I've never seen a more relatable video. I never got an official diagnosis, but I'm sure I have it. I'm also black, 6'4", a musician, and always called different or weird because of my docile nature. I've always had questions growing up. Trying to figure out why people thought I was different. Kind of always had low self-esteem because of my awkwardness. I was always the tallest in my class, but I was terrible at sports (except for football I could've been a good WR but I HATE contact). Once I hit about 10 or 11 I developed pseudo gynecomastia and would get teased about it pretty much into my adulthood. It was traumatizing, isolating. I developed depression because of these factors and had a hard time making friends. I still am afraid at 22, of having a gf because of what she might think of me or especially if we were to ever become intimate and I have to take off my shirt. I tend to sabotage myself whenever I sense a girl is starting to like me. It's horrible. I was in a brief relationship for the first time last year. We didn't last because of timing. I'm kind of glad we never got too in depth with our relationship. Seeing this, mentioning that you have a wife, knowing that there IS someone out there that can relate to the nuances of my life is comforting. I thank you for sharing your story. Maybe I'll have the confidence to share mine someday
Thank you for viewing my video and reaching out. It takes courage to open up like that. I 100% understand and have lived what you're saying. Even though my life now is WAY better than it was even a year ago, I still struggle with things like body image and depression. For example, I gain weight easily and tend to stress-eat, and I still get depressed sometimes about things like family and underemployment despite having college degrees (That's another story). Of course, the idea of possibly never being a father is also haunting at times. I can't tell you how to completely end the struggle since I still struggle myself, although not as much anymore. I do know for a fact that you can change your life for the better. Challenge yourself to improve your circumstances. Appreciate the good things and people in your life, and realize that one-sided, negative interactions often come from folks with a bad spirit anyway. Trust me. I know what it's like to be "different" as a black male. You can eventually embrace who you are like I am now.
Do you have a website or something for the African America people ? Are there any groups or anything for us? I have been looking for AA people with KS , just to know how you all cope with life? How do you deal with work and stuff?
@@luisasahra8857 what does being a musician have to do with KS? Interesting how that isn't a question. But to answer your question, was just relating to the person. Just like with mentioning music
Thank you for this video, it took a lot of courage. I started noticing this in my grandson over a year ago, he's 12 now. Now I understand so much better what he's going through. He's always tells me how nobody wants to be his friend, how depressed and angry he is which I couldn't understand because he has everything. But, I worried because of his chest, stress eating, all the symptoms I read here including no hair. He wants so desperately to have pubic hair and go through puberty that that's all he can talk about. I can't get his mother to get him help or even recognize that he has a problem. I'm his safe haven. He spends every weekend with me and now I'll be more supportive because now I understand all he's going through physically, emotionally and mentally. Thank you again and God bless y'all.
Sure thing! I know firsthand what you say about your grandson. Middle school years were rough for me too both inside and outside school. It would be good to make sure that he gets into a nice expressive outlet. I think that studying meditation will help as well. It continues to help me stay in control. 🧘♀️ 🧘♂️ I know firsthand that stress-eating often stems from lack of fulfillment. It is a struggle of mine that I have curbed but still struggle. Make sure that he gets the chance to succeed at something and celebrate, however small. Victories are always good for self-esteem. Fitting in with a whole bunch of people does not matter anyway. I know that I will stomp on toes with this comment, but I find that people who have a whole slough of "friends" tend to be toxic versus people who keep a close, balanced circle. Many folks mistake riffraff for friends unfortunately. Social media is a huge example of this. The irony too is that many folks who judge for petty reasons often want tolerance that they cannot even give to others unless they fit a certain mold. It is good for him in a way. It sounds like he almost exclusively attracts high quality people like grandma. Continue to guide him in building quality relationships, and it will be fine.
Roy, solid video. Thanks for making this. I too have KS. I was diagnosed my sophomore year of college (22 yo). Currently, I am 36. I appreciate you putting this video out. Well done!
Hey.. I got the same situation but I think mine is worse than yours!! I'm 24 now but I don't have a beard, less facial hair, small dick, breast like, 1small test etc. I haven't get any kind of medication and I am already psychologically destructed especially in my African environment!! It's so hard for me man!!!
Ryan and Roy, I’d be curious- with a lot of parents now doing genetic testing on their unborn babies (which I don’t understand), do you think it’s beneficial for parents to know this pre-birth? New to the conversation, I keep thinking it’s not worth knowing until much later- do you agree? I suppose it can explain some academic struggles and to use testosterone is helpful (teen years?) but I guess I’m a little saddened by the moms with babies seemingly stressed over the info already. Thoughts?
There’s nothing wrong with being introverted or not hyper masculine. I’ve always been drawn to men who are not super aggressive. I feel closer to men who are less aggressive and have a reserved quality or even sensitive. I really like that. My son is going to be 3 years old and has XXY. Thank you for doing this video. I don’t find you abnormal at all. You are attractive and seem very nice just like my little boy. He’s beautiful and perfect. :)
My boyfriend of 3+ years has KS. He didn't find out till he was about 20-22 I think. It was hard for him.. Especially since he found out he could never have children.. That was extreamly hard for him. And he finally realized why his body was the way it is. It never bothered me.. And he is a great dad to my son (from another relationship) he was always so insecure about everything , but he's also SO happy all the time.. He has all the marker for it.
Hi Jessica, im aware that most XXY are infertile. But that dont really stop them from having kids isnt? There are ways to extract their sperms from their testicels
I have KS and was diagnosed back in 4th grade (I'm currently 24), doctors always kept telling me the phrase "don't you want to be normal?" I took medication for 2 months then stopped. Can't explain why I stopped but I can say I'm satisfied with how my life is going. The mood swings took awhile to get past, the struggles to keep up with my friends for sports and all my experiences took awhile to get passed but I'm happy with my life. I did have my low times in life, but I also had my high times. Now a day's I'm a happy go lucky guy. Personally I don't understand some things such as certain emotions or feelings. My pain tolerance is high up there so I feel little to nothing. I'm not the strongest after my whole highschool of working out. And I wear a smile wherever I go. Currently I'm the strongest person at my warehouse job, it's a delivery place so I'm one of the package handlers. The 5 things you could possibly do is unloading, sorting, washing vans, scanning & stacking. I can manage to lift 150 lbs above my head on a daily basis, I'm one of the fastest unloaders and the best stacker on the shift. I wear shorts year round (I'm in MN), so the temperature gets down there. I'm currently working on getting promoted to a lead position. I'm pretty laid back, but can get serious if the situation asks for it. My current idea of life (for what I want for the future or later on) is I'm aiming for a 'simple serious lifestyle of solitude' which the way I interpreted it was I will most likely be alone throughout most of my life. But hey that's life. I'm not interested in the idea of marriage or the relationships. I'm just not interested in any gender, but I play parts to be able to fit in wherever I'm at. Sometimes I don't feel human. Sorry if I'm rambling on, I know there will probably be misspellings here and there but I tend to lose track of my thoughts as I type. I have bad memory and a bad way to put what I want to say into words. But this is who I am with whatever was put above this. Have a good/night and enjoy life even if you got to fake it at times :)
Thanks for reaching out! It's something how all of us are so different while also having so much similarity.At the end of the day, we are who we are. Happy New Year!
I don't know if I have KS but as I read on the internet, symptoms are the same as mine so I may have it. You know what's even more worse is that I feel awkward everytime I'm in a social situations and literally look awkward (on how I move, speak etc) and physically look awkward. As I growing up, this gives me hard time to deal with this, really gets me upset and depressed makingbit even worst knowing that I have this condition. But yeah, that's life. Thanks for the vid man. This helps me keep in track to not be depressed again.
@@maruko8324 they're designed to cure that specific disorder by a scientist, there are RIFEs for lots of conditions. Look into it, because it does cure KS
I see I'm very late to the show, but I too am a black man with KS. My struggle's are much deeper than some because all my life I had to dodge the teasing and the bullying at a young age (around 7 or 8). My parents and some family members would tease and crack joke's about me around my friends. My friends would take to jokes and say them around teachers and some teachers also join in on the fun. Never taught to be tough, never told I could be great in life, my mother the most took me to many psychological youth testing center's to figure out why my focus of school and physical wonders off and on, and I notice to my mother (in her eye's) I seemed unwanted [since she always brought up about the story of following the doctor's suggestion to have me aborted...]. All the stress and pain, not able to socialize and meet friends quickly, wasn't the out-going female chaser in my high school days' like my other male friends, late to the puberty party, always shy, very docile, very "to myself" even as an adult (even though I want to strongly tackle the world like an pure Alpha Male)... its always this brick wall I'm just mentally too weak to climb over. And it just adds to the pain. Just made a video of 'My Life with KS' and the physical appearance show's very much I've given up a long time ago, but it's just time to give some awareness to the good/bad/and ugly to this subject. For a 1 out of 500 to 1 out of 1000 males born with KS, that is a super common syndrome to be living with and 3/4 of the world probable doesn't know about it.
Thanks for expressing that. I have firsthand experience of the same adversity during my pre-highschool years as well as my college years in Music School to a certain degree. People can be very catty because of them projecting their own lack. That being said, we also have to think how to improve ourselves, especially in adverse circumstances. I know that's easier said than done as I'm still in the thick of the path myself.
OMG. You just described my 16 year old son . He has not been tested, but we all know something is different about him. He has all the attributes of KS you mentioned. I will definitely have him tested. Thank you and well done.
I'v found this now, as i was diagnosed with mosaic version of this. Man, i wish you strenght and luck. It's such a mature and good take on this condition from you, god bless and whatever happens don't give up.
Thanks for the vídeo Roy, i just talked about you in my Klinefelter project school, and how you managed to accept your difference in a wonderful way, it's very inspiring! Hug from Brazil!!
You seem like a sweet nice young man. Wish I was taller! I’m at least 40 years older than you and only figured out a few months ago I’m on the spectrum! I have what use to be called Asperger’s. Makes so much sense to me. Very glad you have someone special in your life and you didn’t have to wait many many years to get help.
Being short a chromosome is as much a struggle as having an extra chromosome. Turner's syndrome is when females are born with only one X chromosome instead of 2 X's. No Y's are involved. It really creates a lot of physical problems. Keep taking good care of yourself. Thanks for a good video!
Thank you for your openness. I have known for quite a while and am having a very hard time with it. I am continuously tired, listless and I also get quite irritated with my own head.
Hey i was learning about this in school and i wanted to see what it was like for someone with the syndrome you seem like a pretty normal guy to me so keep pushing and dont let the haters tell you what you are
You seem like a sweet nice young man. Wish I was taller! I’m at least 40 years older than you and only figured out a few months ago I’m on the spectrum! I have what use to be called Asperger’s. Makes so much sense to me. Very glad you have someone special in your life and you didn’t have to wait many many years to get help. P.S. Seems like many people have this or that condition, but we are all really just humans. And yes, I’m quirky too!
