I didn't realize it was classed as pain 🙈💜 I just knew what I was experiencing was uncomfortable. Cannabis really helped, I wish access was better here.
I also used cannabis for pain relief but the result was temporary. Eventually I stopped it, as well as the Tecfidera, which I was taking for 5 years cos I didn't make sense puffing and getting dumb for the sake of having no pain and these pills which I was feeling like I was doing worse than I was and realised it was all about piece of mind and inner calmness
I could write a book. Just on the many different pain issues that come in the MS luggage that I carry with me everyday. It is almost as entertaining as the dizziness or fatigue. Or whatever other daily disrupted path is laid out for me to maneuver
Am I the only one who is skeptical of pain doctors and their “contracts”? I’ve heard nothing but negative things about pain drs and pain clinics. Thanks for the video Dr.B.
I get a pain similar to sciatica running down my spine. I asked my neurologist as it was stopping me sleeping. They said to use adult colouring books as a grounding technique since MS can't cause pain. I can't see very well and my hand doesn't work so not terribly helpful! Thank you for helping my explaining yo me that the pain is real and I am not a nut job!
My love. If your doctor thinks this is actually true, it's time to start looking seriously for a new one. A doctor shouldn't be saying your pain doesn't exist, for any reason, ever.
Neuropathy seems the least understood aspect of medicine to PCP's.My doctor was was absolutely discounting 100% of what I was saying and my symptoms until I started having optic symptoms. Eventually making it to a Neuro -optometrist who got me to the right doctor. I have neuropathy and sciatica. I learned from this channel how to verbalize what was happening to me and relate that into a treatment plan , beyond my doctor asking me "what do you want me to do"? Good luck Also, I know it sucks to find a new doctor, but if your doc dosen't get it... Find one that does
Jeni please please please if you're able, get a new neurologist. What a horrible uneducated and arrogant response. You deserve much better care! I am incensed on your behalf, at the care you are receiving by this doctor. Best of luck to you.
I have to share this and you can do with it what you will I used to be on 3200 Mg of gabapentine for neuropathy. It was all controlling. Slowly, yes I started to drop down on it. Here’s the fun part, not really. I began ice baths 3-5 times a week and that made my neuropathy frequency drop to barely happening. And I continued to slowly drop down off of gabapentine. I’m actually now completely off of gabapentine, but the burning, itching, stinging happens once every few days. And now when it does, I have figured out the most amazing acute treatment. I freeze tiny small containers and have small blocks of ice. Once it begins, the burning, the worst pain almost, I begin rubbing ice on the area. It may take a couple a couple of times doing it for a few minutes, but 100% od the time, the brain decides that the “pain from the ice” will distract it from the neuropathy, and then it’s done. It’s gone and the rest of the night I’m good to go. Do sone research for the healing powers od ice, and then think about utilizing it. It’s the most energizing thing I’ve ever found also. If I’d known of it 20 years ago my disease course and happiness would have been completely different. Take care guys. There are things you can do besides medicine. We have got this! 😊
I have been dealing severe bilateral shoulder pain and neck pain I have my brain scan in few weeks hoping to figure this out can’t live with this pain forever
Wish I had seen this 8 years ago. My first neurologist was awesome, reminds me of you! Then he left the practice. I stayed at the MS center, mainly for insurance purposes $$$. Big mistake! Long story short, I was under treated. Finally found my original neurologist and started going back to him. He tried to address my issues to no avail. Still glad I changed back to his practice. Unfortunately, he passed away earlier this year. Still sticking with the same practice, coincidentally with one of his former residents from way back when. Anyway, appreciate all you do for our unique community!
I wonder if there are any other holistic options available. I appreciate your videos, and I am glad you spoke about cannabis. Cannabis has saved me from pain and several other symptoms as well. I am hoping we reach a point of adopting more integrative forms of medicine. Thank you for all you do Dr!
So glad I found you're videos! I have been diagnosed with Ms for 29 years. An area of skin on my back has burned for the past 6 years. It's like I am sunburned and someone is rubbing sandpaper over it. It is miserable. Heat makes it almost unbearable. I'm taking Gabapentin and it helps, but I'm walking around my house in sleeveless tops with comfortable shorts and it is winter! I use to love summer and heat. Now, Winter is when I feel Besr. I'm going to share some of these meds with my neurologist. Thank you for sharing this video!!!
Actually Doctor no one can feel what we feel🥺 maybe only Doctors because when I say on I have strong pain in some place they say it’s okay no problem it will go always 😑 when I explain they don’t understand that make me so sad😔may god bless u my favorite doctor ever🙏🏻
The constant neuropathic pain in my hands has been the single worst thing to affect my quality of life. Tried pregabalin but couldn't function on it; it felt like I was drunk. Hoping my neurologist can come up with an alternative, so this video was really useful for me. Thank you.
Dr.Boster you are a blessing for us whom are on this Journey...I was diagnosed and told via e-mail from my neurologist. I have only seen my neurologist twice in 2 years and get infusion therapy once every six months...thats all the interaction I have had...Just want to say thank you sir for your tireless efforts in giving us information that is needed to understand this baffling condition.....
