How to know if you have Tourette's 🧠
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- เผยแพร่เมื่อ 14 ต.ค. 2024
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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and and orthostatic hypotension along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fn...
4. What is Tourette's?
‣ www.cdc.gov/nc....
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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, TH-cam and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am an ambulatory wheelchair user showing my life using mobility aids and how chronic illness symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
My nephew was recently diagnosed with Tourrettes, and because of you, I am able to understand the Real Life affects and allows me to try to be a better support for my swert nephew
i have tics, recognized by my doctors. we believe they are anxiety tics because when im anxious they explode, I've been dealing with it since 2021
it can be funny sometimes, some people find it cute like my mom and boyfriend and thats quite nice, because most times it is really embarrassing and tiring.
no, I do not think its quirky and cute to be yelling nonsense stuff and gross words and attract the attention of strangers. people don't praise us who have tics, they actually get scared. i miss my life before when I could choose to stay quiet and BE quiet.
update: im totally sure my tic things are emotional thank godddd. i have very few now. i started eating better and exercising, been learning to be more disciplined and i dealed with lot of situations that were giving me so much anxiety. the unvoluntary jerking still happens but im much better and less vocal.
Same
from what I know, anxiety cannot cause tics but can worsen pre existing tics, i would definitely recommend finding a doctor that doesn’t say they’re caused by anxiety so you can find the actual root of what’s causing them :)
@@imtheratinyourbasement i am aware of that. from what i know, it can cause tics but not as close to what tourettes and actual tics looks like. i prefer to not self diagnose, so thats why i just tell people who ask that i have anxiety tics
thank you
Love this - you know you are an og when you think this is old b/c the tapestry in the background
you’re a real one
My Lord lady, you are so intelligent. And stunningly beautiful with a wonderful personality.
now if only she'd stop faking disorders for views...
@@sknight8621 bro stfu. She's been medically diagnosed
Wow, thank you!
don't go around claiming people are faking disorders just because you're uneducated.@@sknight8621
@@sknight8621what are you on about?
I technically meet the diagnostic criteria since I have multiple movement and vocal tics, and it developed before I was 18. Thing is I started getting noticeable tics when I was 17 and I've done a bunch of research and that is rare. And yes I'm 19 now so its been longer than a year. Idk about getting a diagnosis. I want one but I feel like doctors will just brush it off as my autism or anxiety
Sounds exactly like my case. I'm the same age, mine developed majorly at 17, I had small this as a kid but they can be brushed off as kid things. I'm now 19 but I got diagnosed. The diagnosis I was given was Functional Movement Disorder. I'm brushed off a lot for my symptoms which is only tics (My concern for the diagnosis is because I should have other symptoms.). After insurance the neurologist appointment was roughly $320 under UPS Teamcare health insurance (covered under my mom). I had to get a referral from a psychiatrist because my primary care doctor assumed it was stress along with a vitamin d3 deficiency (how that causes tics is beyond me.) I wish you luck, research your diagnosis from your professional and bring up any concerns.
(My neurologist said there aren't any tests for TS or FMD. She said at least what I've been diagnosed with is curable... Cause that definitely changes the outcome considering I'm still experiencing waxing and waning symptoms after 2 years going on 3.)
@@randomyoutuber8257 wow okay that's very interesting! I've never heard of anyone else that has experienced similar to me. I'll have a look into it thank you so much!
@@millygd955 glad my existence can show you you're not the only one. I've never heard of anyone like me either. I feel that you might have a better time with your doctor than I did. If you have a premonitory urge before your tics it won't be written off as stims so I wish you luck in your endeavor.
I developed tics late, but I meet all the criteria for Tourette's except the age. (We don't know if I had any tics before that were so infrequent they went unnoticed.) I'm diagnosed with functional tics. I pretty much present exactly the same way as someone with Tourette's, and because a lot of people don't actually know about other tic disorders, if I have to explain it I sometimes just say it's "similar to Tourette's".
