Kidney Disease: The symptoms of Kidney Failure I had.
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- เผยแพร่เมื่อ 30 พ.ค. 2024
- Third video in my Preparing for Kidney Failure series.
Part 1: • Kidney Disease: Functi...
Part 2: • Kidney Disease: My Sto...
In this video I go over many of the symptoms I experienced from Stage 3 Kidney Disease to Stage 4 Kidney Disease and ends with Kidney Failure.
If you have experienced or are going through kidney failure please leave a comment below to help others who are just starting out on this journey. Thank you!!
Timestamps:
00:00 Intro
00:28 Stage 3 Symptoms
03:36 Stage 4 Symptoms
08:16 Excepting Kidney Failure
08:53 Unusual Symptoms
10:13 Transitioning to End Stage
10:55 You're worth the fight
NOTE: My channel is for awareness, community and entertainment purposes only. Nothing on my channel is meant to be taken as medical advice. I am not a doctor nor am I medically trained. I'm a patient who is suffering from Kidney Failure caused by FSGS. I'm sharing my own experience and own opinions. Be your own health advocate as you work with your healthcare provider.
Baxter supplies my Cycler, PD fluids and supplies. My supplies are delivered to my home.
#kidneydisease #kidneyfailure #chronickidneydisease #kidneyfailuresymptoms
I had Stage 3 Ranal Failure . My EGFR was 34 and I managed to bring it up to 62. Its took about 18 months but what I'm doing is helping. I fast , I fast for 16 hours and leave an 8 hour window for eating. What you eat and long walks will help tremendously.
Thank you for your comment and sharing your experience managing your Kidney disease. Eating healthy and exercising is so important!
That is what I do and it works One meal a day. I do exercising too. Run mostly. Get your heart rate up. Stop eating sugar. 8 years stage 3 and has not gotten worse. Never seen a kidney nephrologist. Did all on my own. I keep Blood Pressure under 120/80 with exercising eating right. Eat chicken, fish and salads. water. Stay away from ibuprofen too.
Get a urine test. Gfr can be manipulated by drinking lots of water and is not a true reflection of damage. I've been researching this so it's a good idea to do so.
are you doinv keto?
@@barrodarwin yes doing keto with intermittent fasting.
My gfr is 15.65, creatinine 3.4. We are discussing pd dialysis. You are so down to earth and easy to relate to.
@@marybarbara7986 Correct comment on the wrong channel.
Kidney failure is a serious topic as our quality of life will be seriously affected.
Haemodialyis is better for you in my opinion, yes I’ve been on both. Any questions please ask me as I’m a very long time kidney transplant patient 1994 until now.
Watching this at currently 3am May 2 2023
My dad is at end stage kidney failure, will need to start diálisis very soon.
Please pray for him, if you are a believer in God, pray for every person going thru this.❤
I will pray for youf father’s improved health.
Thank you. My son has been on dialysis for 5yrs. He doesn't talk that much about it. He's had two children since then and is waiting for a kidney. He's very hopeful about life and what direction he needs to go. God bless you and thanks for the insight about CDK.
I'm at stage 3 gfr of 55. I have a lot of the symptoms you have mentioned for my stage. I didn't realize just how many symptoms this can cause. I really think my cognitive issues are thw worst. My therapist has tried everything and said she never had someone go through mind battles like i have that was related only to mental health. Im am so unclear and unable to comprehend very well. The brain fog is almost unbearable. Hope all goes well with you in the future.
Thank you. I lived through what you'd described in the video. It wasn't easy but I got through it. There is a light at the end of that long long tunnel.
OMG - I feel so touched by your generous sharing. And what you said at the end was strong. We have to hold tight onto your words - for whatever reason - health or otherwise:
‘You are worth the fight’
Gosh! What a beautiful, and wonderful woman you are!
Thank you for your comment. I really hope I can encourage and impower people.
You have put into words the exact checklist of symptoms Ive gone through. Thank you for sharing 🙏
Over the years doctors haven't helped much in a holistic way. (Just specialist organ specific) Its only by hearing from someone who is experiencing something similar, that the confusion and fog of not knowing finally lifts
I dont feel so alone now.❤
You can't put a price on how your chanel helps people.
Thank you.😊
You are a force for good in the world. Thank you for sharing and educating others on this all too common problem. I'm so grateful.
