What's it really like to have Chronic Fatigue Syndrome

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  • เผยแพร่เมื่อ 15 ส.ค. 2020
  • Whenever you are ready, here are a few ways in which we can help you.
    1. Read case studies from people, just like you, who used the Recovery Program to better their health and regain their quality of life- cfshealth.com/casestudy
    2. Watch the Free Baseline Training- If you need to learn how to stop pushing and crashing and get a proper Baseline watch this- cfshealth.com/baseline
    3. Watch the On-Demand Recovery Webinar - Learn the 3 key mistakes that hold people back in their recovery and learn what to do instead- jcfshealth.com/ondemand
    4. If you are ready to bite the bullet and just want to get personalised help with a personalised plan... email us back on info@cfshealth.com with the word "Recovery" and we will send you some details.
    --
    Our program at CFS Health has been upgraded with further trainings and principles to further help our clients improve the quality of life. Let us help you recover to better health.
    I’m Toby Morrison. As Founding Director of CFS Health and a CFS Specialist, I am eager to share my knowledge and experiences from dealing with Chronic Fatigue Syndrome myself.
    We have helped 1000’s of people in over 43 countries, and we want you to be next.
    Visit our site:
    cfshealth.com/
    More information about M.E/CFS:
    cfshealth.com/blog/
    A Guide To Recovery:
    join.cfshealth.com/book-download
    Online Program:
    cfshealth.com/online-recovery...

ความคิดเห็น • 163

  • @sophiebaby4102
    @sophiebaby4102 ปีที่แล้ว +5

    After searching online for information regarding my recent diagnosis I haven’t come across any one else who’s explained this illness in a way I can relate too 100% thank you so much for the clarity, creating awareness & explaining this illness in a way that speaks for so many of us.

    • @CFSHealth
      @CFSHealth  ปีที่แล้ว

      You’re so welcome Sophie! Head to our website to get our free trainings to help you practically everyday! www.cfshealth.com

  • @kinnaert
    @kinnaert 2 ปีที่แล้ว +9

    so painful and annoying when people close to you tell you nonsense like think positive, or directly or indirectly tell you it's just in your head, or just do this or that, or don't respect what you found is helping and they're upset you're not doing what they think will help, like you don't have the energy to follow all sorts of different ideas

  • @darlenealy
    @darlenealy 2 ปีที่แล้ว +21

    Yes, you actually get it. It seems rare to have someone actually know how you feel. Everyone thinks you are making it up and just being lazy. I'm actually tired of being tired 😫 . Thank you for this!!!!!

  • @leadwithjim
    @leadwithjim 2 ปีที่แล้ว +10

    I was recently dignosed with Chronic Fatigue. For years, doctors had told me I was crazy and others said I was making things up. Then there were several who wanted to put me on mental health drugs because they believed I was unable to see reality. Then I met a doctor, who is amazing, and now everything makes sense. This was after 20 years of waiting for answers.

    • @riseandshine11
      @riseandshine11 ปีที่แล้ว +2

      Bless your heart!!! I'm happy that you found someone who listen.

  • @mikecb39
    @mikecb39 3 ปีที่แล้ว +15

    Half the problem is managing the illness. Unfortunately for me the other half has been dealing with the complete lack of compassion from others including health care professionals, friends and even my own family.

    • @galaxygal1746
      @galaxygal1746 2 ปีที่แล้ว +3

      Totally agree. Its a lonely illness.

  • @keiracossette1
    @keiracossette1 3 ปีที่แล้ว +30

    I am 31 years old and have been suffering from this illness for 15 years now. Still don't have help or a doctor that knows what to do to help me so am still suffering... wouldn't wish this illness on my worst enemy

    • @hannahjohnson7238
      @hannahjohnson7238 2 ปีที่แล้ว +2

      15 years how have you kept yourself going im struggling and its only been a year its really hard

    • @skyedawson6492
      @skyedawson6492 2 ปีที่แล้ว +5

      15 years now. I have no support, or friends, family. Totally alone. Always feel suicidal. As I've now got Fibromyalgia and mental illness. Don't fall for anyone who tells you that diet or exercise helps. It does not. It makes it worse plus diet changes creates good sensitivities and severe IBS. Life is not worth living

    • @keiracossette1
      @keiracossette1 2 ปีที่แล้ว +2

      @@hannahjohnson7238 I think that my natural optimistic nature has been one of the biggest reasons I'm still here. Now it's my son. I live for him

    • @kellysmith-may6889
      @kellysmith-may6889 2 ปีที่แล้ว +2

      @@skyedawson6492 I feel you! 6 months of absolutely suicidal thoughts,so fatigued, severe insomnia,brain fog! I've had enough..all after covid!

    • @hightidelowtide6380
      @hightidelowtide6380 2 ปีที่แล้ว +1

      I have this too. Don't feel bad, there's no real cure or treatment anyways. I have been given low dose Abilify .1mg to take twice a week from the Cfs clinic.

  • @beepbopboop7727
    @beepbopboop7727 3 ปีที่แล้ว +41

    Shame is a big one for me. But only when other people make me feel that way.

