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The Great Reveal
เข้าร่วมเมื่อ 3 พ.ค. 2024
This is my unmasking diary as I suspect I am autistic and have ADHD. These video entries are about how I am making sense of the whole complex and emotional unmasking process. My son is autistic/ADHD and my daughter is ADHD, and my husband is ADHD. I also have many diagnosed relatives who are autistic/ADHD. Neurodivergent people are the norm in my family but it was a school friend who was the person that really made me think that I was autistic after she was diagnosed as autistic (because of course I will not listen to those closest to me! Lol!)
Currently trying to make sense of it all and I hope these ramblings and videos are helpful to others who are trying to understand decades of masking.
Thank you to everyone who has subscribed and especially to those who have shared their experiences too.
Currently trying to make sense of it all and I hope these ramblings and videos are helpful to others who are trying to understand decades of masking.
Thank you to everyone who has subscribed and especially to those who have shared their experiences too.
The pressure of Christmas - Unmasking Autism and ADHD
Wishing everyone a very merry Christmas season and also to say isn't the pressure of Christmas just exhausting?
Hello Overwhelm my old friend 🤪
Thank you for watching!
Hello Overwhelm my old friend 🤪
Thank you for watching!
มุมมอง: 69
วีดีโอ
Masking to feel safe - Unmasking Autism and ADHD
มุมมอง 86หลายเดือนก่อน
It's no big moment of realisation that masking is to do with safety, but as I continue on this masking journey and talk more and more to those who are diagnosed or identify as autistic/ADHD, it still saddens me how much it is to do with safety. I reference Dr Mona Delahooke in this, she does such excellent work, Google her and check out her socials and books. Oh and apologies for my son shoutin...
Who is behind the steering wheel in my ND car? - Unmasking Autism and ADHD
มุมมอง 1232 หลายเดือนก่อน
Having spent some time with family lately and us all realising how ND people are the norm in our family, it led to the conversations of "which neurodivergent traits are mostly driving your car?" We all seem to be both autistic and ADHD, which isn't a surprise as that's what most of our kids are diagnosed, but it does feel like one is more prominent than the other. I like how my car is driven, i...
Masked for so long that I got ill - unmasking Autism and ADHD
มุมมอง 1502 หลายเดือนก่อน
Thanks for checking in with me. I have had a bit of a break but it's because I have been recovering. I went into deep and heavy masking when travelling and got quite ill as a result. I'm still learning to put in the accomodations and adjustments I need, and often the automatic masking just happens. Which it did and I got ill as payback. Onwards on the journey, I guess. Thank you so much for the...
When my daughter said she was "too much" for her friends - Unmasking Autism and ADHD
มุมมอง 1253 หลายเดือนก่อน
Two videos in a week! I'll be hiding under my duvet for the next few days! Lol! However, I'm very grateful that my daughter can share her worries with me. I didn't have that as a teenager and it had a lifelong negative impact. But it was hard to hear her saying the very words that I said in my head as a teenager. I hope these videos at the very least build more awareness through the act of shar...
Looking at my past through the lens of autism...Part 1 of 'for the rest of my life!'
มุมมอง 1543 หลายเดือนก่อน
I've been doing this since the suggestion of autism was put in my brain and more and more makes sense. I know I'll be sieving through all the memories for the rest of my life and trying to understand 'was that autism or not?' I may never get an answer on some of them but overall there is a theme of getting things wrong, feeling awkward and not part of what is happening, and generally feeling sh...
What happens when you can't mask anymore? - Unmasking Autism and ADHD
มุมมอง 4113 หลายเดือนก่อน
I have reached a point where it is hard to mask to the level I once did and the result is that I am feeling lost. It feels like I have to learn new rules. Maybe I don't and I'm just sitting in a place of anxiety, but this unmasking process is a rollercoaster, and I am learning more about myself than I expected. I have gone to such levels to mask my autism and ADHD that it has created a false ex...
Terrified of being labelled - Autism/ADHD Unmasking
มุมมอง 1584 หลายเดือนก่อน
I am working for a more inclusive society for autistic people and those with ADHD but I'm terrified of labelling myself at the same time. There's such a conflict that is happening from years of trying to fit in. I am so early in my journey. Thank you so much for watching, commenting and just being supportive ❤️
Recovery after heavy duty masking - Unmasking Autism and ADHD
มุมมอง 2044 หลายเดือนก่อน
Learning to give myself permission to recover after a tough day of masking is not natural. I have to work at it and I give myself such a hard time. But recovery is needed more than ever as the alternative is getting really ill. Thank you so much for watching my videos and thank you for commenting!
