I was misdiagnosed as a gerd candidate Later done barium swallow tests and endoscopy came out all -ive Dr clearly mentioned that I don't have gerd Turns out that it's RCPD that causing the reflux symptoms
Yes, I remember thinking not being able to burp was inconsequential because doctors would have nothing to say when I told them about this and stomach pain.
So this is why, ffs 34 and semi-healthy but always bloated and can't burp. Acid reflux. Wife saying I have a frog living in my throat. This is the best thing ever to hear.
I’m literally in my bathroom floor after my latest bout with “air vomiting”, and I’m just crying… I thought I was alone. I’ve had this since I was a baby. My mom and dad even recall how horrible my inability to burp was for them. I match every symptom. I’ve never heard of this, and I’ve literally had doctors giggle at me about this problem.. thank you so, so much. I’ve got to make some calls ASAP.
Yup , I spent my lunch break one day last week in the bathroom “air vomiting”.the air vomiting is the worst but It’s the ONLY thing that gives me relief. Ugh
I’ve always described it as “the gremlin in my throat making noises”. Happened during most of my exams in school. It was horrendous I knew people could hear me in the deadly silent exam hall. Such a relief to know it’s a recognised condition. Thank you
After lunch we'd go to the library for silent study hour... A big echoey building...man, they sure beat the shit outta me that day! (Just kidding 😂 just some giggles) I thought that everyone made these frog noises, and I just wasn't good and keeping the noise down!
I’m simply amazed how it felt like he was describing me on every single symptoms, I’m speechless, really! Thank you so much for all the information on this video!!!
Thank you so much for this video! I received the botox treatment just before Thanksgiving and my life is changed! You saved my life Dr. Bastian. I was so depressed before you helped me. Now I feel like a normal person for the first time in a decade.
GOD! I cant believe i finally found out the cause of my excessive pain and discomfort. It has affected me for so many years, i tried everything- going to the doctors,scans,endoscopy,life style changes,diet changes,stopped smoking,exercising,physiotherapy,yoga,aroma therapy,deep tissue massage.. everything and the annoying thing is doctors sont know the cause of your symptom and cant understand your pains. Like i have searched through every digestive problem and i find that the symptoms dont match,i almost gave up but i kept searching until finally i put the luckiest words 'no burping' and i'm here. I am the happiest person alive today.
This condition is what my entire youtube channel started from in 2008 (known as gurglez), to raise awareness and find others like myself (without even knowing what it was or what was happening). There were no videos or posts or reddit threads back then about this. I found one forum a few years in, but that's it. This video is such a HUGE step for people looking for answers. This is AMAZING. Thank you so much for creating this video Dr. Bastian and team. It means so much. Thank you for all of your hard work and research and for showing such compassion when I came in for my procedure in 2017. Thank you for everything. 💙
My videos from back then are still up on my channel and more recent ones from the procedure. I'm so ecstatic that this video is on here now and that people can find this. I'll be making another video shortly leading people from my channel to this video for answers. I can't even say thank you enough. 💙
Hey I have it rn. I am super nausea and almost threw up. Now it feels like I can’t burp. I can burp, but there is something blocking it kinda you know??? Please help. Tell me if this is normal
@@scj6893 I’m not sure what to tell ya there... sorry... i think this video is more so about people who have never been able to burp in their whole life but im not 100% sure.
Feeling overwhelmed....found a young lady today that has the same issues as i have had for over 50years!!! Didnt know this was a real thing and to find someone else that has dealt with this is absolutely insane. Will be checking in our area to resolve it, bless you Dr. Bastian!!
"So full of air that they just can't breathe" I took a leisurely walk with a friend a few days ago and I just could not breathe. I even went out and got tested for Covid, just in case. It lasted a few days, but I've been to the ER because of the sheer amount of air trapped in my chest (caused by one wine cooler) pressing on my heart made it go into tachycardia and I thought I was having a heart attack. My friends would always joke that I had frogs living in my chest, groaning and croaking. I've had R-CPD for all of my 36 years and I am crying to finally have a name. I cannot WAIT to see you, Dr. Bastian, and have this procedure done.
What was your Doctor did ?I am currently experiencing the same now.. I thought I was weird coz there is weird air in my airway that I couldn't understand,I thought I was going to have a heart attack
Dr. Bastian, thank you from the bottom of my heart. Every single symptom- the big 4 and the other non-universal symptoms- I have experienced for the last 20+ years (I am 27). I first noticed symptoms in early childhood. Much like Julie, I have searched for others and tried to explain it to friends/doctors and no one understands the physical pain and mental/social stressors this has put on me. I am not being hyperbolic when I say you LITERALLY described my life to me- every symptom- and now that I know there is a treatment, I will be getting that as soon as humanly possible. Thank you thank you thank you! You are someone who cares- you are a godsend! Warmest regards, - Ess (Australia)
@Josh Keen Hey Josh! My condition remains the same but there are things that I do in daily life that prevent symptoms. I've learnt them myself over the years. I'm a student and work casual so this year has been tough getting around to do much of anything. Getting it properly dealt with and seeking treatment will be a feat in its own, but still on the front of my mind though. The things I do to ease symptoms are never eating and drinking fluids at the same time (or soups/ramen), waiting half an hour between. Never eating and go walking or a lot of physical movement straight after. Don't drink soft drink. They stop the pain and sick/fake burp/bubble feeling. The bloating is always an issue- if I eat anything I get bloated. That is one thing I cant change.
@@vom-batus omg I also can't eat like solids and fluids at the same time ,I ALWAYS wait at least an hour,I also always lie down after main meal ,I feel I can't digest normally when moving after a meal
@@Србомбоница86 omg really?! The little differences in bodies are amazing. I cant have fizzy anything before during or after food. Having sparkling water at any time is still enough to set it off though, a real shame because I love it
@Josh Keen yea dude that sucks. My plan is to seek a GP that will watch this video and then dig up his research papers and see if I can get a GP to recommend a plastic surgeon (?) I thought a surgeon because botox into deep muscle and tissue may not be something a regular GP or botox technician could do. I have been so tight on money and studies I havent had time to sort all this out though unfortunately so it's been put on the back burner
Wow, my mind is blown!! I am 41 and have suffered from this my entire life. I’ve explained the “gurgles” to many doctors over the years, they’ve just attributed it to GERD. I just recently had the Stretta procedure on my LES to (hopefully) fix my acid reflux. I’m going to ask my doctor about this. I’m absolutely thrilled at the prospect of fixing my inability to burp! What a life changer this would be...
i’m so glad i’ve finally found why i’ve been experiencing this for so long, i’ll definitely try to get that treatment as soon as i can. thank you so so much
This put me in tears! For the longest time I thought I was weird for not being able to do something that’s so common. I get teased and get nicknames for the gurgling noises. It gets so painful and I was unable to explain it to anyone to the point they would understand. Just the answers alone give so much relief!
So glad you have found your way to what may be the answer... For lots of additional information, check out this page. Keep scrolling down as there is a lot of information here: laryngopedia.com/inability-to-burp/
omg i am so relieved to finally have an answer! my doctor thought it was GERD but treatment for that wasn’t helping at all.. started doing my own research and discovered this disorder. cant wait to bring this up to my doctor and finally feel normal again!! THANK YOU!
Right same here 😂 thankfully it's never really caused me much discomfort..I just VERY rarely burp and usually make growling noises like the burp is traveling up my throat but doesn't make it out
Wow every SINGLE symptom and ‘the big 4’ you mentioned are a daily part of my life outside of painful hiccups… it’s never hindered my life too much but the relief may warrant it enough. Thanks doc
Dr. Bastian, your work saved and changed my life! Thank you so much for spreading and sharing your knowledge! No doctor could help me through 35 years, although I struggeld with all these symptoms you describe - until I found my problem and the solution by myself on youtube. Now I had the injection this summer in Berlin and I feel great!!! I can only recommend it to everyone with the same problem.
WOW!!! I started to think that I was crazy....I have been suffering with all of the symptoms, including diarrhea and severe chest pain at times, for years....I've had several GI diagnostic procedures/labwork, and was told I had Gastritis and Gerd, nothing was helping and I stopped taking everything prescribed and just continued to suffer. Thank you.
Thank you very much Dr Bastian for spreading the word. I was treated in Monterrey Mexico with an otolaryngologist who learned from you, Dr. Manuel Gil, and I am very happy with the results. I can burp after years and years of misery! I found that I may have R-CPD in your videos and found Dr. Gil in Mexico. God bless you Dr. Bastian!
