Answering Viewers Questions: MS MRI Scan & Multiple Sclerosis Lesions
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- เผยแพร่เมื่อ 3 มิ.ย. 2024
- In this video I answer viewers questions about MS MRI scans and Multiple Sclerosis lesions. To up your game about MS lesions, neuro-anatomy and MRI, start watching right now!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
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This video was incredibly helpful in understanding MRI’s. Thank you so much!! I’ve learned a TON from your videos (it can be difficult to find a reputable, understandable, and scientifically correct source online), and MRI’s are the last hurdle to comprehension of my disease for me personally. I’ll probably watch this one several times and each time I get an annual MRI. Lots of good meat here! Thanks again for everything you do to educate the MS community. I don’t think you can possibly understand how far your work extends. Education is so important! I routinely refer people to your channel in various MS forums because your videos cover so many topics. Your passion for helping people is very encouraging and contagious.
Thanks for being YOU, Dr. B!
+Megan D you’re welcome Megan! #WeHaveMS
Ditto 🤙
So so helpful. Open, clear and honest. Very thankful, from the UK.
@@AaronBosterMD Can i have MS with one lesion ???
@@AaronBosterMD does m.s cause body and hand shaking and tightness around torso and right side feels numb and tight cosbi keep getting this for 8 months now on and off but past few days I've had it more regular also numb toes and tingles I can't walk properly as well thankyou
Thank you for saying the word “brain damage” when explaining lesions, it makes it real. Thank you for the honesty. I never thought of it that way, but I guess I’m not alone.
I've posted a comment before but I never said this. I am so thankful for this channel and you. You don't make things scary. You're straight forward, humourous and kind. Humour is VERY important. The first time I ended up in hospital and they did my first proper MRI, they scared the heck out of me. Had no compassion at all. I felt very alone. I'm English and it was an English nurse that helped me. She KNEW I wasn't a faker and I will never forget her. But my real point is, they told me about lesions, in a dismissive and patronising way. I investigated. I researched. I got a sense of humour to make it easier on my loved ones, by saying my English heritage was stuck in my head because I had my own Roman lesions!!! It helped my youngest son and was a great starting point. But you have definitely helped us all. You educate and help and make us smile. If I never posted again, which I doubt, I wanted you to know, you truly do have a tremendous impact, on so many lives. I am thankful and grateful. And had to let you know. Thank you. Especially for the smiles. It's easier to learn, with a smile. 🌞
other MS folks should see this too!
My 52 yr old son, diagnosed with MS, almost 17 years ago. He has been to numerous pain Dr's, for the constant pain he has experienced for almost 17 yrs. Theft him on various narcotics to relieve the pains he's experiencing, then they take him off the meds, then 3 to 6 months later they'll represcribe the pain medication, again. Why can't they just leave him on the meds that relieve his pain?? It's horrible to see my son suffer so much w/o the pain meds. He simply cannot function when he's in so much pain. All he can do is "try" to sleep.
@@martibee4140, hey there, I know this was a long time ago you typed. I wanted to just say you are so amazing as a mom and an MS friend. Can I ask how he is doing? And how are you?
I'm my neurologists favourite MRI topic because I have pretty much no lesions on my brain. I don't think I'd even have been diagnosed as having MS if it weren't for the fact that there's loads of them on my spine (sadly). He even talks about me at conferences. I'm so proud! 😆 😆
Alison, were the spine leisions picked up with an MRI? My daughter has so many symptoms and the wait to get into a specialist is very long. No leisions on her brain and the radiologist refused to use the contrast.
@@emilykrarup you have to ask them to check the spine also. They don’t always include that
Hi Alison,
I was just diagnosed last year AND I'm the opposite of you.
SEVERAL Lesions on my Brain & 0 on my Spine.
I'm sorry you have Spine Lesions & hope you are doing well 😊
God Bless 🙏
When I first got diagnosed I had to sit down with my own scan and a whole bunch of academic journals and brain diagrams to figure out what was going on and what functions the affected areas control. I picked up more useful tips on this channel in 2 days than I have from my own doctors in 2 years! 😂🤦 Thank you for taking the time out to educate us! 👏❤️
Oh wow! Thank you!
