Thank you for this Video and explanation I have MS going on 4 years now I’ve noticed a decline in my 5th year energy is zapped and more loss of feeling
Watching this video should be a requirement for anyone who has just been diagnosed with MS, it contains a tremendous amount of practical and useful information, wish I had seen a video like this, when I was diagnosed with MS 13 years ago.
Totally agree when I was diagnosed 20 odd years ago, I only knew MS from the movie about Annette Funichello, so basically nothing, the doctor and my family kept telling me it was no big deal.
Totally agree. When I was diagnosed 30 odd yes ago, I didn’t know anything about it except that all the older people around me kind of turned weird when I told them I was diagnosed. Apparently they had a story in their head that I would become a vegetable of some sort. (I’m exaggerating, but they DID treat me different!) My neurologist seemed to be a Eeyore who was just waiting to see how bad it would get. Meanwhile, I kept riding my bike and walking everywhere and playing music and I quit smoking. It took this long for me to start a DMT but that’s because they are better now.
I'd like to say thank you, you've made me realise I'm doing most of the things I should be doing to help myself. I did have RR MS and was diagnosed as progressive a couple of months ago. I mountain bike 2-3 times a week and this is great exercise and mindfulness. You've also made me realise that I need to be honest with my neurologist and ask for help/support as I don't tend to do this. Thank you for being a fantastic Neurologist and explaining everything in layman's terms, keep up the good work x
1. Don't smoke stuff 2. Exercise as part of your lifestyle: balance, core strengthening, limb flexibility, and cardiovascular endurance 3. Eat smart: drink more water, supplement vitamin D3, and avoid fast-food 4. Daily mindfulness: practice breathing 5. Take the most effective and comfortable disease-modifying therapy
Work outside in the sun a lot , make your work as hard as you can. I have a vending company and I used to park my truck as far away from the location. Everybody would tell me to park closer but I didn’t. I’m parked as far away as I could so I can get the most amount ofphysical activity since I had to work and be sick I’m 63 still working first symptoms 24
When I wake up in the morning, I feel groggy, but listening attentively to this video boosted my moxie and motivated me to shoot past this ailment and smile! Knowing that I'm not alone makes me feel okay with this. 😌
I wish I had you as my doctor my doctor never explained any of this and now I understand it all because of you. Your an ANGEL 😇 God bless and thank you.
I went to a neurologist after my legs suddenly failed me. She did MRIs and a bunch of tests and came up with the diagnosis "Possible MS" (which is apparently in the book). Based on my history, I assume it is MS. I watched many YTs, including Dr. Bosters, and immediately got a gym membership. I go every other day for 1/2 hour and it has been fabulous. I'd already started changing my diet when I had felt bad after some foods. No caffeine! No chocolate bars! (Oy). The thing that astonished me, was that the neurologist was delighted with any indication that we were getting closer to an unequivocal diagnosis, yet the only recommendation she had was to see a PT. I did see a PT. She knew nothing about MS. I have to be VERY specific in the exercises that help, because some of them are actually bad for me. Extension exercises are generally bad. Also, instead of starting with 15 minutes of bike--which I knew was insane because I'd been doing 1 minute on my home bike--I found that 3-4 minutes at start and finish was my limit. If I try to increase time or reps it always works against me. So I am on the same program 18 months later, and that is all I need, to be fully active. I also don't need the 2-3 hour naps unless I miss the gym for a few days. I did go into the hospital on 2 days in Dec. due to pain, and then spasming, but after a bout of prednisone and anti-spasm Rx I recovered completely. I feel that if I was able to go off sugar and refined foods entirely I would probably have no worries--but in that regard I'm like the smoker with lung cancer who smokes through his tracheotomy (argh).
The biggest impact on me is some physical disability but mostly pain. I have been in severe pain for over 30 years I take the best painkillers available but still in horrible pain. What amazes me is what we can put up with as humans and find the strength to overcome.
Hi there.I also have MS and have had years of terrible debilitating pain. However, i was so fortunate that my neurologist sent me to a pain specialist and put me on slow release Fenteny Sandozl 25pg/h patches 4.2mgs. That means 1 patch releases 25 micrograms fentenyl per hour. I put one on every 3 days. Within 24hrs, it took alot of my pain free. I wouldnt have been able to live, had i had to put up with it. I just wanted to end my life, thats how bad it was. I realize that fentenyl has a veey bad rap, and u have to be very careful with it. Stay with the same doc as it is a problem when doc doesnt know u. Also DONT get in a hottub or very hot bath as your body absorbes fentenyl very quickly...too quickly and u could get into severe trouble. I foumd that one out!😮 Also are u on Baclofen and lyrica? They really help with spasticity and pain. Anyway good luck to u and i do hope this helps.❤
Thank you. Have managed this Ms over 20 some years and never have I had such thorough beneficial information bless you it's hard to find a good neurologist here in Southern California specially in an empire so much additional information is needed to treat Ms in any chronic condition❤
I was diagnosed in 2017. I met with my neurologist regularly. As I have had symptoms I reported them to him. He never acknowledged any of my reported changing or new symptoms as an attack. I’m realizing I must be a stronger advocate.
Imagine we had to go through MS without you sharing your knowledge with us. Nobody really compares and makes it easily understandable like you. Because of you i tell my nero what to do, not the other way around 😂
This moment is my first ever time finding this brother.. Very glad to have Been 10yrs official now Not on any meds They knocked me out too much and i thought, I've gotta see if it is any different without the meds.. Hmmmm - feel So Much better Been 6yrs since i haven't touched them. Yes, body in pain most days But i no longer have a walker Haven't fallen once Am So Much more clearer Just wanted to share with you all my brothers and sisters. Peace and kindness, andria in australia 🌿
I was diagnosed 16 years ago with R&R MS. Was on DM's for the first 5 years. I have had no significant attacks or new spots on my MRI's. I stopped DMs and have had no progression. I started farming after I was diagnosed, and I believe this has helped me live my best life. By farming I do exercise, it is what I call, Noah's workout. BUT I believe THC is the best medication for this disease. When I stopped smoking for 6 mths, I had my diagnosing relapse. Even being in the sun all day every day in SC, my Vit D is always low. I love being outside, with my 30+ Angora goats, listening to the birds and watching the clouds. Your advice is wonderful. But are DM's always the way to go?
We need more Doctors like you! Your videos have helped me tremendously. I've had lesions on my brain for 11 years now unchanged with some minor symptoms until now that more symptoms are starting to appear. I just got diagnosed with MS and having trouble balancing life through the relapses as a mother.
This is what I wish I had been given or told when I was originally diagnosed with MS. 8.5 years in and I’m learning most of this from watching your videos. Thank you.
Thank you. A must watch for anyone recently diagnosed. I wish my Neurologist was this honest and informative when I was diagnosed back in 2010. I was handed a pamphlet and sent on my way 😢
I just got diagnosed with MS, i had symptoms for. 3 years and ignored them till i got blurry vision in my right eye. Hearing the news was shocking and confusing and scary. Im only 27 and i thought I was the epitome of health. Thank you for this video of everything i searched this has been the most clear and best explanation. I have MS but MS doesn't have me
Omg, that's how I found out I had it in 2022. I was devastated. I woke up with blurry vision and I went to the ER. You are so young. My son is 27. My mother had MS and I took care of her for years until I had to put her in an assisted living facility.
Same I went blind I’m my left eye my vision came back but I have stronger power contact in that eye now . Now everything that goes on with MS I have good days and bad days more zapped then others but I also have Spinal Arachnoiditis & CRPS stage 2 guess that comes with territory it is relentless!!! Pain. NEver shuts off ever, I keep myself busy not only exercise the muscles but the mind as well I read everyday to keep my mind fresh with new ideas I cut out social media platforms I still get on TH-cam and that has helped a lot taking the drama that unfolds everyday in this beautiful world we live in anxiety is way down, I get to choose what I want to see Thank you for the great info I thought I was alone glad I found this gods bless 🙏🏻 You Doc and everyone dealing with MS
You are awesome. I've had MS for 32 years and you taught me more than any of my several nuerologist! You rock! I'm exercising, I got vitamn d, I lowered my cholesterol and in my next vist with my dr I will discuss my fatigue! Thank u😊
Wow Dr Boster, thank you! My brother with untreated MS has just come to live with us. He appears not to care about anything. He is struggling to walk and seems to be experiencing cognitive symptoms. He is intelligent and highly qualified, but after a lifetime of good earning arrived penniless and disorganised. I can see I've got a lot on my plate. Thank you for this very clear video.
Goal setting at 74 is very different than younger. The necessity of caring for my handicapped daughter is on that list. My husband recently died making me feel very vulnerable. While I have achieved NETA, recent events leave me gasping.