According to my neurologist, there's a bit of an epidemic of young AFAB people with ADHD who are suddenly developing functional tics.
I have a few tics; tongue clicking, squinting, nose scrunching, and smiling. I don't know if by the time I get an appointment if I'll havw developed snt more or if I have met the criteria, but you telling us this criteria makes me feel more prepared for when that appointment comes, thank you.
I have ADHD tics, for me they are only motor unless a gasp or grunt counts as verbal tho I personally don’t include since they are not that often, I usually tic by my head shoving to the side or forcing it up which hurts, sometimes it happens to my hands which tenses any other thing doesn’t happen too often. I haven’t told people at school about my tics because they aren’t to frequent (on certain days) but I have gotten weird looks before😅
Thank you perfect timing as just started ticing and I think it's neurological but others think otherwise
Interesting and informative video. Thank you for sharing.
Something that I worry about is that I'm 19 almost 20 and never once brought up tics during a doctor's visit. So I'm worried that a doctor would not believe me.
A little context, I have been having both motor and vocal tics for a while. My tics didn't start become worse or noticeable until I was 15.
I had a few tics for example I had a quiet high pitch squeak tic that would happen every few days. This did not affect me very much hence why I never brought it up, because it wasn't something I thought I should bring up.
But my tics started getting worse and worse then a few months later covid happened so I didn't visit any doctors (I also normally only saw a doctor every 2-3 year). Now I do not have health insurance atm (I'm american ;-;).
So idk what to do since I don't have any notes from a doctor nor "proof" that I've been having tics for years.
I don't want to go to the doctors (and spend a shit ton of money) just for them to not believe me or think I'm doing it for attention :/
Could you bring a parent? I know that for ADHD diagnosis in adults they need some kind of proof of symptoms when you were younger, and interviewing parents is one way they do it
That doesn't always work, but is helpful. What you have said regarding seeing doctors in the US is true. I'm almost 60. All 3 of my children have had ADD. My middle child, after going to a therapist for testing was informed they did not have ADD. I honestly think the doctor thought she was just bull💩ing to get the medication.
Later in my life, while trying to get established with a new physician, The physician informed me that, "adults don't get ADD." The physician actually saved me a lot of wasted time with her ignorant statement. Even though I had a horrendous ocular migraine that day I do remember a conscious thought of well I guess I won't be coming back to see her!! No one "gets" ADD, it's not contagious.🙀🤔🤷
I think I have Tourretes, but I'm still waiting for the full year. Hopefully sometime this year I can get a diagnosis, because my tics started sometime in September. For now though, I'm just learning how to deal with tics on a daily basis. Love to you Zara! 💜
I'm pretty sure you don't have this extremely, extremely, extremely rare disorder just like the other 15k tiktokers faking having it...
same but I got motor tics I may or April 2023 and Im scared to tell my parents
@@sknight8621it's not rare and there probly not faking it😊
@@sknight8621 Do you honestly think I care?
@@trud6346 Hey, thank you so much for sharing with me that you have a similar experience. I just want to let you know that I'm right here with you, I didn't tell my parents for the longest time, until the tics started causing me very bad anxiety attacks. I'm still working on not suppressing my tics around people, and it's hard (and often embarrassing). I encourage you to open up to your parents, but I know it's really hard to. I hope you can get some help and support from those around you!
I started suffering my ticks when I was in grade school. Pepole said I was faking them. I was super stressed out and quite depress. I finally spoke to my home doctor, and she ended up getting me diagnosed. All of my ticks are physical, and just recently, i was speaking with someone about them. And they said that ticks are always repeated movements. And I was about to disagree when it occurred to me that they are. I just have so many that they feel random. My head might shake, the inside of my stomach might convulse, my arm might go flying, my legs might twitch. Always the same places over and over again wherever they might be. I found it quite interesting how many people told me I had Tourettes syndrome when I didn't.
