Surprising Symptoms of Dementia: PART 2
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- Hey Careblazers! Welcome back to our dementia awareness journey. Part two is here, and you won't believe what we've uncovered! 🕵️♂️ In this video, we dive deep into five surprising symptoms that often fly under the radar, leaving many caregivers perplexed. From bizarre syndromes to unexpected sensory changes, we've got it covered.
🤔 Ever wondered if your loved one's diagnosis might be missing something? Join me as we explore the lesser-known aspects of dementia that often get overlooked.
Let me know if you want a part three with even more surprising dementia symptoms! 🌟💬
Leave any questions or suggestions for future videos in the comments below. 💖
#DementiaSymptoms #CaregiverTips #dementiaawareness
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Leave any questions or suggestions for future videos in the comments below. 💖
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It’s our mission to make dementia caregiving easier for families caring for a loved one with Alzheimer's disease, frontotemporal dementia, lewy body dementia, vascular dementia, or any other type of dementia. We believe that in order to create a more dementia friendly world, we must first create a caregiver friendly world. That's why we create free educational training videos like this one so that anyone with an internet connection can get access to dementia care information.
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TH-cam Playlists To Learn More:
Managing Stress and Burnout: • DEMENTIA SELF-CARE AND...
Dealing with Challenging Behaviors:
• DIFFICULT DEMENTIA BEH...
Join our empowering Change Maker Community! Dive into discussions on navigating tough situations with a supportive network. Let's tackle challenges together at www.dementiacareclass.com/change
Videos Mentioned:
Capgras Delusion Video: • When Someone With Deme...
Stages of Dementia Videos: • What are the different...
• 4 things to know about...
• What are the different...
Articles Referenced in this video:
www.ncbi.nlm.nih.gov/pmc/arti...
ajp.psychiatryonline.org/doi/...
www.sciencedirect.com/science...
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DISCLAIMER: The content of this video - or any content by Dementia Careblazers - does not replace the need for healthcare professionals. Our content is not healthcare advice and is not a substitute for your own healthcare. It is for general education and demonstration only. Do not use this content to self-diagnose or self-treat any health, medical, or physical condition. By consuming content from Dementia Careblazers, you agree to hold harmless and indemnify Dementia Careblazers LLC for any and all losses, injuries, or damages resulting from any and all claims that arise from your use or misuse of this content. All content or recommendations on the company’s website, social media, blog, or email series. All comments from Dementia Careblazers’ are expressions of opinion only.
In case you haven’t met me, my name is Natali Edmonds and I am a board certified geropsychologist. That means that I am a clinical psychologist who specializes in working with older adults. One day, while hiking a trail, I came up with the idea for Careblazers and I decided to see if posting videos online could provide help to the many other Careblazers in the world who don’t get to have help come directly to them in their homes. I hope that this work helps you in some way on your caregiving journey.
#careblazer #dementia #dementiacare
Key Moments:
00:00 Introduction to Surprising Symptoms Part 2
01:12 Understanding Symptom Misconceptions
02:00 Capgras Syndrome: The Imposter Phenomenon
03:00 Changes in Smell: An Olfactory Journey
04:57 Age and Dementia: Beyond the Stereotype
07:00 Random Remembering Rollercoaster
08:00 No Specific Symptom Determines Stage
Thank you! I am curious to learn more about the loss of sense of smell. My 78 yr old mother recently had an MRI brain scan and the neurologist said the results show vascular dementia. The interesting thing is that back in 2019 she had suddenly lost her sense of smell and taste. She saw a neurologist and and had a scan but they never found out why. And it's not that she can't tell smells apart, she can't smell ANYTHING. She can taste spicy heat, salt and pepper, but no sweet or flavor of any kind. It's totally stumped everyone.
Ah, bless you 🙏 ❣ I KNEW that my dad ( now 90) had dementia. Everyone fought with me... for 10 YEARS. 😢
I’m watching because my husband was diagnosed with Alzheimer’s about a year ago. I was diagnosed with Parkinson’s about 8 years ago, and the loss of my sense of small was one of the symptoms that led to a correct diagnosis. Most people with Parkinson’s can’t smell. It’s a running joke in my Rock Steady Boxing class that it’s a good thing we can’t smell each other after an intense 1 1/2 hour workout!
