Surprising Symptoms of Dementia: Part 1
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- เผยแพร่เมื่อ 28 พ.ค. 2024
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Discover unexpected signs of dementia that are often missed. From subtle changes in walking to moments of clarity, learn what to watch for. Subscribe for more caregiving insights!
Remember, while these signs can be indicative of dementia, they can also be linked to other factors.
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In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
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Very, very helpful. These applied to my husband’s early dementia signs. I thought I was losing my mind because sometimes he seemed so normal. Lol
I am a retired RN and cared for my husband for 3+ years. He was a Veteran and suffered 2 Cva. That was when he really started showing more dementia, and a lot of PTSD came out leading to more symptoms. All of dementia needs to be realized along with death and dying. Thank y❤o❤u❤
One sign of dementia nobody mentions is going off on people and screaming at them for no or stupid minor reasons. My mother rode with a friend. The friend got lost. She went off on the friend about how stupid she was. Inappropriate anger. Broken record raving about the same thing over and over and won’t stop.
Oh yes, my grandmother had that symptom, too. But not towards everyone. There were certain persons who got on her nerves, and she was bullying them so bad over nothing.
Yes, my husband does the same thing. I like your phrase inappropriate anger. His anger is usually over something he’s confabulated, or is so minor and inconsequential as to not be important at all but he yells, and he threatens and calls me names and it’s very disturbing. Later he may remember that and tell everybody he meets how horrible I am, all based on his inappropriate anger and delusions. It’s exhausting.
Yes my dad is like this, he threatened to break my daughter’s boyfriend nose because he could hear them laughing in the kitchen and he thought they were laughing at him 😢
48 years old was told i have vascular dementia about a month ago. You are dead on with this list. Also these are things the Dr. Will not see in that 20 minute visit. So we have to speak up. ❤
My husband died a few months ago not totally from Alzheimers. So far I realize I saw 4 out of 5 of these topics a few years before he was diagnosed. No one got it! Neurologist told me he probably had dementia 5 -10 years before diagnosis. Such a horrible disease. Thanks Dr Natalie
Sorry for your loss. What did he die from? Wanda
😢I am truly sorry
🙏
Yes it’s a horrible disease and my mother and oldest sister has dementia, and it’s breaking my heart.
So sorry for your loss. I was just diagnosis sed, but it was found early because my Drs all thought I had MS.
I just lost my mother last June. She had vascular dementia. She had these symptoms, especially the non-emotion and the hallucinations. She had never seen me perform, so I took her to a gig I had, and she sat there for the full hour without any expression. She didn't even applaud. The rest of the room was lively, so I know it wasn't my performance. What scares me is that she appeared "with it" enough for my brother to railroad her into changing her will.
My wife has changed her walking pace (much slower now), sees things that are not there (people), and at times seems quite normal until you start asking her specific questions about places, dates, etc. She also has a limited ability now to write any sentence longer than two words and has difficulty signing her name to anything. She is 59 and I know she has presented symptoms for at least 5 years before she was officially diagnosed. It took me two years to talk her into getting a medical assessment for her problem, which was time lost as she had stopped driving, cooking, shopping and really just sat at home and I had to beg her to leave the house.
What would have changed if you had gotten her diagnosed sooner?
Maybe nothing would have changed, but at least you would know it’s dementia/alzheimer’s, and not a brain tumour.
I see alot of what you say with my girlfriend. She is 71. She stopped cooking around a year ago so I cook now. Her walking pace changed also. Issues with her memory also. I am hesitant to bring this up with her Dr.. I know she will go off on me if I do. I know she has a problem but I am just not sure how to address this. Its getting worse as time goes by. My mother had dementia so I under stand the road ahead. I do not look forward to this at all.
