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Can I ask, what is your prognosis? Many in online support groups are saying that my flushing across face, neck, and chest seem like that of a NET or Pheo. But my bloodwork is normal. Was yours diagnosed through bloodwork?

As a younger patient myself who is a medical provider in the military and was diagnosed with SI NET this year with liver Mets, you have been such an inspiration to me!

💜💜🦋 ...looking good Peter...Mary in Canada

Bro. Ive been rooting for you for the past three years. I learned so much about your diagnosis. I even told the doctor I wanted to do the 24 unrine analysis test. Here's to you living a healthy life.

Im on this 2 years now. 120mg injecrion. I find the best way to go about it is to have an empty stomach when you take the injection and stay empty for another 24hrs after it. Just drink water and cups of tea (no sugar just a drop of milk if you want) if you can hang on without food for that long you will be in a much better place. Then start eating again. Clean food..... no processed crap. Something plain and basic. Then you're good. I know experts will probably tell you to eat because your growth hormone increases during fasting but i find this is the best way and I have been doing it 2 years like this. You will feel drained from not eating but its better to feel like that for 1 day rather than being sick for 5+ days.

Always good to hear from you. Hope everything goes well.

Hope you enjoy

Hey Peter, Good to hear from you. Really appreciate your videos and updates. Think we could all learn from you in regards not taking life for granted. And smelling the roses. All the best! Will keep an eye out for the next one.

Check out PRRT. I skipped ssa, my call, and did 4 sessions of Lutathera, all previous systems gone Ct Scan in a couple of weeks....Wish me Luck!!...tks and best 2u

Time flies Peter and so glad so are doing so well

Good to hear from you...Glad all is well..

I'd recommend looking into the low fodmap diet. It might help you a little bit!

Fantastic news all round, and to hear success stories with meds, happy for you. A friend started them at a similar time after 2 years of digestive problems. Do hope supply can be sorted, if there are more of you on it now. I definitely want to go to Chamonix - in summer that is!! Incredible, thank you.

Good to hear from you! I'm really glad that you are doing well over all. I was interested to hear about Chamonix. I have just been watching videos of a school friend who does trail running around the amazing mountains we have around Seattle. You should think about planning a trip!

So good to hear from you son, Creon really helps, with digestion. Take care ❤xxx

Thanks for the video! After battling breast cancer and having my stomach removed due to a gene mutation, I'm now back on my feet, just 10 kg lighter. I noticed you take Creon, but I haven't needed it so far since I seem to be digesting everything well. I'm eager to explore more of Europe-Scandinavia is on my wish list as I've never visited. I'm glad to hear your tumors are stable. Great news!

Appreciate you sharing your journey. I am on my 3rd year of lanreotide for PNETS stage 4 (pancreas and liver). Not a surgery candidate. Curious if you suffer bad hypoglycemia. That's my worst side effect. I love running and playing tennis and hypoglycemia really makes it challenging. I also noticed last 3 injections of lanreotide much tougher on stomach. I wonder if my "brand" changed as well. I may inquire next month. Thanks so much for sharing! It is inspiring to see another warrior out there! Jen from USA

Great to see you posting! I am so happy you are doing well.

Brilliant hearing from you ! You look and sound GOOD 👍 the situation with generic drugs and dispensers constantly swapping them due to cost and availability issues is a real problem for many many people now on long term medication. Glad you advocated for yourself and so sorry that you were traumatised earlier in your treatments. Praying that your exercise dilemmas resolve.

Hi Peter. I'm from Ukraine with the same disease and also stage 4. I already had 3 Ocreotide shots. It's so hard to get this shots in Ukraine but i'm doing my best. And also i had carcinoid syndrome. My treatment - Ocreotide shot + Everolimus + zoledronic acid (i have mets in bones) per month. It's so hard to manage it physically and mentally but I'm keep fighting. In september I'll have my 1 CT scan after 3 months of treatment.

So happy to hear this update was thinking how you were going recently. Pleased to hear the latest results and just keep living and inspiring us all. Mark

Wonderful to hear this positive update, Peter!

Hi Peter ,good to hear from you kipping us up to date is , been very difficult for bud you’re staying strong love to you your both and family X.

Did u have the jibbyjab ?

Hello, so happy to see you up and about.

Good to see you, Peter. Take a look into niacin (vit B3) defficiency, one of the severe signs of defficiency is diaria. Be mindful of the niacin flush though.

