I am starting my iron infusion starting Monday and I can’t wait to start. Cause I’ve been feeling tired, dizziness and blurry vision. May anyone who is going through this journey stay strong and bless
OMG my vision is so blurry due to low ferritin, it's awful. I can't even work, I need an iron infusion too. I need to wait for them to submit PA then they call me to schedule. Ugh so frustrating.
@@spoolspool6278 I’ve had it done 2 months ago & I had mild to moderate nausea for good 3-4 weeks after it but yes definitely felt the energy and vitality going up after 1-2 weeks for sure much more quicker than the tablets
My thoughts and prayers go out to everyone going through this process, my first infusion is this coming Thursday and this video is helpful… thanks you for sharing valuable information ❤
I have an iron infusion coming up on Monday I can’t wait because I’ve been having heart palpitations dizziness blurred vision because of low iron and being anemic I’m ready to have this infusions 😌😌😌😌😌God bless everyone who has to endure this 😌😌😌😌🌹🌹🙏🏾🙏🏾🙏🏾🙌🏾🙌🏾
@@lynngoldsby3789 I hope you're feeling much better after your infusion. I'm also excited for mine next Monday. I think it will make a big difference. Hope you are well ❤
Everyone have no fear...this fatigue, heart palpitations, weakness, breathlessness, etc.. was killing me. Immediately felt clearer and better! I also was told it wouldn't take effect right away. As long as we're on our way, people!
@Lynn Goldsby We have same exact symptoms. My 2 infusions didn't stop palpitations because l waited so long to go to doctor. iron brought up the blood levels but not as much as they like. I am happy you're addressing it. l hope you'll be filled w energy..! I had no bad results from it at all but l believe WAITING did damage. If you don't like doc CHANGE because we need info to do our on research these days.Best of luck ..please tell me how it went 💜
Had my first one yesterday and my blood pressure crashed and I became unresponsive. My limbs are swollen and painful. My face looks and feels sunburned. I was brought back with adrenaline. My arms were full of hives. Please have them give it to you slow and ck you. My reaction didn't happen until end of my infusion. Have someone stay with you for next two days!
I was given a watered down test pack before I was given the full bag. They monitored me very closely because a few people have anaphylactic shock from it.
A great experience from a real person. I see the difference. You positively glowed at the ending. As a severe anemic myself, I know that washed out (fatigued) feeling. But 3 weeks of infusions, energy flows naturally, without the crankiness and the inner dialogue of anxiety
Anyone that will be having an iron infusion, don't worry. I had one last week and it was literally them putting an IV in my forearm and then sitting in a comfy reclining chair for 3 hours. Nothing to worry about!
My mum's 92, She is having her first one next week I'm really scared at her age if her body Can cope will an iron infusion, She is so short of breath , We are not going to tell her what she is Having done it will cause her more worry
Three years later, now December 2023, found your video. Going in for my first infusion today. This answered my unspoken questions, and i feel more at peace going to go get them now. Thank you!!
I died when you said, “I’m gonna eat that ice!”, because that is so me. Was afraid of getting iron infusions and glad to find your vid. It put me a little more at ease on getting it done.
Going tomorrow for my first iron infusion, excited and nerves. I had a “blood” transfusion once due to low iron, never want to get that low again. Thank you for this!
“On the road to recovery…” I love that! Thank you so much for your vulnerability and sharing your experience. This puts me at ease in my journey to recovery. Thank you beautiful! ♥️
Thanks for taking the effort with filming this. Always nice to see Canadian content :). Quite insightful too to see the process, as most videos I've come by don't show the actual clinic/hospital experience. Hope your levels continue to climb and you feel more okay!
Tomorrow is my first infusion, I was so nervous, but now after watching a few video like this I feel a little more comfortable, so onward and up! Thank you for sharing your experience!
Wow! You did awesome. Thank you for the detailed information. I'm having an iron infusion Monday. Perimenopause is kicking my butt. 😭 I hope I do as well as you did so that I can have my surgery. 🙏🏾
Your experience n energy made me calm down! My mom has low iron n is anemic n it scared the shit out of me! She got one n didn’t tell me…had a huge fight with my parents to tell that to me next time! But it’s so scary yet nothing to worry I’m glad…..also found out anemia is very common😇! Stay blessed everyone with good wealth ! ❤️
Omg the fact you can cook dinner and drive yourself anywhere. I can’t even get out of bed I’m so anemic. Some days are better then others but I am not feeling this anemia crap at all. I guess my reason is a bleeding source and we are trying to find the source? And my iron level is in the toliet! They are ordering IV iron so thank you for recording this. I hope you feel better in a years time now.
Thank you for sharing your experience. I just found out today that I'll get 3 infusions starting next week so seeing this helped me. I hope you are feeling better now! 😊
My doctor is putting in an order for me to receive iron infusions. I’m a little nervous because my BP baseline is low. I’m hoping to be feeling better by spring so I can start hiking again.
Thanks for sharing this. I am nervous because I have severe anemia and it has gotten worse even with prescription supplements so now I'm going to be getting infusions and I didn't know what to expect. I really appreciate your video!
This video brings back memories of my iron infusions...I was diagnosed with Crohns disease and needed a bowel resection and my ferritin and Hgb are fine now...I haven't needed one for 2 years...I hope you are doing ok now...I used to chew on ice for years before I got really low...They definitely worked for me.
Hey man , I hope you're doing well now . My father just got diagnosed with Crohn's and he is constantly losing blood. His Hb is 8gm/dl now . We have got IV shots now but I wanna know is your Crohn's gone now ( considering its a life long disease ) and are you on any injections like Remicade or Humira etc .
It's nothing and will make you feel better! I'm very happy ( mine took 15 minutes and 30 to observe blood pressure! You'll be ok!!!! Even my face looks more vibrant.
@@trinastrong8618 Hey, I’ve been so low iron for the past few years and I’ve just refused to have iron transfusion because I am so so scared of any needles and stuff like that. My iron is at 4 right now and some how my naturopath and friends have got me open to the idea of getting it done. I was wondering if it hurt at all
I wanna thank you for making this video cuz I just got diagnosed with severe anemia and got scheduled for iron infusions. They give you little to no info when scheduling so I was happy to watch your video and take notes! Thanks for being so candid and informative!
@@MirandaInCanada I am scheduled for iron infusions. I have 2 weeks infusion scheduled. My iron went down to 4. I am eating more healthy foods with iron medicine. hope nothing will be more difficult than now.
I am so glad your video was suggested in my search, I really liked how you walked us through the experience, thanks 😊 I am having my first iron infusion tomorrow morning and not sure what to expect, however, after you video I feel less anxious about it, thanks 😊 I hope things are working on your end!
I'm getting an iron infusion soon, but i didn't know what it was and you're video was the first to pop up for me. I'm thankful for this information because now i know what to expect. Even in the comments with people sharing their stories is big help. Chewing on ice and eating Popsicles are killing my teeth though 😫😅 currently have my space heater on in the freaking summertime because I'm always cold now and i don't want to make everyone else uncomfortable in the house by turning the air off. The cravings i get are weird. I love love love the smell of Comet, and Pine sol, i don't want to eat it like some people, but i get it. Constantly winded because my body has lost a lot of blood and trying to compensate for it. The smallest task tires me out. Losing Iron is serious thing. I mean it really is a big deal. Anyway, thanks for sharing. Sorry for the long rant.
I had 4 transfusions. From chronic anemia. Then after that I had vitb12 injections. The feelings of tiredness slowly lessens and soon you realise you are more energised. Like you I also ate lots of ice and still do but not as badly as before the infusion. The ice broke my teeth so be careful with it. Sorry this comment is so long
Susan Ryder Hey love 💜 Don’t apologize for a long comment - I love them!! 💜🙌🏼 I’m on Vit B supplements as that has been low too for a long time... I’m encouraged to hear your body came around and you felt better! I’m getting tired of waiting to have my ‘full’ life back. (I’ve never been good at being patient 😝) I wonder is being addicted to ice is an anemic thing?! I am so worried about my teeth so I usually only chew ice after it’s been melted down small in my water... but it is seriously my favourite thing to eat in the world! 🧊😋 Thanks so much for your personal experience! So glad I’m not alone in this mess! 🥰💜💕
The eating ice I am positive is from the anemia. At the time I read this from Wikipedia “Is eating ice a sign of pica? Possibly. Doctors use the term "pica" to describe craving and chewing substances that have no nutritional value - such as ice, clay, soil or paper. Craving and chewing ice (pagophagia) is often associated with iron deficiency, with or without anemia, although the reason is unclear.” Hope that helps. I’m many moons older than you at 52 so maybe my pica is more of a habit now. Oh and I crave the ice.