    • @angelatrebor8681
      @angelatrebor8681 3 ปีที่แล้ว +1

      ❤😢

    • @skinscapetattoo
      @skinscapetattoo ปีที่แล้ว

      The shame is huge. I was always a child that down played or hid my injuries and illness. My sister was a sickly child and very needy, so my position was to be the one that was fine. Diagnosed in 2019 with ME after a 3 month bout of various consecutive viral infections and long term craniocervical pain and immobility. The hardest part has been my family’s unwillingness to engage or enquire how this effects me, any attempt on my part is met with stoney judgmental silence, eventually my Mum messaged that she thought I had been misdiagnosed with ME and rather had bipolar personality disorder for which I can take pills. I can’t tell you how much this hurt me, made me feel invalidated and invisible, but it did explain their baffling silent responses. If you view my condition as a mental illness then you would not want to engage with it for fear of pandering to a neurosis and exacerbating it. It has tragically altered my relationship with my 94 year old mother. I did ask my Mum to read the section for advise and info for family members on one of the national Me/Cfs websites but she responded that she didn’t need to as she knows about ME. Even writing this response fills me with guilt, shame and anger in case anyone thinks I’m just making things up to get sympathy🥴

  • @sandi6818
    @sandi6818 3 ปีที่แล้ว +30

    I’m going through this. It’s been so difficult. Ended up going through a 16 yr divorce bc my ex husband didn’t understand. This is such a misunderstood condition. How did you get better? It’s hard bc I look very healthy. I wish drs could feel what I feel, then they would start understanding. And yes, very type A driven person.

    • @imapersonnotanumber8940
      @imapersonnotanumber8940 2 ปีที่แล้ว +2

      took me years to get better, managed to get off work for few years, sold my house, had tons of rest, and gentle exercise, and meditation. ( tho little of the meditation). tried acupuncture once, god that must have relieved the stress, went into zombie state for 2 days, but I started to feel better after....plus quit my stressful 50 hr week job...

    • @Truerealism747
      @Truerealism747 ปีที่แล้ว

      @@imapersonnotanumber8940 did you have much pain

  • @tulipvalley111
    @tulipvalley111 2 ปีที่แล้ว +5

    Wow spot on!! I expertise regularly...I love fruits vegetables...get 7-8 hrs of sleep and even a nap at times...and STILL feel like I’m dying

  • @kazz.c1234
    @kazz.c1234 3 ปีที่แล้ว +29

    Thank you so much for this it's brought tears to my eyes that somebody understands what I'm feeling.. I will show this to my husband tomorrow..

    • @dorehoss5008
      @dorehoss5008 3 ปีที่แล้ว +2

      How are you doing? I just started to look at this too and it is so me.

  • @joshwhitney7463
    @joshwhitney7463 3 ปีที่แล้ว +7

    I have severe CFS . I started pumping liquid cortisol via a medtronic insulin pump which recreates your circadian rhythm /cortisol curve. CFS is HP axis dysfunction. Our brains can no longer tell our endocrine glands to do there job. Cortisol pump almost completely returns you to a normal life . Hormones are crucial for cognitive ability . I'm living a great life again.

    • @terrycurtin1008
      @terrycurtin1008 3 ปีที่แล้ว +4

      Did your regular doc give you this? My docs just shrugged me off. I have been to 3 different docs. Sleep disorder doc. Neurological docs. Nothing. I inject testosterone. Nothing. I am so close to giving up. Life sucks.

  • @sssttt2211
    @sssttt2211 2 ปีที่แล้ว +4

    I had / have CFS on/off for 37 years... It kicks in with more stress and exertion, and busy life style.

  • @danielpalacios9626
    @danielpalacios9626 3 ปีที่แล้ว +23

    Looking at the microbiome, all those symptoms come from malnutrition, there may be some digestive enzymes that had gone and even if you try to eat healthy, you can’t absorb all nutrients, vitamins, minerals from these foods.
    A theory in place is that we lose certain strains of good bacteria in charge of getting these nutrients many times because of bad diet, antibiotics, a virus, etc.
    It’s very similar to fibromyalgia or fluoroquinolone toxicity symptoms, pleas e take a look at this and if you could do a research on this topic

    • @kaykayyyyymwaa
      @kaykayyyyymwaa 2 ปีที่แล้ว

      Exactly. I had my full bladder removed 21 years ago and I was never told I needed to take digestive enzymes like bike salts. I'm just finding out now.

  • @lovingatlanta
    @lovingatlanta 2 ปีที่แล้ว +5

    👍True true true. 😭🙏I’m so glad I found this video. I was diagnosed many years ago as a result of chemo. I ignored it because I thought I would bounce back to my regular normal self…like before cancer. I pushed the diagnosis away to the point where I ignored it. I just didn’t want people to know I didn’t feel well. The guilt, shame & worry and all of those things you mentioned etc. I thought I was the only one with those emotions dealing with CFS. I just didn’t want to be someone who was unwell all of the time. I was talking with a doctor friend saying I just didn’t feel well etc etc and she said “did you forget you are dealing with CFS?” I can no longer live in denial. It is what it is. 😫💝

  • @CFSHealth
    @CFSHealth  3 ปีที่แล้ว +28

    Please share with friends and family members so they can understand you! Be compassionate to each other. Try to leave judgement at the door and be there for each other! ❤️

    • @hitzoneproductions7858
      @hitzoneproductions7858 3 ปีที่แล้ว +2

      Thank you so much. You have no idea how much this helps. I'm in tears. Ty.

