Nervous system dysregulation started with complex childhood trauma; not having co-regulation with a caregiver to establish a regulated nervous system, and then not having a safe parent to co-regulate with when I felt scared. Then you make adaptations to survive, further dysregulating my n/s, and it snowballs from there, turning into anxiety, panic disorder, and then when I had several high stress situations happening at the same time, I crashed and developed CFS/ME. Trauma therapy is the thing that finally made sense to me. SE Somatic Experiencing; Peter Levine’s work. He also has written books.
Honestly kind of weird to me that I’m just now seeing this video. Silke, I just want to thank you for helping me with my journey of healing from CFS. Your ASMR videos helped me out so much when I first started this process a couple years ago. I got out the US military about a year ago. I was in a special operations unit, and even with the usual stress of working in a setting like that I had the added stress of not truly fitting in there. After my first deployment I decided I just couldn’t do the infantry stuff anymore and quit my ‘cool guy’ job for an office job in the same unit. The dissonance between my souls yearnings and the duties of that job just became too much to cope with. When I quit my infantry role a lot of people took it personally and a some seemed to want to make my life hell after the fact so it wasn’t exactly a healthy work environment. The height of my battle with CFS was when my nervous system was just buzzing all day from being on edge. I would put on your ASMR videos to fall asleep every night. If I didn’t I just could not get out of my head. I eventually started learning about all of the techniques you were talking about in your videos which lead to picking up a meditation routine which has been huge. It’s like the ASMR videos you make were my training wheels to get to where I actually learned about down regulating my nervous system on my own haha. Ultimately though this is 98% lifestyle changes. I’ve had to let go of a ton of limiting beliefs, old behavior patterns, and friendships that weren’t serving me anymore, but the universe was just waiting for me to open the space in my life to allow new ones in. I’ve started looking back on my battle with CFS, and more and more I’m coming to the conclusion that CFS isn’t a ‘disorder’ or something wrong… it’s the human organism rejecting modern living. For whatever reason a lot of people in our generation just can’t seem to handle the expectations placed on us by society, and when we deny those urges for so long to ‘play by the rules’ it catches up to us eventually. I do think the up tick in CFS could have something to do with humanities evolution and returning to our roots. The way we’ve been operating as a species isn’t sustainable on any level - personally, societally, or ecologically - and my guess is that CFS is a physical/emotional/spiritual manifestation of that pattern of behavior. As much as I wouldn’t wish CFS on anyone it is very cool to me that the people who learn the ride the wave so to speak always come out on the other side truer to who they are, and more in alignment with the gifts they’re meant to give to the world. Anyways, there’s my novel. Thank you so much for being who you are. You are truly a permission slip for the rest of us to live more authentically, and more in alignment with our core values.
Thank you for this long, thoughtful response. Helpful for me as a man and as someone who works construction, used to be a whitewater guide and outdoor educator, and as someone who was always up for the challenge I wondered what was wrong with me when I see mostly women who suffer with cfs. My life is more like that of a single mother so I guess it makes some sense but your theory about modern life being incompatible with the way we have evolved makes a lot of sense. Thanks brother
Since CFS is caused by a virus it is impossible to reprogram your brain to get rid of the virus. . There are bunch of liars on TH-cam trying to push their brain retraining programs . They claim to have had CFS. It's bull.
I am just learning more about this ME/CFS Diagnosis as well as other Auto Immune diseases I have. I spent the last 3-4 years suffering and not understanding that my biggest hurdle was this as I was educating myself more on the auto immune stuff and managing that. I am also a single mom of 2 young boys and it’s been a struggle just to meet our basic needs. I hope you have fully healed and hope I can get there too. 💝
It’s interesting because when your video started and you described your symptoms I thought “I wonder if she’s done any nervous system work to heal!” I’m glad more people are starting to pay attention to it.
@@djolesentimonga2113 Look into Cfs Recovery, Alan Gordon, dr. Andrew Huberman, dr. Alex Korb neuroscientist, therapy in a nutshell, dr Caroline leaf I think that’s her name, and just by searching on TH-cam and google “how to regulate nervous system” “nervous system healing”. A lot of the work is going into a parasympathetic state. So do whatever relaxes you and brings you joy. So walks in nature, meditation, journaling, being more kind and compassionate with yourself, eft tapping, deep breathing, gentle exercise, prayer, doing an activity that you are able to currently do that you once loved: like photography or painting. If possible I recommend working with a mental health therapist, it’s really worth it once you find a great therapist. Also a psychologist that specializes in chronic pain, Cfs, somatic therapy, cbt, even better if they practice a bit more holistic. they can really help you work through any emotional stressors/limited beliefs/trauma/etc. because health outcome truly is based on biological, psychological, and social factors. Not just biological. Maybe your insurance covers seeing those professionals, hopefully they do. Also give your body the nutrients it needs. Do grounding exercises, mindfulness, and definitely don’t spend too much of your time on your phone, that’s also a stressor. Getting high quality sleep 7-9 hours of sleep, getting healthy sun exposure. Don’t listen to any stuff that’s negative, it will just drain you. Also starting a gratefulness practice, has been shown to have so many benefits with mood, life satisfaction, depression, anxiety, etc. also not believing every stupid thought that comes into our mind. Not every thought is true, accurate. So reframe the negative thoughts/fears into something more accurate and productive. A great resource is people who do brain retraining. So just search up brain retraining on IG or TH-cam
@@dalerobbins4072 anything that calms your nervous system down.... Meditation, gentle yoga, belly breathing, just sitting quietly in the fresh air, EFT tapping, art, playing the guitar... whatever that stops you being in Fight or Flight and puts you in Rest Digest....ie switch off stress
I was diagnosed with CFS in 2011. I worked a job that was very stressful for thirty plus years. Having watched documentaries on the subject, I am thankful that my symptoms are relatively mild compared to many others. I still have days when I sleep 15-17 hours at a time, but for the most part I can function on a day to day basis.