Always feeling wrong - Autism Unmasking
มุมมอง 1974 หลายเดือนก่อน
I almost re-recorded this video because of mistakes I felt I had made, but that was the whole point of this video = constantly feeling like I am getting it wrong. So I didn't re-record and I have posted it up in all it's glory! I'm so worn out by feeling like I am always getting it wrong in pretty much everything I do. This invisible marker I set myself against. Another big part of the unmaskin...
5 things about being a mum who is autistic - Unmasking my Autism
มุมมอง 4875 หลายเดือนก่อน
Being an autistic mum has its challenges! It has a lot of good things and mostly a lot of revelations about the early years of my parenting now that I know I am autistic. I love my kids, I say that wholeheartedly, they are everything. But....being an autistic mum to an autistic child is not easy as many autistic parents will understand. I hope this helps someone else out there, it helped me a l...
Catastrophising! Autism Unmasking
มุมมอง 1475 หลายเดือนก่อน
The feeling of dread as I catastrophise is exhausting and affects me physically, mentally, and emotionally. Having done this my whole life, it is only as an adult who is in the process of unmasking my autism that I realise that this is part of who I am. A very recent situation caused me to spiral down quickly. Thank you so so much for watching and commenting!
Mirroring accents in autism - Unmasking my autism
มุมมอง 945 หลายเดือนก่อน
As I learn more about what I do when I mask my autism, I am learning that I can't help myself but mirror accents! Thank you for watching and commenting! This is a shorter and less intense video for a change!
Public transport meltdown/shutdown - Autism unmasking
มุมมอง 1116 หลายเดือนก่อน
I don't often use public transport as I find it overwhelming. Since actively unmasking I have become more aware of what is going on for me and today I realised just how tilted public transport can be for me. Perhaps today was an exceptional experience and I was just unlucky, or maybe this is exactly how I have felt many times before but only now I am able to make sense of it. Going to need a be...
Masking with smiling - Unmasking my Autism
มุมมอง 1606 หลายเดือนก่อน
Smiling to mask my autism and anxiety is something I have always done, even as a child. I am realising that it is not actually helping me and its a hard one to address because I am so conditioned into smiling whenever I am in a new situation or awkward situation and I want people to think that I am ok and coping. But I think now it's just a manic grin and having the opposite effect! We're still...
Sleep (deprivation) and Autism - Unmasking Autism
มุมมอง 966 หลายเดือนก่อน
Sleep (deprivation) and Autism - Unmasking Autism
Autism and ADHD: it's complicated - Unmasking my Autism
มุมมอง 1606 หลายเดือนก่อน
Autism and ADHD: it's complicated - Unmasking my Autism
Pretending to be someone I am not - Unmasking my Autism
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Pretending to be someone I am not - Unmasking my Autism
Too many people! Crowds and overwhelm - Autism unmasking
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Too many people! Crowds and overwhelm - Autism unmasking
Masking my anxiety at eating in public - Unmasking my autism
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Masking my anxiety at eating in public - Unmasking my autism
Arghh...Awkward Social Interactions - Unmasking my Autism
มุมมอง 1276 หลายเดือนก่อน
Arghh...Awkward Social Interactions - Unmasking my Autism
The hardest part of unmasking my autism so far....!
มุมมอง 1277 หลายเดือนก่อน
The hardest part of unmasking my autism so far....!
Do our autistic sensory profiles change as we get older?
มุมมอง 657 หลายเดือนก่อน
Do our autistic sensory profiles change as we get older?
Transition periods and autism making me feel sick...
มุมมอง 1097 หลายเดือนก่อน
Transition periods and autism making me feel sick...
Recovery time after big moments - Autism Unmasking
มุมมอง 1757 หลายเดือนก่อน
Recovery time after big moments - Autism Unmasking
Pain and reaction to pain - Unmasking my autism
มุมมอง 2957 หลายเดือนก่อน
Pain and reaction to pain - Unmasking my autism
3 things I've noticed since I begun to unmask my autism
มุมมอง 8057 หลายเดือนก่อน
3 things I've noticed since I begun to unmask my autism
As the autism mask falls...unexpected experiences - does anyone else have these?
มุมมอง 2677 หลายเดือนก่อน
As the autism mask falls...unexpected experiences - does anyone else have these?
Best wishes, Gina.
Merry Christmas Gina. Christmas morning here in Canada. It's not the easiest day of the year for sure. There is so much going on and so much to process and it is exhausting. But a great day for the little ones. They make it all worth while.
Yes they really do! It is absolutely worth it for them, and I love their excitement 😊 and Merry Christmas to you too!