Hey.I am medical student. Great video :) but I would recommend that you get the karyotype done.There are many reasons causing decreased testosterone levels. What if you have some other reason for your hypogonadism? what if your social problems are just part of your personality and your tall height is just genetic.Good luck for the future! :)
I definitely have Klinefelter's syndrome. The karyotype test would just be redundant. Even if I didn't have the condition, I would still be getting similar medical treatment. Testosterone doesn't just concern fertility. I'm sure you know that though. Social problems are a part of life. I'm sure you know that every interaction with someone isn't going to be productive. I'll admit (with or without Klinefelter's), it can be one-sided or a "two-way-street", depending on the situation.
Hello, I am a KS male. I wasn't diagnosed until I was 16. It is def a struggle to deal with in life. The emotional state is the hardest thing I deal with on the day to day. My impulse control is non-existent. Have mood swings that I can't control.
Codex leet I'm glad you got diagnosed pretty early in life. It isn't easy on my end either. Believe me; I know what you mean with the mood swings. I fight every to make better of my situation.
Codex leet im 15 and have this but i don't know how to tell mye mom beacuse she is so proud of her son but i really want treatment before it's too late
Cryotr oh, dear, I am a mom, and I am sure your mom would want the best for you. You are no less her son whether you have the condition or not. The sooner discovered, the better. She will be more than eager to help, I am sure. Our children’s well-being is all that matters to us, moms.
Getting back again on this video because someone bumped my comment. How is the life man? Hope you doin well! As for me, I've got everything on the line (except work). I don't feel or look much awkward anymore on social situations (there are still instances but it can pass lol). There's also a time that I cannot express my feelings or thoughts into words because I have issues with comminucation but not that severe as on my adolescent stage. I attribute that to people around me who love and accept me as I am (even tho they don't know what I'm dealing with). I'm very thankful. Enjoying and cherishing the present moment and not thinking too much on how I suppose to move or talk is what improved me and by that, most of the time I came across as natural and not awkward. (restricting movements because of self concious is what made me awkward. it's a vicious cycle!) Anyways man, you helped me in a way to understand myself. You are one of the people I give my gratitude towards to where I am today. I really hope you succeed in your career. Yo I like music too and art and stuff! Peace man.
Thanks for your kindness. I'm glad that I assisted. You seem quite motivated. If you want to take it to the next level and permanently end cycles, I recommend studying yoga 🧘🏽♂️ and Dharma 📖 I know it sounds out there, but it has greatly helped me even better than Western Philosophy/psychology. Stuff like 4 Noble Truths, Diamond Sutra, Heart Sutra, and Dhammapada are great.
You can’t “self-diagnose”. XXy(Klinefelter), Xyy(Jacobs), and XXyy, all have overlapping symptoms. Also, you could be mosaic. That said, I’m pretty sure I have XXyy. Any way you cut it, it’s just nice to have an explanation for why I’m the way I am. 🙂 Thanks for sharing your story.
Hi Roy, very nice video I am sure people will benefit from watching. I am not sure if I should say this, but I think you should do a genetic testing to confirm the diagnosis. There are some other conditions where is can be incorrectly or differentially diagnosed as Klinfelter's. Also the genetic testing (or karyotyping) will show whether you are mosaic for the condition meaning that not all of your body cells have XXY so maybe half of your body can be normal which could increase the chances of fertility and having a kid. I would recommend you do a simple Karyotype which should be very expensive. By the way I am PhD student studying medical genetics so it is kind of a scientific suggestion and this is :) I am not saying your doctor or symptoms don't make sense but I would really recommend you do a genetic testing because Klinefelters is genetic disorder and hormonal/biochemical tests should not make a final diagnosis, especially that Karyotyping is widely available. Best of luck Roy
maxsima2 Hey. I appreciate your concern. I would like to get a Karyo type test to know the fine details of my chromosomes and genes. I do plan plan to do the test when I am ready.
hello i'm 67 years old i've none i was different from my early childhood your video is good i take Androgel each day strange to see how many men have this
Thanks for posting this, it helped me calm down a bit because i have been depressed since I knew i had this syndrome. I knew i have this syndrome because we discussed it in our class, all the symptoms are spot on for me: I had less body hair, slightly enlarged lip for a male, man boobs and small reproductive system. I got really depressed for almost 3 years now when i knew i can't reproduce. I thought to my self "even if I had a wife, how would i explain that i can't give her a child", "how would i explain it to the doctor if i go get a medical exam, it will be embarrassing etc.". up until now i feel really REALLY sad about my condition and worse of all my family, more importantly I don't know how to tell my parents about my condition
Orange Pickle I understand. I have had depression long before I figured out my Klinefelter's. My diagnosis was and still is difficult to accept. The infertility is definitely one of the worst parts of the condition. I can't tell you that things get easier per se, but I can tell you that you don't have to feel ashamed about having Klinefelter's. Seek medical and psychological help. That helped me. We don't get to choose how we're born, but (for the most part) we choose how to live our life.
Sweetheart don’t be afraid. Have you been diagnosed by a doctor? Or do you just suspect that you have it? I urge you to tell a trusted family member that you have suspicions about having this. You definitely need to go to the doctor and have the test done and if you do have it then they can give you the testosterone that you need. The earlier you get the therapy the earlier they can help you with the symptoms. My little boy is XXY and he’s 3 and to me he is beautiful and perfect. I’m sure your family members love you and would want to help you in every way they can. If anything his condition is my fault not his. This condition is likely to occur in women who are older when they get pregnant. I was 40. Please don’t be afraid. My little boy is always getting compliments on how adorable he is. No one out there knows he has it and I’m sure no one knows you do either. But, going to the doctor the sooner the better will help you with your condition. They even have ways of saving your sperm in case you want to have a child. It’s no different than women who save their eggs.
Jennifer Fields Hi there! As i watch this video i was reading through the comments I have a son who was diagnosed with KS at 7 weeks old. If you have any questions let me know I'd love to talk or email.
Thank you for sharing your story. I got the diagnosis 9 years ago. I can relate to many things you say, about how people thought about me being different/strange - I always wondered why. Testosterone was life saving for me during a tough time with depressions .. now I'm strong and healthy
24 year old KS'er here man; you aren't alone. Thank you for sharing your experiences. Perhaps we could chat on the subject sometime? I have a public playlist dedicated to videos on research/studies on 47xxy/klinefelter's ( trying to raise awareness ) Is it ok if I add your video to this playlist? It is public, so I don't want to add it on and bring you attention if it is unwanted. Subbed my man; your experiences are shared, you aren't alone!
hello mate,I write from spain,& me too have got your illness,I do not know how to wear this,I think I will have to live only the rest of my life, I do not know if someone here who suffers from klinefelter, has a girlfriend, I see it impossible and that is the saddest.
hey, when i was 18-19 i was diagnosed, i had a girlfriend at that time She was with me in everything, and than we broke coz emotional problems, but that did not stop the dateing, i know the happines to find some one that wants u even if u have KS, there is some one out there for everyone
Thanks for sharing. I'm 46 and still officially undiagnosed, but 99% match on all the symptoms (and as you know, it's a long list). Just glad I don't have an intellectual disability (other than mild ADHD) and I corrected some of the physical weirdness caused by late puberty to some extent by using some testosterone and anbolics in my early 20s. unfortunately it was too late then to rectify the lacking bone development, mainly apparent in my forearms and hands. After 20 years of depression and 10 years of finding refuge in drugs, I did manage to build out a decent life and career. Been happily married for 13 years. I have recently started TRT because my testosterone kept meandering in lower regions of normal range and am currently fitter than the large majority of my contemporaries. And I never wanted kids (which might be a consequence of always having felt a bit immature), so no issues there. So just want to say, even though I would have preferred not to have this, it's possible to live a full life. It might be worth for some to try and address lifestyle and hormonal issues where appropriate. Oh yeah, and don't do the 10 years of drug use like I did. Doesn't help with anything.
Sorry for my late response. Thanks for reaching out. Yes indeed... I have been living a full life since I started this video. No worries. I haven't done the drug thing either. Besides testosterone, I rarely even take Aspirin. Much love to you!
i am a ks male...and i was diagnosed age 32 the time i tried to have a family...and i figured out... it dont work as easy as it should...so i just dont worry of it i just live it...
DJVULGAR That's about where I'm at. One thing has become clearer to me since diagnosis. There's more to life and manhood besides making children. Hang in there buddy!
i did take the life further, i met a beautiful woman with a kid and i married her and adopted her child...today he is my son and im proud that i went that way,....
Thank! I'm glad that I could help. Yep... adjusting to the truth can be uncomfortable at first. However, Klinefelter's is very much a livable state of being. As I said in the video and previous comments, take your health as priority,
Just go through life with it..your body will adjust...medicine ain't the same as what your body produces..side effects are imminent..just love yourself, and do well like you always have...if women dont like it .leave em
I've had my nuances like many people. That being said, my condition has marginal (if existent) affects on my learning abilities. After all, I do have a bachelor's and master's degree from 2 respectively tough universities. Many others with Mosaicism don't possess much abnormality when it comes to education.
It sounds like you don't have Klinefelter's Syndrome. Even if you did, there's no need to be depressed or suicidal. It's not a debilitating condition. The worst for me is emotional sensitivity and reduced fertility. Even those aren't so bad, and are rather advantageous. I'm living proof. My wife and I even had a son (who looks just like me) earlier this month. Matter fact, I'm rocking him to sleep right now lol. Trust me! It beats being self-absorbed with substance abuse issues like most folks in the U.S. nowadays 😆. Value and prioritize the life that you have with your baby girl.
Hi Roy, nice video! I just have to say that KS refers to males, but 47XXY can refer to some females too. If you search for them in the literature you'll find about 19 xxy female cases. Be good.
Hi there, I ve been diagnosticated almost 2 months ago. I m xxy and I have klinefelter s syndrome too. Now I m 27 yo. I have a normal live. But Its tough to go through these. Could be great to create a facebook private group to talk about it. Take care :)
Sure thing. Feel free to Friend Request me on Facebook. My profile photo is the same as the one in my TH-cam icon. It will have my middle name (Kenneth) on the page.
I seems to have all those physical attributes of KS and I'm also extremely shy but my upper body strength is kind of strong as i have no problem lifting heavier weights and I'm also only 5'8. I'm confused right now.
I am in love with a guy with Klinefelter's syndrome. He is very quiet and less emotional. I wanted to know how the people with the syndrome experience relationship with woman.. I cannot explain it but i am interested to know more about Klinefelter syndrome.