Oh my goodness! Since I got Covid twice, and my brother died, I have not recovered and everything you describe, especially looking for deficiencies that Doctors may have missed, sounds like my story. Physically nothing can be found! Thank you!!
If you're still suffering with no answers, get onto Medical medium info. He has his channel on youtube. His info works. His info has healed more people than any other healer/doctor I've seen or followed.
@@aglemonlover7709 I am still really unwell. I have better days than others, but unfortunately I seem to relapse if I have a few good days in a row and I exert myself a bit to get things done. It is truly insane how small my life has shrunk down to, it's a multi system breakdown. Thanks for asking, I'm truly hoping research will figure out how to fix this soon.
Wonderful to hear a recovery story, thanks for sharing and being vulnerable. For me, I've gone a lot of work on my mind especially lately, but the cause if my CFS was childhood cancer and ive suffered for 26 years with no change, in fact im in the worst crash I've ever been in. I've always had a good diet, I'm now GF and DF, I have insulin resistance as well.
@@rachelmoore5079 Do NOT suggest that to people. Especially someone whose had cancer! Red meat and eggs are carcinogenic, for gods sake! You should be suggesting a whole food plant based diet, which has many many studies proving how beneficial it is. The carnivore diet is not healthy or sustainable. No fruit, no vegetables. How tf is that healthy? It's not.
Thank you so much for sharing this! I’ve had POTS for 11 or 12 years now and the fatigue has been debilitating at times. I love Raelan’s channel too. It’s so empowering to hear the recovery stories and makes me very happy to hear yours 💕
Awe I'm sorry to hear that! Hopefully some of the things I mentioned in this video will help you out. Sending you lots of luck for your recovery ahead ❤️🥰🌸
This is awesome! Healing my nervous system was a big part of my recovery from Long Covid! There were other elements too, I had to heal my body first, and then I was left with CFS for two years. I just published my own recovery video too - it's great to share!
Thank you for sharing your story. I am currently feeling very frustrated because I have been in a major flare up of my CFS symptoms. I learned in 2022 about CFS being caused by a hypersensitive nervous system that's putting me into a freeze response - and I've been trying to calm my nervous system and respond well to symptoms, but I feel like I haven't made much progress at all in a year and a half. In fact I feel quite hopeless at the moment, like I don't even want to be alive if it means I feel like this all the time. It feels like I don't even have the energy to breathe properly. My life is passing me by and I spend most of the day in bed. I can't even clean out my disgusting fridge because I have no energy to do so. I am thinking that maybe what I need to try is somatic exercises to release trauma from my body. Lord knows I have had enough trauma in my life. Calming my nervous system hasn't seemed to work on my own. I will look into the trauma aspect, thank you.
Thats because you problaby have MEcfs and this women experienced chronic faltige, which can have a lot of causes. She most likely has some sort of burnout with Adrenalin fatigue. I make this assumption because 1. a neuroinflammatory disease cannot be cured by „Brain retraining“. Just as you cant heal HIV by „Brain retraining“ or cancer = if you heal your Symptoms by guided meditations and breathwork you do not have MECfS. Its really that simple. Sadly these Kind of people, who have mental issues, are often Diagnosed with mecfs because most mental conditions come Hand in Hand with fatigue, uninformed doctors are quick to Diagnose mecfs. Which is a seperate diagnosis to what this women was experiencing.
It's important to understand that these are all things that helped for her. There is no scientific proof for any of this. That doesn't mean it can't help to look into those things. But you have to be careful because more stress or activity can make your condition worsen. Personally, I have CFS ME and I fully recognise your struggle. There is also growing proof that deceases like CFS ME and long Covid have a biological basis. So it is not just a case of mindset.
I’ve been starting to follow you more as I gain insight in how to release trauma, invite more joy, and live life on my own terms. I appreciate your honesty and also all the effort you put in to sharing the experience. It’s been a tough giving permissions to have a self paced life. I’m currently exhausted and in college myself to initiate freedom to feel safe in my community, like really have a global community that allows this rebirth to come through.
Thank you so much for this video. It totally resonates with me. My first symptoms of CFS started in 2018 and my greatest wish is one day to also say "I consider myself as fully recovered". Just the thought of it brings tears to my eyes. You talk about creating a life that you want and enjoy and I´m fully with you. But I see it as a hen-and-egg problem or viscious circle - creating a life that I want promotes healing, but in order to create a life that I want (do the things I love) I need to be (more) healthy. For example for doing the job that I love and go to places that I enjoy, I need to be healthy first.
This really impacted me. I had glandular fever as a teenager and honestly have always felt sick and tired since then and I’m 32 now! Thanks for this video.
What an amazing vlog!!! You touched on SO many areas that are relavant to me. Especially loved the part about neuro plasticity, trauma and the nervous system. Your description of it was super helpful and also so many on point resources. I got my notebook 1/3 of the way in, lol. I just discovered you a few days ago but I’m subscribed & signing up for alerts. Honestly, I’m at a kind of low point and this was perfect! Thanks for sharing with us. You seem really kind too. ♡ Ps, Everything you said was on point, including about learning that some reactions, like feeling sleepy sometimes in the middle of the day, are normal! It’s like we forget that in our fear state.
@@aglemonlover7709I'm 85% recovered now. I have some gut and hormonal stuff I'm working through. Chronic gastritis,SIBO and Endometriosis But I'm very hopeful, another year I'll be 100%
Thank yoy so much for this vídeo, Silke. You have been an inspiration for me in my recovery from fibromyalgia and I'm at a similar place as you. I'm so happy that you are feeling better! Lots of love from Brazil.