I have constant pain in my legs that feels like someone is piling heavy pillars on them and crushing them. That’s besides all the other pain I have in my body, some ms related, some not, but still significant. I was on Gabapentin which did not help much. Then changed to Lyrica which was a little better. I also take Cymbalta and Topamax. I still stay in such a pain state I stay curled in a ball with the inability to sleep or eat. Narcotic meds help. However because doctors are afraid to prescribe them to me I can only get a few daily at a very low dose. I cherish the time I can take these and have a little relief. It angers me that doctors have the ability to give me more relief but won’t. I bide my time until the pain becomes to much and I know what I need to do because I refuse to live in such a state. I’m in my 60’s and I’m not going to become a drug addict. The doctors have such control over how many you can get and when you can get them filled I don’t know how anyone can. This country has made it so hard for legitimate pain patients by spouting statistics for drug addicts. It’s so unfair.
Or try to get prescribed subutex or whatever it's called. You can't od from it. It's what they give heroin addicts nowadays. Just tell them you're a junkie and you want to get clean.
Thank you so much Dr B. I've been so quiet in my MS Village lately, as I've been caring for my Dad with dementia but I've had a recent transverse myelitis relapse and I am struggling with it. Your videos empower and calm me. Thanks for everything you do; I hope you and your family are well and I am sending you a hug from Scotland. 🧡🏴
Good morning from Jersey! I am a “trifecta” according to my neurologist…ms, spine issues, and neuropathic pain. Consequently, I’m challenging to treat. The chronic pain I have in my leg and foot is unbearable. While I do use a lot of the meds and cannabis that you talk about, you definitely gave me some great talking points for my next visit! Thank you!
Excellent education Doc- many MS’rs do not realize that the neuropathic pain- can be treated- I’m so glad you touched on different meds that you use to treat it with. I am a definite topical THC cream user/ along with my meds . Great education- explaining the use of “ Medidine Edison” a full video of❤️. This is packed full of wonderful info. #SharingisCaring
Hey Dr. Boster! I participated in your live stream video chat a few days ago & am glad to see this video addressing some of my questions about nerve pain! With my first (& most recent MS relapse), I had widespread prickly nerve pain (independent of touch), electric shock when my knee was squeezed, & clothing felt scratchy. I called my neurologist & after a round of oral prednisone, the nerve pain has overall lessened but the prickly nerve pain is still present at times. Being that I experience too many side effects with the medications typically used to treat nerve pain, I'm looking into topical treatment options. So far, I've found Aspercreme w/ lidocaine helps & am going to look into CBD containing creams as well. Also, I hadn't made the connection until you mentioned it during your live stream (I think), but I have definitely noticed one of my triggers for nerve pain increasing in relationship to my monthlies & so am going to ask my gyn about taking the pill continuously instead of cyclic, thanks!
It’s funny you said Topamax, I was taking it when I had my first symptom: numbness in my leg. My doc at the time told me it was a rare side effect of Topamax! It wasn’t until I was writing out a medical history for my neurologist that I realized that it was likely my first MS symptom.
It seams my neuropathic pain is triggered by a lot of things I eat or drink. Most spicy foods really trigger it…. coffee and soda drinks seems to really flare it up my feet really get angry!!! I really like the scrolling words nice addition!!! Thank you as always!
Thank you Dr Boster - excellent video. Neuropathic pain is not well recognised by PwMS or Drs and therefore not appropriately treated. This information is empowering thank you 🔥🔥🔥🔥🔥
Thank you so much for All your videos . Here in Pennsylvania I have to travel to see my DR . And I’m new to all of this . I’m so grateful i found your channel . It’s a life saver , for real ! Thank you 🙏
Good afternoon Dr Boster, More great information, thank you for this, I really .do wish that the MS Hug was as nice as it sounds, a cuddly name for a horrible sensation. 🙃
My husband was stuck by lightning in 2000 and has a spine stimulator implanted in his back due to his nerve pain. I the one with MS and I use Lyrica and Cymbalta. Wish edibles were legal in our state.
I have Primary Progressive MS. I have the MS hug as well as stabbing pain in my feet and head. I find the Cannabis helps a lot but my specialist recommends strongly against it. It is a toss up for me, my pain is much better but my balance goes sideways.
I have a bug crawling on my feet and arms. It’ll make you feel crazy thinking it is actually stuff crawling around on you. I have a lot of hugging pains and pressure and my neck and spine are the worst.
Thanks for another great video! I have a request if you could so kindly make a video explaining being JC virus positive and MS. A loved one is on the fence about taking meds to treat MS in fear of getting PML.
You have mentioned 2 pains that I have that I don’t hear others talk about The first was the bone crushing. I had that for 26 days straight last summer when I got the 💉. Drs said it was most likely my immune system going in over drive Also was the vice on the leg. My affected leg feels like I have an elastic around my shin. Thanks for mentioning me 😊 💜💜
I believe I just read research article on baclofen and how it can help with remylination What are your thoughts on this? You have patients using baclofen 😀 great video AZ usual- and thank you !!
This was really good. I have RRMS- and central neuropathy. The pain I have is continuous. And I did the steroid shots. But me and my docs are working on I guess new meds because I’ve tooken something’s in this video and nothing helps. It is very upsetting.
Thank you for this information. I am in the UK. I get permanent neuropathic pain behind my eye since I was diagnosed in 1991 where my first symptom was retro bulbar neuritis. I have taken amytriptiline and pregabalin which did work for pain but I came off it when it stopped working. I was originally on tegretol first and it worked well, but it affected my liver and so I had to stop it. I just put up with it now. CBD oil has helped me along with tizinidine with muscle spasms in my calf muscles. I started tizinidine when it was fairly new as Zanaflex when baclofen stopped working.
