IS SURGERY A CURE FOR GUT MOTILITY DISORDERS? STOMAS AND GUT MOTILITY ISSUES
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- เผยแพร่เมื่อ 27 ส.ค. 2024
- 5 weeks post op and I feel like a new woman! But there is a BUT. I am not completely out of pain and discomfort. Despite my gut symptoms being DRAMATICALLY better I am still struggling with my stomach. It feels like phase one is complete (stoma surgery) and now I have to move onto phase two (improving my stomach- gastroparesis).
Unfortunately for many, surgery is not the last piece of the puzzle , it is just a significant part of it.
In this video I explain:
✅Why stoma surgery isn’t necessarily a cure for gut motility disorders
✅How to manage your surgery expectations
✅How to see surgery as a positive step in your journey rather than the end result
Please like and subscribe for more videos.
Let's connect on IG:
/ gutmylifeback
I no longer have peristasis in my colon. I need lots of laxatives so I can go. I feel sick most days. My dr said don’t rush surgery. Keep taking laxatives until they stop working. My GI said I could come out worse than when I went in. I don’t have a choice because without a colectomy or colostomy I will die. I will need some type of ostomy. I’m scared but that’s my life. This has ruined my life. I hope surgery can help somewhat.
Warning: Anyone without a gallbladder who gets an ileostomy may experience extreme dehydration and electrolyte imbalances which can be dangerous
I just saw your video, right now I'm waiting for ny surgery. To get out my colon and get a leostomy or a Ileorectal anastomosis. I'm scared because I have to choose what's the best for me and I'm feeling so sick for the last 24 years... I don't know what I'm gonna choose but this video has giving me more hope for the future. Thank you for that!
Hallo Sharona, kom je uit Holland en wat is er intussen gedaan bij jou?
Ik kom uit Holland, woon in Duitsland en krijg vlg week mijn Proktokolektomie. Dikke darm eruit, anus dicht en een Iliostomy. Ik ben zo nerveus. Vandaag was eigentlijk de OP gepland maar door ziekte van personeel verschoven naar maandag opname/dinsdag OP. Ben benieuwd of en wat er bij jou gebeurd is.
Groetjes uit Duitsland.
@@leonieniedermaier3005 Hoi Leonie! Ik kom inderdaad uit Nederland. Ze hebben bij mij op 24 mei mijn dikke darm verwijderd en mijn dunne darm op mijn endeldarm aangesloten. Tijdens de operatie zijn ze nog wel wat meer dingen tegengekomen die weggehaald moesten worden (niks ernstigs verder gelukkig). Ik ben nog niet waar ik moet zijn maar ben wel tevreden en blij dat ik deze keuze heb gemaakt. Sorry voor mijn late reactie, ik kreeg eerst geen melding.. Ben je ondertussen al geopereerd? Ik hoop dat het goed met je gaat! Groetjes xxx
@@sharonakleinpoelhuis7224 hi i hope you r doing well should i get a ileostomy i am suffering from colonic inertia since the last 7 years its bad but not bad enough to get surgwry i feel
Well said, been going through this for 14 years. All the misdiagnoses are what really gets to me. Until I saw this, I couldn't imagine anyone knowing how I feel. Thanks 😀
hi how are you did you get an ileostomy?
its now May 2023....how about an update? you are terrific!
Oh my goodness, I needed to hear this. I am considering having surgery for this long standing condition and am so scared I’m doing the right thing 🫤
Same here!!!
No regrets! I put it off for 10 years and nearly died of an intestinal obstruction. He found 80% totally non-functional. I also have poor pelvic floor function. I had a total colectomy and a permanent ileostomy. It isn't perfect. There are many foods I can't est.
I'm so happy I have come across yr TH-cam.
I have hEDS, gastroparesis, PoTS, esophageal dysmotility, bowel motility disorder same as you hun.
I have a NJ tube in at the moment Nd it's been in since July last year and been waiting 2 years for my ostomy.
I am on the list for a loop ileostomy and when I read a bit about it I freaked out and been looking for someone who has one and I can across your TH-cam.
I will be catching up on all your videos.. the 1st one I seen was latest 2.
Hi Alyson so happy you commented on this video- sounds like we have a similar background in terms of motility. My stoma has definitely helped eased those gut symptoms thank goodness. If you have any questions, worries or concerns let me know I’ll be happy to help. Follow me on IG @gutmylifeback then we can message each other :) x
@@gutmylifeback7926 thank u lovely. I have just commented again on yr mose resent video, sorry re explained alot of this but also went into more about what I have to do.
I will deffo go follow you on IG. Thank you for replying hun xx
@@alysonp5844 thank you for your other comment- your story sounds so similar to mine including all the gut symptoms- my loop ileostomy has cured most of these symptoms abs given me a better quality of life- so it is a positive step 😊
@@gutmylifeback7926 its so good to know its helping u hun, that is brilliant and I'm.so happy for u.. these symptoms are so hard to live with ad wouldn't wish them on anyone.