It took me two years to get my wife to agree to get a medical neuro assessment of what I knew was dementia. In order to get treatment for her and have insurance pay for some or most of the medical costs associated with dementia care, she must have an assessment. There are some very new therapies that are out there now, but can cause brain bleeds. My wife was not eligible for a trial of this therapy because of her assessed level of dementia. It all starts with a neuro assessment, which takes about five hours to complete.@@richrocketlll
This is very helpful. My husband has all of these symptoms. He has been diagnosed as mild cognitive impairment. One if the most challenging aspects is that he can be on and we have great conversations-he is the man I married. Also at the cognitive testing the psychologist said that my description of what was going on with my husband sounded like a different person than the psychiatrists description. She said it sounded like it was two different people. I told her she doesn’t live with him and see him everyday. If I wasn’t so sure of myself about this I might have been taken aback and doubted myself. I plan to watch more of your videos. Thanks for all of your help!!!
1:25 Lack of affect (emotional expression)
3:08 Walking changes
4:30 Moments of clarity
5:33 Visual hallucinations
6:41 Good language abilities
Lack of effect = Pokerface.
@@kevingrimbeek2106indeed, or stoic.
6:01 points to non existing video link. A sign that presenter herself has dementia?
... Or did she not complete the video editing. My point: Careful with assigning a diagnose to a person.
I noticed that on my neighbor . It was sad because she always smiled a lot walked daily. One day she started to swear over the fact I live with my cat.....I was in tears because she seemed totally normal after.... She thought her daughter was a sister
You hit on everything that I have seen my wife go through at one time or another, some of these things when I think about it have been going on for the past few years only much worse now. The main problem I’m having now is she’s gone from having a heathy appetite to no appetite at all for the past two weeks she want let me feed her but yet she can’t half feed herself. Fluid intake is greatly reduced urinating greatly reduced I feel like I’m letting her down. Her doctor only suggestion is to hospitalize her, she chose to be DNR some time ago. These are hard decisions to make pray for us.
Hospice was so helpful when my husband was in this same place. They were encouraging and walked us through what was happening with him. He chose to leave the hospital and go with Hospice so he could be at home. Even though he had dementia, he was aware of where he was and he hated being in the hospital. Coming home gave him the chance to spend a little more time being in his comfort space even though it speeded up the process without all the IVs and blood draws he was subjected to in the hospital. We asked the question, "do we want quality of life, or length of life?" It was one of the hardest things I have had to do, but I'm glad we were able to help him be comfortable. I will pray for you. Hold tight to Jesus.
@@trishaplute4850 Thank you so much it’s just so hard watching the love of your life who it seems was so consumed with looking after her grandchildren and her parents but so full of life fade away to the point where everything around her is imaginary and confused I miss having conversations that made sense she never smiles anymore. I am so thankful that I still have her because she has been my life my wife and my friend for 32 years. God bless you for loving your husband and having him in his place of comfort. I only pray we can do the same.
I love this video!! Definitely makes me feel more validated about living with my spouse who was diagnosed with Vascular Dementia and most of the family really do not "believe" it because they aren't around him for long periods of time!
It's the long periods of time. I understand no one thought my dad had dementia. His facial expressions changed.So didnt my neigbhors ....it's saddens me to think we could be doing more for my loved one. I tried my best
That is so hard, I feel that what is happening with me. My family are not seeing it or they are making excuses for him. Sending you well wishes
Yes,thanks much. This is very helpful. My mom is 94,rather frail but still independent. Doesn’t want you opening jars & stuff. And yes, she has good days and less energetic days. Can recall 40 years ago well but not plans we make the day before for today. And yes the walk i slow but steady but observant on her part.
I've got the same problem and all symptoms are spot on. The worse is before people he acts so normal that people can't believe when they hear he has Dementia. How confused is it🤔
This was very informative and intelligent. My husband (I believe to be at Stage 3) walks very slowly and with a shuffle. If a regular person spoke to him they’d never suspect anything wrong with him. However, he has OCD symptoms….if he thinks of an idea he has to complete it immediately. He can’t stand any kind of mess around him.
Has to maintain the flow or he'll lose the thread. Trying to maintain competency. I agree this is a sign, probably is stage 3.
