![Gut My Life Back](/img/default-banner.jpg)
- 38
- 221 105
Gut My Life Back
Australia
เข้าร่วมเมื่อ 16 ก.ย. 2020
Hi everyone and welcome to my channel- Gut My Life Back.
Since making the decision to opt for an ileostomy I have decided to document my journey from decision all the way through to 6 months post-op and beyond.
I will be sharing the raw, unfiltered reality of the stoma process, all highs, lows, laughs and tears along the way.
Hopefully this will help inspire, reassure and empower others that, if they also are opting for stoma surgery, they too can get their life back!
Sending lots of love to all those amazing, courageous people out there!
xxx Hannah xxx
Since making the decision to opt for an ileostomy I have decided to document my journey from decision all the way through to 6 months post-op and beyond.
I will be sharing the raw, unfiltered reality of the stoma process, all highs, lows, laughs and tears along the way.
Hopefully this will help inspire, reassure and empower others that, if they also are opting for stoma surgery, they too can get their life back!
Sending lots of love to all those amazing, courageous people out there!
xxx Hannah xxx
ENTERING PREGNANCY WITH A STOMA!
Hey everyone! I have some exciting but scary news to share....
I plan on sharing a new video series capturing my experience being pregnant and also having a stoma (ileostomy) in the hopes that this will help others in similar situations either now or in the future.
Any questions, queries or topic requests for future videos please let me know.
Very excited to go through this new chapter with you all.
Let's connect on IG:
gutmylifeback
I plan on sharing a new video series capturing my experience being pregnant and also having a stoma (ileostomy) in the hopes that this will help others in similar situations either now or in the future.
Any questions, queries or topic requests for future videos please let me know.
Very excited to go through this new chapter with you all.
Let's connect on IG:
gutmylifeback
มุมมอง: 862
วีดีโอ
HOW I IMPROVED MY SLEEP WITH A STOMA | GET BETTER SLEEP WITH YOUR OSTOMY | OSTOMY CARE TIPS
มุมมอง 7K3 ปีที่แล้ว
Who else is suffering with poor quality sleep since their stoma surgery? Disturbed sleep Multiple emptying trips to the toilet Night time leaks I have tried EVERYTHING to improve my sleep since my ileostomy and no matter what eat and when I STILL have to get up multiple times in the night and find it very hard to get back to sleep. UNTIL... I tried this new strategy. This has been the ONLY thin...
ILLNESS-INDUCED TRAUMA | TALKING CHRONIC ILLNESS & PTSD
มุมมอง 3.7K3 ปีที่แล้ว
ILLNESS-INDUCED TRAUMA IS NOT TALKED ABOUT ENOUGH! This type of trauma is something I have recently discovered personally and is something I never really knew existed. However it has been found that over 25% of people struggling with a chronic illness will go on to experience some level of trauma. (Personally I believe this number is much higher, it just goes unrecognised). In this video I bare...
MENTAL HEALTH STRUGGLES POST SURGERY | OSTOMY CARE TIPS
มุมมอง 3.7K3 ปีที่แล้ว
I am 4 weeks post surgery (2nd time around) and if I am honest my mental health has really taken a huge (unexpected) hit. We speak a lot about recovery in terms of physical health but much less so in terms of mental health. The reality is, surgery is a huge trauma for the mind and body and so it is super important to be aware of and taking care of your mental and emotional state post surgery. I...
WHAT AND HOW TO EAT POST STOMA SURGERY | STOMA FRIENDLY DIET | OSTOMY CARE TIPS
มุมมอง 5K3 ปีที่แล้ว
Post stoma surgery it can feel pretty overwhelming knowing what to eat or not eat. There is so much advice out there and everybody has a different opinion and experience. I definitely felt a hell of a lot of anxiety around food after my first surgery. In this video I aim to share the approach and diet I followed after both my ileostomy surgeries and to also offer some advice on how to work out ...
WHAT DOES A STOMA/BELLY LOOK LIKE POST OSTOMY SURGERY? | OSTOMY CARE TIPS | STOMA BAG CHANGE
มุมมอง 12K3 ปีที่แล้ว
TW you will see a brand new stoma and incisions in this video. I made this video to give you guys an idea of what a belly and a stoma could look like pretty soon after laparoscopy surgery and stoma formation or revision. I didn’t know what to expect going in for this surgery and it took me a while to get my head around my new belly and stoma. This is the raw, messy, unfiltered reality of what a...