I rang the booking team and I'm booked for my pre assessment on 7th May and then just have to wait for when and what hospital my surgeon wants to bring me into if they say I'm fit for surgery. Could still be a long wait as he keeps saying he dont want to put me at risk. I'm getting so desperate now, and going through so much.
I'm worried about do you have to try to clean out for the surgery? If so I have no idea how this is going to happen aswell.
I have started to follow u on IG so u may have some messages with questions off me hun. But I completely understand if u can't pick them up of if it take some time to get round to them.
Hope yr doing OK lovely 💕 x
@@alysonp5844 ask that on your pre op as some people have to clear our using bowel prep and others don’t.
Of course ask away! I’m happy to help ☺️
thankyou soo much ♡♡ this video was exactly what I needed.Thankyou for your honesty and compassion to help others.
I would love to talk with you. I am awaiting an ileostomy. I have slow transit constipation and delayed gastric emptying. I have been trying to find people with similar struggles to mine. I've been told exactly the same in terms of not knowing if it will help, but we are out of options. Thank you so much for sharing this!! X
hey i am awaiting to get tested but all symptoms point to that i might have slow transit constipation /colonic inertia are you getting ileostomy to treat constipation?
reply please i wanna talk to someone who has same issues as me
Oh my gosh girl ! I needed your TH-cam channel so badly! I have EDS Mitochondrial Disease MCAS GI DYSMOTILITY Gastreoparisis and chronic pseudo obstruction. Ive been considering a ileostomy my medical team has suggested it to me . I needed to hear this video though . Here recently I've been putting all my hope and thoughts into this ileostomy! I kept thinking this is the fix . But I've benge watched all your videos and am just realizing that thats not the case ! It may not be a 100% fix . It may be just another tool to help me better manage my bowels . So I am spending 3 to 5 hours in the bathroom trying to relieve myself with enemas and laxatives . It has taken over my life ! I have 2 children and I am missing life as im a prisoner in the bathroom. I know you've been struggling with blockages . Do you regret the surgery? Has it improved your quality of life? Im so scared but I'm also hungry for relief! Thank you for sharing your experiences as I truly needed to see them to help me as I walk this road. Much Love and Many Prayers to you 🙏 ❤
Hi Meagan so glad you found my channel! You sound like you are in the position I was- spending so much time trying to open my bowels but nothing really working.
I do not regret my ileostomy at all- it has improved my gut symptoms by 90%. And actually the blockages I was constantly getting at the time of this video was because of scar tissue. I have just had a second surgery to remove the scar tissue and my blockages have stopped altogether. This can happen randomly and some people do get scar tissue after surgery. And my stomach issues have settled down now- it just needed time.
So now I’m living life pretty free to do whatever and eat whatever!
And remember a stoma can be reversed- which is what helped me come to accept the surgery. I knew if it didn’t work or I hated it it could be reversed.
If you wana talk follow me on IG (@gutmylifeback) and Dm me xxx😊❤️
I am lucky, that the removal of my colon does cure me, but will have the bag for life. I am okay with the trade...keep smiling
Dont know if you guys gives a damn but if you guys are bored like me atm you can watch all the new movies on InstaFlixxer. I've been binge watching with my gf these days :)
did you had colonic inertia?
@@IdkIdk-gw3qo I had UC for 12 years and my colon died, I wish I had found Keto sooner, because after the surgery, that new diet got rid of all the inflammation in my body. Motility Disorders usually don’t want you to eat meat and more try to relax your digestion, so probably would not work for you. Search out a Dr that listens to you and work on a good course of treatment. I did and lost over a 150 lbs and am in the best shape of my life.
@@Michael-MYRhi can i add you on IG i have motility isue aswell a cant go without a laxative it realy heps alot if i have someone to talk too
My husband 64years old now, suffering feeling sick most of the time specially at night for 5years but getting worse lately even with some medication, feel better at daytime when working. He's been diagnosed with chronic lower esophageal dysmotility and probably somewhere else in the gut for about five years but just diagnosed last year. We're not confident having sugery which it seems the last choice if everythings not working.
This is me! I have colonic dysmortality, slow transit, outlet obstruction, obstructive defecation! I have been through irrigation, tablets physio and not helped so I was desperate for a colostomy and in the end my surgeon agreed that it’s the next thing too try
hey how are you doing now?
And did you get the ostomy surgery?
@@IdkIdk-gw3qo i had the surgery 7 months ago I have to go back in too have My colostomy changed too a ileostomy
@@ashtongoodlad4174 yeah i am also looking into getting a ostomy cause my constipation is just getting worse worse its my last choice but i have suffered for too long nd i need a relief
hi i think i also have slow motility do you think i need to have ostomy?
@@rizzatandoy3486 are you having constipation due to slow motility??
thank you !
Sounds like the stomach issues are what I'm going through how did you treat them? How are you now 2yrs later?