Time stamps 0:00 - Introduction: Number One Strategy for Recovery Overwhelm 0:16 - Challenges in ME/CFS, Fibromyalgia, and Related Illnesses 0:51 - The Mistake: Searching for More Problems Online (Dr. Google) 1:38 - Overwhelm from Desperation: How It Affects Recovery 2:16 - The Importance of Stopping the Search 3:02 - Shifting Focus: Basics for Self-Care in Recovery 4:25 - Story of Michelle: Overcoming Severe Pain and Fatigue 7:01 - Health-Focused Approach: The Shift That Leads to Recovery 9:57 - Physiological Improvements from a Health Focus 11:23 - Simplifying Recovery: Avoiding Complexity in ME/CFS 12:09 - Body Wisdom: Learning What to Do and When to Do It 12:47 - Conclusion: Focus on Body Wisdom for Recovery
Hey, I had been mentally good but I can’t eat any solid food anymore. I can’t even drink protein shake nor blended food anymore. What can I do? I’m am only drinking water and veggie juice now.
@@elainestewart8191 but you know how they are ignorant and don’t know what to do. I had been doing good thing, I gave so many ppl advice to how to get through mental health, I help animals . I get zero $ from it but sometime I just wanna be good to ppl. But this cfs TH-camrs will never wanna give you even one tip of comment unless I throw them $8000. Yea it’s business but if they truly care it’s not big deal just give one tip of advice? I asked cfs health too and all they said if watch free course like I already done that. Believe me no one really wanna help you. They just wanna make money. Like if you can actually reply message to sell all the stuff then just fucking tell me what I should do. I stay really positive for last 2 years of mostly bed ridden, I try to take all those tips from YT aply to it. Not everyone can afford $8000 when we already spend so much money. This guy just wanna take his time back he missed that’s why he keep parting . I really lost hope in humanity.
I opened my computer this morning to doom scroll. Which I do every morning through this 15 day debilitating crash. I happened to look at my emails first and clicked this on. The video could not have been more timely. I will take my doom scrolling/Dr. Google off my to do list and now focus on recover, positivity & refocusing my thoughts. Thank you for this encouragement!
For me Toby it’s shredding the old me, grieving knowing I can’t have that life back but most importantly knowing that there is a solution after 20 years of no help that there is a cure and a way forward 😊
Hi Toby...I did this a couple of days ago and that's exactly what happened...I had a terrible day that would have been avoided if I had stopped...thank you for all your support...listening to you and the stories really does help with mindset and is helping me to make changes ❤
Yes, I know, just good common sense, but that escapes us sometimes. Over the last week or so, I've been organising a simple routine for everything simple but necessary, and I am really noticed the difference. Many thanks for your advice, your'e a real lifesaver.
This is brilliant John! Well done! Yes common sense isn’t that common either. - Toby! Ps - reach out to my team if you need any further help with your recovery - info@cfshealth.com
Great advice! I had ME, with PEM and all, for years. Then got a severe case of Covid, and slowly recovered mostly after that. But along with it years of lifestyle changes, removing toxic food and people, and investigating emotional issues I had. I have also invested some time into research of autism, and I’m now pretty sure autism could have been a part of the whole. Autism is NOT what we are taught, autists can seem 100% normal like anyone else, because of masking, may need time alone, struggle with brainfog and fatigue, can get long term fagigue as well. Basically a whole lot of overlap. Same with cPTSD. The diagnosis doesn’t really matter since the same health-focus is needed, but I really think a mental shift is needed for a lot of people.
You sound like me, I'm also ASD and I'm here due to struggling from 2 difficult bouts of covid.. it affected my POTS and nervous system badly.. I hope you're doing well 😊
@@tanyawieczorek6603my anxiety has skyrocketed and I think this was part of the ME-fatigue for me, that I didn’t recognize my own emotions well. Btw I got better after Covid, I think it may have been because I didn’t ear for around ten days or so. Or, it could have been Covid itself that changed something in my brain. It was pretty intense at least.. anyway if you haven’t tried fasting, I’d look into that, as if you feel very much better during fasting it could be something to do with metabolism. I like my asd, but oh so strugglesome as well. But the cfs/ME parts can be treated. PEM can come back, but who knows what is what!
