So what I have been told from primary is that the mri shows lessened venous flow, possibly due to aging but I need to fallow up with neurology and the rest of the testing to know what’s happening. Hurry up and wait some more.
This made me a little emotional. I was going to school to be a doctor but when I got sick, I had a sudden decline in my grades. I ended up failing out of school after already completing 5 years of school. Everyone thought I was depressed so they never took me seriously when I repeatedly said something is wrong. As time went on, I started to struggle in other areas of my life. My family knows MS effected my memory so it’s their favorite thing to use against me in an argument so I never know if I’m really forgetting that much or if it’s their easy win to all disagreements. It’s like my brain is waterlogged or I’m waking up from anesthesia sometimes. Part of my problem is my severe spasms have caused me to stay slightly dissociated to mentally deal with the pain. Too much stimuli is so exhausting that I have severe emotional outburst that I never had before my last MS attack. It’s so sad sometimes but doctors like you help me feel validated and heard.
I know this comment is old, I'm sorry I hope you are doing better and I hope you didn't give up completely on working in the Medical Field. I was a Medical Assistant back in 2006 but left the Medical Field and went to driving trucks but back in 2018 I was having issues with my back and when I went to the doctor they did an MRI and referred me to see a specialist and they were saying I needed a Spinal Fusion. My pain would go away for about a year or so and I brushed it off because I was not going to do a Spinal Fusion if I could help it, so, in 2021 I started having issues with my back again and started losing my balance, getting blurry vision off and on and getting fatigued so I was thinking it had to do with my disc in lower back so I found a place that did what they call a Spinal Laminectomy. I got the Spinal Laminectomy Surgery but was still having problems after about 3 months so I went into the Emergency Room and told them my symptoms and after several MRI'S , CAT Scan and blood tests she said I had Multiple Sclerosis, I am still waiting to see a Neurologist, I saw one at the Hospital but still waiting to see my Neurologist. This is hard and I go through one day of feeling like I am going to quit trying to work because of the way I feel but then the next day feeling good so I understand that you were probably having those days when you did this message but I would like to say you have enough knowledge that you can be a Nurse if you choose not to keep going for a Physician, God Bless you and your family and I hope you are doing well.
You have described what I went through and was getting worse until I stopped taking Gabapentin after reading stories of what others have been through while on this drug. I quit and starting taking Duloxetine within a month my cognition improved significantly and bonus the Duloxetine took away my pain and I felt better than I ever have while taking Gabapentin. I hope you are feeling improved.
Dr B this made me cry because I’m going through this all over again. As you know I had to leave my nursing career in 2012 because of my various issues with cognitive issues. I recently decided to go back to a different role part time and I am soooo frustrated!! Everything you just described is ME exactly!! After 2 to 3 hours I am experiencing difficulties. I know the people I work with don’t have a clue what MS is let alone how it affects people. I feel like giving a mini in-service but most of my pharmacy coworkers are youngsters who might perceive it as me trying to make excuses. I have always been open about my MS and not afraid to educate others, but this is a different situation and I’m not sure how to handle it.
I'm in absolutely same situation as well. I had to leave several jobs after disclosing my MS dx because people in medical field, especially in nursing, make your life miserable. Im usually trying not to disclose as to untrained eye my MS is not obvious. However, every time after 3-5 yrs of uneventful employment, the bad attack comes & I have to disclose. It's the same as painting target on my back Not being A+ employee any longer due to attacks & meds side effects + worsening cognitive issues, I also have to deal with people setting me up & being under microscope with everything I do. Please, hang on there. You are not alone.
My red flag was being told to only call the Neuro if I can't walk or go blind...for a week. New neuro says, if you can't walk, go to emerge, could be a stroke. I knew if I went blind, could be a detached retina. He also mocked me for asking questions, calling me Dr (my surname). Horrible man.
Thank you another great video. I suffer incredible fatigue. At one time I was on the Dean’s list at University. I worked part time throughout school. Now I can barely concentrate through your wonderful video.
Thanks so much Dr. B. The stress of this past year + menopause has definitely impacted my cog fog. I am coming up on my diagnosi-versary and am reflecting on the past year, I am addressing both the stress and menopause symptoms.
I think that is the best message I’ve ever heard about all those things in your list!! But especially fog and cognitive stuff that my cognition has really affected me in the past year or two my neurologist doesn’t even know it. I was on my way to see him in Mobile Alabama and I totaled my car. It’s was a great car. She was paid off oh man. Idk what imma do. I don’t have family and no friend bc I’m new in town. I don’t have anyone I can depend on. It’s very lonely and isolating.
I love your videos. I was diagnosed with MS in December 2020. Your videos have been so helpful in helping me understand what is going in my body. I have made a few major changes in my life over the last 6 months that has helped tremendously with my fatigue and mental clarity. I've changed my diet completely and now exercise daily. I wasn't overweight before but I didn't lose 20lb and my body feels better than it ever has. I have a heavy burden of lessons on my brain they have shrank significantly. Thankfully I don't have any on my spinal cord. I haven't started any DMT, but I will be starting Tysabri soon.
THANK YOU for taking the time to break this down. I wish I saw then when I was first diagnosed 10 years ago. But knowing what I know , I wasn't ready to hear your words until now. xoxo
So I’m FINALLY getting anew mri. And a neurologist. MS has been considered so many times but my age was a resistance issues with the drs.. the falling has finally caused me to use a cane for balance. I’m tired of getting hurt and falling in public. As much as I hate to have the label finally but would be relieved to call it all something. All the nerve testing coming too. Excited but nervous. 💁
i LOVE your clear and precise videos. I knew i was having a problem way back. I taught I.T. and administration and typing, and suddenly i was typing goggledegook, or i would look at a spreadsheet and think how on earth do i do a simple forumula etc. It was really scary. I was diagnosed after 16 years with progessive MS. My energy is exactly as you say it. also i can talk to someone in the morning and by the afternoon i cant even remember when we said. I go to bed at 5pm as i cant take any more information. I just need to rest and chill out. I pace my MS but by lunch time i am wiped out. thank you again very clear. and helps too.
This is my 15th year with MS. I had covid just after Christmas and sadly after six weeks of not being able to get out of bed it brought on a relapse and I'm now in the progressive stage 😕 Over the years I've found that I can't recognise people's faces and forget their names 🙄 It's incredibly frustrating. I sadly had to give up nursing years ago and now as my mobility is so bad have stepped away from volunteering 😕 I know that covid obviously played a part in events not taking place, but I'm not in a place to go back which isolates me from friends 😢
Thank you so very much! My husband has had MS for 13 years. Never has any MS Neurologist told us a "tiny spec" of the information you have shared in this one video! You are the best!!
thank you for describing this in a way that focuses on the confusion of the people around you and thus takes the focus off the disability or what's "wrong" with the person with the condition (MS in this case but really it applies to a number of others such as long term COVID or ME)
I could never do the job I used to have now. Some days I can think like I used to and have the energy to do things. Most days I am uncomfortable with abstract concepts and struggle to find words that I know I know-giving the definition rather than the word when frustrated by my inability. The lassitude and brain fog are disturbing because I use to be active and erudite. I get upset about them frequently.
Ha.... I took Topamax and I had that side effect, and boy it is not a fun side effect. Thank you for this video it helps me understand the report I received from the neuropsychological test that was done a couple months ago.
I wondered why i couldn’t find words thought i was losing my mind. Topamax was prescribed for seizures for me and i thought falling asleep after taking it was the only side effect. Good to know.