This video was insanely informative 😆 thanks again, Dr B! I think our neuros should absolutely go over our MRI’s with us! The more educated we are as patients, the more we can understand our disease and educate our friends and family.
Glad you dig it, took me a while to make!
You are a genius. I have always learned so much from you. Whether it be in clinic or now that we are in FL I have to settle for TH-cam. 😉 Thank you for sharing your time & knowledge with us so freely. You truly are a blessing to me as a MS patient & to the MS community as a whole. Thank You is not enough. God Bless you & your family.
Another great vid doc!
Still have questions about MS MRI LESIONS? Please leave them below!
Aaron Boster MD
Is it possible for someone on one of the highly effective treatments (Tysabri for me) to have clear brain MRI’s but to still have new lesions on the spinal chord? I know that brain MRI’s are generally used for monitoring disease progression, but should the spinal chord also be monitored? Is it common to have activity in one but not the other?
can lesions be so small that the MRI doesn't pick them up? Also, is it a good sign when a t2 hyperintensive lesion is getting smaller?
I have a "extensive confluent regions of FLAIR hyperintensity
within periventricular white matter" -- can you say anything about why this confluence happens and what it means for brain health?
there are situations where spinal cord monitoring is important for sure!
Hi Dr Aaron,
My question is, is it possible to have MS with no visible lesions? Thank you for the help!
Thank you Doc. You are doing great things.
Happy New Year, dr Boster
Thank you! Very new to all this and your videos help so much.
Thank you so much for all the efforts you put into these videos.
Another great video, thank you. I don’t even look for any other information about MS. I spent hours of my life trying to understand my MRIs. In 16 minutes I now understand what the “BIG” words mean. Please keep making videos I am able to speak with my neurologist with actually understanding what he’s been saying.
You are brilliant & thankyou for teaching us all this info.
Your a great man!
Excellent info. Thank you!
Thank you so much 🙌🏼 I loved watching this video 🎉 Your energy is awesome ❤
EXCELLENT Video! Thank you for explaining!
Thank you so much for answering my questions, very informative I really appreciate it!
Dr. Boster, Thank you so much for your videos! Appreciate the information.
I like the questions in the middle of the video!
I think this is my favorite video of yours (So far 😉)!! Thank you for always explaining things in terms everyone can understand!!
Dr B .. you always help me understand the complexity’s of this darn MS.. 👍👍👍👍
Thank you for taking the time to create and share such a helpful video Dr. Boster. My neurologist in Toronto does exactly as you described, studying my annual images very intensely while rubbing his chin and adjusting his glasses. A+ specialist and care provider!
Amazing video like always.
Thanks Dr B. You're a legend. 🧡🏴 #WeHaveMS #MSVillage
Thanks, you are wonderful. Your explanation is explicit.
Thanks Dr. B! Yes, I do think annual MRIs are important to help monitor the progress of MS. I am a bit concerned with the contrast though. Could you talk a bit about contrast, what kinds there are, and the safety of it?
That is my concern as well. The radiologist scheduled 2 consecutive MRI with contrast (one of brain on day 1 and C-spine day 2) that I was so concerned with I rescheduled a week apart. Also flushed my body with water afterwards.
Thank u for the amazing info
You are so well informed thank you for this channel I've learned more from you than I ever will from my neurologist
Thank you so much for sharing this information Dr. Boster! I just had an MRI with little explanation afterward. This was so valuable and helpful. 🙏🏻
Great video
Thank you for the information you give us. It clears up a lot of questions
Thank you 😊
Interesting video. Thank you Doc for your time!~John
Thank you.
I learn so much from your videos. Thanks so much!
You are so welcome!
I do agree with you about having a MRI once a year. Thank you for the vidios, Terri from Michigan.
Yes Dr. Boster, I agree on an annual MRI. BTW thanks for the video
Thanks brother for all the valuable info. I have spinal cord lesions and I’m due for my yearly mri, and yes I’ve been excited that my Lemtrada treatment stopped the ms from spreading further . My immune system hasn’t bounced back yet after 2 years but no COVID, praising Jesus.