Yes my tummy is distended and for sure sticks out ,the noises yup I have that also omg and the pressure in upper tummy is horrific and I always lie down after a meal ,ALWAYS,It's like my food won't digest unless I lie down .Yup nausea ,salivating ,I can't vomit also ,it's horrific and yup I do have emetophobia,now I know why ,thank you SO much sir
My wife after a romantic dinner: "hey, you know, the kids are out today, you wanna go take a shower and have some fun? ;)" Me: "grglbrbrbrbglglglgrrrrrrrrrb"
I'm a performer and i sing 4-5 times a week for almost 4hrs each gig. I've been suffering with this and it lessens my confidence to sing with my full potential.
Same here!! I’m studying music in college rn and while my main instrument is the piano, I played trumpet for about 8 years and am currently working on singing as part of my curriculum. If I do either of those things for too long, this happens. It was the worst when I was in marching band in high school and played for competitions 😅 I had multiple experiences where I almost threw up and wasn’t hungry until the next day
My whole life I've dealt with all these symptoms and not until very recently did I realize that I had an actual condition, and more importantly, one that can be cured. When I tell people I can't burp they are confused but kind of just see it as a quirky thing. But in reality, it is a huge pain that I and many have to deal with all the time. I used to be on the heavier side but have since corrected my lifestyle both in terms of diet and exercise. Even with my now athletic build I still get bloated throughout the day, and by evenings I look almost pregnant in a way. Of course the next morning my stomach is back to normal and I look fine. This is especially frustrating as the bloating forces me to wear baggier clothes if I know that a t-shirt or tighter fitting top will show my bloating. When I go out for drinks or to a party, I have to be conscious of both how much and what I am drinking, as too much will make me vomit or be very uncomfortable due to the build-up of gas that has no way out except for through vomiting. I am tired of dealing with this. No one besides those with R-CPD really understand just how bad it gets. I am booking an appointment with my doctor to discuss my symptoms and the condition I am almost certain I have. I fear though that like many others, I will be brushed off and prescribed another remedy that won't fix the main issue I have, which is the inability to burp. I also live in Canada and don't know how readily available the procedure is here, especially with the Covid-19 pandemic still ongoing. Maybe if anyone in Canada who has either gotten the procedure or is looking into it could give me any information or advice, it would be very much appreciated. Also to Dr. Bastian, I'm beyond happy that you are bringing attention to this condition and doing your part in helping those with it to live normal lives.
I'm in Toronto and going to Dr. Jennifer Anderson at St. Mikes. She is going to be treating me with botox as soon as I complete a few tests. I found her on the Reddit no burp thread. There's a doctor in Vancouver and one out east as well.
I am a RN. I have had this issue since I was an infant. My grandmother said she would try to burp me for hours but It would not help. I'm 25 now, still having the gurgling, extreme bloating and flatulence, and I have to gag myself after large meals to let the air out. I can't drink carbonated drinks, I hate to let them go flat. My heart rate will increase to the 140's at highest sometimes because I have so much air in my stomach and chest, which causes tremendous pain and in turn, anxiety. I have had drs say, "we will get your burping" but ever address the issue. Maybe showing this video to my gastroenterologist will change something. I am so bloated constantly, and it hurts a lot. I hope and pray we all get relief!!!
We wish you well. Do note that ENT doctors are leading the charge on this disorder. That is where I would look for now. Call larger ENT groups to ask if there is one who helps people burp. Or take the original description of the disorder to the nearest laryngologist in your area. Here's the link that you can also find by searching on your browser, "Bastian belch". The link: journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
@@sonwabisemanqoyi6932 ugh ikr! they give me weird looks when i tell them and my tummy would be soooo bloated and they say im gaining weight. do u know how annoying that is
After the initial self diagnosis,,,I contacted the bastian voice institute and proceeded to arrange an appointment….my procedure was done on Tuesday,,,,Wednesday some micro burps Thursday ,Friday and today burping with ease…..not once since have I felt uncomfortable with bloating and my belly is flatter than it’s looked for years! Wanna say a big thanks to Dr bastian and his staff for my relief even if brief so far but looking forward to a painless unbloated future! Would highly recommend this procedure to all of the non burpers out there
I'm crying happy tears. I match every symptom under "The Big Four." I've had this for as long as I can remember, but I didn't know how to bring it up without feeling embarrassed. I've only been able to burp once in my life, and that was after the pressure got so bad, I had no choice but to burp. It hurt, but it helped (for a time). I am bringing this up to my ENT doc tomorrow at my appointment and will reference this video.
So glad I found this article. My doctors have been treating my colon for years although I keep on telling them the problem is more “in my throat”. I am so frustrated and cannot find a doctor who will take me seriously.
Very sorry. But this is a very new diagnosis and maybe take original description for your doctors to read? journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
Thank you Dr.Bastian for bringing up this topic. I have been battling with this condition (was not aware it was actually a condition) for a year now and all I can say it is very embarrassing and uncomfortable. 😥 It is a relief to know that I am not the only one and that there is a way to treat this. 🙏
It could cause me instant shiver back in my spine, uneasiness, and some dizziness when this happened. Felt like dying too at certain time. Thank you for enlighten us upon this issue :)
I don’t burp but I do open my mouth and there’s like a weird thing coming out like a grimlin screaming and I think it’s funny but I have never really burped
I wanted to say thank you so much for this video! I've been to UAB, Mayo, and countless doctors/specialists in Huntsville Alabama where I live since 2018. I've had every test known to man because none of them believed me when I said I cannot burp! I've tried every natural remedy and OCT medication. I've lost so much weight because I don't want to eat because of the pain. Everything you said describes me, I can't sleep because the gas pain wakes me up.
Extremely sorry to hear this, but if you match the syndrome described, take info to your doctor ... such as this original description of R-CPD. journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
I had this kind of condition for over 8 years and it's hard to find a doctor that can actually help me, especially here in the Philippines. I had already been consulted some of doctors here and they were just laughed in front at my face. I hope I could free from this RCPD..😢
I could never burp even when I wasa baby, however I always farted a lot. The symptoms didn't really get worse until recently when I eat huge meals I get a bit nauseous because I can't burp and the gas stays in. It feels so tight with pressure in my throat and chest and whenever I try to burp I can't. There's always gurgles in my throat and the bloating gets so bad that there are sounds in my gut in the middle of class it's so embarrassing I also have a fear of vomiting.
@@CassTeaElle I have a serious fear of vomiting and whenever gas gets trapped in and I feel nauseous full on panic attacks start happening- i guess we're in the same boat?
@@emilyzhang1002 i also get a panic attack when I can't burp trapped gas,I get numb and feel tingling in hands and feet and I feel nauseous,is your bloating painful ,mine can sometimes be quite painful 😖
My doctor didn't think it was serious when i told her about my symptoms she and a nurse said just try and force it out. It's a relief that that I am not the only one suffering but that it is now a recognized medical dysfunction.
My entire life of 27 years I thought I was alone in this. All 4 major symptoms apply to me, and I do also experience nausea from eating too large meals or from drinking carbonated drinks too quickly. I also grew up with a lot of painful hiccups (I even had them as an unborn baby and my mom would joke about this). I am amazed to find out that this is an actual condition!
Thank you so much for this information Doctor. I was always curious to know why I was unable to burp and why my throat made gurgling noises. Hopefully, I am able to get the botox injection someday :)
I thought I was alone, it's horrible. Pain, filled with air, weird noises all day every day, I have colitis from it. I'm so glad there is a treatment now, I'm calling my doc to set this up.
So glad you found this avenue of exploration. A comment: Often all GI symptoms end up being related to the R-CPD. That includes in many cases, constipation (due to overstretched colon walls) and diarrhea (an irritative response to excess air). So R-CPD could co-exist with UC or Crohn's but it certainly can cause lower GI issues all by itself.
It is so amazing to see there are so many people here that experience the same thing. I’m 28 and for as long as I remember I’ve never been able to burp. My mum said when I was younger (like 5) sometimes when I laughed I’d burp, but from primary school upwards I’ve always had the weird throat noises and no burping. I’ve found myself trying to be sick to help. I’ve been to the doctors but nobody knows anything about it! I am in Perth WA and I can’t find anybody here that does it!
