Hi Zara! Lovely videoooo. I have a question, so you said you don't really like touching and physical contact and i wonder to what extent? So for example do you mind hugs? Does it depend (if so, on what)? Just curious ❤
I saw that goose on Amazon, and I almost immediately bought it! My heath has just been getting worse, and I have to go back to the doctor tomorrow. I have chronic nausea and fatigue, and I’ve already missed school because of it. I think im getting a brain scan. Seeing you be so happy is like a ray of light!! I love your channel so much! You are truly amazing!🩵🩵🎀🩷
With my FND the cold ALWAYS triggers my tics. They get so much worse. And if I get over stimulated it makes my tics worse too! Love this video, Erin is so cool :)
I always find it comforting to hear other disabled people say that school isn't everything. I have autism, ADHD, a psych said I probably have a learning disorder, a mystery health issue that I'm going on year two investigating, and a plethora of mental health issues, and I genuinely don't know if college is for me at this point. I'm going to give it an honest try, but having heard so many other disabled people say that they dropped out of college and got by alright, I'm not going to push myself to my absolute breaking point before admitting that something isn't working. Thank you both for the extra reassurance
im so pleased you answered my question!!! I found this video so interesting hearing other people’s experiences with tics, ocd, autism because i found it so hard being ‘on my own’ with ocd because i don’t think many people understand how hard it is. thank you for - well i don’t really know what to thank you for - but thank you for just talking about it - it makes me feel so seen 😊😀⭐️
Thanks for this video, won’t lie you have me a little worried for tomorrow as I’ll be enduring my first day of high school. However I just wanted to say thank you for your content, it’s not really something you see to often but I really appreciate what you do.
I'm autistic and started getting tics 1 year ago when I was 19. My tics always get worse when I am stressed or overwhelmed, which then can make me more anxious if I am in a public place. During and after a meltdown I also tic more.
I'm 15, and I started getting tics in April. I haven't been officially diagnosed with autism, but my therapist and I suspect that I'm autistic. I used to think my tics were covert stims, but I found out that covert stims are voluntary, like other stims, but you don't realize you're stimming. On the other hand, tics are involuntary. My tics and anxiety often run in a vicious cycle. My anxiety causes my tics, and my tics cause my anxiety. It gets really frustrating sometimes. I only have a couple different tics, and I don't meet the criteria to be diagnosed with Tourette's
I don’t have any of these but I find it so interesting learning all about them. I have a friend who has anxiety tics and I used to help her during school and I’ve seen the emotional and mental and physical affects of tics. Stay strong Zara ❤
omgg i love the goose!! also, i just wanted to take the time to tell you how much you’ve helped me learn to accept myself. i’m still very much on the journey (currently self diagnosing with autism and a few mental health things because of nhs waiting lists lol) but your videos give me hope for what my life could look like in the future :) also your videos are just… idk what it is about your voice or something but it makes me feel seen and safe. also since it was mentioned in the video i’ll put my special interests here because i want someone to infodump to lol: classical music (playing instruments, theory and history, composing etc), autism and neurodivergence, LGBTQ+ identities, drawing, words and language, and the dark academia aesthetic
OMG THE FRENCH GRAMMAR SAME!!!! My main special interest is exactly how you described, I call it "written language", because it can be english or a foreign language: reading, writing, grammar etc.
I really appreciate your speaking to your experience. I have learned so much and you have truly given me a perspective that has made me more empathetic to other people.
