Waiting Over a Year for an Autism Diagnosis: Families Say the Government Has Let Them Down

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  • เผยแพร่เมื่อ 1 เม.ย. 2024
  • Today sees the start of World Autism Acceptance Week, and families say the government has let them down at every turn. There's been a huge jump in the number of people waiting for an autism diagnosis on the NHS. Quarterly figures released by the NHS in March, show that last year it rose by 47%.
    Kelly Burley tells GMB about how she has been told that her daughter will have to wait between 84 and 89 weeks for an initial assessment.
    Presenter Chris Packham, who was diagnosed with Asperger’s Syndrome when he was in his 40s, explains the impact of getting a diagnosis has had on him and his life.
    Broadcast on 02/04/24
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ความคิดเห็น • 142

  • @nicolabrown4574
    @nicolabrown4574 3 หลายเดือนก่อน +30

    It took 7 years from referral to diagnosis for my son. He was referred when he was 11 and diagnosed by 18! Most parents would be glad if it only took a year!

    • @bowjana8128
      @bowjana8128 3 หลายเดือนก่อน +3

      It's just because parents want more benefits

    • @Tiggysmum
      @Tiggysmum 3 หลายเดือนก่อน

      @@bowjana8128nothing to do with wanting more benefits,it’s to help get the RIGHT support at school or at home. Understanding their needs. If u watched the film the mother of 2 children with autism explains.

    • @annastybeach9064
      @annastybeach9064 3 หลายเดือนก่อน +2

      I can see how they would try and do that, but you can't fake it forever ;)

    • @user-po4nu4xo4m
      @user-po4nu4xo4m 3 หลายเดือนก่อน

      My Granddaughter was suffering and so unhappy. She new she was different but didn't know why. She had terrible melt downs self harming and we, her family, were not happy to wait a year we wanted her to be diagnosed much quicker and there was an option Go Private

    • @user-po4nu4xo4m
      @user-po4nu4xo4m 3 หลายเดือนก่อน +3

      If someone with autism gets benefits it's to help them get through their life.
      You cannot fake autism - not fittings in, having no friends, having melt downs, wishing you were dead to name a few. A professional would recognise the signs

  • @jujutrini8412
    @jujutrini8412 3 หลายเดือนก่อน +12

    There seems to be quite a lot of rich people and celebrities who have recently found out that they have autism/aspergers/adhd etc. These rich people need to club together and raise funds so that they can help the kids that are in desperate need as the state does not seem able or capable (or willing) to do this. Funds could be put to training specialists, educators, diagnosticians, schools, clinics, research etc. Rich people with these conditions in this country could totally do this if they wanted to.

  • @chrisburns1322
    @chrisburns1322 3 หลายเดือนก่อน +12

    We seem to be obsessed with children with autism when in reality most services stop after someone reaches adulthood.there is serious issue in terms of how we neglect autism.

  • @Vertigo-wm6lc
    @Vertigo-wm6lc 3 หลายเดือนก่อน +8

    Was told i had autism by a psychiatrist, then after waiting for annassessment was told no I dont. Think half the time the doctors dont even know themselves

    • @J4sonkempson
      @J4sonkempson 3 หลายเดือนก่อน +2

      You've probably been thrown off the list to keep numbers down, I had this and have had to push to make sure I'm still on the list.