I see a lot of stress around exercise especially when it hurts , or when introverted people think they have to go to a gym or class, or when people “don’t know what to do or if it’s the right thing.” It’s worse if you have emotional issues around exercise or are uncomfortable in your body. Covert Bailey said that the best exercise is the one you will do! That could be just walking! Anything that moves you. I just dance and walk - I put on my favorite tunes and don’t worry about right or wrong way to move. Sometimes I just shuffle around at the discount store or the supermarket. Whatever gets you to move in spite of or through pain is exactly the right thing. Not smoking has been the hardest thing but it’s been good to learn I can dance out my anxiety and anger instead. Best wishes for anyone struggling alone that you can love yourself into a better place. Don’t let perfect be the enemy of the good or better. Anything good you do is good. ❤
I'd absolutely love 2 meet this Dr. in person. I wish that my doctors were like him. I'd seriously consider moving 2 Ohio just 2 b able 2 have him as my MS specialist......
Water hyssop was used in a mice model to relieve Autoimmune Encephalomyelitis (inflammation of the brain and spinal chord). Lions mane is thought to induce NGF which promotes the production of brain derived neurotrophic factor; this is involved in myelination.
Hi. I am brand new to this world and my first MRI is in a couple of weeks. I have been watching your videos and researching this subject and I have at least 90 percent of the symptoms described in your videos 😮😢
I wish I had watched this video 6 years ago when I was diagnosed with MS. This is a game changer for me - easy and practical info, but presented in a way that has me motivated to utilize all this info. I have been lucky with minimal issues and only 2 relapses (I'm 48 yrs old) and this video gave me a gentle nudge to continue down a "better" and healthier path -not to ignore my diagnosis but to live with it and be proactive with my health. Thank you!
Same here but I'm 52. MS finally dxd I was 42. Did ABCs/terrible home injections now unable to drive or do complicated engineering work. Still here tho I just mainly care for my dog now...walk 2h daily/no meds...its time to rest a little 😂
You are the best !! My son was diagnosed January 2023 and we watch you all the time . He is doing your “ 5 things “ 😊 He’s on Kisempta and trying to live his best life ! He goes for his first MRI since taking his DMT in a couple weeks 🤞🏼Thank you from Canada 🇨🇦
I was recently diagnosed with MS and your videos are amazing. They have become a vital resource for me. Thank you for all you do to empower and educate. I start my Infusion treatment next month. Ocrevus. Looking forward to kicking those B cells out and living my best life. When I was diagnosed on the 22nd of December. I asked my neurologist if I could go on roller coasters the next day when I traveled to Florida. I went on the biggest, bad ass roller coasters I've ever been on, and I think I will be able to do that for quite some time!❤ Thanks again.
Hello Dr. Boster I enjoyed all your M.S. videos I thank you for your Mastermind. of Multiple Sclerosis. We will Kick it butt. I will do my part to make MS boring LOL Have amazing day.
I have M.S. for 27 years and my neuro Dr. W. in MS in November 2024 I am off of Avomex Injections. I will be taking 2 Tabs at 8pm for 5 days. drink plenty of water on a full stomach Mavenclad 10 mg. .My new meds. I thank the lord for this amazing opportunity in my chapter of life to turn the next page. Thanks for my family support You got this mom. I believe in your healing . I saw myself healed in my dream. I am feeling so amazing today.
Geez Dr. Boster. I didn’t realize how connected Mono and MS were. I had mono firstly in 2005. Was brutal for a couple weeks steady. Diagnosed with MS in 2018. 22 lesions were found throughout my brain. Also a couple being on the spine. I really cleaned up my act in many ways. Vitamins, exercise, eating “better” healthy mixed with junk sometimes lol. And I receive Ocrevus every 6 months. It’s a battle I must be honest. It’s a constant fight it seems to keep things calm. My main battle is cog fog now a days. Decision making, frustration, coping with stress, emotions. It’s brutal. Keep practicing with it I guess eh. Thanks for this vid. Happy to have discovered you this morning! I’ve liked and subscribed. Looking forward to following you onward.
Hi from Israel thanks dear doctor excellent explanation that summarises the MS it shows how dedicated you are to the MS patients and how you want to help them God bless you
Smart man that faces reality and doesn’t sugar coat shit is exactly what’s needed in this realm of study. Thank you for educating thousands of people sir!
I have autistic brother and he was diagnosed with PPMS about 3 years ago .. he’s getting worse and his legs are so stiff , and shake out of nowhere.. we help him and hold him to help calm down the muscles when we try to move him around to sit down 🪑 and move to wheelchair 🦽.. we don’t know if he is experiencing any pain .. he doesn’t talk but he always keeps a smile on his face .. he is on a special diet due to having one kidney … he cannot take any medicine for MS so we just watch him getting worse and worse , it’s so heartbreaking
I have recently started watching your videos. Thank you so much for all the MS related information. When I first got diagnosed, I was completely in denial. But I'm slowly starting to accept my reality, and that's how I stumbled across your channel ❤❤❤
Got in tears when you ask we be our advocates. I’ve gone back and for to my primary who keeps telling me what I’m going through is normal. I understand but me neurologist tells me to do that so I do and then I’m told there is no need.
Thank you Aaron so much for yet another outstanding video. You have been my main source of support since my diagnosis 4 years ago (symptoms for 12 years). I am envious of your patients and wish my ms team had a modicum of your intelligence! 🙌
Technically i have heard most of it already, but dunno, there is something about the conduct that really resonates, a very well hit spot between encouraging, serious and hopeful, while still being grounded in reality
I was diagnosed with PPMS 4 years ago and only discovered your videos a few months ago; they have been so helpful. I think there should be a Dr Boster clinic here in Northern Ireland
I really like your advice, as you are a very compassionate Neurologist doctor. I am a former medical assistant and I regularly study-research medical issues and nutrition. The root cause of medical issues in my opinion are key. Mindfulness practice is a great recommendation as this helps stress's, etc. Your recommendation to take vitamin D-3 is excellent and I believe adding Vit-K-2 with that supplement is very helpful. I don't have MS, I have scoliosis related to an 2020 injury from a pain management shot in my spine that injured a major nerve. Thank you for your uplifting video addressing many helpful ways to deal with medical issues and not just drugs!
Thank you as always for your videos. Helps give clarity and a sense of control when confronting a medical system that can feel very very cold. We, and your patients, are lucky to have you.
I had various symptoms for years before I was diagnosed with MS. At that time, I knew the strange blindness I was experiencing had to be in my brain, because it only affected one quadrant of my vision in both eyes! My brain essentially rewired and the blindness subsided after a few months, but in the meantime I got my MS diagnosis. I started taking Tecfidera and had no additional symptoms. At that time I did some research, and found that Vitamin D therapy looked promising. No risk, so why not? I stabilized at around 100 ng/ml. In late 2019, my CD4 level was low enough that I risked getting a lethal brain virus so my neurologist stopped my drug therapy. But I kept up the high Vitamin D intake. I suspect it made a real difference when I contracted Covid-19, but I might have benefitted by having very few CD4 lymphocytes! Anyway, my CD4s recovered enough by the time SARS-COV2 vaccines became available, so I responded very well to vaccination. For the last four years I have had no MS therapy other than the high Vitamin D intake, with no MS progression at all.
Thank you for your videos they give me a lot of courage and thought of positivity I have been fighting with my doctor for quite some time and it seems that it's too late for him to listen now so I thought I was going to give up on everything for your videos help me I've had so much stuff wrong with me that I've kept hidden for so long that it's just going to take time for me to understand why I can't process thoughts most of the time anymore and why my body is just so bad all over the things that I carry with this are embarrassing but seems no one listens and I can't make people listen I can only say my feelings sometimes keep up the great work It seems like even though I have no diagnosed I know what I feel and how I feel and I can't hardly put two sentences together when I'm trying to figure out why I feel this way it doesn't work thanks once again sir You're a true hero in the world of neuro such as what I have I guess
Great Video, I sure do have to get it together. I have lost the desire to do anything. Can you just be tired of it all? I just don't get it. MS is a real pain in the butt~🤦♀
This is a great video for newly diagnosed ( and of course us OG’s) you explain everything ( including the EBV- which everyone of course questions)- Definitely a winner 🥇 in my book. #MakeMSBoring Have a great day Doc #StrongerTogether
Wow! Have been diagnosed since I was 26 (I am now 47). I have always known the month I got MS.. it was when I was 16 had got sick with Mono/ micro plasm in it lungs. The local Neurologist brushed me off every time I went to him with a symptom. He would basically tell me I was lying. I finally shut up and dealt with it until I was 26 and had a bigger flare up and a ER doctor really listened and did more tests and diagnosed me. Thanks for these videos.
