6 Things That Make CFS Hard and EXACTLY What To Do
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- The most important video you need to watch in order to know the key challenges and things to do to move forwards with CFS Recovery. ENJOY.
You can grab a free download of chapters from my book, A Guide To Recovery: join.cfshealth...
Please reach out at any time if you have questions about CFS or want help with recovery: cfshealth.com/...
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Our program at CFS Health has been upgraded with further trainings and principles to further help our clients improve the quality of life. Let us help you recover to better health.
I’m Toby Morrison. As Founding Director of CFS Health and a CFS Specialist, I am eager to share my knowledge and experiences from dealing with Chronic Fatigue Syndrome myself.
We have helped 1000’s of people in over 43 countries, and we want you to be next.
Visit our site:
cfshealth.com/
More information about M.E/CFS
cfshealth.com/...
A Guide To Recovery:
join.cfshealth....
Online Program:
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"Get rid of the support groups that aren't supportive"- touche! I say this all the time. Those people drive me crazy! Why are people so negative? I know how hard it is, I'm there. But you won't recover if you don't believe. Stop downing other people's drive and belief!
This makes total sense. Thanku Thanku for this today. I'm at my breaking point and u have just sent me a lifeline .
Helen Fry hey Helen hang in there! Do these things and enjoy it! Toby
Hi, Helen. I'm catching up on old postings and read your reply from a year ago. I hope things are better for you now, if nothing more than acceptance of your dynamics and wisdom and grace toward others and their various limitations. ME/CFS helped me "join the human race". I was so judgemental! Now, I cut people some slack, and I'm thankful to my limitations for that! I hope you can spot something that is better for you than it was a year ago. Blessings (vigor and vitality and propensity for life and living) to you.
You make perfect sense. Thanks for being real. I’ve been sick since I was 17 years old and I’m now 60, I’ve learned alot of this information that you share, the hard way over the years, but I had settled on the belief that I can’t get better so I’ve just learned to live with it until just recently finding your channel. Now I believe there may actually be hope again. Can’t believe I’m learning something new after all these years. Much appreciation. Thanks 🙏
Doing all those little things have an accumulative positive effect. There really is No ‘little thing’ when your in this condition because Every ‘little thing’ is actually a big deal that contributes significantly to feeling better for that day.
Thinking of you Jayne! Me too.... started age 9, will turn 60 next year. 2 LOA's from work, eventual disability, divorce, loss of home, eventual loss of job, loss of friends, no assistance. But I agree with you... I came to accept that this was my life, but yet still pushing to create more mobility and stamina, and getting frustrated in the meantime... so maybe not full acceptance... lol! But another holistic practitioner finally convinced me that "less is more".... and that mindshift change has helped tremendously over the last year. So glad I stumbled on to Toby's channel yesterday. Plans to reevaluate, create my baseline, work on consistency. Best wishes and Blessings 🕉
@@mycreativeheart4159 It’s hard to wrap your head around doing less, but doing it consistently. Just have to force yourself to stop 🛑 before you cross that line!
It really works though !
Totally agree with all you have said. I have done this . Been there and come out the other side...Toby is a great bloke to get advice from..
You are pricelessly direct and practical. I've got ME/CFS dx, plus a basket full of specific auto-immune diseases and an inherited immune deficiency. Your approach applies to it all. Can't find a dr. or drs. who do much more than shrug and prescribe really potent drugs I don't tolerate. I feel like carrion birds have torn away hunks of my life, but I still have so many interests. Balancing them is tough. Being able to do enough of anything to complete anything. Biggest thing I need is to be able to get back to exercise to some significant degree. I was a total gym rat and cyclist. Success now is taking a walk w/out post-exercise or just post-activity malaise.Began 20 yrs. ago, but hit the really slick skids about 10 yrs ago. Keep up the good work and directness. You are spot on! Thank you.
God bless you Toby...awesome...I am on the healing road y feel so blessed...life is a gift💖💕
Hi Tobi, thanks a lot for your work and free help. I am from Germany and I enjoy reading what you are saying while you are talking. It helps me a lot to understand you under my bad conditions. It is what I am missing in this video. Without a written text I can‘t follow you. Just Listen to you is so worthily to get and keep a positive mindset. And inspiration. Best regards elke
Your channel is lifesaving thank you!