Dr. AARON!!! THX YOU KIND SIR! BEAUTIFUL VIDEO! AS I RECIENTLY LEFT you a comment asking you to provide us with a video about "sudeo dementia " which im convinced I spelled wrong I appoligize. But. Low & behold this video just appears! Not sure if u even ever got it.. but clearly ur magical if u didn't cause tada! &oh boy does it check all the boxes! Maybe that's one of his SUPERHERO qualities that I tend to love as a patient. ~ If ur talk to a "Boster" the questions get answered! The fear does a disappearing act.. And the hope settles in.. And for good measure.. We are typically left with a big ole ' smile or a laugh during his content or dr. Visits. With the just right "dr humor" this guy DELIVERS. As I see a new dr. B video and its in the morning I KNOW ILL BE BETTER for it. For,I have learned something, 😌 and it's a start to a better day. =) And that my friend grants peace in the stressful times.in all of this. P.s. Well done!on the videography dr. B I JUST STAY proud of your accomplishments,and what you both have built ill say. As a m.s. patient. We need something or someone to look up to.. I feel like you have delivered that to us. With www.bosterms.com "The boster clinic" With wonderful staff. And the "bosters ! " Sincerely, Cynthia camille God bless #wehavems Keep up the great 💪work 😀
I orginally typoed the word "my friend" talking about the peace this guy gives to us.. but I think we could all call dr. Boster our friend , right? =) 😀 Thank you internet 🙏❤ #wehavems I think I'll leave it.. "And that my friend grants peace in stressful times in all of this!"
@@AaronBosterMD Thank you dr b, =) P.s . "Cancer and multiple scerlosis " I'm not sure if this comment maybe got lost in the shuffle with the rest,but if there was any way you could make a video on this. Any info you could offer up on this topic I absolutely would be soooo greatful 🙏 for, as I know there's no two cases alike but. I think in the minimum it would offer up some great hope and peace if you had anything you could offer up about it. Some boster wisdom could be helpful "When nature is way way too generious" as I believe you quoted I believe in the past. Godbless Sincerely, Cynthia camille #wehavems #were m.s.stronger when were... #BosterStrong 💪
Dr can’t Thank You enough for this video.. I’m send to 2 friends & 3 family to help with communication & understanding. You verified I’m not crazy or making symptoms or feelings up. I’m sending you prayers,love&hug for helping me today. With my respect & gratitude Lynne
Good morning everyone! I wonder what percentage of MSers have significant mental fatigue. If I googled I guess I could figure it out. Have a great day!
I wish more Neurologist would start talking about MS associated dementia. Not due from Depression. Dementia is just meaning without, or gone mad. They avoid the term but I have Ms associated dementia. It's important to be upfront helps make more sense. HIV patients develop associated dementia, stroke patients, MS and of course alzheimers patients which is 60% with dementia link. It's also connected to and elder person issue, but it's not..it's dementia and MS community gets to it's just cognitive impairment. That essential the definition of dementia. I have aggressive PPMS. I also know other PPMS patients who also on donepezil that's for alzheimers related dementia, as MS causes related dementia. People need to knkw the depths of impairment they can have. It's on many levels. I find in have to call you out on a few things. I also have habe PBA. Unfortunately the focus is RRMS and PPMS gets frustrated bc we decline faster and habe symptoms unimaginable like... Palatal myoclonus, PBA, MS associated dementia, spasmodic dysphonia. Also sever spasticity and excised don't work when you have clonus. It causes more spasticity when you stretch and then bounce continuously. Most of your videos seem to be explained to a community that is the average population. I also have simple/complex partial seizures. Anything happens to your body when it aggressively fails you. When there is no time for repair just a collection of more deficits. My optic neuritis that I was told would come and go and get better, well 4 years and I am still blind. mri and evoke potential test show it. Steroid infusions didn't help, DMT didn't help, diet didn't help. 159 years later and Dr.s don't know much more than they did than. Everyone MS is different so are the symptoms. To say that cognitive impairment is not the same as seen in alzheimers is obviously untrue. Dementia is cognitive decline..alzheimers is different but dementia is an association with a disease.
My MRI show 20 plus lesions on brain since diagnosis PPMS five years ago. Can't this be a reason? Twenty plus scars should cause cognitive issues. Also I believe everyone suffers from depression at different times during year but happy pills are not always the answer. I love your enthusiasm and your videos. This video is great but I would love a short blurb for friends and family simply stating symptoms and the cause is lesions. Just thought of something else that I run into all the time. I tell people I have cognition issues and they invalidate me by stating they also have age related memory issues. Really ticks me off cause they don't get it. Thanks again for your support. I tell my Neurologist all the time that he has a really job because there are no cures for MS or ALS etc.
I've been reflecting on how long has MS actually been attacking me. How much of me has been MS damage over the years. Physical symptoms started in 2020 and I began to go to the doctor for my hand numbness Feb 2023. Finally diagnosed Aug 2023. But 🤔 was there stuff before 2020. After watching this I think I had a Pseudobulbar affect instance in 2007 or 08 I just began crying for no reason walking down the hall at my home. And I think I had a Seizure in 2000 while on the phone with my highschool girlfriend. She said just stopped talking and breathing into the phone. When I came to, she was crying and demanding to talk to my mother. I wasn't tired and had no clue what the hell happened... Generally I think MS has been chipping at my brain at least since 2000🤔
So, I recently switched from Sertraline to Wellbutrin to see if that can help with fatigue and cognitive impairment. But, I was not aware that we are more prone to seizures (newbie here🙄). Do you feel comfortable prescribing Wellbutrin for your patients ? Is there a preferred form of Wellbutrin (SR vs XL) for us? What patient would be a contraindication for this medication in the setting of MS? Thank you for all you do!
can you please be my neuro. lol. my neuro didnt even breakdown to me what ocrevus was just gave me a pamphlet. i feel like you break things down so well.
Hi. Us that have MS in South Africa have little to no support there are 3 neurologists only that support and specialise partly in MS. BUT THESE 3 ARE ALWAYS FULLY booked. I have 10 pain points on your list of 11 and no one can help me with decent pain reliever. We fighting a loosing battle. No opportunities for MS trials either. Or anything else for that matter. Is there anyway you can help us? Set up a clinic in SA. IT will be worth your while. Trust me, we suffer bad.
Thank you for posting this!! Any suggestions on the best cognitive training packages - there are several on the market? Also, any thoughts on sinus problems and MS? This has been a chronic problem for me since my first relapse, with my sinuses seeming so congested, solid. Other MS patients have described similar symptoms, but as far as I can tell, it isn’t a common MS symptom.
I've had MS since 2005, dx 2006 used lots of occupational therapy Quillivant XR scheduled planned days (Franklin Covey based) to stay working, writing, graphic design, etc. Last fall my hubby started getting sick. By Jan I was struggling to do 8-16 hour days as #familycaregiver March 19th we had reoccurrence of domestic violence issues with his siblings, worst day I had 2 non epileptic seizures. Now I have all what you talk about except pseudobulbar. Is there any hope? Recovery? Hubby is also Neuro complex spoonie, he wonders if we should just stop fighting, go on palliative care, but I'm not ready, partly because if we had all our state hcbs we would be in much better shape. Can increased meds like quillivant reduce the cogs? Are there other energy stimulants that can fight fatigue? Would more work with OT help? How does an Ms patient know when it is too late, that the last 5 year slide has started? My last MRI should no new white or black lesions at all! Sorry for so many questions. 1hr a month...not much time to cover much, so we get most of our info from you. Thank you!
After I watched this video I became a bit misty eyed. Sometimes it’s indescribably frustrating to find the words I need to express my symptoms but now I’m recognizing that, that is okay. Thank you for giving me the words
We r only understood by people who have this condition I have ms n nobody understands sometimes even doctors But im lucky i have beautiful kids Thank u for ur advice n support
I felt much better reading this comment and of course watching this video! Here I was thinking my English wasn’t very good because I am a native Spanish speaker but since last year I been struggling to find the words to express myself I know what I want to say but can’t physically say the words!
@@jenngranados825hola! Estoy leyendo los comentarios, y me cruze con el tuyo que eres nativa espanola como yo. Tengo desde 2022 que mi cuerpo empezo em decline, examenes y mas examenes y hasta la fecha no me dan un diagnostico... dicen.. quiza esto quiza esto otro... en fin , aqui estoy educandome tambien yo...
