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HOW I IMPROVED MY SLEEP WITH A STOMA | GET BETTER SLEEP WITH YOUR OSTOMY | OSTOMY CARE TIPS
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- เผยแพร่เมื่อ 16 ก.ค. 2021
- Who else is suffering with poor quality sleep since their stoma surgery?
Disturbed sleep
Multiple emptying trips to the toilet
Night time leaks
I have tried EVERYTHING to improve my sleep since my ileostomy and no matter what eat and when I STILL have to get up multiple times in the night and find it very hard to get back to sleep.
UNTIL... I tried this new strategy.
This has been the ONLY thing to help me feel more rested.
Let me know what you guys think!
Follow me on IG- @gutmylifeback
Glad to see you doing well. I have to set my alarm at 1:30am every night to empty. I have a red bulb in the night light in the master bath and am able to navigate without turning on any other light source. Luckily I fall back to sleep right away. Keep smiling.
Awesome! So glad it is helping you too! (Always smiling :) )
Awesome, see my re,arks.. I had forgot about RED LIGHT (( aka Studebaker AVANTI, AIRCRAFT, & special night panels)))..♿️⚠️
@@gutmylifeback7926, hi there, thanks for the tip. Where online did you buy the motion sensor red light? Couldn't see it on a anywhere on link. Thank you in advance.
I'm around 6 weeks post op. What's really helped myself is, not eating around 1.5 hours before I plan on sleeping and emptying my bag just before I go to bed. There have been times I do need to get up but it's helped massively.
I just had my stoma reversed. Now I’m trapped in my house to be near the bathroom. I have no control of my movements yet.
You get an external night bag to attach to your body bag. It holds 2 liters. With your bag plenty capacity to sleep through the night
Many thanks, this is certainly a problem for many including myself I’m sure without having to ask, that it is bright enough for you to see what your doing xx
Hiya.
Great advice which I will try out.
What I have done is set my alarms on the hr every hr on my mobile from 12am onwards to wake me to drain my bag and it’s worked, tired at work but no issues. Funny how at work I drain maybe 3 times yet only have a light lunch a banana lol, at home i pig out and draining at least 4 times than the nightmare at bedtime begins. Luckily my partners sometimes warn me of my balloon bags but the alarm works, I will try the light, every thing helps. Thank you and bless you.
It is hard to find what will work for you as everyone's bodies are so different! Thanks for your comment :)
@@gutmylifeback7926 thank you, forgot to say, I found shortbread all butter fingers great to thicken stoma fluid , couple at night before bed…. Might help someone.🤷♀️
Bless.
Just wanted to say your videos replicate my every physical and mental emotions dealing with a loop ileostomy , I’m just waiting for the day to be reversed. I feel trapped with no control of my life with this ileostomy constantly reminding me that I’m chronically ill. Are you going to have a reversal surgery ? can you make an update video please !
All the best on your reversal...i hve had problems since my reversal Sept 2017 n finally had yo get the stoma out...☹
Thanks, ❤interestingly, I have used ( if I remember ) RED LIGHT , lowered Day vision losses,erc; since Studebaker/ etc put their VEHICLE INSTRUMENPANEL LIGHTS, in RED/ Bulbs in 1963(** AIRCRAFT IS STANDARD ?.).. later …oops, ps I now looking for “ red light/ aircraft “ night light, etc..(( I am generally ,always once Nightly & , empty Pouch : **HOLLISTER,#18183,drainable,Beige Color, Filter ( **NEW IMAGE)… later:::
Every two house for me least every other night, laying on my stomach sleeping is out of the question passing gas is bad as well sitting up in my recliner is my only good sleep
Omg my first bag leak in the middle of the night after 8 weeks of surgery ☹️😞
Ahhh the sudden surge of panic!! I remember that feeling!
Great information
How has your stoma surgery affected your intimacy with your partner? after almost four years mine I'm still very self-conscious about my bag. What if it makes sounds during intercourse, should I stop if bag gets full, etc.