These videos would be great training tools for nursinghome staff as well as helpful for all of us .
My mother passed away with FTD in 2013. I had never heard of this before. Later as we read and tried to understand what this was, we saw that mom had all of these symptoms for 5-8 years before she died.
My sisters and I took very good care of her in the last 3-5 months. It was so sad to watch her disappear within herself.
We were able to laugh at moments, the one most remembered was she would call dad ‘that old man’.
I live in fear of having and dying from dementia.
Dr. Natali, Thank you for another great video. Please do a part 3. Thank you for pointing out that people with early onset dementia are not able to qualify for many of the services that older people with dementia do. This needs to change, and many of us will have to push very hard to make this a reality.
My late husband qualified for complete services when he was diagnosed with Lewy Body dementia. He was 58. He immediately got SSI, qualified for Medicare early, got into dementia care community programs. He stayed on my medical insurance since I was still working at the time. It was all helpful.
Hi, I am 59 have LBD
I'm sorry for your loss
May I ask how long he lived after diagnosis?
Is SSI not income based...we are trying to navigate all the financials. We assumed a working spouse would disqualify ssi
Yes, yes, yes. Please do a Part 3. Thank you for all your valuable information that isn’t readily available to those of us who have a loved one with dementia. 💗💗💗
Yes, agreed. More information is going to be helpful!
Concerning symptom #4 ... Two years ago my husband totally forgot to pay bills. This was something he had always done. I didn't know this until almost 3 months later (what a mess). YET, whenever we go somewhere and eat at a new/unfamiliar restaurant, he is able to find his way to the restroom (perhaps he asks directions) and then find his way back to wherever we are sitting. I stopped letting him drive 2 years ago (a very difficult time) by telling him the medication the doctor had him taking was the reason.
Mine sends donations to everyone and his brother. We talk about sending money to only the ones he has a connection with and making a list of a few worthwhile causes, but he still will write checks, sometimes immediately after a previous donation. I've taken to removing the donation requests from the desk; he doesn't miss them and we save a lot of money each month.
I have to check his bank account and tell him balances because he can't keep his checkbook anymore. This is a guy who was the household "accountant".
My husband got us into incredible financial trouble before I realized his brain was sick. Didn’t pay bills either, and did all the scams. Grandiose business deals that failed. Unbelievable, dealing with dementia without money.
Yes, please, part 3.
Did you mention getting stuck in a loop. Or stuttering (when never did before) Also
wondering about compulsively “collecting things” or “shopping” as friends have called it is a symptom.
This “shopping”happened in my husbands early diagnosis of vascular dementia. He would bring favorite pics, items and display them in his bedroom. Interesting.
What a relief to know my mom's condition, where she KNEW I was replaced by an uncaring -itch, was long over due. None of her specialists ever said that word to me as I struggled to describe her behavior. Thankfully she had only this symptom from this grouping.
Another great video! Thank you. You may want to check your audio equipment. The sound of your video was distorted.
Yeah it was crackling.
Just as in the first part, I see at least two of these in hindsight. Thank you so much for the continuing education; I learn so much from your compassionate care.
My husband definitely has some random specific memories. It's very frustrating. Thsnk you for all your information.
Thank you for this its very helpful! My Mom has loss of smell and her eyes and hearing loss are getting worse. Is this because of dementia? She is 89. Part 3 would be most helpful! 🙏🏼💕
There are so many trails that my wife goes down so are very predictable and some are random. She can remember some of the most non essential things but at the same time can’t remember to move her feet from in front of the the wheelchair wheels. She can’t answer her phone one moment and the next send a text.
I so much appreciate all your videos. They have been a lifeline for me. I watched my dad go through the stages of dementia 10 years ago and now my husband. I'd love a part 3 as well.
Yes please!! Part three! ❤️😃👍
Cannot get diagnosis or help if the person is in denial, is aggressive and lies. How do you address this? Doctor will not talk with you if patient won't approve it.....just wait for it to reach plateau?
