I Was Paralysed From The Neck Down *we had to call an ambulance*
ฝัง
- เผยแพร่เมื่อ 6 พ.ย. 2021
- Hey everyone! 💛
I am okay now, this was filmed just under a month ago (10th Oct 2021) when I had a really scary health flare up - but finally got my functional neurological disorder diagnosis!
I have just recently managed to walk again (start of Nov 2021) so it's taken about a month to recover from this episode.
Here's a video of the story :)
My social media:
linktr.ee/zarabeth
Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, TH-cam and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
Music:
Morning Routine by Ghostrifter Official | / ghostrifter-official
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Creative Commons CC BY-SA 3.0
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Hot Coffee by Ghostrifter Official | / ghostrifter-official
Music promoted by www.chosic.com/free-music/all/
Creative Commons Attribution-ShareAlike 3.0 Unported
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Still Awake by Ghostrifter Official | / ghostrifter-official
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I'm under investigation for FND, it's so comforting to hear people talk about it in a not so serious medical way. Sending love
you’re not alone 💜
Yeah, this video is similar to what happened to me when I was 9 and a week later I got diagnosed with FND, I couldn’t move from the neck down for 5 days, the doctors didn’t know what was wrong with me until I went to great ormand street hospital and They diagnosed me there, it’s really amazing seeing ppl just like me speaking out about their experiences
@@Zara_Beth Bless your heart I'm so sorry to hear that but it's good that your okay and doing better and I'm watch a lot of your videos and they are very helpful and inspirational but your awesome in each and every way Much Love 2 Ya Wonderful Zara 🤗😊☺️😉🥰❤️💜💙💛💚🧡🤍🤎✨💫⭐✌️👍👌🤘🤙💯
EXACTLY
@@Zara_BethI’m here for you ❤❤
Fellow FND warrior here! I’ve been paralysed for almost two months in my legs now, it’s a cruel condition, we are so strong
I’ve got fnd aswell and I get tremors, I’ve got them in my legs rn, it’s weird to think our brains are controlling all this
@Daathiel I’ve learned to cope with my symptoms, I’ve had fnd since I was 9, I was the youngest one in great ormand street hospital to be diagnosed, you usually get diagnosed as an adult or teenager but I was only 9 so it’s quite hard with the trauma from everything that happened
I'm over here struggling with GERD. I can barely eat sometimes, foods would get stuck, water would get stuck. It's terrible and it gives me the worst anxiety (along with another list of awful symptoms)
I'm trying to look at your situation and understand it. It sounds terrifying. I've been following you for awhile now and I hope one day both of us find answers. I guess life could always be worse, right?
We're doing fine though. We're strong and have a will to live a normal life. Don't let these medical conditions defeat us!
Once I get myself established again, I'll help your gofundme out.
❤️
God bless you💜🙏
I have GERD as well! It’s so interesting to see someone else like me!
@@Zara_Beth did they have scans
I’ve got GERD aswell but it isn’t as bad, I’ve also got FND but I don’t get tics or seizers, I loose the ability to control my body, I get tremors and atm I have tremors in my legs and that makes it hard to walk, it’s amazing to see other people just like me speaking out about their experiences
My mother was diagnosed with FND late 2020. She had been working as a chef in café kitchens as her fulltime career.
One day she was OnShift at the café, some large and heavy metal hospitality trays fell from where another worker had poorly stacked them above. Unfortunately my mum was standing directly under them when they had fallen. She says that all she remembers was looking down and seeing the trays scattered on the kitchen ground, somewhat unaware that they had hit her. Her co-workers got her to stop working and rest at a table for 20 minutes and later she drove home.
We believed it was a serious concussion the first few nights after the accident but when my mum had returned to work I think the same week, she could not read or understand the food order dockets. As an experienced cook with exceptional hospitality skills, she couldn't understand her surroundings or the recipes for meals.