I was a little nervous to start with but I use a waist band or clip it up so it stays out of the way. It has made the odd noise but we just laugh about it now. My partner is super supportive so I am very lucky
Kitty cat dont worry about a little thing. Every little thing its gonna be alright.
i have also intestine problom. i need some help about u i have always bloayed tummy pain i m stuck home cramp pain in siting up this is motility disorder plz tell me
Getting up and going to the bathroom is one issue, my biggest however, seems to be the fact that I'm absolutely starving most of the night. I honestly don't know how anybody else with an ostomy is making it to morning without having to eat, the hunger pains are so strong for me. Do you not have to eat anything in the middle of the night, ever?
@Lauren Romero Yep. With the exception of the last two nights (a first in years) where I ate real big diners. The trade off being I'm up almost every hour or so going to the bathroom.
@Lauren Romero Oh no, I'm always wanting to eat and I could drink coffee, but I don't enjoy it.
@Lauren Romero No, I'm pretty much always hungry and wanting to eat. I think I'm just not eating enough in the day for how active I am....the more I'm looking into it.
I too feel so hungry in the night, I wish I could understand why I’m always hungry, and my stomach makes awful noises as well as the stoma 😫 an I eat well, it just goes straight through me x
@@katrinawest487 I had the same problem for years after my last take down. I think the cultrate was that I wasn't nearly hydrated enough. Water alone was making me just flush everything. Once I started pounding electrolytes that only had stevia as a sweetener, things got much more consistent. That, and I upped my protein intake. Any time I don't get enough I can be sure I'll be hungry at night, I even get nigh sweats if I don't get enough nutrition, not necessarily just calories but nutrition.
Anyway, start there if ya haven't already. It's been close to two years since I've had to eat full blown meals at night. It's like your metabolism knows when it's feeding time too. So try slamming electrolytes before and after meals, as well as picking up a protein powder that doesn't have artificial sweeteners (I go vegan on this cause it's not as gassy) and drink one of those afterwards too, at least before bed.
Then....get back to me, lol.
Hi can you pls tell me what milk is best for colitis ? normal milk dosnt agree with me but I need milk for my bones as I have osteoporosis and spondylitis and am missing drinking it xx
Try lactose free milk 🥛 😊
@@gutmylifeback7926 thankyou so much
I have Crohn’s Disease and I drink goat milk , taste almost exactly the same as cows milk but it’s less lactose and easier to digest.
@@jesseeckley9590 thankyou so much 😊
Oat milk is best for me. Plenty of fortified vitamins and easier digested.
I wish someone would do some slow cooker meals for someone with colitis any ideas do you know someone that doing it on TH-cam ??
I use my slow cooker ALL the TIME! I can do a video on this :)
@@gutmylifeback7926 yes pls thankyou looking forward to it 😊
@@gutmylifeback7926 you know when you do the slow cooker meals can you do some without garlic and onions and mushrooms pls which we can’t have anyway but a lot of dinners are with that and that dosnt help with IBD PLS
@@Michelle-qd9gm yes I can’t eat any of those things either 😊
@@gutmylifeback7926 looking forward watching your meal plans in the slow cooker thankyou for helping me out 😊👍
Thanks, I am post Total Colectomy six plus years: U OF CHICAGO GI OSTOMY & ADVANCED SCIENCE CENTER…. Also, anything to help OSTOMY Care!, later
god bless u
This year January 2023..n its tough...
I can prolong change times at night if I eat corn flakes, for at least 5 hours. But man am I sick of Corn Flakes lol. I’m in Canada so I’m able to take edibles at night as well. They do help with getting back to sleep and can sometimes prolong changes as well but set an alarm if ur new to them bc they really knock you out sometimes.
Hi am feeling really down and crappy today do you get days like this ?
Hey chin up, first 2 weeks out of hospital I thought my life was ruined, sitting out side my shower, in the cold it was November I came out of hospital , was alone, first bag wouldn’t stick to the hard ring and sat their after a shower, thought the whole world was against me, decided their and then not to let this stoma beat me ‘ it was WAR ‘ and I wasn’t about to lose it…..
