I was diagnosed with the same cancer last year when I was 28. I found a mass protruding from my left forearm. I still find it hard to look information up online but its inspiring to see other women going on a similar journey. I finished treatment in April
Hey quick question im 25 and recently found out I have rhabdomyosarcoma due to a transformation of teratoma and I was just wanting to catch up with you as I'm newly understanding this is rare in adults
I used to have Instagram but I never used it! The only social media I use is TH-cam. Sorry! I also have an email address for this channel isendathinks@gmail.com but I don't check it frequently.
Of course. What specifically about radiation therapy would you like to see discussed? I will try to make a video discussing it with someone who has gone through it (maybe Maddy again).
My brother was diagnosed with embryonal rhabdomyosarcoma like 2 days ago...but they still need to confirm for a second opinion about this cancer...and confirm what type. I'm currently looking for a survivor of this type of illness..and what to expect. This kind of video really helps a lot for the person who have this disease, especially for the family whose trying to cope up. Thank you for this video. God bless.
Hi himeko chan. Im currently diagnosed with embryonal rhabdomyosarcoma. Im 30 years old male. It is located in my paranasal area. I have ongoing treatment of radiotheraphy and chemotheraphy. How about your brother? Where is it located and how old is he?
@@stephenolegario2712 Embryonal Rhabdomyosarcoma was his first diagnose. However, after his major surgery, they categorized it as Leiomyosarcoma with extension of prostatic. He is 24, and 1 week from now, we will see his oncologist for us to see what she's gonna say and what procedure he needs to do. How do you coop up Sir? Did u get a second opinion about ur diagnos? And how's the chemo? Can I know ur experience?
@@himekochan3350 hi himeko. Praying for your brother to overcome his current situation. I cope up by praying everyday and surrendering all to Jesus. I got 2nd opinion for my pathology and the favorable diagnosis was Embryonal RMS. I'm ongoing chemotheraphy and radiotheraphy right now. Fortunately my current results are promising. By october my doctors will decide regarding surgery.
Dear Isenda and Maddy, I received your video from my best friend the other day as a true inspirational story for my daughter, Kata. She is 15 and has been diagnosed with a Metastatic Alveolar Rhabdomyosarcoma, stage 3 a little less than a month ago... We live in Fort Lauderdale, Florida. Kata is a lovely young lady who has also been swimming competitively for the last 10 years of her life here in the US and in Hungary where we (both parents) are from. I would like to wish you a happy and very healthy future, first of all.. You are and will be an inspiration to many, many young people all around the world until smart scientists and doctors will find the ultimate cure for ALL childhood cancers..!! I have no other chance to get in touch with Maddy or you unless you send me a contact info. We would love to have the opportunity to get in touch with you via phone or skype or any other forms of modern communication! Kata has a page where you can read about her story and get to see her! Just copy www.gofundme.com/f/5bav74-i-got-this in your browser.. hope it'll open! I would very love to get in touch with you maybe we can share, learn, and experience from each other's journeys! Thank you for your time. My warmest regards, Beata Gergely
Hi Beata. So sorry to hear your daughter has been diagnosed. Thank you for commenting here and I truly wish you and your daughter all the best on her cancer treatment journey. Please come by and leave updates for us to know how she is doing.
I just lost a friend to this. This friend was my age, and I regarded him as a brother, we had a lot in common. I met him in band class, he played the trumpet ,I played the drums, which meant he was kinda near me .all throughout middle school I would sit at his lunch table ( its based on grade), in 9th grade we had the choice to start marching band (I knew from my older brother ) , he joins , I don’t cus I had a lot going on . in 10th grade I join, I’m in the pit, and he still plays the trumpet (and is really good) .the kids in pit are mean to me, but he supports and helped me when I cried. in 11th grade he doesn’t come to band camp, I wonder why . I find out through my mom he has been diagnosed with it. I feel so bad for him, that Christmas I get a switch, school comes back AND HES BACK , it was just for a few months, not much , I tell him about my switch , his s hair was growing back , it was short and thin ( not the long thick hair he had) , he was in a wheelchair .we have cancer fundraisers ,he’s the subject of all of them . We have this thing called mini thon( like Penn states thon, a massive fundraiser for Four Diamonds) in May. He’s at it, he looks BAD, skinny, pale (for his tan skin), and bald again I get to talk to him (still trying to) acting the same, chummy and happy). The school year ends. Summer passes, and he visits band camp but can’t do it. The year passes, and we do more things at our school for him . then we graduate, AND HE GRADUATES, we get pictures together. Summer and fall pass and in late April(this year) I do thon for my college I make a lantern for him for his fight, and for 3 other people who have cancer and the 2 who survived, the other passed earlier this year, and I missed class for it. My college year ends on an ok note. Summer passes, I hear through friends he’s doing bad, he didn't even stage 4, he was stage 2. Then just this Saturday he dies in his sleep I find out through my parents. I AM DEVASTATED. This man was someone I considered as a brother, friend, even crush .goddamit cancer is a bitch.congrats on surviving tho.