Now in 2023, my mum has not worked for 3 years since her accident (as advised by health professionals). She can't drive and needs to take frequent naps during the days. Some nights everyone is able to routinely get ready for bed and sleep but frequently my dad and I spend up to half an hour helping my mum as her body shuts down and she collapses to the floor, sometimes in our presence and other times alone in a different room of the house. Her brain can't signal to her throat muscles to swallow saliva and they tense up causing her to seemingly choke. When she is conscious, she's hyper sensitive to loud or high pitched noises, she says fast motion through her eyes sends zaps to her brain such as movies, being in the passenger seat, and even walking past others in public. With her needing more time to articulate things, she also struggles with a speech impediment caused by the FND. Her fingers can also freeze up as well as her legs and feet causing her to be stuck in place.
Instead of getting better, her condition continuously changes as we all have to learn to understand and deal with the variety of symptoms. When those nightly episodes occur, it usually happens once before bed and when she recovers we help her into bed so she can sleep. But last night she had three in a row where she just had to lay on the ground of my aunties house with a pillow under her head. Her eyes go dazed and it's almost like nobody is there until her body becomes conscious again.
Anyways she still has her great personality and she's still the lovely woman who raised my sister and I so we're lucky she is still here with us. We all cope with jokes but as a whole it is scary how much FND varies in symptoms. My parents are currently legally battling with the issue between the café and it's insurance company, seeking the correct amount of compensation. I just wanted to share our experience of this condition as we are all still learning how to navigate it. Hopefully in future things begin to get a little better... :)
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wow i am so sorry your mother is going through that, but wow your mama is strong to go through all that. if you are alright with sharing, i was wondering, how did she get diagnosed with FND? 5 months ago i was having seizures, tics, paralysis, memory loss, and extreme brain fog. 3 months later i was diagnosed with FND after an MRI, EEG, and genetic testing. unfortunately we found out a week ago that i was misdiagnosed and that it’s not uncommon of so many people to be misdiagnosed with FND and that’s why treatment isn’t working or isn’t working enough. when they thought i had FND my treatment was cognitive behavioral therapy. they thought i had gone through some sort of trauma and that’s why i had FND. the CBT was completely useless (especially since i had already been attending CBT therapy for a year) but last week we found out my issues were caused due to an autoimmune disease which was attacking my brain and creating inflammation. on top of that i have dysautonomia and a couple other problems that despite working with medical specialists for years, no one had bothered to test for!
i realize my condition is extremely different from your mother’s, but i encourage y’all not to stop your investigations. if i hadn’t consulted with 4 different doctors, i may have had 5 seizures a day forever. good luck to your sweet mama! i hope she will maintain hope ❤❤
Thank you so much. She had gotten an MRI test done in the early stages of the accident and it's the only neurological disorder that aligns with her symptoms. And my mum was healthy and independent before the accident, so there were no pre-existing health issues. It's just simply a major brain trauma. Your words and prayers mean heaps to me and I hope you yourself continue to thrive in your life.
can i ask why was she diagnosed with fnd and not an acquired brain injury and/or post concussion syndrome? fnd isn't meant to be diagnosed if there's an obvious physical trigger like that.
you seem like a great daughter, helping her like that.
8:24 GIRLLL IKR THEY ARE SO PAINFUL- had to get my bloods taken a few weeks ago they thought I hit my head and that it caused brain damage but turns out my anxiety was causing really bad physical pain I couldn’t eat or drink anything for a whole week😻 kinda sad tho they couldn’t give me any anxiety medication because I was still too low on the Camhs waiting list and their was nothing they could do :/ oh well.. I HOPE YOUR OK NOW LOVELY MY FRIENDS WAITING TO BE DIAGNOSED WITH FND SHE ALSO HAS TICS AND ITS A PAINFUL PROCESS FOR HER TOO SO IM GLAD YOU GOT IT SORTED💗💗💗
i hope everything is getting better!!
its easing up a bit now!!