Thank you for opening up and sharing your story. Im waffling between home hemo and PD and getting a visual of what its actually like; and what your day is like is helping me to prepare psychology for what is coming. Knowing that im not alone with those random toe/ feet charlie horses is oddly cathartic. Thank you again for opening up.
I’ve been on PD for a little over six months and I can recommend it. It has been my experience that people on Hemo do not have as good a lifestyle for a number of reasons. 1) The people that I’ve talked with have indicated that the Hemo sessions are very draining. The talk about being really tired after the sessions. 2) I have read about cases where the patient has problems with the blood vessels in their arm after being n Hemo for a long time. 3) Worst of all is the time that Hemo takes. You are probably looking at three sessions a week of about five hours. There is one more point that I can’t find any studies on but I believe that PD is easier on your body because you are doing PD daily and this keeps your body on a better equilibrium than Hemo. The other big advantage is that you do PD at night once you get on the cycler so you aren’t messing up your week with Hemo appointments. I’m not saying that PD is perfect by any means but for me it is the best option. If you have any questions that I can answer leave a comment here and I’ll try and answer them for you.
In home hemodialysis can be done on a very flexible schedule, as long as you get 12 hours of treatment per week.
One difference between PD and in home hemo, is you can do PD by yourself. In home hemo requires a partner.
I chose going to the dialysis center. I have ADPKD and there’s not enough room in my abdomen to do PD. Hemodialysis was my only option.
When I came home, I wanted to be home and unwind, and turning part of my home into a dialysis treatment area and dealing with storing supplies, etc. was more than I wanted to deal with.
In home dialysis, whether PD or hemodialysis, is gentler on the body than in center treatment, because daily dialysis cleans the toxins out everyday, so they don’t build up over the 48 hours between in center appointments.
My husband was just 53. He used to get exhausted after every dialysis session. He could barely manage dialysis for 2 months and breathed his last 2 weeks ago.
We were shocked and devastated as we were planning for kidney transplantation
Thank God for your ability to articulate the symptoms of this disease. My 28 year old son, experiences many of them, but the doctors say theres nothing serious wrong with him. This gives us the information to seek more medical intervention. Prayers for your journey.❤
I hope you are able to get answers and find a doctor that will take you seriously! I'm so sorry for the frustration you are experiencing.
Im stage 4, my kidney function is 22%. I have polycystic kidney disease, inherited from my mother. She died aged 55, Im turning 60 this year. Except for pain, and feeling tired and a bit nauseus in the morning I feel fine 😊
You have a great attitude about this, you are an inspiration. I am 3rd state CKD, my mother died from it because she wouldn't do dialysis. It is a hard disease, but one where we can keep positive.
Thank you for your positive comment!
Thank you for these videos. You are helping others more than you know.
Thanks for your kind comment!
God bless you for making this video. I'm in the calve cramping stage
I am on my end-stage now at 12 eGFR, I am 42 and I am working full-time as an art teacher. I have all the symptoms you've mentioned. I am not on dialysis and have no plans of having a kidney transplant. Sometimes I am scared, but I just give it all to Jesus and He will comfort me. Being ill every day is something I am tired of.
I can relate to a lot of these symptoms. I've been treated for hypertension for years, but was told last Nov that I had stage 3 ckd. Then weeks later, pre-diabetic. I started going to the doctors because I had trouble breathing... chest congestion that i can't get rid of. I can't catch my breath when climbing stair. I would tell my doctor about symptoms I'm having...swelling in feet, achyness in back, maybe bloated in stomach that I want to rub my stomach all of the time, lack of concentration cramps in toes and feet, and looks like it's no big deal from my doctor. While trying to watch my sugar and salt intake, I've lost 20 pounds. Lately I get dizziness while standing. I just want to lay down and sleep. I sleep a lot now. I understand the feeling of acceptance. I'm 73, and know I won't and I don't want to live forever. I want to tell my son and sister how I feel, but it seems like I'm complaining all of the time. I'm glad that you posted this video. I feel like I'm not alone.
Thank you for all your videos. I appreciate how honest and upbeat you are. Your encouragement is just what others need. 👏🏻👍🏻🤗
Thanks for explaining your journey through kidney disease. I have been in kidney failure for 4 years. Without dialysis. I have managed my disease with a regimine of daily meds. My creatinine is rising and my GFR is very low. M y other markers are ok from taking my meds. I am very scared now and figure my days are numbered but I keep waking up each day. There is no medical explanation for my condition so I feel GOD is in control of my destiny.
