I am fairly new to this stoma thing, and I have'nt suffered a blockage (touch wood) yet. I have found your videos extremely helpful and supportive, keep up the great work !!!
I often think about you and the impact you've had on so many people's lives. This video changed everything for me. I haven't seen you in awhile and pray everything is going well for you. And a great big thank you! You saved my sanity and dignity ❤
Thank you so much for sharing this! Your video just saved us a trip to the ED. My husband has only had his ileostomy for about 6 weeks and this was the first time he has experienced a blockage. He was so afraid of being put back into the hospital. We are so grateful.
Sounds like we have a similar story. I was getting blockages weekly and trying all the things you suggest but still ended up in A&E most of the time. I’ve had 5 surgeries for blockages and prolapses in the last couple years. Hoping things are on the up now. Hope all is well with you, hang in there!
Thank you 🙏 I feel so alone. I’ve had Colectomy/Proctectomy & I get blockages fortnightly. I’m at a loss. Last time I went to ER my surgeon was there & he told the nurses & emergency doctor to send me home & refer to my GP. I’m literally hardly eating at all because I’m too scared. My doctor has got me on a movicol twice daily. My GP is the only one who seems to care. My mental health has declined as I’m always on guard.
My partner has had a stoma for the last 30 years, never had a blockage until today, tried all you suggested except the catheter and nothing worked. He's in hospital now, but everything you said is exactly what the GP, stoma nurse and 111 said to try, so good on you.
No worries, glad it was helpful! And that is still so new :), you sound like you are doing great so far. Just take it day by day and anything that happens is a learning opportunity :).
I just had my reversal. I threw up after a while because liquids were going down to slow, Had an x-ray that showed there's a lot of gas. I'm on my seventh day in the hospital going to start soft foods. Anyone been in the same situation. One more thing the doctor said my intestines is like a funnel probably being the reason it's not going down quick enough.
I'm 2 years plus with my ileostomy and get a blockage probably every 4 or 5 months. Last night I ate some olives. I'd had a glass of wine and totally forgot I don't do well on them. 22 hours later and I've lost any appetite. My tummy is in pain as my stoma is desperately trying to work. I've started drinking some cola in the hope it starts shifting itself. I'm also massaging the stoma area. I don't have a bath so can't do as you suggested. If I start vomiting then I'll know before too long, I'm going to have to call an ambulance. Last time, the Dr at A&E sorted it by inserting his little finger. Worked wonders and I was allowed back home. Love all your tips. Thank you 🙋🏼♀️🦋🌸 UPDATE: Blockage all sorted after a glass of coke sipped periodically and stoma gently massaged. YAY! No A&E tonight. I need to get me a catheter 🤫🤭🦋
Yes I sometimes use a catheter to try and unblock it manually. Sounds like you are very proactive and know exactly what you need to do for yourself and your body. Thank you for your comments on my videos 😊
I found your video very interesting and informative, the catheter I had not heard of before. I've had a ileostomy for 30 years and the amount of blockages I have lost count. Over 10 operations, now still with adhesions in my mid 50s. Everyone is different, very different. Mine has always come om so suddenly I've collapsed in pain and been rushed to a&e pending for more surgery. I'm always careful with what I eat. Exercise regularly and take good care of myself. I even know the exact protocol I need each time it happens. Basically because by the time I get to a&e I am vomiting faceas, awful. So, I need 2 bags of saline through a drip, 100mg iv pethedine and antisickness through iv ...then wait. It always a shocking time and takes me weeks to get over partly because of the wonder if I'm going to die! Honestly, I've never experienced pain like it. I never know until its too late. I'm frightened that one day I won't get yo a&e quick enough before my small bowel bursts. My stoma nurse says I should get straight to a&e or phone an ambulance. The ileostomy is freeing since I had it formed 30 years ago, but the blockages for me are terrifying. And at a&e not all drs know what to do, I have to insist they do the procedure because to add to the situation by then I am so tense and delirious with pain, it needs urgent attention.
You remind me my husband 😢, he is having constant blockage, and the pain is horrible, sometimes it ceases after him drinking advil, taking a lot of water but sometimes nothing help and we have to go to Emergency room, his quality of life has decreased so much, we barely do things together because of that. 🙄
My husband has constant blockage, the pain is unbearable he does everything you do, sometimes it works sometimes it does not and we have to go to emergency room, they always do the same they check his vitals, give something for pain, take a CT scan and says I don’t see any blockage, after a few hours of not eating the pain ceases and he feels better, my question will be how can we prevented? Do you think probiotics can help? Or laxatives?
I’ve had 14 blocked bowels in the last 25 years. I’ve never had a doctor or surgeon tell me to work it out st home. Everyone tells me as soon as you know there’s s potential blocked bowel , get to the hospital . !!!!!!!! The potential forypur bowel to rupture is greater the longer you wait to come into the hospital
Yes very true, if you are worried or if things aren't improving then definitely go to the hospital. The sooner you notice something isn't quite right the quicker you can intervene with some strategies which may help to keep you out of hospital.