My neuro is referring me to get my medical marijuana card. It is virtually the only thing I have found to help with my TN flare ups. Too often I have heard that MS does not cause pain, and it is my #1 symptom. I often get zingers. Random electrical pains or stinging pains that come and go in various body parts. It's very odd and random, but can be very intense in nature. I am so glad you are addressing this.
it has been suggested that Alpha Lipoic Acid may be beneficial to ease neuropathic symptoms by my neurologist.Do you have any experience or opinion of it?
I've had it hurt when my dog licks on my leg. Feel like I'm getting bit by a mosquito and I'm not. Or getting a needle stuck in me. Or, I can't feel sensation of wet. Along with other symptoms, complex partial siezures, vision issues, guts now....I have not been treated or diagnosed with Ms, just lupus, mixed connective tissue, and RA. I've been getting muscle spasms now in certain muscles for a few years now too. Oh well, I'll just keep taking notes! Thankyou for your videos
Thank you for the video! I have a lot of daily pain, but it's hard to get taken seriously sometimes when several different types of pain are happening simultaneously. My neuro shot down cannabis (probably because it's not legalized in my state), but I might try some edibles anyway because I've heard many positive stories. Thank you for discussing available treatment options!
Symptom that affects me, even after quitting job and having a wonderful Care giver, is pain. Lower back pain, Tooth pain. Knee weakness - Dr has temporarily given muscle relaxant, have an appointment next month - Pain God :-(
As creams were mentioned, I have had great success with capsaicin cream that can be purchased for less than $15 at cvs, walgreens, yeah any drugstore even including Walmart I have applied the cream to my fifth metatarsal and the art of my foot all the way up my tibialis anterior for my foot drop, videos are on my channel of me running after the 2015 paralysis. I was diagnosed in 1997 with symptoms since 1993 up in cleveland, Ohio
Thank you Dr Boster for another informative video. I occasionally experience neuropathic pain, for instance when I have been taking on too much work (or parties 😉) or with certain bad hormonal episodes. It can feel like an ice pick is being jammed into my ear (that one's particularly bad). Or I can have pain like an electric current running through my left arm as if I hit my funny bone. It never lasts long but it's very annoying and sometimes debilitating. I have these episodes about bimonthly. What would you advice your patient in such a situation?
Wait 1:26 life long leg pain, at night was told it was reynauds but I have thought otherwise because I got it in warm weather. My left leg mainly will go ice cold and have so much pain I cannot think of anything else. I use heating pads etc. I have whole body issues and adhd so I am trying to figure this out while waiting for the next doctor to schedule me(already saw ent, dentist, physician, and was referred to an allergist) I am so exhausted 4:17 ruined me(topamax) I take high doses of gaba.
Thanx for the info Dr.Boster, very informative! I was diagnosed in 2014 with relapsing/remitting MS and a syrinx at C4-6. I currently take Ocrevus. In the last year, my right hand and forearm have become increasingly numb and now, when I go to the beach, I lose a scary amount of strength in both my right arm and my right leg. I'm guessing this had to do with overheating? My MS clinician conducted EMGs and MRIs and concluded that I have no new lesions and my MS is not progressing. I'm curious why I am just now getting these symptoms if my disease is not getting worse? Thank you for any insight. Renee H, Florida
So Im using Ocrevus and they've found active lesions on the spine mri... my specialist said no use to change meds. The 2nd line are all almost the same... Don'tknow what to think about that ... She said, there is hsct but here in my country you need to have an actual relapse which I didn't have 😒🤔
I was recently diagnosed with MS. I have 3 spinal cord lesions, fortunately none in the brain. The difficulty I have is that I do get l'Hermittes down my left arm but I also have a bulging disc at C2/C3 and a herniated disc at C4/C5 that is flattening the ventral surface of the cord. 2 more bulging discs in the thoracic spine and my L5/S1 has virtually no disc height and what is left of it bulges out to the left. I've had left leg issues, especially in the hip flexor area and drop foot more recently. Essentially I have a noticeable, sometimes very measurable disc issue in the area of each lesion. How does one help differentiate between MS symptoms and Degenerative Disc Disease and arthritis (which runs in our family)?
Tried Lyrica initially to help hand pain, no luck. Was on THC / CBD oil for 2-3 months to no avail either Using LDN for 3 months and so far zero relief. Might need to go onto Cymbalta or Endep next. Hopefully one of those helps.
I was diagnosed with EBV years ago. I sometimes have a fire pain on my skin. Patches of the skin for a few days. I also have seizures in my sleep. I feel lots of pain, but have been in a few car accidents. Im wondering if I have a higher chance of getting MS. ?
I keep getting pricked everywhere randomly all day and night some make me jump some dont its as painful as a blackberry bush prick or sometimes feels a sharpe like pain when ur feet fall asleep but more severe i also feel the burning feeling all over feet under nails everywhere also hsve blurry vision for a couple months.
I am dealing with burning and tingling,numbness (tongue,legs) and some kind of cold feeling after quick severe anxiety attack almost a week,it could be a relapse? I had the same problem 4 month ago because of burning and crawling feeling I got Solumedrol. My ms scans does not even show up any progression at all.Does it mean that Solumedrol was given and stop spreading lesions or it was not real relapse? I am so confused.
Dr. B I have a question for you. You said edibles. What if you can't handle the taste of most edibles. S instead I have been smoking flower. If you wouldn't recommend using flower, what would you recommend?