Hey. Sorry for the delay. I'm glad to know that you are interested. I commend you for loving someone with the condition. I can't speak for other people with the condition since I am the only person who I know with a Klinefelter's diagnosis. I will share my experience. Growing up, I was always told that I was "different", but I wasn't exactly sure what it was. Truth be told, it can be very awkward at times. In my case, I am actually a very extroverted person, but I "code" for normal and avoid instigators/riffraff by being quiet or stoic in certain social settings. I equate it with the saying "don't throw your pearls to swine". Regarding women, I think the condition is a plus in certain ways. Men with Klinefelter's tend to possess ample empathy and care toward others; maybe, it's from having so much estrogen. My wife even thinks that I'm overprotective sometimes. The women who I attract as friends and mates tend to be bookworms and artists. Maybe your relationship is similar. I hope that I helped.
Been doing a lot of research on klinefelter recently and watching a lot of vids because I’m quite paranoid about it. I’m worried I may have it because I have had ‘moobs’ for as long as I can remember. Been to the doctor several times regarding it and I was always told they’ll eventually go away as I get older even though I was already in my late teens when I went about it but they could never be bothered to check my testosterone levels. Every now and then people will comment about it and point out that I have them. They’re still there and I’m 23 now. A few things going for me though is that I’m very hairy due to my med roots. I’ve got a full chest/stomach of hair and I’ve had facial hair since the age of about 15. I keep reading men with XXY struggle to grow body and facial hair but apparently not all men so I’m not sure. Have you ever had the ability to grow body and facial hair or do you just shave? I started puberty fairly young and my voice deepened at the normal age and I was having sex young. I always had a very high sex drive as a teen and was in and out of relationships with a very healthy sex life but this has dipped off in recent years. I’m hoping this is purely because I’m getting older and don’t have as much testosterone anymore I also go through stages of depression fairly regularly because I can’t seem to help fucking things up for myself all the time so this won’t help with my testosterone levels I’m just hoping I’m normal because the thought of not being able to produce sperm and have kids kills me. I’m about 5’11 / just about 6 foot by the way and don’t think my arms and legs are abnormally long but I do gain weight very easy and it all seems to go to my stomach and hips which are supposedly ‘feminine’ areas so I’m not sure about klinefelter, sounds ridiculous but I’ve even been measuring the length of my tesciles lately just praying they’re within the ‘normal’ range. I’m hoping I’m just paranoid I’d say I have a very confident and out going persona. A lot of girls have called me cocky growing up but they seem to be attracted to that trait it’s always worked for me. I know this definitely isn’t a trait of XYY (quite the opposite in fact) but I do think it’s peculiar that I’ve always suffered with moobs and gain fat in the areas I mentioned. I am certainly ‘curvy’ for a guy I’m just hoping this is due to Mediterranean heritage. Do you think I tick enough boxes for someone suffering from XYY?
Check with a medical professional. There is no big need to worry. Klinefelter's Syndrome is not a debilitating condition in most cases. The worst parts for me were diminished fertility and intolerant people. I am blessed to have overcome both. You can overcome obstacles too.
Roy Miller Hear me out. I’ve been going back and fourth to urologist for last 2 months getting blood work done because I have concerns with my development. I thought I had klinefelters or Turner syndrome but turns out my t level is 500 and the urologist said I have no form of hypogonadism. But I’m confused because normal puberty changes that are supposed to occur in males during early teens didn’t happen to me. My genitals haven’t enlarged , my voice hasn’t really deepened & I don’t have noticeable Adam’s apple. I do have pubic hair , armpit hair , thigh hair , ass hair & my gotee is staring to come in. According to doctors the first sign that you’re entering puberty is when balls get bigger and mine haven’t yet so does this mean I am a late developer and it will happen eventually ? Because my t levels are normal and I have no kind of hypogonadism.
Dude.. You seem like a really cool guy and I'd love to chat sometime. I'm going to be tested soon. I had a testosterone count of 150 at 30 years old and have always been kinda timid. I will update with test results, but I identify with you quite a bit. A fellow musician(guitar) Though Baseball is the only sport I've ever been good at, and I am quite graceful when it comes to coordination. I will get back to you with results.
+ Transit / Ara I'm certain you'll be back on this page at some point. i feel regret for not replying to your comment sooner. Given the sensitivity of the issue, I understand the delete. I can't say enough though, GET INTO CONTACT WITH THOSE SPECIALIST COMMUNITIES There is no reason for you to be suffering in silence. Reach out for help. Fuck the embarassment. We xxy's, regardless of subset; have been quietly hurting. FUCK THAT BULLSHIT We all gotta yell, get our voices heard to get proper treatment. There's less of your subset than any of the others. YOU HAVE TO GET YOUR VOICE HEARD BY THE RIGHT PEOPLE. If not for the good of yourself, for the future xxy's that can't receive proper treatment because of your situation. They deserve their chance.
DrLoud RS I agree. You have to take your health as priority and ignore the stigma. You shouldn't have to apologize for getting help that you need. That's something even I have to keep telling myself.
i just want know how much congnitive disability and speach disorder is attributed to KS? i may identify with all other features present in typical male having KS,the one thing that worries me alot is the inability functioning of my brain.i can't seem to think straight or pay attention.i had poverty of speach since i can recall,but seems like it is getting worse as i grow old,and am only 27.
I'm not sure. It sounds like your condition maybe indirectly connected to Klinefelter's if at all. Either way, you should seek medical attention for it. A doctor, nurse, or counselor/psychologist could help. Best wishes!
Jeremiah 1:5 KJV - Before I formed thee in the belly I knew thee; and before thou camest forth out of the womb I sanctified thee, and I ordained thee a prophet unto the nations. Matthew 19:12 KJV - For there are some eunuchs, which were so born from their mother's womb: and there are some eunuchs, which were made eunuchs of men: and there be eunuchs, which have made themselves eunuchs for the kingdom of heaven's sake. He that is able to receive it, let him receive it.
A state of being.... I like your way of thinking. I have Kleinfelter's Syndrome. I am NOT confused about my gender. I am a straight male who dreams of marrying a woman (who was born a woman). But I am still single, as I have been most my life. I am 6'3", 185 lbs, sparse facial, arm and leg hair, yet have hair down south. I have massive depression and anxiety. I am very coordinated. I have taken many dance classes, etc. 115 IQ. Infertile and low self esteem. Muscular and a deep voice. Small testes, but normal penis. No problems with libido or erections. I think I am Mosaic. I took testosterone for awhile, but it made me sick and also angry. So I stopped. Your video made my day. Your outlook is inspiring.
@ Eric Rider.. are there varying degrees of this? How can they say you were born a woman if you have normal penis? Do you have ovaries? Not being hateful or poking fun at all, just now learning bc i love medical info.
We share many similarities. The big difference is that we're the same height, but I'm about almost 50 pound heavier lol. Also, I'm not very coordinated except when it comes to doing saxophone or martial arts. I don't know my IQ. I personally think IQ tests are B.S. Most written tests rarely allow you to showcase applied knowledge anyway. I still take my testosterone, and I thankfully haven't had a bad reaction. I try to induce testosterone production by doing cardio and labor whenever I can. Thanks! I'm glad my video inspired you. Hopefully, our discussion is bringing more understanding to Klinefelter's Syndrome. Maybe there will be better health treatment soon.
There are variations. For example, Mosaic means that not all the cells have 47 chromosomes. Some may have 46 chromosomes... hence, the name. Klinefelter's syndrome put's you in a grey are with gender, but it doesn't make you feminie by virtue. That being said, there are some folks with Klinefelter's Syndrome who are born with gonadal differences. In my own research through medical websites and social media, I even found out that many trans women have Klinefelter's syndrome. Personally, I definitely have Klinefelter's, but I've never had ambiguity with gonadal differences or gender identity. Best wishes to those that do.
SpydrKat Hey man! Thanks for reaching out! That's an early age to figure out having an extra chromosome. I wish I had known earlier in life. I'm sorry that you can't do hormone therapy. I know firsthand that it isn't easy dealing with hormonal imbalance. Even as I'm writing this, I feel unbalanced. I need to be more consistent with my meds :). I also know it isn't easy having nuances like chromosomal abnormality in addition to being POC. For me, it sometimes feels like another strike against me in addition to being Black. I'm curious, do you live in the US too?
Roy Miller, thanks. Memory is a huge issue, if I recall correctly. I am also concerned with helping : focus, energy, self motivation, over sensitivity, self control, speech fluency, competitive pride, desire to exercise. You obviously got control over these years ago. But any idea if T can help these. But let me focus the question on: speech, focus, and self discipline. Though the speech solution is probably more about the self discipline to practice.
Different scientist say different thing, but nothing really seems like a solid idea. Personally, I think my lack of coordination comes from the hormonal imbalance and my frame being unusually full from the waist down. I have never had a thigh gap even at my thinnest lol. My legs are still the last place that I lose weight, especially around my hips and thighs.
My boyfriend is the same way. His body is exactly shaped like his mother’s. He’s 5’7” 309lbs he will eat junk food until his body rejects it and he throws up. He can’t remember much of anything. Like in school especially. We recently had a son and I love him so much. I keep saying I want us to seek bariatric help. He only talks about doing it when something flares up. I want to mention KS to him but he has yelled at me many times if I input during him discussing school or his health. He used to have seizures as a child and the last one was around 11. Now he is 25.
I know firsthand that it's difficult to think let alone accept. That being said, you deserve to know the truth. Real courage is working through our fears.
I know based on the description of KS I have it: hips, thighs, ass, and gynecomastia; only difference is I have a normal size dik and testies, facial hair, and I'm 5'7!
How can I endure the same thing that I suffer, as you do to keep going, have you managed to have any relationship with any girl with this that has happened to us?,I learned about this a few months ago in adulthood and for me since then, I guess like everyone, I just sleep from the depression that I have.
Kevin barreto martin It gets better with time, but I'll admit that it's difficult to accept sometimes. I know for a fact that you can still have a healthy romantic relationship. I am a married man. in fact, it was my wife who recommended that I get a diagnosis for Klinefelter's. She even motivated me to do these videos. Never doubt that you can attract good people in your life.
Thank you very much! I am a med student writing a summary of different genetic conditions for my colleagues and me, would it be ok for you, if I included your picture? I would put your video as a link in the reference section, ofc!
Hi i just found your video and after seeing it i really think im xxy im 6"15 while my parents are both 5'6, i have also gynecomastia, dyspraxia and im shy. But im 18 and my puberty is quite over so idk if taking testosterone is worth because of all the side effects..