These videos are making everything real. My GFR is 8. I made an appt to see neurology because of my headaches. I get the cramps all the time thank you.
Your videos are amazing thank you for sharing your journey with us all
Thank you so much for making these videos. They have been so helpful. I pray for your healing and God bless you 🙏
Thank you for you kind words!
Thank you for another GREAT video.
I can't thank you enough for your video.
Thank you so much, you are a wonderful person. I feel like I have fought illness so much over my life and now have kidney problems, that I do not plan to do more if the time comes for dialysis. I have no children, my husband is tired or taking care of me and has problems of his own, so, what life would I be fighting for? My dad had all the same things as I do, and I saw him suffer through hemodialysis for about 3 years. He just couldn’t do it any longer and stopped. He had no quality of life, it was one emergency after another. I don’t need that, I’ve had too many things already. Sometimes there are just not enough reasons to keep going when you have multiple illnesses. God Bless you
Thank you 😊 for your outstanding advice and information about kidney disease ...., God bless you and your TH-cam Channel 🙏
I am having all the symptoms you have said also. the weight drop is crazy. i have very foamy urine. my puffy eyes and fatigue is a lot also. having next bloodwork next Thursday
I am a kidney failure person stage 4 last they said it keeps moving from 3-4? Now have to see my new nephrologist June 10th to see once.All them symptoms you mentioned I did or do, I tired short of breath. Anyway I just try to do day to day,it all I can do, don't like bad stuff only healthy.
I just found your channel and have been binge watching. Thank you so much for your genuine approach to sharing this valuable information. My husband is Stage 4 and doesn’t want to do any kind of dialysis because of what he’s seen his friend go through and how life changing it will be for him, but I plan to share you encouraging videos with him and hopefully he will see that it’s worth it and doable. He loves life and loves his family and most importantly we love him and NEED him to keep living. You’re such an inspiration to me. I can’t thank you enough for sharing your story. ❤
Thank you for letting me know my channel has been helpful to you! I do hope that my videos can be a voice of positivity and encouragement when dealing with Kidney Failure.
Thankyou very much sharing and many good information. I am more prepared for the future
Thank you!! I have several of these symptoms. You are awesome. I have subscribed. God bless you. 😩
Thank you for your comment!
Thank you 🙏 very much for sharing your journey. You sound like an amazing person. This is very valuable information.
Thank your for your kind words! I hope my videos will be helpful.
Thanks for your video, my partner has end kidney failure and I don't know what to do because we are on LDR relationship. He's going through dialysis already and with your video I completely understand it now 😢
Thank u for sharing🙏
My husband has been doing PD dialysis for a couple of months now. He’s feeling better and his numbers are getting better. What was so surprising is that he was fine, except for diabetes and high blood pressure. He wasn’t having any other issues. He was keeping up with all his appointments too. Next thing we know, he was stage 3/4, then 5. This all happened in a matter of a few months. The decline was very quick and painful for him. His doctors were shocked, yet were slow to get him started on dialysis. He was suffering and my kids and I were scared we wouldn’t make it each day. It took the doctors several months to get it together. We felt very hopeless and helpless. But now that he survived all that, he’s doing well and his energy and everything has been increasing each day. ❤
I had total kidney failure, it took from a Monday to Wednesday, I had no symptoms, the only symptoms I noticed was I was talking silly things, not remembering things, on the Wednesday morning I collapsed and woke up in the ICU after being in a coma for 4 days,
Mine was due to an infection, no idea how I got that, I was very lucky, no dialysis, I spent a week in ICU, then two weeks on a ward, it took me easily a year to fully recover, the only warding I has was the day before I had pain in my lower back where your kidney’s are, but I have had back surgery 8 years prior, so as I often get back pain , I thought it was just that,
So now I really listen to my body and I wish everyone who this has happened to , a full recovery and good health
Thank you for sharing your story. Thank must have been so hard going through soo much in such a short amount of time.
Very helpful. My gfr is 9. I’m struggling because I don’t want to do dialysis. I feel pretty good otherwise. Thank you for doing these videos.