Yes Aaron I agree with the yearly MRI’s. After listening to you it really makes more sense. We had to move last year to North Carolina. I was so dead set against it. I had been with Dr. Doug Stuart at MS Center of Atlanta since I was diagnosed in 1998. The reason I was so against the move is I hated the thought of new doctors. But I ended up with a great PCP and Neurologist both in the same building and under the same medical umbrella. I love having them in the same office because my neurologist had me wait while she talked to my PCP that can really be handy.
Informative video
Great video! I got in to ask my Dr about rim enhancement and Mass effect on two of my lesions and now we are going in for a follow up with an MRI to rule out tumors . Hopefully it's just the less common type of lesions!🤞
Yes I Agree that Yearly MRI's are Important!
I'm still confused but this has helped. Thank you. Think I'll have to watch many times to really get it.
Just got diagnosed with MS 7 days ago and these videos are helping me learn about myself. Thank you
Yes I totally agree. I get an MRI every year and we compare it to my last one.
This was very informative. 🔥🔥🔥🔥
Excellent video! You give volumes of information!
giftboutiq Thank you! My goal is to empower, energize and educate those impacted by #MS!
Hi, this video helped me, I had a larger lesion on my brainstem and I don't have all of the feeling in my face and have a lot of n&t in my legs. I do agree on a yearly MRI.
Wow! I will definitely need to rewatch this video as it has lots of great information. I am going to start to tell people my Medulla is broken and see how they respond. 🤣 I think the local MS clinic sees people 1x per year. I hope they also do yearly MRIs.
I'm so glad to have found this channel. I've been having symptoms that I have thought are due to diabetes and having had covid 19 - numbness in my feet, balance issues, walking issues, bowel issues, "cog fog", weakness, lack of energy, impaired sense of smell and taste (smell and taste(olifactory nerve) impaired from having covid in February 2021). The videos I have been watching here match up to a lot of my symptoms.
Yes, I agree a yearly MRI is crucial. When my daughter was choosing a new neurologist, it was something I was watching to see her order .PS Love your channel
Appreciate this video so much! It finally made sense why it was actually more than 2 relapses in 2019. The same area made another lesion appearance in 2020 and added more symptoms (pulse rate increasing, more imbalance). Quick question: could a spinal lesion show as something like damaged wire with the rubber getting cut here and there? I remember looking at an MRI from 2 years before diagnosis and it showed something like that in multiple areas.
Another awesome video thank you Dr Boster and yes I agree MRI is an essential part of monitoring disease activity and effectiveness of DMT.
Thanks, Dr. Boster! As far as frequency of MRI, I think once a year is great. My neurologist likes to spread them out if/when they are stable, to every 18mos. Scary to not see if there’s activity, but I understand.
Great again Doctor B ! Thanks. And to answer your question, yes, absolutely people with MS should be getting yearly MRIs and having them thoroughly compared to previous examinations. Its crucial in the prevention of progression and proper treatment 🧡
Yes Mri is super important 😊 I currently have them every 6 months
I can just kick myself , I totally missed this video Dr Boster and I’ve got a question featured in it . Thank you so much for taking the time to answer our questions .
You're welcome!
Another brilliant video. Thank you sir.
Very welcome
Fist off, thank you Dr. Boster for giving everyone an opportunity to dig deeper & learn more with what's going on for those of us living with MS. Watching these videos I find to be very helpful & my wish is that the more that many learn, the closer we'll get to solving this mystery that's been around for hundreds of years. I do realize that not everyone is able to get yearly MRI. Thankfully I am able to do MRI's....actually because I'm on Tysabri, my neurologist now has me doing 2 mri's a year & yes I Totally agree that MRI's are essential in helping everyone getting closer to understanding things better.
Excellent video.
Thank you very much!
I miss your videos Aaron. I was forgetting I had MS. Until I had to go to the hospital.
