Better to learn early - I just found out at 61 and it explains so much about my struggles throughout life. If only I'd gotten testosterone replacement therapy whilst developing, I might have had a wife, family, and perhaps even a more professional career. But I've never kept a "normal" job for more than 3 years - I just can't get along with most people on a day-to-day basis 😢 We'll see if testosterone helps at 6+ decades of age 🤞
I don’t call it psychiatric . Besides, who created psychiatrists -God… I call it Spiritual Awakening a journey into the Dark Night of the Soul. Psychiatric is a label thrown on to us and it’s not helping us stay divine . Labels to XXY are unnecessary label 🏷️ that doesn’t define this syndrome at all . KS should be protected not degraded
I like his attitude, excellent. I don't appreciate other XXY men who are highly emotional, who listen to gossip, and act on the gossip they hear, without checking out the facts. I have 2 children by donor too. They're 26 and 27 today. If I wasn't XXY I would not have these two wonderful people in my life. When the children arrived, me being infertile just vanished. I was a dad and I have two children to care for, it was the best time of my life. The sad part is they had to grow up and leave home. Still, I'm always available to help out whenever they need my help, and I never say no. I will do anything for my children.
how can you hate on other xxy people when you know how it feels im sure your view changed, because your older but dont you realize the struggle young males have to go trough? no one talks about this problem in schools no one is aware about mental health of these people you cant even know how many kids like me are struggling in this very moment and are scared to talk about this problem and need help. Knowing something is wrong with the the the whole time im 17 and i struggle alot because of xxy in alot of things relationships included
Of course when you first discover infertility in your early twenties and not only is there zero compassion but no potential cause offered , in fact total medical disinterest, that poor mental health you mention can have a habit of becoming entrenched to potentially cause one to not only purposefully destroy their career, as I did, and yeah I was good at what I did, but for the first time in one's life enter into making poor life choices to make matters increasingly and in some case purposefully worse for yes self destructive I did become .Until something happens to cause medical questions to be asked to find eighteen years later one had been carrying an extra chromosome all along. Yippee help at last, nope, the medical disinterest perplexingly continued, nay, it actually became worse, to say as I sit here now twelve years post diagnosis, I have still not had any treatment for the syndrome I was diagnosed with, so no, testosterone was not offered and it was refused when I sought. The infertility, oo, now that is a pain that still burns deep coming up for forty years later, to know being informed of with no explanation or hope inspired, ruined my life.
I was suspected in June or July 1976. I had to wait until November to get my karyotype finished. Then I had to wait until July 1977 to see an Endocrinologist. Then it was October 1977 before I got testosterone, as my tiny testicles were pumping out low normal testosterone until then. Then, I had issues getting the injection, so I went onto capsules, but I was never any good at compliance. If they told me I could inject myself, all my problems getting the injection would have evaporated. I was very much being kept in the dark about my condition.
Nice work Gareth, Glad to have you on board as an advocate for our Nonprofit organization.
You are AMAZING Gareth!!!!! You and Anna are so wonderful! Thank you for your continued voice.
Amazing Gareth! Thank you so much for sharing your story and raising awareness 👏
This is fascinating. I had no idea. Thank you for sharing your story.
Thank you for sharing your story Gareth!
Thanks for sharing your amazing story, Gareth
Fantastic Gareth ❤ thank you for sharing ❤
Wow, this is excellent! Well done !
My story is the exact same, down to the twins.. but boys in my case. What can you do? Nothing but keep putting one foot in front of the other.
Wow what a video! Excellent. What an amazing story and so well told. Thank you for sharing this with us.
Our newborn has KS! Thank you so much for doing this.
Mine too … i found out today and I love him so much
Given the diagnostic criteria for KS it would be incorrect to describe a new born as having KS
Very true. KS occurs after child birth it’s NOT genetically developed. Ie God Chosen
Better to learn early - I just found out at 61 and it explains so much about my struggles throughout life.
If only I'd gotten testosterone replacement therapy whilst developing, I might have had a wife, family, and perhaps even a more professional career. But I've never kept a "normal" job for more than 3 years - I just can't get along with most people on a day-to-day basis 😢
We'll see if testosterone helps at 6+ decades of age 🤞
Thank you for sharing your story.