Thank you for posting these posts. I live in Australia. My neurologists approach is not like yours. I really appreciate your point of view. It has helped me for years.
Long history. Started in 2007 I kept getting too weak to walk. Especially during a 12* shift. (RN) Neurologist said that if she found lesions in my spinal cord I'd have MS for sure. Then she found lesions and said "that doesn't look like typical MS." My MRI showed "over a dozen lesions". Plus I had optic neuritis. But I keep getting told it doesn't look like MS. One neurologist put me on Gelenya (sp) been on that since 2018. Just had it changed to a generic. And I'm noticing more symptoms. That started 2 months ago. Started with severe fatigue and pain in my rt thigh then numbness. Sometimes it feels like my brain is swollen. Still waiting on a new neurologist. Mine retired.
Hope you find your next neurologist up-to-date on MS. Not all neurologists are MS Specialists. But there are some General Neurologist who are very good and will go the mile to listen and get to the bottom why your active symptoms are showing/causing pain or simply put, causing trouble. Even when you have the next appointment, continue to search for more MS doctors because, you never know if the one you like, will move or retire. Ask family and friends if they can recommend a neurologist. I ask the people I meet waiting in the lobby mg Neurologist office, who they’ve seen and do they recommend them. Good luck.🍀
10:32 I am a retired ICU nurse. I have gone thru so many neurologists and left with an ass. First one told me that because I was a nurse, it was drug withdrawal. It wasn't. I ended up going out of the area for my diagnosis. That was in 1994.. The reason for the MRI was I was driving and all the cars looked like they were going sideways. My sister just passed from a brain tumor. My GP ordered it, and didn't know how to tell me, he handed me the report. Long story. Now, here I am at 72 and really suffering.
I was just diagnosed with ms a couple of months ago after a long 35 years of inflammation flair ups every couple of years and dealing with them for until the last one November 2024. Thank you for this video I look forward to watching the rest of your content. Thank you.
Dr. Boster, I live in Seattle, WA aka the MS capital. I’ve lived with RR MS for over 20 years. I’m no longer taking Copaxone which I started in 1998. I honestly feel it helped me to not have any more relapses all those years. I’m now 70 yrs old and would love to know your opinion. Is it ok to completely stop? I discussed this with my MS Neurologist and she said it would be ok to stop since my last MRI showed no new activity *for many years. Please advise. Thank you very much for your dedication to helping us folks. I wish your practice were closer. GL
Youre very good at communicating As an active cannabis and tabacco smoker(since 14yo, now 38) i can only hope my futute oncologist is as good a linguist as you. Love how you use so many "figures of speech" in your layman descriptions is awesome. Whether youre a believer or not, i believe god is saving a seat for you and others with as much compassion you show for desperate humans who want to stick around with their loved ones longer.
Loved this video! Excellent info! I was diagnosed in 2010. My second Neuro never had the balls to tell me I had PPMS (I had to dump the first one for being an ass!) I don’t have flares, my symptoms are always with me & I have slowly been getting worse. The left side of my body is mostly affected. I have weakness and diminished dexterity in my left hand, left hip flexor is severely diminished and severe foot drop in my left foot. I use a cane and cannot walk more than a few yards without extreme pain and fatigue. I have major bladder issues and was taking Oxybutynin for several years until I found out about how much it increases your chances of developing dementia. The last few years I have been getting Botox injections in my bladder. It does help, but does not eliminate the issue. I have been on Betaseron, Tricfidera and now Ocrevus. I honestly do not know if the Ocrevus is helping or not. I am 63 years old. My life sucks!
Thank you! I am sure you would get along well with my neurologist. I am working on the exercise right now. I am walking each morning with my husband. I struggle with balance so he goes with me in case I need his assistance. I use the cane all of the time, but as I continue walking, I am feeling better. I like being outdoors for my 15 minute walk. Thanks for the information.
I was diagnosed with MS 09-22-2008, Starten with copaxone...i was really allergic for this so i quith!! Was without medication for about a year or 2, than i got 2 MS attacs in 4 months.... no fun... Now im on natalizumab for 13 years AND STABILE....So im gonna try to double this . Even though im positive for the JC virus and have to go in the MRI 4 x a year and every 6 weeks to the hospital for my medication... now i dont know otherwise.. Stay positive in your life 💪🥰😘
Thank you for another great video Dr. Boster! Someone very dear to my heart has been diagnosed with MS at the age of 79. She had an appointment with an MS neurologist who told her there wasn’t anything that could be done for her because of her age except Botox for very tight muscles. She can no longer walk and mostly uses a scooter. Do you have any newly diagnosed patients that come to you at an advanced age and what does your conversation look like with them? This could be a topic for a new video or a question answered in one of your livestreams. Thank you
Good evening Aaron! I try to watch all your videos on here Utube! I have to wait 11 weeks until I get to see my MS Neurologist, here in Indiana 😮. I don’t understand how & why I got MS? I’ve always been healthy and take vitamins daily! I appreciate all your information videos 😊😊
I love how clear this is. I’ve been 9 years waiting for diagnosis but now that half my body is numb they think a mri again might be valuable. Since our Canadian health is so slow right now, I will use these best practices while I wait as they are fantastic advise even just for a healthier lifestyle. Thanks for this.
Hi from a fellow Canadian. My daughter was diagnosed 20 years ago with MS. We have never had any issues getting tests done but we live in Ontario. However our healthcare is not what it once was. She just had her annual MRI yesterday. Lindsay Hospital has a brand new MRI machine which books appts 24/7 so we have been told. I wish you all the best as you await your diagnosis. ❤
My 30 year old son was just diagnosed with MS as for me. I was diagnosed with rheumatoid arthritis 27 years ago and I was 40 so we’re both fighting an auto immune disease with two different heads
Excellent! I want to be advocate of myself. Since I'm overwhelmed because I have a pendulum like feeling in the head for 3 months now. Hopefully next week a neurologist tells me a diagnosis.
I had a stroke in 2016 and still fight spasticity in my left arm/hand and my neurosurgeon recommended the baclofen pump. I would love to hear more about this procedure. Thank you ❤
I had similar symptoms - sever spasticity first in my foot, then entire femur after mini stroke I didn’t even noticed. Wasn’t diagnosed with any neurological disorder, Dr. ordered PT & oral Baclofen to combat the symptoms. The result - wheelchair / bed ridden. As Baclofen weakened my muscles, doing PT damaged my gluteal tendons, muscular system to the point of no retern. Still multiple doctors I went to can’t find the root cause of my issues, beyond myself.
My 27 y/o daughter was diagnosed with MS 2 weeks ago. So much of what I’ve been reading has been overwhelming and frightening. I believe she has an outstanding medical team and they are starting infusions within the next month. This video has begun to restore my hopes for her future health and well being. Thank you
Didn't realise about passive cigarette smoke as a risk for children. Does that risk decrease as they grow up with no symptoms? My Dad smoked alot and at 53 I'm heading to a neurologist to see if I have MS soon. Enjoying your vids here in the UK.
Thank you for taking the time to share yourself. Your informative videos are extremely helpful, informative and encouraging. It’s awesome to see physicians like you care! Your a rarity. God bless. ❤
I’ve been doing all said on daily basis & works despite decided not to go on DMT for PPMS given diagnosis at age 45 (all lesions on spinal cord & maybe 2-3 on brainstem) Not the Brain lesion for past 10+ yrs. 5 yrs gone & no lesions though damage on spine is way ahead of me. Question on new biomarker MOG-IgA(new type of antibody called immunoglobulin A or IgA) may have a pathogenic role in CNS & I’m only positive for Zoster & EBV & everything else from blood to spinal fluid either normal or negative. So one of dietary approach is to keep EBV starving.
My wife was diagnosed with MS recently and spent 5 days in the hospital. She's out now and doing better but still not great and I'm really worried for her. I hope with medicine and treatment she'll be ok.
I had Mono at 16 and was hospitalized for a week, my mom smoked during her pregnancy with me, all 9 months (I was born in 1972, lol) and I was exposed to secondhand smoke my whole life. I was diagnosed with MS in 2015 at the age of 43. I went 6 years with no medication because my symptoms were pretty minimal and ex-husband and I were trying to get pregnant, but when I turned 49, OMG, I started getting crazy headaches like crazy and sure enough after another MRI, I had a new lesion and my neurologist said okay, enough of this Russian Roulette with no meds and I got on Tysabri. But now, at 51 I’m having HORRIBLE back pain and I’m just confused as to whether this pain is simply back pain or MS related. I’ve seen 8 doctors, had a nerve ablation in my thoracic area, been diagnosed with pudendal nerve neuralgia, and gotten multiple triggerpoint and epidural shots and nerve blocks and I hurt EVERYDAY. My next appointment is a neurosurgeon. I don’t know what else to do.