Thank you for sharing this story and your memories. I am so sorry for your loss. Cancer is a bitch and its so fucked. It's so deeply unfair that it kills people like your friend. I know my words cannot ease your suffering but know I am sending my love and strength to you and your friend. Take care of yourself.
Hello Isenda Thinks, Thank you for your inspiration. My 14 years old son was diagnosed with the same cancer on july 2018. Where did you get treated? What hospital?
Hello my brother was in remission and got diagnosed with rhabdosarcoma again it came back did yours come back aswell ? I hope you are well you are a warrior 💕
What would be the biggest takeaway I can share with my granddaughter's mother? She was just diagnosed with Stage 4 rhabdomyosarcoma in pelvis and bones, age 10. What would have been the greatest help in coping with this in general terms? What type of medicine were you given? What helped most with any side effects? Thank you in advance.
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Thank you for your story. My son is in remission from stage 4 rhabdomyosarcoma. We need more funding for pediatric cancer research...
We really do. I'm wishing the best for your family and his remission. I'm sorry he was affected by this horrible disease
I wish you well. I have the same cancer & it has spread. Just wanted to say you have inspired me. Good luck & I’ll say a prayer for you. God bless.
Congratulations in advance for overcoming this,you can do it!!! Keep prayer in your list of to do's .
Are you ok now?
I was diagnosed with the same cancer last year when I was 28. I found a mass protruding from my left forearm. I still find it hard to look information up online but its inspiring to see other women going on a similar journey. I finished treatment in April
So glad to hear you finished treatment in April. Yay!
Hey quick question im 25 and recently found out I have rhabdomyosarcoma due to a transformation of teratoma and I was just wanting to catch up with you as I'm newly understanding this is rare in adults
I was diagnosed with same cancer , alveolar rhabdomyosarcoma stage 4 probably 6 month ago , still on chemotherapy. I feel you mad ❤
Thanks for sharing, Tyra. Sorry to hear about your diagnosis. Sending you strength and love your way as you go through treatment.
Thank you too for sharing . can i get your instagram 😂
I used to have Instagram but I never used it! The only social media I use is TH-cam. Sorry! I also have an email address for this channel isendathinks@gmail.com but I don't check it frequently.
Ohh , okay. Im enjoy watching your video. Hopely you can make a video about radiotherapy treatment 💕
Of course. What specifically about radiation therapy would you like to see discussed? I will try to make a video discussing it with someone who has gone through it (maybe Maddy again).
I can relate to your story I’m going through intense treatment right now
Stay strong and resilient 🙏🏾
Cloud 6 please give us an update. I hope you are doing well!
My brother was diagnosed with embryonal rhabdomyosarcoma like 2 days ago...but they still need to confirm for a second opinion about this cancer...and confirm what type. I'm currently looking for a survivor of this type of illness..and what to expect. This kind of video really helps a lot for the person who have this disease, especially for the family whose trying to cope up.
Thank you for this video.
God bless.
My pleasure Himeko. Wishing your brother and your family the best. Take care.
Hi himeko chan. Im currently diagnosed with embryonal rhabdomyosarcoma. Im 30 years old male. It is located in my paranasal area. I have ongoing treatment of radiotheraphy and chemotheraphy. How about your brother? Where is it located and how old is he?
@@stephenolegario2712 Embryonal Rhabdomyosarcoma was his first diagnose. However, after his major surgery, they categorized it as Leiomyosarcoma with extension of prostatic. He is 24, and 1 week from now, we will see his oncologist for us to see what she's gonna say and what procedure he needs to do. How do you coop up Sir? Did u get a second opinion about ur diagnos? And how's the chemo? Can I know ur experience?
@@himekochan3350 hi himeko. Praying for your brother to overcome his current situation. I cope up by praying everyday and surrendering all to Jesus. I got 2nd opinion for my pathology and the favorable diagnosis was Embryonal RMS. I'm ongoing chemotheraphy and radiotheraphy right now. Fortunately my current results are promising. By october my doctors will decide regarding surgery.
