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Im VERY glad that you’re alive ❤

My sister is 8 years old , she was diagnosed with soft tissue sarcoma in her knee , she’s stage 4 , doctors said kids like her don’t live 💔

Hi, did you cut your hair in between all these months?

Hi, you look beautiful btw what did you do to get rid of the eye bags?

Have you ever looked at the health benefits of Castor oil ❤

From seeing my doctor and getting, the camera, CT scan and Ultrasound and biopsy was less than two weeks, the biopsy and ultrasound was last Friday, so now I am just waiting for the results. The itching is driving me crazy.

So happy for this update!

I’m glad you are still here! I can recall watching your videos when you were battling with cancer. I’m sorry to hear about your partner! May the universe heal and give a speedy recovery 💕

Hello my brother was in remission and got diagnosed with rhabdosarcoma again it came back did yours come back aswell ? I hope you are well you are a warrior 💕

Hi isenda my son has Hodgkin lymphoma he is coughing to much is coughing curable in Hodgkin lymphoma? Waiting to your response

I came from that 8yr old video and I'm really glad you're fine :)

Hello, i have a question. Do you have a family history of cancer? Or are you the first to get it in your family. It would help so much if you had answered. Thank you.

I am so happy to see your video after long time my son is 15 he is suffered with Hodgkin lymphoma he is good now

Im so sorry to hear about your partners diagnosis though I’m glad to see that you yourself are looking incredibly healthy. Wishing you both improvements in your health 🙏

It's good you are pro-active and get checked out when you find something that worries you.

Good to see you again and sorry to hear about your partner's diagnosis. Was it just a simple regular blood test that found his cancer?

Hey Isenda , do u get radiation therapy treatment in stage 4 ?

Hi Isenda, it's nice to see you back. Please keep updating us. Your videos are genuine, informative and educational and you yourself is an inspirational young woman. I honestly think so many youtubers out there with videos about their illnesses are just attention seekers but you are different. I feel that you are genuinely trying to share your journey with us and you are not dramatising anything. I'm in my early thirties, recently lost my mum to Diffuse large B cell lymphoma. I myself suffer from chronic anxiety and health anxiety and have chronic fatique symptoms as well (although very mild compared to a lot of ppl). I can relate a lot to what u've mentioned. I wish you all the best. I'm not sure if you've thought about counselling other young people with cancer given your lived experience. I do think you would be an amazing counsellor/psychologist/mentor.

Thank you for the update. I'm so sorry you are still dealing with fatigue. I hope the new treatment is helpful. I was diagnosed with Hodgkin's lymphoma a little over a year ago, your videos were some of the first that I watched about it and were extremely helpful. Surprisingly my father was diagnosed with Non-Hodgkin's lymphoma back in 2021. I'm so sorry to hear about your boyfriend's diagnosis. The coincidences are just unbelievable. Again, I wish you luck with your new treatment and more energy.

Hello, you look good..glad to see you back

I can suggest trying earthing. It's helped me normalize my sleep. The other thing that always makes me tired is lack of D vitamin, which is easy to get in Sweden. Sorry about your partner.

I really appreciate this video. Your videos are what helped me get through my experience with HG. Thank you so much and I wish your partner all the best. I'm curious to know have you ever tried for a baby (sorry if this is an inappropriate question to ask)? We're the same age and I always think about conceiving after abvd chemo. Defs don't answer if you don't want to.

I just saw you uploaded a video now, 4th jan but it's private, everything okay?

Isenda. We miss you. Hope you are doing your best

Thank God! My journey is 13 years but not determined yet. Biopsy soon. Symptoms: coughing, vomiting blood, 30-32 weight loss in 2-3 months and tired a lot, chest pressure pain, congestion, enlarged lymph nodes but healthy lifestyle because unlike you get help, I didn’t get help. That’s 13 years later by way of Emergency, thank God!

I have just thought of you and came back to check if you have posted since and realised I wasn't subscribed?! No idea how this happened as I have been subscribed before. Anyways, I hope you are well and enjoying your life.

Thanks for sharing your story it’s very helpful ❤ 🙏

Plz let us know how ur doing? I tried finding you on social media:(

Such sweet ladies, much admiration. 😊

Thank you

Why in the whirled would you claim it?!! (MY cancer?!)