GOD BLESS YOU ZARA JI GET WELL SOON I WILL PRAY FOR YOU
I have anxiety caused tics and they happen a lot from when I am tired.They also happen a lot more when I get excited it does also combine with my adhd but I make more audible tics when I get excited and more motorized tic with head twitch and all that when I get tired or stressed
I love your videos ❤
try to watch through 3rd party sites or apps so you don't give her views / ad dollars for faking disorders, it'll only encourage her
@@sknight8621 oh my fucking god stop commenting on her videos youre just giving her clout. if she really bothers you so much theres things called 'dislike', 'block' and/or 'scroll'.
The meow is so damn darling!❤❤
I have tics and i think its because of my anxiety and when I do a tic some people dont know what they are and sometimes they give me a weird look and sometimes i miss when i didnt have tics
I was reacenly diagnosed with this and your videos are helping me to realise I’m not alone
I love your videos they make me smile ❤
I never see u as somebody different. U r always an inspiration in every way. In fact sometimes I don't even remember u have anything at all .fr
I have tics but not tourette's. it can be annoying but not really disabling. And it's so small (usually) that nobody even notices when I tic.
same!
Please could you make a video on anxiety tics, I have severe anxiety which causes mainly one or two tics but I think it’s important to raise awareness for them as there’s such a huge stigma surrounding it ❤
Yes please I have that to and I what to learn about that a bit more I love u zara
No way. I didn't know it was caused by anxiety.I have social anxiety, but I don't have tics. Hopefully, I don't get it🙏🙏
I have horrible social anxiety and I’m so scared of getting tics because you can get them from stress and other things. Like I can’t imagine already being anxious enough sat in that one class where I’m on the end of the table and feel like everyone is constantly staring at me.. and if I had tics?! I would be in a horrible place. Even though nobody truly cares in my head I think they do. I just want to say to anyone with tics that you are so strong, two of my best friends have them and one time my friend got an afterschool detention just for whilsting and “disturbing the class” even when it was just a tic. Some people are so horrible. You guys are awesome❤
Thank you for the information. Best to you.
I don't have anything diagnosed, but I've had several different motor tics for years. The interesting thing is they seem to change and/or get bigger with time, to the point that I'm now sometimes crouching in public which is mildly embarrassing but it's not that big a deal honestly
i have tics.... breath exercises helps me.
stress does not help :D
everyone should sleep well to have less stress.
I still don’t fully understand Tourette’s Syndrome but I know that you are doing well handling it I love learning about things that I haven’t heard of and when I saw your videos I was amazed by how you deal with it
Talking about the other tic disorders, I actually have one! I have CMTD-chronic motor tic disorder. Tic disorders are so interesting! Just the way the brain works is so fascinating. :)
thank you for spreading awareness :) i'm very positive that i have tourettic ocd, but i don't know how to get properly diagnosed. i wish there was more t-ocd awareness :(
I have loads of diffrent tics when im nervous, and sometimes diffrent tics come and go.
Gurl you are not alone I have tourette's alot of my fam have it and I get hurt or hurt people and like I feel so bad but sometimes ill be talking and not being able to say sorry but luckly All the people around me knows
Mahalo for sharing! 🐬🌸
You’re a beautiful soul 🤍 keep going
I feel bad I might not have Tourette’s but Ik what it feel like I might like Tourette’s a little bit but it’s not because you can say anything you want I just might have love for for people who have Tourette’s
I was diagnosed with tourettes at 17 and everything kind of fell into place. The one that finally got notice is i would hum for periods of time and I couldn't control it. Sometimes I would even do them during asthmas attacks and be unable to breathe. But I can remember having them since I was 6 or 7. Learning ways to cope at 17 was hard but incresibly helpful, and I'm glad I was able to get my diagnosis.