Try and talk to their doctor about symptoms and try and get them to docs for bloodpressure check etc ...for a talk with doc
5:26 @@theaweavers8576
Thank you, this series is very helpful. I would appreciate a part 3. Thank you for making these videos.
EXCELLENT INFORMATION..PEOPLE NEED ALL THE KNOWLEDGE THEY CAN GATHER.HAVE DEALT WITH FAMILY & FRIENDS & OTHERS I HELPED THROUGHOUT MY LIFE.THANK YOU.
The random remembering symptom that my loved one experiences is the symptom that makes *me* feel like I'm the paranoid one who needs a caregiver - lol - seriously, she can't remember the simplest things, but can nail others.
Sometimes my husband and I joke that we're being punked.
I've spent the last 5 months ať my parents house taking care of them mainly because of my moms dementia. I think She thinks Im an imposter. She doesnt remember when She was Born, when And if She ate, And shes really losing her language. In adition to being very hard of hearing, She hears completely different words than the ones we're saying to her. I'll say banana And she'll repeat bubmle bee. She repeats the question "what's this?" as She points at objects, seemingly because she forgets what they're called. The loss of her language Is even more disturbing than the loss of her memory.
Hi Dr. Natalie, Can I get on your Tuesday weekly newsletter? Thank you Jan
My best friend was diagnosed with Alzheimer’s at 45. She passed within 3 years. It’s a terrible disease but to see it in the younger groups is shocking but it does happen unfortunately 😢
Please do a part 3 Thank you
Any info on a covert narcissist with dementia (my mother)
Thank you, part three would be great.
My mom started with capgras type beliefs just last night. Fingers crossed it won’t stick.
Age-this is what my husband is facing. He is only 50 something, and isn't qualify to day care center due to his age. I can just see him getting worse and worse and can't do a thing
Please do part 3. This information is so important.
My dad has approached Capgras before, but it has only happened a couple of times. Since I started suspecting dementia (well before the diagnosis of Frontaltemporal), I started checking if he knew who I was and what I am to him (mostly watching out for completely forgetting who I am). A couple of times he referred to me as another person with my name "the other ". Like he thinks there are two of me (I'm an only child). Not really thinking I am an imposter...more a different . It did not specifically lead to hostility from him....that came in other forms.
I'm part of a support group on Mastodon for caregivers. One of the people in the support group is taking care of their son, who is in their 30's I believe, who has Dementia as well as a couple of other conditions including migraines. When I first heard her story, it surprised me that someone so young could come down with it.
4 out of 5. Plz do #3
Thank you very much for this videos. Please do part 3 please!
Hi there, Here is Part 3: th-cam.com/video/-eTtlqg3zrw/w-d-xo.html
Thank you so much - smell and random memories are the symptoms my lowd has. The smell part is surprising - so thanks again
How do you get your husband to go get checked he won’t go says nothing wrong
Maybe you could talk to his doctor? Mybe the doctor could find some excuse to have him checked?
Thank you Nat. These are very helpful! Mostly the 'what is' and 'what isn't necessarily' .
Thank you so much
Part 3 would be wonderful!!!
My father had dementia in his late 80s. He had a caregiver who was a younger woman and very friendly to him. One time he told me that she had an evil twin that took her place and acted bad.
I’d love a part 3. Thank you!
Yes to a part 3! Please!
Thank you for the very clear information.
Thank you for the valuable information
Please do part 3 so gratefulx
Thank you
Thank you. ❤
The peanut butter test. Covid took mine smell away for a while.
Part 3 please. Thank you!
Early loss of the sense of smell is also a marker for Parkinson’s disease even without levy body dementia.
Please part 3❤️🇨🇦
My husband just recently passed. The information you provide in your videos were incredibly helpful to me during the course of his disease. Thank you
So sorry for your loss. Thank you for being there for your loved one when he needed you most. Sending you so much love and strength. 💖
yes do part 3 your video help me with my mother in law in whom i take care of
Yes
Please do part 3 🎉🎉🎉
There is a part 3! 🙂
Wow…. This was great. My husband spilled gasoline in the car, but he couldn’t smell it. Unfortunately I could and it was so strong for days.