Thank you so much a real inspiration,,,
Dear Isenda and Maddy,
I received your video from my best friend the other day as a true inspirational story for my daughter, Kata. She is 15 and has been diagnosed with a Metastatic Alveolar Rhabdomyosarcoma, stage 3 a little less than a month ago... We live in Fort Lauderdale, Florida. Kata is a lovely young lady who has also been swimming competitively for the last 10 years of her life here in the US and in Hungary where we (both parents) are from.
I would like to wish you a happy and very healthy future, first of all.. You are and will be an inspiration to many, many young people all around the world until smart scientists and doctors will find the ultimate cure for ALL childhood cancers..!!
I have no other chance to get in touch with Maddy or you unless you send me a contact info. We would love to have the opportunity to get in touch with you via phone or skype or any other forms of modern communication!
Kata has a page where you can read about her story and get to see her! Just copy www.gofundme.com/f/5bav74-i-got-this in your browser.. hope it'll open!
I would very love to get in touch with you maybe we can share, learn, and experience from each other's journeys!
Thank you for your time.
My warmest regards,
Beata Gergely
Hi Beata. So sorry to hear your daughter has been diagnosed. Thank you for commenting here and I truly wish you and your daughter all the best on her cancer treatment journey. Please come by and leave updates for us to know how she is doing.
What is group Facebook?
Hows your daughter beata?
I just lost a friend to this. This friend was my age, and I regarded him as a brother, we had a lot in common. I met him in band class, he played the trumpet ,I played the drums, which meant he was kinda near me .all throughout middle school I would sit at his lunch table ( its based on grade), in 9th grade we had the choice to start marching band (I knew from my older brother ) , he joins , I don’t cus I had a lot going on . in 10th grade I join, I’m in the pit, and he still plays the trumpet (and is really good) .the kids in pit are mean to me, but he supports and helped me when I cried. in 11th grade he doesn’t come to band camp, I wonder why . I find out through my mom he has been diagnosed with it. I feel so bad for him, that Christmas I get a switch, school comes back AND HES BACK , it was just for a few months, not much , I tell him about my switch , his s hair was growing back , it was short and thin ( not the long thick hair he had) , he was in a wheelchair .we have cancer fundraisers ,he’s the subject of all of them . We have this thing called mini thon( like Penn states thon, a massive fundraiser for Four Diamonds) in May. He’s at it, he looks BAD, skinny, pale (for his tan skin), and bald again I get to talk to him (still trying to) acting the same, chummy and happy). The school year ends. Summer passes, and he visits band camp but can’t do it. The year passes, and we do more things at our school for him . then we graduate, AND HE GRADUATES, we get pictures together. Summer and fall pass and in late April(this year) I do thon for my college I make a lantern for him for his fight, and for 3 other people who have cancer and the 2 who survived, the other passed earlier this year, and I missed class for it. My college year ends on an ok note. Summer passes, I hear through friends he’s doing bad, he didn't even stage 4, he was stage 2. Then just this Saturday he dies in his sleep I find out through my parents. I AM DEVASTATED. This man was someone I considered as a brother, friend, even crush .goddamit cancer is a bitch.congrats on surviving tho.
Thank you for sharing this story and your memories. I am so sorry for your loss. Cancer is a bitch and its so fucked. It's so deeply unfair that it kills people like your friend. I know my words cannot ease your suffering but know I am sending my love and strength to you and your friend. Take care of yourself.
My daughter has a similar Rhabdo. Her doctors say she is 1 of 7 Billion. She has been under Treatment at UF Health at Shands for over a year.
I'm so sorry to hear that, Eddie. I hope she's doing okay and that she treatment is working. My thoughts go out to you, her and your family.
Hi, Eddie! My name is Beata and we live in Florida. My daughter has same diagnosis.. How are things now? How is your daughter doing??
Hello Isenda Thinks, Thank you for your inspiration. My 14 years old son was diagnosed with the same cancer on july 2018. Where did you get treated? What hospital?
Such sweet ladies, much admiration. 😊
Hello my brother was in remission and got diagnosed with rhabdosarcoma again it came back did yours come back aswell ? I hope you are well you are a warrior 💕
What would be the biggest takeaway I can share with my granddaughter's mother? She was just diagnosed with Stage 4 rhabdomyosarcoma in pelvis and bones, age 10. What would have been the greatest help in coping with this in general terms? What type of medicine were you given? What helped most with any side effects? Thank you in advance.
My known is suffering from metastatic rabdomayosarcoma ....we are helpless
How is your friend doing . ?My 12 year old was just diagnosed.
She is still doing well and in remission - I follow Maddy on Facebook.
@@isendathinks7588 how is she now?
Je veux une traduction
You girls are so beautiful!
Thank you Marina!
Well yes they are gorgeous.
Does she have an instagram or some way to follow her?