9 EXERCISES TO INCREASE STOMA OUTPUT | YOGA POSES WITH A STOMA | OSTOMY CARE TIPS
มุมมอง 3.5K3 ปีที่แล้ว
As someone who struggles with stoma blockages, constipation and often getting a 'bit backed up' I have learned some great yoga and stretching exercise that help to stimulate output and get things moving again. These exercises are 100% stoma friendly and are tailored towards digestion. Give them a try the next time you feel a bit constipated or start to notice a blockage. Please like and subscri...
TRAVELLING WITH AN OSTOMY | TOP TIPS FOR FLYING WITH A STOMA
มุมมอง 5K3 ปีที่แล้ว
13 weeks post surgery and I braved my first ever flight with my stoma! It was a biggie! 26 hours from the UK to Australia! In this video I share my experience and tips for traveling. If you have any questions leave them below! :) Please like and subscribe! Let's connect on IG: gutmylifeback
9 WAYS TO UNBLOCK A STOMA AT HOME | RESOLVING AN OSTOMY BLOCKAGE | OSTOMY CARE TIPS
มุมมอง 24K3 ปีที่แล้ว
What to do if you find yourself with an ostomy blockage or partial blockage? There are ways you can resolve this simply and at home. Check out my 9 ways to unblock a stoma without needing to go to the hospital. Please like and subscribe for more videos! Let's connect on IG: gutmylifeback
7 SIGNS OF AN OSTOMY BLOCKAGE | SIGNS OF AN INTESTINAL BLOCKAGE
มุมมอง 10K3 ปีที่แล้ว
Stoma blockages and partial blockages are common complications amongst ostomates. If you are worried about whether you are developing a stoma blockage, watch this video which reveals 7 warning signs of an intestinal blockage. Please like and subscribe for more ostomy care tips. Let's connect on IG: gutmylifeback
USING A CATHETER TO UNBLOCK A STOMA | DEALING WITH OSTOMY BLOCKAGES | OSTOMY CARE TIPS
มุมมอง 19K3 ปีที่แล้ว
As someone who suffers regularly with partial blockages, sometimes the usual advice DOES NOT WORK! But there is another option available- using a catheter! (Not just for bladders!) In this video I demonstrate step by step how to use a catheter to unblock a stoma. ( Warning there is a stoma in this video!!!!! ) Please comment or ask any questions below. DISCLAIMER- this was recommended and taugh...
DEALING WITH THE LOWS OF CHRONIC ILLNESS | CHRONIC ILLNESS REALITY | EHLERS DANLOS SYNDROME
มุมมอง 7063 ปีที่แล้ว
Having a really difficult time at the moment, 9 weeks post stoma surgery and feel like I am going backwards with my recovery. My stomach and small intestine have started to really play up, leaving me not knowing what to do to help myself. The anxiety, fear and overwhelm have hit me hard. It just shows that recovery from surgery is not a smooth ride. In this video I bare all my vulnerabilities a...
OSTOMY CARE TIPS- DEALING WITH PANCAKING | WHAT IS PANCAKING
มุมมอง 24K3 ปีที่แล้ว
Time has flown and I am now 8 weeks post op! My output has been gradually thickening over the last few weeks and over the last week I have been experiencing the phenomenon- PANCAKING! 🥞 In this video I talk about: 1. What is pancaking 🥞 2. Top tips to stop pancaking 🥞 If anyone else has any tips I would love to hear them! 👇🏼
OSTOMY LEAK PREVENTION | HOW TO AVOID BAG LEAKS WITH AN ILEOSTOMY OR COLOSTOMY | FLANGE EXTENDER
มุมมอง 53K3 ปีที่แล้ว
I am 7 weeks post op and have started getting some bag leaks. This is mainly because I have started exercising and this has disturbed the stickiness of my ileostomy bag to my skin. A few blow outs later and enough is enough! In this video I share what to do to prevent ostomy leaks, stop your stoma bag from leaking and how to use a flange extender or elastic tape. I am using the elastic tape pro...
EXERCISE WITH A STOMA | WHEN TO START EXERCISING POST OSTOMY SURGERY?
มุมมอง 2.6K3 ปีที่แล้ว
4 weeks post surgery and I am excited to say I am back on the bike!!!! As someone who LOVES exercise the last 4 weeks have been hard both mentally and physically without my daily release. In this video I answer the question of when to start exercising after having surgery. And two top tips for getting back into exercise: 1. Make sure you have an electrolyte drink to stop dehydration and fatigue...