Dear dr. B, at 2:30, you say "People can have slow steady decline, but I'm taking over years and years". What is your opinion when this steady decline is happening in 16 months, not overnight, rather slowly but firmly from month to month. Like being EDSS 1 in 2021 and now limping all the time. And the decline was triggered by severe covid pneumonia. Best regards and thank you for all work you do on youtube for all MS people!
Thank you so much for this! I was diagnosed two years ago. No prior symptoms until I received the Covid shot and my body went into a neurological meltdown. I couldn’t walk. I was shaking like I had Parkinson’s and couldn’t talk easily. My right eye was slow. My left side of my face was numb. My left hand was numb. I couldn’t remember simple things. It took me a few months of therapy to at least be able to walk with arm crutches. I started monthly infusions of Tysabri and it has been a miracle drug!! I have only had two relapses in the beginning and now I just have occasional flare ups of fatigue, shaking, weakness and pins and needles. But I watch my caffeine intake as well as processed foods and sugars and I swear those are the worst for MS! Thanks for confirming for me! ❤
I've been diagnosed for about 4 1/2 years. I chose to go natural and use healthy life style as my method of treating my MS. When covid and the shot started showing the neurological symptoms, I was deeply interested. The symptoms mimic MS so much that I began to wonder if Long covid and it's symptoms are actually MS, but because there is no actual diagnosis for MS, maybe they just don't have evidence. Most of the time, MS diagnosis is done through detecting Oligoclonal bands in the spinal fluid found in a lumbar puncture. My theory of curious guessing is that perhaps people who get long covid actually carry the MS genetics, but the gene wasn't being expressed. Then, when they got covid or the shot, that gene may have had a mutation on a single nucleotide poly morphism. I'm not sure that would be it's method of transcription or not. However, another possibility in my mind is since vitamin D matters so much in both MS and fighting covid, and zinc plays a significant role too, then it takes me back to DNA transcription and translation. I feel that it is far deeper than the immune cells and the antibodies. Sure, they are confused. But, somehow, inside of everything I just said, I feel like the health of the mitochondria is where the answers lies. I'm not convinced that high vitamin D from food or vitamins is adequate. I feel the real answer is in vitamin D derived directly from the sun. Vitamin D that gets in the cells from food or a pill doesn't remain in the cell as long as the vitamin D from the sun, according to research I've read. But, moreover, vitamin D from the sun doesn't occur alone. Along with vitamin D, you are picking up nir infrared light, which is proving to be huge in the production of mitochondrial melatonin, which is where 95% of the body's melatonin is created. But it's also where glutathione is created, which is one of the body's master antioxidants. And, to add to that, interaction between the earth and your body has proven to balance out your ionic charge in your body which is another major player in resolving MS symptoms. Keeping in mind that mitochondria exist in almost every cell of the body, including the brain and it is responsible for producing our energy for everything we do including digesting, repairing, and fueling the immune process through the Krebs cycle (AKA electron transport system) it adds another interesting variable. Also, one of the main cells mitochondria doesn't exist in is red blood cells. I find that interesting since mitochondria is in white blood cells which are all immune cells. The more I research defects in protein folding resulting in mitochondrial dysfunction and how it involves interaction between amino acids and ions, it bring me back to the ionic charge regulation by contact with the Earth. So in this short paragraph, I've noted glutathione (Antioxidant), out of balance ions charges (leads to misfolded proteins) melatonin (responsible for setting circadian rhythm) white blood cells (the blood cells affected by mitochondrial function) Vitamin D, the hormone that appears to lead the charge and resulting is the inability to sleep, recover from reactive oxidation species, lack of energy, improper amino acid transcription and translation resulting in a lack of proper protein synthesis, and overall mitochondrial dysfunction. It's no wonder the immune system gets confused with all the chaos as homeostasis is trying to regulate the body and vitamin D, the master hormone, is either low or locked in the cell due to high fructose corn syrup raising the insulin which screws up all the hormones. So, hmmm, is long covid actually MS prior to oligobands showing up in the spinal fluid due to prolonged immune cell confusion? Most MS festers for years before signs of the myelin sheath breaking off occurs. Perhaps covid is an acute attack that speeds up the process? And maybe the MS gene would never have transcribed and turned on if we all just had some good healthy sun and used a bit less sun block, and working in offices and schools with UVB blocking glass & windowless factories? Could it be sunlight is our biggest cure and reducing toxins and increasing antioxidants are the 2nd best over medications and blaming the genetics?
I ran out of room. With all of that, I also feel the need to add that I also feel a healthy microbiom with good fiber intake as prebiotics, a larger amount of amino acids from animal sources, High omega 3, a good quality vitamin and mineral supplement that has methylated B12 and folate and and iron with amino acid compounding if you're anemic are all very important. Also getting rid of toxic dish soap, laundry detergent, hair products, lotion, makeup, and cleaning products is a must because those toxins are hormone mimicry which adds another layer of destruction to a compromised system that can't figure out homeostasis the way it is. I write this stuff all the time and am surprised most MS patients haven't been taught all about this somehow during their journey with MS. I'm thinking about offering a course. I am a certified functional Health coach. I think we all deserve to be better informed. Good luck to you. 😊
I too have had two bad ms type relapses after COVID vax first one hospitalised me, I had breathing problems, weakness, mobility issues, balance and coordination issues full body tremors, numbness, pain and my head felt full of cotton wool.. second one happened last October, only partially recovered...no diagnosis as MRIs were clear I'm being gaslighted by my neurologist. He's very dismissive. I'm sure he thinks I'm making it up. I've accrued weakness in right arm and leg, spasticity and have bouts of fatigue, tingling, numbness, my legs go wobbly if I do certain repetitive movements, headaches lower back pain. Weird sensory sensations..helping myself by mindfulness, eating as well as I can and staying active. If it isn't ms il be amazed
Yoga covers it all. Balance, flixibility, strength. I have done it for 30 yrs. 15 yrs with MS. Recently diagnosed with FND-Functional Neurological Disorder. I am starting Neuro- physiotherapy for that issue. We shall see. I call it the double whammy. I thought i was having side effects from Kesimpta but Dr said not. I went off it but think i will go back on it.
I’ve never heard it put this way I be been on 2 different ones in the last 15 years but side effects caused me to stop taking them. I was just about to start another one but my blood work showed that I’m not a candidate bc I’m at high risk for PML. Thanks for your helpful videos.
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Thank you - will do 👍🙂🔥🔥🔥🔥
Any info would be great. I don't know what leukoencephalopathy means. Anything not well known is appreciated.
It costs money to join?
Thank you for this Video and explanation I have MS going on 4 years now I’ve noticed a decline in my 5th year energy is zapped and more loss of feeling
Watching this video should be a requirement for anyone who has just been diagnosed with MS, it contains a tremendous amount of practical and useful information, wish I had seen a video like this, when I was diagnosed with MS 13 years ago.
Totally agree when I was diagnosed 20 odd years ago, I only knew MS from the movie about Annette Funichello, so basically nothing, the doctor and my family kept telling me it was no big deal.
Totally agree. When I was diagnosed 30 odd yes ago, I didn’t know anything about it except that all the older people around me kind of turned weird when I told them I was diagnosed. Apparently they had a story in their head that I would become a vegetable of some sort. (I’m exaggerating, but they DID treat me different!) My neurologist seemed to be a Eeyore who was just waiting to see how bad it would get. Meanwhile, I kept riding my bike and walking everywhere and playing music and I quit smoking. It took this long for me to start a DMT but that’s because they are better now.
SO Agree!!
I absolutely agree 100%. I wish that I'd have known about this doctor & his video series when I was diagnosed w/MS in 2011....... 💯💯💯💯
I'd like to say thank you, you've made me realise I'm doing most of the things I should be doing to help myself. I did have RR MS and was diagnosed as progressive a couple of months ago. I mountain bike 2-3 times a week and this is great exercise and mindfulness. You've also made me realise that I need to be honest with my neurologist and ask for help/support as I don't tend to do this. Thank you for being a fantastic Neurologist and explaining everything in layman's terms, keep up the good work x
1. Don't smoke stuff
2. Exercise as part of your lifestyle: balance, core strengthening, limb flexibility, and cardiovascular endurance
3. Eat smart: drink more water, supplement vitamin D3, and avoid fast-food
4. Daily mindfulness: practice breathing
5. Take the most effective and comfortable disease-modifying therapy
Work outside in the sun a lot , make your work as hard as you can. I have a vending company and I used to park my truck as far away from the location. Everybody would tell me to park closer but I didn’t. I’m parked as far away as I could so I can get the most amount ofphysical activity since I had to work and be sick I’m 63 still working first symptoms 24
What is DMT?@@jenadeen
Disease Modifying Therapy @@Jcr2446
@@Jcr2446DMT-disease-modifying therapy/treatment that delays progression of MS
@@pauldavidober i worked very hard thro fatigue, balance problem but the lack of care n attention from husband stressed me...