Yes, very important to have MRI's to see the change from year to year.
Thank you, I was diagnosed with ms at 19 and 27 years later = numerous MRI’s, numerous relapses. You have explained all the terminology fantastically. It’s probably my fault for not questioning what all the jargon meant. Treatments have changed dramatically over this time frame but also how things are explained and I’m included my own medical choices. 27 yrs ago you simply did what you were told.
Hey Dr. Boster, I agree with you. I think MRIs are a good tool to monitor MS. And every year I go through the 2 hour ordeal in the tube so that the disease can be tracked. Thanks for your videos!
Thanks Doc, you RoCk!
I believe that is a good thing to compare the two side by side
Hi, Dr B! Thank you for yet another helpful and informative video. How I wish you were my doctor. My question is with regard to contrast enhancing lesions - how long do new lesions typically enhance for?
P.S. I’m in the UK and get an annual brain MRI, but only because I was treated with Lemtrada.
Diagnosis yesterday. Staggering like a drunk - sober! Visual loss in right eye.
Yes I agree that mri’s done every year to 1 1/2 yrs & compared side by side to the previous one is a very good way to monitor the ms in a patient.
Thank you, so helpful in determining what controls what and where the problem stems from. Are areas not in the brain and spinal column with T2 hyperintensity such as the jaw, connected to MS lesions? Was surprised to see this on bilateral jaw MRIs and wondered if there is a connection.
Thank you... I’ve never seen a MRI of my brain and I’ve been dx since 2001
Absolutely ! 🤩
Finally I learnt what my PVL is as this wasn't explained to me. I wasn't diagnosed MS but I've been told I will have another MRI in 12 months as I'm at risk for developing MS in the future as also have lesion on the ON. Question: how long will I be monitored with yearly MRIs? Will these just be normal brain MRIs like the first one (I only had no contrast and orbital MRI) or is it common to have contrast/spine as well.
Thanks.
Thanks a lot for this information! Radiology ist still difficult to understand, but with video I finally got it.
I have an apointment at the neurologist in 2 days time to find out whether or not I have MS. There are a couple of dark spots periventricilar which were explained to be migraine-associated. But with weakness of right foot and newly onset of hypaesthesia in the left leg, I believe I do have MS. My cousin got diagnosed with MS 2 years ago, and she is fine. Still does farming in Russia.
Excellent video, Dr. B. Thanks! Can MRI show no new lesions but the patient is worse on exam? Why would that be?
Yes annual MRI is a must
Very informative, I found a copy of my MRI and followed along with what you were saying. I do think MRI tests are important although as you said, it is just one aspect of the bigger picture. I was dx with MS over five years ago, I have had no changes to my MRI although progressive worsening disability. I sometimes question why I even need another MRI. I think its important that the results of the MRI are not considered more important than what the patient is experiencing! Thanks for all you do for the MS community 😁
Thanks Dr. Boster for all ur videos, particularly this one. I agree that having an annual MRI is important to monitor status of my ms. My concern lies with the contrast medication. I have severe adverse reaction to the medication Gadolinium. Is the MRI with contrast important with tracking progression? Can you please share more information about contrast MRI’s?
Yes, a yearly MRI is important to monitor MS activity.
Was in hospital this past May with a relapse, my face felt wet, felt clumsy, dizzy and my speech was coming out gibberish when I stood up from a resting position. They couldn't find anything on the MRI. In July I was still having problems, so Dr ordered new MRI, and this time showed large enhancement on cerebellum. I asked Dr if he had compared to the MRI done in hospital in May, as maybe it was missed, and he said No. Not very happy with this Dr! Thank you for making these videos!
Very informative. Thank you. Can i ask Why does the titer in JC virus test chages? Sometimes is higher and sometimes lower. Again Thanks!
Hi Dr.B. there is places in the world where it can be very long to get to see a neurologist and having the appointments for all the test and then waiting again to see neurologist for results. When no lesions are find in the brain and neurological symptoms keep coming and going... If the GPs do a quick neurological exam and see obvious abnormalities is there a reason to let the patients suffer all that time without treating the symptoms ? Could it make it harder to find a diagnosis ? Thanks !