You should check with a medical professional before anything else. It's OK to go to the doctor to check something, even if you are a bit scared. I know that I was. Also, since you are male, puberty really doesn't stop for us until our early 20s.
It definitely is okay. The worst part about steroids which was infertility wont affect you . However u might lose all chances to be a dad under that condition. And your body doesnt produce test at all . So if you take TRT low doses you wont have any negative side effects of Klinefelter or steroids . Best middle ground
I don't have a website 😕 😔 🤭 Check out AXYS. They have a website and even Facebook Groups for support. They talk about Klinefelter's as we as other genetic variations.
I have something very similar to Klinefelter but I'm 5'4 in height, am 25 years old, am almost very hairy, am balding at the sides of my hairline, has a hairline that bends into different shapes, am a dancer, and I don't take t-shots-don't need to-but I would die without insuline shots. You see, I have type 1 diabetes, so I take vaccines filled with this clear saline like liquid called insuline for it everyday, at least three times a day. I insert the needle pen into my belly or my outer thighs, no other place is appropriate for insertions. Being a gay man, I embrace my flexible hips, small gut that makes my bellybutton look like a smiling mouth, my thick round thighs, my medium-sized jiggly butt, and the fact that one of my shoulders is broader and tiny bit stiffer than the other which is tiny bit looser-great at shoulder shimmying- but I'm insecure about it for it looks almost childlike-delicate and has a bony peg at the back corner of it. Being sexually intimate with gay men, gay ex bfs of mine - they saw me as their young thick sexy hairy wise father-figure husband material daddy. Yet they always still have asked me or silently pondered "why didn't you tell me you were secretly a woman? I respnded" You think I'm a woman cause of my bony hips and pelvis? cause of my flat chest with pointy fatty nipples?". I always responded with "They're fatty nipples not pseudo breasts. Women have meaty hips and my hips are just bone and muscle!" That's just how I saw my body and still continue to see it, as the body of a man with pointy nipples and hips wrapped in a soft layer of muscle yet powerfully flexible that are separated from surrounding skin by "hip-dentures". I don't believe myself to be intersex being that I always had only external and internal male sex organs. And yes, I was born with a straight-haired mullet when I was pulled out from my mama, yet both of my parents had curly hair as kids; mine then naturally curled a year after I was born. Without taking hormone therapy, I am a go with the flow, loving, energetic, energy-deficient, determined, confident, and verbally and physically aggressive person that makes quick social moves. I don't know what I have but it's not true Klinefelter for I am on the short average range of height: 5 ft 3 and a quarter to 4 inches in height and physically already done with puberty; being 25.
I got a question I am a full-time general manager @ Verizon...don’t plan on quitting my job or anything just a legitimate question can you get disability if you have this
Roy Miller what is this, Instagram? Does it cost much? And if we send one to you, Roy, you would not take it as flirting, I hope? No flowers, singing, chocolates, or teddy bears, involved I hope.
Roy Miller yeah, how many Roy Millers could there be on Facebook? ...... Miller is so uncommon. And "Roy" must be one of those names mother's make up, making finding you do much easier. .. Hell, I am just going to friend the first Roy Miller I can find. Okay, got one in Stow, Ohio. This guy better have KS, or I will be soon pissed!!
hi bro I have just found your channel , unfortunately I have klinfelter syndrome too , does the testosterone replacement therapy help? does it change the body shape and penis size? I have noticed that your voice got much deeper and you grew alot of facail hair I will be 18 in two week in two month I want to go to a doctor.
Does the testosterone therapy work after20yo...like growing a full beard.. Or change the body shape... I have mental problems like I can't remember well.... Can't speak well. Put thoughts into words.. Can't understand well what people say.. Is there a therapy to my caseThx
The testosterone therapy definitely works after 20 and makes your facial hair grow more. I am living proof of both facts. I didn't start taking testosterone until I was 23. The hair on my face grew fuller and longer. There are different forms of speech therapy, but you can also teach yourself. I had a speech impediment from age 11 to 13. It takes practice and help from wherever/whoever you can get.
jksmith818 I don't know. That would be something good to research though. At least, we know there is more visibility and understanding of the condition.
Well, there is a chance you may have it. That being said, it would be good to see a doctor about it. When I had mine officially confirmed last year, it was pretty much a routine checkup with blood-work.
It has a lower-than-average possibility; It can happen though. I'm a literal example. I didn't even need scientific intervention. My son was a happy surprise. The irony of testosterone therapy is that it does lower your fertility though. There are several scientific scientific papers supporting that. I personally feel like it's one of those medicines that you take for a while [if at all] not a lifetime.
Roy Miller Thanks. I will try to look you up on Facebook. I am struggling to get the keryotype test for someone. Got to be a sympathetic doctor somewhere. Group online that will tell us where to find this doctor. Something... Also, Roy, did 23andme offer any clue of ks? Empties, or something?... I hope videos by guys like you help spread the word that you are just regular guys, with extra chromosomes to spare, in case someone else needs them... It is the Y that makes you male,otherwise, all 46xy are half female.
MrWAYOFWARRIOR I definitely have it. I have the physical and hormonal anatomy. The doctor who diagnosed me even already had other patients before me with strikingly similar stats to mine. Also, you can still be healthy with Klinefelter's. It has its nuances, but it isn't a debilitating condition.
I've never seen a more relatable video. I never got an official diagnosis, but I'm sure I have it. I'm also black, 6'4", a musician, and always called different or weird because of my docile nature. I've always had questions growing up. Trying to figure out why people thought I was different. Kind of always had low self-esteem because of my awkwardness. I was always the tallest in my class, but I was terrible at sports (except for football I could've been a good WR but I HATE contact). Once I hit about 10 or 11 I developed pseudo gynecomastia and would get teased about it pretty much into my adulthood. It was traumatizing, isolating. I developed depression because of these factors and had a hard time making friends. I still am afraid at 22, of having a gf because of what she might think of me or especially if we were to ever become intimate and I have to take off my shirt. I tend to sabotage myself whenever I sense a girl is starting to like me. It's horrible. I was in a brief relationship for the first time last year. We didn't last because of timing. I'm kind of glad we never got too in depth with our relationship. Seeing this, mentioning that you have a wife, knowing that there IS someone out there that can relate to the nuances of my life is comforting. I thank you for sharing your story. Maybe I'll have the confidence to share mine someday
Thank you for viewing my video and reaching out. It takes courage to open up like that. I 100% understand and have lived what you're saying. Even though my life now is WAY better than it was even a year ago, I still struggle with things like body image and depression. For example, I gain weight easily and tend to stress-eat, and I still get depressed sometimes about things like family and underemployment despite having college degrees (That's another story). Of course, the idea of possibly never being a father is also haunting at times.
I can't tell you how to completely end the struggle since I still struggle myself, although not as much anymore. I do know for a fact that you can change your life for the better. Challenge yourself to improve your circumstances. Appreciate the good things and people in your life, and realize that one-sided, negative interactions often come from folks with a bad spirit anyway. Trust me. I know what it's like to be "different" as a black male. You can eventually embrace who you are like I am now.
Do you have a website or something for the African America people ? Are there any groups or anything for us? I have been looking for AA people with KS , just to know how you all cope with life? How do you deal with work and stuff?
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome
@@luisasahra8857 what does being a musician have to do with KS? Interesting how that isn't a question. But to answer your question, was just relating to the person. Just like with mentioning music
Thank you for this video, it took a lot of courage. I started noticing this in my grandson over a year ago, he's 12 now. Now I understand so much better what he's going through. He's always tells me how nobody wants to be his friend, how depressed and angry he is which I couldn't understand because he has everything. But, I worried because of his chest, stress eating, all the symptoms I read here including no hair. He wants so desperately to have pubic hair and go through puberty that that's all he can talk about. I can't get his mother to get him help or even recognize that he has a problem. I'm his safe haven. He spends every weekend with me and now I'll be more supportive because now I understand all he's going through physically, emotionally and mentally. Thank you again and God bless y'all.
Sure thing! I know firsthand what you say about your grandson. Middle school years were rough for me too both inside and outside school. It would be good to make sure that he gets into a nice expressive outlet. I think that studying meditation will help as well. It continues to help me stay in control. 🧘♀️ 🧘♂️
I know firsthand that stress-eating often stems from lack of fulfillment. It is a struggle of mine that I have curbed but still struggle. Make sure that he gets the chance to succeed at something and celebrate, however small. Victories are always good for self-esteem.
Fitting in with a whole bunch of people does not matter anyway. I know that I will stomp on toes with this comment, but I find that people who have a whole slough of "friends" tend to be toxic versus people who keep a close, balanced circle. Many folks mistake riffraff for friends unfortunately. Social media is a huge example of this.
The irony too is that many folks who judge for petty reasons often want tolerance that they cannot even give to others unless they fit a certain mold. It is good for him in a way. It sounds like he almost exclusively attracts high quality people like grandma. Continue to guide him in building quality relationships, and it will be fine.
Meditation Channel 🧘♀️ 🧘♂️
th-cam.com/channels/4EOE55LmzSyqSzuFlX9EHQ.html
Try listening to rife frequencies and subliminals for klinefelter syndrome
Roy, solid video. Thanks for making this. I too have KS. I was diagnosed my sophomore year of college (22 yo). Currently, I am 36. I appreciate you putting this video out. Well done!
Ryan White Thanks so much. I'm glad you liked the video. I plan on doing another video soon.
Hey.. I got the same situation but I think mine is worse than yours!! I'm 24 now but I don't have a beard, less facial hair, small dick, breast like, 1small test etc. I haven't get any kind of medication and I am already psychologically destructed especially in my African environment!! It's so hard for me man!!!
Protho Dominick I would seek treatment. In meantime pursue bodybuilding websites, as they are obsessed in trying to boost their testosterone.
Hi ryan white
Ryan and Roy, I’d be curious- with a lot of parents now doing genetic testing on their unborn babies (which I don’t understand), do you think it’s beneficial for parents to know this pre-birth? New to the conversation, I keep thinking it’s not worth knowing until much later- do you agree? I suppose it can explain some academic struggles and to use testosterone is helpful (teen years?) but I guess I’m a little saddened by the moms with babies seemingly stressed over the info already. Thoughts?
There’s nothing wrong with being introverted or not hyper masculine. I’ve always been drawn to men who are not super aggressive. I feel closer to men who are less aggressive and have a reserved quality or even sensitive. I really like that. My son is going to be 3 years old and has XXY. Thank you for doing this video. I don’t find you abnormal at all. You are attractive and seem very nice just like my little boy. He’s beautiful and perfect. :)
Thanks for the kind words. Make sure to give your little one plenty of emotional support. Much love to you and your son!