It is the first time ever i have heard the word Yuletide , thank you for teaching me this👍 🥳
Glad I could help. I prefer Yuletide as it sits with me better personally and feels more aligned with the season.
So glad to see you are back and I hope you and your family makes some new wonderful memories without bruising the senses too much. I would literally dig a hole and bury myself if my extended family was not 9000 miles away. I would expect my wife or kids to dig me up after new year but I suspect this would get riskier every year. I can just imagine my wife standing with a spade. Thinking. Then "Okay, last chance. Dig him up"
This made me laugh a lot!!! My husband told me today that it was ok, he knows I can't cope at Christmas and he just adjusts everything to it 🤣
@TheGreatReveal Takes so much pressure off when you don't have to explain the "why'". I think our partners have always seen through our masks and of course, accepted us but its as if they now have to understand at a far greater level of depth and detail than anyone should be subjected to. So its not just that they understand. They mostly have. Its that we know how much this adjustment takes as we are finding out ourselves. All the best to everyone for this day and the new year.
I have to share. Just finished 2 books which I found very helpful. And they both take place in your neck of the longitudes. I apologize for shoving this your way and in likelihood you are at least aware of these. Kathleen May is only in the last few years getting exposure here so she may be old hat to you and I'm an excited newbie. The Salt Path by Raynor Winn is a general tale about finding ones footing in life again. No neurodiversity but very philisophically rebuilding especially with regards to walking in nature. But what was of greatest value personally was it led me to The electricity of every living thing by Katherine May. This also includes a walking adventure which results in her discovering she is autistic and how it makes so much sense especially in her relationship with her husband and young child. I found book one beautifully and gently written. And the latter book said so many things that I hoped would even help my wife understand my internal workings. She is about to start this and we are listening to The Salt Path together. If 2x9 hour books seems intimidating I do recommend this youtube as a "foot up" or to determining whether the latter book would be something hubby and you might find beneficial. th-cam.com/video/VWMKm3IRpMQ/w-d-xo.htmlsi=mqzpEFFtDxe9dInB
❤
Quick additional note for seasonal well-wishing, no response required! 🥳 (Personally I prefer to go full hermit for the month of December but I make exception for autistic check-ins.)
Thank you! Sending you good wishes for the season too! I have been a hermit for the past few weeks.
TH-cam has been unsubscribing people from channels! I have to re-subscribe sometimes to even my favorite channels, it’s so weird! So please don’t take it personally if someone unsubscribes because it may not have been them.
I did wonder if I had offended anyone but then decided no one had said anything so I should probably not think anything of it. I'm glad I did that now that you've told me about TH-cam unsubscribing people. Thank you!
Internalized ableism is insidious. It has taken years for me to dismantle it, and it is a continual practice. I am also late-diagnosed AuDHD. ❤
Wonderful thoughts again. I sometimes think my entire purpose is a safe place for me and my family unit. As kid was parents and siblings. As parent of course wife and kids. A tough thing to face is when we can perceive a threat or recognize a threat as far greater or immediate than others, and sharing this with those close to you. You may be alarmist. If you are wrong (phew!) you are thought of as paranoid. If you are right ( which historically I am) its much harder to convince others of the validity of your "perceived" but possibly arising storm. Case in point. America today vs America post Jan 20th.
Cannot hear you
If I recall Dexter had a passenger
Please can you put on a weekly " Raodtrips with Gina"? Some british comedians once did the worlds worst roads series. You can create more of your own or ask for contributions towards worlds worst autistic journeys starring autism and co-starring co-morbidities of your followers.
Hahaha! If I could just remember to do that!
Not wanting to deal with messing up...because it makes us feel unsafe. You hit the nail on the head there Gina. Very articulately put. We do what we must to stay safe.
I wish it wasn't this way but seeing my son in different environments, I realise this is an ongoing issue even with greater awareness.
You gave words to my struggle, thank you.
I'm so glad 😊
Yep, this exactly, and definitely applicable to both genders. I left home at 16 (with no idea that I was autistic) and felt perpetually vulnerable, in part due to what I now recognize as the neuroprivilege of others, but also partly due to my economic circumstances i.e. poverty magnifies and concentrates one's vulnerabilities - it is simply NEVER safe to unmask. This remains the case for me even now, decades later, because I still don't have any supportive local social network. As such I'd argue that pervasive systemic undersupport is the root cause of a lot of autistic cPTSD.
Yes, and there's also the moments where you may have unmasked a little but then felt deeply afterwards that it was the wrong thing to do. Which creates deeper masking and disconnection. And at the end of the day, we are just trying to exist.