My friend started faking Tourettes when she saw a video on it and she hit her thigh and I felt terrible because it was bruised. Idk why she was doing this (it was 2 years ago) but it was really dumb because she ONLY hit her thigh and would only do it when it came up in conversation or I’d randomly twitch. I have really bad anxiety that I’ve learned how to suppress but a way it leaves my body is me randomly twitching/doing a little shiver around my upper body. Whenever I did this she would start faking. She stopped overtime but she still goes through many gross phases like this.
I don’t have Tourette’s but I do have tics ig, Like vocal ones, but I can still control them kinda? It’s more of an impulse (I think that’s that word) thing than something I can’t control- and I have no idea why they just randomly popped up😭
I love your content. I've been a fan for a while now. I watch all your shorts/videos, catching up on a few. Stay strong as you already show, sending prayers your way. Love You Zara!
I think that I periodically have tics. Either that, or I’m just kinda weird. Every so often, I’ll be walking around my house, then make a chicken noise or a really bad sheep noise. Or, sometimes I’ll get a chill that makes my neck twitch, which kinda hurts sometimes. I haven’t really thought of the idea that I could have tics, or straight up Tourette’s, until recently, but I’ve been trying to keep note of it. I’m 15, btw. I don’t think that I have any other possible tics besides random noises that I make throughout the day.
I have only one tic where my neck jerks and my whole shoulder tenses up. It happens when I'm stressed and oddly, when I'm cold. And even just that can be so frustrating sometimes.
I’ve had motor and vocal tics for a year now but I absolutely don’t have them consistently so idk what to do
I have the same but I boiled it down to adhd 🤷♀️
There are other tic disorder other then tourets. Maybe u dont have tourets but one of the others, its worth a doctors apointment, especially if the tics bother you. Gl ❤
You’re an awesome woman!
Neurology waiting lists are a year long for me even after2.5 years so diagnosis isn't for everyone. Be kind to self diagnosing people
You are so cute 💝 and that meow was adorable
I don’t have Tourette’s but I have a tic disorder in a way since I have FND it can cause seizures and tics sorta thing
Zara I really enjoy all your videos they are very educational uplifting inspiring and you are a truly gorgeous angel you have a beautiful smile. I hope you have yourself a wonderful wonderful day and I would like to wish you all the best in this year of 2024.
This is so so off topic but you’re so pretty😭🎀☁️
It can get really awful. I can't read more than a chapter at a time in a book before I'm mentally exhausted. It sucks because I didn't get bad until 25, and I used to read books in a day. I can no longer enjoy my most favorite hobby.
Love your channel.
I experience tics ans stimms.
I have autism and when I have stress I often stimm, usually it's habit and it just relieves stress. But I also have hand movements and vocal things that are more similar to tics I think.
My parents say I don't, and I've been talked into that I'm overreacting, so I don't know anymore:(
I don't I have tourettes, but I do occasionally have a slight twitch every once and a while.
You have very cute noises and movements...❤
I don’t have Tourette’s but I get anxiety tics and they can get really annoying sometimes like I do this thing with like me breath and it sounds like I’m laughing but just a pause kinda in the middle idk how to explain it and I just blink a lot and idk how to explain it’s like I open my throat wider idk how to explain it like I said and it they only happen when I’m in public mostly and often at home but not much sometimes it’s like a tic attack for Tourette’s but again I don’t have Tourette’s yeah so that fun👍
The meow tho
I can't 😅 your so entertaining
You are amazing❤
What I can’t figured out for myself is if I have simple tics or if they’re just normal twitches. Been tryna figure this out my whole life because whatever they are are kinda disruptive
I don’t have Tourette’s but I have one question for u I zone out constantly and my eyes just randomly start feeling weird can u maybe help
Ur videos are very amazing😇😇😇😇😇❤️❤️❤️
My anxiety decreased, so I don’t get panic attacks. But I do have tic attacks if I’m too stressed out or overwhelmed. And if it lasts too long I dissociate.
Don’t do anxiety, kids.
