Multiple Sclerosis Vlog: Beat The Heat
ฝัง
- เผยแพร่เมื่อ 1 ต.ค. 2024
- In this video, I teach you 3 top tips to beat the summer heat with Multiple Sclerosis.
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
**********************************************************
COMMENT with your thoughts and questions below! I look forward to reading and responding!
**********************************************************
SHARE this video: • Multiple Sclerosis Vlo...
***********************************************************
FOLLOW on Twitter: / aaronbostermd
FRIEND on Facebook: / aaronbostermd
SUBSCRIBE on TH-cam: / aaronbostermd
VISIT us on the web: BosterMS.com/
***********************************************************
NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
![[Full Episode] The Restaurant War Thailand ศึกพ่อค้าซ่าแม่ค้าแซ่บ Episode 2 | 29 ก.ย. 67](http://i.ytimg.com/vi/r3lfLNH6Ke4/mqdefault.jpg)
MS foundation/ MS association has cooling vest grant programs that MS’rs can apply for.❤️🤘🏻💪🏻
That is awesome!
Other countries with MS associated foundations or associations do as well.
Really?
Impeccable timing- the Warriors in the UK 🇬🇧 are sweltering- minimal A/C available there . #Sharingiscaring #wehavems Pro tip- adding salt to your ice 🧊 bath to put feet in- keeps it way cooler.
Thanks for sharing!!
Thank you Dr Boster - excellent tips for coping with the heat 🔥!! 🧯 🚒 🔥🔥🔥🔥🔥
Diagnosed with MS at age 49 sept 2021 after massive relapse. Still recovering and on Ocrevus m. I have been seeing improvements monthly as I have mobility back but deal with dizziness and leg weakness still. We sold house and moved to rancher down Jersey shore to escape steps and heat. Best advice and what I am just learning is to go out early or late to avoid heat. It’s hard to be a prisoner during heat if the day but I am trying to adapt. I also use free MS hat, kerchief and vest from MS society when I do go out. Great tips!!!!
Hey. If you're here in dirty Jersey - I know you're hurting the last two weeks. Omg. I feel like I'm going to die. Go for an evening dip for me chica. 💜💜
I feel sick and lightheaded just sitting indoors by the air conditioner.
Ice water on hand all the time has been life altering for me. I have extreme heat sensitivity that has gotten a bit better with Ocrevus but I find that drinking sips of ice water all day has improved my quality of life. I live in New York and the summers here can be brutal. I found a water bottle that keeps ice water cold with ice still in it for 12-13 hours (Hydroflask if anyone is interested) I fill it at night and keep it at my bedside. I wake up and have a cool drink. Throughout the day I keep refilling it with both water and ice. I still get hot but in this weather so does everyone. The difference is I’m not suffering.
It was 107* here in Montana yesterday. 🥵 I'm thankful for central air and Ampyra! The Ampyra has been life changing for me! It works for mobility, fatigue, and heat sensitivity for me. 😊
My neuro suggested Ampyra to me. Have you had any side effects from it? Was there any specific testing you had to do before starting it? Thank you
I unfortunately just got done with the 60 day trial, and didn't seen any impact in my symptoms or day to day life, kind of a shame.
How do you go about getting the medication? Also if there's a trial
Thank you for this video! I live in orlando, and the heat this summer has been god awful! After taking Lemtrada in 2020, I have most days where I forget I even have MS. Unfortunately, the past few weeks here I have been experiencing many of my symptoms returning, and I think it is because of the heat, as my latest MRI was stable.
Me too!! Lemtrada has been my saviour but yesterday my MS reminded me it's still there!!
I live in New Mexico. I use every device I can to stay cool; vests. I’m finding best relief from a small spray bottle keeping my head wet in moving air. I can’t get my doctors to even discuss Ampyra because they fear seizures which I’ve never had. But staying wet all the time is a road to rashes and perdition! I’m a prisoner in my own home!
Hey. I just got diagnosed last month with MS. I'm a USPS MAIL CARRIER. I deliver mail all day outdoors. 8-12 hours days 6 days a week. Just wondering your thoughts
You may need to change to an inside office job.
God bless to you precious angel, I'm pretty sure that you are physically fit seeing how you do what you do for your job. If you can get yourself a good cooling vest that might be a big help. I'm not sure how many years you've been doing that job but if it ever comes to a point where it's too much for you you may want to ask your supervisors if there is an indoor job that you could possibly do down the road. But for now you sound like you're toughest nails so I know you've got this. Take care
Good morning Dr. Boster. My recipe for heat is the Peter B Lewis pool during the day with a/c before and after. When Ampyra became too expensive it ceased to be a resident in my medicine cabinet. Doug coffee in hand from Lyndhurst.
Thank you Dr. Boster. I was doing last month the neurosurgery exam at university, despite 30+ C degrees I still got the maximum grade! Tomorrow I have another exam (radiology) and I equipped myself with a cooling jacket! 😊
Thank you, Dr. Boster, great tips! Now I know this is a long shot, but if you have any plus-sized female patients that use a cooling vest, can you ask them about their vest? I have searched and tried different vests, but none fit me because I'm a 3X. I've even tried men's but they are too tight up top. Like I said, I know it's a long shot but when I saw your video I was reminded of the trouble I've had finding a vest. Thanks!!