  • @heatherlinnette189
    @heatherlinnette189 3 หลายเดือนก่อน +8

    My sister has two autistic children, both diagnosed, one more severe than the other. Her third child is on the waiting list to be diagnosed with autism. He’s been on that list for well over a year, there is no end in sight for him having a diagnosis. When she’s rung them up on it, they’ve said they don’t know when it would be, but he’s on the list. As he’s going to turn 16 and can refuse medical help within the next year, my sister has decided to go private. She’s lucky that she can afford to pay the fees it’s over £4000 for private assessment. A lot of people don’t have this type of money. But she feels like she’s been left with no choice. I myself have two autistic children, one diagnosed with autism, one diagnosed with Asperger’s. My older daughter had lots of problems as a child, but nobody suggested it was autism. She went off to university, thinking she could do it, and it nearly ended her. So she took two years out and tried to go back to university again, with in six weeks of being back at university. She was there, trying to end her own life. The psychiatrist decided that she had autism, but they’re not allowed to give an official diagnosis cause they’re not trained within autism. It then took five years! for my daughter to finally get a diagnosis. Her GP put on the medication that she would need if she was diagnosed with autism or what was wrong with her mental health. But the problem is with her mental health come about because she didn’t know who she was. She didn’t know why she was so different and why she couldn’t cope when everyone else around her could. I nearly lost my daughter. At one point of her life was held by a thread. All because the system from the very start to let her down. She was under the hospital as a little girl, because when she was in school, she would pretend she was in pain, but she was doing her subjects. She didn’t like to scare her teachers because I’d be very worried about her. She’s a very quiet child. So she was investigated by the paediatrician find out what a medical problem was all they could conclude was constipation. But that wasn’t the problem. The problem was autism. She always complains. She had no friends, but the other girls didn’t want to play with her. It’s hard to hear this when your child is beautiful and comes across as Friendly and has a sweet, kind personality. The flags were over for autism. I didn’t have a clue myself about autism. She couldn’t put her shoes on until she was nearly 11 to me, it made no sense she would destroy a pair of shoes every four weeks. She had to wear glasses, but she would break her glasses within days of half of them or simply lose them. When she was six years old, her test results showed up that she was blind, but clearly she can see. So she had to be tested within three months of that appointment. She was then diagnosed with severe eyesight problems, but she would not wear her glasses. She preferred to be in a own world, where everybody else has blocked out because she simply couldn’t see them. I didn’t realise this was what was going on when she was a child. I only realised that she potentially had autism when she was 18 after doing lots of research on the Internet. When I first told us, she said absolutely no way. After the first suicide attempt, I’m feeling desperate. She started to look at autism and the symptoms and recognised a lot of them within herself. At the same time, the psychiatrist she saw the very first psychiatrist suggested she might have autism. this is why an autism diagnosis is so important. It literally can save lives, would anybody be denied life-saving treatment? You would think not, but in the situation with autism, if they do not get the diagnosis, then it can be a death sentence. Because autism doesn’t go away. You do not grow out of it in my experience with my daughter, the symptoms and the problems associated with autism with the sensory issues become worse. The older she got. Nobody should have to go through this.

  • @SimonSmith-yd6tt
    @SimonSmith-yd6tt 3 หลายเดือนก่อน +24

    Even when the families get the diagnosis then the struggle really begins to get help in the seriously underfunded education system

    • @neeciiw7840
      @neeciiw7840 3 หลายเดือนก่อน +3

      Facts!! It took 6 yrs for a diagnosis about my so and now ask me what help have I had since 🤦🏾‍♀️

  • @jasonthomas208
    @jasonthomas208 3 หลายเดือนก่อน +5

    I had to wait 2 years for my assessment which took place last October and I was assessed positive as autistic. I'm 57 , took them long enough to work it out after going back and forth to the doctor my entire life with numerous issues! I had to pursue it off my own back as my doctor kept fobbing me off!

    • @AngelaDavis-yz3xf
      @AngelaDavis-yz3xf 3 หลายเดือนก่อน +1

      It's awful, I suspected my child had Autism, he was refused a referral for an assessment by our G.P. when he was 4.
      I0 years later he was diagnosed with being on the spectrum.

    • @jasonthomas208
      @jasonthomas208 3 หลายเดือนก่อน +2

      @@AngelaDavis-yz3xf I've gone 57 years being told to pull myself together, it's been a nightmare. sorry to hear about your son, hopefully catching it earlier will make a difference.

    • @AngelaDavis-yz3xf
      @AngelaDavis-yz3xf 3 หลายเดือนก่อน +1

      @@jasonthomas208 Thank you Jason, I wish you all the best 😊

  • @OptimisticAutistic
    @OptimisticAutistic 3 หลายเดือนก่อน +15

    One of many reasons why self-diagnosis is VALID and EMBRACED by Autistics regardless of their own diagnostic status/story. I was only able to get diagnosed by paying thousands out of pocket. Only possible with wealthy parents. End of story.

    • @Grover91
      @Grover91 3 หลายเดือนก่อน +4

      That's exactly what I'm desperately trying to save up for. It's ridiculous that to realistically get professionally assessed, we have to fork out enormous sums of money.

    • @msbebelle07
      @msbebelle07 3 หลายเดือนก่อน

      I live in Quebec, Canada, I did not want to wait, just paid for my daughter diagnostic, it cost 4 090$ for a neuropsychologist to do, she is what we called before Asperger…💕 I am not rich, I saved, hope you can to, have a blessed life 💕

  • @SIGSEGV1337
    @SIGSEGV1337 3 หลายเดือนก่อน +8

    well all the signs were ignored for decades, so now we're just at the point where society just suddenly collapses in ways we don't expect

  • @annastybeach9064
    @annastybeach9064 3 หลายเดือนก่อน +4

    No change there, my kid is 22 now, I fought for a diagnosis..got very little help, she had speech therapy but there was zero help for autism..groups, specialists..it is just awful. I worked in the USA in the 90's with children and adults with autism and other special needs and they were way ahead of us back then. Why do we pay tax for this? i want an opt out to pay for private health insurance pls. This lady did not state the obvious, you need a diagnosis so if you need care as an adult you can get it..ie my child got help when attended college, a quiet area etc etc..now as an adult was on the housing list and is in her own flat with a worker that checks on her well being from time to time..we do that too so all is fine, but we are not here forever.