I have a son with Autism. I need to be able to help him for as long as possible.
Same!
Same!
When I wake up in the morning, I feel groggy, but listening attentively to this video boosted my moxie and motivated me to shoot past this ailment and smile! Knowing that I'm not alone makes me feel okay with this. 😌
Right on! #StrongerTogether!
I wish I had you as my doctor my doctor never explained any of this and now I understand it all because of you. Your an ANGEL 😇 God bless and thank you.
I went to a neurologist after my legs suddenly failed me. She did MRIs and a bunch of tests and came up with the diagnosis "Possible MS" (which is apparently in the book). Based on my history, I assume it is MS. I watched many YTs, including Dr. Bosters, and immediately got a gym membership. I go every other day for 1/2 hour and it has been fabulous. I'd already started changing my diet when I had felt bad after some foods. No caffeine! No chocolate bars! (Oy). The thing that astonished me, was that the neurologist was delighted with any indication that we were getting closer to an unequivocal diagnosis, yet the only recommendation she had was to see a PT. I did see a PT. She knew nothing about MS. I have to be VERY specific in the exercises that help, because some of them are actually bad for me. Extension exercises are generally bad. Also, instead of starting with 15 minutes of bike--which I knew was insane because I'd been doing 1 minute on my home bike--I found that 3-4 minutes at start and finish was my limit. If I try to increase time or reps it always works against me. So I am on the same program 18 months later, and that is all I need, to be fully active. I also don't need the 2-3 hour naps unless I miss the gym for a few days. I did go into the hospital on 2 days in Dec. due to pain, and then spasming, but after a bout of prednisone and anti-spasm Rx I recovered completely. I feel that if I was able to go off sugar and refined foods entirely I would probably have no worries--but in that regard I'm like the smoker with lung cancer who smokes through his tracheotomy (argh).
I am newly diagnosed and frightened! You helped me to calm myself with knowing this is not a death sentence. Thank you!
Same here. Got the diagnosis 2 days ago and am overwhelmed. I couldn't think of questions to ask.
I have MS. Get out of the US, and watch your body heal
I’m bloody vex mate 😂 I’m floating between acceptance and anger
The biggest impact on me is some physical disability but mostly pain. I have been in severe pain for over 30 years I take the best painkillers available but still in horrible pain. What amazes me is what we can put up with as humans and find the strength to overcome.
Hi there.I also have MS and have had years of terrible debilitating pain. However, i was so fortunate that my neurologist sent me to a pain specialist and put me on slow release Fenteny Sandozl 25pg/h patches 4.2mgs. That means 1 patch releases 25 micrograms fentenyl per hour. I put one on every 3 days. Within 24hrs, it took alot of my pain free. I wouldnt have been able to live, had i had to put up with it. I just wanted to end my life, thats how bad it was. I realize that fentenyl has a veey bad rap, and u have to be very careful with it. Stay with the same doc as it is a problem when doc doesnt know u. Also DONT get in a hottub or very hot bath as your body absorbes fentenyl very quickly...too quickly and u could get into severe trouble. I foumd that one out!😮
Also are u on Baclofen and lyrica? They really help with spasticity and pain.
Anyway good luck to u and i do hope this helps.❤
The best 21:53 minutes, I have spent on TH-cam in a long time. It is so on point and helpful. Thank you Aaron. From over the pond.
Thank you for watching @ljm!
Thank you Doc for helping the MS community worldwide.
Be 🙏 well
Thank you. Have managed this Ms over 20 some years and never have I had such thorough beneficial information bless you it's hard to find a good neurologist here in Southern California specially in an empire so much additional information is needed to treat Ms in any chronic condition❤
I was diagnosed in 2017. I met with my neurologist regularly. As I have had symptoms I reported them to him. He never acknowledged any of my reported changing or new symptoms as an attack.
I’m realizing I must be a stronger advocate.
Imagine we had to go through MS without you sharing your knowledge with us. Nobody really compares and makes it easily understandable like you. Because of you i tell my nero what to do, not the other way around 😂
agree,
This moment is my first ever time finding this brother..
Very glad to have
Been 10yrs official now
Not on any meds
They knocked me out too much and i thought, I've gotta see if it is any different without the meds..
Hmmmm - feel So Much better
Been 6yrs since i haven't touched them.
Yes, body in pain most days
But i no longer have a walker
Haven't fallen once
Am So Much more clearer
Just wanted to share with you all my brothers and sisters.
Peace and kindness, andria in australia 🌿
I was diagnosed 16 years ago with R&R MS. Was on DM's for the first 5 years. I have had no significant attacks or new spots on my MRI's. I stopped DMs and have had no progression.
I started farming after I was diagnosed, and I believe this has helped me live my best life. By farming I do exercise, it is what I call, Noah's workout. BUT I believe THC is the best medication for this disease. When I stopped smoking for 6 mths, I had my diagnosing relapse. Even being in the sun all day every day in SC, my Vit D is always low. I love being outside, with my 30+ Angora goats, listening to the birds and watching the clouds. Your advice is wonderful. But are DM's always the way to go?
Comment allez-vous maintenant
We need more Doctors like you! Your videos have helped me tremendously. I've had lesions on my brain for 11 years now unchanged with some minor symptoms until now that more symptoms are starting to appear. I just got diagnosed with MS and having trouble balancing life through the relapses as a mother.
This is what I wish I had been given or told when I was originally diagnosed with MS. 8.5 years in and I’m learning most of this from watching your videos. Thank you.
How are you now?
follow whal's protocol and ms will go
Thank you. A must watch for anyone recently diagnosed.
I wish my Neurologist was this honest and informative when I was diagnosed back in 2010. I was handed a pamphlet and sent on my way 😢
I just got diagnosed with MS, i had symptoms for. 3 years and ignored them till i got blurry vision in my right eye. Hearing the news was shocking and confusing and scary. Im only 27 and i thought I was the epitome of health. Thank you for this video of everything i searched this has been the most clear and best explanation. I have MS but MS doesn't have me
Omg, that's how I found out I had it in 2022. I was devastated. I woke up with blurry vision and I went to the ER. You are so young. My son is 27. My mother had MS and I took care of her for years until I had to put her in an assisted living facility.
Hi Sabrina, what were your symptoms that you ignored if you don't mind my asking?
Same I went blind I’m my left eye my vision came back but I have stronger power contact in that eye now . Now everything that goes on with MS I have good days and bad days more zapped then others but I also have Spinal Arachnoiditis & CRPS stage 2 guess that comes with territory it is relentless!!! Pain. NEver shuts off ever, I keep myself busy not only exercise the muscles but the mind as well I read everyday to keep my mind fresh with new ideas I cut out social media platforms I still get on TH-cam and that has helped a lot taking the drama that unfolds everyday in this beautiful world we live in anxiety is way down, I get to choose what I want to see Thank you for the great info I thought I was alone glad I found this gods bless 🙏🏻
You Doc and everyone dealing with MS
You are awesome. I've had MS for 32 years and you taught me more than any of my several nuerologist! You rock! I'm exercising, I got vitamn d, I lowered my cholesterol and in my next vist with my dr I will discuss my fatigue! Thank u😊
Wow Dr Boster, thank you! My brother with untreated MS has just come to live with us. He appears not to care about anything. He is struggling to walk and seems to be experiencing cognitive symptoms. He is intelligent and highly qualified, but after a lifetime of good earning arrived penniless and disorganised. I can see I've got a lot on my plate. Thank you for this very clear video.
I have MS and teach leadership, starting this fight with “why” is important. Write down those goals!
Amen!
Goal setting at 74 is very different than younger. The necessity of caring for my handicapped daughter is on that list. My husband recently died making me feel very vulnerable. While I have achieved NETA, recent events leave me gasping.
An amazing holistic approach, I absolutely love your vids doctor
I see a lot of stress around exercise especially when it hurts , or when introverted people think they have to go to a gym or class, or when people “don’t know what to do or if it’s the right thing.” It’s worse if you have emotional issues around exercise or are uncomfortable in your body. Covert Bailey said that the best exercise is the one you will do! That could be just walking! Anything that moves you. I just dance and walk - I put on my favorite tunes and don’t worry about right or wrong way to move. Sometimes I just shuffle around at the discount store or the supermarket. Whatever gets you to move in spite of or through pain is exactly the right thing. Not smoking has been the hardest thing but it’s been good to learn I can dance out my anxiety and anger instead. Best wishes for anyone struggling alone that you can love yourself into a better place. Don’t let perfect be the enemy of the good or better. Anything good you do is good. ❤
I'd absolutely love 2 meet this Dr. in person. I wish that my doctors were like him. I'd seriously consider moving 2 Ohio just 2 b able 2 have him as my MS specialist......