@@Zara_Beth that's good and you are so strong I couldn't even imagine going through what you had to that night
I hope you get better
Im so glad you're okay and continue to be. That night must've really sucked but you got through it and this is amazing.
I've never heard of FND but im excited to educate myself on it. :)
So glad you could get that wheelchair!
Can't wait to continue watching your youtube videos.
im the same age as you and its crazy to think about what you have to go through, honestly you are so brave for still trooping through all of this, recently ive been paralyses in my legs for 2 miniutes to 30 miniutes which is really scary when no one believes me but i just rememeber that ill be 18 soon, and ill be able to move out and go to the doctors ❤❤
I know your comment is very old but it really hit me that you are going through this without support from your family. I hope things have changed since it sounds like you might be 18 now. Please reach out online to social services who may be able to help you. I don't know which ones so hopefully if you post in reddit you can get suggestions. Anyway, I hope things are better for you.
That sounds terrible :( im glad your much better now and that you have your wheelchair! ❤️❤️
You are such an inspiration. The positive outlook you have is really good and important. All the best to you 💖
Oh, darling! God bless you! Thank you for this channel. The educational side of it is unvaluable🤍
I’m sorry! Your story is sad but a reminder that there’s hope in the little things!
You are a great positive role model! Thank you for your videos!
Your such a strong young lady and I wish you nothing but the best and a speedy recovery ..I always look forward to your post and seeing how your doing..
Forever Beautiful and strong!..
“Peace be the Journey “..❤️
Zara you are a huge inspiration to me and hope you feel better soon ❤️❤️
This is horrible. No one should go through this. I am so sorry. 🥺
You're so strong Zara. 🥰
I love you. 💝
this was so interesting to watch and i feel like i learned a lot, thank you for posting this and i hope you get better soon
I feel you have given a great insight into living with the unpredictability of severe FND at such a young age, and facing the possibility of occasional paralysis.
It puts a whole new light on living with disability per se, for me and my parents as we don't have major fluctuations to contend with.
I pray you get all the support you need and deserve as you help people through videos like this one.
I pray that you will be ok 🙏🏻💗
You are such a warrior and an angel and such an inspiration. Ilysm and thank you for spreading awareness for what you have been going through 🥺🙏🏻
I have had FND (NEAD) attacks since 2019. It's reassuring to see more awareness and being shown in a more open way.
You’re so sweet and lovely, I don’t know you, but I get so much strong positive energy from you
You’re amazing, awesome, beautiful and so so brave! Thank you so much for sharing your story. You are spreading awareness about your illness. You rock ❤️❤️❤️🙌🙌👍👍
I was diagnosed with FND last year after a suspected stroke it took 5 years to be diagnosed and still don’t know much about it… 🙈 I hope you’re doing great ❤
You are so positive and happy keep going with your happy spirit 🤘
Get well soon I'm glad your paralysis went away stay strong
You are so inspiring and such a strong person! Love you❤️❤️
I have FND. I have no feeling from waist down. I have been like this for two years now.
I can walk but it can't feel anything at all.
I would love to feel my legs again.
This is the most wholesome comment section ever omg😭💞
I hope everything gets better!♡ Ur a huge inspiration for a lot of ppl💖
Holy crap i am so sorry. Hope you're doing better now!
compared to this, a million times better
Hope your feeling better soon and your a brave girl. Keep yer chin up your doing great raising awareness about tics and fnd
I happy you finally got answers but it is sad that it takes years to find the answer to our bodies. But, I'm so happy your doing better😊😊❤️, keep fighting!!!!!