Dr B, what meds other than Tysabri would you recommend to an MS patient who is also diagnosed with Crohns? I am JCV positive and have been on Ocrevus for 5 years ( JC levels pre Ocrevus were 2.5). Before Ocrevus was on Fingolimod but have recurring Uveitis .Been off Ocrevus for almost a year now while being diagnosed with the Crohns.
I want to take cbd oil but im taking atrovastatin and they dont mix together , i dont know what to do as i do want to try cbd but i do need help with high cholesterol..any advice
Hi, I am waiting to have my MS work up as I have so many symptoms. Have you ever heard of patients have hypersensitivity with vocal cords and or laryngeal?
I don't have an MS dx yet, but I feel your pain. I've got nerve pain all over my body and even in my mouth and in my jaw. My upper body hurts to the point I now sleep in my recliner bciz being in the bed hurts my arms too much. Not to mention I ha e horrible insomnia. I now feel pain in my neck just below my jaw. I feel pain all over my body nearly every day. I hate it. I'm hoping to see Dr. Boster soon. I'm waiting for records to be sent to his office so I can get an appointment for a consultation.
Ditto. Burning legs, insomnia, constant fatigue, makes me so miserable. I found swimming helps, the cold water gives me relief from the burning sensation. Also swimming is very relaxing.
I just started on cymbalta yesterday after putting it off for nearly a year when my neurologist’s office recommended it. I wanted to try and see if it would pass on its own. Once my primary recommended it Friday I decided to take the leap. Does anyone have suggestions for the nausea the comes along with this?
Yes. carry a bucket or don't leave home. I have heard of using the patch for seasickness, (Meclazine??) but it's expensive and very, very temporary. There's nothing but folk cure and lore. It either goes on its own or you stop the med as having intolerable side effects It is really common with this med. Sorry. That's about it for choices.
hi i am dealing with burning sensation on my extremities along with my face, now my scalp. the tip of my tongue, the back of my throat my eye balls. its driving me insane. is this normal. i wanna scratch and everywhere and also shave my head. i just did blood work a few days ago. i got pain med however its not helping. i wanna scratch my skin off. the last time i felt like this was during my last 2 pregnancies and my liver enzymes waS elevated my gall bladder was removed a month after my son was born. I am an itchy mess right now. lidocaine aint it for me. im globbing it up all over. i needs something for my mouth/throat its on fire. any suggestions. my neuro stating they never heard of this. have you had anyone with this itchy mess.
I got two attacks when my leg felt weird and reacted weird to cold and hot water. One of my attacks was a strange feeling around my body, it felt like somebody wrapped my torso with a wire or something.
I have a sensation that my fingers/ hands are being crushed/squeezed when I’m falling asleep or just waking up, during a day is not noticeable only in those periods that my body is coming of sleep. I don’t have MS diagnosis and every doctor ignores this symptom that greatly affects me and bothers me as it is single day for two years, I also have vibrations in body and sort of squeezing sensation in brain. Doctor can you please tell me what to rule out and who to go to as I’m desperate, i can’t tell if this is vascular or neuropathic. Do I need antibiotics and perhaps this is of bacterial origin? What are your thoughts ? Please help as no one is giving me any direction on what to do
I use Lyrica 200mg per day in two times and it helps reduce the pain in my hands. I also vape thc but im not sure its helping for this, maybe more with muscle spasticity. I send wishes to all fellow sick people that rends this ❤
I didn't realize it was classed as pain 🙈💜 I just knew what I was experiencing was uncomfortable. Cannabis really helped, I wish access was better here.
#StrongerTogether #WeHaveMS BosterMS.com
TN here, I wish it was here too
I also used cannabis for pain relief but the result was temporary. Eventually I stopped it, as well as the Tecfidera, which I was taking for 5 years cos I didn't make sense puffing and getting dumb for the sake of having no pain and these pills which I was feeling like I was doing worse than I was and realised it was all about piece of mind and inner calmness
Thank God I live in WA!
Delta 8 gummies. Start 25 mg. ❤ legal (unless you get pulled over with them) and we'll their tasty! And help me. ❤
I get more info from this channel than my neuro. Good grief, I need a new specialist.
I could write a book. Just on the many different pain issues that come in the MS luggage that I carry with me everyday. It is almost as entertaining as the dizziness or fatigue. Or whatever other daily disrupted path is laid out for me to maneuver
Am I the only one who is skeptical of pain doctors and their “contracts”? I’ve heard nothing but negative things about pain drs and pain clinics.
Thanks for the video Dr.B.
I get a pain similar to sciatica running down my spine. I asked my neurologist as it was stopping me sleeping. They said to use adult colouring books as a grounding technique since MS can't cause pain. I can't see very well and my hand doesn't work so not terribly helpful! Thank you for helping my explaining yo me that the pain is real and I am not a nut job!
Thank you for giving me the confidence to ask again about pain relief as the thought of living in this much persistent pain was becoming unbearable.
Sorry to hear about such an arrogant response from your Neurologist .
Are you seeing MS specialist or general neurologist?
My love. If your doctor thinks this is actually true, it's time to start looking seriously for a new one. A doctor shouldn't be saying your pain doesn't exist, for any reason, ever.
Neuropathy seems the least understood aspect of medicine to PCP's.My doctor was was absolutely discounting 100% of what I was saying and my symptoms until I started having optic symptoms. Eventually making it to a Neuro -optometrist who got me to the right doctor. I have neuropathy and sciatica. I learned from this channel how to verbalize what was happening to me and relate that into a treatment plan , beyond my doctor asking me "what do you want me to do"? Good luck
Also, I know it sucks to find a new doctor, but if your doc dosen't get it... Find one that does
Jeni please please please if you're able, get a new neurologist. What a horrible uneducated and arrogant response. You deserve much better care! I am incensed on your behalf, at the care you are receiving by this doctor. Best of luck to you.