Hope to hear more updates from you! I just recently got diagnosed with HL stage IIE, so mine has spread from my lymph nodes into my fatty tissue nearby. I’m really scared about treatment, the after-effects of ABVD chemo, and what my life is going to look like now. It makes me happy to hear your story and see that you made it through and out of this illness. Any tips or thoughts you are willing to share is greatly appreciated! Much love ❤️

How are you now?

How is ur health now?

Can I offer you a little piece of advice, cut the ownership of cancer, deny ownership if you want to get rid of it!

Claritin makes it worse if it also keep you from sleeping. If so, ask your health care provider if you can switch to a different antihistamine like Hydroxyzine. Once I switch and was allowed to a good sleep the intense bone pain went immediately away just taking 2 ibuprofen and 2 Hydroxyzine ever 6 hts.

I was diagnosed with hodgkins lymphoma stage IVA last october at age 30. With all rounds of chemo+immuno salvage therapy ( refractory case) they get me into remission and underwent for autologous stem cell transplant on april 2023. now its 3 months of remission for me. What are the chances of relapsing after transplant? some tips please....

Does she have an instagram or some way to follow her?

Yeah, i also heard that blood cancers like Hodgkin Lymphoma have much less scary survival numbers than more "physical"/solid/mass cancers. I hope you find fun things to do, while in treatments :)) All the best wishes :))

Well, at the moment, i am at that stage where.... i am 21, i look like a healthy 17 yo, but i feel like i'm 50... and my doctor and my family dismisses everything i say, cause i don't look sick on the outside... but, in the inside, in a 1.5 year period of time, broooo.... enlarged lymph nodes in my neck, groin and armpits. a lump on my breast. lost 7kg in 5 or 6 months, unintended. fatigued. cough. a tiny but of shortness of breath. diarrhea now (?) but "i don't look sick"... sure.... Yeah, a big part of this "dismissing" is because i did not know how to stand up for myself, but it's hard to do so when your doctor shoots you with a "oh, that's normal" before you even get the chance to end the sentence and explain what you're experiencing... But, my next appointment is in 2 weeks, and i am planning on using the empathy card (like "how would you feel if another doctor treated your mom or your kid like this?) AND telling him it has appeared in new places since the last appointment 3 months ago. If he doesn't prescribe me more exams like CT scans or more specific blood tests, i will be kinda pissed ://

Did you lose your hair?

Compassion > Intelligence

Thank you... these are great. I like to also add "yes, dying from cancer would be my nightmare, but I only want to live that nightmare once. Not a thousand times over and over in my head, taking me away from my good life... Only once." All of us will have a million moments of life and only one moment of death. Goes back to the old saying "a coward dies a thousands times, but a brave man only once..."

Please share what blood tests were high. Was it LDH? I'm worried I have the same symptoms you have mentioned. Thank you for any help.

Here iam here to talk about Changing your fucking 9v battery. I got cancer and I got it because I can't change my 9v battery as you listen to my story I will tell you how to change a 9v battery blah blah Beep! Blah blah beep what's that u don't care about the beep? She can afford a 9v battery.

What subtype of Lymphoma? I have Nodular Sclerosis.

What would be the biggest takeaway I can share with my granddaughter's mother? She was just diagnosed with Stage 4 rhabdomyosarcoma in pelvis and bones, age 10. What would have been the greatest help in coping with this in general terms? What type of medicine were you given? What helped most with any side effects? Thank you in advance.

I have never in my life felt pain like I did after my first neulasta shot. Like you, it was so unexpected because the side effects weren’t really talked about. My lower back and back of skull were the worst but there were points I couldn’t walk, lay or sit without screaming and crying in pain. It was extra terrifying not knowing why it was happening and thinking my body might be failing 😢

This is 4 years ago...but I finished chemo 7 months ago and I've had horrible horrible headaches since..like can not sleep headaches

Thank you for sharing your lymphoma story. I recently defeated stage 4 non-Hodgkin's lymphoma after six courses of chemotherapy and I can relate to your story. By the way, in addition to a standard comprehensive blood test, did your oncologist ever order a blood test known as Lactate Dehydrogenase? Higher than normal LDH levels indicate some type of tissue damage or disease. One of the disorders that causes high LDH levels is lymphoma. My LDH level is now within the normal range, but if it ever is elevated again I will examine why. Anyway, I am glad we both survived. Best wishes to you wherever you are today. - Chris from New York City