Hi Toby…..what you say so resonates with me. But, like so many others in this position, it’s a personality trait to not be able to leave well enough alone and go with the flow…..we have to try to fix ourselves. Thankfully, I am learning my lessons, I know I have to rest when the inevitable happens and I overdo things, so I am getting better at looking after myself. Thanks for your videos.
Oh my goodness Toby! I've been living down the Proff Google rabbit hole! 🕳️🐰 No wonder I've been getting sicker. To the point that it takes me all day to find the strength to get up and dressed 😮 I've been so weak and overwhelmed and I've unsubscribed from the emails that were positive and could help because I couldn't keep up with them, including yours (sorry!). I can't even think properly sometimes. Mmm, time to change, no 🤔 I am so grateful for you and the information and reassurance you provide 😊
Absolutely! 💯 as always Toby Morrison. In the early days of CFS I spent a lot of time googling my symptoms, and guess what, it didn't help me! Since listening to your videos over the last 3 years, I have made improvements!!! Thank you for the reminder to just relax and let the bad days pass. It does get better! Thank you Toby and Team 🩵
What about 7 years after trying most things... I still get PEM, insomnia, aches pains brainfog. Trying brain retraining and trying to convince myself im well! Trusting God as my healer. This is such a hard trial to go through.
@@johnpeck6144 God bless you, never give up. I am a born again Christian who trusts God in my suffering as the Bible says we will suffer. It's a fallen world and sickness exists. I had a traumatic birth with my son and a bacterial infection the whole time I was pregnant then on antibiotics the whole pregnancy. I was never the same after that. Iv gone from severe M.E could barely walk had slurred speech. Needed a mobility scooter. To now functioning well some days days. I have improved so much but still having a terrible effect on my life. I'm in bed now unable to get out after yet another night of sleep disturbances. Exhausted. I do believe the answer is found in mind body, working on our emotions, doing things we love, getting out in nature. Self compassion, gratefulness. Trying not to get depressed saying to ourselves this too will pass. Setting goals for the future like I am learning how to drive. Taking me two years but I don't care, people don't understand what I go through with brain fog insomnia so learning is difficult for me. We need to turn to God for wisdom how to find out way out of this illness and the lessons God has allowed us to learn.
It sounds like effort isn’t the issue. It’s the method that seems to be the problem. Having an appropriate movement program is so crucial for PEM not to occur. This is why we believe in having a multi faceted approach and comprehensive plan for recovery. You can do all the Brian retraining techniques til the cows come home but if your level of activity exceeds your capacity, the push/crash cycle will continue to happen and you will continue to experience PEM. For context we have a 12 level restorative movement progression plan for all levels of severity to ensure our clients do what’s appropriate and build up to higher levels which then enables them to live their life to the fullest without payback. If you’d like a proper compressive plan for the entirety of your recovery send an email to my team at info@cfshealth.Com - Toby
@@Wds__99 you sound like a nasty piece of work. Iv commented on various sites always giving people hope and to never give up. Iv experienced respite from my symptoms and felt normal on occasions but then went downhill. I know I can heal.
My biggest takeaway was to stop doing whatever you can to turn away from (avoid) your symptoms and instead choose to do things which can move you forward in your health. I wish I could articulate it better...
There’s a lot. But googling which I tend to do a lot of is not helpful and actually contributes to a state of overwhelm. Also shifting the focus from symptoms. I tend to constantly focus on my symptoms and how intolerable they are. Shifting the focus to doing basic things to take care of yourself. I like the example of self compassion you gave. I tend to cycle through negative thinking like what’s wrong with me? Why am I so fatigued?