I’m going to the neurologist to get a mri done tommorw and I’m worried because I’ve been having a lot of numbness in face and tingling in feet. Also headaches and eye pain. I’m praying nothing is wrong but idk cause it doesn’t get any better
My doc is disinclined to do MRI that often as I've had MS for 20 years and enhancing lesions no longer show up. My last MRI was > 2 years ago.
Thanks for this video, all the previous videos, and your continuing to be just plain awesome. Well done sir, well done.
Can you please share what you did to improve your MS prognosis?
Can you share about your ms story?
I agree 👍🏼and Very good vid ❤️
Yes I agree
I agree that the MRI should occur once a year . I was behind till last November because of COVID. Luckily that was corrected.
Thank you for this information! I agree that yearly MRIs are an important way to track MS. Sometimes I'm even thinking of bi-yearly-- if only for my own insight. My question is: what lifestyle modifications can help in times of active lesions? My last MRI scan showed enhanced and new brain lesions. I'm on Tecfidera and on a plant based, gluten free, pescatarian diet. I've also been recently diagnosed with connective tissue disease. I guess what I'm trying to dial in is what can I do on my end to prevent the lesion from continuing to be active, if anything?
Hi Dr B. I agree. I believe it's important to have annual MRIs and to compare them to the previous year and then discussing any changes with my neurologist to possibly make a change in DMT if needed. Insurance companies would benefit in knowing why it's important for us to have them each year. They don't always understand the stress involved in getting the approval that can affect our well being. It would be a win win if they did imo. Cheers!
Good stuff Dr.! Can you make a video of MS and being JC virus positive. My loved one is on the fence with medication because they hear MS medication can make it worse or have more of a chance getting PML.
What an incredibly informative video.
My doctor does do MRI tests once a year on me. She's a fantastic neurologist.
My questions to you is, how deep are the lesions? Are we able to see if there is damage deep into the grey matter? Or does it just affect the top layers of the brain
Hi Dr. Boster, very informative as always!
Could you touch the topic of having RIS? ("Just" brain lesions but no symptoms..) I've RIS currently, no symptoms and spinal fluid came back inconclusive.
Dr. B, my MS journey is long as most people with this condition. You are by far the best “presenter” I have ever heard. While I may never need long term health, I am wondering if some training be given nationwide to neurologists about advising patients before diagnosis to seek buying good quality health and long term health insurance? This journey would have been a lot easier to have had this kind of knowledge in my late twenties early thirties: my neurologist said there would be a cure in my lifetime. He also never said all the things that could possibly go wrong - MS hug; choking on water / food; etc. thank you for these you tubes. I just found you!!! Maybe you already have a post on insurance?!?!
Darn! I always miss the live... I finally had surgery to remove my cancer. I was scared of a serious relapse because of all the trauma, but I’m doing great so far. I go today for my, Tysabri! I really wonder if the, Tysabri has helped me heal faster with less pain and bad effects. What do you think?
Thanks for the video! Although, I must say that it paints a really depressing picture for me. In the words of the radiologist "Multiple infratentorial lesions show post gadolinium enhancement, notably within the anteromedial pons, central pons (2), RIGHT middle cerebellar peduncle and bilateral cerebellar hemispheres (6)" (have many more in other locations). Along with about 8 lesions on my spine. It's a miracle I'm somehow actually feeling normal. Although I hear a lot of talk regarding the ability of oligodendrocytes and Schwann cells to promote demyelination, I haven't really heard a concrete answer regarding how the brain can heal itself other than "sidestepping" the areas of damage.
Thank you Dr. Boster for putting so much effort to make such an informative video.
And to answer your question, I agree that comparison of old and new MRI images is important to monitor disease progress.
grate video i love your videos if you ever get a change could you do a video on dawson fingers ....... how they might effect a person, dose a dawson finger lison make for worse disability and how do they correlate to a ms diagnosis cuz its the lison that got me my diagnosis mainly one touching the corpuss colossum interface and close ones