I never burp out loud. The best I can describe it is “it feels like I burp in my throat” it’s quiet and only I can hear it i can’t explain what it sounds like but it’s just burping around the area of the throat where you can feel the voice box. I have painful hiccups but it’s because I have acid reflex and I have emetophobia but I can throw up during stomach bugs and stuff. I am ten years old aswell
I cant burp on command it sometimes just happens. I feel like I remember everytime I burped. It usually occurs when I have a hiccup.Also have that gurgle I hear in videos and hate it. I cant hear it but it has bothered me my whole life and is the main symptom I want to rid. That sound is the bane of my existence and will hear it sometimes through the echo of my microphone on xbox and it really shuts down my confidence.I try to stop it but I literally can’t. I literally sound like a dinosaur. On top of all that when I eat or drink I get full really quick because I cant burp. Sometimes after big meals I have to lye down because I feel like a ballon that can burst any minute.When I was young I had really sharp chest pains that I went to the emergency for thinking it was a heart problem .It just makes me feel relieved that I finally found this video. I thought I was literally just crazy because doctors said everything seems fine. I made the connection on my own that the gurgling sound lack of burp and the sharp pains due to a build up of gas were connected. This video makes me feel like a genius.I researched it every few months and I thought it might be acid reflux or gastroperisis but I think this is most definitely the problem. Thank you so much for this informative video!
You are welcome. Focus on the "big 4:" Can't burp, gurgling, bloating, and flatulence. Additional symptoms are also common: nausea after eating, painful hiccups, etc. Call a nearby ENT group and ask "Does any of your doctors help people who can't burp?" Take the article with you that comes up when you search "Bastian belch" as it will explain R-CPD to him or her.
Has anyone ever experienced the big four symptoms WITHOUT the inability to burp? I have had chronic severe chest pain, pressure and what feels like air being stuck but can burp. As a child, up until about 16 years old I couldn't burp.
@@Musicallison Thanks for your response, I believe those may be parts of a larger issue. I've had a few abdominal surgeries due to the chronic chest pain (originally thought to be a Hiatal Hernia). I had a fundoplication and fundoplication takedown due to it failing. It's fedinitely aerophagia, bit debilitating. Chest pain is so severe I can't leave my house anymore or even stand for longer than 10 minutes without it becoming excruciating. I also talked to a doctor out in LA who studies supragastric belching and he agreed that it sounds more like an anatomical issue. None of my tests show anything wrong anatomically.
@@CodyLawrence Woah I'm so sorry to hear about all of that! There really isn't enough research in this field and you're a perfect example of why even a non-fatal disorder like R-CPD needs more attention. Otherwise, (and again, I'm absolutely not a doctor) I would have to guess that you might have multiple anatomical issues? I can't imagine that aerophagia alone would cause you to have so much pressure in your chest since you have the ability to burp and release trapped air. Going off of that logic though, here's an article I found that lists a couple of possibilities: www.health.com/condition/gerd/9-serious-conditions-that-can-feel-like-heartburn Although as a last idea, maybe you could also be excessively swallowing air like how aerophagia typically works but the air could be getting trapped in an unusual location where burping can't reach? My first inclination from that would be a tear in your esophagus but I'm sure there's other conditions that are capable of redirecting excessive air intake.
I must have this. I've got all of the "big four" symptoms very noticeably, even was able to get a recording of the crazy gargling sound that's described. I never considered to to be "painful" or "awful", just a minor discomfort that could be averted with some Omeprazole, but I guess it's good to know that there are treatments available for this if it ever _does_ become unbearable.
@@denim3910 Yes. I still have the condition (and the recording of the sound). I'm actually getting an injection procedure done this Friday to hopefully cure it over the next two months.
I’m just super excited now that at least it’s not just in my head. I was diagnosed of GERD but within me I knew that was not it. No one understood whenever I explained so I stopped explaining. Mine gets severe sometimes and mild sometimes and my doctor would always give me some meds which wouldn’t do anything for me. Thank you for your works Dr Bastian.. The problem yet again is how to get this treatment in Nigeria 🤦🏻
So sorry. Keep calling nearby ENT groups to ask if someone treats people who can't burp. Look for a laryngologist who also handles swallowing disorders.
ive been suffering with this since i was a baby, everything you mentioned in this video describes it down to the T. I have severe emetophobia and every single time u eat or drink/ injest literally anything i get the weird frog noises along with hiccups without fail every single day of my life. The hiccups i experience are so painful and cause me to gag and feel nauseous which triggers my anxiety along with the noises it causes. It makes it where i can make myself look soo preganant and im only 16 so its kinda fun to walk around in public like im 6 months pregnant lol. i need help im tired of living like this
That sounds like me exactly. I remember my sister trying to teach me how to burp when I was 7 and I just couldn’t. I have had all four symptoms my entire life! Even the other day my husband tried to explain how to burp and it didn’t work no matter how hard I tried to “practice”. It feels so great to know there is a diagnosis for my symptoms because whenever I explained this to others in the past, people would look at me like I’m crazy.
So sorry to hear that you may have R-CPD. We hope that you can find a good source of treatment. Call nearby ENT groups and ask if anyone helps people who can’t burp. The entire staff will know if they do. You may need to travel to a nearby big city…
I am 53 and have never burped all my life. When I was a kid I actually thought it was a thing I had to learn to do, I had family or friends trying to teach me to burp but never could lol. The gurgling yes, I have this so bad sometimes, it can be embarrassing, it's so weird. So much bloating, I am always bloated, I bloat more and more during the course of the day. I go to bed bloated and wake up with a flat tummy all pleased with myself but then bloating builds up again. Flatulence, yes have this too. Painful hiccups, yes, I literally have to hold my chest it hurts so much. Thanks for the video so grateful
my sister and i always referred to this as "cow disease" since it sounded like i was mooing and though mine isnt as severe its still extremely annoying and ive had very bad cases many times in my life. im so happy im not alone.
I couldn't believe how many of the symptoms I have. Not only do I have all 4 of the big symptoms, but I even have some of the less common symptoms like loud painful hiccups, nausea while eating, etc.
Dr Bastian, I know its a long shot that you will read this but I feel like you are my last hope to answers. I have this condition (R- CPD) I have met with ENT doctors, GI doctors and even one who specializes in this disorder. However, I was told I am not a candidate for botox and this is why... My lower esophageal spincter doesnt work properly either and is patulent. This causes reflux and the ENT doctor believes my Upper esophageal spincter remains tightly closed as a defense mechanism to prevent aspiration of reflux into my lungs. However, I am also not a candidate for surgery to tighten my LES and potentially rid myself of both conditions because apparently mannometry tests show I have yet another condition called Ineffective esophageal motility. I just had an upper GI with biopsy to rule out eosinophillic esophagitis which I dont have. It is unclear what caused all these issues and I feel defeated and sad that I may have to live the rest of my life like this with no relief. The reflux I can deal with but the symptoms related to no burp majorly suck and ruin my social life. Any insight or advice would be greatly appreciated?
Do you mind sending this message to info@laryngopedia.com? Dr. Bastian will see it there and likely reply to you. You must find a way to get your R-CPD treated…Ineffective motility and LES laxity are almost predictable RESULTS of R-CPD!
@@iheartm30s94 youre most likely going to have to travel. Many doctors dont even recognize this as a real condition. According to the reddit support group Bastion Voice Institute in Chicago specializes in this condition I would give them a call or call around and ask if they help people with difficulty burping
@@iheartm30s94 Good luck man this has been a rough journy for myself im going to start acupuncture next week because thats has helped others hopefully I can get relief there
Do you do telehealth appointments? You are the first doctor to ever understand what my whole life has been like. I am that can hear the gurgling from the other side of the room, stick my finger down my throat to let out an enormous amount of gas. I need this botox injection, my doctors know nothing about this.
Dr. Bastian offers "tele-conversations" for people outside Illinois. Go to laryngopedia.com/video-conversation/ to learn more and to schedule an appointment.
my stomach aches so bad because I cant burp. Even though I eat small amount of food my stomach aches and I need to burp in force by pressuring my stomach in just to burp.
Just started happening to me about a week ago. I always want to burp but I can't, and also always feel like salivating but struggle to do that also. I'm already tired of it and devastated. It's very uncomfortable
I wanted to come to your office in chicago a year ago, but it got better as i started standing upstraight more often everyday and correcting my posture. But about a year later it came back...
I just started this as a result of panic attacks. I’m a pharmacist and both my colleagues and doctor blamed it on acid reflux. I knew it wasn’t acid reflux because I didn’t have any acid at all. But that was the only thing that made sense . The worst is the build up of the air in the chest cavity which makes you feel like your chest is going to explode. I have been suffering on and off for the past month. What I did was use some Lipton tea wit a lot of lemon. I squeezed the lemon into the hot tea and placed the remaining lemon in the tea. It relieved it after hours of the air being trapped in my both my stomach and chest. I still plan on going to ENT and maybe I’m wrong but this definitely describes what I have been experiencing.