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome for his 7th birthday!
My boyfriend of 3+ years has KS. He didn't find out till he was about 20-22 I think. It was hard for him.. Especially since he found out he could never have children.. That was extreamly hard for him. And he finally realized why his body was the way it is. It never bothered me.. And he is a great dad to my son (from another relationship) he was always so insecure about everything , but he's also SO happy all the time.. He has all the marker for it.
Thanks for reaching out. I'm glad that you three are happy together. Best wishes toward the future!
Hi Jessica, im aware that most XXY are infertile. But that dont really stop them from having kids isnt? There are ways to extract their sperms from their testicels
@@izdyhar82 very experimental and does not always work
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome
These frequencies will allow him to be fertile
I have KS and was diagnosed back in 4th grade (I'm currently 24), doctors always kept telling me the phrase "don't you want to be normal?" I took medication for 2 months then stopped. Can't explain why I stopped but I can say I'm satisfied with how my life is going.
The mood swings took awhile to get past, the struggles to keep up with my friends for sports and all my experiences took awhile to get passed but I'm happy with my life. I did have my low times in life, but I also had my high times. Now a day's I'm a happy go lucky guy.
Personally I don't understand some things such as certain emotions or feelings. My pain tolerance is high up there so I feel little to nothing. I'm not the strongest after my whole highschool of working out. And I wear a smile wherever I go.
Currently I'm the strongest person at my warehouse job, it's a delivery place so I'm one of the package handlers. The 5 things you could possibly do is unloading, sorting, washing vans, scanning & stacking. I can manage to lift 150 lbs above my head on a daily basis, I'm one of the fastest unloaders and the best stacker on the shift. I wear shorts year round (I'm in MN), so the temperature gets down there. I'm currently working on getting promoted to a lead position. I'm pretty laid back, but can get serious if the situation asks for it.
My current idea of life (for what I want for the future or later on) is I'm aiming for a 'simple serious lifestyle of solitude' which the way I interpreted it was I will most likely be alone throughout most of my life. But hey that's life. I'm not interested in the idea of marriage or the relationships. I'm just not interested in any gender, but I play parts to be able to fit in wherever I'm at. Sometimes I don't feel human. Sorry if I'm rambling on, I know there will probably be misspellings here and there but I tend to lose track of my thoughts as I type. I have bad memory and a bad way to put what I want to say into words. But this is who I am with whatever was put above this. Have a good/night and enjoy life even if you got to fake it at times :)
Thanks for reaching out! It's something how all of us are so different while also having so much similarity.At the end of the day, we are who we are. Happy New Year!
Rife frequencies and subliminals for klinefelter syndrome will cure it
God bless you
I don't know if I have KS but as I read on the internet, symptoms are the same as mine so I may have it. You know what's even more worse is that I feel awkward everytime I'm in a social situations and literally look awkward (on how I move, speak etc) and physically look awkward. As I growing up, this gives me hard time to deal with this, really gets me upset and depressed makingbit even worst knowing that I have this condition. But yeah, that's life. Thanks for the vid man. This helps me keep in track to not be depressed again.
Thanks man. I'm glad you like the video. Keep self-improving and find your own happiness.
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome
@@crazyicecream2237 how does listening to frequencies helps me with my condition?
@@maruko8324 they're designed to cure that specific disorder by a scientist, there are RIFEs for lots of conditions. Look into it, because it does cure KS
I see I'm very late to the show, but I too am a black man with KS. My struggle's are much deeper than some because all my life I had to dodge the teasing and the bullying at a young age (around 7 or 8). My parents and some family members would tease and crack joke's about me around my friends. My friends would take to jokes and say them around teachers and some teachers also join in on the fun.
Never taught to be tough, never told I could be great in life, my mother the most took me to many psychological youth testing center's to figure out why my focus of school and physical wonders off and on, and I notice to my mother (in her eye's) I seemed unwanted [since she always brought up about the story of following the doctor's suggestion to have me aborted...].
All the stress and pain, not able to socialize and meet friends quickly, wasn't the out-going female chaser in my high school days' like my other male friends, late to the puberty party, always shy, very docile, very "to myself" even as an adult (even though I want to strongly tackle the world like an pure Alpha Male)... its always this brick wall I'm just mentally too weak to climb over.
And it just adds to the pain.
Just made a video of 'My Life with KS' and the physical appearance show's very much I've given up a long time ago, but it's just time to give some awareness to the good/bad/and ugly to this subject. For a 1 out of 500 to 1 out of 1000 males born with KS, that is a super common syndrome to be living with and 3/4 of the world probable doesn't know about it.
Thanks for expressing that. I have firsthand experience of the same adversity during my pre-highschool years as well as my college years in Music School to a certain degree. People can be very catty because of them projecting their own lack. That being said, we also have to think how to improve ourselves, especially in adverse circumstances. I know that's easier said than done as I'm still in the thick of the path myself.
RIFES frequencies and subliminals for klinefelter syndrome cure it!
Thanks so much for this. My son has been diagnosed with this. It made so much sense once you get the diagnosis. He is four and beautiful in every way.
Thanks. I'm glad this was helpful.
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome for his 6th birthday
I see myself in every aspect of you! I think we’re beautiful divine beings. You’re an angel, wish all the best to you!
Thanks man! That's very nice of you.
Hi, listen to RIFE frequencies and subliminals for klinefelter syndrome
@@crazyicecream2237 WHY
OMG. You just described my 16 year old son . He has not been tested, but we all know something is different about him. He has all the attributes of KS you mentioned. I will definitely have him tested. Thank you and well done.
Thanks you for watching the video. Best wishes to you and your son!
RIFe frequencies and subliminals for klinefelter syndrome CURE it
I'v found this now, as i was diagnosed with mosaic version of this. Man, i wish you strenght and luck. It's such a mature and good take on this condition from you, god bless and whatever happens don't give up.
Thanks for the vídeo Roy, i just talked about you in my Klinefelter project school, and how you managed to accept your difference in a wonderful way, it's very inspiring! Hug from Brazil!!
You seem like a sweet nice young man. Wish I was taller! I’m at least 40 years older than you and only figured out a few months ago I’m on the spectrum! I have what use to be called Asperger’s. Makes so much sense to me. Very glad you have someone special in your life and you didn’t have to wait many many years to get help.
My son is 7...so glad I found your channel. Thanks for sharing your story!!
Being short a chromosome is as much a struggle as having an extra chromosome. Turner's syndrome is when females are born with only one X chromosome instead of 2 X's. No Y's are involved. It really creates a lot of physical problems. Keep taking good care of yourself. Thanks for a good video!
Thank you for your openness.
I have known for quite a while and am having a very hard time with it.
I am continuously tired, listless and I also get quite irritated with my own head.
Thank you for sharing. Definitely, gives me a better understanding of Klinefelter's at the personal level.
Michael Sure thing. I'm glad that I could help.
Thanks, Roy. My yet to be born son, Levi has XXY and I appreciate your sharing. Hard to find first hand perspective online. Best wishes!
Thanks! I'm glad I could help.
Hi, listen to RIFE frequencies and subliminals for klinefelter syndrome for your son
Hey i was learning about this in school and i wanted to see what it was like for someone with the syndrome you seem like a pretty normal guy to me so keep pushing and dont let the haters tell you what you are
Thanks man! I still reiterate similar words to this day. :)
Hi saad !
Are u from Pakistan?
We are family XXY brother
You seem like a sweet nice young man. Wish I was taller! I’m at least 40 years older than you and only figured out a few months ago I’m on the spectrum! I have what use to be called Asperger’s. Makes so much sense to me. Very glad you have someone special in your life and you didn’t have to wait many many years to get help. P.S. Seems like many people have this or that condition, but we are all really just humans. And yes, I’m quirky too!
So happy to know that it's not only a white thing. Thank you for speaking out and giving the black men a voice. xxxooo My son is now 17.
Use the rife frequencies and subliminals for klinefelter syndrome
Hey.I am medical student. Great video :) but I would recommend that you get the karyotype done.There are many reasons causing decreased testosterone levels. What if you have some other reason for your hypogonadism? what if your social problems are just part of your personality and your tall height is just genetic.Good luck for the future! :)
I definitely have Klinefelter's syndrome. The karyotype test would just be redundant. Even if I didn't have the condition, I would still be getting similar medical treatment. Testosterone doesn't just concern fertility. I'm sure you know that though.
Social problems are a part of life. I'm sure you know that every interaction with someone isn't going to be productive. I'll admit (with or without Klinefelter's), it can be one-sided or a "two-way-street", depending on the situation.
Hi!! There's a RIFE for both Klinefelter and Hypogonadism
Thank you, Roy!
Hello, I am a KS male. I wasn't diagnosed until I was 16.
It is def a struggle to deal with in life. The emotional state is the hardest thing I deal with on the day to day. My impulse control is non-existent. Have mood swings that I can't control.
Codex leet I'm glad you got diagnosed pretty early in life. It isn't easy on my end either. Believe me; I know what you mean with the mood swings. I fight every to make better of my situation.
Do you think maybe the mood swings could be associated with higher estrogen levels?
Codex leet im 15 and have this but i don't know how to tell mye mom beacuse she is so proud of her son but i really want treatment before it's too late
Cryotr oh, dear, I am a mom, and I am sure your mom would want the best for you. You are no less her son whether you have the condition or not. The sooner discovered, the better. She will be more than eager to help, I am sure. Our children’s well-being is all that matters to us, moms.
This is curable
I had a bad past,fighting,etc.Got blamed for my behaviour,didn't find out till i was 31,am now 51,ruined my life.
Really appreciate your description of your experience, very helpful
Getting back again on this video because someone bumped my comment. How is the life man? Hope you doin well! As for me, I've got everything on the line (except work). I don't feel or look much awkward anymore on social situations (there are still instances but it can pass lol). There's also a time that I cannot express my feelings or thoughts into words because I have issues with comminucation but not that severe as on my adolescent stage. I attribute that to people around me who love and accept me as I am (even tho they don't know what I'm dealing with). I'm very thankful. Enjoying and cherishing the present moment and not thinking too much on how I suppose to move or talk is what improved me and by that, most of the time I came across as natural and not awkward. (restricting movements because of self concious is what made me awkward. it's a vicious cycle!) Anyways man, you helped me in a way to understand myself. You are one of the people I give my gratitude towards to where I am today. I really hope you succeed in your career. Yo I like music too and art and stuff! Peace man.
Thanks for your kindness. I'm glad that I assisted.
You seem quite motivated. If you want to take it to the next level and permanently end cycles, I recommend studying yoga 🧘🏽♂️ and Dharma 📖
I know it sounds out there, but it has greatly helped me even better than Western Philosophy/psychology. Stuff like 4 Noble Truths, Diamond Sutra, Heart Sutra, and Dhammapada are great.
