DEALING WITH THE LOWS OF CHRONIC ILLNESS | CHRONIC ILLNESS REALITY | EHLERS DANLOS SYNDROME

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  • เผยแพร่เมื่อ 11 ก.ย. 2024

ความคิดเห็น • 20

  • @Michael-MYR
    @Michael-MYR 3 ปีที่แล้ว +4

    My prayers are with you.....know that I have learned a lot from you, you are doing a great thing...I have joined a support group in my home town. Please don't give up. I believe in your strength.

    • @hannahmyall
      @hannahmyall 3 ปีที่แล้ว

      Thank-you so much and so happy I have been able to help- hope you are doing ok :) xx

  • @vancekershaw6876
    @vancekershaw6876 3 ปีที่แล้ว +1

    I hope you feel better soon and God is in control and he will take care of you and I know the feeling concerning illness we do the best we can but things still go wrong I'm going through the same thing myself. I don't have the same problem you have but I have a heart problem and I do my best to eat healthy but I still get the same results from my doctor nothing but bad news about my blood work. Even though I eat healthy and it's frustrating because it's certain medications I don't want to take because of the side effects of the drugs. So my heart goes out to you. And I thank you for the positive videos that you have posted

  • @valsariarts6518
    @valsariarts6518 3 ปีที่แล้ว +4

    I really hope you find your little bit of relief. I have ulcerative colitis, and I really related to all your feeling. Chronic illness really suck and it's can be soul crushing. Stay strong chick, you've been so brave I know you can get through this x

    • @hannahmyall
      @hannahmyall 3 ปีที่แล้ว

      Thank-you so much! It is hard to keep riding the ups and downs sometimes, but nothing in life is permanent and we will get through it :)

    • @cashwill7119
      @cashwill7119 3 ปีที่แล้ว

      A trick : watch movies on kaldroStream. Me and my gf have been using it for watching a lot of movies recently.

    • @brysondenver6406
      @brysondenver6406 3 ปีที่แล้ว

      @Cash Will definitely, been using Kaldrostream for since november myself :)

  • @billiejo52
    @billiejo52 3 ปีที่แล้ว

    I have the same feeling. My pain is unbearable and I have no life right now. I don't know how much more I can take. I am sorry you felt this way. I have no support its hard.your amazing and strong and you are helping people like me

    • @gutmylifeback7926
      @gutmylifeback7926  3 ปีที่แล้ว +1

      I’m so sorry to hear you are also struggling... please reach out on IG if you ever need to talk xx

  • @lisastephens3447
    @lisastephens3447 3 ปีที่แล้ว

    I understand about a chronic illness. I have recently been diagnosed with radiation enteritis after numerous bowel obstructions. The surgeon wanted to give me a third stoma (I have a colostomy and an urostomy). He wouldn’t listen to any of my concerns. I told him I can’t have a third stoma and he discharged from hospital without any dietary advice or any medication. I am really struggling. I only eat soup and yogurt. My output is virtually non existent. I am worn out.
    I hope you are better and I am glad I have found your channel x

    • @hannahmyall
      @hannahmyall 3 ปีที่แล้ว

      So sorry to hear this- I am sending you so much love and healing, I completely understand how tough this can be- it sucks big time! xxx

  • @edgrabousky9995
    @edgrabousky9995 3 ปีที่แล้ว +1

    I had to go get a second and third opinions on my treatment plan. I reached out to temple university and the university of Pennsylvania. And they had a different plan for me to follow, then my local hospital had me on. Having low days is perfectly normal! So when you get a good one take advantage of it and do something enjoyable. Having an illness during a pandemic can really effect one’s emotions. Take it from me I know, not going out with friends is tough. Hang in there your probably feeling much better by the time you read this note.

    • @hannahmyall
      @hannahmyall 3 ปีที่แล้ว

      We have to just keep riding the waves and know that things always change when we are down. I hope you have managed to find some answers and a good plan of action for you x

  • @donnaallison7462
    @donnaallison7462 3 ปีที่แล้ว +1

    I have dead bowel chronic inertia and gastroparesis just like you.there wanting to do a colectomy with ileo rectal anastomosis. Plus I have gastroparesis aswell.plus I have severe other chronic illnesses aswell so I know what your going through. I just want it fixed

    • @gutmylifeback7926
      @gutmylifeback7926  3 ปีที่แล้ว

      I’m so sorry to hear you are going through this. And I hope the surgery gives you the relief you need xxx

  • @deborahmeyers7839
    @deborahmeyers7839 3 ปีที่แล้ว

    I'm going to light a candle for you and do a healing meditation for you with incence and aromatherapy oils. I know it's hard you know one thing that helped me I am a 4th time ovarian cancer recurrence survivor I have a colostomy what helped me was no matter what was happening I would say to myself I am safe at all time yes its hard but you will be safe you are soooo lovely that I've subscribed love and hugs xx

    • @gutmylifeback7926
      @gutmylifeback7926  3 ปีที่แล้ว

      Bless you that is so lovely- thanks for all your comments on my videos it means so much to me. What a brave lady you are! Xxx

    • @deborahmeyers7839
      @deborahmeyers7839 3 ปีที่แล้ว

      @@gutmylifeback7926 ♥️♥️♥️

  • @trinamartinez4669
    @trinamartinez4669 3 ปีที่แล้ว

    🙏🏿💪🏽❤️