In case you're interested in checking out the 'Livret Bleu' from Disneyland Paris mentioned in this video, you can find it here: brochure.disneylandparis.com/TSA/FR/catalogue/catalogues/common/data/catalogue.pdf
There's Autism's Individual. She's a TH-camr who was diagnosed before the current DSM classifications came into effect, but she did a video about how she was arguing for a 'Level 2' support needs description to be added to her medical records so that she can access the support she needs when her dad is no longer able to help as much as he currently does.
I can totally relate to the things that you talk about in this video. I feel the same things related to my own support needs. Before I was diagnosed, I was trying to "act" like a level 1 support, even though that was exhausting, and I was always burnt out and I was always having meltdowns. I get the same sort of tunnel vision that you talk about when I'm in a very agitated emotional state. I can't do small talk, and I get super annoyed when I get asked to do it. I'd rather have deep talks about the things that matter than the things that are trivial and don't matter. I hate making phone calls unless it's with someone I know and that only involves like 4 people, which is basically my entire group of friends and one of those is my partner. I got so many things growing up about how I never gave details to things but that's because I was taking what they said literally and so I would only answer the things they asked instead of what the subtext was. I struggle with a lot of things and recently I started to realize that I probably also have some level of alexithymia.
I can relate so much as well! Tomorrow I have my first occupational therapy appointment and I so scared that I can’t put my needs into words. I am so scared. This video helped really a lot 🙏
"he's a comforting presence, who can help ground me" I'm often jittery around people I don't know (in a store, etc.), but I seem to calm down if a friend is with me. Perhaps its like body doubling in ADHD (where it helps with focusing on a task.)
I'm probably level 2 also (most of the online testing etc is for level 1, I haven't actually tried to look for level 2 tests). Doing things by myself are very difficult. With my partner, or a friend I can do many things. When I tried to attend an event by myself I shutdown in a major way which involved rocking and chanting. I avoid situations like that as much as possible. As with appointments, like you say it will take me days to prepare and to come down from. This includes phone calls. Yes I can do these things, but they will take me days to do, and many toilet visits. Most people do not understand the extent to which these things affect me.
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In case you're interested in checking out the 'Livret Bleu' from Disneyland Paris mentioned in this video, you can find it here: brochure.disneylandparis.com/TSA/FR/catalogue/catalogues/common/data/catalogue.pdf
There's Autism's Individual. She's a TH-camr who was diagnosed before the current DSM classifications came into effect, but she did a video about how she was arguing for a 'Level 2' support needs description to be added to her medical records so that she can access the support she needs when her dad is no longer able to help as much as he currently does.
Thank you for your video because it sounds really like me. Take care Suzanne
I can totally relate to the things that you talk about in this video. I feel the same things related to my own support needs. Before I was diagnosed, I was trying to "act" like a level 1 support, even though that was exhausting, and I was always burnt out and I was always having meltdowns. I get the same sort of tunnel vision that you talk about when I'm in a very agitated emotional state. I can't do small talk, and I get super annoyed when I get asked to do it. I'd rather have deep talks about the things that matter than the things that are trivial and don't matter. I hate making phone calls unless it's with someone I know and that only involves like 4 people, which is basically my entire group of friends and one of those is my partner. I got so many things growing up about how I never gave details to things but that's because I was taking what they said literally and so I would only answer the things they asked instead of what the subtext was. I struggle with a lot of things and recently I started to realize that I probably also have some level of alexithymia.
I can relate so much as well! Tomorrow I have my first occupational therapy appointment and I so scared that I can’t put my needs into words. I am so scared. This video helped really a lot 🙏
You help me understand others I care about, as well as myself. Thank you for another helpful video. 💜
You are so welcome! 🤗
"he's a comforting presence, who can help ground me"
I'm often jittery around people I don't know (in a store, etc.), but I seem to calm down if a friend is with me.
Perhaps its like body doubling in ADHD (where it helps with focusing on a task.)
I'm probably level 2 also (most of the online testing etc is for level 1, I haven't actually tried to look for level 2 tests). Doing things by myself are very difficult. With my partner, or a friend I can do many things. When I tried to attend an event by myself I shutdown in a major way which involved rocking and chanting. I avoid situations like that as much as possible. As with appointments, like you say it will take me days to prepare and to come down from. This includes phone calls. Yes I can do these things, but they will take me days to do, and many toilet visits. Most people do not understand the extent to which these things affect me.
I had no idea there were online tests for different autism support levels!