Dr Boster, I was diagnosed with MS when I was 21 or 22 years old. I think the hardest part is that not only do I have to live with it, the people in my life don’t understand it, I can’t explain it to them, it’s hard to believe what you can’t see. But I want to thank you so very much for posting not only this informational video but for all. I am so grateful to have stumbled upon your channel I appreciate what you are doing and I wish you were my doctor hahaha 🤣
So hard to live with this. On top of menopause. School aged children still. You're right. No human person not experiencing this could truly understand the depth of it.
Now I understand why I have become so socially awkward. I don’t know how to explain it to friends and family but I see their confusion. Thank you so much for explaining it.
DR BOSTER WOW always right on it!! I've been struggling to explain my "Im tired, cant really think right now, ahh just need a second to regather myself or ahhh I'm done for the day... my husband n family look at me n say but you look healthy or you were fine a few hours or you should take an energy drink that will work.. Dr B you should be a requirement for employers, families n friends of us who suffer from MS BUT to the world "dont look sick or dont look like you have MS" THANK YOU DR B FOR GIVING US THE WORDS AND UNDERSTANDING OF WHAT WE ARE FEELING!! YOU ARE AMAZING!! PLEASE DONT STOP MAKING VIDEOS TO EDUCATE US N OUR FAMILY AND FRIENDS!!!
Duuuuude! Thank you so much for this video! I have been struggling to explain to people about my M.S., and the expressions and ramifications of it. I am going to send people this video because it definitely helps explain what has and is going on with me. Most people have no idea what M.S. is and to what extents it impacts those with it. Thank you for a thorough and concise (and relatively quick) way to explain much of these things!
I live in AZ and so I understand this heat issue!!! My physical therapist is working on getting me a cooling vest through my insurance. It looks like an extended sports bra that goes on under your clothes. When I get it, I can let you know name of it. But try a cooling vest (amazon has some), some ladies i know go on walks in morning but they leave the house with wet hair, their shirts wet, basically if you can keep your neck cool while exercising that may help you!
Thank you for making this video, it was very informative. I have been struggling with multiple forms of fatigue, especially when in a group setting, or discussing multiple topics. I used to be very social but now i have to limit my contact with other people just to ensure i have brain energy/clarity for the basics. I used to own a cafe (which i opened before i knew i had ms) and ended up having to sell it due to both physical and mental symptoms such as math and multi tasking became especially difficult. Is hard to think an employer would not be at a detriment by employing me due to me now only working mentally at about 30% capacity to before. It is very easy for me to forget or misread things, is almost like the disease takes away your reliability as an employee. I know there are anti discrimination laws but how can you look for a new job without telling them your difficulties. Do you have any ideas on this?
I was diagnosed in 09/23, I found your channel today, and I've already watched several of your videos. You're amazing. You say so many things that make me feel so understood
Very nice video. These symptoms are difficult to understand, and I think you did a great job breaking them down. You make a great point about drug holidays form stimulants which I also advocate. I am going to do a video where I interview a neuropsychologist who wrote about a book about cognition in MS at some point.
Thank you Dr. B! I look forward to watching that interview with the NeuroPsych! We should plan a collab video again soon. Any topics you'd want to chat with me about?
@@AaronBosterMD Sorry. I missed this earlier. A collab would be great. It's hard for me to think of a good topic right now. Maybe I could interview you about your experience in private practice to discuss challenges people with MS experience with the American healthcare system (access, out-of-pocket cost, healthcare deserts, etc). Maybe we could just take some questions from TH-cam and Twitter and answer them and have a short discussion on each question. We could also find a recent interesting publication and discuss it.
That is definitely one to share with the spouse who is tired of hearing how tired I am because “he’s tired too and still does x,y,z”. I know it’s got to be hard dealing with a spouse like me so this one has already been sent to his inbox. I have tried to explain that my fatigue is like I’ve run a marathon and can’t lift a muscle in my body to work, daily.. but he still doesn’t get that when I haven’t done anything all day. Hoping this helps him get it. It’s so hard to explain!
I forget words that I know when I am talking.. simple words.. I can see the picture in my head.... I am well educated. It drives me crazy. I am having to take adderall for the pathologic fatigue because I teach students online. I was literally in the midst of teaching a class and would drift.
I won spelling b's in middle school. Had an enormous vocabulary before MS, even to the point I would have to 'dumb down' my language sometimes so I was understood. Despite all my physical symptoms, I miss my vocabulary and being able to read @ a rapid pace the most.
Wow, thank you Dr. B. This really explains it perfectly. Sometimes even family just doesn't "get it". I'm going to have them watch this. It's frustrating for us when we have those cog fog days.
Thank you for explaining this. I have MS and have a friend with MS, I think in her 50’s. She recently had something weird happen where she was believing strange things, like her relatives were working with some bad people, etc. Her husband and son finally checked her in to a facility for mental health. She was only there a week and the Dr said they have never had someone recover so quickly. I believe she was on some med that helped clear her thinking. Could this be an MS symptom? There isn’t another explanation according to her neurologist.
Something difficult to explain is how cognitive issues affect your physical performance and viceversa. For example the more brain fogged I am the more difficultes I have walking because it's more difficult to remember to do constantly all those extra things I have to do walk properly. For the same reason, after a walk I might not be that phycally tired, but I can be mentally exhausted and if I try to do something intellectually demanding I'm going to struggle a lot.
Hey Aaron This video has really helped explain things to my family who I'm going to see in England in a week and they haven't seen me since I was diagnosed in June last year and gone downhill pretty quickly. It's also helped with my fiancée as she now understands a bit more why I can't do the things I used to I shared it to a small MS group in the UK and everyone has said that it's a great video and will be very helpful. Keep up the amazing work and maybe if you ever come to the Highlands of Scotland we can have a glass of water together lol #stayhydrated
Hi Doc, my cognition causes me social anxiety, then I stress and that makes my cognition worse. Kind of a vicious circle. I find myself isolating more because of it. Could you address social anxiety? If you haven't already. thank you
Do you know of an app (on iPhone) that would be good to help me keep up with my daily symptoms of MS and how I treated them? Most days are different with MS and I can experience one symptom today and something different tomorrow. Thanks!
I'm sitting here with tears in my eyes, I wish that I had you for my Dr., I'm in a relapse now and stress factors that I can't control. I'm scared ... anyway, I get so tired of hearing myself try to pre-explain what I'm going through before a Dr appointment, or after meeting a new friend, knowing that I'm going to have to explain "MS" and the importance of managing my life to avoid relapses if possible. You are the best, I'm saving this particular video to share with anyone, if they care--semantics, I use a word and of course even the kindest person might think they understand. Thank you so much, I watch so many of your videos, someone understands, you understand, the people here understand. Dear people here, living with MS, let's be happy and have a beautiful day, we can define what happiness and beautiful days are, in our lives. I need to join MS groups, people who understand. Why hasn't my Dr brought up all of the information you have? He's a good Dr, and a kind person. Maybe I'm not really being honest with him about how things really are,
I have cognitive issues since a few years now. Recently I had to do permanent education examen again to maintain my diplomas. It comes back every 3 years . If I would not succeed and lose my diplomas I am not allowed to do my job. This time it was very hard for me. My learning ability has decreased and it took me 3 times to succeed my examen. That is not normal for me. I felt exhausted. Had brainfog all the time, headaches non-stop, wanted to sleep instead of studying, felt as if my conscious awareness changed and I just wasn't able to hold the new information. It didn't connect. Weird experience. When I try to explain it to people they just don't understand.I hardly understand what I go through myself actually. It is very confrontating. Hope I write understandable, I am not American or English😉
Wow, what an excellent video. Thank You Dr.A#, this one is masterpiece. Well, two of my many cog-issues do not fit MS well enough (and heavily confused my doctors), started 15 years after my MS first showed up (9 years ago): big 'holes' in memory - completely missing chunks of time, as if those never ever happened even after the other person tries hard to help me remember our interaction or parts of it; AND specifically navigation issues - suddenly absolutely not remembering a certain route, which I drove or walked many times before.
I definitely have experience of how difficult it can be in doing very important tasks on a computer screen and at the same time having to be fully aware of what is going on around me. It can be difficult to do and very fatiguing but I think I can say it has kept my brain healthier in the long run! Another great video!