    • @imapersonnotanumber8940
      @imapersonnotanumber8940 2 ปีที่แล้ว

      but why should you have to get people to understand a genuine illness. do you have to explain other illnesses. when you bring judgement into it, where does it come from? yourselves? or are just bringing judgement into it? this is patronizing.

    • @maiqueashworth
      @maiqueashworth 2 ปีที่แล้ว

      Another amazing video. Thank you so much.

  • @Scoobydoo187
    @Scoobydoo187 ปีที่แล้ว +1

    It took me a year to get an diagnosis, today is a bad day, I'm exhausted. I was active, but now just doing Laundry and others chores is more than overwhelming. Getting up in the morning is more than enough. I have good and bad days. I have the joint pain. I feel like I have a severe flu but it's constant. I feel for others who have it worse than I.

  • @davidspeck8659
    @davidspeck8659 3 ปีที่แล้ว +5

    Tired and wired best describes it. Never can relax. I can go to the gym and walk pretty far but it wipes me out. Hard to sleep at night. I never feel rested.

    • @CFSHealth
      @CFSHealth  3 ปีที่แล้ว

      Hey David,
      It's hard but you have to try and level out and find the sweet spot! Find what works for you and stick at it long enough to see change! Reach out if you need more help at www.cfshealth.com

  • @GeeklingNo1
    @GeeklingNo1 3 ปีที่แล้ว +5

    Before CFS I was on the honor roll at my Com College, Social media coordinator for my student government. I was planning events, playing DnD between projects, active in my church. I was babysitting, volunteering every week at my Church nursery to the point that I was teaching class. I have a glowing resume of volunteer and school based work that could easily land me a daycare job.
    After CFS hit I stopped being able to go to church every week. I was failing all of my classes. I'm on academic probation and i haven't been able to get a job in years. Before I could ignore my back pain and travel up and down the coast with my church's youth group. Now i can barely go to the 3 classes I'm taking this semester. And my dad thinks im lazy.

    • @CFSHealth
      @CFSHealth  3 ปีที่แล้ว

      You are not Lazy! Definitely know that!

  • @6473n64m19
    @6473n64m19 3 ปีที่แล้ว +16

    I’m glad you mentioned the motor skills, seems like a little thing but with the dizziness and lightheaded mess etc you really do lose coordination

    • @juice12222
      @juice12222 3 ปีที่แล้ว +2

      I get this a lot. I can't drive after like 4 pm.

    • @skinscapetattoo
      @skinscapetattoo ปีที่แล้ว

      I get this too, dropping things, walking into things, too afraid to drive when these spells arise, feels as if my internal space-time continuum is off.

  • @toniharrison1621
    @toniharrison1621 3 ปีที่แล้ว +11

    I really wanted to join the program but saw the cost! Having 4 kids it’s so hard to be able to afford the monthly payments and I would feel guilty to spend so much on myself.

    • @sandi6818
      @sandi6818 2 ปีที่แล้ว +1

      I have two and feel the same

  • @greggipp6537
    @greggipp6537 2 ปีที่แล้ว +5

    Thank you so much, you nailed it for me! I'm ashamed to say I used to be one of those creeps who thought CFS was a cop out for lazy people.... then came last November (boy, do I feel stupid!). Living with this is positively brutal, but I'm very blessed that I only have mild to moderate symptoms and I just PRAY it doesn't advance to the "severe" stage. But thank you for helping me to realize that I'm not alone and my symptoms are very real and that they have a very real root cause (even though we don't yet know what it is)

  • @jameshopkins7507
    @jameshopkins7507 3 ปีที่แล้ว +12

    I have been suffering with CFS for many years although for a few years now I have been significantly better. I was diagnosed at a time when there was great skepticism about CFS and had to find my way without much support but I must say your analysis of CFS is brilliant and I plan on watching many more of your videos. Thank you for sharing your work.

    • @CFSHealth
      @CFSHealth  3 ปีที่แล้ว

      Pleasure James! Glad they help. We have a longer form training that you might enjoy - www.cfshealth.com/ondemand feel free to sign up for and watch - Toby

  • @Lawyrgurl
    @Lawyrgurl ปีที่แล้ว

    I was completely debilitated but I went to Pacific Frontier Medical and now I’m fully functional. They will help you!

  • @andyfarmer759
    @andyfarmer759 3 ปีที่แล้ว +20

    Thanks again Toby. Your video's are always very usful fo sharing with people who want to understand more about our condition. I would like to point out however that for some of the longer term sufferers, who got the illness at a time when it was so poorly understood by so few, that chances of a full recovery were hampered by negativity. Some, not all, family members and doctors being so dismissive as to be down right rude, really made things worse. After 30 years of struggle I now, have, on the whole a decent quality of life. Flare up's, however, do still happen and it is like starting from square one all over again. Some of us never fully recover.

    • @GingerPeacenik
      @GingerPeacenik 2 ปีที่แล้ว +1

      Yep. I’ve had it since I was a kid in 1978. I don’t have many relationships, and no contact with family, because so many people believe that we’re “faking it”.