I view masking for safety as equivalent to economic security. If I fully unmasked at work, I know I wouldn’t be employed, and would lose my economic autonomy and security. I isolate outside of work, so masking isn’t really an issue in the non-work segments of my life.
Yes, masking for work feels very much a necessity. I know everyone plays some kind of performance at work, but I also know that most people don't have to do it to the level and exhaustion of autistic people.
yes, we like you. rest well.
Thank you! 😊
This is the most accurate interpretation I've encountered of the Internal Family Systems model as applied to AuDHD, and now I can't help but envision it as one of those teeny-tiny haphazard circus cars crammed full of clowns. 😊 (Personally I also find the circus tends to come to town after a major ordeal has passed and I've spent some much needed time decompressing. I have to wonder whether the duration of their visits remains historically consistent - it feels like their stays are shorter now than they used to be - but that may just be circumstantial as I hadn't previously thought to measure this.) In keeping with seasonal festivities I may have to contextualize this realization via a rewatch of Carnival of Souls - I guess my clown car is a Tim Burton model! 🤷♂️
I love that your car is a Tim Burton model! My car is a rickety old car that thinks it's fitting in but looks like it needs some attention!
I can relate to all of this. I still often feel like I have to hide this part of myself ... "what if" questions abound. I'm gradually being more open about this with people close to me, and it's easier online (eg. on IG). I'm getting better at accommodating myself, but I'm still so afraid of being noticed, judged or misunderstood.
Wow, I'm on a roll right now finding AuDHD women I relate to and it's SOOOO helpful ... thankyou so much for sharing your experience!! You've had a lot of insights that will help you in the future, and it's kind of you to share them so others can benefit. I was journaling this morning about what unmasking might look like for me. I'm so far self-identified, 49, soon to be evaluated and either diagnosed or given more insights into how my brain works.
I get a lot from people commenting too, it has helped me understand my brain by reading other people's experiences. And just understanding how different experiences are has almost made me feel like I have permission to feel how I feel.
my experience is similar to yours. good video. thank you
Glad your back and please continue to give yourself space and time to recover properly. Thank you for sharing this very relatable experience.
Thank you 😊
Hope you will feel better soon! And your story is very relatable. I started an autism support group this week and even find myself masking there.
That's so wonderful that you've started an autism support group! Not automatically masking is so difficult to do.
Belated greetings from the other side of Canada! This adventure was tough to hear about, having experienced a similar situation a decade ago (prediagnosis) from which I still feel its disruptions as present-moment overstimulation (continental EU visit for three months.) One doesn't typically think of travel as traumatic but I think it may be one of the most disruptive/disregulating autistic experiences, especially for the un-/late-diagnosed. Perhaps it's different once one is autistically self-aware, but the circumstances of travel are immediately and perpetually at odds with monotropic needs for consistency/stability; masking is 24/7 out of necessity because even those quiet moments of rest are random/unfamiliar and prone to disruption. It may even be worse for a week-long trek compared to a longer stay, given that one is abruptly ripped from one's routines, forced into survival mode, and almost as abruptly returned to the familiar, now made temporarily strange by the heightened adaptive reactions of displacement - on the three-month excursion I got comfortable with perpetual discomfort, so the disregulation was more diffused and sustained, even upon return - come to think of it, coming home was like a slow-motion burnout: it took weeks to realize that I wasn't recovering as one would expect; rather, it felt like jet lag lingered for a month afterwards. (If supersonic flights ever become standard again I expect autistic folks would benefit enormously from the compressed flight times.) Also: is it just me or is the grocery store our number one location for unexpected meltdowns? It's like an autistic mobile lab for field experiments: "Am I really okay? Let's see what happens in the produce aisle..."
That comment about grocery store meltdowns made me laugh very loudly! 🤣 You are so right! Nothing like standing in a supermarket to bring out the meltdown!
@@TheGreatReveal Right? It always reminds me of the chase scene in Memento, in that even though one is aware of one's surroundings it nevertheless takes a ridiculous effort to keep things in context. (That scene, for reference: th-cam.com/video/J1gol0HwAXM/w-d-xo.html )
social chaos will definitely lead to more meltdowns. prepare to lose people who were benefitting from your people pleasing without reciprocity. I've heard that overall, our relationships will deepen and improve with the people who love us for who we are, not who we were pretending to be. and our relationship with ourselves will also improve as we learn self protection and self care. authenticity wins.
I absolutely agree, being authentic is so important!
No need to "rush back". Just a message to say I hope you and your family are well and safe and all your discoveries re autism are helping much more than hindering.
Thank you 😊 I am much better now but yes I've been unwell due to heavy masking. I made a new video that kinda explores that.
Just checking in, hope you're doing ok!