Fr. Wish we had the choice. I’ve got anxiety really bad and I don’t get tic attacks but I do get nervous tics just randomly throughout the day and especially when I’m more anxious
@@Aaliyah942 I wish we had the choice too. Some older people around me are like « stop stressing out »…
You’re brave, we’re all brave to live with this condition, no matter how we get through life, we’re strong. You are strong and I wish you the best❤️
Thanks for the great explanation. 👏👍🏽🫶🏻
Hey Zara I love watching your videos there so inspiring for all ages! I have a few questions! I have like these wierd head movements and shrugging of the shoulders I wonderd if there were anxiety or stress causes them! I have had a few episodes like fainting episodes in the past 2-3months and been seeing loads of doctors! Is this worth going to my local gp! My mum doesn’t really take them in she just thinks I do them for the sake of doing it!! Keep going girl I believe in you! Sending lots of love!
Help, why r ur tics/Tourette’s so cute 😭
I dont have tourettes and i never thought ive ever had it because i dont have tics but i thought that this short would be interesting so i clicked on it
Well explained
my mom and brother both have tics!
Well I got diagnosed this year and I have 4 motor tics but 1 vocal tic and I've had tics since 2016. And I'm 11 born In 2012
i had my first tic attack last night and it was terrifying and painful, i couldnt walk bc my legs we affected aswell
I've always thought that random hard limit of it having started before age 18 a bit weird. Doesn't that mean that the exact same symptoms have to get a different diagnosis if you cannot remember or prove when it started?
I'm pretty sure I did have a loud snorting "habit" and blinking "habit" since at least primary school in the 90s. I developed another rubbing my nose very hard "habit" around age 16. And around 15 years ago at age 25-ish (I have ADHD so my memory is a bit hazy) I developed a new weird hiccup/whooping sound "habit" after I had whooping cough that just persisted for years.
It wasn't until 2020 when I suddenly had to supress my "habit" of snorting loudly and touching my face in public, which caused me to develop a bunch of new "habits" which I now realised wasn't particularly voluntary like grimacing, a bunch of new vocal sounds to still the same "itch" that the snorting and nose rubbing satisfied. And several of these, including a really painful head twitch (that I fortunately managed to stop by allowing myself to do a more extreme grimacing instead) seemed much more stereotypically like a tic which finally made me realise that my "habits" had been tics all along. But nobody in my family noticed and don't remember me doing them; probably because I usually suppressed them most of the time which is probably why they were so violent and loud compared to the tics I have now that I allow myself to have them. So I don't know if I can prove I had it before I was 18.😂
I've had tics since grade 6 but somehow my Nana never noticed until like 2 or 3 years ago
She recognized my brothers tics way sooner
Ha ha ! You have a sparkling ✨ brain!!
Can you have coprolalia without having Tourettes I’m trying to get as much information because I’m trying to write a story/novel with a character that has Tourettes and I’ve also become invested in your channel recently and you make great content
I don’t think I do I think I have like mini tics (autism tics/anxiety tics) if they’re a thing like o can’t stop myself clenching my fists, blinking when I don’t need to, flapping my hands and snapping my jaw open and shut
Autism does not cause tics. You’re experiencing stimming, which is not an involuntary movement.
@@MommmaT I will just say that a lot of especially lage diagnosed autistics also have anxiety which is a contributing factor to some minor tics. Stimming is used to self regulate and tics are simply just involuntary. (I know you probably know this but when I was first starting out in this community it was so difficult to find all the information and differences between everything)
I’m sorry I know this is a condition but the meow was so cute like omg
Hey thank you for explaining cos I don't remember when my mum told me I had it random jokes
If this is true then those with a minor level of Tourette's couldn't be diagnosed.
There are 'some' that were diagnosed after becoming adults.
There's more than Tourette's that involve tics.