So sorry to hear of your experience. The key determinant of whether you have R-CPD is whether you can burp Most people have had difficulty for as long as they can remember, but there is a small subset in whom it is acquired later in life.
I am commenting after having spent the entire night awake listening to gurgling. They have been treating me like its acid and giving me antiacids this whole time and all its doing is making it worse.
I went to a dietician in 2019 and a GI at the start of 2020 because of my "digestive" issues, and I'm pretty sure I mentioned that I can't burp. I'm calling the GI's office when I wake up in the morning. I need that botox injection so bad.
I don't really eat at mornings and I've got social anxiety. When I get into social events in silent rooms it's so difficult for me. I keep doing those sounds. Usually I play with something that makes noise like a pencil case and stuff... To avoid embarrassment
So sorry. Anxiety and social disruption are big issues with R-CPD. I hope you find a doctor who can help you with this. Here's an article you can take to him or her... journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
I'm speechless. I also thought I was alone. I've got all the symptoms, this has been going on all my life, but seems it's getting worst (I'm 60). Possibly because I am doing more sports. It's not on a daily basis but mostly because I avoid most situations, but I often still live the social awkwardness. - I will never drink fuzzy drinks (soda or beer) - I will eat very slowly, and very small bites (people find that funny). - avoid family dinners where you eat and talk - on a long day hike, I will avoid eating lunch or take a couple small bites (otherwise I'm not making to the end of the day) So on a normal day I am kind of ok. But then I like to run. Above a certain distance (about 10km) it becomes a misery as I become full of air with shortness of breath. I did mountain trekking (up to 7000m of altitude) up to recently, but always at the cost of many 'air-vomiting' stops. Guides always think I am experiencing severe sickness altitude syndrome, but in fact I tolerate the lack of oxygen pretty well, as long as my stomach is emtpy. At the end of the family meal, I will always have to go lay down (horizontal position is such a relief). Normally by 2-3 am I am back at normal 'pressure'. There's absolutely no way a that 'walk around the block' after a meal would make me feel better. I cannot understand either how drinking a Perrier with bubbles would make anybody feel better after a large meal! I also often get severe and painful hiccups, sometimes unable to drive back home unless I stop to air-vomit. After a 3 times usually it has no more effect and doesn't help with the hiccup. The only symptom that I also have that is not mentioned here (or in the other articles) is the fact that sometimes if I eat certain things (mostly a sandwich with thick french bread), I will get like a 'esophagus cramp', the food seems stuck in my throat, I am unable to breath at all, I become silent, unable to move, with big pain in the esophagus, usually it takes about 30 seconds before the 'bite' finally goes through. My mother probably had this, she was diagnosed with a 'hiatal hernia', but as she was old (70s) she refused to get surgery. Reading about this I find some of the symptoms contradictory with R-CPD. It's not the first time I research with my symptoms, I once found a group of people in France having similar issues but most said that their doctors simply discarded their descriptions and didn't take them seriously. I never consulted because I figured it would need to be at a time where I had the symptoms. I will obviously see if here in Canada doctors have started to hear more about this conditions and possible solutions.
You have just described R-CPD perfectly. We have treated many patients from Canada, because they could not find prompt help there. But I do know that Dr. Amanda Hu in Vancouver, and Dr. Jennifer Anderson in Toronto know about this disorder from my work.
I have R-CPD and in my country this is not recognized as a disease. I can't get operation. I have severe gurgling daily. Around 30 times a day. Also I have excessive flatulence. What can I do to fix this? I don't have any money to travel abroad to get my operation. I feel hopeless and I don't know what to do.
I really appreciate all of these kind comments. Wishing everyone a 2021 without R-CPD!
@@YouRlovedhere same problem i have ..and your country is? mine is india i have no idea that this treatment is available in our country or not
I am no longer in misery thanks to you!! 2021 will be my first year R-CPD FREE!!
@@negi146 I m also like u can u explain how do u feel daily
I was misdiagnosed as a gerd candidate
Later done barium swallow tests and endoscopy came out all -ive
Dr clearly mentioned that I don't have gerd
Turns out that it's RCPD that causing the reflux symptoms
@@negi146bhai treatment liya kya tuna??
I got emotional watching this knowing that there is potential relief and that real MD's are looking into this and not brushing us off as crazy.
Yes, I remember thinking not being able to burp was inconsequential because doctors would have nothing to say when I told them about this and stomach pain.
there is a whole subreddit of people like us. It’s r/noburp
i’m crying too man, 16-year-old lacking social life from this bullshit
Surprised to see how many people also have this problem I thought it was really rare
So this is why, ffs 34 and semi-healthy but always bloated and can't burp. Acid reflux. Wife saying I have a frog living in my throat. This is the best thing ever to hear.
I’m literally in my bathroom floor after my latest bout with “air vomiting”, and I’m just crying… I thought I was alone. I’ve had this since I was a baby. My mom and dad even recall how horrible my inability to burp was for them. I match every symptom. I’ve never heard of this, and I’ve literally had doctors giggle at me about this problem.. thank you so, so much. I’ve got to make some calls ASAP.
Yup , I spent my lunch break one day last week in the bathroom “air vomiting”.the air vomiting is the worst but It’s the ONLY thing that gives me relief. Ugh
Now that I know it’s real I need to find a doctor who will believe me
Yes I'm always air vomiting. I'll feel like I'm literally going to blow up if I dont
I’ve always described it as “the gremlin in my throat making noises”. Happened during most of my exams in school. It was horrendous I knew people could hear me in the deadly silent exam hall. Such a relief to know it’s a recognised condition. Thank you
After lunch we'd go to the library for silent study hour... A big echoey building...man, they sure beat the shit outta me that day! (Just kidding 😂 just some giggles) I thought that everyone made these frog noises, and I just wasn't good and keeping the noise down!
I am experiencing the same thing, it's like there's a frog making sound on my throat
Yes the throat noises, I sit there listening to each gurgle rising up my throat, it goes on forever.
I thought I was the only one. I didn't burp, but my neck- chest area did this sound
It mostly happened in technology class. A silent, small class where we all sit near eachother.
Dammmmn I can’t believe there’s others like me lol my homies always ask why and how the the hell u throw up “nothing”
I know, and everyone is like, have you tried downing a Dr. Pepper? I think I have heard that one more than anything
I’m simply amazed how it felt like he was describing me on every single symptoms, I’m speechless, really!
Thank you so much for all the information on this video!!!
My thoughts exactly
Brother
I am also same problem
Can you tell me please
glad im not the only one lol
Thank you so much for this video! I received the botox treatment just before Thanksgiving and my life is changed! You saved my life Dr. Bastian. I was so depressed before you helped me. Now I feel like a normal person for the first time in a decade.
Wonderful news! Keep going!
Question Jeff and Doctor,? How bad does the Botox treatment hurt? And do you have a video showing it - being done?
@@redneckfamily7919 sorry, I jut saw this. I only had a mild sore throat after the procedure. I was asleep during it.
GOD! I cant believe i finally found out the cause of my excessive pain and discomfort. It has affected me for so many years, i tried everything- going to the doctors,scans,endoscopy,life style changes,diet changes,stopped smoking,exercising,physiotherapy,yoga,aroma therapy,deep tissue massage.. everything and the annoying thing is doctors sont know the cause of your symptom and cant understand your pains. Like i have searched through every digestive problem and i find that the symptoms dont match,i almost gave up but i kept searching until finally i put the luckiest words 'no burping' and i'm here. I am the happiest person alive today.
can you talle me pleas what I have to do I have the same problem
This condition is what my entire youtube channel started from in 2008 (known as gurglez), to raise awareness and find others like myself (without even knowing what it was or what was happening). There were no videos or posts or reddit threads back then about this. I found one forum a few years in, but that's it. This video is such a HUGE step for people looking for answers. This is AMAZING. Thank you so much for creating this video Dr. Bastian and team. It means so much. Thank you for all of your hard work and research and for showing such compassion when I came in for my procedure in 2017. Thank you for everything. 💙
My videos from back then are still up on my channel and more recent ones from the procedure. I'm so ecstatic that this video is on here now and that people can find this. I'll be making another video shortly leading people from my channel to this video for answers. I can't even say thank you enough. 💙
Excellent! So glad this has helped!