You can’t “self-diagnose”. XXy(Klinefelter), Xyy(Jacobs), and XXyy, all have overlapping symptoms. Also, you could be mosaic. That said, I’m pretty sure I have XXyy. Any way you cut it, it’s just nice to have an explanation for why I’m the way I am. 🙂 Thanks for sharing your story.
This video really help with my research for a school project, thank you so much for sharing your story.
Thomas Daniel Sure thing. I'm glad I could help.
Thank you so much for this! Just... thank you
Sure thing 👍
Hi Roy, very nice video I am sure people will benefit from watching. I am not sure if I should say this, but I think you should do a genetic testing to confirm the diagnosis. There are some other conditions where is can be incorrectly or differentially diagnosed as Klinfelter's. Also the genetic testing (or karyotyping) will show whether you are mosaic for the condition meaning that not all of your body cells have XXY so maybe half of your body can be normal which could increase the chances of fertility and having a kid. I would recommend you do a simple Karyotype which should be very expensive. By the way I am PhD student studying medical genetics so it is kind of a scientific suggestion and this is :) I am not saying your doctor or symptoms don't make sense but I would really recommend you do a genetic testing because Klinefelters is genetic disorder and hormonal/biochemical tests should not make a final diagnosis, especially that Karyotyping is widely available. Best of luck Roy
maxsima2 Hey. I appreciate your concern. I would like to get a Karyo type test to know the fine details of my chromosomes and genes. I do plan plan to do the test when I am ready.
hello i'm 67 years old i've none i was different from my early childhood your video is good i take Androgel each day strange to see how many men have this
Yep. It's one of those common yet obscure conditions. As the stats say, about 1/500 males have it.
Thanks for posting this, it helped me calm down a bit because i have been depressed since I knew i had this syndrome. I knew i have this syndrome because we discussed it in our class, all the symptoms are spot on for me: I had less body hair, slightly enlarged lip for a male, man boobs and small reproductive system. I got really depressed for almost 3 years now when i knew i can't reproduce. I thought to my self "even if I had a wife, how would i explain that i can't give her a child", "how would i explain it to the doctor if i go get a medical exam, it will be embarrassing etc.". up until now i feel really REALLY sad about my condition and worse of all my family, more importantly I don't know how to tell my parents about my condition
Orange Pickle I understand. I have had depression long before I figured out my Klinefelter's. My diagnosis was and still is difficult to accept. The infertility is definitely one of the worst parts of the condition.
I can't tell you that things get easier per se, but I can tell you that you don't have to feel ashamed about having Klinefelter's. Seek medical and psychological help. That helped me. We don't get to choose how we're born, but (for the most part) we choose how to live our life.
Love u man.. You're gonna be a role model for me and a good inspiration, love from the Philippines.
Orange Pickle Thanks man. That means a lot. Love to you from the US.
Sweetheart don’t be afraid. Have you been diagnosed by a doctor? Or do you just suspect that you have it? I urge you to tell a trusted family member that you have suspicions about having this. You definitely need to go to the doctor and have the test done and if you do have it then they can give you the testosterone that you need. The earlier you get the therapy the earlier they can help you with the symptoms. My little boy is XXY and he’s 3 and to me he is beautiful and perfect. I’m sure your family members love you and would want to help you in every way they can. If anything his condition is my fault not his. This condition is likely to occur in women who are older when they get pregnant. I was 40. Please don’t be afraid. My little boy is always getting compliments on how adorable he is. No one out there knows he has it and I’m sure no one knows you do either. But, going to the doctor the sooner the better will help you with your condition. They even have ways of saving your sperm in case you want to have a child. It’s no different than women who save their eggs.
Hi you can listen to RIFE frequencies and subliminals for klinefelter syndrome!!!
I was just told my baby will be born with Klinefelter's. Thank you for your video. I was clueless.
I'm glad that I helped. I know you will encourage him to do great things in life. Thank you!
Jennifer Fields Hi there! As i watch this video i was reading through the comments I have a son who was diagnosed with KS at 7 weeks old. If you have any questions let me know I'd love to talk or email.
Jennifer Fields mine too. Thanks for sharing.
Swilliams 8703 hi Swilliams! I just got diagnosed at 22 weeks. Do you have an email to reach out to for me to asl questions?
so the doctors will tell you if your son has KS???
Dude. U look and a t normal to me, brother!! Everyone has quirks too. Hope u r doing good. Good luck : )
Thanks. Best wishes to you too!
Thank you so much for the advice
🤟🏽
Thank you for sharing your story. I got the diagnosis 9 years ago. I can relate to many things you say, about how people thought about me being different/strange - I always wondered why. Testosterone was life saving for me during a tough time with depressions .. now I'm strong and healthy
Hi you can listen to rife frequencies and subliminals for klinefelter syndrome
@@crazyicecream2237 what is rife frequencies and subliminals?
@@samtube12 for klinefelter syndrome
@@crazyicecream2237 bro are you Also ks
@@samtube12 I was and cured it, Using the cure now I dont have symptoms
24 year old KS'er here man; you aren't alone. Thank you for sharing your experiences. Perhaps we could chat on the subject sometime?
I have a public playlist dedicated to videos on research/studies on 47xxy/klinefelter's ( trying to raise awareness )
Is it ok if I add your video to this playlist? It is public, so I don't want to add it on and bring you attention if it is unwanted.
Subbed my man; your experiences are shared, you aren't alone!
Sure. You can add my video to your playlist. Thanks for the view.
hey 22/m ks 47,xxy
hello mate,I write from spain,& me too have got your illness,I do not know how to wear this,I think I will have to live only the rest of my life, I do not know if someone here who suffers from klinefelter, has a girlfriend, I see it impossible and that is the saddest.
hey, when i was 18-19 i was diagnosed, i had a girlfriend at that time She was with me in everything, and than we broke coz emotional problems, but that did not stop the dateing, i know the happines to find some one that wants u even if u have KS, there is some one out there for everyone
Hey all, Hi you can listen to RIFE frequencies and subliminals for KLINEFELTER syndrome!!!
i am doing a report for biology for this, thanks for sharing
Theresa McIntosh Sure thing! Thanks for the view.
Got to say, I don't find that you seem out of the ordinary in the least.
great video man, we have a lot in common. I was diagnosed with ks this past September.
Alex Briscoe Thank you!
Listen to rife frequencies and subliminals for klinefelter syndrome
Thanks for sharing. I'm 46 and still officially undiagnosed, but 99% match on all the symptoms (and as you know, it's a long list). Just glad I don't have an intellectual disability (other than mild ADHD) and I corrected some of the physical weirdness caused by late puberty to some extent by using some testosterone and anbolics in my early 20s. unfortunately it was too late then to rectify the lacking bone development, mainly apparent in my forearms and hands.
After 20 years of depression and 10 years of finding refuge in drugs, I did manage to build out a decent life and career. Been happily married for 13 years. I have recently started TRT because my testosterone kept meandering in lower regions of normal range and am currently fitter than the large majority of my contemporaries. And I never wanted kids (which might be a consequence of always having felt a bit immature), so no issues there.
So just want to say, even though I would have preferred not to have this, it's possible to live a full life. It might be worth for some to try and address lifestyle and hormonal issues where appropriate. Oh yeah, and don't do the 10 years of drug use like I did. Doesn't help with anything.
Sorry for my late response. Thanks for reaching out.
Yes indeed... I have been living a full life since I started this video.
No worries. I haven't done the drug thing either. Besides testosterone, I rarely even take Aspirin.
Much love to you!
Use RIFE frequencies and subliminals for klinefelter syndrome
i am a ks male...and i was diagnosed age 32 the time i tried to have a family...and i figured out... it dont work as easy as it should...so i just dont worry of it i just live it...
DJVULGAR That's about where I'm at. One thing has become clearer to me since diagnosis. There's more to life and manhood besides making children. Hang in there buddy!
i did take the life further, i met a beautiful woman with a kid and i married her and adopted her child...today he is my son and im proud that i went that way,....
Im taking Cyp for aging and health but am aware now of genetics and preexisting situation..💯♥️🔑
thanks for this video I really appreciate it! I also have klinefelters this really encourages me.
Thank! I'm glad that I could help. Yep... adjusting to the truth can be uncomfortable at first. However, Klinefelter's is very much a livable state of being. As I said in the video and previous comments, take your health as priority,
listen to rife frequencies and subliminals for klinefelter syndrome
Just go through life with it..your body will adjust...medicine ain't the same as what your body produces..side effects are imminent..just love yourself, and do well like you always have...if women dont like it .leave em
Cure it. Listen to rife frequencies and subliminals for klinefelter syndrome
im 15 and i have a strong feeling that i have this
It's to visibly tell if you have the condition at such a young age. Still, it's worth investigating with a doctor. Best wishes and stay in school!
Higher prevalence of Autism/ Aspergers in KS community. Might be worth thinking about this if you've struggled with education.
I've had my nuances like many people. That being said, my condition has marginal (if existent) affects on my learning abilities. After all, I do have a bachelor's and master's degree from 2 respectively tough universities. Many others with Mosaicism don't possess much abnormality when it comes to education.
Roy Miller I think I might have this and I’m in my final year of my bachelors in history.
@@zXJulianXz Hi you can listen to rife frequencies and subliminals for klinefelter syndrome and autism
I feel like I have all signs, but I'm only 5"10 and I have a daughter!
It sounds like you don't have Klinefelter's Syndrome. Even if you did, there's no need to be depressed or suicidal. It's not a debilitating condition. The worst for me is emotional sensitivity and reduced fertility. Even those aren't so bad, and are rather advantageous. I'm living proof. My wife and I even had a son (who looks just like me) earlier this month. Matter fact, I'm rocking him to sleep right now lol.
Trust me! It beats being self-absorbed with substance abuse issues like most folks in the U.S. nowadays 😆. Value and prioritize the life that you have with your baby girl.
Hi Roy, nice video! I just have to say that KS refers to males, but 47XXY can refer to some females too. If you search for them in the literature you'll find about 19 xxy female cases. Be good.
Awesome video. thanx for upload.
D2dan Thanks for your support!
Roy Miller I have 47 also. I'm 30 yrs old.
Hi there, I ve been diagnosticated almost 2 months ago. I m xxy and I have klinefelter s syndrome too. Now I m 27 yo. I have a normal live. But Its tough to go through
these. Could be great to create a facebook private group to talk about it. Take care :)
Sure thing. Feel free to Friend Request me on Facebook. My profile photo is the same as the one in my TH-cam icon. It will have my middle name (Kenneth) on the page.