Hey, good morning
I totally agree, i recently decided to take control, i love writing and have started to pursue my passion, i put everything else aside, its awesome.
I am making small but active changes, your awesome.
Keep going, can you make a video on the skills that are supporting the process thoughts
Yes, it all makes sense! Good video! Thanks for posting. Wish my doctors would have understood these points- especially in the early years of the illness. I'm only now finding info via the Internet that finally makes sense to me!! Not one doctor has ever given useful information except to push sleeping or pain pills and tell me to just live with the condition. I fully agree with the multi faceted approach to wellness. I'll be watching more of your vids. Thanks again!
Toby - Thank you!!!! Yes, Isolation is my worst issue, beyond the symptoms. I AM truly stuck because I don't ever ask for help. Ever. And NO one offers. The last few minutes of the video was really helpful. I thrive on chores and planning, and that keeps me occupied so I don't feel so isolated. It's purposefulness that keeps me sane.
This so much sounds like me
Spot on as ever, thanks Toby!!!!
Fantastic Toby. So many gems 🙏🏾
Such a great video, thank you so much Toby!
I've had m.e for almost two years now. Right from the beginning I believed I would get better and I'm still positive about it but every time I do anything (housework, shower, short walk) I'm bed ridden for days or weeks. So my brain says yes and my body says no. So what else can you do if you have a positive outlook and you do believe you're going to get better ???
Caz X I feel the same way ....I crash so easily and can only do so much ...but even just moving a little forward is great ...I wish you the best in this recovery ...we can do it :)
How are you 2 doing now?
@@devilsadvocatetrolledition3183 unfortunately I’ve deteriorated quite a bit and get constant infections, fevers and flu symptoms. I’m bedridden most of the time and housebound the vast majority of the time. Thanks for asking
@@cazx3133 How are you now? I hope you get better.
yip my old goal that I am still working towards: getting a small hobby. thanks
Hi Toby, just watched this video, it all made sense and it's confirmed that I am doing the right things after listening to too much conflicting info for ages but am I expecting too much too soon or doing too much because I just feel i've been stuck in the same place for months now. What to do?
Anne Marshall maybe get some extra help from people who know the path you want to take
Sounds like depression
Trish Covich yeah . that's why we get told we are deppressed and sent home and we crash even harder and get sicker ....until one day you end up in emerg and they listen to you ..... it took me four years to be diagnosed and I got so sick by the end I was bed ridden and so weak and in so much pain I couldn't shower on my own.....I'd vomit and pass out from exertion and pain . Anywyas ...your right ...it does sound and look a lot like depression ....but if Drs would just listen to us when we say we are more stressed and frustrated and not depressed ...other then we feel down cuz we feel like we been beat with a baseball bat and can barely walk from weakness ...and have brain fog and short term memory loss. .....and we get sicker and sicker til we are bed ridden 24 hrs a day 7 days a week .....it's awful ...
This sort of depression is the result, not the cause, of ME/CFS. Living with some or all of the things he talks about, anyone would become depressed.
Nothing like plain depression
@@suzannethompson9261 depression does not make you bedridden, depression doesn't give you muscle twitching, depression you don't want to do anything, ME/CFS you do,but our bodies won't let us do anything.
This is not depression. With depression your mood is extremely low and you cannot move as a result. With CFS\ME your mood is normal and you want to move your body but you can't because your body is not able to produce energy. This is a physiological illness. It's is not psychological. People with CFS\ME can get depressed due to the limitations the illness is imposing on them, but this is a secondary effect of their physical symptoms and limitations I.e. it is not the source.
I feel like there's a lot of conflicting advice here..."stop watching videos on CFS" on a CFS video was a bit odd. "get out and enjoy the sunshine...if you can" well, I can't, and looking out my window isn't really a substitute, especially not with my view!
I like the message of positive thinking, and trying to create a supportive community, though. And I agree that the information overload is exhausting.