IS SURGERY A CURE FOR GUT MOTILITY DISORDERS? STOMAS AND GUT MOTILITY ISSUES
มุมมอง 3.5K3 ปีที่แล้ว
IS SURGERY A CURE FOR GUT MOTILITY DISORDERS? STOMAS AND GUT MOTILITY ISSUES
OSTOMY CARE TIPS- HOW TO RESOLVE PARTIAL STOMA BLOCKAGES - 7 WAYS TO OVERCOME AN OSTOMY BLOCKAGE
มุมมอง 12K3 ปีที่แล้ว
OSTOMY CARE TIPS- HOW TO RESOLVE PARTIAL STOMA BLOCKAGES - 7 WAYS TO OVERCOME AN OSTOMY BLOCKAGE
OSTOMY CARE TIPS | HOW TO STAY HYDRATED WITH AN OSTOMY | OVERCOME DEHYDRATION WITH AN OSTOMY
มุมมอง 3K3 ปีที่แล้ว
OSTOMY CARE TIPS | HOW TO STAY HYDRATED WITH AN OSTOMY | OVERCOME DEHYDRATION WITH AN OSTOMY
HOW MUCH WILL MY STOMA SHRINK POST SURGERY? | HOW BIG WILL MY STOMA BE?
มุมมอง 7463 ปีที่แล้ว
HOW MUCH WILL MY STOMA SHRINK POST SURGERY? | HOW BIG WILL MY STOMA BE?
OPIOID DEPENDENCY AND WITHDRAWAL SYMPTOMS | CHALLENGES COMING OFF MY PAIN MEDICATIONS
มุมมอง 5243 ปีที่แล้ว
OPIOID DEPENDENCY AND WITHDRAWAL SYMPTOMS | CHALLENGES COMING OFF MY PAIN MEDICATIONS
FIRST PARTIAL STOMA BLOCKAGE POST SURGERY | WHAT TO DO TO UNBLOCK A STOMA
มุมมอง 3.1K3 ปีที่แล้ว
FIRST PARTIAL STOMA BLOCKAGE POST SURGERY | WHAT TO DO TO UNBLOCK A STOMA
DEALING WITH STINGING STITCHES AND STOMA PAIN | POST SURGERY STOMA PAIN
มุมมอง 7533 ปีที่แล้ว
DEALING WITH STINGING STITCHES AND STOMA PAIN | POST SURGERY STOMA PAIN
WHAT CAN I EAT POST STOMA SURGERY? | THE LOW RESIDUE DIET FOR OSTOMY SURGERY
มุมมอง 6K3 ปีที่แล้ว
WHAT CAN I EAT POST STOMA SURGERY? | THE LOW RESIDUE DIET FOR OSTOMY SURGERY
ATTEMPTING MY FIRST BAGLESS SHOWER | TRYING TO AVOID THE STOMA POO EXPLOSIONS!
มุมมอง 1.2K3 ปีที่แล้ว
ATTEMPTING MY FIRST BAGLESS SHOWER | TRYING TO AVOID THE STOMA POO EXPLOSIONS!
POST OP- SLEEPING STRUGGLES AND STOMA PAIN | HOW TO SLEEP WITH A STOMA
มุมมอง 1.4K3 ปีที่แล้ว
POST OP- SLEEPING STRUGGLES AND STOMA PAIN | HOW TO SLEEP WITH A STOMA
DAY 3 POST OP- IT IS TIME TO GO HOME!!!!
มุมมอง 4193 ปีที่แล้ว
DAY 3 POST OP- IT IS TIME TO GO HOME!!!!
WHEN DOES A STOMA START WORKING AFTER SURGERY? | MY STOMA HAS STARTED WORKING 2 DAYS AFTER SURGERY!
มุมมอง 6673 ปีที่แล้ว
WHEN DOES A STOMA START WORKING AFTER SURGERY? | MY STOMA HAS STARTED WORKING 2 DAYS AFTER SURGERY!
DAY ONE POST SURGERY- WHAT HAPPENED WHEN I ATTEMPTED MY FIRST BAG CHANGE!
มุมมอง 9803 ปีที่แล้ว
DAY ONE POST SURGERY- WHAT HAPPENED WHEN I ATTEMPTED MY FIRST BAG CHANGE!
DAY ONE POST ILEOSTOMY SURGERY | WHAT TO EXPECT AFTER STOMA SURGERY
มุมมอง 8K3 ปีที่แล้ว
DAY ONE POST ILEOSTOMY SURGERY | WHAT TO EXPECT AFTER STOMA SURGERY
HOW TO PUT ON A PRACTICE STOMA KIT | GETTING USED TO HAVE A STOMA
มุมมอง 7933 ปีที่แล้ว
HOW TO PUT ON A PRACTICE STOMA KIT | GETTING USED TO HAVE A STOMA
Thanks for sharing this, I can defo relate. I thought I was doing really badly and that I was the only one who felt like this. I was really positive in hospital and for a couple of weeks after coming out. But since I have been really struggling. I had surgery on my leg 6 weeks ago and have a long rehab process ahead. Also having difficulties in my relationship at the same time so struggling without that support. I haven’t been able to go back to my flat since the surgery because of all the stairs so have been going between my parents and my partners and friends. Really want some sort of stability and sense of normal right now. Your video has helped me feel more normal emotionally though so thank you!
