I am so happy you are doing this and have decided to show the world that there may be struggles, but no struggles that can’t be Worked through. My son is 47xxy he’s 9 I just Recently told him about his syndrome. He has to start t-shots soon (a year ) and is very nervous I show him your channel now so he can see that it’s all gonna okay thank you it’s awesome to see people trying to bring awareness it’s much needed!!
I was diagnosed at 29 and really wish I was diagnosed when I was a kid but it explains why I could never do a pull up in gym class when everyone else could. 😕
Living with XXY I’m working now with the Massachusetts General Hospital Klinefelter Syndrome Clinic. I lifted in my teens and 20’s but never saw any meaningful results but like MGH tells me XXY patients vary greatly. When I initially looked up the symptoms of Klinefelter Syndrome online the symptoms include less facial hair and body hair. I have no problem growing facial hair or body hair which is a curse. So I’m pretty sure I can’t do a pull up even now but I’m 6’6” so that who would be a long way to go.
Ryan I have ks and i am so happy that i can relate to your videos. :-) I have a bit of belly fat and i understand that it is part of ks. But if i keep going to the gym will it go away or will it always be there? You deserve to have 10,000,000 subscribers and likes. Every person with ks should see this channel.
I played baseball but had problems with arm strength and coordination and I literally could not do more than bunt the ball. I have little upper body strength, so basically I "hit like a girl." I was a lot better at baskteball because for some reason I didn't have the same coordination problems.
I have no idea if I have XXY but I have a lot of the symptoms, the small testes, the feminine body fat distribution and gyno, poor coordination, speech problems, adolescent sounding voice (I am 30), bone issues, ADHD and anxiety. I often get mistaken for a woman, which has me questioning my gender identity. But I was tested for Down Syndrome as an infant. Wouldn't the doctors catch the XXY condition in the process?
I was in the accident and emergency the other week and when I was asked about recent medical history and I said that I had been diagnosed with xxy they didn't know what it was, how good is that.
I am 33' years old ,KS . I want to ask you how you perform in your professional life caz I struggle a lot and still struggling. I.never took any ts for it , due to a bit poor background , I wish there will be some medicine to cure for this
I was a Chef for almost 10 years of my life and I was a photographer in the action sports industry for awhile. I have had great successes but I also get bored easily if it's not challenging enough. I never let my KS hold me back ever. I struggle but everyone struggles.
Living with XXY I have KS and have struggled my whole life with it. I have a degree, hold a job, run a small business, and own a house but none of that was easy - just figured that my teachers, parents and ex-wife was right about me and that I’m just lazy about remembering things - whatever that means. I’m divorced now and I’ve learned that lists are the key to my future success.
Many parents tell us that teachers think their kids are lazy or do not try hard enough. Each person may be different with this but we know that we struggle with day to day things but we also excel in things others struggle with, creativity and working with our Hands are amazing gifts.
I am so happy you are doing this and have decided to show the world that there may be struggles, but no struggles that can’t be Worked through. My son is 47xxy he’s 9 I just Recently told him about his syndrome. He has to start t-shots soon (a year ) and is very nervous I show him your channel now so he can see that it’s all gonna okay thank you it’s awesome to see people trying to bring awareness it’s much needed!!
Thank you for the support!!
I hope you keep spreading awareness, it's so helpful, thanks so much!!
Always!
I was diagnosed at 29 and really wish I was diagnosed when I was a kid but it explains why I could never do a pull up in gym class when everyone else could. 😕
Well have you tried to do a pull up since then?
@John Smith Thanks for sharing.
John Smith Does your son have increased total body and truncal fat?
Living with XXY I’m working now with the Massachusetts General Hospital Klinefelter Syndrome Clinic. I lifted in my teens and 20’s but never saw any meaningful results but like MGH tells me XXY patients vary greatly. When I initially looked up the symptoms of Klinefelter Syndrome online the symptoms include less facial hair and body hair. I have no problem growing facial hair or body hair which is a curse. So I’m pretty sure I can’t do a pull up even now but I’m 6’6” so that who would be a long way to go.
@@pulseimages I can’t grow any facial hair either at 32yo, but my test is in the normal range... I’m confused.
Thanks for posting, just learned a friend has this. Glad to learn more about it :)
Glad it was helpful!
God bless yall
Ryan I have ks and i am so happy that i can relate to your videos. :-)
I have a bit of belly fat and i understand that it is part of ks. But if i keep going to the gym will it go away or will it always be there?
You deserve to have 10,000,000 subscribers and likes. Every person with ks should see this channel.
I can’t say yes or no. I have belly fat too, gym and eating healthy are the way you loose weight.
Nutrition and exercise are the only way. It does require more effort and for us to work harder but with determination we'll get there.
I suppose you will get rid of it when you start TRT... and clean eating
I played baseball but had problems with arm strength and coordination and I literally could not do more than bunt the ball. I have little upper body strength, so basically I "hit like a girl." I was a lot better at baskteball because for some reason I didn't have the same coordination problems.
Thanks for sharing!
Hey, just wondering if you workout 🏋️♀️ and is this beneficial when doing TRT therapy ?
Always!
Great channel Trt bones muscle strength
Thank you so much 👍
I have no idea if I have XXY but I have a lot of the symptoms, the small testes, the feminine body fat distribution and gyno, poor coordination, speech problems, adolescent sounding voice (I am 30), bone issues, ADHD and anxiety. I often get mistaken for a woman, which has me questioning my gender identity. But I was tested for Down Syndrome as an infant. Wouldn't the doctors catch the XXY condition in the process?
You need a karyotype test. Go to your doctors and tell them you would like to be tested for Klinefelter syndrome which you think you have.
@@LivingwithXXY ok thanks I will. I forgot to mention that I am short so I’m not sure that I have it but I do have a lot of the other symptoms.
I was in the accident and emergency the other week and when I was asked about recent medical history and I said that I had been diagnosed with xxy they didn't know what it was, how good is that.
Most people do not know what it is, that’s why we are trying to educate the world and spread more awareness. Did you tell them about it?
I am 33' years old ,KS . I want to ask you how you perform in your professional life caz I struggle a lot and still struggling.
I.never took any ts for it , due to a bit poor background , I wish there will be some medicine to cure for this
I was a Chef for almost 10 years of my life and I was a photographer in the action sports industry for awhile. I have had great successes but I also get bored easily if it's not challenging enough. I never let my KS hold me back ever. I struggle but everyone struggles.
Try taking test and see if it works for you
@@BS-si6pj to which doctor should I consult ?
@@samtube12 Endocrinologist or urologist
@@BS-si6pj thanks a lot , I didn't know this before , now I will consult , thanks again
Wait - executive function is an issue with KS?
Yes it’s a major one for a lot of people we have met with KS. Ryan says creating lists has really helped him. And sticky notes.
Living with XXY I have KS and have struggled my whole life with it. I have a degree, hold a job, run a small business, and own a house but none of that was easy - just figured that my teachers, parents and ex-wife was right about me and that I’m just lazy about remembering things - whatever that means. I’m divorced now and I’ve learned that lists are the key to my future success.
Many parents tell us that teachers think their kids are lazy or do not try hard enough. Each person may be different with this but we know that we struggle with day to day things but we also excel in things others struggle with, creativity and working with our Hands are amazing gifts.
Pleez help me sir