Thank you SO much for sharing your experience. I have just gone to the nephrologidt after a bad kidney stone last month. I don’t know the test results yet. However, your mention of the cramps in your feet startled me. I have had cramps in my feet increasing since 2018. All the doctors I’ve been to insist it’s from peripheral neuropathy, but I have none of the tingling and burning sensations usually described. If they had thought to test my kidney function, maybe we could have prevented my getting to this point.
I hope you are able to get answers from your lab results! Thanks for sharing.
i'm stage 4, CFR about 21. This took years to get this bad. I have had a lot of cardiac related surgery and little by little my CFR went down to where it is today. Aside from +5 pitting adema I have fatigue and breathlessness severly limiting my day to day life. I have already got the literature for the different types of dialysis from my nefrologist. He says that I'm not there yet but it's good to be prepared and informed. I still have more cardiac surgeries coming up so we'll see how it goes... fingers crossed. At my age a transplant is off the books as is a new heart, we have to deal with what we got and make the best of things.
God bless you. Love you. Thank you.
You are precious.
10:21 Words cannot express how I feel on hearing this - the reality!
Thank God alone, for your mental clarity, against all odds!
Thank you so much for your faithful insights. May your own recovery/maintenance prevail. What an ignorant life this modern century covets. Through little fault of your own you've had to go through this. 🤗❤
🌿✨
Very brave.
Another great video. Question? Would having a adjustable bed help or not? I'm having a test again for my GFR. Keeping my fingers crossed. Every time a see a young person I think I wish I had their kidneys. Chuck.
I'm not sure. I haven't used an adjustable bed. It would have been nice to have when I was recovering from my PD Catheter surgery, but I haven't needed to change the height of my bed when using the Cycler at night. I did get a low dresser (from Goodwill) when I started PD to put the Cycler and bags on.
I have an interesting thing: I have Parkinson’s and I take several medications including amantadine. Amantadine can cause symptoms of kidney trouble without affecting glomerular function, including edema, mottled skin, and mildly elevated blood creatinine. If you have Parkinson’s, be aware! Because your neurologist might not be.
Thank you for sharing you knowledge!
GFR at 13. Extreme fatigue is self defeating. Unexpected weight loss and always cold. Just got a fistula Wed (yippee)
Thank you..
Your video's are amazing you are very brave for making them,I really felt so sad for you.I have so many illness you wouldn't believe it I have had diabetes for 48 yrs 2 heart attacks Addison's disease colitis spinal surgery fibromyalgia kidneys not so good left one is damaged due to 4 yrs urine infections getting Botox in my bladder in 2 weeks, hope it works,went into religion 11 yrs ago,and God has helped me so much ,I used to walk with Stick and disability scooter , don't use stick now I still have a lot of back ache due to kidneys or urine infections.I WISH YOU THE VERY BEST AND GOD BE WITH YOU AND YOUR FAMILY,xx 🙏💐🌷
thank you so much
I am terrified
It is scary finding out you have Kidney Disease. But learning as much as you can will help with the fear. I hope you have support of friends or family.
It's so sad seeing someone so misinformed about meat and protein. Your kidneys absolutely need it. I went from stage 3 to stage 2 in a couple of months going carnivore. DR Ken D Berry has great info about this. Hope all has worked out for you.
the ending was short but sweet
May God יהשוה heal all of you אכלתי, מלכות, וגבולה, וגבורה, לה עולם אָמֵן 🙏🏻🙏🏻🙏🏻
You are very amazing and strong person , i have aquestion what causes your kidney disease?!
thanks
I have stage 4 kidney failure I can see things in what you are saying I went to my gp because I was breathless and she sent me into my local hospital for tests and the last test was the kidney unit and when they seen my medication the told me to stop one thing because they had found that kidney failure was noticeable with this tablet and that was in 2017 I am ready for dialysis but not just at the right point they are trying to keep me if it for as long as they can but I see myself in you except I’m an awful lot older I’m still breathless and yes I can’t do much anymore but I know now the cause you take care
Thank your for sharing your experience and story. I hope you are able to keep you kidney's running as long as possible!