Susan Ryder So interesting!! Thanks for sharing the information! You know what’s funny? I used to hate cold water! I only drank room temperature! I hated ice because I have sensitive teeth and the cold sometimes hurts. I only started craving cold water and ice last year in May! Which is when my anemia was getting worse & my supplements weren’t working like they should of. This is wild to me! I’m so glad you told me! 💜🤗
Hi dear I am severely anemic my hemoglobin is 6. 5 gm / dl and is considered life threatening. I did 2 iron iv infusion its a painful process . I am tired most of the time I can't care for my 4 small kids . Thanks for all the information .
I had 2 iron infusions a month ago and I’m going back to my hematologist this Thursday for blood work to see how much it helped. I have a blood transfusion May 25th before My 1st hematologist appointment because I was having heart palpitations and sweating profusely and left like I was going to die. I got 2 bag of blood which took me from a blood count of 6.2 to and 8 now I’m hoping that the iron infusions took my blood count to a 10 or more so I can have a hysterectomy on august 25th. I won’t be cleared for surgery if it’s not a 10 or more… pray for me…
I get to go in for one in about 2 hours. I have had many, many IVs before, but this is the first for iron. It is nice to know what to expect. You don't look that old to me. I am almost 65, and you don't look that big, but I will readily agree with you that falls hurt and the older you get, the harder to come back from they are. Used to be if you fell, you just get up, dust your butt off and carry on but at my age, that could easily be a 911 call in progress. You took it like a trooper. Good job and your videos are a real help. I also have severe anemia, so I am curious to know if it works and how you feel once it works.
Had my first blood transfusion last week and my first iron infusion next Monday. Watching your video made me feel much better and that I'm not alone. How are you feeling currently? Hope you feel better! Much love to you and your family 💕
@@MirandaInCanada Oh I hope it works for you! My anemia is also caused by very heavy menstrual cycles and I've never been able to tolerate birth control pills. I'll be interested to hear your success with this! Hang in there!
I need one of these so bad! I’ve felt awful for about a month now. I finally went to the dr last week and I just got my labs back today! They told me I didn’t need an infusion just yet 😞 but man I feel like I do. I’ve been so dizzy and weak, blurred vision and heart palpitations like crazy I can’t even get up to go to the bathroom without feeling extreme dizziness. Im so over this. It does give me peace of mind that I’m not the only one going through this.
Jan 2024 here to see how it goes down. Lol I’ll be getting one soon i dont have anemia but i deficient my ferritin is at 8, Looking forward in feeling better. I’m always tired, no energy , dizzy, breathless, brain fog,, I cut out carbs and that has made me feel so much better not having the sugar spikes or drops.
I had one done before back in 2019. They discovered I was anemic due to another health issue and ended up in emergency room. Now I have another issue that may be causing the deficiency so I have another infusion scheduled later this week. Thank you for the video. You gave me great tips on things I need to to notice of. Being more tired and things to bring. Hope all goes well for you.
Hi, I made it through the first infusion thanks to you or I probably would have canceled my appointment and gone on suffering! I had a little nausea When the nurse hooked me up but I think it was from my nerves. I took my I pad and played games the whole time and before I knew it I was done and ready to go home! Next time I will drive myself like you did but this being my first time my daughter drove me and waited in the parking lot for hours- bless her heart! I'm glad I didn't expect to jump up with all this energy cuz that didn't happen. The nurse said it might be weeks before I feel better BUT thanks to you I am on the road to recovery!! I appreciate you so much! Thank you and God bless. Take care.
Never heard of this before. I am developing symptoms of anaemia including shortness of breath, racing heartbeat, light headedness, fatigue. My mother has pernicious anaemia, I am hoping I do not have that type. I have started using iron spray, b12 and folate patches as I have issues with my digestive system. It’s quite frustrating getting up and feeling so exhausted after a full nights sleep.
I have a craving for the smell of coal, recently on iron but hopefully they trace it back to a stomach bleed been ten months with a five hemaglobin count .They use Argon gas to seal the bled fingers crossed
dunno if anyone cares but if you guys are stoned like me during the covid times you can stream all of the latest movies and series on InstaFlixxer. Been watching with my brother for the last few weeks xD
I am 29 weeks pregnant, with hb level 8. I went through my first iron infusion 2 days ago. I had deep sleep without waking up for shortness of breathe after weeks, but having nausea, headache and vomiting since then.
I am scheduled for 5 infusions and I’ve had two. The first one was fine and the second one my bones feel like they are breaking. My hematologist said it’s my bone marrow reacting to the iron it’s not used to. But other than that, so far so good. One change I noticed after the first dose was that I had less heart palpitations. After the second dose, yes, my long bones are aching, but I was able to walk around an historic Christmas village and not feel like I was going to die from exertion. I walked about 4 miles which would have had my heart pounding and me not able to catch my breath. So I’m hoping after the 5th I’ll feel fabulous!
I have Chronic Kidney Disease and I have had to have blood transfusions and I take iron daily but it is not enough so now I am going to have to have iron infusions. The blood transfusions we're a bit scared and exhausting for me. I am sorry that you have to have the infusions. Praying for you ❤️🙏
thank you SO much for this video. i found it searching for peace of mind with my first infusion tomorrow. i saw you’re canadian, thought oh wow maybe the experience will be similar! to my surprise, i am getting my infusions at the SAME HOSPITAL! what are the odds!!! thank you again for making this, gonna help me be a bit calmer at clinic c tomorrow:)
I just had my first infusion yesterday. I have MGUS. The thing is, I have TERRIBLE veins and already had 7 blown ones from blood tests over the last few weeks. Anemia makes veins even more fragile. Good thing the infusion center had heating pads, and heated chairs. They still had to poke me 3 times. I recommend wearing very comfortable warm clothes if you are a difficult stick, and trying to drink lots of fluids leading up to infusion day. The infusion center I was at had snacks and juice, but I was too afraid to get any because of that vein, I didn't want to move it and have the IV need to be redone. My hematologist gave me Feraheme. The medication stings a little, nothing intolerable, I think having the heating pad on low over my arm helped. The nurses wrapped it in an extra pillowcase so it didn't get too hot, they were so sweet. Some people had throw blankets, their laptop, and a stuffed animal, they let you get comfy. They also gave me a bag of saline, which yes tastes weird, especially if it is higher up on your arm. First infusion since Covid-19, and I could even smell the saline inside my face mask when they flushed my line. Today I am achy and tired, and I have a mild headache on and off as side effects. My brain fog is still really bad. The nurses told me this is all normal, and I will start to feel better in 4-5 days. I get dose #2 next Friday, and follow up with my doctor in a month.
Thank you for posting this! I am at the point where I might need iron infusions and I have heard such bad things about it that now I am afraid to have it done. My iron is at 5. And I feel like crap! And yup! Can't even go into the grocery store without feeling like I am going to faint and pass out and it's sending anxiety through the roof!
I just had them done 3 weeks ago. You just sit in a comfy chair and receive iron. I was nervous too but it was so easy. Make sure you're hydrated and bring snacks, if you want.
This is me I can't even walk for 45 minutes. I usually walk 2 hours a day 1 hour in the morning 1 in the evening. After 5 minutes I feel like crap, sleepy, and just lazy. I hate getting up even to walk the dog.
14:10 so if you don't have enough blood the iron infusion is a waste? Not. A lot for the iron to attach to. So ho do i build up blood with the hem iron as the foundational building block.