I so support your conditions! You’re so special and such an amazing person, and i hope you never give up and keep going! I have two conditions, psoriasis and Scoliosis, i have really bad psoriasis, and a 15 degree spine angle, having scoliosis is so painful, and i have a quite small curve, and i couldnt imagine what people with a major curve would be like, but mine is extremely painful at one point throughout everyday of my life, i swear it sucks
Hey Zara! Take good care of yourself! 🤗🤗 Love you from this end
You are such a brave young lady I watching this for info as my 22 year old daughter as just been diagnosed with fnd thank you for taking the time to inform others 👍
Hope you get better soon🥰 , I want to say thank you for all the videos you make because you brought a lot of awareness to me ❤
And I really like you videos, best of luck to you 💖
Thank you so much for sharing! You are doing such amazing advocacy work Zara!
I've had temporary full body paralysis twice from extreme stress/anxiety and it's so scary when you realise after a few hours that all I could do was move my eyes and head around a bit. I couldn't speak as I have situational mutism so I couldn't call out for help or even indicate to my wife periodically checking in that anything was wrong. It's not fun. I think I only got out of it after 3 hours by tricking my body into doing something else that could be instantly achievable which then removed my PDA demand avoidant response and I could finally start to more again.
I’ve had the same thing in the past! When I was a sophomore in high school I kept going complexly paralyzed and unresponsive so they tested me for seizures, but we eventually came to the conclusion that it was extreme, sudden, catatonia brought on by extreme stress and anxiety. Still don’t know if that’s really what it was, but I haven’t had that issue in 4 years so we haven’t thought about it
@@ALDCBoulevard yes that's what I had. I didn't realise until a few months ago that I had experienced catatonia so that sounds accurate to me.
Best advice is to look after yourself and listen to your body. It's hard to even realise as we likely are anxious all the time and we are so use to "pushing through it"
I have transverse myelitis and was paralyzed from the neck down also. It's really scary. I'm glad you are okay.
I hope you feel better
Oh no! Hope you have fully recovered and are okay! Also I was your 1000th viewer on this video!
❤️
They suspected a stroke, but then still left you waiting for 6 hours in a corridor? Omg ... I don´t know much about UK, but this sounds terrible ... 😦
Stay strong! 💛💛💛
They wouldn’t have left her there for so long if they thought she’d actually had a stroke, it was just that there were people present who had had strokes as it’s a neurological department and the doctors there specialise in things like strokes 😀
Zara you are amazing and so brave ❤ xx
I hope you get better soon :)
Hope you get better soon hun xx
This is amazing!!
🙌❤️
You have the personality that's stronger than anything that happens to you. for everything else, you have us ↑↓
I’m also under investigation for FND and I struggle so much thank for this video I feel less alone
@8:48 I think trolley in the UK sounds about right and in the US we call it a gurney. A stretcher is typically what they use to transport with that are like a cot but with no legs. It has long poles with fabric supported between the poles. This typically what they used in the military for transporting patients from a bus or other vehicle into the surgery area.
Can we appreciate how she talks about her medical issues in front of over like a million people?
kinda terrifying but if it helps/educates people it’s worth it :)
@@Zara_Beth OMG OMG HIIII I LOVE YOUR VIDEOS YOUR MY FAVORITE TH-camR! And I hope everything goes good in the future!!!:)))))
OMG! I had a very similar experience. Only mine lasted for about like 5 or 6 hours where I could not move anything but a little nod or shake of my head. I couldn't speak. But I was very much aware and it was very scary because I couldn't say anything for myself and I didn't have anyone there with me in the ER. And then just recently I started having major seizure/tremor episodes and I can't really walk without assistance at the moment. ..... Your videos are really really helpful. I am 99% sure I have this, and I have an appointment with the neurologist this month--so I am hoping to get the diagnosis soon. A part of me is grieving the lost of autonomy and an able-bodied life. But, I know that I will be able to figure it out eventually and still live a fulfilled life. I just hate that I have to depend on other people for everything right now. I hate asking for help. But, I have to now. Anyway, I'm glad you got your wheel chair, I may need to get one eventually. Where did you go through to get a custom chair for yourself?
