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Thanks for sharing this, I can defo relate. I thought I was doing really badly and that I was the only one who felt like this. I was really positive in hospital and for a couple of weeks after coming out. But since I have been really struggling. I had surgery on my leg 6 weeks ago and have a long rehab process ahead. Also having difficulties in my relationship at the same time so struggling without that support. I haven’t been able to go back to my flat since the surgery because of all the stairs so have been going between my parents and my partners and friends. Really want some sort of stability and sense of normal right now. Your video has helped me feel more normal emotionally though so thank you!

So I had my stomach reversal a week ago…. Just sore is all. No issues shitting, no colon pain, already shitting solid ….. I don’t know why everyone has these stupid videos with all these side effects…

Your observation is exactly the same as mine

I will need an ostomy of some type. I’m scared to fly

I no longer have peristasis in my colon. I need lots of laxatives so I can go. I feel sick most days. My dr said don’t rush surgery. Keep taking laxatives until they stop working. My GI said I could come out worse than when I went in. I don’t have a choice because without a colectomy or colostomy I will die. I will need some type of ostomy. I’m scared but that’s my life. This has ruined my life. I hope surgery can help somewhat.

From my experience, once you have breached the primary 'seal', those extenders and those fabric extensions are not keeping output from your skin. You've breached the primary, output is getting to the edges underneath IT, so, time to change. My output seems to occur mostly in the early hours of the morning, anywhere from 12:00 a.m. till empty. I usually awaken by 2:30 and typically have to empty about 2 or 3 times right away. Leaks happen at these times. When they do, you hope that the 'safety flanges' have done their job and you don't have too big a mess.

I am also experiencing this, especially after a extremely physically & emotionally traumatic hospital stay with multiple surgeries & coming close to not making it recently. I have had multiple chronic illnesses for 30 yrs.

I just watched a video about medical ptsd (medical induced trauma) and this is where my trauma comes from, not the illness.

❤

thank you !

hlo madam from Nepal colostomy pessant already

This!! You sharing this has me in tears. This is exactly what I'm going through. I have been at the end of my rope, but I just emailed this to myself. But it's not just for me. This will now be shared with my therapist, my NP, my family, my friends, and whoever else needs to hear about this. Thank you...may your day be peaceful and kind. 💗

Thanks

Good info! Never knew they existed. Thanks

Is that urinary stoma you are cathing from?

very helpful!

Thank you I am going to have surgery soon. Will have to wear a bag. Need all the advice.

Is this a colostomy or an ileostomy?

I had open heart surgery and its bin 9 months and I’m still not recovered. Feeling depressed and tired all the time. No matter what I have tried I’m not getting better. So frustrating.

❤❤❤

2 stomas that looks

The agony i had one this week i ate a banana wtf went to hospital after 10 hours as i had to wait 2 hours i vomited then my stoma started working and decided to leave the hospital

Oh no you didn’t just touch your noggin when you said touch wood. 💀 😂 Thanks for the tips! I don’t have a stoma yet but its a real possibility at my next surgery and I am arming myself with information. 😊

WOW,........ SO RELATE!!!!!!!!!!!!! I have had complex health issues for over twenty years - you are speaking my life experience!!!!! How do we raise awareness of this??? Can we set up a support group?

I have a ileostomy since March in my small bowel. I used rings seals in hospital with the stoma nurses and no success then I just put the bag on with just the extenders which helps but keeps leaking sometimes it’s very watery because I’m on magnesium powder and when I’m in my wheelchair so bed bound now feel my life is pointless because before I was independent. At my wits end and have no one to talk to about this. I hope someone out here can help me I’m using the belt as well I dry my skin with kitchen towel.Just stuck in bed and no life I can’t drive no more help my mum etc.

Ty

Watching this again two year's later and I'm still so angry. Is it because we are women? I complained of lower abdomen pain for four years! I was given endless antidepressants...which just didn't compute. The pressure was so severe that I struggled to urinate. And one day my intestines ruptured and poisoned every square inch of my body. My organs shut down and I died only to be brought back with an ostomy bag and the worse pain I've ever experienced. I will never be ok again...and had they done a simply CT scan they would have seen I had severe diverticulitis. Four year's later and I get constant blockages...candida everywhere and can drink nothing but water and eat bland foods. When I beg for help they offer me antidepressants...because that will solve bleeding from my stoma.

Praying all is going well. ❤ Do you have another channel that I've missed?