I have constant neuropathic pain and use gabapentin and medical cannabis. Catches about 85% of the pain.
Hi is that better than lyrica because lyrica ain't touching my pain at all 🙏❤️
I have to share this and you can do with it what you will
I used to be on 3200 Mg of gabapentine for neuropathy. It was all controlling. Slowly, yes I started to drop down on it.
Here’s the fun part, not really. I began ice baths 3-5 times a week and that made my neuropathy frequency drop to barely happening. And I continued to slowly drop down off of gabapentine. I’m actually now completely off of gabapentine, but the burning, itching, stinging happens once every few days. And now when it does, I have figured out the most amazing acute treatment. I freeze tiny small containers and have small blocks of ice. Once it begins, the burning, the worst pain almost, I begin rubbing ice on the area. It may take a couple a couple of times doing it for a few minutes, but 100% od the time, the brain decides that the “pain from the ice” will distract it from the neuropathy, and then it’s done. It’s gone and the rest of the night I’m good to go. Do sone research for the healing powers od ice, and then think about utilizing it. It’s the most energizing thing I’ve ever found also. If I’d known of it 20 years ago my disease course and happiness would have been completely different. Take care guys. There are things you can do besides medicine. We have got this! 😊
I have been dealing severe bilateral shoulder pain and neck pain I have my brain scan in few weeks hoping to figure this out can’t live with this pain forever
Do you have an update?
Wish I had seen this 8 years ago. My first neurologist was awesome, reminds me of you! Then he left the practice. I stayed at the MS center, mainly for insurance purposes $$$. Big mistake! Long story short, I was under treated. Finally found my original neurologist and started going back to him. He tried to address my issues to no avail. Still glad I changed back to his practice. Unfortunately, he passed away earlier this year. Still sticking with the same practice, coincidentally with one of his former residents from way back when.
Anyway, appreciate all you do for our unique community!
I wonder if there are any other holistic options available. I appreciate your videos, and I am glad you spoke about cannabis. Cannabis has saved me from pain and several other symptoms as well. I am hoping we reach a point of adopting more integrative forms of medicine. Thank you for all you do Dr!
So glad I found you're videos! I have been diagnosed with Ms for 29 years. An area of skin on my back has burned for the past 6 years. It's like I am sunburned and someone is rubbing sandpaper over it. It is miserable. Heat makes it almost unbearable. I'm taking Gabapentin and it helps, but I'm walking around my house in sleeveless tops with comfortable shorts and it is winter! I use to love summer and heat. Now, Winter is when I feel Besr. I'm going to share some of these meds with my neurologist. Thank you for sharing this video!!!
Actually Doctor no one can feel what we feel🥺 maybe only Doctors because when I say on I have strong pain in some place they say it’s okay no problem it will go always 😑 when I explain they don’t understand that make me so sad😔may god bless u my favorite doctor ever🙏🏻
The constant neuropathic pain in my hands has been the single worst thing to affect my quality of life. Tried pregabalin but couldn't function on it; it felt like I was drunk. Hoping my neurologist can come up with an alternative, so this video was really useful for me. Thank you.
Hey did your new medicine worked ?
Can you describe the neuropathic pain ? I have a finger squeezing sensation every night
You’re the best MMJ helps me greatly without side effects of big pharma
Dr.Boster you are a blessing for us whom are on this Journey...I was diagnosed and told via e-mail from my neurologist. I have only seen my neurologist twice in 2 years and get infusion therapy once every six months...thats all the interaction I have had...Just want to say thank you sir for your tireless efforts in giving us information that is needed to understand this baffling condition.....
I have constant pain in my legs that feels like someone is piling heavy pillars on them and crushing them. That’s besides all the other pain I have in my body, some ms related, some not, but still significant. I was on Gabapentin which did not help much. Then changed to Lyrica which was a little better. I also take Cymbalta and Topamax. I still stay in such a pain state I stay curled in a ball with the inability to sleep or eat. Narcotic meds help. However because doctors are afraid to prescribe them to me I can only get a few daily at a very low dose. I cherish the time I can take these and have a little relief. It angers me that doctors have the ability to give me more relief but won’t. I bide my time until the pain becomes to much and I know what I need to do because I refuse to live in such a state. I’m in my 60’s and I’m not going to become a drug addict. The doctors have such control over how many you can get and when you can get them filled I don’t know how anyone can. This country has made it so hard for legitimate pain patients by spouting statistics for drug addicts. It’s so unfair.
i hope you're doing a little better right now, you're in my thoughts
Or try to get prescribed subutex or whatever it's called. You can't od from it. It's what they give heroin addicts nowadays. Just tell them you're a junkie and you want to get clean.
Thank you so much Dr B. I've been so quiet in my MS Village lately, as I've been caring for my Dad with dementia but I've had a recent transverse myelitis relapse and I am struggling with it. Your videos empower and calm me. Thanks for everything you do; I hope you and your family are well and I am sending you a hug from Scotland. 🧡🏴
What were your TM relapse symptoms?
ThankYou so much! 🙏🇨🇦😉👍🏼
No problem 👍
Good morning from Jersey! I am a “trifecta” according to my neurologist…ms, spine issues, and neuropathic pain. Consequently, I’m challenging to treat. The chronic pain I have in my leg and foot is unbearable. While I do use a lot of the meds and cannabis that you talk about, you definitely gave me some great talking points for my next visit! Thank you!