When I was a kid I called my gurgle “my stomach mooing” 😂😂
@@Kate8P I love that!! 😂
@@Kate8P my stomach moo’d just as i was reading this
This was a big relief to watch and finally understand the problems I’ve had my whole life. I can’t wait to get this problem fixed
This doctor is highly knowledgeable and seems like he is passionate about his work.
Thank you! It is always an encouragement to see a positive response to these videos!
I cried thru this whole thing. Wow. Every single symptom. I’ve had for as long as I can remember. I will ugly cry the day I’m able to get this Botox.
I cant wait to show this video to my dad who thinks my problems are all in my head😇
Hey I have it rn. I am super nausea and almost threw up. Now it feels like I can’t burp. I can burp, but there is something blocking it kinda you know??? Please help. Tell me if this is normal
@@scj6893 I’m not sure what to tell ya there... sorry... i think this video is more so about people who have never been able to burp in their whole life but im not 100% sure.
@@scj6893 I have it now... Finally I burped.
@@scj6893 same bro i dont know what to do im just a young boy I need help
This has been my life for 52 yrs... Thank you for explaining what I knew to be true but what other people thought I was making up
One of the worst parts about this is the bloating it can hurt so much and absolutely ruins my confidence cause I look so unproportionate :'/
Hey same how can i solve this
Same here
I don't care about looks ,I only want to not feel pressure and pain
Yeah
same
Feeling overwhelmed....found a young lady today that has the same issues as i have had for over 50years!!! Didnt know this was a real thing and to find someone else that has dealt with this is absolutely insane. Will be checking in our area to resolve it, bless you Dr. Bastian!!
AIR VOMITING!!! I’ve been doing it since I was 8, I’m 31 now. It’s horrible. I’ve thrown up so many times bc of it. So nice to know I’m not alone! 😪
I have emetophobia so I just suffer through bloating and flatulence ugh 😩😩
"So full of air that they just can't breathe"
I took a leisurely walk with a friend a few days ago and I just could not breathe. I even went out and got tested for Covid, just in case. It lasted a few days, but I've been to the ER because of the sheer amount of air trapped in my chest (caused by one wine cooler) pressing on my heart made it go into tachycardia and I thought I was having a heart attack. My friends would always joke that I had frogs living in my chest, groaning and croaking. I've had R-CPD for all of my 36 years and I am crying to finally have a name. I cannot WAIT to see you, Dr. Bastian, and have this procedure done.
What was your Doctor did ?I am currently experiencing the same now.. I thought I was weird coz there is weird air in my airway that I couldn't understand,I thought I was going to have a heart attack
This is me
Dr. Bastian, thank you from the bottom of my heart. Every single symptom- the big 4 and the other non-universal symptoms- I have experienced for the last 20+ years (I am 27). I first noticed symptoms in early childhood. Much like Julie, I have searched for others and tried to explain it to friends/doctors and no one understands the physical pain and mental/social stressors this has put on me. I am not being hyperbolic when I say you LITERALLY described my life to me- every symptom- and now that I know there is a treatment, I will be getting that as soon as humanly possible.
Thank you thank you thank you! You are someone who cares- you are a godsend!
Warmest regards,
- Ess (Australia)
@Josh Keen Hey Josh! My condition remains the same but there are things that I do in daily life that prevent symptoms. I've learnt them myself over the years. I'm a student and work casual so this year has been tough getting around to do much of anything. Getting it properly dealt with and seeking treatment will be a feat in its own, but still on the front of my mind though. The things I do to ease symptoms are never eating and drinking fluids at the same time (or soups/ramen), waiting half an hour between. Never eating and go walking or a lot of physical movement straight after. Don't drink soft drink. They stop the pain and sick/fake burp/bubble feeling. The bloating is always an issue- if I eat anything I get bloated. That is one thing I cant change.
@@vom-batus omg I also can't eat like solids and fluids at the same time ,I ALWAYS wait at least an hour,I also always lie down after main meal ,I feel I can't digest normally when moving after a meal
@@vom-batus for me however sparkling water (like half a glass)does help a lot after a meal
@@Србомбоница86 omg really?! The little differences in bodies are amazing. I cant have fizzy anything before during or after food. Having sparkling water at any time is still enough to set it off though, a real shame because I love it
@Josh Keen yea dude that sucks. My plan is to seek a GP that will watch this video and then dig up his research papers and see if I can get a GP to recommend a plastic surgeon (?) I thought a surgeon because botox into deep muscle and tissue may not be something a regular GP or botox technician could do. I have been so tight on money and studies I havent had time to sort all this out though unfortunately so it's been put on the back burner
It breaks me how for people like us the diagnosis is often more satisfactory than the treatment. Thank you Doc🙏
Hi same problem for me also, In india where should i go for treatment?
Finally, a doctor who knows. Thank you Dr.!!!
Wow, my mind is blown!! I am 41 and have suffered from this my entire life. I’ve explained the “gurgles” to many doctors over the years, they’ve just attributed it to GERD. I just recently had the Stretta procedure on my LES to (hopefully) fix my acid reflux. I’m going to ask my doctor about this. I’m absolutely thrilled at the prospect of fixing my inability to burp! What a life changer this would be...
I think I have this. But i don't understand is it dangerous? I dont need to get rid of it
@@abdulla-Xshe4ro not dangerous, just annoying
My 10 year old can't burp, it's so relieving knowing she's not alone and there are options she can try. Thank you!
i’m so glad i’ve finally found why i’ve been experiencing this for so long, i’ll definitely try to get that treatment as soon as i can. thank you so so much
This put me in tears! For the longest time I thought I was weird for not being able to do something that’s so common. I get teased and get nicknames for the gurgling noises. It gets so painful and I was unable to explain it to anyone to the point they would understand. Just the answers alone give so much relief!
Felt hardcore!👍
So glad you have found your way to what may be the answer... For lots of additional information, check out this page. Keep scrolling down as there is a lot of information here: laryngopedia.com/inability-to-burp/
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
omg i am so relieved to finally have an answer! my doctor thought it was GERD but treatment for that wasn’t helping at all.. started doing my own research and discovered this disorder. cant wait to bring this up to my doctor and finally feel normal again!! THANK YOU!
Most welcome, and all the best.
I never knew my frog in the throat party trick was an actual affliction
Right same here 😂 thankfully it's never really caused me much discomfort..I just VERY rarely burp and usually make growling noises like the burp is traveling up my throat but doesn't make it out
Wow every SINGLE symptom and ‘the big 4’ you mentioned are a daily part of my life outside of painful hiccups… it’s never hindered my life too much but the relief may warrant it enough. Thanks doc
Dr. Bastian, your work saved and changed my life! Thank you so much for spreading and sharing your knowledge!
No doctor could help me through 35 years, although I struggeld with all these symptoms you describe - until I found my problem and the solution by myself on youtube.
Now I had the injection this summer in Berlin and I feel great!!! I can only recommend it to everyone with the same problem.
They do this in Europe ???
In Berlin??? Where? I need to do that as well
Charité
@@nadsenidan8877 thank you so much man!!
WOW!!! I started to think that I was crazy....I have been suffering with all of the symptoms, including diarrhea and severe chest pain at times, for years....I've had several GI diagnostic procedures/labwork, and was told I had Gastritis and Gerd, nothing was helping and I stopped taking everything prescribed and just continued to suffer. Thank you.
You are so welcome and all the best. Another resource: journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
Thank you very much Dr Bastian for spreading the word. I was treated in Monterrey Mexico with an otolaryngologist who learned from you, Dr. Manuel Gil, and I am very happy with the results. I can burp after years and years of misery! I found that I may have R-CPD in your videos and found Dr. Gil in Mexico. God bless you Dr. Bastian!
Wonderful! Dr. Gil just visited our office a few weeks ago. We are glad you found his practice through our videos. =)
Finally someone is recognizing us!
Im crying and crying watching this. 35 years from my life without burping. And now finally there is a potential relief.🙏
Yes my tummy is distended and for sure sticks out ,the noises yup I have that also omg and the pressure in upper tummy is horrific and I always lie down after a meal ,ALWAYS,It's like my food won't digest unless I lie down .Yup nausea ,salivating ,I can't vomit also ,it's horrific and yup I do have emetophobia,now I know why ,thank you SO much sir
Wow this blew my mind. So spot on. I had lost hope years ago😭😭
My wife after a romantic dinner:
"hey, you know, the kids are out today, you wanna go take a shower and have some fun? ;)"
Me:
"grglbrbrbrbglglglgrrrrrrrrrb"
I think I have this condition. It's really terrible. The gas in my stomach irritates my heart and gives skipped beats (PVCs-PACs).