Water hyssop was used in a mice model to relieve Autoimmune Encephalomyelitis (inflammation of the brain and spinal chord).
Lions mane is thought to induce NGF which promotes the production of brain derived neurotrophic factor; this is involved in myelination.
Hi. I am brand new to this world and my first MRI is in a couple of weeks. I have been watching your videos and researching this subject and I have at least 90 percent of the symptoms described in your videos 😮😢
My husband’s MRI and MRA is in a few weeks. I see many symptoms of MS but he’s in denial and yells at me when I try to talk to him about this.
I wish I had watched this video 6 years ago when I was diagnosed with MS. This is a game changer for me - easy and practical info, but presented in a way that has me motivated to utilize all this info. I have been lucky with minimal issues and only 2 relapses (I'm 48 yrs old) and this video gave me a gentle nudge to continue down a "better" and healthier path -not to ignore my diagnosis but to live with it and be proactive with my health. Thank you!
Same here but I'm 52. MS finally dxd I was 42. Did ABCs/terrible home injections now unable to drive or do complicated engineering work. Still here tho I just mainly care for my dog now...walk 2h daily/no meds...its time to rest a little 😂
Thanks Dr. B 😊
@@lorrainejohnson829 : What kind of diet did you embrace? Did you feel the meds prescribed have too many side effects?
Thank you MS is frightening....
this is wonderful introduction for anyone diagnosed with MS. I can't thank you enough, It really lightened the stress of it all
You are the best !! My son was diagnosed January 2023 and we watch you all the time . He is doing your “ 5 things “ 😊 He’s on Kisempta and trying to live his best life ! He goes for his first MRI since taking his DMT in a couple weeks 🤞🏼Thank you from Canada 🇨🇦
How's he now?
How was your son’s MRI after his treatment
I was recently diagnosed with MS and your videos are amazing. They have become a vital resource for me. Thank you for all you do to empower and educate.
I start my Infusion treatment next month. Ocrevus. Looking forward to kicking those B cells out and living my best life.
When I was diagnosed on the 22nd of December. I asked my neurologist if I could go on roller coasters the next day when I traveled to Florida. I went on the biggest, bad ass roller coasters I've ever been on, and I think I will be able to do that for quite some time!❤
Thanks again.
YES!!!
Hello Dr. Boster I enjoyed all your M.S. videos I thank you for your Mastermind. of Multiple Sclerosis. We will Kick it butt. I will do my part to make MS boring LOL Have amazing day.
I have M.S. for 27 years and my neuro Dr. W. in MS in November 2024 I am off of Avomex Injections. I will be taking 2 Tabs at 8pm for 5 days. drink plenty of water on a full stomach Mavenclad 10 mg. .My new meds. I thank the lord for this amazing opportunity in my chapter of life to turn the next page. Thanks for my family support You got this mom. I believe in your healing . I saw myself healed in my dream. I am feeling so amazing today.
Geez Dr. Boster. I didn’t realize how connected Mono and MS were. I had mono firstly in 2005. Was brutal for a couple weeks steady. Diagnosed with MS in 2018. 22 lesions were found throughout my brain. Also a couple being on the spine. I really cleaned up my act in many ways. Vitamins, exercise, eating “better” healthy mixed with junk sometimes lol. And I receive Ocrevus every 6 months. It’s a battle I must be honest. It’s a constant fight it seems to keep things calm. My main battle is cog fog now a days. Decision making, frustration, coping with stress, emotions. It’s brutal. Keep practicing with it I guess eh. Thanks for this vid. Happy to have discovered you this morning! I’ve liked and subscribed. Looking forward to following you onward.
Hi from Israel thanks dear doctor excellent explanation that summarises the MS it shows how dedicated you are to the MS patients and how you want to help them God bless you
You’re a blessing to us MSers
I really enjoy your videos. Your cheerfulness is contagious…..much needed when dealing with this awful disease. Thank you!
Smart man that faces reality and doesn’t sugar coat shit is exactly what’s needed in this realm of study. Thank you for educating thousands of people sir!
Ocrevus was my lifesaver!
Me too!!!
What's that ?
I love everything about this video. You are the bomb Dr. Boster!
you have made this so much easier to understand. I thought getting diagnosed was going to end my life. thank you for what you do sir!
I have autistic brother and he was diagnosed with PPMS about 3 years ago .. he’s getting worse and his legs are so stiff , and shake out of nowhere.. we help him and hold him to help calm down the muscles when we try to move him around to sit down 🪑 and move to wheelchair 🦽.. we don’t know if he is experiencing any pain .. he doesn’t talk but he always keeps a smile on his face .. he is on a special diet due to having one kidney … he cannot take any medicine for MS so we just watch him getting worse and worse , it’s so heartbreaking
I have recently started watching your videos. Thank you so much for all the MS related information. When I first got diagnosed, I was completely in denial. But I'm slowly starting to accept my reality, and that's how I stumbled across your channel ❤❤❤
You are so welcome!
Got in tears when you ask we be our advocates. I’ve gone back and for to my primary who keeps telling me what I’m going through is normal. I understand but me neurologist tells me to do that so I do and then I’m told there is no need.
Thank you Aaron so much for yet another outstanding video. You have been my main source of support since my diagnosis 4 years ago (symptoms for 12 years). I am envious of your patients and wish my ms team had a modicum of your intelligence! 🙌
Did you ever get tested for MS in the 12 years of having the symptoms? Why were you only diagnosed 4 years ago?
Czy ciebie też traktowali lekarze jak symulanta i wysyłali do diabła gdy uparcie wracałeś żądając badań?
Technically i have heard most of it already, but dunno, there is something about the conduct that really resonates, a very well hit spot between encouraging, serious and hopeful, while still being grounded in reality
I was diagnosed with PPMS 4 years ago and only discovered your videos a few months ago; they have been so helpful. I think there should be a Dr Boster clinic here in Northern Ireland
I really like your advice, as you are a very compassionate Neurologist doctor. I am a former medical assistant and I regularly study-research medical issues and nutrition. The root cause of medical issues in my opinion are key. Mindfulness practice is a great recommendation as this helps stress's, etc. Your recommendation to take vitamin D-3 is excellent and I believe adding Vit-K-2 with that supplement is very helpful. I don't have MS, I have scoliosis related to an 2020 injury from a pain management shot in my spine that injured a major nerve. Thank you for your uplifting video addressing many helpful ways to deal with medical issues and not just drugs!
Thank you as always for your videos. Helps give clarity and a sense of control when confronting a medical system that can feel very very cold. We, and your patients, are lucky to have you.
I had various symptoms for years before I was diagnosed with MS. At that time, I knew the strange blindness I was experiencing had to be in my brain, because it only affected one quadrant of my vision in both eyes! My brain essentially rewired and the blindness subsided after a few months, but in the meantime I got my MS diagnosis. I started taking Tecfidera and had no additional symptoms. At that time I did some research, and found that Vitamin D therapy looked promising. No risk, so why not? I stabilized at around 100 ng/ml. In late 2019, my CD4 level was low enough that I risked getting a lethal brain virus so my neurologist stopped my drug therapy. But I kept up the high Vitamin D intake. I suspect it made a real difference when I contracted Covid-19, but I might have benefitted by having very few CD4 lymphocytes! Anyway, my CD4s recovered enough by the time SARS-COV2 vaccines became available, so I responded very well to vaccination. For the last four years I have had no MS therapy other than the high Vitamin D intake, with no MS progression at all.
Thank you for your videos they give me a lot of courage and thought of positivity I have been fighting with my doctor for quite some time and it seems that it's too late for him to listen now so I thought I was going to give up on everything for your videos help me I've had so much stuff wrong with me that I've kept hidden for so long that it's just going to take time for me to understand why I can't process thoughts most of the time anymore and why my body is just so bad all over the things that I carry with this are embarrassing but seems no one listens and I can't make people listen I can only say my feelings sometimes keep up the great work It seems like even though I have no diagnosed I know what I feel and how I feel and I can't hardly put two sentences together when I'm trying to figure out why I feel this way it doesn't work thanks once again sir You're a true hero in the world of neuro such as what I have I guess
Great Video, I sure do have to get it together. I have lost the desire to do anything. Can you just be tired of it all? I just don't get it. MS is a real pain in the butt~🤦♀
This is a great video for newly diagnosed ( and of course us OG’s) you explain everything ( including the EBV- which everyone of course questions)-
Definitely a winner 🥇 in my book.
