I SOBBED after listening to you talk about emetophobia @29:01. MY LIFE MAKES SENSE NOW. I’ve never felt so validated. Thank you!!! I will definitely be getting this procedure!
My daughter was one of the first patients for this procedure with Dr. Bastian. It made intuitive sense to me and proved to be a very positive life changer for her. Great to hear ~1000 procedures since at the time this video was made. That’s a lot of lives changed for the better. Much more to our story, but suffice to say that I have the highest level of respect and gratitude for Dr. Bastian who defined and named the condition and then pioneered the minimally invasive procedure using Botox-a condition that countless specialists seen by many, many patients had failed to diagnose or treat.
I believe my daughter has R-CPD. She is 13yrs old and it has changed her so much. She used to be very outgoing as a toddler but now is just embarrassed and miserable DAILY. We have seen multiple doctors over the years and she has been diagnosed with; IBS, Reflux, Possible ulcers, AMPS, ADHD and anxiety. NONE of the medications they prescribe have worked (antibiotics, prednisone, famatodine...). Famatodine had the opposite response and made her stomach pains so much worse. She cannot burp, her stomach distends throughout the day and she has almost constant pain, gurgling in her throat and chest, very excessive flatulence, increased mucous, very painful hiccups, shortness of breath sometimes when abdomen is very swollen. We even have chest xrays showing HUGE air bubbles. Her current doctor now wants a Upper GI w/ impedance study...is this necessary or beneficial? I'm waiting to hear exactly what the doctor is hoping to accomplish with this air swallowing study before we agree to it. Any advice would be greatly appreciated.
Dr. Bastian, I desperately need your help. I have had RCPD forever, 46 years. I met with Dr. Pittman in 2021. He wouldn't help me because I also have a 5cm sliding hernia and regurgitate often. He recommended that i have the hernia repaired. I am so against the hernia repair because i am active with exercise and lifting and pilates. There isn't a food on the planet that I can eat without discomfort. Would you be able to help me without having a hernia repair? I couldn't get through any of the tests required for the surgery. Nothing can stay in my throat that long. I would fly to Chicago tomorrow if you could help.
Our usual advice (theoretically since you are not a patient) is to fix the R-CPD first, since many gi issues go away...then see what issue remains. If the R-CPD syndrome is essentially lifelong, we also don't do tests other than office examination. In ~1800 patients for our group so far, we have zero patients diagnosed by tests; all are diagnosed instead via match to the syndrome.
I’m up most the night with burps stuck, I have to get up and bang on my chest, sometimes I can get a burp out, sometimes not, and it makes me nauseous. This happens all through the day, where I have to stand up and bang on my chest throughout the day, and can finally get a burp out. Is this the same thing? Or is this a different condition, since I can eventually get a burp up, but it’s what I do all night and day. Ugh. 😢
I just got my results back from my esophageal manometry and the Dr. Told me the upper sphincter showed no dysfunction and exhibits normal relaxation and coordination. Does it have to be a specific type of manometry to show the dysfunction? I definitely can't burp and am experiencing gurgling and extreme bloating as well as the excessive flatulence. They won't approve me for Botox because of this manometry. It did show that I have a hiatal hernia and all 10 swallows were ineffective.
In R-CPD, the upper sphincter works perfectly for swallowing, and the manometry typically evaluates only that function. But the sphincter does not let go for burping and standard manometry does not show that. Manometry would have to be refashioned to show the loss of retrograde release. The selection of patients for botox is NOT via manometry but instead via match to the syndrome: 1) Can't burp; 2) gurgling noises especially from throat and chest; 3) bloating often with some stomach distention; and 4) excessive flatulence. Other common symptoms include nausea after eating, hiccups, hypersalivation, constipation. Consider contacting Dr. Bastian via info@laryngopedia.com. That email makes its way to him.
I'm just learning about this because I typed in "I never burp" into google, but it's for the opposite reason of all you. I think of it as my super power. I'm not uncomfortable at all. I feel great. I release gas silently. I'ver never had to make a noise while releasing gas from my stomach. Is this the same thing? I'm so confused as to what this condition is. I feel great and always have with the way I am. Why does everyone feel like they need to make some big noise or it's a "condition". Can anyone explain?
Do I qualify as having this condition if I don't have an inability to burp but only a SEVERELY retarded ability to burp? I can burp, not always, but it is an arduous, and painful process... and if I fail to expel the air (which is often) I will usually vomit.