Hey Zara, Good video, thanks for sharing and thanks that you showed your tics and Erin's tics. It was educadional to see! I'm autistic and my school experiences were not the best(also not the worst), but i was lucky that i had/have a lovely mom who helped me a lot during school, making it a bit easier for me. Also, i was lucky that i (most of it) was just myself and didn't act (to) different to fit in with the rest. I believe for me that was because of my autism, i didn't know else than to be myself (most of it).💪❤🧡💛💚💙💜 Greetings to you and Erin!!🥰
Hi Zara ! Love your vids and also I also have Tourette’s syndrome autism and fnd and im also a mobility wheelchair user so I know what you feel like keep being awesome (:
I have questions I forgot to ask. 1. How do you know you are about to tic? 2. How does it feel when you are about to tic? 3. Do tics get worse as you age? (There is a teen who has like the worst tourettes case and when she was about 7 when she had a simple blinking tic)
Oh damn (sry for multiple comments) but same! Heat and humidity are my worst meltdown triggers! I have literally moved all over this country(US)looking for a climate I can stand. (I was raised in Florida ffs and no one knew I was autistic. The endless heat-induced meltdowns were all punished as “tantrums”.) I’d live in the Arctic if I could 😅😊
Q; What did accommodations look like for you when you were taking your maths exams specifically? I am currently completing the equivalent of your college education level via distance ed due to my health. I have been unable to handwrite for the past two years due to sever tics when attempting to (which is soooo frustrating) and I have no idea what accommodations to ask for with my upcoming maths exam. I already have approval for typing (thank goodness), but no clue what would be helpful for math, and my school haven't got any suggestions either. I currently type them out using a math program on my laptop, but it is EXTREMELY SLOW! Thank you so much for all your content, awareness and authenticity Zara. I have been a silent views for a couple of years now and love and appreciate everything you do with your platform. I have found so much comfort in your content whilst navigating a complex medical journey in a world that isn't designed to support invisible illnesses. 🧡🌻
I wanted to share my special interests since it was talked about in the video, just to see if anyone else had them ❤😊: Warrior Cats series - 7 years Autism (and other disorders on the autism spectrum) - 6 years Squishmallows - 6 years Tardigrades - 4 years (a lot of people think they're ugly, but I think they're really cute) Minecraft - 3 years Isabella tiger moths (specifically the caterpillars. They're so adorable!) - 2 years Animals in general, for as long as I can remember!
i am not autistic or ticcy but i do have sensory disorder and possibly bipolar to i know to much about the loud rooms, or overwhelming partys. sometimes i will just sit down like the the couch or something and cover myself with a blanket for half an hour. lol
ASD gang woohoo! Also omg, Minecraft :D I too am an autist that plays MC, I've also been playing modded MC when I'm not hyperfixated on Stardew or Phasmophobia X3 Gonna have to join your discord at some point lol
With me I have to do EVERYTHING 1,3,5, or 8 times or I feel like I’m gonna be like killed or something and if the lights aren’t off all the curtains aren’t shut and all the doors are locked I feel the same way o I relate to you guys so much.
Hi I love watching and learning about others disabilities. So if I see someone outside having tics. Then I can understand. Ty for these vids. I enjoy them.
4:46 a question: while you may know when you have a tic tic'ing, how do u distinguish the tics of new friends (with tourettes) from actual deliberate responses? assuming a neutral, peaceful environment, a random "duck off" could be contextualised as a tic. how would you exercise this same discernment in a more tense environment?
I am a 49 yr old woman who has just been diagnosed with fnd x you are an amazing young person x and trying to type while wobbling is fun lol x to be told at my age is a shock and to be told I’ve probably had it for 20 yrs x my job has been awesome but people are trigger lol they mean well but honestly saying the same thing while stuttering is a pain in the bum x stay safe hun x ya friend is awesome too x
I was recently referred to a neurologist for my tics and hopefully a diagnosis but my referral was blocked! Very annoying- I think the NHS is very overwhelmed of late
"ok hon your mentally exhausted dealing with autism FND Tourette's and much more and dont know what to do?" "i have the perfect cure breathe hun and have a cuppa tea it works for everyone
No joke, I watched the Tourette’s camp video (as someone with Tourette’s) and I still have the “I’m a wh@re.” Vocal tic from it. how dare you Zara and Erin./silly
You say you communicate well with those that have something you have. Why would you say you fail to communicate well with me... I know I'm not the 'problem.' It makes absolutely zero sense... Why the disrespect, when I've not disrespected...
Here is a genuine question, why do women think they are the only ones suffering. What I see is spoilt children with no real understanding of pain, hardship or loneliness what it means to fight for the right to be alive ❤
Thank you for the informative video! 🫶 I have severe psychotic depression (anxiety included) and I’m neurodivergent. My brain is my biggest troll as I have auditory hallucinations so They tell me I’m making it up, exaggerating symptoms, it’s not that bad, etc. Then I hit crisis point and mental health services/hospitals says the same thing. A CAMHS nurse/care coordinator once told me I’m a disappointment to my family with how I’m acting. Obviously that comment didn’t make me feel any better. I have so little trust in medical professionals now, I just don’t interact with them. I will never go to get medical help unless someone makes me because I know I won’t be believed, told it’s not as bad as I’m making it out to be, others have it worse, etc.
