Living With XXY One Year Anniversary
ฝัง
- เผยแพร่เมื่อ 18 ก.ย. 2024
- Hey everyone, it's been one amazing year of TH-cam talking about Klinefelter syndrome. Spreading awareness to make a difference. Thank you all for the AMAZING support.
/ livingwithxxy
Instagram: @Livingwithxxy
Congrats on the 1 year anniversary.
You're totally right about not letting a diagnosis control you, you are the person you are no matter what 1 small thing says.
For instance, I wasn't diagnosed with KS until 3 and a bit years ago, I'm almost 50. Although I knew there was something different about me, I had no idea what. But, I've led a successful life, talented at school, a leader in each job I've had, I was even lucky enough to be able to father a son, very rare for someone with KS.
My diagnosis was a positive thing for me, I was able to start using Testosterone and my life is now pretty much normal, those differences have reduced.
Early diagnosis can be wonderful, with Testosterone there's no reason why you should feel any different at all. Let's face it, the only normal is having an issue or 2, nobody is issue-free.
YAAASSSS!!! Thank you!!thank you!! for your videos over the last year. You are a BIG BIG HUGE reason I have my little Klinefelters baby boy Alexander. I was urged to terminate my pregnancy and you gave me so much hope. Tomorrow baby Alex (6weeks old) and I fly out to Children’s Hospital Colorado to visit the eXtraordinarY Clinic for a Klinefelters research/study. I’m so blessed that I have such an amazing little boy and I’m overfilled with joy because of him.
Gracias!! Great video, thanks so much for sharing, it's a video I will watch more than once. Thanks 🙏👍
Love watching your channel! I met my boyfriend a year ago and I have to say that after he was up front with me early on about having Klinefelter’s syndrome I googled it because didn’t know much about it and saw that God awful picture and to be honest I was apprehensive about dating him because that picture is scary and intimidating but I am so glad I decided to ignore it and give him a chance to show me who he is, and not base any opinion on what he has. Coincidence but his name is Ryan and was also diagnosed in utero. He’s been on testosterone shots since he was born. I love watching your channel so that I can be the best support that I can be for him. We met when my daughter was 3 months old (and her “sperm donor” has never been in her life) and Ryan is her dad in every aspect! I can’t tell you how much I love this man and how amazing he is... Klinefelters doesn’t define someone. Thank you for what you’re doing!
Just delete the hate mail and all the negative comments. Don't even read them, Ryan. Pay no attention to the haters. You are helping SO many guys! You are doing a good work! But take care of yourself. I sometimes struggle with depression, too. One of the best remedies for me is walking in the sunshine (exercise + light).
I am XXY and ignore the experts.
I think it is important to note that what is in the textbooks are still mostly from before children were regularly karotype tested so many cases of Klinefelter would never be diagnosed and hence not treated during the formative years. As usual, many doctors simply have outdated information and bias. We can expect those treated from childhood to have far more normal development and lives. Also, there are still many adults who were born before testing was common so over a certain age, there are still men who simply do not even know they have the syndrome.
Thank You from the bottom of my heart !
Sou do Brasil.
Meu filho mais velho tem 11 anos de idade e tem XXY.
Seu canal é uma grande motivação para mim.
O meu filho tambem tem esse sindrome ele tem 6 anos cumo esta o seu filho?
Thanks for having this on TH-cam.
I have xxy sydome too.
I live a woundful and have a loving relationship with my partner.
I have depression but I have i ups and down but I happy.
Congratulations. And great work on this misunderstood condition.
I really like your channel and you're a role model for many.
My KS son was student council president and social committee chair at his hybrid school. Love breaking the stereotypes!
You are awesome, Ryan!!
When I search for details of xxy I often come across expecting mothers deciding on abortions.
What a horrible thought. These are lives worth living.
Congratulations so awesome
Congratulations! :)
Congrats!!!
Congrats and you are extremely attractive.
congrats!!!!
Does aminocentisis always show Klinefelter syndrome
I am really astonished! Having more x chromosome (klinefilter syndrome) means you have less testosterone than other men so how do you have beard hair?
Genetics other than KS, lots of guys have beard hair.
He was diagnosed in utero so he has been treated his whole life including testosterone treatments when needed. It's the many who were born before they started doing karotype tests on newborns and were never diagnosed that would've develop with low testosterone levels during childhood and puberty. Try to keep up...
How can I get in contact with you ?
Hi bro did you have Instagram or Facebook I want to talk with you