  • @sherimillman53
    @sherimillman53 3 หลายเดือนก่อน +32

    We desperately need a new curriculum for autism and ADHD and other conditions

    • @joanne26
      @joanne26 3 หลายเดือนก่อน +3

      I was born in 1965 and it was not until the late1990’s did I hear of Autism.
      And it was not until the last 10-15 years had I heard of ADHD
      I have no direct family or wider family that suffers with these issues
      I now know how long it can take for the medical profession to ‘diagnose’
      Reading some of these comments it seems to be young kids and teenagers?
      Could it be to do with puberty/hormones??
      😍😍❤️❤️👍 👍 🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🥲

    • @angelaregan475
      @angelaregan475 3 หลายเดือนก่อน +4

      My grandson age 4 is one of the children waiting for a diagnosis. He developed perfectly normally and reached all milestones until the age of 1. He had the MMR jab and then regressed. Nothing will convince me that these jabs are safe.
      3 different vaccinations at one time must be too much for a little body to cope with.

    • @TrevorHerbert-dj1jl
      @TrevorHerbert-dj1jl 3 หลายเดือนก่อน +2

      ​@@joanne26great and interesting ideas, we will never know why these so called conditions occur. We can just understand it more, it can be sensed very early in infants if you look properly, its all about the education and understanding and previous knowledge. ❤❤❤🙏🙏🙏 good luck.

    • @joanne26
      @joanne26 3 หลายเดือนก่อน

      @@angelaregan475 your comment has made me think what did I have.
      I’ve looked on Google and the MMR jab only started in 1988. I thought it was later than that but time flies
      It says for anyone born before 1988 you may have received the measles vaccine and anyone born before 1970 - I was born in 1965 are likely to have had measles infection and were less likely to be at risk
      I do remember getting measles at around 7-8 (I had chicken pox at 11) so I guess I had immunity
      ❤️❤️🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿

    • @turokforever007
      @turokforever007 3 หลายเดือนก่อน

      @@angelaregan475 Everyone in the UK government who had kids got the jabs separately

  • @user-po4nu4xo4m
    @user-po4nu4xo4m 3 หลายเดือนก่อน +5

    My granddaughter has autism she was diagnosed 2 years ago, she was 17. 2 years ago there was a waiting list of about 1 year with the NHS so the family paid for her to go private for a diagnosis which was done in a month. Sadly she found it hard to make friends at school as she was different to other pupils in the class and didn't fit in especially when she got a bit older. She hated school/college and the strange girl sitting alone (my special granddaughter) received no help from the teachers. Once diagnosed things became much easier help and compassion was given to her by the teachers and extra time was allowed when sitting exams. When her schooling came to an end she was offered a job by her local council, as big concerns of this nature, have to employ people that have a condition in life. Today she is a confident young woman but tends to make friends with men and women that are about 10 years older than herself. In 2022 it cost about £2,000 to go to a private clinic for her diagnosis, money well spent.

    • @annastybeach9064
      @annastybeach9064 3 หลายเดือนก่อน

      Yes my daughter also went to council job interviews but was not their kind of autistic, even although has high PC and English skills ;) I am very happy your grand child had the opportunity and can flourish

  • @louise6119
    @louise6119 3 หลายเดือนก่อน +5

    I got diagnosed when I was 18 explained years of outrageous anxiety and feeling weird

  • @abbiebrown2733
    @abbiebrown2733 3 หลายเดือนก่อน +7

    The government are failing vulnerable children. A diagnosis is so important for autistic children to get the right support and thrive. It is so important for the child's mental health. Professionals need to take it serious. These children deserve a fulfilling life . There should be the right support. If an autistic child get the support they can go on to live a happy and positive life. We need to stop locking up autistic children and seeing them as different

    • @marionmoore665
      @marionmoore665 3 หลายเดือนก่อน

      Stop giving them the vaxines then. It would all be OK then. Why has this gone through the roof, since child vaxines. 😕?