Hi! Brilliant video as always 😊 I'm in the U.K. and right now we are going through some extreme temperatures, 39 degrees which is incredibly hot for this country 😱 We are not prepared for this, most people don't have air conditioning at home. I have secondary progressive MS, I was diagnosed 16 years ago. Normally I suffer really badly with heat sensitivity, I can't walk and am so fatigued 😢 This year though is so different, I'm actually quite cold, I'm not feeling the heat at all 😱 This makes no sense to me, as my body obviously knows it is hot as I'm not walking well. I've never heard of someone feeling cold. Can anyone explain this please, thanks X
I can't imagine the hell of no air conditioning. I'm so sorry. Also, you had me at nodding my head until you said "cold" or cool. I wonder if maybe your body is somehow adapting to the hell heat, as a defense mechanism or something. That's wild. I guess that's not a super bad thing though. Good luck 🤗
Thank you for posting due to the heat I have been down for months
Awesome ideas! Thanks so much!
Thanks Dr Boster for reminder we don't need to stay inside all summer just b/c of extreme heat
Good morning, I have found that lightweight non synthetic blouses or shirts help me to keep my core temperature lower. Loose fitting ones help too.
Put a wet cloth in the freezer for a few minutes. Works a treat!
So this may be why I feel so tired
Have you found many female patients suffer when their core body temperature increases during ovulation? I seem to be in that category. It’s brutal for a few days even in the middle of winter. I’d love to know your thoughts on that
I've heard this in a fb support group for women with MS
Thank you Dr. Boster! Yes to all of the mentioned tips. Since moving across the pond I haven't kept up with your channel (I'll do better) but can't help but notice: did you loose weight? Anyway, we are in Germany now and there is no A/C and 100°... things are a bit ugly at the moment.
Aaron,
instantly I believed they made this "thanks button" just for you! Your so kind, giving, and humble.
-Aaron, thanks for the video and thanks for being my doctor.
GOSBLESS
Sincerely,
Cynthia Camille larsen
#BosterStrong
#wehavems
#strongertogether
Oh, Thank you so much ! It's unsually so hot where i leave. Cooling vest is expensive, so i am always with water spray and ventilo. I spray💦 on neck and inside elbows and knees, like à plant 😁.
Perfect!
Hi Dr. Boster, my husband gave me a rechargable neck fan and it helps keep me cool when I'm out and about.
Great tip!
I feel like I have to live in the Goldilocks zone. Not too hot, not too cold.
Good video doc!! Thank you!!
That's totally me! And the Goldilocks zone is about 3°C for me haha
Great info. I only exercise outside in the morning - prior to 8 am.
Good stuff!
Good morning. Thanks for this video. I take Fampyra twice daily for 8 months for my walking has changed things significantly but I had no idea it was good for heat also. That explains why I'm better in the heat than I was last year. Thanks again.
Wonderful!
Water definitely helps me so much. I’m drinking around a gallon a day.
Hello Dr. B, I was just recently prescribed the Ampyra by my docter but unfortunatelty the meds aren't available here in Indonesia, I was wondering if your online telecommunication session can give a medicine Prescription via this online communication? Thank you in advance😊🙏🏻
My goodness I wish that you were my neurologist. I’m having to transfer neurologists because the one I’m seeing doesn’t specialize in MS and it doesn’t feel like I am being treated the best. The one I’m transferring to does specialize in MS and hopefully things will be better. Keep up the good work, love your videos.
Omg my legs in this massive heat & humidity. I also almost fell asleep driving yesterday. That's never happened before. I got dizzy. It was weird & all I want to do is sleep.
I live in a country where the temperature never goes below 29 C and is +40 C most of the year. Unfortunately, my job requires me to be outside during the middle of the day sometimes and that what makes me go through difficulties.
I need to get a cooling vest and trying to identify a good one to use during exercise. This led me to your video from a few years ago when you did a cooling vest giveaway. It would be great if you could do it again and/or compare different types of cooling vests.
97 degrees here right now. Not happy :(
Yes! Ampyra is good medicine.
Dear Dr Aaron Boster, many thanks for your videos. What I do to overcome heat ( I live in Tehran-Iran which temperature goes up to 47c in summer) is that I smoke a little bit of cannabis and the feeling of my body temperature goes significantly down in a way that I even stop sweating!!
Have you ever heard this from anyone else?
Regards
I have young kids they want to be at the pool all summer. I just bought an ice pack neck wrap, I hope it helps. Those cooling fans are $100. Thanks for the tips
Can you compare the efficacy/ side effects of ampyra to the compounded 4-aminopyridine (4AP) specifically for beating the heat? I have taken ampyra (dalfampridine) for years. While it significantly helps my walking/balance I haven’t noticed aid with my heat issues.
Following. I'm going to try Ampyra, starting this week, but my insurance only covers for 3 months so I'm exploring the idea of getting 4-AP to use for the rest of the year, since it's a lot cheaper to pay for out of pocket.
I heard yesterday that you can put a wet rag in the freezer and take it out with you, or do the same with your socks. I’m going to send for a new cooling vest, since you mentioned our wonderful summers here in Ohio and the humidity that comes with it 🥵🥵
Great tip!
Well it's not a three dog night it's definitely almost Dog Days
I'll never forget my grandmother telling me that in dog days all dogs could really do is sit around and pant
Thanks Dr B! Going to ask my doctor about Ampyra
Great!
🔥🔥🌄🔥🔥
Living in Northeast Florida the heat index here is sometimes 1:15 Plus however I still sit outside a little bit just not during the peak hours of the day and I make sure I let a little sunlight get on my skin for the Vitamin D conversion thank you doctor
My first couple Ms attacks happened back in 2019ish and it was due to excessive Heat at least that's what I'm blaming it on
Went to my neurologist today for the first time in a year minus one month we'll have to go into detail later not happy though
I don’t have the same heat sensitivity as others. It has to be super hot for me to notice anything at all. Perhaps it’s because I sip ice water constantly and take Ampyra? Ampyra seems to do A LOT of things that aren’t listed in the material. My dr prescribed it for improved sensation during sex. It worked for that too!