When you NEVER give up, you cannot fail. I've had CFS for 3 years now. I think it's the worst condition you can get, it's like an invisible, slow death. Keep pushing people. We all have ups and downs, and will continue to have this, until we're better. Believe you'll get better, NEVER give up. Thanks. Greig Scotland 🏴
You can still not give up and never recover.
That's so true that I desperately want my old life back. After 8 yrs. But I can do a little
Doing little jobs seem to help me. A little bit at a time. ( still not into socialising much). That takes up a lot of energy!
I have done all of this Toby. I worked some of it out myself .The resr with the help of my coach. Such good advice. And this work's.
I am in recovery. And will recover..
Thank's for your great vid's Toby
Now ive crashed. What a bloody roller coaster cfs is...I think i pushed to hard did too much too soon. Felt ok. Stopped pacing. Then crashed.....so I will rest and get back to where i was..Love the piss of to non supportive support groups..Iv'e already taught my endo and GP a lot...I don't put up with any crap. Here in the uk...Your advice is spot on. Only those who have had this illness truly understand...Love watching your vids..Really helps.xx
Sandra Wheeler thanks for the feedback :)
You make a lot of sense. Thanks! It’s just common sense heh? We usually don’t trust our own wisdom and common sense and we tend to turn to others for information and solutions. I am in a Fibro and CF flare up at the moment and I think I know how I got here again. I simply take on too much. I am too overly conscientious feeling too much responsibility and I also have a difficult relationship with my husband. He has his own issues and I feel for him but he is extremely moody and not always understanding and it definitely gets to me. And Yeah, I don’t ask others for help and I am usually the one that others come to for help and advice. So again, finding a balance. Flare ups usually come from being unreasonable with ourselves. So glad you have recovered and that you are now sharing your good tips with others. Thank you again!
Omg Toby, I am in the horrid crash phase 3 months after the Cov Vaxs bringing me undone, POTs is severe as is anxiety and fatigue….Im in tears watching this…..thankyou…..so true, it’s all so true 😓😓
Just noticed your video and thought I
would give it a listen.
I think I have had ME/CFS for about 6 years, but the whole time I thought it was stress. ( If knew my kids and grandkids, you would think that as well )
Found out I had ME/CFS from a joke I texted to one of my sons about being chronically fatigued.
Thought I would look up chronic fatigue. To my complete shock, I found info about ME/CFS and realized I had every symptom!!
Have been on antidepressants, phobic and anxiety meds for 27 years. Thyroid normal. Was an RN when young and have dealt with drs., including specialists who were idiots and even dangerous.
So I didn’t need a diagnosis - I ruled everything out that it could possibly be. So no doctor issues for me.
But I did have to research what on earth ME/CFS is. After doing that, I looked for hope and found one recovery story. That was so encouraging. To find out I could recover was what I needed to hear.
I followed this one guy’s advice who had completely recovered and made some changes. Diet, supplements, trying to get to bed earlier ( very tough as I have always been a night person, even as a mom ), Lumosity for Brain Fog, keeping exercise to a minimum and starting very slowly ( still having trouble assessing what I can and cannot do ).
I have a husband who has been my caregiver for all these years -we both knew something was wrong, just not what. I had been a lane swimmer, tap dancer, ice skater, did ballet and aqua aerobics. Couldn’t do anything anymore, including simple ADL’s.
I have found emotional stress to be huge for me, so I avoid many social events. That throws me back in bed with an aching body.
I just wish I had a proper program to follow to get back to some form of decent exercise. That is the most frustrating thing for me. I need guidance.
Thanks for all your info.
Don't mince words, Toby...say what you mean! Agree totally with support groups. Excellent video's and supportive comments. Keep up the good work.
I follow your Tutorials a lot Toby and I sincerely thank you for your continued Inspirational videos that help me on my personal journey to healing with Adrenal Fatigue.
Your words resonate through me and help me to keep the faith and focused on my healing journey 👍
21:00 you say that you dont even have cfs and in other interviews and videos you claime that you got cfs when you where 16. I like your vids and i really Think its Good content but why lie?
Johan Brundin I don’t have it anymore! I recovered :)