I often think about you and the impact you've had on so many people's lives. This video changed everything for me. I haven't seen you in awhile and pray everything is going well for you. And a great big thank you! You saved my sanity and dignity ❤

Thank you! I am an ischemic stroke survivor and I am experiencing this trauma

I used those but found that Sure Seal full circle rings work much better for me. I live in Florida and I use our hot tub and pool for hours and never a leak!

How are you now

You’re right! I also rinse my bag with water every time I empty it filling the bag as full as possible several times. Then put your deodorant drops in again.

I totally understand! I had a permanent colostomy two weeks ago. You will do fine! Make certain the bag is closed at the bottom. If you’re wearing a two piece snap the bag on your flange before you put it on. I had an illeostomy 17yrs ago so this wasn’t new for me but the supplies are sooo much better believe me! Glad you’re doing well!Another week makes so much difference! You go girl!😂

I'm so glad I found you and yes I really relate to how you feel and I was diagnosed with ptsd and it's very difficult. I pray that you start to feel better emotionally and physically tfs your story. ❤

Mental health is the biggest issue. It is bigger than the original "problem". Be strong girl. You are not alone. Sending hugs.

Open the bible, to any where actually. The psalms, psalm 27. Read it. Know it. FEEL it. See how you feel. I'm a homeless, disabled, 62 year old veteran, with cptsd, and no one. I live in my van for over 4 years, and must have a 5 level, lumbar spine fusion, which is rare, but it was scheduled for April 17 th. But got postponed the day before for other health issues. My rotton family, are narcissists, and flying monkeys, and could care less if I was dying on their floor. So, alone, no home, no bathroom, no help, no shower, no fridge, no anything. But my hope, is NOT ,for the things of this weak world. This IS, just a bus stop. I can tell you, that if it were not true, I would be long dead. But I am here still, suffering still, yay. But not for long. Read it.

I get a lot of times when everything just stops no bow sounds no movement no out put nothing you feel full crappy sick

You can try out stoma shields which allow the output to move away from the stoma. This is especially helpful when you hear clothing over your bag. Also, I have had good luck with convex bags. When I apply the flange, I don't use a complete barrier ring. I use about a third of it. I shape it so that it seals around the edge of the opening and I leave a little bit into the inside of the opening so that is turtle necks the stoma to help seal around it. I stopped using powder as I figure it is not allowing the ring to stick the base of the stoma. I also warm up the flange and barrier ring with a heating pad before applying it to my skin to make it stickier.

Yes. If I could have a copy please.

I sometimes pat on my side where things seem to be stuck like burping a baby to dislodge gas and rub the area to sometimes that helps

You know it's funny doctors told me to stay away from carbonated beverages because carbonation is a gas

I went through so much with doctors at age of 4 but I had 3 arthroscopic shoulder surgeries in 2005 and 2006. I didn’t understand why I was feeling really sad after the surgeries I had. My parents weren’t those kind of people you could talk to because they would tell me to suck it up or deal with it so deep down I had to hide my feelings and I mentally blocked everything out at that time in my life I was only a young teenager. I wish I was able to talk to the doctors and nurses how I was really feeling after the surgeries. I still have dreams that I’m having surgery and I sometimes wake up crying. I never talked about my surgery experiences and what was going through my mind at that time. I hope I can talk to someone who can help me. I’ve been dealing with these feelings for a long time. I do my best to put a smile on my face and go on with my day. I still cry about it.

Hey girl! Thanks for sharing! I have crohns disease and have had my colon removed. Having a stoma saved my life and it put my crohns in remission. But my mental health is soooo messed up! You are beautiful! I hope youre doing better!❤❤

i am almost 1 year out with pee pouch and i remember the days of leaks and nurses coming in. I started doing my own kits last september and I have had only 2 leaks. my fault i rushed.. I recommend using either a slim eaken ring on the flange or a dab of paste which is like caulk...it is not adhesive and the best recommendation for active people is use a belt that attaches to the wafer and is adjustable and it gives the added pressure to hold the wafer against the tummy as tight or loose as you like.. I have put kits on with no ring, no past and it lasted 8 days... with belt. good luck

Yes, may I get a copy of the list?

How did you get food to stay instead running out?

I know this is an old video, but could you tell me the bad type you were using the maker and the model or closer to I could find it

No regrets! I put it off for 10 years and nearly died of an intestinal obstruction. He found 80% totally non-functional. I also have poor pelvic floor function. I had a total colectomy and a permanent ileostomy. It isn't perfect. There are many foods I can't est.

Blimey your doing well , where's the tube down your nose down into your tummy ??