It's so nice to see other people other be at a similar place to Silke, it really gives me hope for my future with CFS and fibro so thanks for sharing! 💛
I’m so happy for you that you’ve healed!! I’ve been watching your channel for a long time and have followed along with this journey of yours, and it’s so amazing that you’ve gotten to this place 💝💖 also, I found your channel shortly after I went vegan so you’ve been huge inspiration for me with that lifestyle shift too. at first, when you announced you weren’t fully plant based anymore, I will admit I was sad to read it.. but you truly tried to heal while still plant based, for so long, and I have massive respect for that. at the end of the day, we’re all just doing what we can & you’ve got to do what’s best for you ✨ wishing you even more growth and healing along your path, Silke! 💐🕊
Thank you very much for charing your story. I guess my Long COVID is related to my damaged nervus system as well. Bevor I catched the virus I had a stressy live and at that moment when I had corona, I acted very scary and fearful. And now Im hear, suffering with fatigue, sleeplessness, headach and tinnitus since 11 month. I hope one day I will recover as well. Its been a hell of a ride so far.
@@aglemonlover7709 a little bit better then on my first year, but still I have a long way to go. Still insomnia, ringing in the ears concentration problems and neurological fatigue. But I still believe that one day I gonna be better. I started for a few days a brain retraining program, see how it gonna help me. Thanks for asking.
That's such great news!!! 🤗🎉💕How exciting to be able to look forward to all sorts of plans with newly found energy! I'm really happy for you, it's amazing how trauma and stress can screw us up, creating suffering that's invisible to other people...very isolating as well. Grateful for resilience!! Well done you, amazing soul! Sending love your way! 💕😘🤸🧚💐
You spoke my heart, ❤️ It is all about life and people we have in them. I am suffering from one decade , extremely anxious person I feel I have become. Loved city life 20 years back, but now find it tough but need job :( Many a times I feel stuck in life …
Hi Silke! I haven't commented in a while, but have been here all along! I just want to say that I am BEYOND happy for you and I'm so proud of you for all the hard work, self reflection, commitment and thought that you put into your recovery journey. Even more than that, your honesty and humbleness in sharing your story with us. I teared up I was so happy for you. I really hope to see more of you on here - I've been struggling with my own mental health for the last few months and watching your videos has really helped, because it makes me feel like I'm coming home. I relate to SO much of what you share. And on a side note, your friendship with Vanessa looks so magical. I really hope that I will be able to meet you someday to thank you for all that you've done and are doing with me. Your videos, mean the world to me. I hope you are staying safe, happy and well. Thank you again for sharing your amazingly inspiring story. I learned a lot from this. Sending you all my love from Lizzie in Ottawa, Canada :) xx
Omg, I knew you looked familiar; I watch your Reiki videos on your other channel lol I didn't know you also had CFS, I was just looking up videos to help me recover and stumbled across this one. Thanks for all you do; you're a blessing, helping me and so many others in many ways 🙏🏼✨️😊
Thank you for sharing vulnerably and authentically Silke! I am so happy that you get to go out and enjoy all those things you haven’t been able to do in a long time 😊.
Thank you for sharing your story and journey. It’s really important that more people learn about nervous system recovery for CFS and related illnesses.
Very helpful and inspiring video. Thank you for sharing your experience and your journey, and I'm thrilled for you that you have healed. High five! There's so many aspects to this condition, that's what makes it tricky. We all have our own unique path and journey. We are all wired in a different and unique way, so yes! There's no magic pill, specific diet and linear path to this; just like life is not linear. We constantly change, evolve and grow. Much love. 🦋 🌷
@Silke 🙋🏻♀️ please share the link or name of the breath work video ? Or what are your recommendations around which breath work or type you found helpful?
Thanks so much for sharing, this is a really helpful video! I'll be sharing it in some ME/CFS Recovery groups. Btw I can't see the link to your breathwork/forgiveness video.
how are you able to afford the life you have now? Do you have a job outside of youtube? I'm so so so sooo glad you've healed from CFS!! !I'm so happy for you!
Did you ever feel chronically dehydrated? I think that's a big issue for me too, which affects directly my nervous system. But an ANS dysfunction and over-reaction is definitely the main thing for me too. Thanks for the video.
I actually see it come on after taking antibiotics, even natural ones, and things like tylonol. So I don think it's just fight or flight or that all of our bodies are fine, mine clearly doesn't seem to be processing chemicals fine at all
I agree and totally get what's she's saying and also know that there are physical deficiencies, and things functioning incorrectly from what I've learned from Dr. Teitelbaum, we must hit every level, mental, physical, emotional, spiritual, snd and even finicial.
Exactly my experience and conclusions too. Im still healing, but know its just a matter of time until fully healed, now that I can see the whole picture, and most importantly see it in myself. Glad to see someone explaining it in this way and emphasizing the mental/emotional/spiritual component. I feel like it is at the heart of so many illnesses. Best wishes 🧡🌈
The resting can make things worse because laying wrong can affect the cervical spine. If the cervical spine becomes misaligned and starts pushing nerves and spinal canal, brain stem it can affect the body’s ability to recover because those regulate recovery, nutrient usage and rebuilding processes
The neck spine especially near the head needs to be in good condition for good muscle performance and strength. Injuries there and injuries to the nerves can trigger fight or flight symptoms.
How did the curable app helped you? Did it just help with pain since the focus of the app is on it or do you think it has also an universal approach against any chronic illnes which is triggered by an overdominating parasympathic system/ irregulated autonomous nervous system like cfs? I would like to give it a chance but the emphasis of it seems just on pain but there should be brain retraining elements to be also useful for cfs/ ptsd? Thanks alot for your video by the way. You gave me more the focus to work on the psychological sides. :)
Thanks for sharing your experience and your recovery process ! That’s gives so much hope, Nevertheless I don’t think that working on nervous system could be enough for everyone to heal. Even if I totally agree with the fact that permanent stress and trauma are a main factors in CFS.
Right, I've seen chemiclas, exposures. Medication, suppliments and even foods cause or bring on CFS. Not just stress. But physical stress so the body isn't "fine"
Aloha, i found you from your reiki asmr for throat, i am currently out for 3 days clearing out literally in my throat and felt called to your main channel. I am also a splenic projector who wants to live in a jungle and have a lil farm n home lol thank u for sharing this
Hi!, I wanted to ask a few things because I appreciated this video but am also a little confused about some things...(also, it's hard to show expression through typing but this is NOT meant to be offensive!!)...so you mentioned that once you started living your life more in alignment with what you wanted to do, you felt better? Did you not like being a yoga instructor?, and what did you do for work with your job that you felt was more you? Also what pushed you to make the decision to make a big move with CFS (I guess as someone who also has bouts of it, moving hasn't seemed like a good idea because it can be really stressful, both times I've moved with CFS before things got worse). And am a little unclear about what specifically you did after the breathwork class to continue to recover. Will for sure listen to that podcast and get that book, thank you and glad you recovered!