I’m in my early 30s and am anemic and have been getting iron infusions since February of 2020. I started on this journey due to “ Mother Nature issues , ladies know what I’m talking about 😉” have had heavy “ uk” since I “ became and women “ My anemic symptoms are mainly fatigue, heart palpitations and really hungry. Have had three so far ~ once a year and I go every 6 months. Got an appointment next week for blood work and then appointment with the doctor at the clinic so we’ll see how my levels are, my last infusion was July of 2021 and I’m definitely feeling the symptoms coming back so I feel like it’s time for an infusion
@@Themodelnetwork so much better ❤️ my levels were normal and I’m in remission ❤️ my doctor told me if I feel like I’m Going backwards again to call them and they can schedule me in take my labs and schedule an infusion if needed
me too. when iron gets low, like now, but i cant infuse until hematology tests again and then see doc in two weeks, i experience headaches, nausea, extreme fatigue, and a bonus of depression and anxiety. when the iron levels go back up from infusions I am normal then the cycle repeats. i have infused ten times. never any side fx.
@@kathywallace6386 it was so easy. I had no after effects either. The purpose for my infusion was for severe RLS and it helped tremendously! Good luck with your infusion! It’s totally worth it
I just came by this video of 2 years ago, you sure got a lot of infusions your hair looks very pretty happy Thursday love your New Brunswick neighbor Kimberly ♥️😊😊🙏🙏👍👍🇨🇦
I know this is an older video, but I'm going through this pretty much as you are, and it is such a relief to hear that you are experiencing the same things I am - like extreme tiredness in general and with the infusion itself, the dizziness, the worries about driving when you're so tired/dizzy, etc. I think it's easy to be hard on yourself when you've gotten used to feeling crappy and you're wondering how people work a full day and still have energy to exercise and socialize or work on a hobby. I had to laugh about the ice thing - my ice cravings were the thing that sent me to the doc to ask about iron deficiency - I love ice so much. One thing you didn't mention was any cognitive issues - I have some annoying brain fog days and I'm wondering if that's something you've experienced. No one really talks about how deficiency affects the brain.
Thank you so very much for sharing your journey. I am getting infusions starting in a couple weeks and am nervous and had no idea what to expect. Thank you so much!
I just had my first infusion last Friday at Cleveland Clinic in Florida. I was exhausted for two days afterward and that passed. My infusion was in a large bag iv. I sat for two hours while it dripped. I had to have a test bag first to make sure I didn’t have a negative reaction. That took about 45 minutes. I was told it will take 4-6 weeks before I feel the full effects. I just want my mojo back.
I had an iron transfusion followed by a blood transfusion and was to return 3days later for another one of blood but had a bad fall after 48 hours. I was staggering from side to side and then there was nothing from knees down so I face planted in hallway.. After 5 hours I managed to get myself to keys and phone. The paramedics got me up and said I had UTI. Doctor sent me for 2nd transfusion but was given antibiotics and had to return in 3days. Had 2nd blood and was okay except tablets hadn't cleared infection. Was to get more tabs but after 3days pharmacist informed me they would take 6days to come. That night I had another fall similar to first and again lay hours then was taken to hospital put on several drips as kidneys were dry? On 3rd day awoke to find swollen ankles, feet and bright red rash from knees to toes with some skin falling off which one person eventually said was to do with transfusion! Returned home after 8 days and feel like I've been through hell.
I just had my second one today. After the first one, I was super exhausted. Today was better, other than feeling dizzy. I have another next week. Fingers crossed that it goes well! 🤞🏾
Yes my iron infusion put me out so I don’t plan on anything all day but they give me 50mg Benadryl first 30min before it in case of reactions. Also we running out of venofer. My doctor or center refused me so I had to find another area to get this and it was out of pocket way more then 200$ a time . 😢so sad . Not sure when they going to get supplies for outpatient IV . I guess I have to be dying to get it . Although I feel like I am .
My first iron infusion is tomorrow. Thank you so much for making this vlog it is really helping me have the courage to face the infusions. I'm having the same product you had so hopefully three sessions does the trick for me.
I'm 33 weeks pregnant with severe anemia. I go for my first iron infusion on tuesday. I'm so nervous! But hopeful it will work as I also am tired of feeling exhausted, dizzy, light headed, having head aches that last all day. This gave me an idea on what to expect. Thank you!
You'll be ok! Just bring stuff to do so you won't be bored, or sleep!! My last 3 infusions were a few months ago and I slept every time! It was wonderful. Best of luck with yours & with baby too!! xoxo
thank you for sharing I've only had 1 and have 3 more scheduled.I have been sick to my stomach and diarrhea for 3 days.So tired it takes everything I have just to do the dishes and get a bath.I've been sleeping a lot.Not looking forward to the next one.I was hoping I'd have more energy.It's been the opposite.
The first time I had my infusions my body reacted to it they give me benadryl with it I also get a full bag of fluids first because I get dehydrated all the time I get a full bad of iron, first time was scary but it didn't hurt was just wiped out. I'm due for another set in 2 days my levels are always so low I have bone marrow issues,, but going through it before has prepared me I bring orange juice because it helps and a blanket coloring books and crayons. I also make sure I have all housework chores done and I get microwave easy stuff for my teenage kids because once I start infusions I'm down for the count l get so exhausted and pretty much can't do much of anything after. I thank you so much for sharing this because of covid nobody can come in with me I go to the cancer center in the hospital, but I thank you because my kids watched your video and were able to see what it's like. I hope you are feeling much better and are well I wish you all the best I know it's hard to suffer from theese things but knowing I'm not alone truly helps . oh also I taste it too its so weird right lol👑❤
@KAT NYC..Hi .l also have gotten 2 full bags of iron infusions a week apart. I was so weak before l was getting breathless,would crash ... literally, especially after meals ( probably celiac bec l do like 85% GF) . After first infusion l felt like Superwoman,but by 7th day l was tired ,etc. Second infusion made me tireder and l worry about heart ,shortness of breath! Seems many say it EXHAUSTED them ,so you feel WORSE after the iron? Medically they says weeks but l feel worried now,cuz lm back to square 1 physically. l am 10 days from starting and have had 2 treatments ( more not recommended yet).Am l worried for nothing? Let me know how you feel too,better each day l hope.
I tried getting my iron infusion yesterday. My ferritin levels are very low and I have thalassemia trait. The combination of two has been leading to very low hemoglobin. I am scheduled to go through a major surgery coming month, so the doctor wanted to up the iron content. Hematologist asked me to get at least one dose of iron infusion. I had a bad intuition about it, but decided to go ahead with it. I was told the severe side effects are rash etc. I wasn't told that one of the side effects could be anaphylactic shock, which is life threatening. The probability of this side effect is extremely low. Within a couple of seconds of it starting, I started getting chest pain. I rang the bell. Another second passed and I had gone into a shock. I thought I was getting a heart attack. My body was shaking and I could not breathe...breathing was very labored and heavy. It felt like someone is squeezing my chest from both the sides. I was getting an anaphylactic shock. Thankfully, all of the nurses, including the head nurse, quickly got into action. I got saved. A few more seconds and I would have died. Nurses tell me that my face was very red. After 24 hours, I still have labored breathing and a numb hand. Of course, my case was recorded and would go to FDA. But, I thought I should share it. Do it only if you really need it. Try taking a massive dose of supplements, even if it makes you feel sick. I know the probabilities are really low of getting a shock. I got Feraheme (costs about 4000 bucks a dose; covered by my insurance) . It is supposed to have really low risk and yet I had a near death experience.
You can try regular iron dextrose there is less risk of reaction, they should be giving you a dose of antihistamine before the infusion begins to prevent a reaction
I have been getting iron infusions since 2018 every 2 or 3 months till now 2024.i still to this day haven't felt good always weak.i wish you so much luck
Use Iron Isomaltoside ( Monoferric in the US ) instead of Venofer ( Iron Sucrose ) . Iron sucrose takes far higher doses & has many more side effects than isomaltoside. Its expensive than Venofer but you only need to get it once .
I have to get iron infusions about every four months. I have heavy menstrual bleeding that causes me to have very low iron.. I bleed crazy heavily. I have tried birth control pills and now I do take this acid medicine while I'm on my period. I'm not sure if I can say it helps. The birth control pills didn't help either. Aftery infusion I do start to feel better within a week. I am tired of being tired from low iron. I try to take the iron pills but they make me feel sick when I do. I don't like it when one of my doctors say to me " it's a band-aid effect when you get the infusion" . I have tried the other things she told me to. This is out of my control that I bleed this way. And if this is what I have to do to feel better than so be it. I don't know anyone who has this problem like I do. So thank you for your video. Take care.