"I don't need anymore yarn but i cant stop buying it". I can so relate!! 😆 Also the bit about OCD I cant totally relate, and a lot of those things i though it was just me who struggled with that, so its really nice to know I'm not the only one. 🩷 My experience with CAHMS has been 💩after💩 Really enjoyed this and found so much related able to thanks 🩷🏳🌈
feel free to leave any extra questions in the comments below and i can answer them in a future video! 💘
Hi Zara! Lovely videoooo. I have a question, so you said you don't really like touching and physical contact and i wonder to what extent? So for example do you mind hugs? Does it depend (if so, on what)? Just curious ❤
Hey Zara! Love your channel.
My question is what do you do on public transport if you have a seizure. Have an awesome day!
I saw that goose on Amazon, and I almost immediately bought it! My heath has just been getting worse, and I have to go back to the doctor tomorrow. I have chronic nausea and fatigue, and I’ve already missed school because of it. I think im getting a brain scan. Seeing you be so happy is like a ray of light!! I love your channel so much! You are truly amazing!🩵🩵🎀🩷
Hope you're doing well! ❤
With my FND the cold ALWAYS triggers my tics. They get so much worse. And if I get over stimulated it makes my tics worse too! Love this video, Erin is so cool :)
Me 2! 0:35
Same! I don't have FND but it's the cold that makes tics worse for me.
I always find it comforting to hear other disabled people say that school isn't everything. I have autism, ADHD, a psych said I probably have a learning disorder, a mystery health issue that I'm going on year two investigating, and a plethora of mental health issues, and I genuinely don't know if college is for me at this point. I'm going to give it an honest try, but having heard so many other disabled people say that they dropped out of college and got by alright, I'm not going to push myself to my absolute breaking point before admitting that something isn't working. Thank you both for the extra reassurance
im so pleased you answered my question!!! I found this video so interesting hearing other people’s experiences with tics, ocd, autism because i found it so hard being ‘on my own’ with ocd because i don’t think many people understand how hard it is. thank you for - well i don’t really know what to thank you for - but thank you for just talking about it - it makes me feel so seen 😊😀⭐️
Avid zara fans...
ASSEMBLE
Thanks for this video, won’t lie you have me a little worried for tomorrow as I’ll be enduring my first day of high school. However I just wanted to say thank you for your content, it’s not really something you see to often but I really appreciate what you do.
Hey, how did it go?
@@rainbowandre9580 It went alright and has been okay, I had my comment notifications off for a while, but thanks for asking!
I'm autistic and started getting tics 1 year ago when I was 19. My tics always get worse when I am stressed or overwhelmed, which then can make me more anxious if I am in a public place. During and after a meltdown I also tic more.
I'm 15, and I started getting tics in April. I haven't been officially diagnosed with autism, but my therapist and I suspect that I'm autistic. I used to think my tics were covert stims, but I found out that covert stims are voluntary, like other stims, but you don't realize you're stimming. On the other hand, tics are involuntary. My tics and anxiety often run in a vicious cycle. My anxiety causes my tics, and my tics cause my anxiety. It gets really frustrating sometimes. I only have a couple different tics, and I don't meet the criteria to be diagnosed with Tourette's
I don’t have any of these but I find it so interesting learning all about them. I have a friend who has anxiety tics and I used to help her during school and I’ve seen the emotional and mental and physical affects of tics. Stay strong Zara ❤
Fellow crochet special interest!!!!! I LOVE crochet so much!
I have autism, adhd and ocd and mild pots too. I am so happy for this video! Thank you ❤
omgg i love the goose!!
also, i just wanted to take the time to tell you how much you’ve helped me learn to accept myself. i’m still very much on the journey (currently self diagnosing with autism and a few mental health things because of nhs waiting lists lol) but your videos give me hope for what my life could look like in the future :) also your videos are just… idk what it is about your voice or something but it makes me feel seen and safe.
also since it was mentioned in the video i’ll put my special interests here because i want someone to infodump to lol: classical music (playing instruments, theory and history, composing etc), autism and neurodivergence, LGBTQ+ identities, drawing, words and language, and the dark academia aesthetic
OMG THE FRENCH GRAMMAR SAME!!!! My main special interest is exactly how you described, I call it "written language", because it can be english or a foreign language: reading, writing, grammar etc.