I had 2 brain surgeries in June of 2021... The first surgery went fine but the second one's recovery period was beyond horrible. I couldn't move Anything from the neck down for many days. I had to rely on everyone for literally everything. It was the strangest experience of my entire life and due to the muscles atrophy from being bedridden for so long it is something I have to actively work on today. My right side is back to 100% thank God but my left I can tell still needs improvement.
I’ll be praying that God heals you. And that you make a full recovery
Thanks for sharing this 😊
Stay positive xx
9:41 I have a foot condition and sometimes that causes my feet to be completely paralyzed I remember when it first happened I almost started crying I couldn’t move anything i thought I was dying thank god it only lasted for less than a minute I can’t imagine your whole body for 10 hours😭
Hope you guys feel better
support her
I love you zara ❤
When you have FND paralysis, do you ever get the urge to tic in that body part but you can't? Also can you feel that body part when somebody touches it? (I have tics and we'rethinking FND bc my hands and legs etc keep not being able to move but I get so close to moving them but can't. does that even make any sense?). Xx
Zara, please answer Ran B's question when you can. As one of your fans, I am curious about this too.
i dont tic in that body part no, the brain signals there just cut off which includes tic signals too - i can feel pain (it usually burns/tingles/feels numb in the paralysed limb) and i can usually feel if you touched me
@@Zara_Beth okay thank you 😊 that's the same with me 😅
From someone with seizures to someone else with them, I’m struggling with the diagnosis of epilepsy but the older I get the less it seems I have it. The symptoms don’t seem to fit and new symptoms like “motor tics” have been becoming more common the past few years. Any tips? I’ll be 19 in a few months.
It is so good to hear from some one else who has been through this. Got diagnosed in with FND in August. First episode took out all four limbs and lasted over 30hrs. Now it can be my whole body, face, eyes, everything. Can only make small noises with my throat. Do you feel a kind of thrumming or buzzing with heaviness in your limbs when it happens? Like sinking slowly in water? What are some of your triggers?
I once made a brand new out-of-the-box baby doctor cry because he couldn't get a canula into my hand. A nurse had to take him away, making reassuring noises. He'd actually managed to bend the canula needle, poor lad.
My niece was diagnosed with FND after being knocked of her bicycle by a hit and run accident.
i was diagnosed with fnd about 2 months ago but my symptoms started in april. the other day my neurologist told me FND was the second most common illness to be diagnosed at the hospital i was at. they even had a specific wing of the hospital for people with FND. i thought that was kind of crazy, knowing how hard it is to be diagnosed with it.
She helped me get answers and the specialist diagnosed me with FND
I love watching your TH-cam channel
I love 111, but yeah they need more resources. It's also worth noting that they can book consultations with the out-of-hours GP if needed. They're a really good triage point, especially when other services are closed.
It must've been such a relief to get your diagnosis - hope you're doing better now.
You made some good points about 111. What both 111 and 999 need are people who don’t call for dumb reasons or who go to their gp or whatever the UK version of a walk in urgent care is instead of using emergency services for non life threatening situations or something that doesn’t need to be seen immediately. If you use an ambulance as a taxi you can cost someone else their life because there isn’t an ambulance to get to them in time. If you need a ride, call an actual taxi, Uber, friend or family member, or take public transit. Don’t cost someone their life. Zara and her mom were very warranted in calling and they didn’t even request it for themselves. They called 111 first to check symptoms. If everyone thought through things like this brave young lady did, resources could be utilized more efficiently and effectively. She shouldn’t have had to wait to for that long for an ambulance. To Zara, thank you for being vulnerable and authentic throughout this video showing your struggles through to a diagnosis and not editing out when you had the seizure and tics, labeling on the video, and owning it. Disabilities and diagnoses don’t define a person, they are a part of what makes you the person you are.
@@vagirl19 Yes, that's definitely part of it and there was a campaign a couple of years ago to inform people what the most appropriate service was (from 999 to a pharmacy). However, there are also other issues putting strain on the services.