Thank you helped me greatly. Always wondering where we are as per symptoms. My husband sleeps alit. Can't do much without having a reason. ❤
Hi @jennifermacdonald2064,
Here is a video you may find helpful 💖: th-cam.com/video/oDapRYJVnsM/w-d-xo.html
Dr N, your videos are so very important. I cannot find a dr here in Phoenix AZ that can help us.
Dr. Atul Syal
My wife had frequent migraines several years before the diagnosis of Alzheimer’s disease was established. However once that was confirmed the headaches almost completely subsided. I would conclude that the migraines may have been the result of changes in the brain before other signs and symptoms surfaced.
I've heard that because of Capgras violence, firearms should be removed from home.
Hi @trkn5681
Thanks for sharing. Here is a related video you may find helpful: th-cam.com/video/Hgovtokpo5s/w-d-xo.html
My wife has Capgras and it’s like having a second family and friends with us 24/7. The frustration is heavily on both of us - she interacts naturally and I can’t see or “hear” nothing.
Hi @greertodaycom Thanks for sharing. Here is a video you may find helpful: th-cam.com/video/NxkD1xrNvMU/w-d-xo.html
Yes my mom who has dementia has cap gras syndrome. My mom thinks there is another lady just like me with a different name. We have always been close so this has been hard to deal with .
Anyway thanks for the video and information.
I can feel that. Sorry. My mom remembers me but forgets she loves me. It is hard. Blessings to you.
My mom also thinks I'm another women who helps her. I'm the one who sings with her too. I'm often that woman who is mean to her. None of what my mom thinks about me is surprising or disturbing because of what I've learned from Dr. Natali and the Careblazer support group. Being an active member of Careblazers the past 18 months has helped me manage caring for my parents who both have many layers and levels of Alzheimer's Dementia between the two of them.
Hi there, Thanks for sharing. 💖
Here is a related video you may find helpful with information about Capgras: th-cam.com/video/NxkD1xrNvMU/w-d-xo.html
@@DementiaCareblazers thank you for sharing that video. Very helpful ,definitely one that I will need to refer back too.
I work at going with the flow on the conversations with my Mom. The conversations are very very simple .
I treasure the happy days when she does know me. It's harder to deal with when her anger is in full display. I still do my best to stay calm and redirect if I can.
I think one has to grieve the loss of the relationship and realize it’s a whole new relationship. Comparing what was and what is can drive you crazy.
Part three would be interesting.
Thank you for this video, and the others in this series. You have triggered a question re smell - sadly my sister, along with her dementia (I believe alcohol induced), has become incontinent and has an aversion to bathing. She doesn't seem to notice her personal odour, which is so significant none of the other residents inn her retirement home will go near her. So in addition to dementia she is ostracized. She does not seem to notice her own body odour. Is that part of the olfactory symptom you refer to?
What are the differences in Lewys and frontal temporal and Alzheimer’s would also be a great idea 💡 😊❤
I think she did videos on these conditions.
Hi @stevenblack3092
Thanks for your question. Here are a couple videos that you may find helpful:
th-cam.com/video/lq1a8LY2ZNw/w-d-xo.html
th-cam.com/video/jhgKhiWB8_8/w-d-xo.html
OMG, Mum lost her sense of smell for a couple of years before being diagnosed 😮
Very informative. However, I am confused about different tests and scores. 😢
I have my mother living with me . We had to move into a bigger apartment. She was diagnosed with dementia and Alzheimer's. Do I need to ask what kind of dementia she has? She is 84 and I think she had it for awhile before being diagnosed. I have started a support group once a month. I haven't told her that I have I just say I'm going to an appointment. Do you think I should tell her? I just don't want her to feel bad.
Please keep up the part 4 & 5... It surely helps.
Thank you😊
I want video 3 & 4
Part three, please. This is very he,pful.
Thank you Dr. Natali ! The symptoms you share are always interesting and sometimes relatable.
I find my LO’s “Random Remembering” peculiar and funny at the same time. I just go with it! My LO has excellent smell! It’s better than mine, always has been. 😀
I’m curious about a couple behaviors . My LO is very selfish not giving a single thought of anyone else , it’s all about him. . Also having zero patience and using bad words they never did before. Are these personalities changes another symptom?
Same here
Yes that certainly is another VERY common symptom.