    • @andyfarmer759
      @andyfarmer759 2 ปีที่แล้ว +1

      @@GingerPeacenik Yep I can relate to that.

  • @openureyes
    @openureyes 2 ปีที่แล้ว +2

    It has fucked up my life for the last 15 years

  • @LockpickingsGal
    @LockpickingsGal 3 ปีที่แล้ว +13

    This feels like you know me.

  • @greigsanderson
    @greigsanderson ปีที่แล้ว +2

    The best description of CFS I've EVER heard. I think the fact you've suffered from it definitely helps. Superb explanation.

  • @kaisersoza4829
    @kaisersoza4829 3 ปีที่แล้ว +6

    Honestly mate the level of respect and dignity I got from this video is amazing. Wishing you and your family the best 💓

  • @MM-db1ri
    @MM-db1ri 3 ปีที่แล้ว +5

    Thank you, it's a vicious shameful cycle

    • @imapersonnotanumber8940
      @imapersonnotanumber8940 2 ปีที่แล้ว

      its not shameful, its an illness where on earth did you feel the shame from? others? if so then its others, not your lines, only here do you feel shame for being ill.

  • @trevorpeterson7665
    @trevorpeterson7665 3 ปีที่แล้ว

    Yet again another amazing video.

  • @neilericksson6989
    @neilericksson6989 2 ปีที่แล้ว +2

    This is the clearest, most helpful video I’ve seen on CFS. So hard to get people, even doctors to understand, what’s going on. I’ve suffered rom Depression for some time and I think that has been a factor in my CFS. I also have chronic kidney disease and Type 2 Diabetes. My doctor has put everything down to my Depression but I have felt for quite a while that there was more to it. Doing as much research as I can do, CFS is the best, most sensible answer. I think my doctor is finally 5inking that could be what’s going on. He wants me to talk to my psychiatrist about it. Which I am about to do.

  • @evonne315
    @evonne315 3 ปีที่แล้ว +5

    Wow, such great way to explain this and so helpful in understanding. Its hard when people only see me on the good days they get really confused.

  • @juliestevenson9151
    @juliestevenson9151 3 ปีที่แล้ว +1

    Toby just wanted to let you know you are the first person I have ever mate who is actually ever explain any of the stuff to me and I’m very very grateful to you thank you so much Julie

  • @kathystoner5239
    @kathystoner5239 3 ปีที่แล้ว

    Great video! Thanks

  • @Awakened11
    @Awakened11 3 ปีที่แล้ว +8

    Thank you for these videos. I’ve had these symptoms for 30 yrs and seems to be getting worse. My late husband (RIP) used to tell me I was making it up, that I was lazy and worthless 😔. I’m going to get back to some light exercise and def fix my diet, I want so badly to feel better 🙏🏼

    • @CFSHealth
      @CFSHealth  3 ปีที่แล้ว +2

      Hey Vicki! All good. You are not lazy!! Yes get back on track. Reach out if you need help. We have members doing this collectively as a group and it is AWESOME. Send an email to info@cfshealth.com and my assistant Anne will send you the details :)

    • @gibbethoskins8621
      @gibbethoskins8621 3 ปีที่แล้ว +1

      Never believe that you are lazy, I have been told this many times and I know it isn't true because before this illness I was almost hyper active. Inused to really let those comments get me down at the made my symtoms worse. Know that it isn't your fault and you are not lazy, it's the illness and letting this go will literally help you heal.

    • @imapersonnotanumber8940
      @imapersonnotanumber8940 2 ปีที่แล้ว +2

      until the medical industry/ doctors recognize it then, no-one will believe you. strange though ive seen the medical profession diagnose airline pilots with this condition, called chronic fatigue, in a documentary but it didnt say anyone else had it. thats the only way I found I had it....

    • @pjsmith4369
      @pjsmith4369 2 ปีที่แล้ว

      @@imapersonnotanumber8940 I was very fortunate to have a husband who knew me very well. He knew something was wrong with me before I did. I had been very athletic throughout our marriage. He has been my caregiver for 8 years; even though I am in recovery, he still has to do a lot for me. I am now 68.
      Once I read about ME/CFS ( just casually looked up “ chronic fatigue “ ) and realized that was what I had, I just followed people who had recovered.
      Never consulted a Doctor. Former RN. Not a subject studied in med school.
      Only person who considered me lazy the whole time was my Mom.
      I feel so bad for you to have your husband calling you worthless and lazy. I would get so down just having to listen to my Mom, even though, otherwise, I had lots of support. It’s demoralizing.
      Take good care of yourself ; you are ill!!

  • @worldview730
    @worldview730 ปีที่แล้ว

    Thanks for this open, candid, insightful, & informational video. Nobody spends this much in depth time & coverage on this subject if it's not important to all. This is like a template approach to help deal with other related illnesses as well.

  • @shelenellewellyn2834
    @shelenellewellyn2834 2 ปีที่แล้ว +1

    You understand this completely, I’ve never had this validation before. I’m finally diagnosed after 4 years of suffering but no care nor support and I feel completely stuck and hopeless.

  • @sereneabrahammathew9738
    @sereneabrahammathew9738 3 ปีที่แล้ว

    Hey thanks for doing this.