I am currently experiencing these.. :(
Same here
Same here
Yes ,I feel pressure around my heart after a bigger meal
Same here :(
I've had this condition my whole life
plz tell me how to get rid of it
@@subhamsahoo3145 Botox
Same here but it isnt that bad... I cant remember when i burped last time i just make weird noises from my tummy
@@Aatusti same
Me too!! Always have gas at end of day, my husband always says, at least the farts don't stink, unless I have to poop
Does anyone else hear the burp internally through the throat but it does come out of the mouth like a normal burp? So I think the air never escapes.
Some describe their gurgles like this. Louder with mouth open but they are aware there is no actual release of air.
Yes, everyday and it’s awful
Yes I have been facing this problem for 8 months. How is your condition now?
@@Jacobabad05 1 year for me
That makes me feel die I swear
I'm a performer and i sing 4-5 times a week for almost 4hrs each gig. I've been suffering with this and it lessens my confidence to sing with my full potential.
Same here!! I’m studying music in college rn and while my main instrument is the piano, I played trumpet for about 8 years and am currently working on singing as part of my curriculum. If I do either of those things for too long, this happens. It was the worst when I was in marching band in high school and played for competitions 😅 I had multiple experiences where I almost threw up and wasn’t hungry until the next day
My whole life I've dealt with all these symptoms and not until very recently did I realize that I had an actual condition, and more importantly, one that can be cured. When I tell people I can't burp they are confused but kind of just see it as a quirky thing. But in reality, it is a huge pain that I and many have to deal with all the time. I used to be on the heavier side but have since corrected my lifestyle both in terms of diet and exercise. Even with my now athletic build I still get bloated throughout the day, and by evenings I look almost pregnant in a way. Of course the next morning my stomach is back to normal and I look fine. This is especially frustrating as the bloating forces me to wear baggier clothes if I know that a t-shirt or tighter fitting top will show my bloating. When I go out for drinks or to a party, I have to be conscious of both how much and what I am drinking, as too much will make me vomit or be very uncomfortable due to the build-up of gas that has no way out except for through vomiting. I am tired of dealing with this. No one besides those with R-CPD really understand just how bad it gets. I am booking an appointment with my doctor to discuss my symptoms and the condition I am almost certain I have. I fear though that like many others, I will be brushed off and prescribed another remedy that won't fix the main issue I have, which is the inability to burp. I also live in Canada and don't know how readily available the procedure is here, especially with the Covid-19 pandemic still ongoing. Maybe if anyone in Canada who has either gotten the procedure or is looking into it could give me any information or advice, it would be very much appreciated. Also to Dr. Bastian, I'm beyond happy that you are bringing attention to this condition and doing your part in helping those with it to live normal lives.
I am in canada as well and looking for more information. It's been 4 months, have you found anything?
I'm in Toronto and going to Dr. Jennifer Anderson at St. Mikes. She is going to be treating me with botox as soon as I complete a few tests. I found her on the Reddit no burp thread. There's a doctor in Vancouver and one out east as well.
I am a RN. I have had this issue since I was an infant. My grandmother said she would try to burp me for hours but It would not help. I'm 25 now, still having the gurgling, extreme bloating and flatulence, and I have to gag myself after large meals to let the air out. I can't drink carbonated drinks, I hate to let them go flat. My heart rate will increase to the 140's at highest sometimes because I have so much air in my stomach and chest, which causes tremendous pain and in turn, anxiety. I have had drs say, "we will get your burping" but ever address the issue. Maybe showing this video to my gastroenterologist will change something. I am so bloated constantly, and it hurts a lot. I hope and pray we all get relief!!!
My heart rate also get so fast when I get bloated
We wish you well. Do note that ENT doctors are leading the charge on this disorder. That is where I would look for now. Call larger ENT groups to ask if there is one who helps people burp. Or take the original description of the disorder to the nearest laryngologist in your area. Here's the link that you can also find by searching on your browser, "Bastian belch". The link: journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
I had no idea this was a thing. I just thought I was a bit "weird"
LMAO SAME THO
@@alienbaby1822 me too!!! And people would not understand
@@sonwabisemanqoyi6932 ugh ikr! they give me weird looks when i tell them and my tummy would be soooo bloated and they say im gaining weight. do u know how annoying that is
After the initial self diagnosis,,,I contacted the bastian voice institute and proceeded to arrange an appointment….my procedure was done on Tuesday,,,,Wednesday some micro burps Thursday ,Friday and today burping with ease…..not once since have I felt uncomfortable with bloating and my belly is flatter than it’s looked for years!
Wanna say a big thanks to Dr bastian and his staff for my relief even if brief so far but looking forward to a painless unbloated future!
Would highly recommend this procedure to all of the non burpers out there
Very pleased to hear of your success!
I'm crying happy tears. I match every symptom under "The Big Four." I've had this for as long as I can remember, but I didn't know how to bring it up without feeling embarrassed. I've only been able to burp once in my life, and that was after the pressure got so bad, I had no choice but to burp. It hurt, but it helped (for a time). I am bringing this up to my ENT doc tomorrow at my appointment and will reference this video.
So glad I found this article. My doctors have been treating my colon for years although I keep on telling them the problem is more “in my throat”. I am so frustrated and cannot find a doctor who will take me seriously.
Very sorry. But this is a very new diagnosis and maybe take original description for your doctors to read? journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
@@Laryngopedia thank you
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
Thank you Dr.Bastian for bringing up this topic. I have been battling with this condition (was not aware it was actually a condition) for a year now and all I can say it is very embarrassing and uncomfortable. 😥 It is a relief to know that I am not the only one and that there is a way to treat this. 🙏
Mine also started about a year progressively got worse to the point I became miserable
@@sakinaelmahdi4580 where you able to burp before that?
It could cause me instant shiver back in my spine, uneasiness, and some dizziness when this happened. Felt like dying too at certain time. Thank you for enlighten us upon this issue :)
Our pleasure. All the best.
Me too I feel the same thing since 3 weeks now I can't go outside fear of shortness of breath
I thought i was suffering from anxiety for 9 months before i saw this.
I've had this my whole life. I'm so happy there is finally treatment for this hellish condition
Well fuck. Is this why I feel sick in the evenings? I usually just start violently coughing to relieve the pressure 👍💀
I don’t burp but I do open my mouth and there’s like a weird thing coming out like a grimlin screaming and I think it’s funny but I have never really burped
That's how I "burp" too lol
I wanted to say thank you so much for this video!
I've been to UAB, Mayo, and countless doctors/specialists in Huntsville Alabama where I live since 2018. I've had every test known to man because none of them believed me when I said I cannot burp!
I've tried every natural remedy and OCT medication.
I've lost so much weight because I don't want to eat because of the pain.
Everything you said describes me, I can't sleep because the gas pain wakes me up.
Extremely sorry to hear this, but if you match the syndrome described, take info to your doctor ... such as this original description of R-CPD. journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
I had this kind of condition for over 8 years and it's hard to find a doctor that can actually help me, especially here in the Philippines.
I had already been consulted some of doctors here and they were just laughed in front at my face.
I hope I could free from this RCPD..😢
Nakapunta k n ba ng doktor
Kumusta na yang condition nio?
I could never burp even when I wasa baby, however I always farted a lot. The symptoms didn't really get worse until recently when I eat huge meals I get a bit nauseous because I can't burp and the gas stays in. It feels so tight with pressure in my throat and chest and whenever I try to burp I can't. There's always gurgles in my throat and the bloating gets so bad that there are sounds in my gut in the middle of class it's so embarrassing I also have a fear of vomiting.
I also have a fear of vomiting. I wonder if that's at all related to this condition.
@@CassTeaElle I have a serious fear of vomiting and whenever gas gets trapped in and I feel nauseous full on panic attacks start happening- i guess we're in the same boat?
@@emilyzhang1002 i also get a panic attack when I can't burp trapped gas,I get numb and feel tingling in hands and feet and I feel nauseous,is your bloating painful ,mine can sometimes be quite painful 😖
@@CassTeaElle i think it's definitely connected
@@Србомбоница86 sometimes i get cramps but it's mostly just nausea
Gladly I never really had social anxiety due to the gurgling. All throughout high school people would just hear the sound and be "oh hey that's leo!"
lol iconic
Ha ha ha that's cute
I didn't realize how common it was for people to burp. I involuntarily burp maybe once or twice a year. I didn't know it was a daily function.