Me too! I'm obsessed with grammar and language learning 😊
@@Che_ch3 Yay!
i love seeing erin back!
Hi Erin welcome back to the channel.❤
I love your videos, You are so inspirational and you have an amazing smile ❤
I really appreciate your speaking to your experience. I have learned so much and you have truly given me a perspective that has made me more empathetic to other people.
Hello!!! You've been a huge inspiration through my tourretes journey ❤️
Hey Zara,
Good video, thanks for sharing and thanks that you showed your tics and Erin's tics. It was educadional to see!
I'm autistic and my school experiences were not the best(also not the worst), but i was lucky that i had/have a lovely mom who helped me a lot during school, making it a bit easier for me. Also, i was lucky that i (most of it) was just myself and didn't act (to) different to fit in with the rest. I believe for me that was because of my autism, i didn't know else than to be myself (most of it).💪❤🧡💛💚💙💜
Greetings to you and Erin!!🥰
WE LOVE ERINNNN
I crochet and knit, right now I’m working on knitting a scarf for my sister
seeing this as an autistic person with tics makes me so happy honestly ❤
I also have Tourette’s autism and ocd and it was great to see a video on this makes me feel less alone
This really validated my experiences of being uncomfortable in other's homes, however much I liked them.
Hi Zara ! Love your vids and also I also have Tourette’s syndrome autism and fnd and im also a mobility wheelchair user so I know what you feel like keep being awesome (:
Zara please, please, pretty please do a video all about your childhood experience of autism ❤
I have been waiting for another video with Erin!!! ❤
Very interesting to hear. I was really interested and enjoyed both of your answers. You and your friend are so very funny and lovely hahaha
I have questions I forgot to ask.
1. How do you know you are about to tic?
2. How does it feel when you are about to tic?
3. Do tics get worse as you age? (There is a teen who has like the worst tourettes case and when she was about 7 when she had a simple blinking tic)
Oh damn (sry for multiple comments) but same! Heat and humidity are my worst meltdown triggers! I have literally moved all over this country(US)looking for a climate I can stand. (I was raised in Florida ffs and no one knew I was autistic. The endless heat-induced meltdowns were all punished as “tantrums”.) I’d live in the Arctic if I could 😅😊
Q; What did accommodations look like for you when you were taking your maths exams specifically? I am currently completing the equivalent of your college education level via distance ed due to my health. I have been unable to handwrite for the past two years due to sever tics when attempting to (which is soooo frustrating) and I have no idea what accommodations to ask for with my upcoming maths exam. I already have approval for typing (thank goodness), but no clue what would be helpful for math, and my school haven't got any suggestions either. I currently type them out using a math program on my laptop, but it is EXTREMELY SLOW!
Thank you so much for all your content, awareness and authenticity Zara. I have been a silent views for a couple of years now and love and appreciate everything you do with your platform. I have found so much comfort in your content whilst navigating a complex medical journey in a world that isn't designed to support invisible illnesses. 🧡🌻
I like the goose in the background 🌵🦆
I wanted to share my special interests since it was talked about in the video, just to see if anyone else had them ❤😊:
Warrior Cats series - 7 years
Autism (and other disorders on the autism spectrum) - 6 years
Squishmallows - 6 years
Tardigrades - 4 years (a lot of people think they're ugly, but I think they're really cute)
Minecraft - 3 years
Isabella tiger moths (specifically the caterpillars. They're so adorable!) - 2 years
Animals in general, for as long as I can remember!
i am not autistic or ticcy but i do have sensory disorder and possibly bipolar to i know to much about the loud rooms, or overwhelming partys. sometimes i will just sit down like the the couch or something and cover myself with a blanket for half an hour. lol
You guys are so beautiful
Completely unrelated but ZARA WE HAVE THE SAME PHONECASE OMG
ASD gang woohoo!