  • @etelonlongbows
    @etelonlongbows 2 ปีที่แล้ว +2

    I have had symptoms for many years still do. I'm on TRT and on a couple of occasions my levels of testosterone went into mid Range not the low normal range doctors aim for. All my symptoms disappeared. I think testosterone regulates inflammation, and ME tends to effect women, so prepares lower the testosterone the more prone you will be, its not the cause but low T is part of a perfect storm leaving you venerable to diseases that would not normally effect males. It could also be that my inflammation went into remission which allowed me to produce more testosterone and my reduction of ME was due to reduced inflammation. Exercise and losing weight in the past helped but the Brain fog always remained, the increased testosterone is one thing that really helps my brain fog, but it needs to be in mid normal range to get the full benefit. Having TRT will not really fix ME as the level they tend to aim for are just withing normal male range. I find it very frustrating having experienced the feeling if being normal, feeling well and being able to think. I can build muscle at lower levels but fatigue and brain fog it needs to be average for a male. Just wanting to be average and normal is not a lot to ask.

  • @NemoaquaticsCoUkYouTube
    @NemoaquaticsCoUkYouTube 3 ปีที่แล้ว +1

    Thank you 😊

  • @Uniquettt
    @Uniquettt 3 ปีที่แล้ว +3

    Thank you for posting this is me I swing both ways with sleep problems where I have poor sleep through pain and brain activity

  • @jessielouise4965
    @jessielouise4965 3 ปีที่แล้ว +10

    Thank you for this video, I'm really struggling. I needed this and it really helped me, thank you ❤️

    • @shannasonnier5403
      @shannasonnier5403 3 ปีที่แล้ว +2

      I’m struggling with you! I’ve been in denial of this but it’s real so I’m diving into the jnfo now.

  • @kaisersoza4829
    @kaisersoza4829 3 ปีที่แล้ว +1

    Sister sent me this and I cried. Never knew what was wrong with me

  • @karenhunt3383
    @karenhunt3383 3 ปีที่แล้ว

    Thank you!

  • @janicedick2449
    @janicedick2449 ปีที่แล้ว

    Oh my god thank you so much for over a year given bih 13 weeks premature baby! Due to lupus and still no drug working for my body! I try telling my rumatolagist how I feel and be a mum with no help from his dadvto premature baby 😢! Guilty shame, a lot of pain physically emotional anxiety angry depression but off meds not helping bloods! It's everything! I didn't know anyone else felt this till now

  • @MrTheLionKing1986
    @MrTheLionKing1986 2 ปีที่แล้ว

    Smart, educational and handsome too 😍 thanks for shedding light on our condition

  • @GreatGreebo
    @GreatGreebo 3 ปีที่แล้ว

    Thanks.

  • @pawelr
    @pawelr 2 ปีที่แล้ว

    Hi. Thanks for laying this out in this video. Soon it will be 3 years of my post-viral cfs battle. It looks like I'm more on the + side currently. Still my main problem is insomnia. It looks like I'm heading in the right direction.

  • @felisebatchelor6197
    @felisebatchelor6197 2 ปีที่แล้ว

    Toby…. I love your diagrams.

  • @katehagno1184
    @katehagno1184 2 ปีที่แล้ว

    This is highly valuable lesson. I recommend chi gong and do-in self massages. Pacing activities, accepting new life. Think of reiki, barefoot forest walk for self therapy. Remember any viral infection makes it worse, including debilitating confusion, so take care

  • @estheracosta6510
    @estheracosta6510 ปีที่แล้ว

    Thanks 👍. E

  • @rossita6634
    @rossita6634 2 ปีที่แล้ว +1

    Finally...After more than 20 years being judged as a lazy asian person, I found my community. So glad to find this channel 🙏🏼

  • @carolfyall688
    @carolfyall688 11 หลายเดือนก่อน

    Definitely a lot of mine was put down to as a teen my Eating disorder. Then down to my Bipolar. I was very active
    Showjumping etc.
    I still push on at 54. I walk my 3 dogs as much as i can. Still have a horse. But oh boy some days i am wiped out. The gut stuff landed me in Hospital. A BP of 68/38! So tired yet cannot sleep. Such an awful thing to deal with.

  • @paulsenjohannes
    @paulsenjohannes 2 ปีที่แล้ว +1

    Great presentation on CFS/ME. Well explained.
    I have been suffering from CFS/ME for 26 years which included a 10 year remission period. Today some call it Long COVID-19 syndrome or post viral syndrome. Unfortunately for me I had 3 serious flu infections that triggered CFS/ME to flare up again. To get back into remission is not easy. Each symptom must be treated effectively in order to go into remission. Failing to do that will cause endless suffering.

    • @Truerealism747
      @Truerealism747 11 หลายเดือนก่อน

      Do you have much muscle pain

  • @buzzukfiftythree
    @buzzukfiftythree 3 ปีที่แล้ว +1

    I recognise so many of those symptoms,

  • @barbaraferron7994
    @barbaraferron7994 3 ปีที่แล้ว

    I have had most of those symptoms for over 30 years except the sore throat and swollen glands but I have dry eyes and throat and lower leg edema.

  • @zandvoort8616
    @zandvoort8616 3 ปีที่แล้ว +6

    Did you eventually recover from your CFS and if so what helped you do that?