Thank you! I've made a new video which explains the break and more insight on my journey for me.
I thought and thought and then thought some more about what to comment, just so I don't get it wrong, I almost gave up. So I totally understand and I do constantly feel just as you described. I really want to thank you for your videos as they are truly helping me see how some things are the way they are because I'm autistic and have ADHD. My mental health definitely hit rock bottom and I am struggling. So, thank you again 🙏💖
I'm glad they are helping. I am finding my way in the dark too and people commenting are so helpful for me too. So thank you for taking the time to comment ☺️
Love you! I've always felt like if i can't sprint a marathon then I'm cooked. Turns out i was right.
Lightbulb moment ... another person can be a special interest?! Yes! So often I've admired and mirrored people in real life and movies, as you said fascinated, not in a creepy way, then suddenly losing interest. Thankyou so much for sharing your experience. I'm still learning and awaiting diagnosis (I'm 49). My own personality type and traits have also been an ongoing special interest, perhaps because I always want to solve the puzzle of why I think differently, have sensitivities, obsessions and aversions, why I always felt like an alien, and so on.
During our adolescent years we really discover how much we stand out when we are trying so hard to blend in. Being a teen is so so hard. You're a great mum. Keep 'seeing' her. To have a mum who really gets it will make so much of a difference in her accepting herself.
Thank you!! I hope it will make a difference.. it feels like new territory but a positive one!
Hi Gina. One of my new subscribers (Dawn) said I should check you out as she thinks we a quite similar. Well done on this video and I look forward to watching more. Trying to limit the amount of time I spend on TH-cam though 🤭 Nice to meet you, I'm EmJ and I have a channel too where I talk about my autistic journey. Are you in Glasgow? You don't sound scottish but I was told you are 🤔 maybe I search the wrong person but glad I came across you.
Hi EmJ! Oh wow, I'm a bit taken aback that people are talking about my channel! It's lovely and also makes me want to hide a bit lol! Yes, I'm in the central belt of Scotland, but my accent comes from my Dad being in the RAF and us moving around as a family. None of my siblings have strong accents either. I was born in Aberdeen and moved back to Scotland 17 years ago. I'll check you out too and subscribe! Thanks for reaching out to me, it's a lovely surprise!
@@TheGreatReveal yey! Let's support each other. I love that I have 'met' another Scottish youtuber talking about neurodiversity. Think we are on similar stages with our channels. Very early stages and it is scary if others mention us, overwhelming but super whoop whoop 😁💃🏼
Did my earlier comment on this fail to post or succumb to gremlins? Either way I can't see it and I'm not sure whether or not that's a glitch at my end.
Oh I can't see it, so I think it got lost somewhere in the ether and didn't land!
@@TheGreatReveal Ok thanks, not just me then! I'll have to resurrect it from memory: It may also be worth considering the question from another perspective i.e. self-esteem is as much about one's values as one's identity. When we feel excluded and/or othered it isn't just personally hurtful but also an implied criticism of our identities as individuals (which is ironic, given the typically ignorant and reactionary judgements of young peer critics; how valid can their attacks be when they don't yet know themselves let alone anyone else?) The adolescent struggle to come of age as an individual is, in part, a reaction to others. If we constantly see the worst in people directed towards us then it's hard not to be disappointed with human nature. It may be that your daughter is concerned with those sorts of questions as well but hasn't learned yet how to articulate them, e.g. "How can one feel good about oneself in a world that criticizes, ridicules or outright rejects "good"/ethical behaviour in favour of superficial, petty materialism (and etc.)?" Honestly, I can only imagine how difficult it must be to be an adolescent in our current cultural climate, but I recall my own well enough and it certainly didn't feel that different: other people were such a disappointment that I questioned whether it was worth involving myself with society at all. It's a difficult position for any young person to be in but the search for those answers is a valuable formative experience (and, for me personally, the reason I survived my first major depression at 18.)
I have no doubt that 90% of what your kids need is their parents love, acceptance and understanding and I am quite sure they get this. Your kindness and empathy shines in every one of your videos and I am sure your kids benefit from this the most. It was no surprise to hear about your daughter's award. And although I completely understand the need to mask I think supported and informed kids will have a better chance to limit the masking to only what is vital and not lose who they are. I do hope there is a happy medium for all of us. Our kids are now grown. They have their own little neurodivergent journeys but are doing really well.
I agree, education, support and kindness can help create a better way forward for our kids. I know that I pushed on ahead for years before I realised that I just couldn't deal with the constant burnout cycle anymore, and I am hoping my kids don't experience this to the extremes I have. Really lovely to hear your kids are doing well on their own neurodivergent journeys!