Plz share group link i also wanna join
There are rife frequencies and subliminals for klinefelter syndrome
I seems to have all those physical attributes of KS and I'm also extremely shy but my upper body strength is kind of strong as i have no problem lifting heavier weights and I'm also only 5'8. I'm confused right now.
I am in love with a guy with Klinefelter's syndrome. He is very quiet and less emotional. I wanted to know how the people with the syndrome experience relationship with woman.. I cannot explain it but i am interested to know more about Klinefelter syndrome.
Hey. Sorry for the delay. I'm glad to know that you are interested. I commend you for loving someone with the condition. I can't speak for other people with the condition since I am the only person who I know with a Klinefelter's diagnosis. I will share my experience.
Growing up, I was always told that I was "different", but I wasn't exactly sure what it was. Truth be told, it can be very awkward at times. In my case, I am actually a very extroverted person, but I "code" for normal and avoid instigators/riffraff by being quiet or stoic in certain social settings. I equate it with the saying "don't throw your pearls to swine".
Regarding women, I think the condition is a plus in certain ways. Men with Klinefelter's tend to possess ample empathy and care toward others; maybe, it's from having so much estrogen. My wife even thinks that I'm overprotective sometimes. The women who I attract as friends and mates tend to be bookworms and artists. Maybe your relationship is similar. I hope that I helped.
Thank you so much for replying.. I appreciate your such an in depth answer. xx
Thanks. I'm glad that I could help some.
Rare Coral This whole comment thread is beautiful
Been doing a lot of research on klinefelter recently and watching a lot of vids because I’m quite paranoid about it. I’m worried I may have it because I have had ‘moobs’ for as long as I can remember. Been to the doctor several times regarding it and I was always told they’ll eventually go away as I get older even though I was already in my late teens when I went about it but they could never be bothered to check my testosterone levels. Every now and then people will comment about it and point out that I have them. They’re still there and I’m 23 now. A few things going for me though is that I’m very hairy due to my med roots. I’ve got a full chest/stomach of hair and I’ve had facial hair since the age of about 15. I keep reading men with XXY struggle to grow body and facial hair but apparently not all men so I’m not sure. Have you ever had the ability to grow body and facial hair or do you just shave?
I started puberty fairly young and my voice deepened at the normal age and I was having sex young. I always had a very high sex drive as a teen and was in and out of relationships with a very healthy sex life but this has dipped off in recent years. I’m hoping this is purely because I’m getting older and don’t have as much testosterone anymore I also go through stages of depression fairly regularly because I can’t seem to help fucking things up for myself all the time so this won’t help with my testosterone levels I’m just hoping I’m normal because the thought of not being able to produce sperm and have kids kills me. I’m about 5’11 / just about 6 foot by the way and don’t think my arms and legs are abnormally long but I do gain weight very easy and it all seems to go to my stomach and hips which are supposedly ‘feminine’ areas so I’m not sure about klinefelter, sounds ridiculous but I’ve even been measuring the length of my tesciles lately just praying they’re within the ‘normal’ range. I’m hoping I’m just paranoid
I’d say I have a very confident and out going persona. A lot of girls have called me cocky growing up but they seem to be attracted to that trait it’s always worked for me. I know this definitely isn’t a trait of XYY (quite the opposite in fact) but I do think it’s peculiar that I’ve always suffered with moobs and gain fat in the areas I mentioned. I am certainly ‘curvy’ for a guy I’m just hoping this is due to Mediterranean heritage. Do you think I tick enough boxes for someone suffering from XYY?
Check with a medical professional.
There is no big need to worry. Klinefelter's Syndrome is not a debilitating condition in most cases. The worst parts for me were diminished fertility and intolerant people. I am blessed to have overcome both. You can overcome obstacles too.
And you can listen to rife frequencies and subliminals for klinefelter syndrome
I have klinefelter syndrome, but I'm 5'6. But I also have lupus.
I was diagnosed today xD im currently 27 ^^, meh at least my sperm capabilities are good,
Stein Polse I'm glad you found out. It's always better late than never. I'm glad you aren't infertile. Keep on keeping on.
Roy Miller Hear me out. I’ve been going back and fourth to urologist for last 2 months getting blood work done because I have concerns with my development. I thought I had klinefelters or Turner syndrome but turns out my t level is 500 and the urologist said I have no form of hypogonadism. But I’m confused because normal puberty changes that are supposed to occur in males during early teens didn’t happen to me. My genitals haven’t enlarged , my voice hasn’t really deepened & I don’t have noticeable Adam’s apple. I do have pubic hair , armpit hair , thigh hair , ass hair & my gotee is staring to come in. According to doctors the first sign that you’re entering puberty is when balls get bigger and mine haven’t yet so does this mean I am a late developer and it will happen eventually ? Because my t levels are normal and I have no kind of hypogonadism.
do u have kid?
will all xxy people will be infertile ???
Great information thanks for sharing
TheExcard1 Sure thing! I'm glad that I could help somehow.
Dude.. You seem like a really cool guy and I'd love to chat sometime. I'm going to be tested soon. I had a testosterone count of 150 at 30 years old and have always been kinda timid. I will update with test results, but I identify with you quite a bit. A fellow musician(guitar) Though Baseball is the only sport I've ever been good at, and I am quite graceful when it comes to coordination. I will get back to you with results.
Thanks! I'd love to hear more from you. It's a good thing that TH-cam has a Messenger section now.
Hi you can use RIFE frequencies and subliminals for klinefelter syndrome
+ Transit / Ara
I'm certain you'll be back on this page at some point. i feel regret for not replying to your comment sooner. Given the sensitivity of the issue, I understand the delete. I can't say enough though,
GET INTO CONTACT WITH THOSE SPECIALIST COMMUNITIES
There is no reason for you to be suffering in silence. Reach out for help. Fuck the embarassment. We xxy's, regardless of subset; have been quietly hurting. FUCK THAT BULLSHIT
We all gotta yell, get our voices heard to get proper treatment. There's less of your subset than any of the others. YOU HAVE TO GET YOUR VOICE HEARD BY THE RIGHT PEOPLE.
If not for the good of yourself, for the future xxy's that can't receive proper treatment because of your situation. They deserve their chance.
DrLoud RS I agree. You have to take your health as priority and ignore the stigma. You shouldn't have to apologize for getting help that you need. That's something even I have to keep telling myself.
RIfe frequencies and subliminals for klinefelter syndrome cure THIS
i just want know how much congnitive disability and speach disorder is attributed to KS? i may identify with all other features present in typical male having KS,the one thing that worries me alot is the inability functioning of my brain.i can't seem to think straight or pay attention.i had poverty of speach since i can recall,but seems like it is getting worse as i grow old,and am only 27.
I'm not sure. It sounds like your condition maybe indirectly connected to Klinefelter's if at all. Either way, you should seek medical attention for it. A doctor, nurse, or counselor/psychologist could help. Best wishes!
Hi najib
Are you from Pakistan?
Jeremiah 1:5 KJV - Before I formed thee in the belly I knew thee; and before thou camest forth out of the womb I sanctified thee, and I ordained thee a prophet unto the nations.
Matthew 19:12 KJV - For there are some eunuchs, which were so born from their mother's womb: and there are some eunuchs, which were made eunuchs of men: and there be eunuchs, which have made themselves eunuchs for the kingdom of heaven's sake. He that is able to receive it, let him receive it.
Born in 1972. Have XXY. Damn. Blood caryotype in 1997.
Eric Rider Wow! So you've lived with our condition for a while. I wish healing for you and other with Klinefelter's (including myself).
A state of being.... I like your way of thinking.
I have Kleinfelter's Syndrome. I am NOT confused about my gender. I am a straight male who dreams of marrying a woman (who was born a woman). But I am still single, as I have been most my life. I am 6'3", 185 lbs, sparse facial, arm and leg hair, yet have hair down south. I have massive depression and anxiety. I am very coordinated. I have taken many dance classes, etc. 115 IQ. Infertile and low self esteem. Muscular and a deep voice. Small testes, but normal penis. No problems with libido or erections. I think I am Mosaic. I took testosterone for awhile, but it made me sick and also angry. So I stopped.
Your video made my day. Your outlook is inspiring.
@ Eric Rider.. are there varying degrees of this? How can they say you were born a woman if you have normal penis? Do you have ovaries? Not being hateful or poking fun at all, just now learning bc i love medical info.
We share many similarities. The big difference is that we're the same height, but I'm about almost 50 pound heavier lol. Also, I'm not very coordinated except when it comes to doing saxophone or martial arts.
I don't know my IQ. I personally think IQ tests are B.S. Most written tests rarely allow you to showcase applied knowledge anyway.
I still take my testosterone, and I thankfully haven't had a bad reaction. I try to induce testosterone production by doing cardio and labor whenever I can.
Thanks! I'm glad my video inspired you. Hopefully, our discussion is bringing more understanding to Klinefelter's Syndrome. Maybe there will be better health treatment soon.
There are variations. For example, Mosaic means that not all the cells have 47 chromosomes. Some may have 46 chromosomes... hence, the name.
Klinefelter's syndrome put's you in a grey are with gender, but it doesn't make you feminie by virtue. That being said, there are some folks with Klinefelter's Syndrome who are born with gonadal differences. In my own research through medical websites and social media, I even found out that many trans women have Klinefelter's syndrome. Personally, I definitely have Klinefelter's, but I've never had ambiguity with gonadal differences or gender identity. Best wishes to those that do.
I was dx'd with KS when I was 13 back in the 80's. I'm also a POC. I couldn't do HRT due to the fact I had an adverse reaction to it.
SpydrKat Hey man! Thanks for reaching out! That's an early age to figure out having an extra chromosome. I wish I had known earlier in life.
I'm sorry that you can't do hormone therapy. I know firsthand that it isn't easy dealing with hormonal imbalance. Even as I'm writing this, I feel unbalanced. I need to be more consistent with my meds :).
I also know it isn't easy having nuances like chromosomal abnormality in addition to being POC. For me, it sometimes feels like another strike against me in addition to being Black. I'm curious, do you live in the US too?
Sorry for the late reply. I live in Chicago. I deal with my life by being comical.
Why did you had an adverse reaction to T? Did you had much fat or something?
I always cry in my life 😭
It gets better with time and working smarter. 💪
Great information here!! Also do the T shots help memory?
Yes. They do but marginally.
Roy Miller, thanks. Memory is a huge issue, if I recall correctly. I am also concerned with helping : focus, energy, self motivation, over sensitivity, self control, speech fluency, competitive pride, desire to exercise. You obviously got control over these years ago. But any idea if T can help these. But let me focus the question on: speech, focus, and self discipline. Though the speech solution is probably more about the self discipline to practice.