  • @thereseastrom195
    @thereseastrom195 2 ปีที่แล้ว +3

    A really good explanation. I have been severely ill, now I have moderate ME. So yes you can get better. For me knowledge, pacing and alternative treatment has helped. My biggest problem right know is physical activity and orthostatic intolerance, I don't really know how to move on with that.

    • @Ellezsz
      @Ellezsz 2 ปีที่แล้ว

      Can I ask what kind of alternative treatments helped you? I'm al een most 2 years ill now and getting worse, but trying to get better

    • @thereseastrom195
      @thereseastrom195 2 ปีที่แล้ว +1

      @@Ellezsz Acupuncture and moxa. I'm sad to say that I'm really sick again after getting covid.

    • @Ellezsz
      @Ellezsz 2 ปีที่แล้ว

      @@thereseastrom195 Thanks a lot for your reply! I am doing acupuncture and chinese herbs, which is the only thing that helped improving on some things (reducing night sweating, nightmares and brought my daily fever down to a almost normal temperature). I never tried moxa though. I am so sorry to hear you are severely ill again (and even more thankful you took the effort to reply). I was able to circumvent covid up till now. I really hope there will be some improvements soon for you

    • @donna25871
      @donna25871 ปีที่แล้ว

      @@thereseastrom195 same here Therese. I had a relapse after having Covid four months ago but I’m slowly improving. Unfortunately I had to resign from work because it’s just too hard for the immediate future.

    • @Truerealism747
      @Truerealism747 ปีที่แล้ว

      @@donna25871 much muscles npain

  • @HellasGD88
    @HellasGD88 2 ปีที่แล้ว

    I have cptsd I thought the tiredness was due to the meds, I just had a light bulb moment that I might have cfs I can't stay away, the exhaustion is on another level.

  • @simonem4040
    @simonem4040 3 ปีที่แล้ว +3

    Hey Toby!
    Thank you so much for your work, i am so glad I found this channel already months ago at the beginning of my cfs experience
    One question: I wonder how to explain this very common high achiever personality affected by cfs. Do you have some explanation? Like behaviour patterns or something like that? (Cause saying sth like that to others, sounds like it is an illness that you create in your head, because of the common personality type - you know what i mean?)

    • @terrycurtin1008
      @terrycurtin1008 3 ปีที่แล้ว

      I am a high achiever. Correction. Was. Now I am waiting to go broke and die. I went from Banker broker and insurance investment expert to a gas station job is too complicated. Now I am alone and isolation is my friend.

  • @terrycurtin1008
    @terrycurtin1008 3 ปีที่แล้ว +3

    My long time GF just asked me to leave. I had a concussion that started this. I am never awake. I have lost desire for anything. I am severely depressed. Doctors say start walking. I don’t want to wake up anymore. When I run out of cash it’s over. I can’t work.
    A motorcycle accident seemed to kick this in. I have concussion syndrome. I really want to move on. I am a tough guy and cry all the time. It’s over. I am so fogged.

    • @tristantobias7332
      @tristantobias7332 3 ปีที่แล้ว +1

      Brother i promise you everything is not lost

    • @User-3001-
      @User-3001- 3 ปีที่แล้ว

      Check out @medicalmedium on Instagram he helped me a lot

    • @lisetteruiz6581
      @lisetteruiz6581 2 ปีที่แล้ว

      Water fast

  • @annatomlinson1529
    @annatomlinson1529 3 ปีที่แล้ว +5

    Look into mold toxicity, Lyme disease and parasites if you can. I had debiliating CFS symptoms and turns out it was mold toxicity -- which had triggered a lot of other issues like high cortisol, anemia, gut issues, low stomach acid, b vitamin deficiencies, etc. There is usually a reason this happens -- your body is smart! Don't give up; you can heal. It's often complex and takes a long time, but our bodies are amazing. A good naturopath or functional medicine practitioner can help. Highly recommend the book "Toxic" by Dr. Neil Nathan; I've also learned a ton from vivanaturalhealth's podcast. And Cellcore has an innovative line of supplements that people are having great results with!

  • @xxabsxx31
    @xxabsxx31 3 ปีที่แล้ว +4

    This is so helpful. I have been diagnosed with CFS/ME and fibromyalgia and wondering if they go hand in hand I am struggling with working full time and feel immensely guilty that I am struggling with this. Thank you

    • @annatomlinson1529
      @annatomlinson1529 3 ปีที่แล้ว

      Look into mold toxicity, Lyme disease and parasites if you can. I had debiliating CFS symptoms and turns out it was mold toxicity. There is usually a reason this happens -- your body is smart! Don't give up; you can heal. It's often complex and takes a long time, but our bodies are amazing. A good naturopath or functional medicine practitioner can help. Highly recommend the book "Toxic" by Dr. Neil Nathan; I've also learned a ton from vivanaturalhealth's podcast. And Cellcore has an innovative line of supplements that people are having great results with!