I can totally tell you have so much more energy! You seem to be talking a bit faster! Quick question - did you feel like the pandemic had an effect on your energy?
About 30 seconds before you mentioned Human Design I was curious if you were a non-energy type! I’m a Projector too and that recognition been life changing for me. I’m so glad you’re feeling better! Thank you for sharing your journey!
All the breathe work and self realizing exercises are fantastic and can only improve ones health however we biologically function well or not and that's primary. Imo. I've struggled with this condition and I'm of the mind that we are experiencing malnutrition and toxic burden. A doctors test saying you are not nutrient deficient is worthless. The standard for a healthy diet and nutrition baseline is grossly inadequate. Thank you for sharing your story we never know what will be of service to another
I find these and similar stories frustrating " and then i released my trauma " as if it were that easy.? Ive been trying to release trapped trauma for years without success. Would that i could go to one breathwork session , and bingo!! Out it comes.
If you been feeling good for a few weeks, you haven't fully recovered. Less than 5% of people with ME-CFS fully recover. I have had ME-CFS for over 20 years and I can tell you that it comes and goes. I just went nearly 3 years in remission and it came back worse than ever less than 2 months ago and it's touch and go now, with the fatigue basically keeping me from doing anything. I don't mean to be negative, just being honest.
Thank you for sharing your experience. I too have had ME/CFS for about 20 years, diagnosed 7 years ago. I have thought I was better a few times but it always came back, and even worse. I would appreciate it if you could share what it was that made it come back for you after 3 years in remission. Did you push yourself too hard?
Please read the Bible and and pray to God to give you strength to endure this awful illness. Iv been battling for nearly 6 years,tryed everything. Currently having a relapse which is so so awful. Housebound after being able to get out most days for a while. I have histamine intolerance aswell hives swellings,itching when I eat. My thoughts where always so negative because of everything I have lost during this illness. I'm working on that and being more positive,loving, wanting to heal to help people. It is a complex illness. Working on so much,resentment isolation so many things. Turn to God to help you with this.
Not sure for her but try any yogic breathing. Patrick McKeown has some of the best breathing videos and got me thru cvid 2x. Also Michael Sealy hypnosis videos. He has loyal subbs for a reason. Not to overwhelm you but also look up Sukie Baxter for the poly vagal and somatic breathing. As Dr Gabor Mate says disease (dysfunction) isn’t an entity in us it’s a process. This and not identifying with or using my DX unless I have to was a life changer. Hope any of this helps. Peace and health. 😊
@@jmc8076 Yes, I’m trained in trauma informed practice and have Vedic yoga experience, so this is all in my knowledge already. Thanks for sharing though. 💕
Nervous system dysregulation started with complex childhood trauma; not having co-regulation with a caregiver to establish a regulated nervous system, and then not having a safe parent to co-regulate with when I felt scared. Then you make adaptations to survive, further dysregulating my n/s, and it snowballs from there, turning into anxiety, panic disorder, and then when I had several high stress situations happening at the same time, I crashed and developed CFS/ME. Trauma therapy is the thing that finally made sense to me. SE Somatic Experiencing; Peter Levine’s work. He also has written books.
Have the same ..
@@mgn1621 did You heal brainfog ?
Could have written that myself wow
@@mgn1621 i got same ..have Cptsd and lonlienessfeelings how to heal ? How do You feel now
Honestly kind of weird to me that I’m just now seeing this video.
Silke, I just want to thank you for helping me with my journey of healing from CFS. Your ASMR videos helped me out so much when I first started this process a couple years ago.
I got out the US military about a year ago. I was in a special operations unit, and even with the usual stress of working in a setting like that I had the added stress of not truly fitting in there. After my first deployment I decided I just couldn’t do the infantry stuff anymore and quit my ‘cool guy’ job for an office job in the same unit. The dissonance between my souls yearnings and the duties of that job just became too much to cope with. When I quit my infantry role a lot of people took it personally and a some seemed to want to make my life hell after the fact so it wasn’t exactly a healthy work environment.
The height of my battle with CFS was when my nervous system was just buzzing all day from being on edge. I would put on your ASMR videos to fall asleep every night. If I didn’t I just could not get out of my head.
I eventually started learning about all of the techniques you were talking about in your videos which lead to picking up a meditation routine which has been huge. It’s like the ASMR videos you make were my training wheels to get to where I actually learned about down regulating my nervous system on my own haha.
Ultimately though this is 98% lifestyle changes. I’ve had to let go of a ton of limiting beliefs, old behavior patterns, and friendships that weren’t serving me anymore, but the universe was just waiting for me to open the space in my life to allow new ones in.
I’ve started looking back on my battle with CFS, and more and more I’m coming to the conclusion that CFS isn’t a ‘disorder’ or something wrong… it’s the human organism rejecting modern living. For whatever reason a lot of people in our generation just can’t seem to handle the expectations placed on us by society, and when we deny those urges for so long to ‘play by the rules’ it catches up to us eventually. I do think the up tick in CFS could have something to do with humanities evolution and returning to our roots. The way we’ve been operating as a species isn’t sustainable on any level - personally, societally, or ecologically - and my guess is that CFS is a physical/emotional/spiritual manifestation of that pattern of behavior.
As much as I wouldn’t wish CFS on anyone it is very cool to me that the people who learn the ride the wave so to speak always come out on the other side truer to who they are, and more in alignment with the gifts they’re meant to give to the world.
Anyways, there’s my novel. Thank you so much for being who you are. You are truly a permission slip for the rest of us to live more authentically, and more in alignment with our core values.