When my MS was out of control. Any kind of task or mental challenge by the latter hours of the morning, were just not possible. I would find myself unable to commit to anything that would require planning. I was spent by early evening; 4-5pm. I’m very glad the medication I’m using is working and I have my life back.☺️
Then, I have to use tomorrow’s spoons to cook supper. I used to be such a good cook. Now it’s just simple and boring. I actually lost my last three jobs, before finally getting disability, due to this.
Dr. Boster again you are so informative. You are also spot on with these items. It's almost like your inside our minds knowing how we feel. I'm proud to be on a team with a top shelf Dr. And hello to all the other MSers.
Right on the money....for the last 4 days that's exactly how I been feeling I drink a energy drink see if it helps but NOPE or high among candies or chocolates again nope....for a few minutes I feel the raising on energy and clear mind but a few minutes later I feel the opposite I slowly feel the crash and burn but in far reality is the cog fog
I was diagnosed with MS after my first Attack at the age of 15, now am 20. And I wasted these past few years doing nothing significant cuz I didn't really care about ni future that much at the time, if at all. Now I think I don't have much time left to play around, It would've been nice if I could fully use my IQ and etc.. but aight, doesn't matter.
Sometimes I feel my own wife doesn’t even understand how can I expect others We watched this video together not sure that even helped I think she’s just tired of me and I don’t blame her 😞
Thanks Dr. B.! Again, as usual, you help me feel a little more normal about my MS. I have had so many changes in the workplace and so little notice. I am struggling through a 4 day notice on changes to a new manager (someone I have never met or spoken to), all new team members, high expectations of being a team leader at work (I am the #1 sales female in my workplace), and severe anxiety and depression that was already there. I try to explain myself and why my processing speed is slow and how all these changes impact me and I feel like others just see me as crazy or irrational because "this shouldn't be a big deal". It's been a week straight of this and I have sent articles to leadership to explain this, although, I am not sure they get it. This video really helps me feel better about myself as I struggle through. I will certainly be sending it along to others that love me or are interested in trying to understand how changes and processing speed impact me and how I operate. I also appreciate that you speak of how it compounds itself when combined with things like stress, anxiety, pulling away from others, pain, being able to work out and so on. I know I am not crazy, I know I am a good employee, and I know I am slow to process change. I just want people to recognize, and to be mindful and respectful, of how changes in cognition and processing speed impact so many things when related to MS. Thank you for giving me a few moments this morning to know that my reactions and struggles are normal 😪❤️
Thank you for your video! I love that I can share this with loved ones to explain difficult “things”. I did Lemtrada (three times over 4 years) and have found after having had Covid-19 (approximately 6 months ago) I have had more cognitive problems such as; word recall, focusing on a single task, understanding directions, etc. This video explains it soooooo well.
Thank you for sharing my wife has ms and she used to have flare ups and then get better but for last year and a half we thought she was having a flare up but it never got better and now she has occipital neuralgia and has severe pain on the back of her head she has three types of pain one feels like there are a thousand fish hooks pulling on the back of her head and another where it feels like her scalp is being peeled off and another where it feels like she is being repeatedly stabbed by an ice pick on the back of her head it has been very difficult to see her go through this
I stopped driving due to issues with attention I guess is what you would call it. It became difficult to pay attention to everything that was going on around me and process it quickly to drive and make decisions. Like watching the traffic light, the cars, the people walking at the same time in town. I also found my mind trying to wonder off into space and it was very hard to keep my focus on the road while I was driving on the open road. I stopped driving because of this but my family just does not seem to understand. They are like "Well, just drive slow." but that will not fix it. Is this common?
Great info ! Those invisible commorbidities were the campaign from MSIF in year 2019 wich continues in Portugal due to the importance of letting everybody know the hidden disabilities pwMS have !!
18:36 thank you for this. My husband is 53 and was diagnosed with MS when he was 29 and starting his residency program to become a pediatric endocrinologist. I was a nurse in that department and even the other docs didn’t get the MS fatigue issue that he dealt with at the time. He has been a successful pediendo doc for all this time and still is working and I am at his side and pushing the wheelchair. His strength and positivity is a gift to his patients and others, including me! Your videos are so helpful to help me understand and share issues together with my sweetie.
I facilitate an MS Support Group in Bettendorf, Iowa and this video is very helpful. Members of the group have had some questions regarding Cognition in MS. Thank you for this information.
Im in RI n im exhausted ..i got ppms supposedly but were constantly holding off my infusions and i move much better without it so i t i think i need to figure this out new Doctor???
Wow! Someone understands me! Holy cow! Having scoliosis in my spine is okay?? No way that its okaaaaay to have issues like the tiredness or only bit of energy because it's all we will have! Blessings are important
Dr. Boster hello. I have difficulty with long term memories. I just wanted to ask why this can’t be an ms symptom from all the lesions I have had in the past. I looked at your lecture and you had referred this doesn’t happen in ms. Can’t this be a rare symptom with memory ? Thanks so much. Ty for your videos.
This is so helpful. It makes me want to send a link for this video to my friends, family, and co-workers and boss. I am very lucky. I have a small but wonderful group of friends and co-workers, but this would help explain, far better than I can, especially when I am in the middle of a cog fog attack.
OMG this totally explains why i have had issues in various jobs in the last 8 years.. I would have brain fog after a meeting and forget the details that we just discussed.. or I would be wiped out at 2pm... or would confuse meetings/emails, even though it was all on my calendar. Finally asked for accommodations, but even that didn't help. So I left my last position on workplace disability, and am working from home doing a little freelance work and some cat sitting - and am so much better. No stress, no worries about meetings/remembering details (even though I took good notes). I can sleep when I need (I was sleep deprived) and exercise more (to keep me limber), use my scooter more rather than double forearm canes to look like I could mobilize. Thank you for your good words - I am now a new subscriber!
Thank you for all the information on MS.
Any time!
So what I have been told from primary is that the mri shows lessened venous flow, possibly due to aging but I need to fallow up with neurology and the rest of the testing to know what’s happening. Hurry up and wait some more.
This made me a little emotional. I was going to school to be a doctor but when I got sick, I had a sudden decline in my grades. I ended up failing out of school after already completing 5 years of school. Everyone thought I was depressed so they never took me seriously when I repeatedly said something is wrong. As time went on, I started to struggle in other areas of my life. My family knows MS effected my memory so it’s their favorite thing to use against me in an argument so I never know if I’m really forgetting that much or if it’s their easy win to all disagreements. It’s like my brain is waterlogged or I’m waking up from anesthesia sometimes. Part of my problem is my severe spasms have caused me to stay slightly dissociated to mentally deal with the pain. Too much stimuli is so exhausting that I have severe emotional outburst that I never had before my last MS attack. It’s so sad sometimes but doctors like you help me feel validated and heard.
I know this comment is old, I'm sorry I hope you are doing better and I hope you didn't give up completely on working in the Medical Field. I was a Medical Assistant back in 2006 but left the Medical Field and went to driving trucks but back in 2018 I was having issues with my back and when I went to the doctor they did an MRI and referred me to see a specialist and they were saying I needed a Spinal Fusion. My pain would go away for about a year or so and I brushed it off because I was not going to do a Spinal Fusion if I could help it, so, in 2021 I started having issues with my back again and started losing my balance, getting blurry vision off and on and getting fatigued so I was thinking it had to do with my disc in lower back so I found a place that did what they call a Spinal Laminectomy. I got the Spinal Laminectomy Surgery but was still having problems after about 3 months so I went into the Emergency Room and told them my symptoms and after several MRI'S , CAT Scan and blood tests she said I had Multiple Sclerosis, I am still waiting to see a Neurologist, I saw one at the Hospital but still waiting to see my Neurologist. This is hard and I go through one day of feeling like I am going to quit trying to work because of the way I feel but then the next day feeling good so I understand that you were probably having those days when you did this message but I would like to say you have enough knowledge that you can be a Nurse if you choose not to keep going for a Physician, God Bless you and your family and I hope you are doing well.