I SOBBED after listening to you talk about emetophobia @29:01. MY LIFE MAKES SENSE NOW. I’ve never felt so validated. Thank you!!! I will definitely be getting this procedure!
Thank you so much for your kind comments, and we're so pleased to hear how well your daughter is doing!
My daughter was one of the first patients for this procedure with Dr. Bastian. It made intuitive sense to me and proved to be a very positive life changer for her. Great to hear ~1000 procedures since at the time this video was made. That’s a lot of lives changed for the better. Much more to our story, but suffice to say that I have the highest level of respect and gratitude for Dr. Bastian who defined and named the condition and then pioneered the minimally invasive procedure using Botox-a condition that countless specialists seen by many, many patients had failed to diagnose or treat.
Thank you so much for your kind comments, and we're so pleased to hear how well your daughter is doing!
I believe my daughter has R-CPD. She is 13yrs old and it has changed her so much. She used to be very outgoing as a toddler but now is just embarrassed and miserable DAILY. We have seen multiple doctors over the years and she has been diagnosed with; IBS, Reflux, Possible ulcers, AMPS, ADHD and anxiety. NONE of the medications they prescribe have worked (antibiotics, prednisone, famatodine...). Famatodine had the opposite response and made her stomach pains so much worse. She cannot burp, her stomach distends throughout the day and she has almost constant pain, gurgling in her throat and chest, very excessive flatulence, increased mucous, very painful hiccups, shortness of breath sometimes when abdomen is very swollen. We even have chest xrays showing HUGE air bubbles. Her current doctor now wants a Upper GI w/ impedance study...is this necessary or beneficial? I'm waiting to hear exactly what the doctor is hoping to accomplish with this air swallowing study before we agree to it. Any advice would be greatly appreciated.
Dr. Bastian, I desperately need your help. I have had RCPD forever, 46 years. I met with Dr. Pittman in 2021. He wouldn't help me because I also have a 5cm sliding hernia and regurgitate often. He recommended that i have the hernia repaired. I am so against the hernia repair because i am active with exercise and lifting and pilates. There isn't a food on the planet that I can eat without discomfort. Would you be able to help me without having a hernia repair? I couldn't get through any of the tests required for the surgery. Nothing can stay in my throat that long. I would fly to Chicago tomorrow if you could help.
Our usual advice (theoretically since you are not a patient) is to fix the R-CPD first, since many gi issues go away...then see what issue remains. If the R-CPD syndrome is essentially lifelong, we also don't do tests other than office examination. In ~1800 patients for our group so far, we have zero patients diagnosed by tests; all are diagnosed instead via match to the syndrome.
I’m up most the night with burps stuck, I have to get up and bang on my chest, sometimes I can get a burp out, sometimes not, and it makes me nauseous. This happens all through the day, where I have to stand up and bang on my chest throughout the day, and can finally get a burp out. Is this the same thing? Or is this a different condition, since I can eventually get a burp up, but it’s what I do all night and day. Ugh. 😢
I just got my results back from my esophageal manometry and the Dr. Told me the upper sphincter showed no dysfunction and exhibits normal relaxation and coordination. Does it have to be a specific type of manometry to show the dysfunction? I definitely can't burp and am experiencing gurgling and extreme bloating as well as the excessive flatulence. They won't approve me for Botox because of this manometry. It did show that I have a hiatal hernia and all 10 swallows were ineffective.
In R-CPD, the upper sphincter works perfectly for swallowing, and the manometry typically evaluates only that function. But the sphincter does not let go for burping and standard manometry does not show that. Manometry would have to be refashioned to show the loss of retrograde release. The selection of patients for botox is NOT via manometry but instead via match to the syndrome: 1) Can't burp; 2) gurgling noises especially from throat and chest; 3) bloating often with some stomach distention; and 4) excessive flatulence. Other common symptoms include nausea after eating, hiccups, hypersalivation, constipation. Consider contacting Dr. Bastian via info@laryngopedia.com. That email makes its way to him.
I'm just learning about this because I typed in "I never burp" into google, but it's for the opposite reason of all you. I think of it as my super power. I'm not uncomfortable at all. I feel great. I release gas silently. I'ver never had to make a noise while releasing gas from my stomach. Is this the same thing? I'm so confused as to what this condition is. I feel great and always have with the way I am. Why does everyone feel like they need to make some big noise or it's a "condition". Can anyone explain?
Do I qualify as having this condition if I don't have an inability to burp but only a SEVERELY retarded ability to burp? I can burp, not always, but it is an arduous, and painful process... and if I fail to expel the air (which is often) I will usually vomit.