I know how frustrating that has to be, especially because you're accustomed to your previous doctor that you liked so much. I'm thankful that you had your old doctor while going through treatment/diagnosis, but still, post cancer is just as import. I hope they come back! Your video caught my eye because I've recently had a foul experience with my cancer center. I've been really sick for 3 weeks now. When I first became so sick I had an appointment for blood work, so I called and asked the nurse if I should still have the blood work done while I'm so sick and she said no, that I should just come early on the day of my actual appointment with the oncologist the following week. Long story short, the scheduling girl ends up calling me and scolding me for not showing up for my bloodwork appointment. Even when I explained to her that I talked to the nurse and assumed that the message was relayed, she was still really rude and I felt like she was trying to make me feel really guilty instead of saying anything remotely understanding (and I'm the type to thoroughly apologise, which I did, and she was still rude). Then I ended up staying really sick and had to cancel my actual appointment with an oncologist so I had to call the same woman back and it just gave me so much anxiety. Luckily she didn't answer so I stuttered through a voicemail and never heard anything back from her and that was over a week ago. It makes me dread going there even though I know I need to stay on top of my appointments. Anyways, thought I would share my experience. I think it takes a special kind of person to work in that environment because I think most cancer patients are really sensitive and we need people that can be sensitive towards us as well.❤
Thanks for commenting and sharing, Michaela. The most important time to have a great doctor is definitely during treatment and diagnosis. So I'm grateful I had that. But it sucks I won't get that level of care for the next year during my post-cancer check ups. So sorry to hear you had that experience. I often have that reaction too - saying sorry when I shouldn't be the one saying sorry. It's something I'm slowly getting better at. This whole experience is overwhelming enough, we don't need nurses or medical personnel to be frustrated or short with us. Especially in your instance where someone in the medical team made the mistake! Ugh. How frustrating. We do need healthcare workers to be sensitive towards us. And I know healthcare workers are people too, and its unfair that they are harshly criticized in this regard, but it makes a world of difference to us patients when they are caring and patient. I'm sure they have their share of awful patient stories too!
Your experiences almost identical to mine, Isenda. Hello again from Hoboken. The hassles, the rituals, the routines, the endless blood tests, the red tape, the referrals, the paperwork, the invasiveness, the curtness of administrative people, the "feeling" for enlarged lymph nodes ... all of it the basically the same for us Hodgkin patients here in U.S.A. I have a new doctor too (a graduate of the University of Minsk) and I'm in the situation of quarterly checkups. A pretty decent lady, this doctor, if I may say so. I'm still in remission, still no tattoos. Stay strong!
Hey there. Thanks for sharing what it's like in the USA. Glad to hear you have a good doctor, that's so important, and I'm so happy to hear you're still in remission!
these docs see dozens of people n I guess they get a bit hardened, calloused...well, some of them do, anyway...they need to realize people are vulnerable and doctors need to have empathy....thank God you are free of cancer that's the main thing...cheers !.
You are a total Sweetheart💖, and Doctors have NO excuse to be rude or he/she can go into another profession; I have told a few that the respect with their Patients goes BOTH WAYS...You're FIRED~:)
It wasn't a good experience but maybe she was having a hard day? Hard to know. It makes all the difference when a health professional is kind though. Thanks for commenting, Holly. :)
Hi how you doing. My little brothers was just Diagnosed with Hodgkin Lymphoma he might been in stage 4. But he was lucky diagnosed by his heart specialist. That saw something wrong. He will start with his treatment next week. He doesn’t have the symptoms and never before complain. He is 14. He went for better treatment in Europe. I want to ask how can I support him. I’m so sad and worried for him and my mother who is with him at this moment. Is the treatment painful 😣. I want him to be positive and have the strength to deal with this. Thank you very much you are an inspiration
I hope your brother is doing okay, Jonathan. I'm not going to lie - treatment was painful sometimes but it is bearable and it's 100% worth it. He just needs lots of support and a good medical team. He should be okay, just like I'm okay now. :) Wishing you and your family the best!
I got diagnosed with stage 1 lung cancer Dec 2016. I had radiation treatments jan-feb 2017. All if my 3 month were good. Then at my last check up scans my oncologist though he seen something on the top of my hummus bone where it meets the scocket. My oncologist is so great he has called me to see how i am holding up till my next appointment where i am going to be fitted in s mold for my next round of radiation. I have COPD so after radiation we will decus chemo. I live in southern Illinois, USA
Hi Robbin. Thanks for sharing. Sorry to hear about your cancer diagnosis, but I'm glad to hear you have a capable oncologist who cares. Wishing you the best for treatment!
When I was told I have Hodgkin's I was 14 and I am 26 year old now. My doctor was so cold and same day I saw him drink large carton of milk like he was so calm and relaxed. Sure, he has his own life and can't burst Into tears for every patient but a little compassion so I saw the doctor was so heartless so I prayed to god one day from my heart that he gets cancer so he can have a little taste of what it's like and let's see if he will still be drinking his milk. 3 years latter he told me 5 months after i got sick he was diagnosed with lymphoma. And I nearly laughed when he told me because my prayer was answered and it was odd that god actually answered that prayer because typically god doesn't answer prayers that are bad against people unless they deserve it so I guess he deserved it. I prayed from the heart and I let him have it.
I know how frustrating that has to be, especially because you're accustomed to your previous doctor that you liked so much. I'm thankful that you had your old doctor while going through treatment/diagnosis, but still, post cancer is just as import. I hope they come back!