Thanks we need to know what can help us fatigue is unreal at times doctors dont give a shit about us been to many of them same crap no help at all from them they say you are just fine its bullshit please help us thanks
Yup we call that the medical dessert! A very lonely, frustrating place to be. Start with our free trainings on our website, there’s a bunch you can download in the description area on this video 😊
Yes joint pain is a common symptom of CFS. However it goes away as you get healthier and better. As you get healthier and stronger, your Symptoms start to subside. Hope this helps. - Toby
@@CFSHealth Thanks for the answer Toby. It's that my joint pain subsided for a while but now it came back and I fear it's arthritis or some other kind of autoimmune disease. My joints also do loud cracking noises and I didn't had all of this before ME/CFS, I was 100% healthy.
Time stamps
0:00 - Introduction: Number One Strategy for Recovery Overwhelm
0:16 - Challenges in ME/CFS, Fibromyalgia, and Related Illnesses
0:51 - The Mistake: Searching for More Problems Online (Dr. Google)
1:38 - Overwhelm from Desperation: How It Affects Recovery
2:16 - The Importance of Stopping the Search
3:02 - Shifting Focus: Basics for Self-Care in Recovery
4:25 - Story of Michelle: Overcoming Severe Pain and Fatigue
7:01 - Health-Focused Approach: The Shift That Leads to Recovery
9:57 - Physiological Improvements from a Health Focus
11:23 - Simplifying Recovery: Avoiding Complexity in ME/CFS
12:09 - Body Wisdom: Learning What to Do and When to Do It
12:47 - Conclusion: Focus on Body Wisdom for Recovery
❤
Hey, I had been mentally good but I can’t eat any solid food anymore. I can’t even drink protein shake nor blended food anymore. What can I do? I’m am only drinking water and veggie juice now.
@@onyxkoso sorry to hear that. My heart goes out to you. Maybe at this point you need some medical input 💔
@@onyxkoso sorry to hear that. My heart goes out to you. Maybe seek some medical input 💔
@@elainestewart8191 but you know how they are ignorant and don’t know what to do. I had been doing good thing, I gave so many ppl advice to how to get through mental health, I help animals . I get zero $ from it but sometime I just wanna be good to ppl.
But this cfs TH-camrs will never wanna give you even one tip of comment unless I throw them $8000.
Yea it’s business but if they truly care it’s not big deal just give one tip of advice? I asked cfs health too and all they said if watch free course like I already done that. Believe me no one really wanna help you. They just wanna make money. Like if you can actually reply message to sell all the stuff then just fucking tell me what I should do. I stay really positive for last 2 years of mostly bed ridden, I try to take all those tips from YT aply to it. Not everyone can afford $8000 when we already spend so much money. This guy just wanna take his time back he missed that’s why he keep parting . I really lost hope in humanity.
I opened my computer this morning to doom scroll. Which I do every morning through this 15 day debilitating crash. I happened to look at my emails first and clicked this on. The video could not have been more timely. I will take my doom scrolling/Dr. Google off my to do list and now focus on recover, positivity & refocusing my thoughts. Thank you for this encouragement!
How are you doing now?
For me Toby it’s shredding the old me, grieving knowing I can’t have that life back but most importantly knowing that there is a solution after 20 years of no help that there is a cure and a way forward 😊
My take away was the reminder to look at what I can do and not focus on what I can't do. Thanks Toby and Team!
That’s a great start!! Then it’s about progressing from there 👍🏽 - Toby
Hi Toby...I did this a couple of days ago and that's exactly what happened...I had a terrible day that would have been avoided if I had stopped...thank you for all your support...listening to you and the stories really does help with mindset and is helping me to make changes ❤
Glad you found it helpful!
Yes, I know, just good common sense, but that escapes us sometimes. Over the last week or so, I've been organising a simple routine for everything simple but necessary, and I am really noticed the difference. Many thanks for your advice, your'e a real lifesaver.