We do have walk-in clinics, but they're usually attached to hospitals or occasionally doctor's surgeries, so the triage at A&E (accident and emergency) will just send you there if you don't need A&E.
Both A&E and 999 work on similar triaging systems, where the most urgent cases get seen first and time wasters will have a *long* wait! So if you ring 999 and don't need an ambulance, they either won't dispatch one or they'll tell you it would be quicker to make your own way there, if you can. We also have non-emergency ambulances for people who can't get themselves to/from the hospital and special ones for transporting dead people in.
The main issues with stretched resources are due to lack of funding (including abysmal pay for the lower levels) and poor working conditions causing people to leave, due to stress.
There have also been issues with wait times, caused by a backlog in the system, ultimately culminating in the first ever paramedics strike (although they were still responding to category 1 emergencies). The problem is that there aren't enough care in the community and care home places (the latter not covered by the NHS) and also a shortage of mental health and psychiatric places, so people who shouldn't be on a ward anymore get stuck there taking up a bed. This cascades all the way down the system until you get to the ambulances - paramedics are not allowed to leave a patient at hospital, until there's been a handover. So when A&E can't send people up to the wards, they can't triage new patients properly including handovers from the paramedics, this ultimately led to ambulances *queuing* to get into the hospital and therefore not being able to go back out to new patients.
They're also still trying to shift backlogs from covid, to which the government's solution seems to be to make it harder for people to get onto the waiting lists, rather than increase capacity. Some minor cases are dealt with privately (funded by the NHS), but more complex cases can only be seen by the NHS.
So yeah, there are people who abuse the system, but there are larger issues with the NHS mainly stemming from lack of funding and mismanagement. The actual doctors, nurses, health care assistants, paramedics, etc are generally fantastic though.
omg exact same thing happened to me i was treated like an adult when i was paralysed from the neck down and said that they had to count me as a possible stroke patient even though i had an fnd diagnosis already then after 10 hours in a and e i got sent home with an urgent neurology referral
for a treatment plan and mobility aids which later got denied as they said "we believe its psychiatry" might have as well said we don't believe you and i'm now in another paralysis episode and since i have no wheelchair im stuck in the house i could not be more pissed
@@ZeeKing87 the joys of having FND 😐😖
doctors are so invalidating ffs, we had to buy all my aids ourselves, we’ve spent thousands 😳 go fund me was so useful though, we wouldn’t have gotten anything without jt
They told me I had a TIA and Stroke I was paralyzed all right side for a whole year and more and have lasting effects..also brain fog memory loss and the tourettes and tix... 😮 Never been diagnosed other than Tourettes and OCDs and Tix ❤
First off I wanted to say that I love your positive attitude! Now what I am going to suggest is something you should NOT try without consulting your doctor. I'm wondering if POTS postural orthostatic tachycardia is part of your FND You might want to ask about that and see if increasing your salt intake would help with the fainting. What this will do is get you to retain fluid and help keep you from fainting. What's happening is that the vessels are not doing enough to keep enough to keep blood flowing to the brain. I'm guessing that the fainting may be from when you stand up or similar things. Again please make sure that you discuss this with your doctor. Also sugar and caffein are diuretics. This also includes medications that help with the cramping and bloating with periods.
I'm so sorry ❤❤❤❤❤❤❤♡♡♡♡♡♡♡
thanks for sharing 👍
So I have diabetes and just had a seizure so now my bg is low and I’m so tired I also have missed 2 days of school because of a terrible head ack. I also am blind on my right side and I’m clumsy after seizures so I have dropped so many things and I bumped into the wall a lot. I understand you very much I was recently put in the hospital for 9 days to determine if I need brain surgery to get rid of my seizures but girl I feel you and I’m so proud that you can get threw this I feel like I can’t even right now. Just so you know I’m almost 16 so I’m pretty young for my diagnosis. And I have a total of 7 determined medical diagnosis. But I don’t know their could be more.
