A rant about work, exercise and Young Onset Parkinson’s

We are told we have to exercise as the only thing that slows progression and yet we have to work with very little support. We have an incurable, progressive and degenerative brain disease yet have to pay from prescriptions (in England), beg for pip (unlikely to get it) and have no other support. Yet fatigue hits us like a sledge hammer and we have serious mobility issues and anxiety/apathy/depression to contend with due to the loss of dopamine neurons. Things need to change #parkinsons #dopamine #youngonsetparkinsons

[@chrisc9259]

i feel yah BIG time brother. Work 40 hours, exercise, and for me speech therapy for another hour is totally exhausting. Then rinse, repeat tomorrow It does take longer to work out nowadays too lol I wish Godspeed on this and keep after it ;) Easier said than done that's for sure! Take care and keep throwing those punches!