It’s now been 11 month since my opps and 3 deaths on the operating table and I have a normal life, I ride my motorbikes and walk to work and not missed a day since 4th jan.
Eny questions just ask and I will try to help, don’t panic we are all here for you…. Be safe and strong bless you ….Barry
Yes this is absolutely normal! And not just for people with stomas but it’s a part of the human experience! This will pass (nothing is permanent), sending lots of love x
@@gutmylifeback7926 thankyou again for your kind support 😊
@@RogueJester1313 hi Barry thankyou so much it was all a bit of a shock this emergency surgery as I went through cancer not so long own ago and am disabled with chronic spondylitis and osteoporosis I broke my hip after cancer due to keep falling and with the pandemic my pain injections stopped I do wear a morphine patch and lots of other meds I was in bed a few months so I was very weak that day I woke up with pain you know the story how it goes got rushed with blue lights to hospital after test after tests I was going down to theatre and surgeon said I would be waking up in icu was in there for a few days the pain was horrendous even on machine drips pain meds I had a pick line in because of my cancer making them so thin my arm can’t take a needle I did lose a part of my body through cancer as well so my body had enough been to hell and back
Now this wow am finding it so hard if I had one complaint it would be they don’t give you enough information while you’re in hospital no diet sheets which god if it wasn’t for people like you and this channel and a few more I watch I don’t know what I would do it has opened up a world for me talking to you guys so I know am not alone yes they tell you how to change a bag which looks pretty easy when they do it dosnt it
I had my first leak the other night omg that’s a experience of it’s own it’s only been about 8 weeks since my surgery so yes it’s early days for me
Thank good you get some spray to take your bag of I coundnt do it otherwise it hurts with me healing am getting a lot of info now of people because am reaching out and asking which took me a while to do I do think people got enough to cope with without me asking lots of questions
But I had to reach out did you know anything about this disease I didn’t ? Not a clue people don’t talk about IBD like they do cancer or other diseases it’s a lot to learn about food your supplies and it can be overwhelming
But with people at my side which is you so thankyou so much for reaching to me it means the world to me that am not alone
It seems you’ve got this and am so glad for you it will get easier for me in time 😊
@@Michelle-qd9gm hiya Michelle.
Where can I begin by only saying how bad it’s been for you and how proud I am of how you are coping with such Health issues.
As like you I went into hospital not knowing my problem of breathlessness, which I found out later I had 3 blood clots 2 of which had reached my lungs 1 still in my leg, brother was told only 30% chance of coming through opp. I did die once in first opp ,by the way everything I am telling you I was never told till I was out of hospital, I was never asked or consulted about stoma I just woke up and their it was, my stoma nurse attached first bag on me and asked “did you see what I just did … can you do the same?”🤷♀️
Being an engineer I said yes, after a few days she told me to try, seeing I had been in a coma for 2 months and loss at that time use of hands properly , couldn’t walk yet was like a 2 month old baby.
When I asked her how long I have this bad she said” why always Barry “ shock horror !!!!
But hey I’m living, more worried about walking and ridding my motor bikes.
But I pulled through, was given a dietary booklet and my home visit nurses name…. In other words ‘ bye good luck’
Thank goodness for my partner in NI who helped and chatted to me about stomas, what to do and what to avoid I pulled through with the help from these angels like ‘gut my like back’….
What I have learnt from these guys and my own experiences I can pass on and make life easy for others, I in some cases even forget I have a bag on🤔
Ask me enything you want and I will try to help , I belong to Fittleworth who supply my bags and bits like hard rings, wipes and bags, I find it easy is to talk to others with stoma than a nurse… bless them but they hav’nt got one🤷♀️
By the way I have named my stoma and the hernia next to it Laurel and hardy 😂🤣
Hernia is another issue that may appear, ask and I will tell you… well back to work, I am here 24/7 if you need information, be strong and smile, we are all a Special person, we stoma more than most. …. Bless you Michelle…. Smiles …Barry