnt that bad because I took a lot of benzos. Now I went much too fast from 150 mg Diazepam to 4mg, updosed to 30 mg, doesn't help. I got akasthisia and vertigo 24/7 and Panic attacks and cramps I cant swallow my Depression is over the top I ruined my whole life 😢
I’m so sorry for what you’re going through. I highly recommend getting in some support groups online like Angie Peacock’s. I’m sending you so much love.
@@Heymattmarin thank you for your kind words. I will try to find it. I am from Germany and here is really NO support. Love and prayers for you soldier ❤️
I had muscle relaxers I would take when it started n I'd just pray n pray that it would go away. Then an edible and relaxer.
I also did cold showers not as long as u stood in them but it never helped just the muscle relaxers n sometimes crying thru it. Wow I never met anyone who went thru this symptom til these vids n comments
I quit coffee, still get it. No caffeine has reduced the intensity of it but I'm still scared like something bad will happen. I pray so much.
I'm in it big time got four young children
Hey bro i suffer from akathisia because of abilify and Prozac , now I changed my meds completely should I stop any antidepressants for now even tho it does not induce akathisia?
I can’t make any kind of suggestions on what to do with meds, all I can do is offer support if you decide to come off of them. That has to be your decision. I’m sorry you’re dealing with this ❤️
@@Heymattmarin thank you for this beautiful reply ❤️
You try xhanga?
Help, I need a person. If you're still open to being someones person then please let me know. Very desperate right now.
I have this horrible sense of not knowing what to do with myself. Is that part of Akathisia?
I think so yes. I face that a lot too.
@@Heymattmarin do you feel like you’re recovering from it? If so, what is helping you? Specifically with the not knowing what to do with yourself piece and also in general from Akathisia?
@@gonnabapro slowly but surely yes. Just treating my body as well as possible with healthy food, good water, and lots of rest. Time is the biggest factor in my opinion.
@@Heymattmarin good to hear thank you!
Can you get it when coming down from Cocaine? I remember pacing around and freaking out
I have no idea tbh
I keep pacing and it hurts so much 😢 I hate akathisia
I’m so sorry. Me too ❤️
how much and how often do you suggest to go down the pills ???
I can’t make suggestions like that. You’d need to work with a coach like Angie Peacock or Dan Landauer and also communicate a lot with your psychiatrist during the process. Wishing you all the best.
who are these people ..my psychiatrist is 100 % not willing to help me i asked before @@Heymattmarin
Do u have derealisation?
How does it compared to a run if the mill panic attack
Like I say in the video it’s not even in the same ball park. There is no comparison. I can’t really find an accurate way to describe it, and I wouldn’t be able to fully understand if I hadn’t experienced it myself
Those of us with Akathesia and screaming on the the floor committing suicide.
How many months you suffer akathisia bruh tell me abd how many hours you pace and walk in one day when u have akathisia..and what treatment cured you..plzz tell me the difference between anxiety and akasthisia..my sister walking sometimes and then she take rest so I doubt did she have akathisia or just stress because she is going through psycosis..can you clear this doubt 11:50
Akathisia and anxiety are nowhere near the same thing. Akathisia is an uncontrollable need to move combined with an out of body level of terror. It can last around the clock for some people, or it can come and go. It is a side effect of many antipsychotic drugs, but it can also happen from SSRI’s, benzos, etc. The only thing that I am aware of that helps this condition is time and leaving the nervous system alone entirely. If it’s being induced by medication and someone makes the decision that they want to get off of it, it’s vital to do it very slowly in very small increments. See the withdrawal guides on Inner Compass Exchange for more info. I wish your sister a full recovery. If you guys ever want or need support, I’m happy to set up a time for a call. Keep going ❤️
@@Heymattmarin thank you for kind words and support
@@firstchoicetuber3757 of course ❤️
Did you ever try any meds for your aka? And did they have any positive effects? Or did you obstain from any kind of meds?
I tried many different things. In the beginning it was so severe that I tried going back on meds out of sheer desperation. They only made it worse. I then tried just about every natural supplement under the sun and honestly I think in this kind of injury, even doing that can be really harmful. Anything I found in that department would at most provide mild and temporary relief, and then it would come back even worse. Almost like a rebound effect. I can only speak from my own experience, but my system became so hypersensitized that I ultimately felt like I true best thing was to leave it alone entirely and give it time to recalibrate on its own. I avoid anything that could have any kind of neurological effect these days, even dark chocolate for the tiny amount of caffeine it contains. I know that’s not the ideal answer, it’s not what I ever wanted to hear either. But I do think time is the name of the game.
@@Heymattmarin Alright.. I almost thought it might just be best to leave it alone and try to get on with life as good as possible. Thanks for your answer.
@@TheKash700 of course. I know it’s not a desirable answer, I’ve had a very hard time making peace with it. But that’s the guidance I’ve gotten from many people in the community as well as what I’ve experienced through my own journey. Hope you’re alright and still here to talk if you ever need to.
@@Heymattmarin how can I reach you?
@@Auntie909 my contact info is on my website www.othersidehypno.com
i have been this problem your body start burn you cant sleep your brain no coonect your shulder alway up your body never realx i was been to hopital 20 time for that you want to die every day get worst you you star shaking you cant sit first because if you use ant tablet this tablet side effect your body first tablet they give 15 diazepam 5mg tablet second tablet 5 zopiclone 3.75 mg they will help 100 after take this tablet you will shit blck it mean is your body trow this effect you will get normal i hope this help you mate all the best for you take care
You got this from 15 low dose valium ? Or is that after already coming off benzos then they gave you more
Anyone close to Tampa Florida experiencing this and needs to be close to someone let me know I’m in hell for months
#akathisia
i unfortunately know the dreadful experience of akathisia intimately. When i was in the throws of akathisia, I asked myself if this is what hell was. i describe it this way:
Akathisia is like being a rat placed under a metal bucket with ur torturer heating up the metal bucket with a blow torch. Sheer dread, panic, and terror. You scurry for a way out as you are slowly being cooked alive under the metal bucket. There is no way out. You try to sit still under the bucket for a moment, but you cant. Sheer dread, panic, and terror take over your entire being knowing you are being cooked alive. You scurry, and scurry, and scurry. You are melting. You scurry. There is no escaping the terror of this torture method. You cant sit still, you are being COOKED ALIVE!!!!
why dont they understand??? i hate psychiatrists, emergency doctors (anti-nuasea medication given in the ER can cause severe akathisia) and doctors in general. I have lost any trust I had in the medical system as a whole from my experience with akathisia. Doctors are quacks. The lot of them. I dont usually condone throwing the baby out with the bathwater but if ppl knew the severity of akathisia, the psychiatric model of treatment would be uprooted and the world would grieve for what they have done to their patients.
Couldn’t agree more with all of this
I know the adrenaline rush
Amazing the depths of it I'm more than sorry you all have my prayers I thought I was alone WOW
Matt I posted but it’s gone😂
What did you post
How are you now?
Not great. Still fighting a lot of symptoms. Some days are reduced a bit in intensity, but I still largely feel very messed up.
@@Heymattmarin its me again. Can you sleep now or rest. I cant take all this agony and on top not being able to sleep. I fall asleep from pure exhaustion and within the minute im in horror but for me its death. Matt please help
lmao this is a video all about mariana’s trench