So I had my stomach reversal a week ago…. Just sore is all. No issues shitting, no colon pain, already shitting solid ….. I don’t know why everyone has these stupid videos with all these side effects…
Your observation is exactly the same as mine
I will need an ostomy of some type. I’m scared to fly
I no longer have peristasis in my colon. I need lots of laxatives so I can go. I feel sick most days. My dr said don’t rush surgery. Keep taking laxatives until they stop working. My GI said I could come out worse than when I went in. I don’t have a choice because without a colectomy or colostomy I will die. I will need some type of ostomy. I’m scared but that’s my life. This has ruined my life. I hope surgery can help somewhat.
From my experience, once you have breached the primary 'seal', those extenders and those fabric extensions are not keeping output from your skin. You've breached the primary, output is getting to the edges underneath IT, so, time to change. My output seems to occur mostly in the early hours of the morning, anywhere from 12:00 a.m. till empty. I usually awaken by 2:30 and typically have to empty about 2 or 3 times right away. Leaks happen at these times. When they do, you hope that the 'safety flanges' have done their job and you don't have too big a mess.
I am also experiencing this, especially after a extremely physically & emotionally traumatic hospital stay with multiple surgeries & coming close to not making it recently. I have had multiple chronic illnesses for 30 yrs.
I just watched a video about medical ptsd (medical induced trauma) and this is where my trauma comes from, not the illness.
❤
thank you !
hlo madam from Nepal colostomy pessant already
This!! You sharing this has me in tears. This is exactly what I'm going through. I have been at the end of my rope, but I just emailed this to myself. But it's not just for me. This will now be shared with my therapist, my NP, my family, my friends, and whoever else needs to hear about this. Thank you...may your day be peaceful and kind. 💗
Thanks
Good info! Never knew they existed. Thanks
Is that urinary stoma you are cathing from?
very helpful!
Thank you I am going to have surgery soon. Will have to wear a bag. Need all the advice.
I hope your surgery goes well and you recover well. I had ilesotomy surgery in Tampa in 2017 and it has changed my life for the better. My recover took a while and I tried a few different products until I found the right combination. The internet and TH-cam ideas are a good source of information and suggestions. Hang in there and good luck with your surgery. Where are you having your surgery and is it a permanent colostomy or ileostomy? I’ll keep you in my prayers.
Is this a colostomy or an ileostomy?
I had open heart surgery and its bin 9 months and I’m still not recovered. Feeling depressed and tired all the time. No matter what I have tried I’m not getting better. So frustrating.
❤❤❤
2 stomas that looks
The agony i had one this week i ate a banana wtf went to hospital after 10 hours as i had to wait 2 hours i vomited then my stoma started working and decided to leave the hospital
Oh no you didn’t just touch your noggin when you said touch wood. 💀 😂 Thanks for the tips! I don’t have a stoma yet but its a real possibility at my next surgery and I am arming myself with information. 😊
WOW,........ SO RELATE!!!!!!!!!!!!! I have had complex health issues for over twenty years - you are speaking my life experience!!!!! How do we raise awareness of this??? Can we set up a support group?
I have a ileostomy since March in my small bowel. I used rings seals in hospital with the stoma nurses and no success then I just put the bag on with just the extenders which helps but keeps leaking sometimes it’s very watery because I’m on magnesium powder and when I’m in my wheelchair so bed bound now feel my life is pointless because before I was independent. At my wits end and have no one to talk to about this. I hope someone out here can help me I’m using the belt as well I dry my skin with kitchen towel.Just stuck in bed and no life I can’t drive no more help my mum etc.
Ty
Watching this again two year's later and I'm still so angry. Is it because we are women? I complained of lower abdomen pain for four years! I was given endless antidepressants...which just didn't compute. The pressure was so severe that I struggled to urinate. And one day my intestines ruptured and poisoned every square inch of my body. My organs shut down and I died only to be brought back with an ostomy bag and the worse pain I've ever experienced. I will never be ok again...and had they done a simply CT scan they would have seen I had severe diverticulitis. Four year's later and I get constant blockages...candida everywhere and can drink nothing but water and eat bland foods. When I beg for help they offer me antidepressants...because that will solve bleeding from my stoma.