Thank you for this long, thoughtful response. Helpful for me as a man and as someone who works construction, used to be a whitewater guide and outdoor educator, and as someone who was always up for the challenge I wondered what was wrong with me when I see mostly women who suffer with cfs. My life is more like that of a single mother so I guess it makes some sense but your theory about modern life being incompatible with the way we have evolved makes a lot of sense. Thanks brother
i appreciate you so much. healing from this as a single mom of two toddler boys. we can do it!!!
God bless you💗
How are you doing now?💕
I am also a mum of twin toddlers & struggling every day with this illness I hope & pray it gets easier 🙏🏻 an update would be great
Since CFS is caused by a virus it is impossible to reprogram your brain to get rid of the virus. . There are bunch of liars on TH-cam trying to push their brain retraining programs . They claim to have had CFS. It's bull.
I am just learning more about this ME/CFS Diagnosis as well as other Auto Immune diseases I have. I spent the last 3-4 years suffering and not understanding that my biggest hurdle was this as I was educating myself more on the auto immune stuff and managing that. I am also a single mom of 2 young boys and it’s been a struggle just to meet our basic needs. I hope you have fully healed and hope I can get there too. 💝
It’s interesting because when your video started and you described your symptoms I thought “I wonder if she’s done any nervous system work to heal!” I’m glad more people are starting to pay attention to it.
Hi Monica,
Do you know where I can find nervous system resources. Whats the best/most used?
Thank you very much
@@djolesentimonga2113 Look into Cfs Recovery, Alan Gordon, dr. Andrew Huberman, dr. Alex Korb neuroscientist, therapy in a nutshell, dr Caroline leaf I think that’s her name, and just by searching on TH-cam and google “how to regulate nervous system” “nervous system healing”. A lot of the work is going into a parasympathetic state. So do whatever relaxes you and brings you joy. So walks in nature, meditation, journaling, being more kind and compassionate with yourself, eft tapping, deep breathing, gentle exercise, prayer, doing an activity that you are able to currently do that you once loved: like photography or painting. If possible I recommend working with a mental health therapist, it’s really worth it once you find a great therapist. Also a psychologist that specializes in chronic pain, Cfs, somatic therapy, cbt, even better if they practice a bit more holistic. they can really help you work through any emotional stressors/limited beliefs/trauma/etc. because health outcome truly is based on biological, psychological, and social factors. Not just biological. Maybe your insurance covers seeing those professionals, hopefully they do. Also give your body the nutrients it needs. Do grounding exercises, mindfulness, and definitely don’t spend too much of your time on your phone, that’s also a stressor. Getting high quality sleep 7-9 hours of sleep, getting healthy sun exposure. Don’t listen to any stuff that’s negative, it will just drain you. Also starting a gratefulness practice, has been shown to have so many benefits with mood, life satisfaction, depression, anxiety, etc. also not believing every stupid thought that comes into our mind. Not every thought is true, accurate. So reframe the negative thoughts/fears into something more accurate and productive. A great resource is people who do brain retraining. So just search up brain retraining on IG or TH-cam
@@djolesentimonga2113 look into FasterEFT
What is nervous system work
@@dalerobbins4072 anything that calms your nervous system down.... Meditation, gentle yoga, belly breathing, just sitting quietly in the fresh air, EFT tapping, art, playing the guitar... whatever that stops you being in Fight or Flight and puts you in Rest Digest....ie switch off stress
I was diagnosed with CFS in 2011. I worked a job that was very stressful for thirty plus years. Having watched documentaries on the subject, I am thankful that my symptoms are relatively mild compared to many others. I still have days when I sleep 15-17 hours at a time, but for the most part I can function on a day to day basis.
Oh my goodness! Since I got Covid twice, and my brother died, I have not recovered and everything you describe, especially looking for deficiencies that Doctors may have missed, sounds like my story. Physically nothing can be found! Thank you!!
Look into a parasite detox and grape fasts
If you're still suffering with no answers, get onto Medical medium info. He has his channel on youtube. His info works. His info has healed more people than any other healer/doctor I've seen or followed.
How are you now?
How are you doing now?💕
@@aglemonlover7709 I am still really unwell. I have better days than others, but unfortunately I seem to relapse if I have a few good days in a row and I exert myself a bit to get things done. It is truly insane how small my life has shrunk down to, it's a multi system breakdown. Thanks for asking, I'm truly hoping research will figure out how to fix this soon.
I’ve had CFS since 2016. This video gives me sooooo much hope!! Thank you so much for sharing your story 🥰
Wonderful to hear a recovery story, thanks for sharing and being vulnerable. For me, I've gone a lot of work on my mind especially lately, but the cause if my CFS was childhood cancer and ive suffered for 26 years with no change, in fact im in the worst crash I've ever been in. I've always had a good diet, I'm now GF and DF, I have insulin resistance as well.
Diebetes causes fatigue anyway had CFS 27 years fybromyalgia 6 see Dr Sarah myhill
Try carnivore diet
@@rachelmoore5079 Do NOT suggest that to people. Especially someone whose had cancer! Red meat and eggs are carcinogenic, for gods sake!
You should be suggesting a whole food plant based diet, which has many many studies proving how beneficial it is. The carnivore diet is not healthy or sustainable. No fruit, no vegetables. How tf is that healthy? It's not.
Thank you so much for sharing this! I’ve had POTS for 11 or 12 years now and the fatigue has been debilitating at times. I love Raelan’s channel too. It’s so empowering to hear the recovery stories and makes me very happy to hear yours 💕
I've been in a massive flare up with my CFS for well over a year now so I'm so excited to watch this!!! 💛💛💛
Awe I'm sorry to hear that! Hopefully some of the things I mentioned in this video will help you out. Sending you lots of luck for your recovery ahead ❤️🥰🌸
Flares for any dysfunction of our body can be so long can’t they? Hope your doing better. Peace and health.