This is brilliant John! Well done!
Yes common sense isn’t that common either. - Toby!
Ps - reach out to my team if you need any further help with your recovery - info@cfshealth.com
Great advice! I had ME, with PEM and all, for years. Then got a severe case of Covid, and slowly recovered mostly after that. But along with it years of lifestyle changes, removing toxic food and people, and investigating emotional issues I had. I have also invested some time into research of autism, and I’m now pretty sure autism could have been a part of the whole. Autism is NOT what we are taught, autists can seem 100% normal like anyone else, because of masking, may need time alone, struggle with brainfog and fatigue, can get long term fagigue as well. Basically a whole lot of overlap. Same with cPTSD. The diagnosis doesn’t really matter since the same health-focus is needed, but I really think a mental shift is needed for a lot of people.
You sound like me, I'm also ASD and I'm here due to struggling from 2 difficult bouts of covid.. it affected my POTS and nervous system badly.. I hope you're doing well 😊
@@tanyawieczorek6603my anxiety has skyrocketed and I think this was part of the ME-fatigue for me, that I didn’t recognize my own emotions well. Btw I got better after Covid, I think it may have been because I didn’t ear for around ten days or so. Or, it could have been Covid itself that changed something in my brain. It was pretty intense at least.. anyway if you haven’t tried fasting, I’d look into that, as if you feel very much better during fasting it could be something to do with metabolism. I like my asd, but oh so strugglesome as well. But the cfs/ME parts can be treated. PEM can come back, but who knows what is what!
@@tanyawieczorek6603not doing too well honestly, but hanging in there! You? I may not see the answer btw.
Hi Toby…..what you say so resonates with me. But, like so many others in this position, it’s a personality trait to not be able to leave well enough alone and go with the flow…..we have to try to fix ourselves. Thankfully, I am learning my lessons, I know I have to rest when the inevitable happens and I overdo things, so I am getting better at looking after myself. Thanks for your videos.
You are on your way! Well done and I am glad the videos are helping! -Toby
"when people stop searching outside of themselves" - yepp!
Yep it certainly helps!
Oh my goodness Toby! I've been living down the Proff Google rabbit hole! 🕳️🐰 No wonder I've been getting sicker. To the point that it takes me all day to find the strength to get up and dressed 😮
I've been so weak and overwhelmed and I've unsubscribed from the emails that were positive and could help because I couldn't keep up with them, including yours (sorry!). I can't even think properly sometimes.
Mmm, time to change, no 🤔 I am so grateful for you and the information and reassurance you provide 😊
Same. Well put.
Excellent advice and support, as always.
Thanks again! Toby
Biggest takeaway: listen to what my body needs in this moment
👏🏼👏🏼
Absolutely! 💯 as always Toby Morrison.
In the early days of CFS I spent a lot of time googling my symptoms, and guess what, it didn't help me!
Since listening to your videos over the last 3 years, I have made improvements!!!
Thank you for the reminder to just relax and let the bad days pass. It does get better! Thank you Toby and Team 🩵
This is such good advice. Thank you for your videos. ❤
My pleasure Sally! What was your biggest takeaway for you in this video?
Needed to hear this!!!!!🎉Such a relief.
Glad it was helpful!
What about 7 years after trying most things... I still get PEM, insomnia, aches pains brainfog. Trying brain retraining and trying to convince myself im well! Trusting God as my healer. This is such a hard trial to go through.