    • @Truerealism747
      @Truerealism747 11 หลายเดือนก่อน

      Seams they are CFS 26 years but now it's more fybromyalgia with big bout fatigue fhtmr gene found out I have Asperger's Asperger's CFS fybromyalgia pots IBS all come with it and eds? And ocd

    • @Truerealism747
      @Truerealism747 11 หลายเดือนก่อน

      @@annatomlinson1529 did you have toxins have you found

  • @baybaddie7883
    @baybaddie7883 3 ปีที่แล้ว +2

    Wow I have this at 28.

  • @Uniquettt
    @Uniquettt 3 ปีที่แล้ว

    can you do the chart as a clear to read printable pdf please your time and health and other commitments permitting

  • @stefaniejean8148
    @stefaniejean8148 3 ปีที่แล้ว +5

    I am 40 and have been suffering from these symptoms since I was in my mid 20s. I’d feel very achy and flu like and pop Motrin just to make it through my day with 2 small kids. Now I am 40 and it has gotten worse with my age. Within the last 2 years I have been diagnosed with mono 2-3 times. But I still feel horrible. I feel sick and so so tired. And drained and I don’t even know where to turn to for help…

    • @pjsmith4369
      @pjsmith4369 2 ปีที่แล้ว

      How old are your children now? Do you have to work to have an income or do you have a partner?

    • @stefaniejean8148
      @stefaniejean8148 2 ปีที่แล้ว +1

      @@pjsmith4369 I have a partner. My kids are older now. 18 and 16. My guy and I have been together for 18 years. I am on ssi. They denied me and sent me to their doctor who approved me, but they still denied me. I took them to court and won. A lot of times it sucks. It wears me down feeling like I have the flu all the time and having to be careful what I do…

    • @Truerealism747
      @Truerealism747 11 หลายเดือนก่อน

      @@stefaniejean8148 do you have fybromyalgia to I've had CFS 26 years but now with time it's changed into fybromyalgia with bouts of fatigue

  • @ess1883
    @ess1883 ปีที่แล้ว

    Hi Toby, thanks for this video. Encouraging and timely. Many thanks!

  • @c0rlea
    @c0rlea 2 ปีที่แล้ว

    I have the same symptoms, never heard of this Syndrome. I am only 20 years old

  • @britt224
    @britt224 2 ปีที่แล้ว

    I'm just laying here crying 😢 been in to Dr's today got another appt at 245 , no one will listen, I contemplated suicide so many times because of this most recently 3 days ago I just don't Wana feel like this any more 💔

  • @robertbagwell2113
    @robertbagwell2113 2 ปีที่แล้ว

    How do I differentiate between CFS and fibromyalgia?

  • @carolfyall688
    @carolfyall688 11 หลายเดือนก่อน

    Any advice on the swollen glands. I almost always have a swollen sore throat. All i get told is theres no infection.

  • @kellysmith-may6889
    @kellysmith-may6889 2 ปีที่แล้ว

    Along with cfs I have chronic insomnia and can't sleep without medication,it's been months and when I wake I feel unrefreshed like I haven't slept atall.how does this improve cfs health? Please I'm going out my mind

  • @nadeemakramansari1331
    @nadeemakramansari1331 2 ปีที่แล้ว

    Sir, I have the following condition since 2017
    1. poor sleep, insomnia. have to take lots of pills to crash.
    2. fuzzy and blurry vision but eyes are ok as I can read the details but some sorts of weakness and fuzzyness
    3. can't think a train of thought or else fuzziness in eyes gets increased if I tempt to think productive
    4. easily exhaustion while running, walking
    5. lack of oxygen while speaking but blood pressure is normal.
    6. I am a good web developer but can't do any job due to my weakness
    7. feel tired even after a long sleep
    8. too much sleep gives me little energy but still I can't work for living
    9. hightly sensitive to light and sound. So i don't go out in traffic cuz sounds of high frequency makes me crazy
    What do you think sir, am i suffering from chronic fatigue. I am a good student but can't work for more than one hour
    10. I tried teaching, job, web dev, internet cafe, and everyting but I can't do anything more than an hour.
    plz help me sir. which doc should i visit. I live in India and no one understands this bloody disease.

  • @jostyles1895
    @jostyles1895 ปีที่แล้ว

    I’m going thru a long process for a diagnosis… I’m just not coping 😢

  • @narurumon1897
    @narurumon1897 ปีที่แล้ว

    I can't anymore😢

  • @Meadmon
    @Meadmon 2 ปีที่แล้ว

    I don’t feel achy or flu like, but I have fatigue every day.,I get energized from 8-12 at night. I have know idea if I have Cfs or not. Has anyone else have this experience?
    Thanks!

  • @jobby750
    @jobby750 2 ปีที่แล้ว

    One word that I didnt see on his board and he wont put it down is BOREDOM and that is it . A scenario you get up in the morning oh I must have my cup of coffee that's a no no , A you say well I dont drink coffee I drink orange juice or tea or some nectar from Madagascan bumble bee so you are not the norm and that's great you sit down your ears start to itching that's the start messing around with your ears , then all of a sudden your eyes play up so you start rubbing your eyes and forehead and this is where the fatigue starts , then when you get up from the chair you get dizzy so this is the time you want to go back to bed you have got to go back to bed even if it's for 10 minutes or even half an hour. 9 times out of 10 you can get on with your day but not always . Two things I would do straight away and im not a doctor is have a ECG done to make sure your ticker is working properly and then have a sleep apnea test done especially if you are a snorer . Look I'm just throwing a few things out . It could help you on you life discovery

  • @kellysmith-may6889
    @kellysmith-may6889 2 ปีที่แล้ว

    Please help me cfs health 🙏

  • @stxmps3037
    @stxmps3037 ปีที่แล้ว

    is waking up tired no matter how much sleep a symptom?