TRUE TRUE : (
I'm not a doctor, but I care about you and have the same symptoms. Members of my family use the forgetfulness against me too.
You have described what I went through and was getting worse until I stopped taking Gabapentin after reading stories of what others have been through while on this drug. I quit and starting taking Duloxetine within a month my cognition improved significantly and bonus the Duloxetine took away my pain and I felt better than I ever have while taking Gabapentin. I hope you are feeling improved.
My husband ,a narcissist uses this against me as well @@michel3691
Dr B this made me cry because I’m going through this all over again. As you know I had to leave my nursing career in 2012 because of my various issues with cognitive issues. I recently decided to go back to a different role part time and I am soooo frustrated!! Everything you just described is ME exactly!! After 2 to 3 hours I am experiencing difficulties. I know the people I work with don’t have a clue what MS is let alone how it affects people. I feel like giving a mini in-service but most of my pharmacy coworkers are youngsters who might perceive it as me trying to make excuses. I have always been open about my MS and not afraid to educate others, but this is a different situation and I’m not sure how to handle it.
Penny I’m right there with you
You saved me a lot of typing thank you
I'm in absolutely same situation as well. I had to leave several jobs after disclosing my MS dx because people in medical field, especially in nursing, make your life miserable. Im usually trying not to disclose as to untrained eye my MS is not obvious. However, every time after 3-5 yrs of uneventful employment, the bad attack comes & I have to disclose. It's the same as painting target on my back Not being A+ employee any longer due to attacks & meds side effects + worsening cognitive issues, I also have to deal with people setting me up & being under microscope with everything I do. Please, hang on there. You are not alone.
Sadly I had to give up nursing too, I really miss it 😢 I am having difficulties with mobility and I can't do those long shifts anymore. Take care 😘
My red flag was being told to only call the Neuro if I can't walk or go blind...for a week. New neuro says, if you can't walk, go to emerge, could be a stroke. I knew if I went blind, could be a detached retina. He also mocked me for asking questions, calling me Dr (my surname). Horrible man.
Thank you another great video. I suffer incredible fatigue. At one time I was on the Dean’s list at University. I worked part time throughout school. Now I can barely concentrate through your wonderful video.
Thanks so much Dr. B. The stress of this past year + menopause has definitely impacted my cog fog. I am coming up on my diagnosi-versary and am reflecting on the past year, I am addressing both the stress and menopause symptoms.
I think that is the best message I’ve ever heard about all those things in your list!! But especially fog and cognitive stuff that my cognition has really affected me in the past year or two my neurologist doesn’t even know it. I was on my way to see him in Mobile Alabama and I totaled my car. It’s was a great car. She was paid off oh man. Idk what imma do. I don’t have family and no friend bc I’m new in town. I don’t have anyone I can depend on. It’s very lonely and isolating.
I love your videos. I was diagnosed with MS in December 2020. Your videos have been so helpful in helping me understand what is going in my body. I have made a few major changes in my life over the last 6 months that has helped tremendously with my fatigue and mental clarity. I've changed my diet completely and now exercise daily. I wasn't overweight before but I didn't lose 20lb and my body feels better than it ever has. I have a heavy burden of lessons on my brain they have shrank significantly. Thankfully I don't have any on my spinal cord. I haven't started any DMT, but I will be starting Tysabri soon.
You got this Santana! #WeHaveMS #StrongerTogether
THANK YOU for taking the time to break this down. I wish I saw then when I was first diagnosed 10 years ago. But knowing what I know , I wasn't ready to hear your words until now. xoxo
So I’m FINALLY getting anew mri. And a neurologist. MS has been considered so many times but my age was a resistance issues with the drs.. the falling has finally caused me to use a cane for balance. I’m tired of getting hurt and falling in public. As much as I hate to have the label finally but would be relieved to call it all something. All the nerve testing coming too. Excited but nervous. 💁
i LOVE your clear and precise videos. I knew i was having a problem way back. I taught I.T. and administration and typing, and suddenly i was typing goggledegook, or i would look at a spreadsheet and think how on earth do i do a simple forumula etc. It was really scary. I was diagnosed after 16 years with progessive MS. My energy is exactly as you say it. also i can talk to someone in the morning and by the afternoon i cant even remember when we said. I go to bed at 5pm as i cant take any more information. I just need to rest and chill out. I pace my MS but by lunch time i am wiped out. thank you again very clear. and helps too.
Wonderful explanation- absolutely. Sharing is caring
#WeHaveMS
Thank you!
This is my 15th year with MS. I had covid just after Christmas and sadly after six weeks of not being able to get out of bed it brought on a relapse and I'm now in the progressive stage 😕 Over the years I've found that I can't recognise people's faces and forget their names 🙄 It's incredibly frustrating. I sadly had to give up nursing years ago and now as my mobility is so bad have stepped away from volunteering 😕 I know that covid obviously played a part in events not taking place, but I'm not in a place to go back which isolates me from friends 😢
Thank you so very much! My husband has had MS for 13 years. Never has any MS Neurologist told us a "tiny spec" of the information you have shared in this one video! You are the best!!
thank you for describing this in a way that focuses on the confusion of the people around you and thus takes the focus off the disability or what's "wrong" with the person with the condition (MS in this case but really it applies to a number of others such as long term COVID or ME)
I could never do the job I used to have now. Some days I can think like I used to and have the energy to do things. Most days I am uncomfortable with abstract concepts and struggle to find words that I know I know-giving the definition rather than the word when frustrated by my inability. The lassitude and brain fog are disturbing because I use to be active and erudite. I get upset about them frequently.
Ha.... I took Topamax and I had that side effect, and boy it is not a fun side effect. Thank you for this video it helps me understand the report I received from the neuropsychological test that was done a couple months ago.
I wondered why i couldn’t find words thought i was losing my mind. Topamax was prescribed for seizures for me and i thought falling asleep after taking it was the only side effect. Good to know.
Dr. AARON!!!
THX YOU KIND SIR!
BEAUTIFUL VIDEO!
AS I RECIENTLY LEFT you a comment asking you to provide us with a video about "sudeo dementia " which im convinced I spelled wrong I appoligize.
But. Low & behold this video just appears! Not sure if u even ever got it.. but clearly ur magical if u didn't cause tada!
&oh boy does it check all the boxes!
Maybe that's one of his SUPERHERO qualities that I tend to love as a patient.
~ If ur talk to a "Boster"
the questions get answered!
The fear does a disappearing act..
And the hope settles in..
And for good measure..
We are typically left with a big ole ' smile or a laugh during his content or dr. Visits. With the just right "dr humor" this guy DELIVERS.
As I see a new dr. B video and its in the morning
I KNOW ILL BE BETTER for it. For,I have learned something, 😌 and it's a start to a better day. =)
And that my friend grants peace in the stressful times.in all of this.
P.s. Well done!on the videography dr. B
I JUST STAY proud of your accomplishments,and what you both have built ill say.
As a m.s. patient. We need something or someone to look up to..
I feel like you have delivered that to us.
With www.bosterms.com
"The boster clinic"
With wonderful staff.
And the "bosters ! "
Sincerely,
Cynthia camille
God bless
#wehavems
Keep up the great 💪work 😀
I orginally typoed the word "my friend" talking about the peace this guy gives to us..
but I think we could all call dr. Boster our friend , right? =) 😀
Thank you internet 🙏❤
#wehavems
I think I'll leave it..
"And that my friend grants peace in stressful times in all of this!"
#WeHaveMS #StrongerTogether
@@AaronBosterMD
Thank you dr b, =)
P.s .
"Cancer and multiple scerlosis "
I'm not sure if this comment maybe got lost in the shuffle with the rest,but if there was any way you could make a video on this.
Any info you could offer up on this topic I absolutely would be soooo greatful 🙏 for, as I know there's no two cases alike but. I think in the minimum it would offer up some great hope and peace if you had anything you could offer up about it.
Some boster wisdom could be helpful
"When nature is way way too generious" as I believe you quoted I believe in the past.
Godbless
Sincerely,
Cynthia camille
#wehavems
#were m.s.stronger when were...