My 94-year old mother who was diagnosed with Alzheimer's 12 + years ago had 3 instances in the past 2 years where she had 2 days of visual hallucinations, which were accompanied by total lucidity. After 2 days, she went back to her "normal dementia" state and had no memory of what happened during those 2 days. During those times, she remembered things from the past and she also remembered things that happened while she had dementia; things that seemed to pass right by her at the time. Like there was always a part of her brain that was aware of everything, but she had no access to that part. Except for those 2 days. Have you heard of this happening to any other dementia patients? The rest of the time, she has ocassional lucid moments that last 5 or 10 minutes and I try to catch those and have a meaningful conversation with her. But those 2 days were on an entirely different level.
Like Joe Biden, mid to severe stage of Dementia by the looks of it!
I love this channel I am a care giver for my mother in law she lives with us and has Dementia and I finds that your advice and expertise is so helpful! A lot of things I didn’t not understand I now do with your help! I’m greatly appreciated of your knowledge!
I have trouble with my partner being ok, then dramatically changeing. Its tough. Thanks for your words of wisdom. Very helpful xxx
Your video is very helpful. With the walking changes part, I have noticed that people with dementia lack movement with their arms when walking as well as the shuffled gait and leaning forward. The lack of arm movement seems to be the main giveaway of dementia. When we learn to crawl, we use our arms and as we stand up and learn to walk, our arms continue the pattern of walking. Its almost as if people with dementia forget the arm movement for stability and forward propulsion.
Maybe like myself, they are using a walker or a cane at the same time trying to carry their purse!
Lot's of different situations. Plus extreme ankle dissabilities!
@@sjbutler2330 obviously using a walking frame or cane removes the ability to swing your arms. That is not what I am referring to. For those whose arm movements are not restricted by the use of walking frames or canes or carrying anything, when a person with dementia walks and they have their arms down by their sides.
I have Parkinsons. I am 74 I walk bent over with my arms down at my side. Hold on to furniture at home and use a walker for church. I do not have any dementia at this time.
Just a possible sign. But this is common. You have to look at the totality of signs. However, I have heard that Parkinson's is related to Alzheimers. Gradual death of a part of the brain.
Thx! PLEASE PLEASE more FTD (Frontotemporal dementia) ...just watched w David Irwin MD he states: DIAGNOSIS CONFIRMED ONLY AT AUTOPSY. Interesting concept. Anyway MOST folks think of memory loss and Alzheimers & it is challenging when "others" think (observe) that the FTD loved is perfectly normal. The "push back" from others is difficult & painful for the care-giver-spouse to deal with. Help. Please address this issue. Pleased post videos about this topic. 🙏😌💗
My dad passed away last year and he had FTD. We were lucky enough to be able to convince my dad to get an MRI when the disease really took over his behavior and the neurologist saw that the frontal lobe of my dad's brain was in atrophy. If I were to say anything, it's don't worry about pushback from others, worry about taking care of your loved one with FTD, it's not going to be easy so tune out others and worry about your loved one and yourself.
Yes, it’s the same in Alzheimer’s. Confirmed at autopsy.
I think you have to go with your instincts as well as enjoy the good times and enjoy every day xxxx
Thank you for putting this information out. In 2018, at the age of 49, my wife was diagnosed with early onset Alzheimer’s. Back then she could speak fine and it was difficult to tell, to the casual observer, that she had dementia.
Right there with you. 🙏😌
Thank you for the info. I would appreciate Part 2 and 3 from you.
This is so common, yet hardly talked about!
@@DementiaCareblazers why are you blocking my comments?
My Dad had lewy body dementia and he would have sometimes an hour or so of real clarity. It was like a gift. ❤
There were also times,when my father was so lucid people were doubtful he had Lewy body and felt that I was exaggerating his symptoms
Thanks so much, my husband and I are just starting out on this journey, early days, but having looked after my mum with it for 11 years I know what the road ahead looks like. However, I’m hopeful that there is more help and advice these days, as I’m finding these videos and emails very helpful x
Let me know how l can afford to care for my loved one once supervision is required. I can't be a caregiver as a spouse in my state.😢
Yes, extremely helpful! Number 5 is what I am going thru with mom. The rest of the family thinks I’m being a drama queen and have no idea what I’m talking about. SO frustrating! But on the other hand, bringing it to a doctors attention is a bell that I can’t unring. Her memory loss is getting worse, but I don’t dare talk to family about it anymore. Truly at a loss when to take appropriate action to help her.