How are you doing now?💕
This is awesome! Healing my nervous system was a big part of my recovery from Long Covid! There were other elements too, I had to heal my body first, and then I was left with CFS for two years. I just published my own recovery video too - it's great to share!
Thank you for sharing your story. I am currently feeling very frustrated because I have been in a major flare up of my CFS symptoms. I learned in 2022 about CFS being caused by a hypersensitive nervous system that's putting me into a freeze response - and I've been trying to calm my nervous system and respond well to symptoms, but I feel like I haven't made much progress at all in a year and a half. In fact I feel quite hopeless at the moment, like I don't even want to be alive if it means I feel like this all the time. It feels like I don't even have the energy to breathe properly. My life is passing me by and I spend most of the day in bed. I can't even clean out my disgusting fridge because I have no energy to do so. I am thinking that maybe what I need to try is somatic exercises to release trauma from my body. Lord knows I have had enough trauma in my life. Calming my nervous system hasn't seemed to work on my own. I will look into the trauma aspect, thank you.
What's helped me with that aspect is a book called "Letting Go" By David Hawkins. See if that helps.
Thats because you problaby have MEcfs and this women experienced chronic faltige, which can have a lot of causes. She most likely has some sort of burnout with Adrenalin fatigue. I make this assumption because 1. a neuroinflammatory disease cannot be cured by „Brain retraining“. Just as you cant heal HIV by „Brain retraining“ or cancer = if you heal your Symptoms by guided meditations and breathwork you do not have MECfS. Its really that simple. Sadly these Kind of people, who have mental issues, are often Diagnosed with mecfs because most mental conditions come Hand in Hand with fatigue, uninformed doctors are quick to Diagnose mecfs. Which is a seperate diagnosis to what this women was experiencing.
@@maries8802literally stfu you have no idea what you’re even talking about
It's important to understand that these are all things that helped for her. There is no scientific proof for any of this. That doesn't mean it can't help to look into those things. But you have to be careful because more stress or activity can make your condition worsen. Personally, I have CFS ME and I fully recognise your struggle. There is also growing proof that deceases like CFS ME and long Covid have a biological basis. So it is not just a case of mindset.
I’ve been starting to follow you more as I gain insight in how to release trauma, invite more joy, and live life on my own terms. I appreciate your honesty and also all the effort you put in to sharing the experience. It’s been a tough giving permissions to have a self paced life. I’m currently exhausted and in college myself to initiate freedom to feel safe in my community, like really have a global community that allows this rebirth to come through.
Thank you so much for this video. It totally resonates with me. My first symptoms of CFS started in 2018 and my greatest wish is one day to also say "I consider myself as fully recovered". Just the thought of it brings tears to my eyes.
You talk about creating a life that you want and enjoy and I´m fully with you. But I see it as a hen-and-egg problem or viscious circle - creating a life that I want promotes healing, but in order to create a life that I want (do the things I love) I need to be (more) healthy. For example for doing the job that I love and go to places that I enjoy, I need to be healthy first.
How are you doing now?💕
Thats fantastic! Its true, chronic stress for whatever reason is devastating. I think I need to read that book.
This really impacted me. I had glandular fever as a teenager and honestly have always felt sick and tired since then and I’m 32 now! Thanks for this video.
How are you doing now?💕
You have virus. Read medical medium books. You can heal
Amazing recovery story. Chronic stress is definitely the main issue!
What an amazing vlog!!! You touched on SO many areas that are relavant to me. Especially loved the part about neuro plasticity, trauma and the nervous system. Your description of it was super helpful and also so many on point resources. I got my notebook 1/3 of the way in, lol. I just discovered you a few days ago but I’m subscribed & signing up for alerts. Honestly, I’m at a kind of low point and this was perfect! Thanks for sharing with us. You seem really kind too. ♡
Ps, Everything you said was on point, including about learning that some reactions, like feeling sleepy sometimes in the middle of the day, are normal! It’s like we forget that in our fear state.
It's a cloudy day here but every time I click one of your videos the sun bursts out ☀️ so happy you have overcome this chapter of your life 💗
Omg I’m so happy for you. I cried reading this 😭
I really hope I’m next ❤️
Me too 🥲 it’s my dream ! I’m sick since July 2021 and I struggle so much 😪
How are you doing now?💕
@@ChamStoryHow are you doing now?💕
@@aglemonlover7709I'm 85% recovered now. I have some gut and hormonal stuff I'm working through.
Chronic gastritis,SIBO and Endometriosis
But I'm very hopeful, another year I'll be 100%
Thank yoy so much for this vídeo, Silke. You have been an inspiration for me in my recovery from fibromyalgia and I'm at a similar place as you. I'm so happy that you are feeling better! Lots of love from Brazil.
It's so nice to see other people other be at a similar place to Silke, it really gives me hope for my future with CFS and fibro so thanks for sharing! 💛
I’m so happy for you that you’ve healed!! I’ve been watching your channel for a long time and have followed along with this journey of yours, and it’s so amazing that you’ve gotten to this place 💝💖
also, I found your channel shortly after I went vegan so you’ve been huge inspiration for me with that lifestyle shift too. at first, when you announced you weren’t fully plant based anymore, I will admit I was sad to read it.. but you truly tried to heal while still plant based, for so long, and I have massive respect for that. at the end of the day, we’re all just doing what we can & you’ve got to do what’s best for you ✨ wishing you even more growth and healing along your path, Silke! 💐🕊
Another resource is That Healing Feeling. Faith is amazing and her pdcast is amazing So happy for you. xox
Thank you for sharing your tips. I'm currently dealing with CFS and this video opened my eyes to so many factors causing this illness. 🙏💗
How are you doing now?💕
Thank you very much for charing your story. I guess my Long COVID is related to my damaged nervus system as well. Bevor I catched the virus I had a stressy live and at that moment when I had corona, I acted very scary and fearful. And now Im hear, suffering with fatigue, sleeplessness, headach and tinnitus since 11 month. I hope one day I will recover as well. Its been a hell of a ride so far.