#MakeMSBoring
Have a great day Doc
#StrongerTogether
Thank you for the awesome feedback! #StrongerTogether
Wow! Have been diagnosed since I was 26 (I am now 47). I have always known the month I got MS.. it was when I was 16 had got sick with Mono/ micro plasm in it lungs. The local Neurologist brushed me off every time I went to him with a symptom. He would basically tell me I was lying. I finally shut up and dealt with it until I was 26 and had a bigger flare up and a ER doctor really listened and did more tests and diagnosed me. Thanks for these videos.
Thank you for posting these posts. I live in Australia. My neurologists approach is not like yours. I really appreciate your point of view. It has helped me for years.
Long history. Started in 2007 I kept getting too weak to walk. Especially during a 12* shift. (RN) Neurologist said that if she found lesions in my spinal cord I'd have MS for sure. Then she found lesions and said "that doesn't look like typical MS." My MRI showed "over a dozen lesions". Plus I had optic neuritis. But I keep getting told it doesn't look like MS. One neurologist put me on Gelenya (sp) been on that since 2018. Just had it changed to a generic. And I'm noticing more symptoms. That started 2 months ago. Started with severe fatigue and pain in my rt thigh then numbness. Sometimes it feels like my brain is swollen. Still waiting on a new neurologist. Mine retired.
Hope you find your next neurologist up-to-date on MS. Not all neurologists are MS Specialists. But there are some General Neurologist who are very good and will go the mile to listen and get to the bottom why your active symptoms are showing/causing pain or simply put, causing trouble. Even when you have the next appointment, continue to search for more MS doctors because, you never know if the one you like, will move or retire. Ask family and friends if they can recommend a neurologist. I ask the people I meet waiting in the lobby mg Neurologist office, who they’ve seen and do they recommend them. Good luck.🍀
10:32 I am a retired ICU nurse. I have gone thru so many neurologists and left with an ass. First one told me that because I was a nurse, it was drug withdrawal. It wasn't. I ended up going out of the area for my diagnosis. That was in 1994.. The reason for the MRI was I was driving and all the cars looked like they were going sideways. My sister just passed from a brain tumor. My GP ordered it, and didn't know how to tell me, he handed me the report. Long story. Now, here I am at 72 and really suffering.
Just diagnosed and have been crying for days. This doctor is so calming and I am so thankful to have found this video.
I remember when they told me. Easier said than done. If you need someone to talk to, lmk. I think sharing my story may help you if you'd like.
I was just diagnosed with ms a couple of months ago after a long 35 years of inflammation flair ups every couple of years and dealing with them for until the last one November 2024. Thank you for this video I look forward to watching the rest of your content. Thank you.
Dr. Boster,
I live in Seattle, WA aka the MS capital. I’ve lived with RR MS for over 20 years. I’m no longer taking Copaxone which I started in 1998. I honestly feel it helped me to not have any more relapses all those years. I’m now 70 yrs old and would love to know your opinion. Is it ok to completely stop? I discussed this with my MS Neurologist and she said it would be ok to stop since my last MRI showed no new activity *for many years. Please advise. Thank you very much for your dedication to helping us folks. I wish your practice were closer.
GL
Youre very good at communicating
As an active cannabis and tabacco smoker(since 14yo, now 38) i can only hope my futute oncologist is as good a linguist as you. Love how you use so many "figures of speech" in your layman descriptions is awesome.
Whether youre a believer or not, i believe god is saving a seat for you and others with as much compassion you show for desperate humans who want to stick around with their loved ones longer.
Loved this video! Excellent info! I was diagnosed in 2010. My second Neuro never had the balls to tell me I had PPMS (I had to dump the first one for being an ass!) I don’t have flares, my symptoms are always with me & I have slowly been getting worse. The left side of my body is mostly affected. I have weakness and diminished dexterity in my left hand, left hip flexor is severely diminished and severe foot drop in my left foot. I use a cane and cannot walk more than a few yards without extreme pain and fatigue. I have major bladder issues and was taking Oxybutynin for several years until I found out about how much it increases your chances of developing dementia. The last few years I have been getting Botox injections in my bladder. It does help, but does not eliminate the issue. I have been on Betaseron, Tricfidera and now Ocrevus. I honestly do not know if the Ocrevus is helping or not. I am 63 years old. My life sucks!
Thank you for explaining MS and sharing goals
Thank you! I am sure you would get along well with my neurologist. I am working on the exercise right now. I am walking each morning with my husband. I struggle with balance so he goes with me in case I need his assistance. I use the cane all of the time, but as I continue walking, I am feeling better. I like being outdoors for my 15 minute walk. Thanks for the information.
You can do it!
Please answer questions maybe in a video Q&A. It is so necessary and many have the same questions so would be very beneficial.❤
I was diagnosed with MS 09-22-2008, Starten with copaxone...i was really allergic for this so i quith!! Was without medication for about a year or 2, than i got 2 MS attacs in 4 months.... no fun...
Now im on natalizumab for 13 years AND STABILE....So im gonna try to double this .
Even though im positive for the JC virus and have to go in the MRI 4 x a year and every 6 weeks to the hospital for my medication... now i dont know otherwise..
Stay positive in your life 💪🥰😘
Thank you for another great video Dr. Boster! Someone very dear to my heart has been diagnosed with MS at the age of 79. She had an appointment with an MS neurologist who told her there wasn’t anything that could be done for her because of her age except Botox for very tight muscles. She can no longer walk and mostly uses a scooter. Do you have any newly diagnosed patients that come to you at an advanced age and what does your conversation look like with them? This could be a topic for a new video or a question answered in one of your livestreams. Thank you
Good evening Aaron! I try to watch all your videos on here Utube! I have to wait 11 weeks until I get to see my MS Neurologist, here in Indiana 😮. I don’t understand how & why I got MS? I’ve always been healthy and take vitamins daily! I appreciate all your information videos 😊😊
Love the jacket Dr. B !!! 🔥🔥🔥🔥
I love how clear this is. I’ve been 9 years waiting for diagnosis but now that half my body is numb they think a mri again might be valuable. Since our Canadian health is so slow right now, I will use these best practices while I wait as they are fantastic advise even just for a healthier lifestyle. Thanks for this.
Hi from a fellow Canadian. My daughter was diagnosed 20 years ago with MS. We have never had any issues getting tests done but we live in Ontario. However our healthcare is not what it once was. She just had her annual MRI yesterday. Lindsay Hospital has a brand new MRI machine which books appts 24/7 so we have been told. I wish you all the best as you await your diagnosis. ❤
Please keep doing your gifted work. God bless🙏
Thank you
My 30 year old son was just diagnosed with MS as for me. I was diagnosed with rheumatoid arthritis 27 years ago and I was 40 so we’re both fighting an auto immune disease with two different heads
Excellent! I want to be advocate of myself. Since I'm overwhelmed because I have a pendulum like feeling in the head for 3 months now. Hopefully next week a neurologist tells me a diagnosis.
Doctor Boster you are fantastic and wonderful! Thank you.
Thank you for making these videos! I'm diagnosed with MS and these tips make sense for me!
Bruh the only person that understands ! I’ve had MS for two months what journey this life is going to be I’m only 26
I had a stroke in 2016 and still fight spasticity in my left arm/hand and my neurosurgeon recommended the baclofen pump. I would love to hear more about this procedure. Thank you ❤
I had similar symptoms - sever spasticity first in my foot, then entire femur after mini stroke I didn’t even noticed. Wasn’t diagnosed with any neurological disorder, Dr. ordered PT & oral Baclofen to combat the symptoms. The result - wheelchair / bed ridden. As Baclofen weakened my muscles, doing PT damaged my gluteal tendons, muscular system to the point of no retern. Still multiple doctors I went to can’t find the root cause of my issues, beyond myself.
My 27 y/o daughter was diagnosed with MS 2 weeks ago. So much of what I’ve been reading has been overwhelming and frightening. I believe she has an outstanding medical team and they are starting infusions within the next month. This video has begun to restore my hopes for her future health and well being. Thank you
Diagnosed at 30 I’m 33 been on ocrevus infusions it does me well
Mavenclad, or stem cell transplant
Take Alpha Lipoic Acid 600 mg/day and omega 3 krill oil 2 caps/ day. Helped me a lot.
@@carmenbalan2188 What brand?
Didn't realise about passive cigarette smoke as a risk for children. Does that risk decrease as they grow up with no symptoms? My Dad smoked alot and at 53 I'm heading to a neurologist to see if I have MS soon. Enjoying your vids here in the UK.
What an amazing video
I’m so thankful for you. ❤
Currently VERY emotional.