She's a lucky girl to have a mum who loves her as much as you do
Thank you! x
FAIRN BREHDEE, WOOHOO! (As phonetic approximations of Scottish accents go, this is the best I can do.) Haven't listened to it yet but I've got the audiobook of Strong Female Character in my queue.👍👍 Love her, she's so clearly one of us. I find it interesting that you're looking at social connection as a form of special interest in itself, because my formative reactions to the shame of social awkwardness were so often to double down on whatever my interests were i.e. I would rather be alone to happily immerse myself in whatever the interest rather than defer to any social expectation which dictated that loyalty to a friendship ought to come before said interest. In that sense, how we engage with life itself as autistic people is exemplified by our social challenges: we want a deep, immersive involvement with anything and everything that catches our interest, to the extent that we don't seek external social validity for our activities - we learn to expect that other people just cannot relate to that intense degree of involvement. In astrophysics we know that certain stars have such a strong gravitational pull that they absorb all other would-be planets in their orbit (as a lay astrophysicist I admit I don't recall what they're called.) Perhaps this nevertheless serves as a good analogy for the autistic mind, in that we burn so brightly alone because nothing of interest can escape our fixation.
Oh I love the astrophysics connection! Yes, I have learnt that others will not relate to my hyperfixations and I don't expect them to anymore. Although, I am still miffed when someone tells me that they don't understand my focus on something, and as such I usually don't share with people I don't completely trust. So I share with about 2 people.
I can confirm that if one makes ones spouse a special interest, a genuinely nice, funny, gentle person may start threatening murder in ones sleep. But I can't help it. Oh well. I wonder if a provide her with a permission slip / mitigating circumstances she will at least avoid prison on my demise. I am becoming kinder of my past and current self. Only internally though. I find unmasked me is not anyones cup of tea so I have literally driven others away. I think primarily because if one can have a special interest word, for me it is understanding. I am trying to understand everything about others and myself. Internally I am happier and kinder because I better understand most things I have done in the past. And present. Its amazing how much of the shame is in "not feeling normal" and not in some bullying event or slight. But actual acts like having hurt someone, is still something to be worked through and corrected. Externally, apart from my wife no one has any interest or energy in understanding. Or finding new common ground. Quite understandable for someone I met yesterday. I am referring to people I've known most of my life. My kids are in their 20s, have always found me weird and although they have made no extra effort its all okay as they sort of adapted to weird dad long ago. And their poor mum usually gets awful dad first so they avoid him. My father passed away a few years ago and was a dangerously damaged man. But even as far as his treatment of me I have realized just how confusing this weird son was for him to manage. I am not sure if I pity him or enjoy thinking how many buttons I must have inadvertently pressed in him. Issues were minor with my mom. She was generally great. Currently though if she does something that upset me as a child I am far more upset about her current action. But evidence is never thrown out of a data hoarders brain. For example, something may lie fairly peacefully in my brain. But if my mom does something now, I get a deluge of related details from my brain stretching back +50 years in some case. Who says time is a continuum anyway. Even Einstein was confused by time, at times. I wonder if Einstein kept a diary? Anyway, I see no hope for future friendships especially because I have always preferred friendships with women. I may look like a rugby player but I enjoy friendships with emotional depth. And most importantly, women, justifiably have to be very careful of rugby playing looking men who are interested in everything about them. Of course this comes off as wanting something more. This is no criticism of women. Its them practicing common sense. Even my good relationships with men were only because they shared my special intetests and tolerated the depth to which I plumb emotionally. I have largely eliminated existing relationships outside our 4 walls. I just cannot envisage being unmasked me and having friends. And I have retired so don't face this at work. It does mean when I venture out it is much easier to mask a little and frankly, be pleasant and experience pleasant interactions with strangers. I have even found my driving has dropped another notch in terms of aggression and increased in terms of consideration. I gave up the full road rage high speed approach decades ago but its nice to be even nicer whilst driving. I do put this down to usually having more spoons available. In general it makes me feel whole but others think of me as an ass-whole. I know I can only manage this "I am a rock/island" lifestyle due to my wife as she is my rock and companion. But as you mentioned this is not ideal for spouse and I do drive her crazy.
Thank you for sharing all this, I relate to a lot you say. I feel my parents are/were neurodivergent and I think they found everything overwhelming and so couldn't give the support that I needed as a child/teenager. My husband watched the video and laughed because I do drive him nuts! But he said I was his special interest too, however, he could just be being nice! haha! I think it is important for me to say that although I am trying to unmask more, I still mask loads outside my home. I sincerely don't know how to cope otherwise, and maybe that's just the way it is. I'm really glad you feel whole as a person, that is so so important.