How are you doing now?💕
@@aglemonlover7709 a little bit better then on my first year, but still I have a long way to go. Still insomnia, ringing in the ears concentration problems and neurological fatigue. But I still believe that one day I gonna be better. I started for a few days a brain retraining program, see how it gonna help me.
Thanks for asking.
@@germanside7890I struggle with a lot of the same things, we can do this, I wish you the best on your recovery!
@@germanside7890how was the plan, how are you now?
@@lronlance6366 Definitely better then one year ago, but still a long way to go.
That's such great news!!! 🤗🎉💕How exciting to be able to look forward to all sorts of plans with newly found energy! I'm really happy for you, it's amazing how trauma and stress can screw us up, creating suffering that's invisible to other people...very isolating as well. Grateful for resilience!! Well done you, amazing soul! Sending love your way! 💕😘🤸🧚💐
Hope your recovery continues in Ibiza and beyond
Thank you so much Caroline! 🥰🌸❤️
You spoke my heart, ❤️ It is all about life and people we have in them.
I am suffering from one decade , extremely anxious person I feel I have become.
Loved city life 20 years back, but now find it tough but need job :(
Many a times I feel stuck in life …
Love this vid and the honesty!!! Can you do a what i eat in a day, inc fish and eggs? or what i eat in a week??
What is the breath work you did? I didn’t see a link in the comments. I was feeling hopeless today but this video really gave me some hope. Thank you.
Thank you so much for sharing about this incredibly important topic ❤
Hi Silke! I haven't commented in a while, but have been here all along! I just want to say that I am BEYOND happy for you and I'm so proud of you for all the hard work, self reflection, commitment and thought that you put into your recovery journey. Even more than that, your honesty and humbleness in sharing your story with us. I teared up I was so happy for you. I really hope to see more of you on here - I've been struggling with my own mental health for the last few months and watching your videos has really helped, because it makes me feel like I'm coming home. I relate to SO much of what you share. And on a side note, your friendship with Vanessa looks so magical. I really hope that I will be able to meet you someday to thank you for all that you've done and are doing with me. Your videos, mean the world to me. I hope you are staying safe, happy and well. Thank you again for sharing your amazingly inspiring story. I learned a lot from this. Sending you all my love from Lizzie in Ottawa, Canada :) xx
I couldn’t find the link for the breath workshop can someone share?
Omg, I knew you looked familiar; I watch your Reiki videos on your other channel lol I didn't know you also had CFS, I was just looking up videos to help me recover and stumbled across this one. Thanks for all you do; you're a blessing, helping me and so many others in many ways 🙏🏼✨️😊
Thank you for sharing vulnerably and authentically Silke! I am so happy that you get to go out and enjoy all those things you haven’t been able to do in a long time 😊.
I wish you could talk more about the breath work workshop
Thank you for sharing your story and journey. It’s really important that more people learn about nervous system recovery for CFS and related illnesses.
did you have any problems with POTS as well?
Prayers for continued healing in Jesus' name.
Very helpful and inspiring video. Thank you for sharing your experience and your journey, and I'm thrilled for you that you have healed. High five!
There's so many aspects to this condition, that's what makes it tricky. We all have our own unique path and journey. We are all wired in a different and unique way, so yes! There's no magic pill, specific diet and linear path to this; just like life is not linear. We constantly change, evolve and grow. Much love. 🦋 🌷
So true about rest. I rest to get through, but it doesn’t solve the problem because I have to recover after any major tasks.
Thank you for sharing your journey! You sparkle!
@Silke 🙋🏻♀️ please share the link or name of the breath work video ? Or what are your recommendations around which breath work or type you found helpful?
Congratulations!!! Thank you for sharing! I love your positivity! It is inspiring to me!❤
Thanks so much for sharing, this is a really helpful video! I'll be sharing it in some ME/CFS Recovery groups. Btw I can't see the link to your breathwork/forgiveness video.
Hello Silke, I am also from Belgium! Thank you for sharing this video, it's inspiring.
I really needed this. Everything you’ve said I relate to and inspires me
how are you able to afford the life you have now? Do you have a job outside of youtube? I'm so so so sooo glad you've healed from CFS!! !I'm so happy for you!
Should have called this video “ how I manage my CFS “.
You go girl! I am so happy for you :)
Very interesting.. and beautifully honest.. looks like your in a fab place.. so happy for you Silke.. lots of love x
🙏 In stead of “happy new year”, I would like to say “ happy new life” . If this makes sense to you 🙏
Did you ever feel chronically dehydrated? I think that's a big issue for me too, which affects directly my nervous system. But an ANS dysfunction and over-reaction is definitely the main thing for me too. Thanks for the video.
Thank you so much for sharing your story ❤️ lots of blessings and love from Holland 😘💕💕
I actually see it come on after taking antibiotics, even natural ones, and things like tylonol. So I don think it's just fight or flight or that all of our bodies are fine, mine clearly doesn't seem to be processing chemicals fine at all
I agree and totally get what's she's saying and also know that there are physical deficiencies, and things functioning incorrectly from what I've learned from Dr. Teitelbaum, we must hit every level, mental, physical, emotional, spiritual, snd and even finicial.
I love you so much. Period. ❤ PROUD
Thank you for sharing your story. You are such a strong and amazing person. ♥☺
Congrats on your recovery!!!
Very happy to know you recovered! Do you have tips for fibromyalgia?
Exactly my experience and conclusions too. Im still healing, but know its just a matter of time until fully healed, now that I can see the whole picture, and most importantly see it in myself.
Glad to see someone explaining it in this way and emphasizing the mental/emotional/spiritual component.
I feel like it is at the heart of so many illnesses.
Best wishes
🧡🌈
How are you doing now?💕
❤ thanks for doing this! This helps
Can you put the link to video on breath.
The resting can make things worse because laying wrong can affect the cervical spine. If the cervical spine becomes misaligned and starts pushing nerves and spinal canal, brain stem it can affect the body’s ability to recover because those regulate recovery, nutrient usage and rebuilding processes
The neck spine especially near the head needs to be in good condition for good muscle performance and strength. Injuries there and injuries to the nerves can trigger fight or flight symptoms.