@@gutmylifeback7926 yes, a “ blockage” is probably “ not” a trivial concern for Us ostamates: please reemphasize ….( I am, USA health Professional ( Pharm., Immunizer ,etc, Licensed).. Anyways, my first Practice after Pharmacy College in 1969-70 was with a couple people, @COMMUNITY PHARMACY,(TWO Patients, IND,SURGERY COLECTOMIES)** anyways they suffered interminable …. We had Squibb/ Convatec Account, *& line to HOSPITAL down the Toad, etc.. I am + six years Total, @ U OF CHICAGO , Center. Erc. Later
I have stool come out an anus with mucus n blood. So hard have to dig it out. Sorry 😢. I have a loop stoma. I have had a two scoped. When cleaning out colon the water backed up into bag. I have see GI n colorectal surgeon cat scan scope by GI n in the office scope by surgeon. Any help out there? They like. It’s normal
I am still on the low residue diet 5 months later (and mainly liquids) and still get blockages every 1 or 2 weeks. Everyone is so different when it comes to their stoma and diet...unfortunately for me I am not a lucky person who can eat whatever they want :(.
I also agree that every one is different but some foods cause more problem ,for example white bread soften in water after couple of hours but seeds almost never
I am fairly new to this stoma thing, and I have'nt suffered a blockage (touch wood) yet. I have found your videos extremely helpful and supportive, keep up the great work !!!
I often think about you and the impact you've had on so many people's lives. This video changed everything for me.
I haven't seen you in awhile and pray everything is going well for you.
And a great big thank you! You saved my sanity and dignity ❤
Thank you so much for sharing this! Your video just saved us a trip to the ED. My husband has only had his ileostomy for about 6 weeks and this was the first time he has experienced a blockage. He was so afraid of being put back into the hospital. We are so grateful.
Thank you for addressing this - just had operation number 3 - and didn't even think about partial blockage.
Everything you said is what I have. I’ve had four blockages. They stuck tubes down my throat. Surgery etc. it’s hell
This video helped me out last night. Thank you for helping me get through a scary situation.
Sounds like we have a similar story. I was getting blockages weekly and trying all the things you suggest but still ended up in A&E most of the time. I’ve had 5 surgeries for blockages and prolapses in the last couple years. Hoping things are on the up now. Hope all is well with you, hang in there!
Can I ask if you have a loop colostomy, end colostomy or iliostomy?
Thank you 🙏 I feel so alone. I’ve had Colectomy/Proctectomy & I get blockages fortnightly. I’m at a loss. Last time I went to ER my surgeon was there & he told the nurses & emergency doctor to send me home & refer to my GP. I’m literally hardly eating at all because I’m too scared. My doctor has got me on a movicol twice daily. My GP is the only one who seems to care. My mental health has declined as I’m always on guard.
Lee, how are you now? Are you managing to eat normally now? Food is so important, not just for physical health, but also emotional and mental health.
My partner has had a stoma for the last 30 years, never had a blockage until today, tried all you suggested except the catheter and nothing worked. He's in hospital now, but everything you said is exactly what the GP, stoma nurse and 111 said to try, so good on you.
Yeah but does not enough, most of the time it does not resolve the problem.
fantastic video. thanks for sharing your knowledge, it goes a long way in helping me, to not be nervous. 3 weeks with my ileostomy, still learning.
No worries, glad it was helpful! And that is still so new :), you sound like you are doing great so far. Just take it day by day and anything that happens is a learning opportunity :).
I made my mistake today so watch your diet. I’m in pain now smh best wishes to you and speedy recovery
Your video was really good. Only five weeks post op wasn’t sure what to do!
Good advice 👍 hope get past your frequent blockages
Im going to try some of your tip im have problems like this
I just had my reversal. I threw up after a while because liquids were going down to slow, Had an x-ray that showed there's a lot of gas. I'm on my seventh day in the hospital going to start soft foods. Anyone been in the same situation. One more thing the doctor said my intestines is like a funnel probably being the reason it's not going down quick enough.
I sometimes pat on my side where things seem to be stuck like burping a baby to dislodge gas and rub the area to sometimes that helps
Thank you for sharing this video, it help a lot
You are welcome :)
I'm 2 years plus with my ileostomy and get a blockage probably every 4 or 5 months. Last night I ate some olives. I'd had a glass of wine and totally forgot I don't do well on them.
22 hours later and I've lost any appetite. My tummy is in pain as my stoma is desperately trying to work.
I've started drinking some cola in the hope it starts shifting itself.
I'm also massaging the stoma area. I don't have a bath so can't do as you suggested.
If I start vomiting then I'll know before too long, I'm going to have to call an ambulance. Last time, the Dr at A&E sorted it by inserting his little finger. Worked wonders and I was allowed back home.