Thanks for all your help with MS.
Any time!
Thank you for the Monday morning video. Doug coffee in hand on the deck from Lyndhurst.
Morning!
Excellent education Doc- many MS’rs do not realize that the neuropathic pain- can be treated- I’m so glad you touched on different meds that you use to treat it with. I am a definite topical THC cream user/ along with my meds . Great education- explaining the use of “ Medidine Edison” a full video of❤️.
This is packed full of wonderful info. #SharingisCaring
Thank you!
Hey Dr. Boster! I participated in your live stream video chat a few days ago & am glad to see this video addressing some of my questions about nerve pain!
With my first (& most recent MS relapse), I had widespread prickly nerve pain (independent of touch), electric shock when my knee was squeezed, & clothing felt scratchy. I called my neurologist & after a round of oral prednisone, the nerve pain has overall lessened but the prickly nerve pain is still present at times. Being that I experience too many side effects with the medications typically used to treat nerve pain, I'm looking into topical treatment options. So far, I've found Aspercreme w/ lidocaine helps & am going to look into CBD containing creams as well.
Also, I hadn't made the connection until you mentioned it during your live stream (I think), but I have definitely noticed one of my triggers for nerve pain increasing in relationship to my monthlies & so am going to ask my gyn about taking the pill continuously instead of cyclic, thanks!
You are the best person who does understand my feelings after 4 years. Thank you ❤❤❤
It’s funny you said Topamax, I was taking it when I had my first symptom: numbness in my leg. My doc at the time told me it was a rare side effect of Topamax! It wasn’t until I was writing out a medical history for my neurologist that I realized that it was likely my first MS symptom.
Very interesting. I learn something new every time I listen to you. Thanks 👍👍👍👍👍👍
It seams my neuropathic pain is triggered by a lot of things I eat or drink. Most spicy foods really trigger it…. coffee and soda drinks seems to really flare it up my feet really get angry!!!
I really like the scrolling words nice addition!!!
Thank you as always!
Thanks for sharing!
What type of foods? Do you follow a specific diet?
Thank you Dr Boster - excellent video. Neuropathic pain is not well recognised by PwMS or Drs and therefore not appropriately treated. This information is empowering thank you 🔥🔥🔥🔥🔥
Glad it was helpful!
Thank you so much for All your videos . Here in Pennsylvania I have to travel to see my DR . And I’m new to all of this . I’m so grateful i found your channel . It’s a life saver , for real ! Thank you 🙏
You are so welcome!
Awesome information, your my fav Neurologist 👍🥰🙏
You’re the best as usual
Thank you for your information! It is greatly appreciated.
Good afternoon Dr Boster, More great information, thank you for this, I really .do wish that the MS Hug was as nice as it sounds, a cuddly name for a horrible sensation. 🙃
My husband was stuck by lightning in 2000 and has a spine stimulator implanted in his back due to his nerve pain. I the one with MS and I use Lyrica and Cymbalta. Wish edibles were legal in our state.
I have Primary Progressive MS. I have the MS hug as well as stabbing pain in my feet and head. I find the Cannabis helps a lot but my specialist recommends strongly against it. It is a toss up for me, my pain is much better but my balance goes sideways.
Amitriptyline helps my Nero pain,
Big thanks 🔥🔥🔥🔥🔥🇬🇧
Thanks!
Welcome! WOW!
I have a bug crawling on my feet and arms. It’ll make you feel crazy thinking it is actually stuff crawling around on you. I have a lot of hugging pains and pressure and my neck and spine are the worst.
Excellent information, per usual☺ Thank you such a great video!
Thank you! We need to collab again asap!
Edibles really help me with spasms!
Thanks for another great video! I have a request if you could so kindly make a video explaining being JC virus positive and MS. A loved one is on the fence about taking meds to treat MS in fear of getting PML.
You have mentioned 2 pains that I have that I don’t hear others talk about
The first was the bone crushing. I had that for 26 days straight last summer when I got the 💉. Drs said it was most likely my immune system going in over drive
Also was the vice on the leg. My affected leg feels like I have an elastic around my shin.
Thanks for mentioning me 😊
💜💜
I believe I just read research article on baclofen and how it can help with remylination
What are your thoughts on this? You have patients using baclofen
😀 great video AZ usual- and thank you !!
This was really good. I have RRMS- and central neuropathy. The pain I have is continuous. And I did the steroid shots. But me and my docs are working on I guess new meds because I’ve tooken something’s in this video and nothing helps. It is very upsetting.
Thank you for this information. I am in the UK. I get permanent neuropathic pain behind my eye since I was diagnosed in 1991 where my first symptom was retro bulbar neuritis.
I have taken amytriptiline and pregabalin which did work for pain but I came off it when it stopped working. I was originally on tegretol first and it worked well, but it affected my liver and so I had to stop it.
I just put up with it now.
CBD oil has helped me along with tizinidine with muscle spasms in my calf muscles. I started tizinidine when it was fairly new as Zanaflex when baclofen stopped working.
My neuro is referring me to get my medical marijuana card. It is virtually the only thing I have found to help with my TN flare ups. Too often I have heard that MS does not cause pain, and it is my #1 symptom. I often get zingers. Random electrical pains or stinging pains that come and go in various body parts. It's very odd and random, but can be very intense in nature. I am so glad you are addressing this.