Great video!
I have never heard of the photographic memory thing, I have almost no short term memory. I am XXY.
Short term memory problems yes, that's common amongst us, but the long term memory is something special
I am XXY AS WELL , my photogenic memory is good and God speaks to me through Gematria and synchronicity
@@ernestsaenz2617 Psychiatric illness is more common in men with Klinefelter syndrome.
I don’t call it psychiatric . Besides, who created psychiatrists -God… I call it Spiritual Awakening a journey into the Dark Night of the Soul. Psychiatric is a label thrown on to us and it’s not helping us stay divine . Labels to XXY are unnecessary label 🏷️ that doesn’t define this syndrome at all . KS should be protected not degraded
Blueberries eats everyday! And greens when I juiced greens daily in months I was getting clear memories seeing them in my head.
I like his attitude, excellent. I don't appreciate other XXY men who are highly emotional, who listen to gossip, and act on the gossip they hear, without checking out the facts.
I have 2 children by donor too. They're 26 and 27 today. If I wasn't XXY I would not have these two wonderful people in my life. When the children arrived, me being infertile just vanished. I was a dad and I have two children to care for, it was the best time of my life.
The sad part is they had to grow up and leave home.
Still, I'm always available to help out whenever they need my help, and I never say no. I will do anything for my children.
how can you hate on other xxy people when you know how it feels im sure your view changed, because your older but dont you realize the struggle young males have to go trough? no one talks about this problem in schools no one is aware about mental health of these people you cant even know how many kids like me are struggling in this very moment and are scared to talk about this problem and need help. Knowing something is wrong with the the the whole time im 17 and i struggle alot because of xxy in alot of things relationships included
@fillipors_sk3161 . Trevor Isley here on TH-cam helped me live in 2017 year of my suicide ideation
Lol you clearly feel less of a man and are projecting all those gender stereotypes onto other men like you. Grow up.
Great job!! 👏🏾👏🏾👏🏾😎
Of course when you first discover infertility in your early twenties and not only is there zero compassion but no potential cause offered , in fact total medical disinterest, that poor mental health you mention can have a habit of becoming entrenched to potentially cause one to not only purposefully destroy their career, as I did, and yeah I was good at what I did, but for the first time in one's life enter into making poor life choices to make matters increasingly and in some case purposefully worse for yes self destructive I did become .Until something happens to cause medical questions to be asked to find eighteen years later one had been carrying an extra chromosome all along. Yippee help at last, nope, the medical disinterest perplexingly continued, nay, it actually became worse, to say as I sit here now twelve years post diagnosis, I have still not had any treatment for the syndrome I was diagnosed with, so no, testosterone was not offered and it was refused when I sought. The infertility, oo, now that is a pain that still burns deep coming up for forty years later, to know being informed of with no explanation or hope inspired, ruined my life.
If you want to talk to me never ever a problem. I am really sorry that you never ever got the care that you deserved
@@prettyfly4xxy Thank you, but there is now hope the horizon for I have won an appointment with the Klinefelter MDT clinic.
@@Coelacanth1 all the very best with your appointment
❤❤❤
Expected much more and not all xxy individuals qualify for testosterone injection.
Please feel free to put yourself forward to do your own Ted Talk. I do say XXY is a spectrum so whether a person needs testosterone or not varies.
I was suspected in June or July 1976. I had to wait until November to get my karyotype finished. Then I had to wait until July 1977 to see an Endocrinologist. Then it was October 1977 before I got testosterone, as my tiny testicles were pumping out low normal testosterone until then. Then, I had issues getting the injection, so I went onto capsules, but I was never any good at compliance. If they told me I could inject myself, all my problems getting the injection would have evaporated. I was very much being kept in the dark about my condition.
🎉🎉🎉❤🇪🇹
Same here bro from Ethio
how small are the nuts ?
Mentos
Mine were under 1.0mls volume. Normal is between 10.0 mls and 30.0mls volume. So that's tiny.
@@stoic.3354 Oh wow, giants! 🤣🤣🤣