Aloha, Isenda! You go! I’ve been watching your progress. I did a response to your first video about 5 years ago. I’m out over 25 years and still going strong. God bless you, stay strong, and believe in something greater than yourself watching over you to make sure you’ll be ok. Share your story with as many as you can as it gives others hope going through this crazy disease.
Thanks for your lovely comment, Chris. It's really lifted my spirits and it make me so happy to hear that you've been well for over 25 years. That's amazing.
So nice to see updates from you. I didn't know about increased risk of osteoporosis. Always great to hear from someone whose been through what I've been through and you're so well spoken. 5 years remission today for me!
Thank you so much Danielle. I often wonder if I should stop posting update videos, since I'm so far into remission, but comments like this keep me going! I hope you're well and taking care of yourself.
@@isendathinks7588No, you should! Because I just watched the one where you were diagnosed. So I came on here to see how you were doing, and the last post is a year ago. Hope you are ok!!
Hope to hear more updates from you! I just recently got diagnosed with HL stage IIE, so mine has spread from my lymph nodes into my fatty tissue nearby. I’m really scared about treatment, the after-effects of ABVD chemo, and what my life is going to look like now. It makes me happy to hear your story and see that you made it through and out of this illness. Any tips or thoughts you are willing to share is greatly appreciated! Much love ❤️
Hi Isenda. It's been awhile . Nice u posted today as a respond on my yesterday's thought of you on "where is Isenda". It's good your intense fatigue went down as I understood. I was wondering on that.
Hi Julia! Thanks for commenting. Yes the intense fatigue has gone down but I still have to manage my fatigue most days to live well. How have you been?
@@isendathinks7588 that's perfectly fine you feel the difference now comparing to what you told in your video dedicated to fatigue. I was then like - each and every word of you could be used for me too. Since I also have an intense fatigue CNS chronic inflammation caused (after chickenpox at 7yo). I really have to adjust my life to it. And always had to. Limitation is real. Groetjes (hello) from the Netherlands. Hope u post again soon.
@@julius4017 Sometimes I feel like I only manage well because I have learned to limit my activities and work and now I am used to it. But I know my fatigue is a lot better to manage than many others. Sorry to hear about your fatigue... it is miserable thing to live with isn't it? Groetjes! My ex partner was Dutch and I spent many months in the Netherlands. I am very fond of your country and people! It was in the Netherlands where the doctors first found my cancer.
@@isendathinks7588 I remember I got to know you through that video where you told your story how they found out about your illness here. That was indeed very first video I watched. I love listening you. You always come to details so good. I also do so I feel at home with ur "style". Yes yes - limiting activities is so much familiar to me. It is the key in fact. You literally live automatically on safe mode due to fatigue.
Thank you. This is a lovely comment! I'm actually planning on making a video in August with some updates. :) I hope you're living a wonderful life as well!
I have just thought of you and came back to check if you have posted since and realised I wasn't subscribed?! No idea how this happened as I have been subscribed before. Anyways, I hope you are well and enjoying your life.
I was diagnosed with hodgkins lymphoma stage IVA last october at age 30. With all rounds of chemo+immuno salvage therapy ( refractory case) they get me into remission and underwent for autologous stem cell transplant on april 2023. now its 3 months of remission for me. What are the chances of relapsing after transplant? some tips please....
Chemo brain literally ruined my life. I had to quit medical school. Could not work, fatigued all the time and felt like I lost all of my IQ. Only in the past 2 months, after nearly 5 years of hell , since going strict keto, and eating a very high fat diet, with a lot of raw dairy products, grass fed beef, and fatty fish consumed on a daily basis I feel better and I have moments in my day where I can feel like I can think again, and that all encompassing, sickly fog that wraps around the brain like a vice seems to lift. Have you also noticed that a high fat animal food diet helps the brain recover?