I'm usually in the most pain when driving, but this type of pain shows up every couple years.
I was told to get a psychiatrist for "All" my symptoms from my primary. I'll never get diagnosed.
Thank you Doctor Boster 🔥 🔥 🔥
My pleasure!
By the way it’s my goal now is to visit Boster center and I hope it’s soon 🙏🏻🎗
it has been suggested that Alpha Lipoic Acid may be beneficial to ease neuropathic symptoms by my neurologist.Do you have any experience or opinion of it?
Thanks again!
Any time!
Hi Doctor so nice to hear a neurologist who is interested and helpful. Have you any thoughts on hsct for ms
I've had it hurt when my dog licks on my leg. Feel like I'm getting bit by a mosquito and I'm not. Or getting a needle stuck in me. Or, I can't feel sensation of wet. Along with other symptoms, complex partial siezures, vision issues, guts now....I have not been treated or diagnosed with Ms, just lupus, mixed connective tissue, and RA. I've been getting muscle spasms now in certain muscles for a few years now too. Oh well, I'll just keep taking notes! Thankyou for your videos
Thank you for the video! I have a lot of daily pain, but it's hard to get taken seriously sometimes when several different types of pain are happening simultaneously. My neuro shot down cannabis (probably because it's not legalized in my state), but I might try some edibles anyway because I've heard many positive stories. Thank you for discussing available treatment options!
I have no pain but balance n burning sensation at times
Incontinence is now gone due to rebiff 44 injections
Do THCP gummies help with pain ( low dose moderate)
Symptom that affects me, even after quitting job and having a wonderful Care giver, is pain. Lower back pain, Tooth pain. Knee weakness - Dr has temporarily given muscle relaxant, have an appointment next month - Pain God :-(
Thank u for the all the info doctor I was diagnosed with polyneuropathy but EMMG is clean no nerve damage any addvice please?
Good morning
Morning
As creams were mentioned, I have had great success with capsaicin cream that can be purchased for less than $15 at cvs, walgreens, yeah any drugstore even including Walmart
I have applied the cream to my fifth metatarsal and the art of my foot all the way up my tibialis anterior for my foot drop, videos are on my channel of me running after the 2015 paralysis. I was diagnosed in 1997 with symptoms since 1993 up in cleveland, Ohio
Thank you for sharing this valuable information, what does it mean to have active disease in the brain? Does it become inactive when taking DMT?
Thank you Dr Boster for another informative video. I occasionally experience neuropathic pain, for instance when I have been taking on too much work (or parties 😉) or with certain bad hormonal episodes. It can feel like an ice pick is being jammed into my ear (that one's particularly bad). Or I can have pain like an electric current running through my left arm as if I hit my funny bone. It never lasts long but it's very annoying and sometimes debilitating. I have these episodes about bimonthly. What would you advice your patient in such a situation?
I also get this. 😢
Wait 1:26 life long leg pain, at night was told it was reynauds but I have thought otherwise because I got it in warm weather. My left leg mainly will go ice cold and have so much pain I cannot think of anything else. I use heating pads etc. I have whole body issues and adhd so I am trying to figure this out while waiting for the next doctor to schedule me(already saw ent, dentist, physician, and was referred to an allergist) I am so exhausted
4:17 ruined me(topamax) I take high doses of gaba.
Can an MRI determine diagnosis?
Thanx for the info Dr.Boster, very informative!
I was diagnosed in 2014 with relapsing/remitting MS and a syrinx at C4-6. I currently take Ocrevus.
In the last year, my right hand and forearm have become increasingly numb and now, when I go to the beach, I lose a scary amount of strength in both my right arm and my right leg. I'm guessing this had to do with overheating?
My MS clinician conducted EMGs and MRIs and concluded that I have no new lesions and my MS is not progressing. I'm curious why I am just now getting these symptoms if my disease is not getting worse?
Thank you for any insight.
Renee H, Florida
So Im using Ocrevus and they've found active lesions on the spine mri... my specialist said no use to change meds. The 2nd line are all almost the same...
Don'tknow what to think about that ...
She said, there is hsct but here in my country you need to have an actual relapse which I didn't have 😒🤔
I was recently diagnosed with MS. I have 3 spinal cord lesions, fortunately none in the brain. The difficulty I have is that I do get l'Hermittes down my left arm but I also have a bulging disc at C2/C3 and a herniated disc at C4/C5 that is flattening the ventral surface of the cord. 2 more bulging discs in the thoracic spine and my L5/S1 has virtually no disc height and what is left of it bulges out to the left. I've had left leg issues, especially in the hip flexor area and drop foot more recently. Essentially I have a noticeable, sometimes very measurable disc issue in the area of each lesion. How does one help differentiate between MS symptoms and Degenerative Disc Disease and arthritis (which runs in our family)?
Mine is getting worse... It's moved slowly down my left side from my neck, it's now affecting the leg.. Hoping I can get effective help with this
Tried Lyrica initially to help hand pain, no luck. Was on THC / CBD oil for 2-3 months to no avail either
Using LDN for 3 months and so far zero relief.
Might need to go onto Cymbalta or Endep next. Hopefully one of those helps.
I was diagnosed with EBV years ago. I sometimes have a fire pain on my skin. Patches of the skin for a few days. I also have seizures in my sleep. I feel lots of pain, but have been in a few car accidents. Im wondering if I have a higher chance of getting MS. ?
My neurologist refuses to discuss the use of CBD or THC.