My nerves on my left leg is very painfull. I do not sleep at night. How can I cure it
I heard some where a friend of friends went through Stem cells therapy for complete Kidney regeneration step by step in the Kidney failure patients? Friend said he got his kidneys getting back to normal. Stem cells therapy didn't help you?
what causes your kidney failure?why does it still progress to kidney failure even thu u found it out on stage 3. pls reply, i too just recently found out ckd. thanks
This sounds so familiar to me I had Liver failure from NASH (nonalcoholic steatohepatitis) I couldn't eat almost all proteins or anything with salt in it or sugar and no Dairy. Same thing weird taste in my mouth and it wasn't metallic either just made these foods non palatable. The only thing I could eat were Veggies and fish. March of 2020 I was 180lbs and three weeks went down to 129lbs. I was waiting for a transplant but at this point I too had no strength and muscles were gone. Once I went to replace a fog light on my car I got down and was able to replace it and it took me 45min to figure out how to get up as I had no strength to do so. I didn't ask for help and I only told my near family about this and the folks at work saw I was declining and asked but I would make something up and change the subject. And the cramping drove me nuts, same thing feet, toes and calves. I did have itching only in the shins I scratched so much they would bleed 24hours. I tried so many creams and nothing helped. Because I had no muscles my innards wanted to come out and I was getting many hernias. Once I was rushed to the hospital for emergency surgery as my intestine popped out and twisted shutting it off Hence the emergency surgery.
I was given until December of 2020 (average wait time for a liver was 2 and a half years) and if no liver was found then I wouldn't make Christmas and I too as it was getting closer to the end of the year felt that resignation. I did Finally did get my liver (up here in Canada they don't do partial only full transplants) it was September 29th. I am coming to my third anniversary which means all should be good but now my kidney's are starting to go and I think it's the meds I have to take to live are now slowly killing my kidneys. All the best to you. I understand and felt your pain.
I'm having these now..especially nausea.
I can no longer keep my house remotely clean. Very discouraging
What initial tests should be done to detect issue?
Blood and urine
I believe in ''You Are What You Eat'' what was your usual foods before?
Help please I pray I don't have
Watch out for scams when looking for support groups!
But why is your face not swollen? When I drink a little bit too much water, my face gets soo puffy...
Did something cause your CKD? My kidneys were fine until I had taken Celebrex. I thought my fatigue was from my weight gain but I had that extra weight for a couple years,and wasn't exhausted.And really exhausted after moving, solo. But I'm realizing some of it is from CKD. I'm praying that in a month or two my new tests will show an improvement in my kidney function
What is your thoughts on the utube videos that claim to reverse kidney failure? Do you believe this is true?
Thanks for the question. My answer is yes and no. From what I understand, you can't heal the damaged parts of your Kidney BUT you can improve the function, slowing and even stopping the process of Kidney disease by changing a poor diet and life style to a better one.
In another comment you mentions Dadvice. I really like his channel and the dietitian he features. He suffered from KD because of his poor diet and lifestyle. When he started eating healthy and exercising his kidney function improved from end stage to stage 3.
For me, my Kidney Disease (I have FSGS) was not caused by a poor diet. Eating healthy, though I'm sure extended the life of my Kidney, had no effect on the disease attacking my Kidney's.
I know kidney damaged is irreversible, but u can prolong it by following renal diet. If you’re on stage 4-5, impossible to reverse it. I don’t know if these bloggers are saying d truth about stage 5 went down to stage 3? Do u believe it? I hope so cause I’m a CKD patient, too. Stage 3-B
@@kidneykeeping do u mean from end stage, is he on dialysis already? Otherwise he can’t urinate w/o dialysis, right.
I am not a doctor, but my understanding from conversations I've had with my doctors is that some things can be reversed. If you have inflammation in your kidneys because of poor dietary habits and high blood pressure, a lifestyle change can give your body the opportunity to heal. But you are correct that once the kidney is scarred, that damage cannot be reversed. A good diet is still important, so I have no problem with people who encourage it.
Went for 1st flush today. Still some leakage. Flush was good. Thursday go back to change dressing and check up. Got new IPad from clinic. Studying. I like everyone at the clinic.
I'm glad that your first flush went well. I remember being really nervous when the fluid started to fill up. I don't know what I expected, but I didn't need to be as afraid as I was. I'm happy to hear that everyone at the clinic is nice! Thanks for the update.
No need daylasis beacuse creatine under control
Is a kidney transplant not an option for you?
💐🌷🩷🙏🏻🫂🩷
I have constant pain in my right kidney. Consistent lethargy, sleeplessness, fatigue...and a cancerus growing on the throat. I hope that the story of pain and misery end soon.
Sorry to hear life is hard. Hang in there!