So thrilled to see a video pop up from you! Thank you for the update and those incredible clips of the mountain landscape - I gasped when initially seeing your awesome video of mother nature at her finest. I can't imagine how much relief those digestive enzymes must bring to your life and hope they can become easier for you to track down. Pleased you are doing relatively well, but sure am hoping you see more steps forward in the days ahead. May your body's ability to function post-cancer soon catch up to your healthy attitude, and allow you more freedom to live life in your chosen way, as an athlete and otherwise. Great job with sprucing up the yard, although it did look very intense and I hope you didn't hurt yourself in the process. Will always be rooting for you to conquer the beast, Peter. I know the pace is slower than you would like, but you seem to be handling everything with your typical awesome attitude and doing your best to go with the flow - I believe that is the only way to achieve success in the end. Please be safe on the roads and try not to push yourself too hard in any endeavor. Take care, Peter. Edit: I forgot to mention how impressively insightful it was of you to clue in to the difference between the different versions of that drug!! Good job!! Karen

Hello from a fellow resection person. Glad to hear from you.

Good to see you back and doing well.

Hi Peter. Good to see you again. Ive been on Creon now for 5 years. It really helps with weight loss. It is very expensive but Abbvie has patient assistance program that helps those who are under i believe $32K in the states.

Ahh, so good to see you, you look well x

Hang on, care for you,great presentation

nice to hear from you Pete, wishing you all the luck dude! Keep doing your thing :)

nice to hear from you mate! glad thet the meds are having less sideeffects now

Can't believe it's been 3 years, seems like it was just last year. Time flies. Those mountains look amazing. Glad for the update and to see you looking great.

good to hear from you and you are looking healthy.

three years already. I wonder if I have used my last three years as good as I could have.

Hi Peter great news with your latest scan results. Cannot believe its three years since your surgery. Glad you are managing to get issues with medication sorted out so very important. Fantastic scenery from your holiday in France so nice to see you both having a good time. Garden is looking great so worth the hard work!! Continued best wishes x

Glad yr doing well buddy 🙏

Peter, a rocky road, but so glad you are now seeing light at the end of the proverbial tunnel. Just happy to see your face and that you are again doing things you like to do! Cheers!

Great to hear update , fantastic that talking to the right professionals who changed your medicines to alleviate your symptoms worked so well

BTW, hasn’t the doctor recommended immunotherapy which is quite useful for a lot of cancers

Greetings from Hong Kong. See you are doing well. Keep up the high spirits

Nice one Peter I’m glad you are sorting your digestion and have had some wonderful experiences travelling. We are in France atm heading back to the UK. That pool in the mountains looked epic! One of my highlights of this trip was swimming in a pool under a waterfall with Edie my daughter 😊 How are things going at the running store? Also good news that your recent scans are positive. Take care mate nice to see a video from you 👍

Peter, So good to see you! You have a beautiful garden. I loved seeing the footage from your trip to France. What type of scans do you get? Thank you!

Hi Peter 😊, good to hear you're doing okay. I'm the guy who chatted to you about the advanz injection and the reintroduction of symptoms. I did mention it to the health care supplier and the last two sent have been the ipson one same as yours 🤔😄. The reason they say is they couldn't get any supplies of the other one, which is why I'm getting the other, but makes you wonder if alot of us complained 🤔. Last ipson injection I thought I'd got away with any symptoms as I did it on the sun night, Mon and Tue I was fine. Was just about to make plans for wed, but the symptoms suddenly came on and lasted most of the day 😓. But Thursday I was back okay! I'm due again tonight so god knows what will happen this time. Glad your doing your own injection now, I'm on my 46th injection and 44 have been done by myself, but at least you can choose your Time too do it now 🙂. Perhaps it would be easier to carry out if we were self Harmer's 😅,then we'd relish in it, rather than putting it off a few times before taking the plunge,and then sitting back wondering why you made such a fuss about it 😅. So it will be interesting to see if advanz will be supplied again to me. When I went into it, it saves the NHS nearly £200 a month supplying the other one, confirming the fact there's no such thing as a bargain 😅. Good luck for the future hope things go okay 👍

Hello Peter, so nice to see your update. I am happy you are doing well and that Jenny and yourself went away for a lovely trip with beautiful scenery in France. Keep making those dreams come true Peter and everyone. 🤗🤗

My brand of shots changed as well and my pharmacist warned me there’d most likely be upset stomach. The one company stoped making them I was told, not enough $$ to make it worthwhile. My stomach and digestion haven’t been the same since my 3rd & 4th surgery. It’s improved from last year but still not the same so I guess that’s it. I will definitely look into creon though and give that a go. Glad to see you again I was thinking it’s been a while. Best of luck to you Peter.

Thanks for the update. Did you have any noticeable difference in the sensation during injection between the old and new Lanreotide meds? I know my injections are much more comfortable when the syringe is near body temperature (and less viscous) as opposed to room temperature. Treatment staff now keeps the syringe in their pocket or under a warming blanket before jabbing me. Hang in there, Peter!

Peter, I am so very happy to hear of your good news and that things have remained stable. You have been through so much and you keep going strong and you look well despite all the challenges. You seem to have wonderful support from your friends and Jenny which is just invaluable. Always great to have an update from you and I often learn a lot from your videos.