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Hello Carl .Thank you for sharing. You seem like such a lovely man. I don’t detect an accent, are you from the West Country by any chance? Do you see the Neurologist at Southmead ? I was diagnosed in Nov 2017. The only PD meds that I have. been scripted for is One Sinemet 12.5mg Daily. I take them as and when I can be bothered as they make absolutely no difference at all. As painful as the visible symptoms are, it’s.the internal ones that frighten me the most. I digress slightly. My biggest fear is the world that my Grandchildren will inherit. You see I have lots of. time, time to watch the news all night long and I can see all to clearly where we are heading and it terrifies me . If you would be so kind and list your meds I would be a great help. Ps The Neurology Team based at Southmead Hospital made a series of films designed to improve the lives of PD patients. I found it disturbing and brutal. I remember thinking this must be a life changing frightening disease if these chosen patients have willingly entered into this. It wasn’t a resounding success either. I will try and find it for you.

This is awesome thanks for this

Another helpful vlog thanks buddy

Remarkable difference! Thanks for showcasing it.

Amazing thanks buddy

This is having amazing results for you and long may it continue. My husband is on the waiting list for one, hopefully it won't be too long now.

This is amazing ❤ I’m so excited for you to see that something is working out 👍 I really got emotional watching this video! I just had the DBS surgery on Monday. It’s a very exciting time technology wise and hopeful. Stay positive

I have heard of this. Very interesting to see it in action. Thanks.

Please take vitamin B1 Same problem I had anterior vagotomy After i got Parkinson's disease But i take vitamni B1

Please take vitamin b1

So resilient mate.. stay strong 💪 dude..

Thanks buddy helpful.

Brilliantly demonstrated Carl! 😮

Keep on keeping on! I was at the gathering and, like many others, heard a clear gospel message ! Thank you and all the team involved. Did think the bloke dressed as Mary was weird, thu 😂😂😂. God bless you and all the team.

I am none tremor dominant my age 28

Really pleased for you. 😊

Your message is worth the wait, and we will listen. 😊🙏💪

Hello Carl. I was diagnosed in 2017 Nov. I am prescribed 7 Sinemet 12.5 mg Once Daily and That’s mylot.. Makes no difference. I am GP script for heavy duty meds that knock me out for 12 max no hrs. The shakes I could cope with but the ridgety is so painful. I also am prescribed an anti nausea Prochlorperazine 5 mg. I’m lost and want to not wake up . I’m getting the impression that no one cares much about finding a cure. What do you think causes this. Coz my Gp has no idea . My GPS all look knackered just longing to go home

Pretty much a unfit system that puts vulnerable people at greater risk of harm

Now they changing it to vouchers? Fuck off no

Hey, at least you can stand and walk without meds. My husband is 44 and he can't move well. Even on the medication. It tends to not even work most of the day. It is very odd. Finally, we got our hands on the medication rytary. I'm praying it makes a difference because he has not been able to walk for a couple weeks now

Good news that we are poorly enough to really need it...well done mate

Congratulations Carl about time you had some good news!

How interesting

I’m from America, are you allowed to collect a salary on top of collecting PIP?

My wife had to go all the way to tribunal as she was rejected at every stage, but was then awarded it there. (Not parkinsons) but as they try to reject everyone to force you to take it further, its not suprising. Great news you got it. See you at the gathering.

Praise God, He is always good!

Congratulations as I recently said never give up!

Congratulations on your success. Sorry you were forced to have to go via the MR though.

Rishi sunak is killing people he should be locked up in prison for life get this man out of the government as soon as possible before he kills anyone else with his ignorance and incompetence about disabled people and mental health illnesses

All that and now there going to stop pip what a joke

Agreed uhm most days I go lite on my meds but afew times of the month I have to cheat and take extra. I worry when the day comes that it doesn't work as I have heard, not sure if it is true. But thanks for the video!

Ive heard of this.

Im in australia and have PD this last summer nearly killed me, im either too hot or too cold. It suks balls. Thanks for ur videos.

Reading the comments on here breaks my heart. It saddens me to see those that really qualify for pip are refused it yet a drug user I know qualified last week.

Appeal and fight it what they do is so wrong.I wish you good luck.

I have thought that myself many times over the years 😕

Spot on... everything you post spookily applies to me!!! Amongst many others I am sure...

Being an Aussie I have no idea what pip is

Disgusting.i went to tribunel for my condition.ask how many potatoes can i peal.took the piss out of me.take care ❤

I have got MS for 34 years now. I was on high rate care and mobility DLA for many years,then PIP came along and i had to apply for it,as soon as the assessor walked through my door i knew i would loose my high rate award. She tripped me up on all questions,confusing me and stressing me such a lot,she was awful.I got her report she had done a week later and it was lies all the way. She even lied about a walk test,she said i had refused to do one,when in-fact she had said to me 'i can see you don't look well so i will not ask you to walk for me!!!!! I was awarded standard rate mobility from high rate,so i lost my mobility car,and i lost my high rate care,that was lowered to standard care. I was too ill to fight for it back at the time so did not bother .My award has just been up for renewal in January this yr and i knew it was going to be a phone assessment so i was prepared and i told them i wanted them to record it,they said ok but my assessment would be delayed until they got an assessor that agreed to it being recorded,some dont and we all know why 😏. The assessor i got this time was the nicest person,very fair and it was not half as bad as the last assessment i had.I put the phone down after 90 minutes feeling like she was very fair and hoped i was right. Within 2 days i got 2 copies of the recorded assessment and also the printed report and i worked out with my points i should have enhanced rate on both care and mobility,wihin a week i got the letter saying this was the case and my award was a 10 year award too. I cried with relief,only to be told like the rest of us that we might loose it with the changes coming. So my tip is if you have a phone assessment ring them and arrange to have them record it,they have to agree to it. i also recorded it myself too just incase.I do think if you have it recorded you have a better chance of getting an honest assessor.

@QALibrary is correct, it will only be when government penalises companies for irrational decisions that the system will get some balance, they even fail MND sufferers! (Diagnosed at 53 4 years ago and I too am scared to apply)

Madness. I have yet to tackle this madness ....

The company that runs assessment PIP for the government get paid more the more times they turn down PIP to people. Thus one reason why there is an appeal win rate of 78% with the DWP for many results.

Are you a builder,ie own company. We are next door to the Suspensión Bridge in the West Country . Four flights of stairs. Need to get gone. I am so glad I had my children when I was young. But its not fair to make them beholden to me. There is no way that I would go into the care system and I wouldn’t advise anyone in their right mind to do so. The abuse is horrific

I hope you don’t mind me asking. How long have you been living with Parkinson’s? Does the disease run in your family? If you didn’t have dependants and it all std getting a bit uncomfortable and difficult to bare. Please, how would you end your life ? Thank You

Fair play to you mate I have had parkinsons 12 years now been to embarrass to ask for help DONT even know where to look when I was discovered I had it my wife kicked me out We had two children I have them every weekend and all holidays now there getting older but I’m slowing down can’t walk with stomach cramps doctors and parkinsons nurses are a waste of time what advice would you give on seeking help

I often look like I am waving at people

Brother if that isn't the truth. PD and PTSD have my by the short hairs! Please respond if you find anything that helps, no meds please

You are so spot on to the exact description of what I go through everyday. I have YOPD and I am one year into this horror of a disease. I have a wonderful husband whom is my best friend,my amazing support system. I feel sad a lot because my disease hold him in a constant battle on how he can help me feel better. Parkinson’s is so complex the is never any consistency.