Praying all is going well. ❤ Do you have another channel that I've missed?
I often think about you and the impact you've had on so many people's lives. This video changed everything for me. I haven't seen you in awhile and pray everything is going well for you. And a great big thank you! You saved my sanity and dignity ❤
Thank you! I am an ischemic stroke survivor and I am experiencing this trauma
I used those but found that Sure Seal full circle rings work much better for me. I live in Florida and I use our hot tub and pool for hours and never a leak!
How are you now
You’re right! I also rinse my bag with water every time I empty it filling the bag as full as possible several times. Then put your deodorant drops in again.
I totally understand! I had a permanent colostomy two weeks ago. You will do fine! Make certain the bag is closed at the bottom. If you’re wearing a two piece snap the bag on your flange before you put it on. I had an illeostomy 17yrs ago so this wasn’t new for me but the supplies are sooo much better believe me! Glad you’re doing well!Another week makes so much difference! You go girl!😂
I'm so glad I found you and yes I really relate to how you feel and I was diagnosed with ptsd and it's very difficult. I pray that you start to feel better emotionally and physically tfs your story. ❤
Mental health is the biggest issue. It is bigger than the original "problem". Be strong girl. You are not alone. Sending hugs.
Open the bible, to any where actually. The psalms, psalm 27. Read it. Know it. FEEL it. See how you feel. I'm a homeless, disabled, 62 year old veteran, with cptsd, and no one. I live in my van for over 4 years, and must have a 5 level, lumbar spine fusion, which is rare, but it was scheduled for April 17 th. But got postponed the day before for other health issues. My rotton family, are narcissists, and flying monkeys, and could care less if I was dying on their floor. So, alone, no home, no bathroom, no help, no shower, no fridge, no anything. But my hope, is NOT ,for the things of this weak world. This IS, just a bus stop. I can tell you, that if it were not true, I would be long dead. But I am here still, suffering still, yay. But not for long. Read it.
I get a lot of times when everything just stops no bow sounds no movement no out put nothing you feel full crappy sick
You can try out stoma shields which allow the output to move away from the stoma. This is especially helpful when you hear clothing over your bag. Also, I have had good luck with convex bags. When I apply the flange, I don't use a complete barrier ring. I use about a third of it. I shape it so that it seals around the edge of the opening and I leave a little bit into the inside of the opening so that is turtle necks the stoma to help seal around it. I stopped using powder as I figure it is not allowing the ring to stick the base of the stoma. I also warm up the flange and barrier ring with a heating pad before applying it to my skin to make it stickier.
Yes. If I could have a copy please.
I sometimes pat on my side where things seem to be stuck like burping a baby to dislodge gas and rub the area to sometimes that helps
You know it's funny doctors told me to stay away from carbonated beverages because carbonation is a gas
I went through so much with doctors at age of 4 but I had 3 arthroscopic shoulder surgeries in 2005 and 2006. I didn’t understand why I was feeling really sad after the surgeries I had. My parents weren’t those kind of people you could talk to because they would tell me to suck it up or deal with it so deep down I had to hide my feelings and I mentally blocked everything out at that time in my life I was only a young teenager. I wish I was able to talk to the doctors and nurses how I was really feeling after the surgeries. I still have dreams that I’m having surgery and I sometimes wake up crying. I never talked about my surgery experiences and what was going through my mind at that time. I hope I can talk to someone who can help me. I’ve been dealing with these feelings for a long time. I do my best to put a smile on my face and go on with my day. I still cry about it.
Hey girl! Thanks for sharing! I have crohns disease and have had my colon removed. Having a stoma saved my life and it put my crohns in remission. But my mental health is soooo messed up! You are beautiful! I hope youre doing better!❤❤
i am almost 1 year out with pee pouch and i remember the days of leaks and nurses coming in. I started doing my own kits last september and I have had only 2 leaks. my fault i rushed.. I recommend using either a slim eaken ring on the flange or a dab of paste which is like caulk...it is not adhesive and the best recommendation for active people is use a belt that attaches to the wafer and is adjustable and it gives the added pressure to hold the wafer against the tummy as tight or loose as you like.. I have put kits on with no ring, no past and it lasted 8 days... with belt. good luck
Yes, may I get a copy of the list?
How did you get food to stay instead running out?
I know this is an old video, but could you tell me the bad type you were using the maker and the model or closer to I could find it
No regrets! I put it off for 10 years and nearly died of an intestinal obstruction. He found 80% totally non-functional. I also have poor pelvic floor function. I had a total colectomy and a permanent ileostomy. It isn't perfect. There are many foods I can't est.
Blimey your doing well , where's the tube down your nose down into your tummy ??