Im pretty sure i have tourretts ive been diagnosed for pretty much a year and have more than 7 ticks and they are motar and vocal. love your content
I love the stroke unit 😅, I was in the pediatric bit tho , now I am adult bit now but I haven't had more strokes
Hope the best for you
I know how you feel being the youngest person in an older person related ward when going to hospital its the same for clinics as well you get looked at like you shouldn't be there 🤣
You've been away for a long time, Zara, are you okay? ❤️🥰
yes, just been super busy with college and health flare ups but got some content edited now
This is completely off topic, and I'm genuinely not meaning anything negative at all, but one of your tics is a really good imitation of a Howler Monkey call. I'm impressed ❤
In all seriousness, you seem like a lovely young woman, and I'm glad you finally have a diagnosis. It's empowering sometimes❤
I'm glad you got your wheelchair 💛💛💛
Some thing that I get is sleep paralysis it is so painful for me I feel like I’m on fire but I can’t move the only way I can stop it is trying to move my toe so seeing some one who gets normal paralysis it reminds me of what happens to me
Hello! I’m glad your doing so much better. I have a quick question through, does everyone with Tourette’s or a tic disorder have another neurological condition with it? Or can it just be Tourettes?
no, it’s not as common to have two neurological conditions but it’s very common to have a comorbid mental disorder such as anxiety/adhd/ocd/autism
I am sorry that you want through all that 😮 12:23
My last wave of paralysis in my legs lasted from just before August to Friday November. I could run again but it has come back sadly.
you’ll get there again ❤️ try and enjoy the things you can do x
I am not diagnosed with Tourette syndrome but I have been ticing since I was 9
I have a walking disability and I have the same crutches they are amazing!!! Where did you give the fuzzy handles
Ok I have a question. When u fainted did u still have tics? Btw love you
omg i have those exact bracelets!! twinzies :D
yes
My mom has Epilepsy and she is one of the bosses sort of, or the BC Epilepsy Society
I have been told that I have Conversion Disorder but don't have an official diagnosis yet. I also have Fibromyalgia. I can relate to almost everything you said in this video. Is there anything I can do at home while waiting to talk to my Dr about it?
Get checked for EDS, craniocervical instability and chiari malformation
So I’m so interested in people who have tics or disabilities you are a huge inspiration to me my cousin has Tourette’s so this helps me and helps me understand what she’s going through and your family Christmas and she was there and she’s always just there standing there next to her mom but then we actually got together and we were in my room of course my other cousins had to interrupt and they were being very annoying and they were joking about setting off her Tourette’s and I was trying to make them stop and they wouldn’t and they I was I don’t know but we found a lot of things in common we’re definitely closer to family and you help me understand and I don’t know how to explain Tourette’s to my other cousins because she has Tourette’s tried but it didn’t work and I feel so sorry for her thank you for being an inspiration
For anyone wondering 999 is just 911 in the UK :)
When you are paralyzed, can you feel pain/pressure (or anything for that matter) in your paralyzed limbs?
I can’t speak for Zara but it’s different for different people. Generally when paralysis onsets people have no feeling,but some people can feel pressure, pain or even sometimes feeling, but obviously still can’t move. Generally people though its like they go numb. It also depends where the paralysis stems from and why as to whether people can
here i could feel pressure or if you pricked my leg for example, but they were tingly and sort of like that feeling after you’ve sat on your foot for too long (if you get what i mean) even though i’d just been lay flat
i have FND too :)
Today I had a bad tic day a could not walk but I hope you have a good day
shank has arrived!
My mom is also kinda worried for me to cause yesterday I was taking a walk with my mom and I passed out my mom called the ambulance and I woke up when they where putting me in the back of the ambulance
Did you have tics while you were paralyzed ? Glad you are doing better!,
not during this episode as when i have seizure activity i don’t tic (minus facial twitches)
Love you