Similar situation here. I have yet to hear what benefits are to be derived from getting an official diagnosis.
Dr. Nat, if you got blasted by someone about your knowledge, they aren’t living the daily life as a caregiver.
Please post more!
I did a post on the fb private page regarding seniors being scammed, it’s very relevant to all and especially our senior community.
Thank you Dr. Natalie!
Back in 2013 (when we didn't know!) my Dad used to see "fleas" jumping around in his apartment, and I mean jumping, two or three feet off the floor. Later in the stages of LBD he used to see children disassembling his walker or outside of the window (15th floor). He passed away last year, but I'm still involved in the community and still watch your videos Natali!
Yes my Mom used to see children in the hospital room wich she told my sister it’s the Kids of the lady next to her ( who also had dementia) . It’s a horrid condition and so much more needs to be done to tackle this I will have this blood test done to see if I am at risk God bless
Yes this was helpful. You are making my journey with my husband with Alzheimer much easier to understand. Thank you.
My mom has vascular dementia, has/had all the symptoms as she can't really walk anymore. But sometimes she's still very verbal and seems lucid. It's getting rarer though. Thanks so much for part 1. Looking forward to part 2.
Recently Dxd with Dementia at the age of 59! It took me so off guard and YOU were the first Dr. I found with a wealth full of knowledge.
It doesn't help that I have 2 CNS Brain Tumors which one was Debulked due to it being directly on my Brain Stem. 1in3 Survive! I was their ONE! My 2nd Tumor goes straight down thru my Cortex.
I already have had issues for 14 yrs due to complications from Brain Surgery and always told people that they better be great at Charades 😮
So distinguishing between the before Memory Issues and Dementia is something me and my Neuro have laughed at due to my humor throughout the years and what I have NOW should be a WHOLE WORLD OF WOW🫣
Again,
Thank YOU for such Real love and support to US🙏
My mother has terrible memory problems and describes what things do rather than name them, but she somehow pulls it together for her doctor visits. I've tried calling the office and explaining what's going on at home, but so far no one seems to believe she needs further evaluation.
Maybe try filming her to help you explain?
a list of things like expired food or getting lost...things that indicate to them that her safety is at stake. My dad forgot a follow up appt with the urologist...two years later I discovered that the follow up was because he had aggressive cancer, needless to say memory impairment can cause serious harm. Let the office know the info by email documenting your request for help....I bet they take it seriously then. Good Luck, it's hard I know
Part 1 was very helpful! Thank you so much. I look forward to seeing Part 2!
Glad it was helpful!
Frequent coughing and sneezing while eating is also a sign of dementia.
Your videos are very helpful and encouraging!
could you elaborate...my dad has immediate & constant running nose as soon as he starts to eat...I know he has mci but have not seen this aspect before even though i am a careblazer for others too
Can you give references of where to learn more about this?
Omg I've been following you for a while now, my mom was diagnosed with dementia a while back and you are literally describing us in this video 😅. I thank you so much for all the info that you put out there for us ❤
#5 is SO true. Thank you for this information. It makes me realize that I’m am on the right path.
Loved one had same doctor for years. The doctor's office was hostile at first. The doctor themself was very understanding and torough but some of the staff (an rn in particular) was downright rude. It's bad enough to deal with "having to tattle" that what the loved one is saying isn't the whole story. But when you get hostility instead of help....I understand there are evil people and health trying to protect but ask questions, keep record and advocate if necessary. This rn was almost accusatory.