Roy, have they said what causes the physical lack of coordination?
Different scientist say different thing, but nothing really seems like a solid idea. Personally, I think my lack of coordination comes from the hormonal imbalance and my frame being unusually full from the waist down. I have never had a thigh gap even at my thinnest lol. My legs are still the last place that I lose weight, especially around my hips and thighs.
My boyfriend is the same way. His body is exactly shaped like his mother’s. He’s 5’7” 309lbs he will eat junk food until his body rejects it and he throws up. He can’t remember much of anything. Like in school especially. We recently had a son and I love him so much. I keep saying I want us to seek bariatric help. He only talks about doing it when something flares up. I want to mention KS to him but he has yelled at me many times if I input during him discussing school or his health. He used to have seizures as a child and the last one was around 11. Now he is 25.
@@janetbrown5146 You should help him lose weight, if you can
I am really afraid to have that now.. fuck..
I know firsthand that it's difficult to think let alone accept. That being said, you deserve to know the truth. Real courage is working through our fears.
I know based on the description of KS I have it: hips, thighs, ass, and gynecomastia; only difference is I have a normal size dik and testies, facial hair, and I'm 5'7!
You may be on to something. I would still recommend seeing a doctor about a hormone test to be sure. Best wishes!
+Roy Miller ty and everything u do to address this matter!
Bro did you do TRT and if yes when did you start it?
I took my first dosage of testosterone after I got diagnosed. That was October 17, 2016.
What’s going on brother? Please, what type of doctor do you advice to visit? I went to see a urologist, he’s now referring me to an endocrinologist.
I just go to a General Practitioner.
Alright bro, I appreciate your time and response. It’s not been easy living with the challenges of KS.
I know what you mean. The nuances aren't always easy.
Go to endocrinologist or psychiatrist ...
How can I endure the same thing that I suffer, as you do to keep going, have you managed to have any relationship with any girl with this that has happened to us?,I learned about this a few months ago in adulthood and for me since then, I guess like everyone, I just sleep from the depression that I have.
Kevin barreto martin It gets better with time, but I'll admit that it's difficult to accept sometimes. I know for a fact that you can still have a healthy romantic relationship. I am a married man. in fact, it was my wife who recommended that I get a diagnosis for Klinefelter's. She even motivated me to do these videos. Never doubt that you can attract good people in your life.
Kevin barreto martin If all else fails join AVEN broski
LISTEN to rife frequencies and subliminals for klinefelter syndrome
Thank you very much! I am a med student writing a summary of different genetic conditions for my colleagues and me, would it be ok for you, if I included your picture? I would put your video as a link in the reference section, ofc!
That would be just fine. Thanks for spreading education about this.
Why are klinefelter syndrome male so depressed as according to medical they also become biological fathers through ART
Thank yu
did your voice get deeper with the testosterone shots? can you talk more about that ? i will start i think..
I need help with this it makes a very challenging for me to be the only adult in my family not o have children.
Hi i just found your video and after seeing it i really think im xxy im 6"15 while my parents are both 5'6, i have also gynecomastia, dyspraxia and im shy. But im 18 and my puberty is quite over so idk if taking testosterone is worth because of all the side effects..
You should check with a medical professional before anything else. It's OK to go to the doctor to check something, even if you are a bit scared. I know that I was. Also, since you are male, puberty really doesn't stop for us until our early 20s.
It definitely is okay. The worst part about steroids which was infertility wont affect you . However u might lose all chances to be a dad under that condition. And your body doesnt produce test at all . So if you take TRT low doses you wont have any negative side effects of Klinefelter or steroids . Best middle ground
But plz talk to your doctor I'm sure he would recommend the same thing
Hi... I want to know do you have a website or something to better understand Klinefelter as a AA person?
I don't have a website 😕 😔 🤭
Check out AXYS. They have a website and even Facebook Groups for support. They talk about Klinefelter's as we as other genetic variations.
I have something very similar to Klinefelter but I'm 5'4 in height, am 25 years old, am almost very hairy, am balding at the sides of my hairline, has a hairline that bends into different shapes, am a dancer, and I don't take t-shots-don't need to-but I would die without insuline shots. You see, I have type 1 diabetes, so I take vaccines filled with this clear saline like liquid called insuline for it everyday, at least three times a day. I insert the needle pen into my belly or my outer thighs, no other place is appropriate for insertions.
Being a gay man, I embrace my flexible hips, small gut that makes my bellybutton look like a smiling mouth, my thick round thighs, my medium-sized jiggly butt, and the fact that one of my shoulders is broader and tiny bit stiffer than the other which is tiny bit looser-great at shoulder shimmying- but I'm insecure about it for it looks almost childlike-delicate and has a bony peg at the back corner of it. Being sexually intimate with gay men, gay ex bfs of mine - they saw me as their young thick sexy hairy wise father-figure husband material daddy. Yet they always still have asked me or silently pondered "why didn't you tell me you were secretly a woman? I respnded" You think I'm a woman cause of my bony hips and pelvis? cause of my flat chest with pointy fatty nipples?". I always responded with "They're fatty nipples not pseudo breasts. Women have meaty hips and my hips are just bone and muscle!" That's just how I saw my body and still continue to see it, as the body of a man with pointy nipples and hips wrapped in a soft layer of muscle yet powerfully flexible that are separated from surrounding skin by "hip-dentures". I don't believe myself to be intersex being that I always had only external and internal male sex organs. And yes, I was born with a straight-haired mullet when I was pulled out from my mama, yet both of my parents had curly hair as kids; mine then naturally curled a year after I was born. Without taking hormone therapy, I am a go with the flow, loving, energetic, energy-deficient, determined, confident, and verbally and physically aggressive person that makes quick social moves. I don't know what I have but it's not true Klinefelter for I am on the short average range of height: 5 ft 3 and a quarter to 4 inches in height and physically already done with puberty; being 25.
What's the value in knowing if you have KS?
Hej brother!
Brave video. I am getting more and more inspired to vlogg about my condition eventhough I chose another path. Keep grinding! #newsub 😎🖒
Thanks for your appreciation. Whatever, path you choose, I hope it's a productive one for you.
Roy Miller Indeed - it has been rough at times, but I am standing proud and strong! 🤗
I got a question I am a full-time general manager @ Verizon...don’t plan on quitting my job or anything just a legitimate question can you get disability if you have this
roy can i contact you?
Sure. You can find me on Facebook and Instagram.
Roy Miller what is this, Instagram? Does it cost much? And if we send one to you, Roy, you would not take it as flirting, I hope? No flowers, singing, chocolates, or teddy bears, involved I hope.
Roy Miller yeah, how many Roy Millers could there be on Facebook? ...... Miller is so uncommon. And "Roy" must be one of those names mother's make up, making finding you do much easier. .. Hell, I am just going to friend the first Roy Miller I can find. Okay, got one in Stow, Ohio. This guy better have KS, or I will be soon pissed!!
Is it possible that Klinefelter person has four sons naturally?
#answerplzzz
What is the word he uses when he is talking about not fitting into society...at 6:50
Hey! I'm glad you asked. The word is "anomie". It means "lack of social integration/norms". I use it because I'm a Social Studies nerd lol.
So when you have a KS you have to take weekly testosterone injections, correct?
powerdisplayful Sorry for the delay.
I take mine biweekly. It's a medicine that you inject.
i take mine Everey 5 weeks, thats What my body needed its Diffrent For Everyone :)
TheC Snow Exactly. It all depends on what your medical stats and physician says.
some tale it in pills some inject by needel it or drink it i geuss i injuct it in my back (hurts like hell)
Ah dang. Maybe try a fatty part (i.e. buttocks) for the injection. When I inject mine that way, there's very little pain.
Hey man nice shirt. You seem like a smart and cool dude, I'd kick it w you man.
hi bro I have just found your channel , unfortunately I have klinfelter syndrome too , does the testosterone replacement therapy help?
does it change the body shape and penis size?
I have noticed that your voice got much deeper and you grew alot of facail hair I will be 18 in two week in two month I want to go to a doctor.
Are you from Pakistan?
Does the testosterone therapy work after20yo...like growing a full beard.. Or change the body shape... I have mental problems like I can't remember well.... Can't speak well. Put thoughts into words.. Can't understand well what people say.. Is there a therapy to my caseThx
The testosterone therapy definitely works after 20 and makes your facial hair grow more. I am living proof of both facts. I didn't start taking testosterone until I was 23. The hair on my face grew fuller and longer.
There are different forms of speech therapy, but you can also teach yourself. I had a speech impediment from age 11 to 13. It takes practice and help from wherever/whoever you can get.
Thanks man
Has a scientific study been done to see if there are more men with it now than there was 50 yrs ago.
jksmith818 I don't know. That would be something good to research though. At least, we know there is more visibility and understanding of the condition.
i have 90% of these symptoms and think i have this syndrome
Well, there is a chance you may have it. That being said, it would be good to see a doctor about it. When I had mine officially confirmed last year, it was pretty much a routine checkup with blood-work.
Hi can Klinefelter have children on own without trt?
It has a lower-than-average possibility; It can happen though. I'm a literal example. I didn't even need scientific intervention. My son was a happy surprise.
The irony of testosterone therapy is that it does lower your fertility though. There are several scientific scientific papers supporting that. I personally feel like it's one of those medicines that you take for a while [if at all] not a lifetime.
Will T. therapy stunt growth if caught prepuberty?
No. it will not stunt growth. In fact, I've talked with a few people who have been taking the supplement since childhood, and it did no such thing.
Roy Miller Thanks. I will try to look you up on Facebook. I am struggling to get the keryotype test for someone. Got to be a sympathetic doctor somewhere. Group online that will tell us where to find this doctor. Something... Also, Roy, did 23andme offer any clue of ks? Empties, or something?... I hope videos by guys like you help spread the word that you are just regular guys, with extra chromosomes to spare, in case someone else needs them... It is the Y that makes you male,otherwise, all 46xy are half female.
Let's get to 47 likes folks!
What is the best vitamin d product to get.
Sunlight and mushrooms! 😅☀️🍄
@@roymiller5484bro what's the colour of your semen is it watery , thin or thick??
if u didnt do the gene test you cant say for sure say you have klinefelters, so maybe you are healthy.
MrWAYOFWARRIOR I definitely have it. I have the physical and hormonal anatomy. The doctor who diagnosed me even already had other patients before me with strikingly similar stats to mine. Also, you can still be healthy with Klinefelter's. It has its nuances, but it isn't a debilitating condition.
Dear friend please tell me your baby naturally or IVF
My son is totally natural. I didn't even take fertility medicine.
Thanks for your kind response