Writing my goals immediately had me in tears
1 become surgical tech
2😭😭😭😭😭 walk son down the ail 😭😭😭😭😭
Done 😅
Thank you so much for this video ❤️
THANK YOU Doc!! I don't know what else to say!
Tai chi is a great excercise ❤
Thank you for taking the time to share yourself. Your informative videos are extremely helpful, informative and encouraging. It’s awesome to see physicians like you care! Your a rarity. God bless. ❤
I’ve been doing all said on daily basis & works despite decided not to go on DMT for PPMS given diagnosis at age 45 (all lesions on spinal cord & maybe 2-3 on brainstem) Not the Brain lesion for past 10+ yrs. 5 yrs gone & no lesions though damage on spine is way ahead of me. Question on new biomarker MOG-IgA(new type of antibody called immunoglobulin A or IgA) may have a pathogenic role in CNS & I’m only positive for Zoster & EBV & everything else from blood to spinal fluid either normal or negative. So one of dietary approach is to keep EBV starving.
My wife was diagnosed with MS recently and spent 5 days in the hospital. She's out now and doing better but still not great and I'm really worried for her. I hope with medicine and treatment she'll be ok.
I had Mono at 16 and was hospitalized for a week, my mom smoked during her pregnancy with me, all 9 months (I was born in 1972, lol) and I was exposed to secondhand smoke my whole life. I was diagnosed with MS in 2015 at the age of 43. I went 6 years with no medication because my symptoms were pretty minimal and ex-husband and I were trying to get pregnant, but when I turned 49, OMG, I started getting crazy headaches like crazy and sure enough after another MRI, I had a new lesion and my neurologist said okay, enough of this Russian Roulette with no meds and I got on Tysabri. But now, at 51 I’m having HORRIBLE back pain and I’m just confused as to whether this pain is simply back pain or MS related. I’ve seen 8 doctors, had a nerve ablation in my thoracic area, been diagnosed with pudendal nerve neuralgia, and gotten multiple triggerpoint and epidural shots and nerve blocks and I hurt EVERYDAY. My next appointment is a neurosurgeon. I don’t know what else to do.
@ECOWANS72 gluten is a big problem
Dear dr. B, at 2:30, you say "People can have slow steady decline, but I'm taking over years and years". What is your opinion when this steady decline is happening in 16 months, not overnight, rather slowly but firmly from month to month. Like being EDSS 1 in 2021 and now limping all the time. And the decline was triggered by severe covid pneumonia.
Best regards and thank you for all work you do on youtube for all MS people!
Thank you so much for this! I was diagnosed two years ago. No prior symptoms until I received the Covid shot and my body went into a neurological meltdown. I couldn’t walk. I was shaking like I had Parkinson’s and couldn’t talk easily. My right eye was slow. My left side of my face was numb. My left hand was numb. I couldn’t remember simple things. It took me a few months of therapy to at least be able to walk with arm crutches. I started monthly infusions of Tysabri and it has been a miracle drug!! I have only had two relapses in the beginning and now I just have occasional flare ups of fatigue, shaking, weakness and pins and needles. But I watch my caffeine intake as well as processed foods and sugars and I swear those are the worst for MS! Thanks for confirming for me! ❤
I've been diagnosed for about 4 1/2 years. I chose to go natural and use healthy life style as my method of treating my MS. When covid and the shot started showing the neurological symptoms, I was deeply interested. The symptoms mimic MS so much that I began to wonder if Long covid and it's symptoms are actually MS, but because there is no actual diagnosis for MS, maybe they just don't have evidence. Most of the time, MS diagnosis is done through detecting Oligoclonal bands in the spinal fluid found in a lumbar puncture. My theory of curious guessing is that perhaps people who get long covid actually carry the MS genetics, but the gene wasn't being expressed. Then, when they got covid or the shot, that gene may have had a mutation on a single nucleotide poly morphism. I'm not sure that would be it's method of transcription or not. However, another possibility in my mind is since vitamin D matters so much in both MS and fighting covid, and zinc plays a significant role too, then it takes me back to DNA transcription and translation. I feel that it is far deeper than the immune cells and the antibodies. Sure, they are confused. But, somehow, inside of everything I just said, I feel like the health of the mitochondria is where the answers lies. I'm not convinced that high vitamin D from food or vitamins is adequate. I feel the real answer is in vitamin D derived directly from the sun. Vitamin D that gets in the cells from food or a pill doesn't remain in the cell as long as the vitamin D from the sun, according to research I've read. But, moreover, vitamin D from the sun doesn't occur alone. Along with vitamin D, you are picking up nir infrared light, which is proving to be huge in the production of mitochondrial melatonin, which is where 95% of the body's melatonin is created. But it's also where glutathione is created, which is one of the body's master antioxidants. And, to add to that, interaction between the earth and your body has proven to balance out your ionic charge in your body which is another major player in resolving MS symptoms. Keeping in mind that mitochondria exist in almost every cell of the body, including the brain and it is responsible for producing our energy for everything we do including digesting, repairing, and fueling the immune process through the Krebs cycle (AKA electron transport system) it adds another interesting variable. Also, one of the main cells mitochondria doesn't exist in is red blood cells. I find that interesting since mitochondria is in white blood cells which are all immune cells. The more I research defects in protein folding resulting in mitochondrial dysfunction and how it involves interaction between amino acids and ions, it bring me back to the ionic charge regulation by contact with the Earth.
So in this short paragraph, I've noted glutathione (Antioxidant), out of balance ions charges (leads to misfolded proteins) melatonin (responsible for setting circadian rhythm) white blood cells (the blood cells affected by mitochondrial function) Vitamin D, the hormone that appears to lead the charge and resulting is the inability to sleep, recover from reactive oxidation species, lack of energy, improper amino acid transcription and translation resulting in a lack of proper protein synthesis, and overall mitochondrial dysfunction. It's no wonder the immune system gets confused with all the chaos as homeostasis is trying to regulate the body and vitamin D, the master hormone, is either low or locked in the cell due to high fructose corn syrup raising the insulin which screws up all the hormones.
So, hmmm, is long covid actually MS prior to oligobands showing up in the spinal fluid due to prolonged immune cell confusion? Most MS festers for years before signs of the myelin sheath breaking off occurs. Perhaps covid is an acute attack that speeds up the process? And maybe the MS gene would never have transcribed and turned on if we all just had some good healthy sun and used a bit less sun block, and working in offices and schools with UVB blocking glass & windowless factories? Could it be sunlight is our biggest cure and reducing toxins and increasing antioxidants are the 2nd best over medications and blaming the genetics?
I ran out of room. With all of that, I also feel the need to add that I also feel a healthy microbiom with good fiber intake as prebiotics, a larger amount of amino acids from animal sources, High omega 3, a good quality vitamin and mineral supplement that has methylated B12 and folate and and iron with amino acid compounding if you're anemic are all very important. Also getting rid of toxic dish soap, laundry detergent, hair products, lotion, makeup, and cleaning products is a must because those toxins are hormone mimicry which adds another layer of destruction to a compromised system that can't figure out homeostasis the way it is. I write this stuff all the time and am surprised most MS patients haven't been taught all about this somehow during their journey with MS. I'm thinking about offering a course. I am a certified functional Health coach. I think we all deserve to be better informed. Good luck to you. 😊
I too have had two bad ms type relapses after COVID vax first one hospitalised me, I had breathing problems, weakness, mobility issues, balance and coordination issues full body tremors, numbness, pain and my head felt full of cotton wool.. second one happened last October, only partially recovered...no diagnosis as MRIs were clear I'm being gaslighted by my neurologist. He's very dismissive. I'm sure he thinks I'm making it up. I've accrued weakness in right arm and leg, spasticity and have bouts of fatigue, tingling, numbness, my legs go wobbly if I do certain repetitive movements, headaches lower back pain. Weird sensory sensations..helping myself by mindfulness, eating as well as I can and staying active. If it isn't ms il be amazed
Thank you so much for this amazing video 🎉
Thank you for this valuable information. It is comforting to have this knowledge.
Glad it was helpful!
Fantastic!!! Thanks ☺️
Thank you for this video. 🙂
This was an amazing video. Thank you so much ❤
Glad it was helpful!
This video is so Helpful. Thank You!!
man why cant all doctors be like you
Yoga covers it all. Balance, flixibility, strength. I have done it for 30 yrs. 15 yrs with MS. Recently diagnosed with FND-Functional Neurological Disorder. I am starting Neuro- physiotherapy for that issue. We shall see. I call it the double whammy. I thought i was having side effects from Kesimpta but Dr said not. I went off it but think i will go back on it.
I’ve never heard it put this way I be been on 2 different ones in the last 15 years but side effects caused me to stop taking them. I was just about to start another one but my blood work showed that I’m not a candidate bc I’m at high risk for PML. Thanks for your helpful videos.