I also burp maybe twice a year ,it actually scares me when it happens ,that's how rare it is
Dear Dr. Bastian. Thank you so much for this video and definate the symtoms,,,
i've been suffering from this for years, it's so uncomfortable and painful
My doctor didn't think it was serious when i told her about my symptoms she and a nurse said just try and force it out. It's a relief that that I am not the only one suffering but that it is now a recognized medical dysfunction.
I’ve had this for as long as I can remember and never been explained why
My entire life of 27 years I thought I was alone in this. All 4 major symptoms apply to me, and I do also experience nausea from eating too large meals or from drinking carbonated drinks too quickly. I also grew up with a lot of painful hiccups (I even had them as an unborn baby and my mom would joke about this). I am amazed to find out that this is an actual condition!
I have to eat smaller meals ,any bigger meal makes me feel like I can't breath ,the discomfort lasts for hours ugh 😩
Thank you so much for this information Doctor. I was always curious to know why I was unable to burp and why my throat made gurgling noises. Hopefully, I am able to get the botox injection someday :)
I thought I was alone, it's horrible. Pain, filled with air, weird noises all day every day, I have colitis from it. I'm so glad there is a treatment now, I'm calling my doc to set this up.
So glad you found this avenue of exploration. A comment: Often all GI symptoms end up being related to the R-CPD. That includes in many cases, constipation (due to overstretched colon walls) and diarrhea (an irritative response to excess air). So R-CPD could co-exist with UC or Crohn's but it certainly can cause lower GI issues all by itself.
It is so amazing to see there are so many people here that experience the same thing. I’m 28 and for as long as I remember I’ve never been able to burp. My mum said when I was younger (like 5) sometimes when I laughed I’d burp, but from primary school upwards I’ve always had the weird throat noises and no burping. I’ve found myself trying to be sick to help. I’ve been to the doctors but nobody knows anything about it! I am in Perth WA and I can’t find anybody here that does it!
Take the original description to a laryngologist in your area. Call ahead and ask to see the laryngologist. Or, red carpet at Bastian Voice Institute.
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
I never burp out loud. The best I can describe it is “it feels like I burp in my throat” it’s quiet and only I can hear it i can’t explain what it sounds like but it’s just burping around the area of the throat where you can feel the voice box. I have painful hiccups but it’s because I have acid reflex and I have emetophobia but I can throw up during stomach bugs and stuff. I am ten years old aswell
I didn’t even know this was a diagnosis let alone treatment. I thought this was just me.
I've had these symptoms since I was a baby, sometimes it causes my chest and throat to hurt if I can't get it out.
I feel like a ball wants to come out of my throat ,I can feel it deep in my throat ,so uncomfortable 😣
I cant burp on command it sometimes just happens. I feel like I remember everytime I burped. It usually occurs when I have a hiccup.Also have that gurgle I hear in videos and hate it. I cant hear it but it has bothered me my whole life and is the main symptom I want to rid. That sound is the bane of my existence and will hear it sometimes through the echo of my microphone on xbox and it really shuts down my confidence.I try to stop it but I literally can’t. I literally sound like a dinosaur. On top of all that when I eat or drink I get full really quick because I cant burp. Sometimes after big meals I have to lye down because I feel like a ballon that can burst any minute.When I was young I had really sharp chest pains that I went to the emergency for thinking it was a heart problem .It just makes me feel relieved that I finally found this video. I thought I was literally just crazy because doctors said everything seems fine. I made the connection on my own that the gurgling sound lack of burp and the sharp pains due to a build up of gas were connected. This video makes me feel like a genius.I researched it every few months and I thought it might be acid reflux or gastroperisis but I think this is most definitely the problem. Thank you so much for this informative video!
You are welcome. Focus on the "big 4:" Can't burp, gurgling, bloating, and flatulence. Additional symptoms are also common: nausea after eating, painful hiccups, etc. Call a nearby ENT group and ask "Does any of your doctors help people who can't burp?" Take the article with you that comes up when you search "Bastian belch" as it will explain R-CPD to him or her.
@@Laryngopedia I’m naming all my children after you. Jokes aside appreciate it.
I always have to lie down after a big meal ,I simply don't eat if I won't be able to lie down afterwards,it ruined my social life
GIVE THIS MAN SO E REAL CREDIT CAUSE HE IS A F*CKING LEGEND!!! IF IT WAS NOT HIS VIDEO, I WOULD HAVE NO CLUE THAT I AM SICK
Has anyone ever experienced the big four symptoms WITHOUT the inability to burp? I have had chronic severe chest pain, pressure and what feels like air being stuck but can burp. As a child, up until about 16 years old I couldn't burp.
Listen I am absolutely not a doctor and I highly recommend looking further into this yourself, but maybe it’s aerophagia or supragastric belching?
@@Musicallison Thanks for your response, I believe those may be parts of a larger issue. I've had a few abdominal surgeries due to the chronic chest pain (originally thought to be a Hiatal Hernia). I had a fundoplication and fundoplication takedown due to it failing. It's fedinitely aerophagia, bit debilitating. Chest pain is so severe I can't leave my house anymore or even stand for longer than 10 minutes without it becoming excruciating. I also talked to a doctor out in LA who studies supragastric belching and he agreed that it sounds more like an anatomical issue. None of my tests show anything wrong anatomically.
@@CodyLawrence Woah I'm so sorry to hear about all of that! There really isn't enough research in this field and you're a perfect example of why even a non-fatal disorder like R-CPD needs more attention. Otherwise, (and again, I'm absolutely not a doctor) I would have to guess that you might have multiple anatomical issues? I can't imagine that aerophagia alone would cause you to have so much pressure in your chest since you have the ability to burp and release trapped air. Going off of that logic though, here's an article I found that lists a couple of possibilities: www.health.com/condition/gerd/9-serious-conditions-that-can-feel-like-heartburn Although as a last idea, maybe you could also be excessively swallowing air like how aerophagia typically works but the air could be getting trapped in an unusual location where burping can't reach? My first inclination from that would be a tear in your esophagus but I'm sure there's other conditions that are capable of redirecting excessive air intake.
I must have this. I've got all of the "big four" symptoms very noticeably, even was able to get a recording of the crazy gargling sound that's described. I never considered to to be "painful" or "awful", just a minor discomfort that could be averted with some Omeprazole, but I guess it's good to know that there are treatments available for this if it ever _does_ become unbearable.
Do I still have it?
Do u still have it?
@@denim3910 Yes. I still have the condition (and the recording of the sound). I'm actually getting an injection procedure done this Friday to hopefully cure it over the next two months.
I’m just super excited now that at least it’s not just in my head. I was diagnosed of GERD but within me I knew that was not it. No one understood whenever I explained so I stopped explaining. Mine gets severe sometimes and mild sometimes and my doctor would always give me some meds which wouldn’t do anything for me. Thank you for your works Dr Bastian.. The problem yet again is how to get this treatment in Nigeria 🤦🏻
So sorry. Keep calling nearby ENT groups to ask if someone treats people who can't burp. Look for a laryngologist who also handles swallowing disorders.
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
ive been suffering with this since i was a baby, everything you mentioned in this video describes it down to the T. I have severe emetophobia and every single time u eat or drink/ injest literally anything i get the weird frog noises along with hiccups without fail every single day of my life. The hiccups i experience are so painful and cause me to gag and feel nauseous which triggers my anxiety along with the noises it causes. It makes it where i can make myself look soo preganant and im only 16 so its kinda fun to walk around in public like im 6 months pregnant lol. i need help im tired of living like this
So sorry... Please keep asking your physicians about R-CPD. Here is my web page of comprehensive resources. laryngopedia.com/?s=cough&submit=Search
That sounds like me exactly. I remember my sister trying to teach me how to burp when I was 7 and I just couldn’t. I have had all four symptoms my entire life! Even the other day my husband tried to explain how to burp and it didn’t work no matter how hard I tried to “practice”.
It feels so great to know there is a diagnosis for my symptoms because whenever I explained this to others in the past, people would look at me like I’m crazy.
So sorry to hear that you may have R-CPD. We hope that you can find a good source of treatment. Call nearby ENT groups and ask if anyone helps people who can’t burp. The entire staff will know if they do. You may need to travel to a nearby big city…
I am 53 and have never burped all my life. When I was a kid I actually thought it was a thing I had to learn to do, I had family or friends trying to teach me to burp but never could lol. The gurgling yes, I have this so bad sometimes, it can be embarrassing, it's so weird. So much bloating, I am always bloated, I bloat more and more during the course of the day. I go to bed bloated and wake up with a flat tummy all pleased with myself but then bloating builds up again. Flatulence, yes have this too. Painful hiccups, yes, I literally have to hold my chest it hurts so much. Thanks for the video so grateful
I have to lie down after a big meal ,I literally feel like my tummy will explode, if I don't lie down on my back and deep breathly
thank you, i have been made fun of my entire life. finally there is awareness of this issue.
my sister and i always referred to this as "cow disease" since it sounded like i was mooing and though mine isnt as severe its still extremely annoying and ive had very bad cases many times in my life. im so happy im not alone.