Also omg, Minecraft :D I too am an autist that plays MC, I've also been playing modded MC when I'm not hyperfixated on Stardew or Phasmophobia X3
Gonna have to join your discord at some point lol
With me I have to do EVERYTHING 1,3,5, or 8 times or I feel like I’m gonna be like killed or something and if the lights aren’t off all the curtains aren’t shut and all the doors are locked I feel the same way o I relate to you guys so much.
Hi I love watching and learning about others disabilities. So if I see someone outside having tics. Then I can understand. Ty for these vids. I enjoy them.
I need goose like that to fulfil my special interest of water birds 🐦
I have epilepsy and I feel that it’s not really spread awareness out there but I love ur channel ❤❤❤
Not me bingeing your videos to feed my hyperfixation on neurodivergence....
4:46 a question: while you may know when you have a tic tic'ing, how do u distinguish the tics of new friends (with tourettes) from actual deliberate responses?
assuming a neutral, peaceful environment, a random "duck off" could be contextualised as a tic. how would you exercise this same discernment in a more tense environment?
I am a 49 yr old woman who has just been diagnosed with fnd x you are an amazing young person x and trying to type while wobbling is fun lol x to be told at my age is a shock and to be told I’ve probably had it for 20 yrs x my job has been awesome but people are trigger lol they mean well but honestly saying the same thing while stuttering is a pain in the bum x stay safe hun x ya friend is awesome too x
Aww I have that goose it is so helpful!!
My tics ticced throughout the entire video. 😭
I think abolishing the medical industrial complex is my system's current special interest??? lol we have like four tabs open on it right now
omg im under a minute!!!❤❤❤
you're a real one x
@@Zara_Beth AAAAAHHHH i cant believe you replied🤩🤩 ❤️❤️❤️
Hello from India 🙋🏽
Ty for the video :))
I was recently referred to a neurologist for my tics and hopefully a diagnosis but my referral was blocked! Very annoying- I think the NHS is very overwhelmed of late
Zara!!! Can I please play Minecraft with you 😂🙏🙏
We could talk about autism lol😂
I rember Erin!
I got minecraft on my switch and also my xbox
❤️🔥ZARA💎BETH❤️🔥
❤❤❤❤❤❤❤❤
"ok hon your mentally exhausted dealing with autism FND Tourette's and much more and dont know what to do?" "i have the perfect cure breathe hun and have a cuppa tea it works for everyone
2:05 what about sharks? 🦈
Hey ❤❤❤
Grate videos can I ask can u tell yhe difference between ur ticks and ur fnd ticks
I have autism
Hi
No joke, I watched the Tourette’s camp video (as someone with Tourette’s) and I still have the “I’m a wh@re.” Vocal tic from it.
how dare you Zara and Erin./silly
How Old where You when You Got find Out You had ts
My name is optimus prime
You say you communicate well with those that have something you have.
Why would you say you fail to communicate well with me... I know I'm not the 'problem.' It makes absolutely zero sense... Why the disrespect, when I've not disrespected...
Here is a genuine question, why do women think they are the only ones suffering. What I see is spoilt children with no real understanding of pain, hardship or loneliness what it means to fight for the right to be alive ❤
And I see a little boy on the internet desprate for attention
Good luck finding your soul
Thank you for the informative video! 🫶
I have severe psychotic depression (anxiety included) and I’m neurodivergent. My brain is my biggest troll as I have auditory hallucinations so They tell me I’m making it up, exaggerating symptoms, it’s not that bad, etc. Then I hit crisis point and mental health services/hospitals says the same thing.
A CAMHS nurse/care coordinator once told me I’m a disappointment to my family with how I’m acting. Obviously that comment didn’t make me feel any better. I have so little trust in medical professionals now, I just don’t interact with them. I will never go to get medical help unless someone makes me because I know I won’t be believed, told it’s not as bad as I’m making it out to be, others have it worse, etc.
"I don't need anymore yarn but i cant stop buying it". I can so relate!! 😆
Also the bit about OCD I cant totally relate, and a lot of those things i though it was just me who struggled with that, so its really nice to know I'm not the only one. 🩷
My experience with CAHMS has been 💩after💩
Really enjoyed this and found so much related able to thanks 🩷🏳🌈
so glad you found it comforting/relatable!! ❤