I have the same problem. And no gyn wants to do a hysterectomy without you first going through the steps to try to correct it. For me, nothing has helped and i now have fibroids causing more bleeding. My health journey has been a fight from day one. Good luck to you ❤
i’m anemic and i’m obsessed with eating ice,i get my infusion soon and i’m stressing, i hate needles and all them kinds of things so i. very stressed out.
I am anemic. My doc gave me the pills. They are giving me extreme diarrhea. Dehydrating me. I am tired "EXTREMELY", freezing cold, my toes and fingers are tingling, sides of my lips are cracking. I feel as if I just want to die. Medical failure for me. For some reason I have always been pushed under a rug.
I'm doing this on Tuesday and I am nervous, a few years ago they attempted to give me iron and it burned so badly that even I was crying and almost screaming for them to take it out, my hematologist says it won't hurt but I'm nervous.
Thank you for this video. I have severe low iron due to fibroids causing excessive bleeding and will be receiving these kind of treatments soon. I am facing a decision on whether to have a full hysterotomy or a fibroid treatment. There is some risk in the surgery due to location of one of them and they are both about 10cm large! I am horrified my female doctors did not say or do something earlier (fibroids first found in 2012). Now that I moved and have a male doctor, he was determined to get to the bottom of why my iron was low and I am so thankful. Scared out of my mind based on what I learned today so your video helped ease at least one part of my question, "what the heck does an iron infusion entail!" Thanks for all the tips and warnings about bringing things, how you'd feel, and also about the cost! I am a Canadian too. Thanks so much for this.
Same here! I started my first iron drip today. I have fibroids and I’m terrified because, I haven’t had kids yet. I have an appointment with my obgyn next week. My thoughts and prayers are with you❤️❤️
I’m anemic. I was getting b12 shots and taking iron capsules. The iron capsules had a side effect that I really didn’t like. So, I stopped taking them. I also stopped the b12 shots after having 3 all together of them. I was supposed to go last week and I blew it off. I told the doctor about stopping the iron and he never called me or said anything about it. Guess he doesn’t care. I hope you are feeling better soon.
I have iron deficiency without anemia, it’s so wild and irritating. Only iron infusions raise my ferritin and saturation, and I have to do them multiple times a year. They make feel sick for a while after though.
As a woman who has severe anemia and pregnant right now did you ever have any vision problems aka like blind spots then a headache right after ? Because I’ve been having them recently and i think it’s from anemia but im not sure! Please lmk mama!
I'm scheduled tomorrow for my 1st infusion of iron, looking to feel some pep in my step and not as tired, I sit in a chair and doze off to sleep, not long but I'm not use to being so stil and dozing off. My hemoglobin and hct levels is 9.2 for the last 9months.
I have a bleeding hiatal hernia causing severe anemia. I had a blood transfusion and an iron infusion. I'm averaging about two hrs of sleep at night. My hemoglobin numbers are slowly going up. Having surgery in 2 weeks. Praying that I'll be able to sleep and breathe better. 🙏
I hope that you feel better soon - 12 weeks is a long time to wait! I've never had an infusion, but my iron is somewhat low. I better start taking those iron pills like the doctor told me to do!
Oh girl yes start taking those supplements!! I hope they work for you! Thanks for the well wishes!! I’m really hoping it won’t be a full 12 weeks until recovery!! I’m so impatient! 😬 Hope you have a wonderful weekend!! Xoxo 💜🥰💜
My iron sat was critical low 4!! My hgb was 6.6 had to get blood, 1 unit. Due to severe anemia. My first infusion made me sick. My 2nd infusion made have flu like symptoms, swollen lymph nodes, chills, lightheaded, headache , extreme nausea for about two days! Hysterectomy next week...hopin all this makes me feel better.
Thank you for this video!!! I am 31 weeks pregnant and I have an iron infusion coming up next Monday, I have to get infusions once a week for 4 weeks….. I’ve always been anemic but my levels have dropped lower during pregnancy and iron pills aren’t bringing my hb levels up enough. This video was so helpful to let me know what to expect and how to prepare myself to be as comfortable as possible for a few hrs of sittin still lol.
Ive had two blood transfusions and soon starting with 5 to 8 weeks of iron. Being a 46yr old male it's very rare. Hopefully the iron works since it's deadly.low.
My doctor told me it was time to start iron infusions. I have 2 questions for the more experienced people. Does it make you constipated like iron supplements? How many iron infusions are generally necessary?
I had iron infusions when I was 36 weeks pregnant I had 4 of them a week apart and the great thing is I had zero constipation like the supplements cause I felt great within a week after the first infusion I was craving the smell of household cleaning supplies and recently it got worse so I found out I have to get iron infusions because my level is 8.7 and I have bad reactions to oral iron. Hope this helps you.
I am starting my iron infusion starting Monday and I can’t wait to start. Cause I’ve been feeling tired, dizziness and blurry vision. May anyone who is going through this journey stay strong and bless
How did it go? I hope you are feeling better!!!
ameen😢😢
How it was please suggest
OMG my vision is so blurry due to low ferritin, it's awful. I can't even work, I need an iron infusion too. I need to wait for them to submit PA then they call me to schedule. Ugh so frustrating.
as someone who is about to go through this because of severe anemia, thank you this has eased my anxiety.
How was it? I’m going to ask for it.
@@spoolspool6278 I’ve had it done 2 months ago & I had mild to moderate nausea for good 3-4 weeks after it but yes definitely felt the energy and vitality going up after 1-2 weeks for sure much more quicker than the tablets
Me too 😞
My thoughts and prayers go out to everyone going through this process, my first infusion is this coming Thursday and this video is helpful… thanks you for sharing valuable information ❤
I have an iron infusion coming up on Monday I can’t wait because I’ve been having heart palpitations dizziness blurred vision because of low iron and being anemic I’m ready to have this infusions 😌😌😌😌😌God bless everyone who has to endure this 😌😌😌😌🌹🌹🙏🏾🙏🏾🙏🏾🙌🏾🙌🏾
It's so worth it!! Best of luck! xo
@@MirandaInCanada thank you
@@lynngoldsby3789 I hope you're feeling much better after your infusion. I'm also excited for mine next Monday. I think it will make a big difference. Hope you are well ❤
Everyone have no fear...this fatigue, heart palpitations, weakness, breathlessness, etc.. was killing me. Immediately felt clearer and better! I also was told it wouldn't take effect right away. As long as we're on our way, people!
@Lynn Goldsby We have same exact symptoms. My 2 infusions didn't stop palpitations because l waited so long to go to doctor. iron brought up the blood levels but not as much as they like. I am happy you're addressing it. l hope you'll be filled w energy..! I had no bad results from it at all but l believe WAITING did damage. If you don't like doc CHANGE because we need info to do our on research these days.Best of luck ..please tell me how it went 💜
Had my first one yesterday and my blood pressure crashed and I became unresponsive. My limbs are swollen and painful. My face looks and feels sunburned. I was brought back with adrenaline. My arms were full of hives. Please have them give it to you slow and ck you. My reaction didn't happen until end of my infusion. Have someone stay with you for next two days!
I was given a watered down test pack before I was given the full bag. They monitored me very closely because a few people have anaphylactic shock from it.
A great experience from a real person. I see the difference. You positively glowed at the ending. As a severe anemic myself, I know that washed out (fatigued) feeling. But 3 weeks of infusions, energy flows naturally, without the crankiness and the inner dialogue of anxiety
Anyone that will be having an iron infusion, don't worry. I had one last week and it was literally them putting an IV in my forearm and then sitting in a comfy reclining chair for 3 hours. Nothing to worry about!
I'm scared too Penny
My mum's 92,
She is having her first one next week
I'm really scared at her age if her body
Can cope will an iron infusion,
She is so short of breath ,
We are not going to tell her what she is
Having done it will cause her more worry
Did you have any side affects
What amount did you get, I was not aware it took a longer time period.
Thank you so much I have one tomorrow
Three years later, now December 2023, found your video. Going in for my first infusion today. This answered my unspoken questions, and i feel more at peace going to go get them now. Thank you!!