Your video caught my eye because I've recently had a foul experience with my cancer center. I've been really sick for 3 weeks now. When I first became so sick I had an appointment for blood work, so I called and asked the nurse if I should still have the blood work done while I'm so sick and she said no, that I should just come early on the day of my actual appointment with the oncologist the following week. Long story short, the scheduling girl ends up calling me and scolding me for not showing up for my bloodwork appointment. Even when I explained to her that I talked to the nurse and assumed that the message was relayed, she was still really rude and I felt like she was trying to make me feel really guilty instead of saying anything remotely understanding (and I'm the type to thoroughly apologise, which I did, and she was still rude). Then I ended up staying really sick and had to cancel my actual appointment with an oncologist so I had to call the same woman back and it just gave me so much anxiety. Luckily she didn't answer so I stuttered through a voicemail and never heard anything back from her and that was over a week ago. It makes me dread going there even though I know I need to stay on top of my appointments. Anyways, thought I would share my experience. I think it takes a special kind of person to work in that environment because I think most cancer patients are really sensitive and we need people that can be sensitive towards us as well.❤
Thanks for commenting and sharing, Michaela. The most important time to have a great doctor is definitely during treatment and diagnosis. So I'm grateful I had that. But it sucks I won't get that level of care for the next year during my post-cancer check ups.
So sorry to hear you had that experience. I often have that reaction too - saying sorry when I shouldn't be the one saying sorry. It's something I'm slowly getting better at. This whole experience is overwhelming enough, we don't need nurses or medical personnel to be frustrated or short with us. Especially in your instance where someone in the medical team made the mistake! Ugh. How frustrating.
We do need healthcare workers to be sensitive towards us. And I know healthcare workers are people too, and its unfair that they are harshly criticized in this regard, but it makes a world of difference to us patients when they are caring and patient. I'm sure they have their share of awful patient stories too!
Your experiences almost identical to mine, Isenda. Hello again from Hoboken. The hassles, the rituals, the routines, the endless blood tests, the red tape, the referrals, the paperwork, the invasiveness, the curtness of administrative people, the "feeling" for enlarged lymph nodes ... all of it the basically the same for us Hodgkin patients here in U.S.A. I have a new doctor too (a graduate of the University of Minsk) and I'm in the situation of quarterly checkups. A pretty decent lady, this doctor, if I may say so. I'm still in remission, still no tattoos. Stay strong!
Hey there. Thanks for sharing what it's like in the USA. Glad to hear you have a good doctor, that's so important, and I'm so happy to hear you're still in remission!
these docs see dozens of people n I guess they get a bit hardened, calloused...well, some of them do, anyway...they need to realize people are vulnerable and doctors need to have empathy....thank God you are free of cancer that's the main thing...cheers !.
That's true. I had to keep focusing on the main thing, being cancer free, so I didn't get too upset by the whole experience.
You are a total Sweetheart💖, and Doctors have NO excuse to be rude or he/she can go into another profession; I have told a few that
the respect with their Patients goes BOTH WAYS...You're FIRED~:)
It wasn't a good experience but maybe she was having a hard day? Hard to know. It makes all the difference when a health professional is kind though. Thanks for commenting, Holly. :)
Hi how you doing. My little brothers was just Diagnosed with Hodgkin Lymphoma he might been in stage 4. But he was lucky diagnosed by his heart specialist. That saw something wrong. He will start with his treatment next week. He doesn’t have the symptoms and never before complain. He is 14. He went for better treatment in Europe. I want to ask how can I support him. I’m so sad and worried for him and my mother who is with him at this moment. Is the treatment painful 😣. I want him to be positive and have the strength to deal with this. Thank you very much you are an inspiration
I hope your brother is doing okay, Jonathan. I'm not going to lie - treatment was painful sometimes but it is bearable and it's 100% worth it. He just needs lots of support and a good medical team. He should be okay, just like I'm okay now. :) Wishing you and your family the best!
Stay Strong, hope you will cure and healthy
Thanks for commenting.
Hope everything is okay
Everything is okay. Thanks for commenting!
I got diagnosed with stage 1 lung cancer Dec 2016. I had radiation treatments jan-feb 2017. All if my 3 month were good. Then at my last check up scans my oncologist though he seen something on the top of my hummus bone where it meets the scocket. My oncologist is so great he has called me to see how i am holding up till my next appointment where i am going to be fitted in s mold for my next round of radiation. I have COPD so after radiation we will decus chemo. I live in southern Illinois, USA
Hi Robbin. Thanks for sharing. Sorry to hear about your cancer diagnosis, but I'm glad to hear you have a capable oncologist who cares. Wishing you the best for treatment!
When I was told I have Hodgkin's I was 14 and I am 26 year old now. My doctor was so cold and same day I saw him drink large carton of milk like he was so calm and relaxed. Sure, he has his own life and can't burst Into tears for every patient but a little compassion so I saw the doctor was so heartless so I prayed to god one day from my heart that he gets cancer so he can have a little taste of what it's like and let's see if he will still be drinking his milk. 3 years latter he told me 5 months after i got sick he was diagnosed with lymphoma. And I nearly laughed when he told me because my prayer was answered and it was odd that god actually answered that prayer because typically god doesn't answer prayers that are bad against people unless they deserve it so I guess he deserved it. I prayed from the heart and I let him have it.
That is a terrible story
your voice is so therapeutic !! stupid rude doctors.... hate that!
Thanks Kahlia! I know right :( Rude doctors and nurses are so hurtful, it's the last thing you need when you're dealing with cancer
you would think that dodging this bullet u would be happy and thankful and just let stuff like this slide and dont get whinny about it.