Love all your tips. Thank you 🙋🏼♀️🦋🌸
UPDATE:
Blockage all sorted after a glass of coke sipped periodically and stoma gently massaged. YAY! No A&E tonight. I need to get me a catheter 🤫🤭🦋
Yes I sometimes use a catheter to try and unblock it manually. Sounds like you are very proactive and know exactly what you need to do for yourself and your body. Thank you for your comments on my videos 😊
@@gutmylifeback7926My husband says catheter can damage your colon 🙄
I found your video very interesting and informative, the catheter I had not heard of before. I've had a ileostomy for 30 years and the amount of blockages I have lost count. Over 10 operations, now still with adhesions in my mid 50s. Everyone is different, very different. Mine has always come om so suddenly I've collapsed in pain and been rushed to a&e pending for more surgery. I'm always careful with what I eat. Exercise regularly and take good care of myself. I even know the exact protocol I need each time it happens. Basically because by the time I get to a&e I am vomiting faceas, awful. So, I need 2 bags of saline through a drip, 100mg iv pethedine and antisickness through iv ...then wait. It always a shocking time and takes me weeks to get over partly because of the wonder if I'm going to die! Honestly, I've never experienced pain like it. I never know until its too late. I'm frightened that one day I won't get yo a&e quick enough before my small bowel bursts. My stoma nurse says I should get straight to a&e or phone an ambulance. The ileostomy is freeing since I had it formed 30 years ago, but the blockages for me are terrifying. And at a&e not all drs know what to do, I have to insist they do the procedure because to add to the situation by then I am so tense and delirious with pain, it needs urgent attention.
You could be waiting hours for an ambulance, but if you are not able to get to the hospital by yourself what can you do?
You remind me my husband 😢, he is having constant blockage, and the pain is horrible, sometimes it ceases after him drinking advil, taking a lot of water but sometimes nothing help and we have to go to Emergency room, his quality of life has decreased so much, we barely do things together because of that. 🙄
@@thewisepowerchair2369I am lucky we have an emergency room 5 minutes away my house, and I take him over there.
Thanks for your information I enjoy your videos
Thank-you! Glad you are finding them helpful :)
When one experiences a blockage,is there a sense of smell in the throat area?
Thanks
My husband has constant blockage, the pain is unbearable he does everything you do, sometimes it works sometimes it does not and we have to go to emergency room, they always do the same they check his vitals, give something for pain, take a CT scan and says I don’t see any blockage, after a few hours of not eating the pain ceases and he feels better, my question will be how can we prevented? Do you think probiotics can help? Or laxatives?
Just realised I've commented through my partners account. My name is Paula 🙂
Thank you!
Can you drink cranberry juice with a blockage
I was super perfect catheter over 30 years And it always seems to get lime scale and blockage and I can never solve it
It’s been just 2 days from my last hospital from blockage. I’m now having blockage again
😢 horrible, who can live like that
It hurts like hell once It got bad I ate something that caused me a infección I had to get a emergency surgery 😢Since then I have been scared
Wow 😮
I’ve had 14 blocked bowels in the last 25 years. I’ve never had a doctor or surgeon tell me to work it out st home. Everyone tells me as soon as you know there’s s potential blocked bowel , get to the hospital . !!!!!!!! The potential forypur bowel to rupture is greater the longer you wait to come into the hospital
Yes very true, if you are worried or if things aren't improving then definitely go to the hospital. The sooner you notice something isn't quite right the quicker you can intervene with some strategies which may help to keep you out of hospital.
@@gutmylifeback7926 yes, a “ blockage” is probably “ not” a trivial concern for Us ostamates: please reemphasize ….( I am, USA health Professional ( Pharm., Immunizer ,etc, Licensed).. Anyways, my first Practice after Pharmacy College in 1969-70 was with a couple people, @COMMUNITY PHARMACY,(TWO Patients, IND,SURGERY COLECTOMIES)** anyways they suffered interminable …. We had Squibb/ Convatec Account, *& line to HOSPITAL down the Toad, etc.. I am + six years Total, @ U OF CHICAGO , Center. Erc. Later
Yes.. GET TO hospital with Blockage …& check with you OSTOMY Teams… etc. ( I am a Pro, & Ostamate, etc).
Are you on instagram??
But can u really take a hot bath with the bag off
I have stool come out an anus with mucus n blood. So hard have to dig it out. Sorry 😢. I have a loop stoma. I have had a two scoped. When cleaning out colon the water backed up into bag. I have see GI n colorectal surgeon cat scan scope by GI n in the office scope by surgeon. Any help out there? They like. It’s normal
Omg thank you
Anytime 😊❤️
She did not say anything about irrigation!! I think irrigating would help too and if it don't work then you go to the hospital!
How do you irrigate
if you follow the same diet you had for six weeks after surgery for ever you will never experience blockage
I am still on the low residue diet 5 months later (and mainly liquids) and still get blockages every 1 or 2 weeks. Everyone is so different when it comes to their stoma and diet...unfortunately for me I am not a lucky person who can eat whatever they want :(.
Yes, everyone is different
Some foods might be fine for one person and the next it could be a death sentence.
@@wondertwin13 agreed there is no one size fits all
I also agree that every one is different but some foods cause more problem ,for example white bread soften in water after couple of hours but seeds almost never