Ok. So now you have me worried about myself as well. Lol... what about smelling smoke , like cigarette smoke or paper smoke when there is no smoke. Doesn't happen all the time but some days several times a day or all day. Is that an early sign of dementia?
There can be other reasons for this :) Migraines and Peri-Menopause can cause this as well.
I've had this smoke smell on And off since I had covid. It's subsiding now. .......16 months later.
Victoria, my wife has Parkinson’s and this a common olfactory hallucination ( smelling smoke ) usually happens first thing in the morning. Not to frighten you but maybe get checked by a neurologist.
Hi @victoriagoins5250
You can learn more about the early warning signs of dementia by clicking the link below.
th-cam.com/video/rTpbtyW8GWA/w-d-xo.html
I get this phantom cigarette smoke smell after or during a sinus infection. My ent doctor says it’s a sign of damaged nerves that constitute your sense of smell . It goes away when my sinuses heal.
For those of you wanting to join us inside the Care Course, click HERE: www.dementiacareclass.com/joindecember
My husband has complained for a couple n of years that he can't smell. He has never had COVID so I am thinking it is a symptom of his dementia. One thing I have been wondering about is a constant turning I ff lights, shutting doors and unplugging things. Is this just trying to control because he feels out of control. It is very frustrating.
The more I watch these videos,the more I think I’m the crazy one.
Hi Dr Natali,
With the lose of smell, that happens to be a symptom of Covid and long haul covid..
So if I have a person who has dementia how do I know if it’s related to covid or to dementia.. especially if it’s post long term covid?
When do we know?
Thank you in advance 😊
Many symptoms are also of people with Parkinson's Disease.
Great video. The sound quality though, isn’t good.
My elderly mother's personality changed right after she got the covid vaccine.
My 39 year old son had memory issues for several months after being vaccinated 😭fortunately it has returned
The olfactory thing is also a long Covid symptom. Don’t anyone jump to conclusions!
My LO with dementia has a wonderful sense of smell.Smells things much before we realise, but sense of taste is so badly affected that even water tastes different.Water intake is only when medicines are given.Tried giving juice and other liquids but hasnt worked. is this common ?
Hi @hb7282
Thanks for your question. I'm sharing some related videos that you may find helpful:
th-cam.com/video/25rqpX63ja4/w-d-xo.html
th-cam.com/video/CNoukSCvifE/w-d-xo.html
Once a week or so, my dad will ask me to take him home. I tell him that he is at home, in his house, in his room. He doesn't believe me.
Hi @mikeg9b
Thanks for reaching out. Here is a video with some information you may find helpful: th-cam.com/video/BCbm9iwJmlo/w-d-xo.html
My Mom used to think she had to leave (her home) before dark and get a room somewhere. She was fine with a little reassurance.
I thought, the loss of anger managemwnt was a defibite stage symptom?
Now I'm worried. After an ear infection I lost my sense of smell. I have seen specialist and there is nothing they can do for me to regain my sense of smell.
Try zinc😊
That’s not dementia, flu, colds and particularly Covid can cause neurological problems. They generally improve within two years but not always.
I always assumed that Random Remembering was just something g they were making up in their mind.
All the symptoms can come and go.
You didnt mention taste: a patient would cover their porridge with a layer of pepper and marmalade, and ate it irregardless
Also pulls hair out , shits on themselves, gets lost ,
What resources to you mean that patients under 65 cannot have access to?
A person under 65 would not be able to access Medicare unless they could qualify for disability. (You can also get Medicare under age 65 for End Stage Renal Disease and ALS.) Getting on disability might be difficult if the person with dementia is not cooperative or there are other problems. Under the best of circumstances, getting on disability can take some time. Also, some programs for aging that would help any person with dementia require that you be at least a certain age or be on Medicare. One example is Area Agency on Aging (AAA) programs requiring you be at least 60 years of age. (There will be some AAA programs with under 60 age exceptions, like Caregivers Programs and for people who have Medicare to use SHIP, Benefits Counseling.) There are many other examples of strictly age and sometimes age or Medicare requirements for resources in other agencies and non-profits.
Thinking it could be a symptom of long haul covid?
Have a better actor for 3 please.