#BosterStrong 💪
Thank you Dr. B for this video, it's very informative!
Great info and very timely for me. Thank you for all the time you spend with the MS community.
Great video! Thanks so much Dr B !!!
Glad it was helpful!
Dr can’t Thank You enough for this video.. I’m send to 2 friends & 3 family to help with communication & understanding. You verified I’m not crazy or making symptoms or feelings up. I’m sending you prayers,love&hug for helping me today. With my respect & gratitude Lynne
Good morning everyone! I wonder what percentage of MSers have significant mental fatigue. If I googled I guess I could figure it out. Have a great day!
I did a poll in my MS group- it is in the top 10 symptoms( out of a few thousand who add to it)
Having a bad mental fatigue day today 😞
Howdy Scotty, I can share that from my observation, it's VERY common.
Thank you Dr. Boster.
Welcome!
Great video! Thank you 😊
You are so welcome!
I wish more Neurologist would start talking about MS associated dementia.
Not due from Depression.
Dementia is just meaning without, or gone mad.
They avoid the term but I have Ms associated dementia. It's important to be upfront helps make more sense.
HIV patients develop associated dementia, stroke patients, MS and of course alzheimers patients which is 60% with dementia link.
It's also connected to and elder person issue, but it's not..it's dementia and MS community gets to it's just cognitive impairment.
That essential the definition of dementia.
I have aggressive PPMS.
I also know other PPMS patients who also on donepezil that's for alzheimers related dementia, as MS causes related dementia.
People need to knkw the depths of impairment they can have.
It's on many levels.
I find in have to call you out on a few things.
I also have habe PBA. Unfortunately the focus is RRMS and PPMS gets frustrated bc we decline faster and habe symptoms unimaginable like...
Palatal myoclonus, PBA, MS associated dementia, spasmodic dysphonia.
Also sever spasticity and excised don't work when you have clonus. It causes more spasticity when you stretch and then bounce continuously.
Most of your videos seem to be explained to a community that is the average population.
I also have simple/complex partial seizures.
Anything happens to your body when it aggressively fails you.
When there is no time for repair just a collection of more deficits.
My optic neuritis that I was told would come and go and get better, well 4 years and I am still blind. mri and evoke potential test show it.
Steroid infusions didn't help, DMT didn't help, diet didn't help.
159 years later and Dr.s don't know much more than they did than.
Everyone MS is different so are the symptoms. To say that cognitive impairment is not the same as seen in alzheimers is obviously untrue.
Dementia is cognitive decline..alzheimers is different but dementia is an association with a disease.
My MRI show 20 plus lesions on brain since diagnosis PPMS five years ago. Can't this be a reason? Twenty plus scars should cause cognitive issues. Also I believe everyone suffers from depression at different times during year but happy pills are not always the answer. I love your enthusiasm and your videos. This video is great but I would love a short blurb for friends and family simply stating symptoms and the cause is lesions. Just thought of something else that I run into all the time. I tell people I have cognition issues and they invalidate me by stating they also have age related memory issues. Really ticks me off cause they don't get it. Thanks again for your support. I tell my Neurologist all the time that he has a really job because there are no cures for MS or ALS etc.
I have that rare symptom of laughing uncontrollable and the crying. Once my relapse stopped it went away thank goodness.
This explains so much. Hugs and amen. Thank you for your help. Amen 👍
A great video. Thank you
How common is Parkinson’s Disease secondary to MS? Thank you
I've been reflecting on how long has MS actually been attacking me. How much of me has been MS damage over the years. Physical symptoms started in 2020 and I began to go to the doctor for my hand numbness Feb 2023. Finally diagnosed Aug 2023. But 🤔 was there stuff before 2020. After watching this I think I had a Pseudobulbar affect instance in 2007 or 08 I just began crying for no reason walking down the hall at my home. And I think I had a Seizure in 2000 while on the phone with my highschool girlfriend. She said just stopped talking and breathing into the phone. When I came to, she was crying and demanding to talk to my mother. I wasn't tired and had no clue what the hell happened... Generally I think MS has been chipping at my brain at least since 2000🤔
Rest up, Dr. Boster! You sound like you could use a hot tea with lemon and honey, and a nap!
Dr B, how long do you spend with patients please? I have struggled massively since diag @46 in 2018 and feel hung out to dry
I consider all your content important information. Are you aware that the audio is considerably lower than your other videos?
So, I recently switched from Sertraline to Wellbutrin to see if that can help with fatigue and cognitive impairment. But, I was not aware that we are more prone to seizures (newbie here🙄). Do you feel comfortable prescribing Wellbutrin for your patients ? Is there a preferred form of Wellbutrin (SR vs XL) for us? What patient would be a contraindication for this medication in the setting of MS? Thank you for all you do!
Thank you😭
Thank you for another great video
Do you see people out of state?
His office called me back and they do see people out of state on telamedicine.
yes we do. BosterMS.com or call us at 614-304-3444
I have all of this. Had mri done but they didn’t see any lesions
can you please be my neuro. lol. my neuro didnt even breakdown to me what ocrevus was just gave me a pamphlet. i feel like you break things down so well.
Hi. Us that have MS in South Africa have little to no support there are 3 neurologists only that support and specialise partly in MS. BUT THESE 3 ARE ALWAYS FULLY booked.
I have 10 pain points on your list of 11 and no one can help me with decent pain reliever. We fighting a loosing battle.
No opportunities for MS trials either. Or anything else for that matter.
Is there anyway you can help us?
Set up a clinic in SA. IT will be worth your while.
Trust me, we suffer bad.
Thank you for posting this!!
Any suggestions on the best cognitive training packages - there are several on the market?
Also, any thoughts on sinus problems and MS? This has been a chronic problem for me since my first relapse, with my sinuses seeming so congested, solid. Other MS patients have described similar symptoms, but as far as I can tell, it isn’t a common MS symptom.
I've had MS since 2005, dx 2006 used lots of occupational therapy Quillivant XR scheduled planned days (Franklin Covey based) to stay working, writing, graphic design, etc. Last fall my hubby started getting sick. By Jan I was struggling to do 8-16 hour days as #familycaregiver
March 19th we had reoccurrence of domestic violence issues with his siblings, worst day I had 2 non epileptic seizures. Now I have all what you talk about except pseudobulbar. Is there any hope? Recovery?
Hubby is also Neuro complex spoonie, he wonders if we should just stop fighting, go on palliative care, but I'm not ready, partly because if we had all our state hcbs we would be in much better shape.
Can increased meds like quillivant reduce the cogs? Are there other energy stimulants that can fight fatigue? Would more work with OT help?
How does an Ms patient know when it is too late, that the last 5 year slide has started? My last MRI should no new white or black lesions at all!
Sorry for so many questions. 1hr a month...not much time to cover much, so we get most of our info from you.
Thank you!
Quesrion: I have RRMS. I'm only taking Nexium for my Gurd. Is losing taste normal with MS? It comes and goes and it's really annoying!!!!!!
0:16 👉
After I watched this video I became a bit misty eyed. Sometimes it’s indescribably frustrating to find the words I need to express my symptoms but now I’m recognizing that, that is okay.
Thank you for giving me the words
it is my honor.
@@AaronBosterMD it means so much to me that I can be understood
We r only understood by people who have this condition
I have ms n nobody understands sometimes even doctors
But im lucky i have beautiful kids
Thank u for ur advice n support
I felt much better reading this comment and of course watching this video!
Here I was thinking my English wasn’t very good because I am a native Spanish speaker but since last year I been struggling to find the words to express myself I know what I want to say but can’t physically say the words!
@@jenngranados825hola!
Estoy leyendo los comentarios, y me cruze con el tuyo que eres nativa espanola como yo. Tengo desde 2022 que mi cuerpo empezo em decline, examenes y mas examenes y hasta la fecha no me dan un diagnostico... dicen.. quiza esto quiza esto otro... en fin , aqui estoy educandome tambien yo...