I’m going for my first treatment this week and I’m a little nervous so I’m glad to have found this video as well as this comment
how did it go?
I died when you said, “I’m gonna eat that ice!”, because that is so me. Was afraid of getting iron infusions and glad to find your vid. It put me a little more at ease on getting it done.
Earring and craving ice is a symptom of anemia
A lot of us are going through this journey without a information/testimonials to look at… Thank you for sharing your experience!
Going tomorrow for my first iron infusion, excited and nerves. I had a “blood” transfusion once due to low iron, never want to get that low again. Thank you for this!
How low was your iron?
My Dr wants me to get a transfusion, because my iron is 6.5
@@leahskitchen1157 Shucks...I am sitting at 4.8🤕
@@nomg563 me at 3.3
I had very low iron and ended up in ICU having blood transfusions from Wales uk
“On the road to recovery…” I love that! Thank you so much for your vulnerability and sharing your experience. This puts me at ease in my journey to recovery. Thank you beautiful! ♥️
Thanks for taking the effort with filming this. Always nice to see Canadian content :). Quite insightful too to see the process, as most videos I've come by don't show the actual clinic/hospital experience. Hope your levels continue to climb and you feel more okay!
Thanks hun!! I actually am going to be going for more infusions soon!
Tomorrow is my first infusion, I was so nervous, but now after watching a few video like this I feel a little more comfortable, so onward and up! Thank you for sharing your experience!
Happy to hear this!! Good luck my friend! xo
@@MirandaInCanada why is there sucrose is it thats poison
Wow! You did awesome. Thank you for the detailed information. I'm having an iron infusion Monday. Perimenopause is kicking my butt. 😭 I hope I do as well as you did so that I can have my surgery. 🙏🏾
Your experience n energy made me calm down! My mom has low iron n is anemic n it scared the shit out of me! She got one n didn’t tell me…had a huge fight with my parents to tell that to me next time! But it’s so scary yet nothing to worry I’m glad…..also found out anemia is very common😇! Stay blessed everyone with good wealth ! ❤️
You are such a great daughter God bless ❤
Omg the fact you can cook dinner and drive yourself anywhere. I can’t even get out of bed I’m so anemic. Some days are better then others but I am not feeling this anemia crap at all. I guess my reason is a bleeding source and we are trying to find the source? And my iron level is in the toliet! They are ordering IV iron so thank you for recording this. I hope you feel better in a years time now.
I thought the same thing...Most people can't even function properly
Thank you for sharing your experience. I just found out today that I'll get 3 infusions starting next week so seeing this helped me. I hope you are feeling better now! 😊
Thank you so much for filming this I start my infusions next week and im so nervous. I'm sorry you went through this.
Good luck!!
How’s it going? I’m scared to get mine
@@jayleeafraser1798 so far so good im posting my journey about it on my youtube channel though like this video.
My doctor is putting in an order for me to receive iron infusions. I’m a little nervous because my BP baseline is low. I’m hoping to be feeling better by spring so I can start hiking again.
Your video answered the question of whether or not I can drive myself to these infusions. Thank you for documenting your experience.
I drove to and from my infusions every time! I sometimes was tired, but my drive home was only 25-30 mins
Thanks for sharing this. I am nervous because I have severe anemia and it has gotten worse even with prescription supplements so now I'm going to be getting infusions and I didn't know what to expect. I really appreciate your video!
How are you now?
@@kala9907 I still get anemic but I get regular blood work and supplements. Last time I had anemia it was due to vitamin D3 and B1 I think.
Thank you for this video. I'm currently doing my first iron iv infusion.
Best of luck!
This video brings back memories of my iron infusions...I was diagnosed with Crohns disease and needed a bowel resection and my ferritin and Hgb are fine now...I haven't needed one for 2 years...I hope you are doing ok now...I used to chew on ice for years before I got really low...They definitely worked for me.
Hey man , I hope you're doing well now . My father just got diagnosed with Crohn's and he is constantly losing blood. His Hb is 8gm/dl now . We have got IV shots now but I wanna know is your Crohn's gone now ( considering its a life long disease ) and are you on any injections like Remicade or Humira etc .
Did you have any hair loss?
I go for my first Iron transfusion on Thursday. This made me less nervous.
Here because I go tomorrow and I’m VERY nervous 😟
It's nothing and will make you feel better! I'm very happy ( mine took 15 minutes and 30 to observe blood pressure! You'll be ok!!!! Even my face looks more vibrant.
@@trinastrong8618 Hey, I’ve been so low iron for the past few years and I’ve just refused to have iron transfusion because I am so so scared of any needles and stuff like that. My iron is at 4 right now and some how my naturopath and friends have got me open to the idea of getting it done. I was wondering if it hurt at all
@@reemqras1645 if you don’t want to die get the infusion. Otherwise you’re a dead woman walking 💀
I wanna thank you for making this video cuz I just got diagnosed with severe anemia and got scheduled for iron infusions. They give you little to no info when scheduling so I was happy to watch your video and take notes! Thanks for being so candid and informative!
Glad I could help! Best of luck! I'm going back for more next month! xo
@@MirandaInCanada I am scheduled for iron infusions. I have 2 weeks infusion scheduled. My iron went down to 4. I am eating more healthy foods with iron medicine. hope nothing will be more difficult than now.
I am so glad your video was suggested in my search, I really liked how you walked us through the experience, thanks 😊 I am having my first iron infusion tomorrow morning and not sure what to expect, however, after you video I feel less anxious about it, thanks 😊 I hope things are working on your end!
I'm getting an iron infusion soon, but i didn't know what it was and you're video was the first to pop up for me. I'm thankful for this information because now i know what to expect. Even in the comments with people sharing their stories is big help. Chewing on ice and eating Popsicles are killing my teeth though 😫😅 currently have my space heater on in the freaking summertime because I'm always cold now and i don't want to make everyone else uncomfortable in the house by turning the air off. The cravings i get are weird. I love love love the smell of Comet, and Pine sol, i don't want to eat it like some people, but i get it. Constantly winded because my body has lost a lot of blood and trying to compensate for it. The smallest task tires me out. Losing Iron is serious thing. I mean it really is a big deal. Anyway, thanks for sharing. Sorry for the long rant.
I had 4 transfusions. From chronic anemia. Then after that I had vitb12 injections. The feelings of tiredness slowly lessens and soon you realise you are more energised. Like you I also ate lots of ice and still do but not as badly as before the infusion. The ice broke my teeth so be careful with it. Sorry this comment is so long
Susan Ryder Hey love 💜 Don’t apologize for a long comment - I love them!! 💜🙌🏼
I’m on Vit B supplements as that has been low too for a long time... I’m encouraged to hear your body came around and you felt better! I’m getting tired of waiting to have my ‘full’ life back. (I’ve never been good at being patient 😝)
I wonder is being addicted to ice is an anemic thing?! I am so worried about my teeth so I usually only chew ice after it’s been melted down small in my water... but it is seriously my favourite thing to eat in the world! 🧊😋
Thanks so much for your personal experience! So glad I’m not alone in this mess! 🥰💜💕
The eating ice I am positive is from the anemia. At the time I read this from Wikipedia “Is eating ice a sign of pica?
Possibly. Doctors use the term "pica" to describe craving and chewing substances that have no nutritional value - such as ice, clay, soil or paper. Craving and chewing ice (pagophagia) is often associated with iron deficiency, with or without anemia, although the reason is unclear.” Hope that helps. I’m many moons older than you at 52 so maybe my pica is more of a habit now. Oh and I crave the ice.
Susan Ryder So interesting!! Thanks for sharing the information! You know what’s funny? I used to hate cold water! I only drank room temperature! I hated ice because I have sensitive teeth and the cold sometimes hurts. I only started craving cold water and ice last year in May! Which is when my anemia was getting worse & my supplements weren’t working like they should of. This is wild to me! I’m so glad you told me! 💜🤗
You said you were chronic...what was your levels...mine is 4 ...I am starting to panic...do you mind if I ask?
Lol
Hi dear I am severely anemic my hemoglobin is 6. 5 gm / dl and is considered life threatening. I did 2 iron iv infusion its a painful process . I am tired most of the time I can't care for my 4 small kids . Thanks for all the information .