So in front of the loved one you have to explain, this once cosmetic concerned well kept parent, now refuses bathing, can't keep up with when they last showered, goes a full month without showering and claims they just did yesterday. Mixes clean & dirty clothes. You kno they aren't bathing bc you smell it. You know its been a month by timed evidence. Clothes getting grimy. Particular clothes remain dirty after they claim "just washed." You MAKE them clean up for dr appointment. They appear and act perfectly normal. You become a "liar" and a "suspect." No one believes they take the time and work, and attention they do because they appear very normal just old in front of anyone. You have to orchestrate almost every aspect of their life for them or they would fall ill & probably not stay alive within a month. They have to be gotten up, told to get dressed, told to clean up, eating has to be controled (like a 7 year old) they dont know when they ate, what they ate, how much they ate. They have to be made to drink meaured amounts of water bc if not they won't drink anything at all. They have to be made to get up (or they sit & "do" crossword puzzes for 6 hours. You have to tell them to go to the bathroom, have to make sure they wash their hands. Not complaining, it could be worse. Just saying it is hard being someone else's autonomic nervous system for them. You become they planning section of their brain for them.
Mine used to eat certain foods & made meals out of them. Now, "I never could stand "those foods." You can't tell them they did eat them for 40 years. They don't know what you're talking about. Yet others at dr or family events see the same person they always were.
My loved one can have moments of clarity especially when talking about music, he plays saxophone. He does have hallucinations sometimes.
I see all these symptoms in my 90 yr. old mom with dementia. Thank you for your videos, they are soo helpful.❤
My mother also sits and just stares at the wall all the time.
Shame, I feel bad for you. You are doing your best to help people and then some do not understand what you are doing!!!!! Oh man!!!!❤❤❤❤
My husband has all of these but the hallucinations... we don't have a specific diagnosis yet but he scored very low on the moca test. And his brain has shrunk according to an mri. We are waiting for results from the skin punch biopsy. It's so sad to lose him like this. But i pray to keep my attitude positive and be like the lady named Mary in the other video. God help us all!
In hindsight, I saw at least four of these in my LO long before even thinking about a dementia diagnosis. You are the best, Doc!!!
Glad to help!
My mom is 82 she still thinks she's 81. She doesn't remember she just had a birthday. She has walking issues, her face goes blank sometimes when I talk to her, she gets grouchy in the evenings and she has auditory hallucinations not visual hallucinations. Sometimes she seems so normal but I see the changes but no one else in my family sees it. 😢😢
Your videos are awesome, and yes, your videos are extremely helpful! 🎉 thank you so much! Please give sweet puppers extra belly scratches for me ❤
This is a GREAT video! Looking back a few years I can see all the signs that I missed with my Mother. She has since been diagnosed with Dementia and Alzheimers combination. First real sign for me was when she couldnt remember my Brothers name from a family photo. Correct, some days it's like there is nothing wrong and the next I dont know her. I can not leave her alone anymore so must rely on family members to sit with her while I do errands once a week. Which is limited time. I have some in home services which is very helpful. Thanks for this video...very helpful! 🥰Sharon.
Often in early vascular dementia the onset clues to alert family is the loss of usual social comprehension, followed by a flicker of fear reaction. So Dad is enjoying a family dinner, and calls the grandchild at dinner table the name of the 18 yr old grandchild not present, and when the family laughs, Dad looks scared, because he doesnt see the error. As a NP acute care geriatrics at that time, i started talking to Dad on his own. What concerned me was the very bright man no longer getting theclog8f, or reasons for everyday things. I got him into gectewted by the Geriatrician, and he indeed had vascular dementia. I raise this because itbus an unusal presentation as well. No memory loss, hexwas still working, driving, etc but could no longer explain or understand why he did habitual things.
I can relate to this with my husband. He is compos mentis but has become very illogical which is totally unlike what he used to be.
Thank you for helping so many with your videos❤️
you helped me to understand and get through my dad’s dementia- he passed in May 2021- I am forever grateful to you and I still share your videos with friends who are caring for relatives with dementia.
I had a cerebral hemorrhage a few years ago. I am having a lot of trouble now with three dimensional coordinate geometry. Didn't use to.