@TheGreatReveal As if to confirm my "special interest" I spent a decent portion of yesterday making a 4 minute long video consisting of photos and videos of my wife, from earliest photographic evidence (she is also my research project) to now at 53 years of age. I was driven to this by hearing Tears 4 Fears new release "The girl that I call home" which I used as the audio. So in a way I was forced into this. I mean. The song title alone drove me to it. I am trying to quite but tomorrow is another day.
I hear so much of myself in you and in all the comments here. So many autistic spaces have 20s and 30s in them mostly, which there is nothing wrong with them, it's just at 55 I'm in a different part of life. I find myself putting on a mask just without even thinking about it, but then I find myself rehearsing how to act to have my mask "off" in the situation and I think that's just masking as well. Somewhere in there is me, but it's scary to dig down to find the unmasked me.
I agree, it is scary and I feel like I take one step forward and twenty steps back! It's very complicated as you've mentioned, when are we not masking? Can we even tell anymore?
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I think it’s really important to process those feelings of sadness about our past- being left out, masking, and struggling. I relate so much to what you said. Thank you for sharing!
Thank you!
It is scary to find oneself stripped of well-established and familiar markers of identity and behaviour, both one's own and others'; however I think this is directly linked to the return of unfettered joy i.e. the reward for vulnerability is a renewed sense of belonging/homecoming within oneself. Personally, since my late diagnosis two years ago, I'm surprised to find myself so unapologetically self-isolating; part of me feels similarly unshackled yet I've no desire to share that with the world. I feel that I've done my part, served my purpose as a member of a society that never understood me or appreciated my efforts anyway, and I am now free of social obligation: At last, I get to rest, and to be left alone. That's all I ever really wanted; but after the constant struggle to get by and play along for decades, the new *stillness*/calm of late diagnosed unmasking still feels strange, like I don't know how I got here. So, while not quite in my twilight years (unless there's any truth to autistic life span being far shorter than average), I find myself exploring a vertiginous, surreal twilight zone of unfamiliar contexts. Actually it reminds me of the pre-cogs in Minority Report: Freed of their traumatic job at last, they retire to a rustic cabin on a remote island and spend their days reading books. That's basically my idea of "happily ever after" but I never thought I'd achieve it.
I love your description of it being the Twilight Zone! I can very much relate to that. And also the Minority Report. I long to live in the hills but near an accessible road so I can dip into society if/when I want. I am so glad you are moving into living the life that you choose for yourself and apologetically!
@TheGreatReveal (Fun fact I just learned last night: Kathryn Morris, who played the wife of the protagonist, has twin autistic sons.) Agreed, ready access to the world is a necessary amenity for solitary living, particularly as one ages. The challenges and obstacles of rural culture aren't readily compatible with my autism (I do not suffer rednecks gladly) but fortunately there's more land than people. 🙂
I've been greatly enjoying your videos. I was told I am autistic last year at the age of 57, so am at a similar stage to you. So much you say here resonates. I've been able to keep a career for over 30 years but never reached the heights I could, because of my inability to network. But now I have a diagnosis and am winding down to retirement there is no reason for me to continue to mask - so I don't. My boss was taken aback by my sudden total refusal to attend conferences and other things that always stressed me. And, like you, I am seeing glimpses of the younger me again. Geeky interests I once hid because of trying to fit in have had a proud resurgence. I am very lucky in that my wife and the two ladies I work alongside had always suspected I am autistic but have always been kind and supportive. Keep posting - you express the feelings better than I could.
This is wonderful that you are getting glimpses of the younger you again! Thank you for sharing. I have often berated myself for not being able to network at work, but now I am realising that I can network, just not in the way that everyone else expects. I build working relationships more slowly and more gently, but looking back they seem to last and benefit both parties. However, that does also mean I don't get anywhere fast. Oh well!
You are not alone. I feel that way frequently. Good for you for taking care of yourself.
Thank you!
So relatable. I have always struggled to gauge if people even understand me masked. Now its this x 1000. As I am finally able to understand myself others are drifting even further away. A few years ago I thought my goal was acceptance of myself. I now feel that being understood by others is essential for this self acceptance. Not loved, admired etc. Just understood.
Yes! Just understood! I think the more we talk about this and the more awareness grows then that will lead to a more understanding society. It will take time though.