Mate there are some exercises that might help you for your cricopharyngeal spasm
1. Shaker exercise
2.Mendelsohn maneuver
Worked for me
I couldn't believe how many of the symptoms I have. Not only do I have all 4 of the big symptoms, but I even have some of the less common symptoms like loud painful hiccups, nausea while eating, etc.
Nausea is very common,hiccups also
Dr Bastian, I know its a long shot that you will read this but I feel like you are my last hope to answers. I have this condition (R- CPD) I have met with ENT doctors, GI doctors and even one who specializes in this disorder. However, I was told I am not a candidate for botox and this is why... My lower esophageal spincter doesnt work properly either and is patulent. This causes reflux and the ENT doctor believes my Upper esophageal spincter remains tightly closed as a defense mechanism to prevent aspiration of reflux into my lungs. However, I am also not a candidate for surgery to tighten my LES and potentially rid myself of both conditions because apparently mannometry tests show I have yet another condition called Ineffective esophageal motility. I just had an upper GI with biopsy to rule out eosinophillic esophagitis which I dont have. It is unclear what caused all these issues and I feel defeated and sad that I may have to live the rest of my life like this with no relief. The reflux I can deal with but the symptoms related to no burp majorly suck and ruin my social life. Any insight or advice would be greatly appreciated?
Do you mind sending this message to info@laryngopedia.com? Dr. Bastian will see it there and likely reply to you. You must find a way to get your R-CPD treated…Ineffective motility and LES laxity are almost predictable RESULTS of R-CPD!
OMG i have these symptoms...can't wait to get my job back so i can get my health insurance bak...need to check and go to a doctor.
Im so glad i found this video. I experiencing every symptom and no doctor has helped me. I going to try and get that botox shot.
Do you know where to get it?
@@iheartm30s94 youre most likely going to have to travel. Many doctors dont even recognize this as a real condition. According to the reddit support group Bastion Voice Institute in Chicago specializes in this condition I would give them a call or call around and ask if they help people with difficulty burping
@@jaymiewilson9844 ok thx for the help I’m in San Francisco California which is a big city so hopefully someone here will know what to do
@@iheartm30s94 Good luck man this has been a rough journy for myself im going to start acupuncture next week because thats has helped others hopefully I can get relief there
I always felt it was a hiatal hernia, but I've had these all my life... Thanks
Dr Bob...
Do you do telehealth appointments? You are the first doctor to ever understand what my whole life has been like. I am that can hear the gurgling from the other side of the room, stick my finger down my throat to let out an enormous amount of gas. I need this botox injection, my doctors know nothing about this.
Dr. Bastian offers "tele-conversations" for people outside Illinois. Go to laryngopedia.com/video-conversation/ to learn more and to schedule an appointment.
my stomach aches so bad because I cant burp. Even though I eat small amount of food my stomach aches and I need to burp in force by pressuring my stomach in just to burp.
Finally ! im relived after looking at this
Just started happening to me about a week ago. I always want to burp but I can't, and also always feel like salivating but struggle to do that also. I'm already tired of it and devastated. It's very uncomfortable
So sorry. For most people it is lifelong, so hopefully yours will go away.
I have all 4 it’s so painful, finally I can put a diagnosis on it.
Every symptom. And Im in shape, triathlete, but my belly looks about 1,000 months prego
I wanted to come to your office in chicago a year ago, but it got better as i started standing upstraight more often everyday and correcting my posture. But about a year later it came back...
Yes,I think forward neck posture can make this condition worse ,how are you now???
god i love seeing everyone else with this problem, i cant wait to be able to fix this
Go for it! :-)
I just started this as a result of panic attacks. I’m a pharmacist and both my colleagues and doctor blamed it on acid reflux. I knew it wasn’t acid reflux because I didn’t have any acid at all. But that was the only thing that made sense . The worst is the build up of the air in the chest cavity which makes you feel like your chest is going to explode. I have been suffering on and off for the past month. What I did was use some Lipton tea wit a lot of lemon. I squeezed the lemon into the hot tea and placed the remaining lemon in the tea. It relieved it after hours of the air being trapped in my both my stomach and chest. I still plan on going to ENT and maybe I’m wrong but this definitely describes what I have been experiencing.
So sorry to hear of your experience. The key determinant of whether you have R-CPD is whether you can burp Most people have had difficulty for as long as they can remember, but there is a small subset in whom it is acquired later in life.
I am commenting after having spent the entire night awake listening to gurgling. They have been treating me like its acid and giving me antiacids this whole time and all its doing is making it worse.
what's the cause of this condition? That's what I want to know.
I used to call the gurgle my stomach “mooing” when I was a kid 😂
I used to tell people it was growling! Haha
I went to a dietician in 2019 and a GI at the start of 2020 because of my "digestive" issues, and I'm pretty sure I mentioned that I can't burp. I'm calling the GI's office when I wake up in the morning. I need that botox injection so bad.
I don't really eat at mornings and I've got social anxiety. When I get into social events in silent rooms it's so difficult for me. I keep doing those sounds. Usually I play with something that makes noise like a pencil case and stuff... To avoid embarrassment
So sorry. Anxiety and social disruption are big issues with R-CPD. I hope you find a doctor who can help you with this. Here's an article you can take to him or her... journals.sagepub.com/doi/pdf/10.1177/2473974X19834553
I'm speechless. I also thought I was alone.
I've got all the symptoms, this has been going on all my life, but seems it's getting worst (I'm 60). Possibly because I am doing more sports.
It's not on a daily basis but mostly because I avoid most situations, but I often still live the social awkwardness.
- I will never drink fuzzy drinks (soda or beer)
- I will eat very slowly, and very small bites (people find that funny).
- avoid family dinners where you eat and talk
- on a long day hike, I will avoid eating lunch or take a couple small bites (otherwise I'm not making to the end of the day)
So on a normal day I am kind of ok. But then I like to run. Above a certain distance (about 10km) it becomes a misery as I become full of air with shortness of breath.
I did mountain trekking (up to 7000m of altitude) up to recently, but always at the cost of many 'air-vomiting' stops. Guides always think I am experiencing severe sickness altitude syndrome, but in fact I tolerate the lack of oxygen pretty well, as long as my stomach is emtpy.
At the end of the family meal, I will always have to go lay down (horizontal position is such a relief). Normally by 2-3 am I am back at normal 'pressure'.
There's absolutely no way a that 'walk around the block' after a meal would make me feel better.
I cannot understand either how drinking a Perrier with bubbles would make anybody feel better after a large meal!
I also often get severe and painful hiccups, sometimes unable to drive back home unless I stop to air-vomit.
After a 3 times usually it has no more effect and doesn't help with the hiccup.
The only symptom that I also have that is not mentioned here (or in the other articles) is the fact that sometimes if I eat certain things (mostly a sandwich with thick french bread), I will get like a 'esophagus cramp', the food seems stuck in my throat, I am unable to breath at all, I become silent, unable to move, with big pain in the esophagus, usually it takes about 30 seconds before the 'bite' finally goes through. My mother probably had this, she was diagnosed with a 'hiatal hernia', but as she was old (70s) she refused to get surgery. Reading about this I find some of the symptoms contradictory with R-CPD.
It's not the first time I research with my symptoms, I once found a group of people in France having similar issues but most said that their doctors simply discarded their descriptions and didn't take them seriously. I never consulted because I figured it would need to be at a time where I had the symptoms.
I will obviously see if here in Canada doctors have started to hear more about this conditions and possible solutions.
You have just described R-CPD perfectly. We have treated many patients from Canada, because they could not find prompt help there. But I do know that Dr. Amanda Hu in Vancouver, and Dr. Jennifer Anderson in Toronto know about this disorder from my work.
my god this is a break through. I didn't know this existed
I have R-CPD and in my country this is not recognized as a disease. I can't get operation. I have severe gurgling daily. Around 30 times a day. Also I have excessive flatulence. What can I do to fix this? I don't have any money to travel abroad to get my operation. I feel hopeless and I don't know what to do.