Rewatch 1-30-2023 I was severely anemic till I went through the change at an early age. Since then I've been pretty even
I had 2 iron infusions a month ago and I’m going back to my hematologist this Thursday for blood work to see how much it helped. I have a blood transfusion May 25th before My 1st hematologist appointment because I was having heart palpitations and sweating profusely and left like I was going to die. I got 2 bag of blood which took me from a blood count of 6.2 to and 8 now I’m hoping that the iron infusions took my blood count to a 10 or more so I can have a hysterectomy on august 25th. I won’t be cleared for surgery if it’s not a 10 or more… pray for me…
Omg your definitely in my prayers
Sounds like my condition…. Hopefully your feeling better, and was able to get your surgery!
Thanks for sharing, I am scheduled to have mine and was inquisitive, thanks to you, I am much calmer with a glimpse of what to expect. Thanks a bunch.
I get to go in for one in about 2 hours. I have had many, many IVs before, but this is the first for iron. It is nice to know what to expect. You don't look that old to me. I am almost 65, and you don't look that big, but I will readily agree with you that falls hurt and the older you get, the harder to come back from they are. Used to be if you fell, you just get up, dust your butt off and carry on but at my age, that could easily be a 911 call in progress.
You took it like a trooper. Good job and your videos are a real help. I also have severe anemia, so I am curious to know if it works and how you feel once it works.
Had my first blood transfusion last week and my first iron infusion next Monday. Watching your video made me feel much better and that I'm not alone.
How are you feeling currently? Hope you feel better! Much love to you and your family 💕
hey!! Since these infusions I've had 3 more, and I'm doing OK. I just had an IUD put in last week which we're hoping it will help with blood loss!!!
@@MirandaInCanada Oh I hope it works for you! My anemia is also caused by very heavy menstrual cycles and I've never been able to tolerate birth control pills. I'll be interested to hear your success with this! Hang in there!
I need one of these so bad! I’ve felt awful for about a month now. I finally went to the dr last week and I just got my labs back today! They told me I didn’t need an infusion just yet 😞 but man I feel like I do. I’ve been so dizzy and weak, blurred vision and heart palpitations like crazy I can’t even get up to go to the bathroom without feeling extreme dizziness. Im so over this. It does give me peace of mind that I’m not the only one going through this.
I’m about to start mine this coming Monday to treat severe anemia. So ready for the light headedness and dizziness to be over.
Jan 2024 here to see how it goes down. Lol I’ll be getting one soon i dont have anemia but i deficient my ferritin is at 8, Looking forward in feeling better. I’m always tired, no energy , dizzy, breathless, brain fog,, I cut out carbs and that has made me feel so much better not having the sugar spikes or drops.
What do you eat?
I had one done before back in 2019. They discovered I was anemic due to another health issue and ended up in emergency room. Now I have another issue that may be causing the deficiency so I have another infusion scheduled later this week. Thank you for the video. You gave me great tips on things I need to to notice of. Being more tired and things to bring. Hope all goes well for you.
what did they find and how are u now? what u do to fix things?
Tomorrow is my first infusion. Before I watched your video I was really scared! Thank you for posting this. TAKE CARE.
Good luck!!
Hi, I made it through the first infusion thanks to you or I probably would have canceled my appointment and gone on suffering! I had a little nausea When the nurse hooked me up but I think it was from my nerves. I took my I pad and played games the whole time and before I knew it I was done and ready to go home! Next time I will drive myself like you did but this being my first time my daughter drove me and waited in the parking lot for hours- bless her heart! I'm glad I didn't expect to jump up with all this energy cuz that didn't happen. The nurse said it might be weeks before I feel better BUT thanks to you I am on the road to recovery!! I appreciate you so much! Thank you and God bless. Take care.
Going in for mine tomorrow, glad I found this video because they didn’t give me any information when scheduling.
Never heard of this before. I am developing symptoms of anaemia including shortness of breath, racing heartbeat, light headedness, fatigue. My mother has pernicious anaemia, I am hoping I do not have that type. I have started using iron spray, b12 and folate patches as I have issues with my digestive system. It’s quite frustrating getting up and feeling so exhausted after a full nights sleep.
I hope you feel better!!! I start my iron infusions next month.
They work! Good luck! xo
Eating Ice is an Anemic thing.
I have a craving for the smell of coal, recently on iron but hopefully they trace it back to a stomach bleed been ten months with a five hemaglobin count .They use Argon gas to seal the bled fingers crossed
Freezing winter day....buying a cup of ice eating it with mittens!
dunno if anyone cares but if you guys are stoned like me during the covid times you can stream all of the latest movies and series on InstaFlixxer. Been watching with my brother for the last few weeks xD
@Keaton Nixon yea, I've been using InstaFlixxer for since november myself :D
No wonder I love ice so much…having my first one done this Thursday
Hello, i go for my first iron infusion tomorrow morning. Watching your video has helped calm my nerves. Thank you!
I am 29 weeks pregnant, with hb level 8. I went through my first iron infusion 2 days ago. I had deep sleep without waking up for shortness of breathe after weeks, but having nausea, headache and vomiting since then.
Thank you for this. My first infusion is next week, and I had no idea what to expect, and that is unnerving for me. You were very helpful.
I had some done while being in the hospital as well as blood Transfusions
I am scheduled for 5 infusions and I’ve had two. The first one was fine and the second one my bones feel like they are breaking. My hematologist said it’s my bone marrow reacting to the iron it’s not used to. But other than that, so far so good. One change I noticed after the first dose was that I had less heart palpitations. After the second dose, yes, my long bones are aching, but I was able to walk around an historic Christmas village and not feel like I was going to die from exertion. I walked about 4 miles which would have had my heart pounding and me not able to catch my breath. So I’m hoping after the 5th I’ll feel fabulous!
I get mine Wednesday, im ready for it im so tired. And my breathing is not the same. Im just ready for energy and my life back🙏🏽🤞🏾💯
I have Chronic Kidney Disease and I have had to have blood transfusions and I take iron daily but it is not enough so now I am going to have to have iron infusions. The blood transfusions we're a bit scared and exhausting for me. I am sorry that you have to have the infusions. Praying for you ❤️🙏
thank you SO much for this video. i found it searching for peace of mind with my first infusion tomorrow. i saw you’re canadian, thought oh wow maybe the experience will be similar! to my surprise, i am getting my infusions at the SAME HOSPITAL! what are the odds!!! thank you again for making this, gonna help me be a bit calmer at clinic c tomorrow:)
side note, i’m very surprised you had to pay for yours!! mine is free under medicare
I just had my first infusion yesterday. I have MGUS. The thing is, I have TERRIBLE veins and already had 7 blown ones from blood tests over the last few weeks. Anemia makes veins even more fragile. Good thing the infusion center had heating pads, and heated chairs. They still had to poke me 3 times. I recommend wearing very comfortable warm clothes if you are a difficult stick, and trying to drink lots of fluids leading up to infusion day. The infusion center I was at had snacks and juice, but I was too afraid to get any because of that vein, I didn't want to move it and have the IV need to be redone. My hematologist gave me Feraheme. The medication stings a little, nothing intolerable, I think having the heating pad on low over my arm helped. The nurses wrapped it in an extra pillowcase so it didn't get too hot, they were so sweet. Some people had throw blankets, their laptop, and a stuffed animal, they let you get comfy. They also gave me a bag of saline, which yes tastes weird, especially if it is higher up on your arm. First infusion since Covid-19, and I could even smell the saline inside my face mask when they flushed my line. Today I am achy and tired, and I have a mild headache on and off as side effects. My brain fog is still really bad. The nurses told me this is all normal, and I will start to feel better in 4-5 days. I get dose #2 next Friday, and follow up with my doctor in a month.
Im going for my first infusion in a couple of weeks. Thanks for sharing your experience.
Thank you for posting this! I am at the point where I might need iron infusions and I have heard such bad things about it that now I am afraid to have it done. My iron is at 5. And I feel like crap! And yup! Can't even go into the grocery store without feeling like I am going to faint and pass out and it's sending anxiety through the roof!