Dr Boster,
I was diagnosed with MS when I was 21 or 22 years old. I think the hardest part is that not only do I have to live with it, the people in my life don’t understand it, I can’t explain it to them, it’s hard to believe what you can’t see. But I want to thank you so very much for posting not only this informational video but for all. I am so grateful to have stumbled upon your channel I appreciate what you are doing and I wish you were my doctor hahaha 🤣
I completely agree. Sometimes the people close to you think they understand it all but they don’t. This really hurts.
So hard to live with this. On top of menopause. School aged children still. You're right. No human person not experiencing this could truly understand the depth of it.
Now I understand why I have become so socially awkward. I don’t know how to explain it to friends and family but I see their confusion. Thank you so much for explaining it.
DR BOSTER
WOW always right on it!! I've been struggling to explain my "Im tired, cant really think right now, ahh just need a second to regather myself or ahhh I'm done for the day... my husband n family look at me n say but you look healthy or you were fine a few hours or you should take an energy drink that will work.. Dr B you should be a requirement for employers, families n friends of us who suffer from MS BUT to the world "dont look sick or dont look like you have MS" THANK YOU DR B FOR GIVING US THE WORDS AND UNDERSTANDING OF WHAT WE ARE FEELING!! YOU ARE AMAZING!!
PLEASE DONT STOP MAKING VIDEOS TO EDUCATE US N OUR FAMILY AND FRIENDS!!!
Duuuuude! Thank you so much for this video! I have been struggling to explain to people about my M.S., and the expressions and ramifications of it. I am going to send people this video because it definitely helps explain what has and is going on with me. Most people have no idea what M.S. is and to what extents it impacts those with it. Thank you for a thorough and concise (and relatively quick) way to explain much of these things!
You're very welcome!
How do I get in shape, when I have heat sensitively? I live in Florida and it’s hot 🥵
I have an entire play list on temperature sensitive symptoms - check it out!
I live in AZ and so I understand this heat issue!!! My physical therapist is working on getting me a cooling vest through my insurance. It looks like an extended sports bra that goes on under your clothes. When I get it, I can let you know name of it.
But try a cooling vest (amazon has some), some ladies i know go on walks in morning but they leave the house with wet hair, their shirts wet, basically if you can keep your neck cool while exercising that may help you!
MOVE!
Fla it's on my #1 list of states that are non-MS friendly. Specially if you're heat/humidity sensitive like myself.
Why don’t you try swimming...? I too am from a hot place....it is a great for MS’ers....good luck!
I have started pilates through The Balanced Life. There are only a few of the workouts that get me sweaty but they are SO effective!
Thank you for making this video, it was very informative. I have been struggling with multiple forms of fatigue, especially when in a group setting, or discussing multiple topics. I used to be very social but now i have to limit my contact with other people just to ensure i have brain energy/clarity for the basics.
I used to own a cafe (which i opened before i knew i had ms) and ended up having to sell it due to both physical and mental symptoms such as math and multi tasking became especially difficult. Is hard to think an employer would not be at a detriment by employing me due to me now only working mentally at about 30% capacity to before. It is very easy for me to forget or misread things, is almost like the disease takes away your reliability as an employee. I know there are anti discrimination laws but how can you look for a new job without telling them your difficulties. Do you have any ideas on this?
I was diagnosed in 09/23, I found your channel today, and I've already watched several of your videos. You're amazing. You say so many things that make me feel so understood
Very nice video. These symptoms are difficult to understand, and I think you did a great job breaking them down. You make a great point about drug holidays form stimulants which I also advocate. I am going to do a video where I interview a neuropsychologist who wrote about a book about cognition in MS at some point.
Thank you Dr. B! I look forward to watching that interview with the NeuroPsych! We should plan a collab video again soon. Any topics you'd want to chat with me about?
@@AaronBosterMD Sorry. I missed this earlier. A collab would be great. It's hard for me to think of a good topic right now. Maybe I could interview you about your experience in private practice to discuss challenges people with MS experience with the American healthcare system (access, out-of-pocket cost, healthcare deserts, etc). Maybe we could just take some questions from TH-cam and Twitter and answer them and have a short discussion on each question. We could also find a recent interesting publication and discuss it.
That is definitely one to share with the spouse who is tired of hearing how tired I am because “he’s tired too and still does x,y,z”. I know it’s got to be hard dealing with a spouse like me so this one has already been sent to his inbox. I have tried to explain that my fatigue is like I’ve run a marathon and can’t lift a muscle in my body to work, daily.. but he still doesn’t get that when I haven’t done anything all day. Hoping this helps him get it. It’s so hard to explain!
I forget words that I know when I am talking.. simple words.. I can see the picture in my head.... I am well educated. It drives me crazy. I am having to take adderall for the pathologic fatigue because I teach students online. I was literally in the midst of teaching a class and would drift.
I won spelling b's in middle school. Had an enormous vocabulary before MS, even to the point I would have to 'dumb down' my language sometimes so I was understood. Despite all my physical symptoms, I miss my vocabulary and being able to read @ a rapid pace the most.
I do the same. It’s humiliating and people do react in a negative way
I do the same. It's embarrassing. I try very hard to hide it. Sometimes I can feel it's going to be a confusing day.
Wow, thank you Dr. B. This really explains it perfectly. Sometimes even family just doesn't "get it". I'm going to have them watch this. It's frustrating for us when we have those cog fog days.
Thank you for explaining this. I have MS and have a friend with MS, I think in her 50’s. She recently had something weird happen where she was believing strange things, like her relatives were working with some bad people, etc. Her husband and son finally checked her in to a facility for mental health. She was only there a week and the Dr said they have never had someone recover so quickly. I believe she was on some med that helped clear her thinking. Could this be an MS symptom? There isn’t another explanation according to her neurologist.
Something difficult to explain is how cognitive issues affect your physical performance and viceversa. For example the more brain fogged I am the more difficultes I have walking because it's more difficult to remember to do constantly all those extra things I have to do walk properly. For the same reason, after a walk I might not be that phycally tired, but I can be mentally exhausted and if I try to do something intellectually demanding I'm going to struggle a lot.
Dr. Boster coming out with another banger!
Hey Aaron
This video has really helped explain things to my family who I'm going to see in England in a week and they haven't seen me since I was diagnosed in June last year and gone downhill pretty quickly. It's also helped with my fiancée as she now understands a bit more why I can't do the things I used to
I shared it to a small MS group in the UK and everyone has said that it's a great video and will be very helpful. Keep up the amazing work and maybe if you ever come to the Highlands of Scotland we can have a glass of water together lol #stayhydrated
Hi Doc, my cognition causes me social anxiety, then I stress and that makes my cognition worse. Kind of a vicious circle. I find myself isolating more because of it. Could you address social anxiety? If you haven't already. thank you
Yes! THIS👆🏾
Do you know of an app (on iPhone) that would be good to help me keep up with my daily symptoms of MS and how I treated them? Most days are different with MS and I can experience one symptom today and something different tomorrow. Thanks!
I'm sitting here with tears in my eyes, I wish that I had you for my Dr.,
I'm in a relapse now and stress factors that I can't control.
I'm scared ... anyway, I get so tired of hearing myself try to pre-explain what I'm going through before a Dr appointment, or after meeting a new friend, knowing that I'm going to have to explain "MS" and the importance of managing my life to avoid relapses if possible.
You are the best, I'm saving this particular video to share with anyone, if they care--semantics, I use a word and of course even the kindest person might think they understand.
Thank you so much, I watch so many of your videos, someone understands, you understand, the people here understand.
Dear people here, living with MS, let's be happy and have a beautiful day, we can define what happiness and beautiful days are, in our lives.
I need to join MS groups, people who understand.
Why hasn't my Dr brought up all of the information you have?
He's a good Dr, and a kind person.
Maybe I'm not really being honest with him about how things really are,
I have cognitive issues since a few years now.
Recently I had to do permanent education examen again to maintain my diplomas. It comes back every 3 years . If I would not succeed and lose my diplomas I am not allowed to do my job. This time it was very hard for me. My learning ability has decreased and it took me 3 times to succeed my examen. That is not normal for me.