I know what you mean ME induced Insomnia hits me every day now, hope you can get some relief with your symptoms
@@johnpeck6144 God bless you, never give up. I am a born again Christian who trusts God in my suffering as the Bible says we will suffer. It's a fallen world and sickness exists. I had a traumatic birth with my son and a bacterial infection the whole time I was pregnant then on antibiotics the whole pregnancy. I was never the same after that. Iv gone from severe M.E could barely walk had slurred speech. Needed a mobility scooter. To now functioning well some days days. I have improved so much but still having a terrible effect on my life. I'm in bed now unable to get out after yet another night of sleep disturbances. Exhausted. I do believe the answer is found in mind body, working on our emotions, doing things we love, getting out in nature. Self compassion, gratefulness. Trying not to get depressed saying to ourselves this too will pass. Setting goals for the future like I am learning how to drive. Taking me two years but I don't care, people don't understand what I go through with brain fog insomnia so learning is difficult for me. We need to turn to God for wisdom how to find out way out of this illness and the lessons God has allowed us to learn.
7 years? Thanks for triggering everyone. Well done. I’ve been suffering 30 and it got way worse after 7 years. Doesn’t that feel great to read?
It sounds like effort isn’t the issue. It’s the method that seems to be the problem. Having an appropriate movement program is so crucial for PEM not to occur. This is why we believe in having a multi faceted approach and comprehensive plan for recovery. You can do all the Brian retraining techniques til the cows come home but if your level of activity exceeds your capacity, the push/crash cycle will continue to happen and you will continue to experience PEM.
For context we have a 12 level restorative movement progression plan for all levels of severity to ensure our clients do what’s appropriate and build up to higher levels which then enables them to live their life to the fullest without payback.
If you’d like a proper compressive plan for the entirety of your recovery send an email to my team at info@cfshealth.Com - Toby
@@Wds__99 you sound like a nasty piece of work. Iv commented on various sites always giving people hope and to never give up. Iv experienced respite from my symptoms and felt normal on occasions but then went downhill. I know I can heal.
Spot on!
Glad it resonated!
just what I needed to hear today. Thank you Toby
You are so welcome
Best take away was “complexity needs simplicity.”
My biggest takeaway was to stop doing whatever you can to turn away from (avoid) your symptoms and instead choose to do things which can move you forward in your health. I wish I could articulate it better...
You articulated that perfectly! Thanks for sharing!
Ah I do this all the time. Dr Google. I’ve added research as a skill on my resume lol
Haha at least you have a sense of honour about it! What was your biggest takeaway from this video Tracey for you?
There’s a lot. But googling which I tend to do a lot of is not helpful and actually contributes to a state of overwhelm. Also shifting the focus from symptoms. I tend to constantly focus on my symptoms and how intolerable they are. Shifting the focus to doing basic things to take care of yourself. I like the example of self compassion you gave. I tend to cycle through negative thinking like what’s wrong with me? Why am I so fatigued?
@@traceychapman4825great awareness. All of this (stopping it) and having a health focused approach will benefit you majorly. Toby
Thanks we need to know what can help us fatigue is unreal at times doctors dont give a shit about us been to many of them same crap no help at all from them they say you are just fine its bullshit please help us thanks
Yup we call that the medical dessert! A very lonely, frustrating place to be. Start with our free trainings on our website, there’s a bunch you can download in the description area on this video 😊
What I hear…. “ you’ve got CFS/ME…THERES NOTHING we can do.”
@@CFSHealth❤
Thankyou Toby….So wonderful……
You're welcome:)
This is how so many people with ME/CFS aren't treating their undiagnosed POTS etc.
Question for Toby. Do you had joint pain when you were sick? Have you seen it in your patients?
Yes joint pain is a common symptom of CFS. However it goes away as you get healthier and better. As you get healthier and stronger, your Symptoms start to subside. Hope this helps. - Toby
@@CFSHealth Thanks for the answer Toby. It's that my joint pain subsided for a while but now it came back and I fear it's arthritis or some other kind of autoimmune disease. My joints also do loud cracking noises and I didn't had all of this before ME/CFS, I was 100% healthy.
How do I get in touch so you can help me ?
Send an email to my team at info@cfshealth.com and we can organise a recovery plan call for you and discuss best options for you!
I feel sick every day 😔
Know it can get better as you start to get better! Please utilise this channel! So many helpful videos on here to help kickstart your recovery!