I'm so sorry to hear that Mofli Kitty. It's horrendous isn't it? It's so hard to explain it to people as well... I'm glad to hear that you're feeling a bit better recently but it's such a battle to recover. I don't eat keto but I've always tried to eat a balanced diet and I do eat fish/eggs pretty regularly. During my recovery, I remember taking a lot of fish oil tablets to help with my brain function. I've been taking Ginseng tablets daily for over a year and I think they've helped me with my chemo brain and fatigue. I'm lucky that my chemo brain is a lot less intense and it's pretty manageable. For me, I still really struggle with fatigue and if that's bad that's when I feel my chemo brain come back (I guess it's a sign my brain is too tired to function properly). You know, something I've thought about on-and-off is that I'm grateful I chose a psychology path (as a researcher and psychologist) because I've been able to pursue my career (in a paced way) while recovering. But I know I can never work in a hospital setting because of the bright lights, intense environment, etc. and so even though sometimes I wish I had studied to become a doctor I don't think I could've actually worked as a doctor because of my cancer experience. So don't be too hard on your self (I know that's easier said than done). Some careers allow us to recover and work at the same time, and I think some careers are too physically intensive to let us do that.
@@isendathinks7588 Thank you for the response. Yes! it is absolutely horrendous and nobody who has not gone through it can truly understand! In fact, the amount of gaslighting and denial I have had to endure over the years. even from family and friends about the condition, was just too much to bear at times. Unfortunately, the drug injured my eyes, joints, and digestive tract and gave me permanent sexual dysfunction, so it really just left me like a broken bag of symptoms. I wish I could get to the point where I feel well enough to have any sort of career. Still, I am just literally too disabled to even manage to hold on to the most simple forms of employment. If my parents were'nt financially supporting me, I don't know where I would be today, perhaps homeless? It is very frustrating because I was close to graduating from medicine and having a stable career, and from that to being in a position where you are at the mercy of others is so hard to come to terms with. I am very happy that you chose the path you did with psychology, you seem to be a great fit for it and I am hopeful you will do wonderful! Thank you for your kindness and for taking the time to respond, I honestly feel invisible at times.
Hi Nethir. It's up now! I wanted to wait until the video finished its entire uploading process (that way it gives people the option to watch it at higher quality levels). Thanks for your support.
I am so happy to see your video after long time my son is 15 he is suffered with Hodgkin lymphoma he is good now
Aloha, Isenda! You go! I’ve been watching your progress. I did a response to your first video about 5 years ago. I’m out over 25 years and still going strong. God bless you, stay strong, and believe in something greater than yourself watching over you to make sure you’ll be ok. Share your story with as many as you can as it gives others hope going through this crazy disease.
Thanks for your lovely comment, Chris. It's really lifted my spirits and it make me so happy to hear that you've been well for over 25 years. That's amazing.
Isenda. We miss you. Hope you are doing your best
So nice to see updates from you. I didn't know about increased risk of osteoporosis. Always great to hear from someone whose been through what I've been through and you're so well spoken. 5 years remission today for me!
Thank you so much Danielle. I often wonder if I should stop posting update videos, since I'm so far into remission, but comments like this keep me going! I hope you're well and taking care of yourself.
@@isendathinks7588No, you should! Because I just watched the one where you were diagnosed. So I came on here to see how you were doing, and the last post is a year ago. Hope you are ok!!
I m so happy for you !!! 👍 Greetings from Italy
Thank you!
Hope to hear more updates from you! I just recently got diagnosed with HL stage IIE, so mine has spread from my lymph nodes into my fatty tissue nearby. I’m really scared about treatment, the after-effects of ABVD chemo, and what my life is going to look like now. It makes me happy to hear your story and see that you made it through and out of this illness. Any tips or thoughts you are willing to share is greatly appreciated! Much love ❤️
Best wishes and speedy recovery to you 🙏❤️.
I am so happy for you maybe you be granted another 100 years keep doing what your doing love from Canada 🇨🇦
Thanks so much Kira.
Good to see you!
Thank you! I hope you're well.
Takecare of yourself..
That's good to hear.
Thank you!
How are you now?
Hi Isenda. It's been awhile . Nice u posted today as a respond on my yesterday's thought of you on "where is Isenda". It's good your intense fatigue went down as I understood. I was wondering on that.
Hi Julia! Thanks for commenting. Yes the intense fatigue has gone down but I still have to manage my fatigue most days to live well. How have you been?
@@isendathinks7588 that's perfectly fine you feel the difference now comparing to what you told in your video dedicated to fatigue. I was then like - each and every word of you could be used for me too. Since I also have an intense fatigue CNS chronic inflammation caused (after chickenpox at 7yo). I really have to adjust my life to it. And always had to. Limitation is real. Groetjes (hello) from the Netherlands. Hope u post again soon.