I just had them done 3 weeks ago. You just sit in a comfy chair and receive iron. I was nervous too but it was so easy. Make sure you're hydrated and bring snacks, if you want.
This is me I can't even walk for 45 minutes. I usually walk 2 hours a day 1 hour in the morning 1 in the evening. After 5 minutes I feel like crap, sleepy, and just lazy. I hate getting up even to walk the dog.
feel the same . my level dropped from 7 to 6 after taking the iron med for 3 months . waiting for infusion.
@@victoriamarilyn hola tuviste algun efecto adverso??
@@johamontt3900 No, I didn't have any adverse effects. I had surgery over a year ago, and no longer needed infusions.
Thanks ! I’ve had 3 iv iron . But doesn’t feel like it’s helping . Waiting for more blood to be drawn so interesting about the blood transfusion.
14:10 so if you don't have enough blood the iron infusion is a waste? Not. A lot for the iron to attach to. So ho do i build up blood with the hem iron as the foundational building block.
I’m in my early 30s and am anemic and have been getting iron infusions since February of 2020. I started on this journey due to “ Mother Nature issues , ladies know what I’m talking about 😉” have had heavy “ uk” since I “ became and women “ My anemic symptoms are mainly fatigue, heart palpitations and really hungry. Have had three so far ~ once a year and I go every 6 months. Got an appointment next week for blood work and then appointment with the doctor at the clinic so we’ll see how my levels are, my last infusion was July of 2021 and I’m definitely feeling the symptoms coming back so I feel like it’s time for an infusion
How are you now
@@Themodelnetwork so much better ❤️ my levels were normal and I’m in remission ❤️ my doctor told me if I feel like I’m
Going backwards again to call them and they can schedule me in take my labs and schedule an infusion if needed
me too. when iron gets low, like now, but i cant infuse until hematology tests again and then see doc in two weeks, i experience headaches, nausea, extreme fatigue, and a bonus of depression and anxiety. when the iron levels go back up from infusions I am normal then the cycle repeats. i have infused ten times. never any side fx.
Thank you so much for sharing your experience. My first round is Monday and this helped me so much! Also I hope your doing well! 😊
I have one coming up for myself too. How did yours go?
@@kathywallace6386 it was so easy. I had no after effects either. The purpose for my infusion was for severe RLS and it helped tremendously! Good luck with your infusion! It’s totally worth it
I just came by this video of 2 years ago, you sure got a lot of infusions your hair looks very pretty happy Thursday love your New Brunswick neighbor Kimberly ♥️😊😊🙏🙏👍👍🇨🇦
I know this is an older video, but I'm going through this pretty much as you are, and it is such a relief to hear that you are experiencing the same things I am - like extreme tiredness in general and with the infusion itself, the dizziness, the worries about driving when you're so tired/dizzy, etc. I think it's easy to be hard on yourself when you've gotten used to feeling crappy and you're wondering how people work a full day and still have energy to exercise and socialize or work on a hobby.
I had to laugh about the ice thing - my ice cravings were the thing that sent me to the doc to ask about iron deficiency - I love ice so much.
One thing you didn't mention was any cognitive issues - I have some annoying brain fog days and I'm wondering if that's something you've experienced. No one really talks about how deficiency affects the brain.
Thank you so very much for sharing your journey. I am getting infusions starting in a couple weeks and am nervous and had no idea what to expect. Thank you so much!
How did your infusions go?
I just had my first infusion last Friday at Cleveland Clinic in Florida. I was exhausted for two days afterward and that passed. My infusion was in a large bag iv. I sat for two hours while it dripped. I had to have a test bag first to make sure I didn’t have a negative reaction. That took about 45 minutes. I was told it will take 4-6 weeks before I feel the full effects. I just want my mojo back.
Thank you for making this, I was very nervous before I watched this video. I go in for my first infusion tomorrow.
Best of luck! xoxo
I had an iron transfusion followed by a blood transfusion and was to return 3days later for another one of blood but had a bad fall after 48 hours. I was staggering from side to side and then there was nothing from knees down so I face planted in hallway.. After 5 hours I managed to get myself to keys and phone. The paramedics got me up and said I had UTI. Doctor sent me for 2nd transfusion but was given antibiotics and had to return in 3days. Had 2nd blood and was okay except tablets hadn't cleared infection. Was to get more tabs but after 3days pharmacist informed me they would take 6days to come. That night I had another fall similar to first and again lay hours then was taken to hospital put on several drips as kidneys were dry? On 3rd day awoke to find swollen ankles, feet and bright red rash from knees to toes with some skin falling off which one person eventually said was to do with transfusion! Returned home after 8 days and feel like I've been through hell.
I just had my second one today. After the first one, I was super exhausted. Today was better, other than feeling dizzy. I have another next week. Fingers crossed that it goes well! 🤞🏾
Best of luck to you my dear! xo
So u have to get several or is it just your iron level it depends on
What was your hemoglobin levels at?
@@beautifulanomaly9920 I had to get 3 infusions but I’m sure it varies per person.
@@lzjz5679 Oddly, mine hemoglobin was not tested but I felt a lot better. Less chest pain and more energy.
Yes my iron infusion put me out so I don’t plan on anything all day but they give me 50mg Benadryl first 30min before it in case of reactions.
Also we running out of venofer. My doctor or center refused me so I had to find another area to get this and it was out of pocket way more then 200$ a time . 😢so sad . Not sure when they going to get supplies for outpatient IV .
I guess I have to be dying to get it . Although I feel like I am .
My first iron infusion is tomorrow. Thank you so much for making this vlog it is really helping me have the courage to face the infusions. I'm having the same product you had so hopefully three sessions does the trick for me.
How are you feeling now? How many times did you have to go back? My iron is low I'm just waiting for my appointment for the procedure.
I'm 33 weeks pregnant with severe anemia. I go for my first iron infusion on tuesday. I'm so nervous! But hopeful it will work as I also am tired of feeling exhausted, dizzy, light headed, having head aches that last all day. This gave me an idea on what to expect. Thank you!
You'll be ok! Just bring stuff to do so you won't be bored, or sleep!! My last 3 infusions were a few months ago and I slept every time! It was wonderful. Best of luck with yours & with baby too!! xoxo
How did it go?
thank you for sharing I've only had 1 and have 3 more scheduled.I have been sick to my stomach and diarrhea for 3 days.So tired it takes everything I have just to do the dishes and get a bath.I've been sleeping a lot.Not looking forward to the next one.I was hoping I'd have more energy.It's been the opposite.
The first time I had my infusions my body reacted to it they give me benadryl with it I also get a full bag of fluids first because I get dehydrated all the time I get a full bad of iron, first time was scary but it didn't hurt was just wiped out. I'm due for another set in 2 days my levels are always so low I have bone marrow issues,, but going through it before has prepared me I bring orange juice because it helps and a blanket coloring books and crayons. I also make sure I have all housework chores done and I get microwave easy stuff for my teenage kids because once I start infusions I'm down for the count l get so exhausted and pretty much can't do much of anything after. I thank you so much for sharing this because of covid nobody can come in with me I go to the cancer center in the hospital, but I thank you because my kids watched your video and were able to see what it's like. I hope you are feeling much better and are well I wish you all the best I know it's hard to suffer from theese things but knowing I'm not alone truly helps . oh also I taste it too its so weird right lol👑❤
@KAT NYC..Hi .l also have gotten 2 full bags of iron infusions a week apart. I was so weak before l was getting breathless,would crash ... literally, especially after meals ( probably celiac bec l do like 85% GF) .
After first infusion l felt like Superwoman,but by 7th day l was tired ,etc. Second infusion made me tireder and l worry about heart ,shortness of breath! Seems many say it EXHAUSTED them ,so you feel WORSE after the iron? Medically they says weeks but l feel worried now,cuz lm back to square 1 physically. l am 10 days from starting and have had 2 treatments ( more not recommended yet).Am l worried for nothing? Let me know how you feel too,better each day l hope.