Thank you for sharing this information … my mom had dementia and it was her language skills kept us from her the help she needed initially! ❤
My former foster mom has dimentia and her whole life she had an eating disorder so she has always been obsessed with exercising and her appearance she doesn't physically look like she has dementia. For me the scariest part is that she will talk to herself outloud and thinks she was thinking and not speaking out loud. When you tell her she will sometimes be aware after the fact that she did it but while she's doing it she doesn't realize she's thinking outloud in front of people.
Thank you for this! Yes to part 2 please!!
Part was very helpful. Looking forward to part 2.
Yes, more please. Very helpful, thank you.
Did you read late onset alcohol abuse can be a presenting symptom of dementia. Research find at Mount Sinai clinic. I am asking because my husband is having this very problem and it’s the only information out there about it.
All of the above. Love this channel. Thank you.
Yes, continue with the surprising symptoms, very helpful!!!!
This was incredibly helpful! Thank you.
It is very helpful as a friend of mine thinks others will never believe what she is going through.
Yes. This was extremely helpful. More please!!
Yes, more videos on this. I found this video very helpful! Thank you.
So helpful so informative! I can definitely relate to at least a couple of these! Please post a Part 2!
Thank you🤗🪷
Thank you as usual....would love to continue with Part 2
Coming soon!
Check out the 60 Minutes segment (Leslie Stahl) called "Living into Your 90s". One of the outcomes of this research on elderly is that AB plaques are not the only cause of Alzheimers. People with AB plaques had no symptoms while others with zero AB plaques did have Alzheimers...very interesting research results!
Plaques aren't the cause, they're a symptom. The plaques are the body's way of trying to protect the brain from damage. Trying to remove the plaque actually makes the illness worse.
Yes, this was helpful. I would like parts 2 and on. Thank you.
Excellent information. And truthful
This was very helpful! Thanks
Excellent.
THANK YOU!! 🎯
I wish I had found you when I was dealing with my mom.
More like this please.
Yes very helpful Thank you!!
Thank you so much for your videos. Very informative, as you can also speak from experience ❤.
I’d love more videos on this!
Thank you so much Natalie. Your videos are so helpful. Thank you so very much
Regina
Great info. ❤️
Yes! I'd like to see more!
Thank you!
Every thing is important to know. !!!! Thank you sooooo very very much.
Awesome video! My husband has several of these symptoms. I would love to hear more on this topic❤
Thanks .. looking forward to part 2
This information is very helpful. My dad was recently diagnosed with Alzheimer's and we are still early in the learning phase. Any and all information you are willing to provide is much appreciated.
Your vids help me so much with my mother. Thank you so much.
Thank you
Y, part 2 and more
Excellent,please more video's like this. Thank-you
Very helpful
Thank you
Thank you so much for your information. You helped me so much with my husband!!!!
Thanks!
Helpful! Yes more! Thank you!
You got it!
Thank you Dr Natalie, you are my biggest mentor in this journey # caregiver in South Africa Capetown
Thank you for your video. My mom has vascular dementia. Could you do a video explaining some details of that type of dementia?
Thanks.
All the above as sometimes I am confused due to his behavior
This is exactly what I am going through
Thank you for this video!!!
You are so welcome!
Keep going! Say more!
Will do!
I would like to see part 2 - 5. Your videos are really useful. Thank you.
Glad it was helpful 💖
3 and 5 are very true for our situation. Presents well at the doctor's so the doctor thinks he is fine. The unpredictability of the days and moments can make it tricky. Good video.
Yes please
I enjoyed part oneand found it helpful please do part two
good information as we approach the medical system
This was one of the most heartbreaking things I witnessed with the mom.
Good info. If family and/ providers see these though it should be a warning to watch for changes Some of these are seen In Parkinson’s Disease and TBI=. Traumatic brain injury
Please do part 2!
Teepa, You are Very Special 🥰❤️🥰🥰❤️🥰❤️🥰❤️🥰
I think it could be more helpful with listing the 5 things first and then give brief details and then that gives lots of us the get out option. Then for those who want to hear more then you can go into detail. Less is more I would say.