I keep getting pricked everywhere randomly all day and night some make me jump some dont its as painful as a blackberry bush prick or sometimes feels a sharpe like pain when ur feet fall asleep but more severe i also feel the burning feeling all over feet under nails everywhere also hsve blurry vision for a couple months.
❤❤❤thank you
I am dealing with burning and tingling,numbness (tongue,legs) and some kind of cold feeling after quick severe anxiety attack almost a week,it could be a relapse? I had the same problem 4 month ago because of burning and crawling feeling I got Solumedrol. My ms scans does not even show up any progression at all.Does it mean that Solumedrol was given and stop spreading lesions or it was not real relapse? I am so confused.
Dr. B I have a question for you. You said edibles. What if you can't handle the taste of most edibles. S instead I have been smoking flower. If you wouldn't recommend using flower, what would you recommend?
Dr B, what meds other than Tysabri would you recommend to an MS patient who is also diagnosed with Crohns? I am JCV positive and have been on Ocrevus for 5 years ( JC levels pre Ocrevus were 2.5). Before Ocrevus was on Fingolimod but have recurring Uveitis .Been off Ocrevus for almost a year now while being diagnosed with the Crohns.
Would a tens unit serve for home use, for the "Edison technique"?
I want to take cbd oil but im taking atrovastatin and they dont mix together , i dont know what to do as i do want to try cbd but i do need help with high cholesterol..any advice
Hi, I am waiting to have my MS work up as I have so many symptoms. Have you ever heard of patients have hypersensitivity with vocal cords and or laryngeal?
i manage all symptoms with cannabis, balanced hybrids because i can get things done and not be burdened with my complaints!
❤❤❤❤❤
Hello, ive just started duloxetine (30mg) and baclofen (10mg) is it safe to start gabapentine? My ms nurse said no but i need a second opinion
Thank you ❤❤❤🎉🎉🎉😂😂😂😢😢😢😢😮😮😮😅😅😅
I know that it is. I deal with it on a daily basis.
My back also burns like hell but no rash etc.
I can count on one hand the times that I've been able to sleep through the night due to pain. I'm miserable.
I don't have an MS dx yet, but I feel your pain. I've got nerve pain all over my body and even in my mouth and in my jaw. My upper body hurts to the point I now sleep in my recliner bciz being in the bed hurts my arms too much. Not to mention I ha e horrible insomnia. I now feel pain in my neck just below my jaw. I feel pain all over my body nearly every day. I hate it. I'm hoping to see Dr. Boster soon. I'm waiting for records to be sent to his office so I can get an appointment for a consultation.
Ditto. Burning legs, insomnia, constant fatigue, makes me so miserable. I found swimming helps, the cold water gives me relief from the burning sensation. Also swimming is very relaxing.
Hello Doctor :
What is difference between MS and small fiber neruropathy?
I have numbness tingling in all my body . My MRI is normal
Did you find anymore out? Sending positive vibes.
@@ED-he7ts yeah did you?
Why am I considering moving to Ohio? How can I find a great neurologist like Dr B?
I just started on cymbalta yesterday after putting it off for nearly a year when my neurologist’s office recommended it. I wanted to try and see if it would pass on its own. Once my primary recommended it Friday I decided to take the leap. Does anyone have suggestions for the nausea the comes along with this?
Yes. carry a bucket or don't leave home. I have heard of using the patch for seasickness, (Meclazine??) but it's expensive and very, very temporary. There's nothing but folk cure and lore. It either goes on its own or you stop the med as having intolerable side effects It is really common with this med. Sorry. That's about it for choices.
What do they call it when my head aches like I have been hit in the head with something?
Is intense itching a version of neuropathic pain?
yes, I have a few videos on my channel on this topic. Do a search for pathologic itching!
@@AaronBosterMD pathologic itching, got it. Thanks!
my doc wants me to try a ketamine infusion for the pain. i am trying to find more information
hi i am dealing with burning sensation on my extremities along with my face, now my scalp. the tip of my tongue, the back of my throat my eye balls. its driving me insane. is this normal. i wanna scratch and everywhere and also shave my head. i just did blood work a few days ago. i got pain med however its not helping. i wanna scratch my skin off. the last time i felt like this was during my last 2 pregnancies and my liver enzymes waS elevated my gall bladder was removed a month after my son was born. I am an itchy mess right now. lidocaine aint it for me. im globbing it up all over. i needs something for my mouth/throat its on fire. any suggestions. my neuro stating they never heard of this. have you had anyone with this itchy mess.
I got two attacks when my leg felt weird and reacted weird to cold and hot water. One of my attacks was a strange feeling around my body, it felt like somebody wrapped my torso with a wire or something.
I wish I was your patient. 😢
Can stress cause Neuropathic Pain
I need to make an appt. Do you do zooms
I have a sensation that my fingers/ hands are being crushed/squeezed when I’m falling asleep or just waking up, during a day is not noticeable only in those periods that my body is coming of sleep. I don’t have MS diagnosis and every doctor ignores this symptom that greatly affects me and bothers me as it is single day for two years, I also have vibrations in body and sort of squeezing sensation in brain. Doctor can you please tell me what to rule out and who to go to as I’m desperate, i can’t tell if this is vascular or neuropathic. Do I need antibiotics and perhaps this is of bacterial origin? What are your thoughts ? Please help as no one is giving me any direction on what to do
I use Lyrica 200mg per day in two times and it helps reduce the pain in my hands.
I also vape thc but im not sure its helping for this, maybe more with muscle spasticity.
I send wishes to all fellow sick people that rends this ❤