I tried getting my iron infusion yesterday. My ferritin levels are very low and I have thalassemia trait. The combination of two has been leading to very low hemoglobin. I am scheduled to go through a major surgery coming month, so the doctor wanted to up the iron content. Hematologist asked me to get at least one dose of iron infusion. I had a bad intuition about it, but decided to go ahead with it. I was told the severe side effects are rash etc. I wasn't told that one of the side effects could be anaphylactic shock, which is life threatening. The probability of this side effect is extremely low. Within a couple of seconds of it starting, I started getting chest pain. I rang the bell. Another second passed and I had gone into a shock. I thought I was getting a heart attack. My body was shaking and I could not breathe...breathing was very labored and heavy. It felt like someone is squeezing my chest from both the sides. I was getting an anaphylactic shock. Thankfully, all of the nurses, including the head nurse, quickly got into action. I got saved. A few more seconds and I would have died. Nurses tell me that my face was very red. After 24 hours, I still have labored breathing and a numb hand. Of course, my case was recorded and would go to FDA. But, I thought I should share it. Do it only if you really need it. Try taking a massive dose of supplements, even if it makes you feel sick. I know the probabilities are really low of getting a shock. I got Feraheme (costs about 4000 bucks a dose; covered by my insurance) . It is supposed to have really low risk and yet I had a near death experience.
Prayers sent up for you and that you’re doing better
You can try regular iron dextrose there is less risk of reaction, they should be giving you a dose of antihistamine before the infusion begins to prevent a reaction
I see a blood doctor next week I'm anemic, my hemoglobin is low and losing blood so I see the doctor next week I'm curious to see what whappens
Do you have pernicioua anemia? Your stomach not absorbing the vitamins well?
Happy birthday. Sorry you have to do all this the day after. But if it gets you well then that's the main thing. X
I have been getting iron infusions since 2018 every 2 or 3 months till now 2024.i still to this day haven't felt good always weak.i wish you so much luck
Use Iron Isomaltoside ( Monoferric in the US ) instead of Venofer ( Iron Sucrose ) . Iron sucrose takes far higher doses & has many more side effects than isomaltoside. Its expensive than Venofer but you only need to get it once .
wow thanks, this is good to know
I have to get iron infusions about every four months. I have heavy menstrual bleeding that causes me to have very low iron.. I bleed crazy heavily. I have tried birth control pills and now I do take this acid medicine while I'm on my period. I'm not sure if I can say it helps. The birth control pills didn't help either. Aftery infusion I do start to feel better within a week. I am tired of being tired from low iron. I try to take the iron pills but they make me feel sick when I do. I don't like it when one of my doctors say to me " it's a band-aid effect when you get the infusion" . I have tried the other things she told me to. This is out of my control that I bleed this way. And if this is what I have to do to feel better than so be it. I don't know anyone who has this problem like I do. So thank you for your video. Take care.
I have the same problem. And no gyn wants to do a hysterectomy without you first going through the steps to try to correct it. For me, nothing has helped and i now have fibroids causing more bleeding. My health journey has been a fight from day one. Good luck to you ❤
i’m anemic and i’m obsessed with eating ice,i get my infusion soon and i’m stressing, i hate needles and all them kinds of things so i. very stressed out.
me too, I was craving ice!
I am anemic. My doc gave me the pills. They are giving me extreme diarrhea. Dehydrating me. I am tired "EXTREMELY", freezing cold, my toes and fingers are tingling, sides of my lips are cracking. I feel as if I just want to die. Medical failure for me. For some reason I have always been pushed under a rug.
Thank you so much for sharing .Have never had an iron envision and now can see what it is all about for my upcoming appointment.
Thank you! I'm getting my first of 5 Infusions tomorrow. Iron level 4. EEKS! I'm nervous but excited and ready to feel "normal?" again.
Thank you so much for sharing your experience!! I am so nervous to do this , tho you made it not so scary ❤
I'm doing this on Tuesday and I am nervous, a few years ago they attempted to give me iron and it burned so badly that even I was crying and almost screaming for them to take it out, my hematologist says it won't hurt but I'm nervous.
Thank you for this video. I have severe low iron due to fibroids causing excessive bleeding and will be receiving these kind of treatments soon. I am facing a decision on whether to have a full hysterotomy or a fibroid treatment. There is some risk in the surgery due to location of one of them and they are both about 10cm large! I am horrified my female doctors did not say or do something earlier (fibroids first found in 2012). Now that I moved and have a male doctor, he was determined to get to the bottom of why my iron was low and I am so thankful. Scared out of my mind based on what I learned today so your video helped ease at least one part of my question, "what the heck does an iron infusion entail!" Thanks for all the tips and warnings about bringing things, how you'd feel, and also about the cost! I am a Canadian too. Thanks so much for this.
Same here! I started my first iron drip today. I have fibroids and I’m terrified because, I haven’t had kids yet. I have an appointment with my obgyn next week. My thoughts and prayers are with you❤️❤️
I’m anemic. I was getting b12 shots and taking iron capsules. The iron capsules had a side effect that I really didn’t like. So, I stopped taking them. I also stopped the b12 shots after having 3 all together of them. I was supposed to go last week and I blew it off. I told the doctor about stopping the iron and he never called me or said anything about it. Guess he doesn’t care. I hope you are feeling better soon.
Thank you for sharing your experience. I have to go for iron infusions very soon. This was very informative and helpful.
How did your iron infusions go?
Thank you for sharing your experience! I hope you are feeling better ❤
Hi! Do you know what was causing the iron deficiency? Thank you for sharing your story 💗
I have iron deficiency without anemia, it’s so wild and irritating. Only iron infusions raise my ferritin and saturation, and I have to do them multiple times a year. They make feel sick for a while after though.
As a woman who has severe anemia and pregnant right now did you ever have any vision problems aka like blind spots then a headache right after ? Because I’ve been having them recently and i think it’s from anemia but im not sure! Please lmk mama!
I'm scheduled tomorrow for my 1st infusion of iron, looking to feel some pep in my step and not as tired, I sit in a chair and doze off to sleep, not long but I'm not use to being so stil and dozing off. My hemoglobin and hct levels is 9.2 for the last 9months.
I have a bleeding hiatal hernia causing severe anemia. I had a blood transfusion and an iron infusion. I'm averaging about two hrs of sleep at night. My hemoglobin numbers are slowly going up. Having surgery in 2 weeks. Praying that I'll be able to sleep and breathe better. 🙏
I hope that you feel better soon - 12 weeks is a long time to wait! I've never had an infusion, but my iron is somewhat low. I better start taking those iron pills like the doctor told me to do!
Oh girl yes start taking those supplements!! I hope they work for you! Thanks for the well wishes!! I’m really hoping it won’t be a full 12 weeks until recovery!! I’m so impatient! 😬
Hope you have a wonderful weekend!! Xoxo 💜🥰💜
@@MirandaInCanada You too! ❤️
My iron sat was critical low 4!! My hgb was 6.6 had to get blood, 1 unit. Due to severe anemia. My first infusion made me sick. My 2nd infusion made have flu like symptoms, swollen lymph nodes, chills, lightheaded, headache , extreme nausea for about two days! Hysterectomy next week...hopin all this makes me feel better.
Are you fine now?
Did you also have fever?
Thank you for this video!!! I am 31 weeks pregnant and I have an iron infusion coming up next Monday, I have to get infusions once a week for 4 weeks….. I’ve always been anemic but my levels have dropped lower during pregnancy and iron pills aren’t bringing my hb levels up enough.
This video was so helpful to let me know what to expect and how to prepare myself to be as comfortable as possible for a few hrs of sittin still lol.
Same how did it go?
Ive had two blood transfusions and soon starting with 5 to 8 weeks of iron. Being a 46yr old male it's very rare. Hopefully the iron works since it's deadly.low.
Hey Mark, how are you feeling lately, hopefully better🙏
My doctor told me it was time to start iron infusions. I have 2 questions for the more experienced people.
Does it make you constipated like iron supplements?
How many iron infusions are generally necessary?
I had iron infusions when I was 36 weeks pregnant I had 4 of them a week apart and the great thing is I had zero constipation like the supplements cause I felt great within a week after the first infusion I was craving the smell of household cleaning supplies and recently it got worse so I found out I have to get iron infusions because my level is 8.7 and I have bad reactions to oral iron. Hope this helps you.
my iron was at 1, after taking supplement it only went up to 3 and is not changing so now i am scheduled to get infusion. i am so nervous.