I felt exhausted. Had brainfog all the time, headaches non-stop, wanted to sleep instead of studying, felt as if my conscious awareness changed and I just wasn't able to hold the new information. It didn't connect. Weird experience. When I try to explain it to people they just don't understand.I hardly understand what I go through myself actually. It is very confrontating.
Hope I write understandable, I am not American or English😉
Wow, what an excellent video. Thank You Dr.A#, this one is masterpiece.
Well, two of my many cog-issues do not fit MS well enough (and heavily confused my doctors), started 15 years after my MS first showed up (9 years ago): big 'holes' in memory - completely missing chunks of time, as if those never ever happened even after the other person tries hard to help me remember our interaction or parts of it; AND specifically navigation issues - suddenly absolutely not remembering a certain route, which I drove or walked many times before.
I definitely have experience of how difficult it can be in doing very important tasks on a computer screen and at the same time having to be fully aware of what is going on around me. It can be difficult to do and very fatiguing but I think I can say it has kept my brain healthier in the long run!
Another great video!
I mentioned adderall to my doc, when diagnosed with chronic fatigue and they acted like I was nuts! (again)
Thank you , my love she suffers from ms and it's not so easy sometimes to understand what she feels thank you for putting this together god bless you.
When my MS was out of control. Any kind of task or mental challenge by the latter hours of the morning, were just not possible. I would find myself unable to commit to anything that would require planning. I was spent by early evening; 4-5pm. I’m very glad the medication I’m using is working and I have my life back.☺️
Please would you tell me what that med is? Thanks.
Then, I have to use tomorrow’s spoons to cook supper. I used to be such a good cook. Now it’s just simple and boring. I actually lost my last three jobs, before finally getting disability, due to this.
I'm applying for disability too. I find that food prepping in the morning helps a lot
Dr. Boster again you are so informative.
You are also spot on with these items.
It's almost like your inside our minds knowing how we feel.
I'm proud to be on a team with a top shelf Dr.
And hello to all the other MSers.
#TeamWork #StrongerTogether
Thank you . Now let's see if I can get my wife to watch this.
Right on the money....for the last 4 days that's exactly how I been feeling I drink a energy drink see if it helps but NOPE or high among candies or chocolates again nope....for a few minutes I feel the raising on energy and clear mind but a few minutes later I feel the opposite I slowly feel the crash and burn but in far reality is the cog fog
I was diagnosed with MS after my first Attack at the age of 15, now am 20.
And I wasted these past few years doing nothing significant cuz I didn't really care about ni future that much at the time, if at all.
Now I think I don't have much time left to play around, It would've been nice if I could fully use my IQ and etc.. but aight, doesn't matter.
I also have sleep apnea so that sucks but aight, doesn't matter innit mate
Sometimes I feel my own wife doesn’t even understand how can I expect others
We watched this video together not sure that even helped I think she’s just tired of me and I don’t blame her 😞
You just described me 😞 I always end up sharing your videos to my husband 🙏 Thank you
I'm so glad!
You are very good well put across
Thanks Dr. B.! Again, as usual, you help me feel a little more normal about my MS. I have had so many changes in the workplace and so little notice. I am struggling through a 4 day notice on changes to a new manager (someone I have never met or spoken to), all new team members, high expectations of being a team leader at work (I am the #1 sales female in my workplace), and severe anxiety and depression that was already there. I try to explain myself and why my processing speed is slow and how all these changes impact me and I feel like others just see me as crazy or irrational because "this shouldn't be a big deal". It's been a week straight of this and I have sent articles to leadership to explain this, although, I am not sure they get it. This video really helps me feel better about myself as I struggle through. I will certainly be sending it along to others that love me or are interested in trying to understand how changes and processing speed impact me and how I operate. I also appreciate that you speak of how it compounds itself when combined with things like stress, anxiety, pulling away from others, pain, being able to work out and so on. I know I am not crazy, I know I am a good employee, and I know I am slow to process change. I just want people to recognize, and to be mindful and respectful, of how changes in cognition and processing speed impact so many things when related to MS. Thank you for giving me a few moments this morning to know that my reactions and struggles are normal 😪❤️
Thankyou for this informative video. Very much appreciated.
You are very welcome
Thank you for your video! I love that I can share this with loved ones to explain difficult “things”. I did Lemtrada (three times over 4 years) and have found after having had Covid-19 (approximately 6 months ago) I have had more cognitive problems such as; word recall, focusing on a single task, understanding directions, etc. This video explains it soooooo well.
Thank you for sharing my wife has ms and she used to have flare ups and then get better but for last year and a half we thought she was having a flare up but it never got better and now she has occipital neuralgia and has severe pain on the back of her head she has three types of pain one feels like there are a thousand fish hooks pulling on the back of her head and another where it feels like her scalp is being peeled off and another where it feels like she is being repeatedly stabbed by an ice pick on the back of her head it has been very difficult to see her go through this
I stopped driving due to issues with attention I guess is what you would call it. It became difficult to pay attention to everything that was going on around me and process it quickly to drive and make decisions. Like watching the traffic light, the cars, the people walking at the same time in town. I also found my mind trying to wonder off into space and it was very hard to keep my focus on the road while I was driving on the open road. I stopped driving because of this but my family just does not seem to understand. They are like "Well, just drive slow." but that will not fix it. Is this common?
Great info ! Those invisible commorbidities were the campaign from MSIF in year 2019 wich continues in Portugal due to the importance of letting everybody know the hidden disabilities pwMS have !!
18:36 thank you for this. My husband is 53 and was diagnosed with MS when he was 29 and starting his residency program to become a pediatric endocrinologist. I was a nurse in that department and even the other docs didn’t get the MS fatigue issue that he dealt with at the time. He has been a successful pediendo doc for all this time and still is working and I am at his side and pushing the wheelchair. His strength and positivity is a gift to his patients and others, including me! Your videos are so helpful to help me understand and share issues together with my sweetie.
dr, I understand now why I became so ant social, THANK YOU Regards from BRAZIL
I facilitate an MS Support Group in Bettendorf, Iowa and this video is very helpful. Members of the group have had some questions regarding Cognition in MS. Thank you for this information.
Can movement disorders manifest from MS?
I have found that I don't get my "spoons" until much later in the day. Maybe 6PM. I call it my Golden Hour. Anyone else experience this?
Im in RI n im exhausted ..i got ppms supposedly but were constantly holding off my infusions and i move much better without it so i t i think i need to figure this out new Doctor???
Wow! Someone understands me! Holy cow! Having scoliosis in my spine is okay??
No way that its okaaaaay to have issues like the tiredness or only bit of energy because it's all we will have!
Blessings are important
#StrongerTogether
Thanks Timely Video. Answered some concerns I have with my wife.
Glad to hear it
Spot on! You want to share this with so many individuals. Thank you.
You are so welcome
Dr. Boster hello. I have difficulty with long term memories. I just wanted to ask why this can’t be an ms symptom from all the lesions I have had in the past. I looked at your lecture and you had referred this doesn’t happen in ms. Can’t this be a rare symptom with memory ? Thanks so much. Ty for your videos.
I wish you would do a video that covers aphasia with MS.
This is so helpful. It makes me want to send a link for this video to my friends, family, and co-workers and boss. I am very lucky. I have a small but wonderful group of friends and co-workers, but this would help explain, far better than I can, especially when I am in the middle of a cog fog attack.
OMG this totally explains why i have had issues in various jobs in the last 8 years.. I would have brain fog after a meeting and forget the details that we just discussed.. or I would be wiped out at 2pm... or would confuse meetings/emails, even though it was all on my calendar. Finally asked for accommodations, but even that didn't help. So I left my last position on workplace disability, and am working from home doing a little freelance work and some cat sitting - and am so much better. No stress, no worries about meetings/remembering details (even though I took good notes). I can sleep when I need (I was sleep deprived) and exercise more (to keep me limber), use my scooter more rather than double forearm canes to look like I could mobilize. Thank you for your good words - I am now a new subscriber!
Thank you so much for making these videos Dr. Boster! I greatly appreciate them.
More to come!