How did the curable app helped you? Did it just help with pain since the focus of the app is on it or do you think it has also an universal approach against any chronic illnes which is triggered by an overdominating parasympathic system/ irregulated autonomous nervous system like cfs?
I would like to give it a chance but the emphasis of it seems just on pain but there should be brain retraining elements to be also useful for cfs/ ptsd? Thanks alot for your video by the way. You gave me more the focus to work on the psychological sides. :)
What did you do to relax your nervous system and change your mindset on a daily basis?
Thanks for sharing your experience and your recovery process ! That’s gives so much hope, Nevertheless I don’t think that working on nervous system could be enough for everyone to heal. Even if I totally agree with the fact that permanent stress and trauma are a main factors in CFS.
Right, I've seen chemiclas, exposures. Medication, suppliments and even foods cause or bring on CFS. Not just stress. But physical stress so the body isn't "fine"
Thank you for sharing. This really helped❤
Aloha, i found you from your reiki asmr for throat, i am currently out for 3 days clearing out literally in my throat and felt called to your main channel. I am also a splenic projector who wants to live in a jungle and have a lil farm n home lol thank u for sharing this
I have horrendous symptoms keep thinking theres something else wrong to feel this bad
THANK YOU SILKE 💚
Hi!, I wanted to ask a few things because I appreciated this video but am also a little confused about some things...(also, it's hard to show expression through typing but this is NOT meant to be offensive!!)...so you mentioned that once you started living your life more in alignment with what you wanted to do, you felt better? Did you not like being a yoga instructor?, and what did you do for work with your job that you felt was more you? Also what pushed you to make the decision to make a big move with CFS (I guess as someone who also has bouts of it, moving hasn't seemed like a good idea because it can be really stressful, both times I've moved with CFS before things got worse). And am a little unclear about what specifically you did after the breathwork class to continue to recover. Will for sure listen to that podcast and get that book, thank you and glad you recovered!
Can you please share link for the breathwork that helped you
I can totally tell you have so much more energy! You seem to be talking a bit faster! Quick question - did you feel like the pandemic had an effect on your energy?
I am so happy for you💕
About 30 seconds before you mentioned Human Design I was curious if you were a non-energy type! I’m a Projector too and that recognition been life changing for me. I’m so glad you’re feeling better! Thank you for sharing your journey!
thank you so much this explains everything
Thank you and well done on your recovery. Please shy away from official stats. Re recovery!
All the breathe work and self realizing exercises are fantastic and can only improve ones health however we biologically function well or not and that's primary. Imo. I've struggled with this condition and I'm of the mind that we are experiencing malnutrition and toxic burden. A doctors test saying you are not nutrient deficient is worthless. The standard for a healthy diet and nutrition baseline is grossly inadequate. Thank you for sharing your story we never know what will be of service to another
Hi from Germany!!🧡🙌i am.completely bedridden caused by lyme over 6 years now and cant treat.because i am very very sensitive. I am so Desperate
Love this
I find these and similar stories frustrating " and then i released my trauma " as if it were that easy.? Ive been trying to release trapped trauma for years without success. Would that i could go to one breathwork session , and bingo!! Out it comes.
I definitely have c.f need to hear this
Loved this! Did you find reiki to be of any help with this too?
Hi, love your vids. How long did it take you from getting off being bedridden to cooking your own meal and going for a little walk? Thanks
can anybody describe the exact steps tha she followed because i have absolutely no strength to hear the whole stuff. Thanks in advance
Can i ask over what period did you get to your new baseline? I just need to know at what pace we should be moving at ,thank you xx
Did you heal in london or when in ibiza?
If you been feeling good for a few weeks, you haven't fully recovered. Less than 5% of people with ME-CFS fully recover. I have had ME-CFS for over 20 years and I can tell you that it comes and goes. I just went nearly 3 years in remission and it came back worse than ever less than 2 months ago and it's touch and go now, with the fatigue basically keeping me from doing anything. I don't mean to be negative, just being honest.
Thank you for sharing your experience. I too have had ME/CFS for about 20 years, diagnosed 7 years ago. I have thought I was better a few times but it always came back, and even worse. I would appreciate it if you could share what it was that made it come back for you after 3 years in remission. Did you push yourself too hard?
Thank you for this video.
Waauw ❤️
Please read the Bible and and pray to God to give you strength to endure this awful illness. Iv been battling for nearly 6 years,tryed everything. Currently having a relapse which is so so awful. Housebound after being able to get out most days for a while. I have histamine intolerance aswell hives swellings,itching when I eat. My thoughts where always so negative because of everything I have lost during this illness. I'm working on that and being more positive,loving, wanting to heal to help people. It is a complex illness. Working on so much,resentment isolation so many things. Turn to God to help you with this.
No
You did it, without changing the nutrition?😊
What’s the name of the breath method?
Not sure for her but try any yogic breathing. Patrick McKeown has some of the best breathing videos and got me thru cvid 2x. Also Michael Sealy hypnosis videos. He has loyal subbs for a reason. Not to overwhelm you but also look up Sukie Baxter for the poly vagal and somatic breathing. As Dr Gabor Mate says disease (dysfunction) isn’t an entity in us it’s a process. This and not identifying with or using my DX unless I have to was a life changer. Hope any of this helps. Peace and health. 😊
@@jmc8076 Yes, I’m trained in trauma informed practice and have Vedic yoga experience, so this is all in my knowledge already. Thanks for sharing though. 💕
Have lonlienessfeelings and Cptsd my body tell me more and more with symptoms
How to now ?! I been co depentand since child i dont now how to live ?!
Hiii would love to see an update video!
Did u had palpatation at night or u had pots
Hy my name is anila I am suffering in cfs from 4 years please tell me about your supliment please reply
Medical medium Anthony William . Read his books. TH-cam him. U can heal
MTHFR Methylation issues can cause so many illnesses
What were some of your daily acitivies for healing ?
Have you been tested for Lyme ?