@@julius4017 Sometimes I feel like I only manage well because I have learned to limit my activities and work and now I am used to it. But I know my fatigue is a lot better to manage than many others. Sorry to hear about your fatigue... it is miserable thing to live with isn't it? Groetjes! My ex partner was Dutch and I spent many months in the Netherlands. I am very fond of your country and people! It was in the Netherlands where the doctors first found my cancer.
@@isendathinks7588 I remember I got to know you through that video where you told your story how they found out about your illness here. That was
indeed very first video I watched. I love listening you. You always come to details so good. I also do so I feel at home with ur "style". Yes yes - limiting activities is so much familiar to me. It is the key in fact. You literally live automatically on safe mode due to fatigue.
If you ever check in here, please update us. I really hope you’re living a wonderful life and all well.
Thank you. This is a lovely comment! I'm actually planning on making a video in August with some updates. :) I hope you're living a wonderful life as well!
@@isendathinks7588please update us
I’m so happy for you that you’re still healthy ❤️
I have just thought of you and came back to check if you have posted since and realised I wasn't subscribed?! No idea how this happened as I have been subscribed before. Anyways, I hope you are well and enjoying your life.
I was diagnosed with hodgkins lymphoma stage IVA last october at age 30. With all rounds of chemo+immuno salvage therapy ( refractory case) they get me into remission and underwent for autologous stem cell transplant on april 2023. now its 3 months of remission for me.
What are the chances of relapsing after transplant? some tips please....
Plz let us know how ur doing? I tried finding you on social media:(
Chemo brain literally ruined my life. I had to quit medical school. Could not work, fatigued all the time and felt like I lost all of my IQ.
Only in the past 2 months, after nearly 5 years of hell , since going strict keto, and eating a very high fat diet, with a lot of raw dairy products, grass fed beef, and fatty fish consumed on a daily basis I feel better and I have moments in my day where I can feel like I can think again, and that all encompassing, sickly fog that wraps around the brain like a vice seems to lift.
Have you also noticed that a high fat animal food diet helps the brain recover?
I'm so sorry to hear that Mofli Kitty. It's horrendous isn't it? It's so hard to explain it to people as well... I'm glad to hear that you're feeling a bit better recently but it's such a battle to recover. I don't eat keto but I've always tried to eat a balanced diet and I do eat fish/eggs pretty regularly. During my recovery, I remember taking a lot of fish oil tablets to help with my brain function. I've been taking Ginseng tablets daily for over a year and I think they've helped me with my chemo brain and fatigue. I'm lucky that my chemo brain is a lot less intense and it's pretty manageable. For me, I still really struggle with fatigue and if that's bad that's when I feel my chemo brain come back (I guess it's a sign my brain is too tired to function properly).
You know, something I've thought about on-and-off is that I'm grateful I chose a psychology path (as a researcher and psychologist) because I've been able to pursue my career (in a paced way) while recovering. But I know I can never work in a hospital setting because of the bright lights, intense environment, etc. and so even though sometimes I wish I had studied to become a doctor I don't think I could've actually worked as a doctor because of my cancer experience. So don't be too hard on your self (I know that's easier said than done). Some careers allow us to recover and work at the same time, and I think some careers are too physically intensive to let us do that.
@@isendathinks7588 Thank you for the response.
Yes! it is absolutely horrendous and nobody who has not gone through it can truly understand!
In fact, the amount of gaslighting and denial I have had to endure over the years. even from family and friends about the condition, was just too much to bear at times.
Unfortunately, the drug injured my eyes, joints, and digestive tract and gave me permanent sexual dysfunction, so it really just left me like a broken bag of symptoms.
I wish I could get to the point where I feel well enough to have any sort of career. Still, I am just literally too disabled to even manage to hold on to the most simple forms of employment. If my parents were'nt financially supporting me, I don't know where I would be today, perhaps homeless?
It is very frustrating because I was close to graduating from medicine and having a stable career, and from that to being in a position where you are at the mercy of others is so hard to come to terms with.
I am very happy that you chose the path you did with psychology, you seem to be a great fit for it and I am hopeful you will do wonderful!
Thank you for your kindness and for taking the time to respond, I honestly feel invisible at times.
I just saw you uploaded a video now, 4th jan but it's private, everything okay?
Hi Nethir. It's up now! I wanted to wait until the video finished its entire uploading process (that way it gives people the option to watch it at higher quality levels). Thanks for your support.
Welcome back! thanks or the update and as always thanks for being so open and generous about how your life has been.@@isendathinks7588
❤️❤️❤️