People with Young Onset Parkinson’s are falling through the support system cracks.

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  • เผยแพร่เมื่อ 23 ม.ค. 2024
  • We need more support. Please watch the video for an explanation. It’s a huge issue and we need to make some noise. #parkinsons #youngonsetparkinsons #parkinsonsdisease #benefits #pip #ukgovernment #prescriptions
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ความคิดเห็น • 15

  • @matthewplant6791
    @matthewplant6791 6 หลายเดือนก่อน +5

    Absolutely 100% agree with everything said here. I got turned down for PIP. Had to beg for a blue badge- got accepted. worrying what will happen in May when my medical 3 year driving licence review comes in. I was a commercially endorsed skipper - had to give that up. Struggling to do my job due ot anxiety and fatigue, but get no help from the state. My wife has diabetes 1- she gets free prescriptions- why don't I? I take 8 pills a day and a patch- just to allow me to function. Thanks Carl.

    • @gavinmogan9467
      @gavinmogan9467 6 หลายเดือนก่อน +1

      🔥🔥🔥🔥🔥

    • @youngonsetparkinsons
      @youngonsetparkinsons  6 หลายเดือนก่อน

      It’s really tough but we’ll press for change!

  • @carolemoore8505
    @carolemoore8505 6 หลายเดือนก่อน +3

    So we'll said

  • @carolemoore8505
    @carolemoore8505 6 หลายเดือนก่อน +2

    You are the only person that don't sugar coat it, you tell it the way it is

  • @frankiealbertgainard5303
    @frankiealbertgainard5303 6 หลายเดือนก่อน +2

    Good stuff need to spread awareness

  • @audreyboyle52
    @audreyboyle52 6 หลายเดือนก่อน +4

    That was Brilliant Carl 💪🏼

  • @nagis3479
    @nagis3479 6 หลายเดือนก่อน +2

    Great comments, I am 41, diagnosed 5 years ago and going through the exact same. Good luck with your application, haven't started mine yet

  • @GHG11818
    @GHG11818 6 หลายเดือนก่อน +2

    completely agree. It needs to re adjusted so it takes into consideration how it affects us. As you said we rely on pills just to be able to move around. One minute legs are fine next minute can't use them
    Tremors like you have been electrocuted and body feels numb

  • @carolemoore8505
    @carolemoore8505 5 หลายเดือนก่อน +1

    Carl is the only person on utube that is honest about Parkinsonism, nobody else tells it the way it is. And these people claiming to reverse it are liars, it cannot be reversed, they should Not be putting stuff out there giving people false hope. Keep up the good work Carl👍