I have tics and torrents it sucks I know how u feel kinda ? Btw your amazing ❤
I don’t make any sounds but I do random movements without trying
She couldn't look or sound more Irish if she tried!🇨🇦🌹🙏
i’m aggressively british so i’m not sure where that comes from 😂
but i did have an irish grandad?😭
but that's a Canadian flag
I have tourette's I was like with it since I was 4 I can't even remember when I got diagnosed with it-...
I had to wait months to see a neurologist that’s 2 hours away but it was worth it
I’m the person that can even have muscles tics i mean i have tics (i think for more than a year) And i can feel my muscles moving when i don’t want them to but i have a lot more tics but only with my body moving And not with voice etc.
Hi , i have at least 3 motor tics which are eye blinking shoulder shrugging and teeth clicking and i make weird sound sometimes.
Another good vid ❤
It seems Australia has been doing some studies on the effects of medicinal marijuana and tourette syndrome showing huge results. Have you tried this?
I don't know if you have the time to read and respond to comments but maybe one day I'll learn the answer to my question. 😊
My sister has tourette’s and has been diagnosed since she was like 7, (shes 24 now), and she doesn’t have any vocal ticks so that’s kinda weird how she got diagnosed
My friend doesnt have tourettes but people in my class keep thinking shes faking but its just one tic that makes her head jolt back a bit but sometimes its not as obvious
(Shes always had this tic but how do i explain to them shes mot faking tourettes its just one involuntary movement that happens to her quite often sorry i dont rlly know how to explain it well)
I’m pretty sure I have anxiety tics if that’s a thing?? I have professionally diagnosed anxiety, and sometimes when I get nervous I kinda twitch
You're still as cute as a button and I hope that you are surrounded by understanding people.
idk what i have, seriously, i have been having tics for almost 3 years straght, since my 14 or 15, i have gone to a neurologist, he said that i didnt have it, and prescribed an antidepressant, also my physchologist spent a year to say that i dont have nothing, idk what to do, i have tics every day, sometimes more active, some not, but i do, both motor and vocal
Question! How do you do when you are trying to sleep? Like do you take some meds or how are your tics when you try to sleep?
my favorite: "meow"
I have coughing ticks (at least my pchsichologist didn't diagnose me eany more) for 1,5years. They're slowly gettnig more rare. But my geography teacher doensn't believe them still
I'm sure that I don't have tourettes but I have ticks someway. I don't known why I have them or if it's common or not.
They aren't often, few times a day mostly. I can stop myself from doing it but is very difficult and uncomfortable. I hit myself on my head or arm sometimes and make sounds. When I'm in public I tense my muscles or stim to stop it before it happens but like I said sometimes it's difficult. Does everyone else has smth like this too?
Y'all it took me 15 years for me to get diagnosed with tourretts because my mom thought I was just weird despite me having tics since I was two lmao
I have tics and used to have more of them. It kind of went away but they were all motor tics and I was pretty much sure they not Tourette’s and now I know they aren’t. What else could it be?
Could I ask a question for any of your next videos? Can you accidentally spill out a secret bc of your tics? Just wondering
I have yelled my computer password before and almost my social security number
It sucks having information you don't want getting out stuck in a head that yells things randomly
I only have tic like things when I think about it.
I don't know if it's atoc or stim or what
Often a flinch of the head up it to the side
Or a whistle.Or yer mums gay
But like I do t know
My mom thinks i have tics but my neck just hurts and i move my neck weird all the time
im confused. i was diagnosed with adhd at 20 because i didn’t show symptoms until after i graduated. the brain isn’t fully developed until the 20s, so why do you have to have symptoms before 18 (17 if including the year long persistence) to be diagnosed?
just speaking as someone frustrated that my doctor said i cant have adhd bc i didnt have symptoms before the age of 12 while my therapist says i obviously do
i had tics before i was 18 but not consistent vocal tics those come and go. but i have a hiccup tic just like yours that is constant and a head jerk tic that is constant and some other motor tics that come and go frequently. what do you think zara? i saw a neurologist but they didn’t say anything about my tics only about my PNES.