  • @sssttt2211
    @sssttt2211 3 ปีที่แล้ว

    How to cure CFS permanently?

  • @patrickjohnson1309
    @patrickjohnson1309 2 ปีที่แล้ว +2

    How the fuck do we get on disability support if you have M.E CFS ?

  • @BarkersBits
    @BarkersBits 3 ปีที่แล้ว +3

    Please go to your about section and change Peogram to Program. It’s been driving me nuts! I’m so tired of CFS, I have to find things to keep my brain going! Lol

    • @CFSHealth
      @CFSHealth  3 ปีที่แล้ว +1

      Our new website is launching very soon! It’s a million times better! Hang tight!

  • @JETMECH401ST
    @JETMECH401ST 3 ปีที่แล้ว +2

    Never mentioned what to do in order to get better. 🤷

    • @MisterJennison
      @MisterJennison 2 ปีที่แล้ว +2

      He just talked in one big circle and never got to the point of what to do to help...

  • @worldview730
    @worldview730 ปีที่แล้ว

    We can explore outer space, design all types of killer weaponry, and make grand strides in technology, but can't take the time to better understand chronic fatigue, what's wrong with our society?

  • @mikewick77
    @mikewick77 3 ปีที่แล้ว +1

    XMRV Lyme
    Mycoplasma
    Protozoa Apicoplast
    Virus Spore
    Symbiogenesis

    • @kirstensuhr7094
      @kirstensuhr7094 3 ปีที่แล้ว

      Hi from Germany! What means that all? What would you like to say? 🤔 That CFS often is in real lyme or other infections?

  • @beckyjones3578
    @beckyjones3578 2 ปีที่แล้ว

    Shame and guilty are the biggest for me because my partner doesn't understand or want to understand it all. I have 6 other ilness'es and I can barely deal with them.

    • @CFSHealth
      @CFSHealth  2 ปีที่แล้ว

      Becky! Watch my latest video! It could be very helpful for you!

    • @beckyjones3578
      @beckyjones3578 2 ปีที่แล้ว

      @@CFSHealth I subscribed to your channel.

    • @CFSHealth
      @CFSHealth  2 ปีที่แล้ว +1

      @@beckyjones3578 Great! Watch this one! th-cam.com/video/g6Az8I5B4OM/w-d-xo.html

  • @heygramsmcgugan8018
    @heygramsmcgugan8018 3 ปีที่แล้ว

    Have all that too autotune symptoms also but swellings legs feet hands anemia low blood pressure arm n shoulders hip stiff n knees too Digestion issues. Kidney or bladder. Infection taking detox caps against inflammation anti - candida bacteria .detox caps Sleep for two hrs evetothrt notecards hi I no family helps so want senior apt with assisted living (wait list) so praying miracle move Also some forgetfulness Think of descriptive word or names of items Do reading bible healings n hopes n contact people for encouragement n hope bike two three short times daily. Lots water too. Strache back. Area. Hip muscles

  • @kellysmith-may6889
    @kellysmith-may6889 2 ปีที่แล้ว

    Cfs health..did you feel suicidal?

  • @laurencem6448
    @laurencem6448 ปีที่แล้ว

    But sometimes it comes from thyroïde' s disregulation.

  • @kellysmith-may6889
    @kellysmith-may6889 2 ปีที่แล้ว

    None of my family understand

  • @sandi6818
    @sandi6818 2 ปีที่แล้ว

    It does take a toll. I was diagnosed in 2000 triggered I believe by Epstein Barr. I have a column on this topic at Fibromyalgia News Today, Chronically Candid Mom.

  • @woodfloorsjohnny
    @woodfloorsjohnny 3 ปีที่แล้ว +1

    TMS= TO MUCH STRESS..

  • @Truerealism747
    @Truerealism747 ปีที่แล้ว

    Yeah type a Asperger's ADHD fhtmr gene hypomobility

  • @CFSHealth
    @CFSHealth  3 ปีที่แล้ว

    Whenever you are ready, here are a few ways in which we can help you.
    1. Read case-studies from people, just like you, who used the Recovery Program to better their health and regain their quality of life- @t
    2. Watch the Free Baseline Training- If you need to learn how to stop pushing and crashing and get a proper Baseline watch this- @t
    3. Watch the On-Demand Recovery Webinar - Learn the 3 key mistakes that hold people back in their recovery and learn what to do instead- @t
    4. If you are ready to bite the bullet and just want to get personalised help with a personalised plan... email info@cfshealth.com with the word "Recovery" and we will send you some details.

  • @bigjoegamer
    @bigjoegamer ปีที่แล้ว

    I've suffered from MECFS for over 10 years, and the solutions you give sounds false and unproven. The only thing believable is the list of symptoms. Holistic approaches have done no good for me. The more you fight against MECFS, and the more you try to improve your health, the worse you will get, period. That's my experience.