Thank you for talking about this! It's scary to unmask and show your authenticity, I think i will receive more negativity but I'm not sure yet because I haven't interacted with that many people. I want to be honest with what I think and feel because I've suppressed it all my life. I was very quiet in school because of RSD and also not understanding I'm audhd. I think I will be having more conflicts because I don't want to waste energy on making people like me. I've become better at advocatong for my needs and questioning authority when I feel like I'm being controlled. It's really hard to unmask but also very freeing. It's very comforting listening to other people talking about unmasking and what we go through.
This is wonderful that you are now advocating more for your own needs and not accepting behaviour that feels insincere, however, I totally agree that is hard work to unmask. However, I hold hope that it will pay off. It's a strange experience to unmask but a liberating one! Thank you for sharing your experience too!
Great video - thank you. 'Fighting to change society to make it more inclusive' - yes! We're different not lesser than neurotypical people.
Thank you, this feels like a very hard and brave journey you are sharing with us. The opposite is also possible: I have ADHD, maybe autistic, male, Dutch ( blunt and painfully honest and direct) and my feelings bounce out almost unfiltered almost all of the time. This has its down sides ( people feeling threatened, being a weirdo) but also very many upsides: never worried about the "proper" response, being perceived as very authentic. And I am very very funny(witty) although I feel sorry for those who don't get it. Sometimes I feel I could do with a little more masking ability. Not being able to lie whatsoever makes me completely unable to integrate in the UK social culture.
I feel like I would enjoy your sense of humour. I like people who call it out as it is and find the humour in it! The UK social culture is a minefield!
Be reassured that your videos are massively helpful and likewise appreciated. I feel you are very brave for being so honest. Every day I cry because It's so hard to understand and support the tantrums of my daughter and my ex would be so helpful in teaching me how to support our daughter but she is too busy hiding the fact that she might be autistic because she and the world have to believe she is nothing but perfect ( and completely in control). What a nightmare for our daughter with a father who wants her to be able to be her autistic self and a mother who wants her to mask and be perfect and if not " be mended". I keep begging for honesty, but meanwhile your video's help me understand the inner workings of their behaviour. I have ADHD and I am very shameful about reacting with a meltdown if one of our daughters has a meltdown. I'll try wallpapering our house with harts.
Thank you for sharing. I can understand your daughter's need to mask as it is terrifying to be in a world that may chastise you for being seen as 'less than'. It's a big mental hurdle to overcome to realise that you are enough as you are. I think it is really good that your daughter has you in her life to understand that she does not have to do this performance and in time I hope she understands her own brain and behaviour better. However, it could take time, it took me almost 40 years!
All of what you say rings true. I would probably say it in harsher way as you always say it so gently. What I have discovered about masking is - I feel much better internally. In isolation. Mine is energetic is difficult to guide at times. But I am following my mind not forcing it to follow task lists. - the world does not stop and accommodate one - I am retired. I am incredulous you can work as I cannot believe anyone can work unmasked - socially, those I know don't know who I am anymore. - all of what I regard as much good emotions. My caring deeply, my sensitivity, my empathy, my ideas, my intelligence, just alienate people. - so I feel like I am destroying existing relationships and people I try to get to know soon push me away. Sometimes I understand why. Sometimes I have no clue. I suspect a common thought is always he is just too much. I got through my career using expressions very similar if not the same to what you expressed. Learnt from parents, teachers, siblings and bosses. Suck it up. Or. Stop feeling sorry for yourself. And I have confirmed I accomplished this by dissociating. I have ill fitting jumbled boxes in my brain. 1 for work. 1 for family. 1 for friends. 1 for finances. 1 for admin etc etc etc. When something became too much I just started shutting boxes. Before I met my wife and having kids this could mean close down box for bills. Heck, dont even check mail. For months. I use this example as it sort of creates a very real picture of what all my boxes looked like at times. I am looking into dissociation but even without the privilege of not working I am considering how to have suck it up days between just trying to build some sort of stability in my unmasked world. Keep thinking there must be a happy medium but I cannot just change on impulse. It is forcing me to behave in a way that may not match the need.
I can completely relate to the boxes in the brain process you have. I think I have something similar but I haven't really thought about it in a big way. That is now something to unpack about myself! I also know what you mean about feeling that people think you are too much, I have felt that my whole life and have often contorted myself into a smaller version of myself to keep others happy, but has left me feeling horrendous. I do mask a lot at work, I can't find a way around not masking. Although, I realise that I am starting to unmask at times when it doesn't feel necessary to superglue the mask onto my face! It is making me quite tired. You have said it so well about learning to disassociate because you have to 'suck it up and get on with it'. This has consequences on my overall health when I do this, and I am now just less able to do it. This is a journey with lots of parts to it that I had no idea existed! Thank you for sharing all this, it is giving me lots to think about and has helped me.
You don’t seem weird to me.
Thank you!