  • @Darkwoods360
    @Darkwoods360 3 หลายเดือนก่อน +2

    My son school refused at 9 already with a diagnosis of Autism and we still had a fight to get him a special school placement. Once he had his new special school place things got significantly better for him and he had access to appropriate therapy’s for his severe sensory issues and the lower stimulation environment helped him progress and understand his own strengths and differences. I feel great empathy for people without diagnosis and it’s often so obvious that they have Autism. It is traumatic to leave children in negative environments and also causes issues for the other children witnessing autistic children in distress. The sensory struggles are often overlooked and from my experience most behaviour of concern is triggered by sensory issues. Good luck and hope you get a diagnosis soon and I would look to special school by secondary before to much PTSD builds up and a move is then in crisis instead of proactive to specialist support. Autism does not go away and a child can’t become neurotypical by being with others, so best to accept the Autism and access the special environment.

  • @leighannclements7849
    @leighannclements7849 3 หลายเดือนก่อน +18

    My son has been waiting for a diagnosis since he was 4 years old he is now 14. He was diagnosed with learning difficulties with complex needs in 2019 a year after the doctor put it down just to learning problems after speaking to a teacher that explained he hadn’t even dealt with my son. My son has been permanently excluded from two mainstream schools. Was left out of school for 2 and half years was being privately tutored at home. He finally got a special needs placement and the school doesn’t believe he has been diagnosed properly. My son does not sleep well never has needs medication so we currently have to go back from through the system. They also have said my son suffers with anxiety and depression and has had no help with it. We are in the east of England. It’s such a horrible situation and impacts the entire family. I’ve had to give work up I now suffer with depression anxiety stress and an eating disorder. It’s a absolute disgrace and against their human rights.

    • @joanne26
      @joanne26 3 หลายเดือนก่อน +3

      I have no direct family or wider family members connected with Autism
      It must be awful both for your son and your husband as carers.
      I was born in 1965 so grew up in the 70’s.
      As a society we never heard of Autism or being Autistic even into the 90’s
      Why are more young people suffering with this debilitating issue
      It’s taking such a long time for doctors to diagnose. I wonder why?
      The only subject that has been more in the news since the new millennium is ME chronic fatigue syndrome
      People who have suffered with this have had to wait decades and some doctors really cannot diagnose as they say it’s mental health and to do perhaps with puberty/hormones
      The NHS is being thrown all this money but they are being sued for all sorts of stuff £100 billion
      They get £250 odd billion
      🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿❤️❤️👍 👍

    • @leighannclements7849
      @leighannclements7849 3 หลายเดือนก่อน +1

      I’m a single parent yes it’s very hard and very emotional.

    • @peterwilliamskelhorn6675
      @peterwilliamskelhorn6675 3 หลายเดือนก่อน +2

      ​@@leighannclements7849thats true my mum always knew something was wrong with me but she didn't know the word for it until i got diagnosed with Aspergers in 2001 at 10 years old. I was in a special needs primary school at the time

    • @britnatzaredemocracydenier5922
      @britnatzaredemocracydenier5922 3 หลายเดือนก่อน

      So if folk hate on your disabled kid you're fine with it Leigh as you said on another comment section on Scotlands hate crime bill saying hate is free speech so you won't mind your kid being stigmatized..
      My daughter has severe epilepsy and you think it's ok for my daughter to be abused by hateful people

    • @peterwilliamskelhorn6675
      @peterwilliamskelhorn6675 3 หลายเดือนก่อน +1

      @@britnatzaredemocracydenier5922 they weren't being horrible

  • @ellie_5276
    @ellie_5276 3 หลายเดือนก่อน +4

    A family member of mine has been waiting 2.5 years for an adult assessment - still no closer to getting it.

  • @rebeccarussell9618
    @rebeccarussell9618 3 หลายเดือนก่อน +1

    I knew at between 6-12months old that my son was I have a letter from the cdc saying exactly that..they said he was to young so fast forward he's now 7 the school has asked to have the referral put through as we have been waiting a long time then the person dealing with us was sacked so had to wait to be see by someone else, when we got there they had miss placed the forms and letters from the school, so had to do it all again we are now back waiting they said two months but it's been longer than that now . My some has been given one to one in the class room ,has movement breaks and a weighed leg blanket..the system need fixing its not fair on our children and for us that cannot afford to go private

  • @J4sonkempson
    @J4sonkempson 3 หลายเดือนก่อน +2

    I've been waiting 2 years for adhd assessment, I'm 52 so assume I'm at the back of the que. Starting to think I'm also a bit on the spectrum as well, I've been through the mental health system for 20 years and it was never even suggested, trouble is you don't ever have the personnel insight to even realise you have it.

    • @truthmerchant1
      @truthmerchant1 3 หลายเดือนก่อน +3

      I was diagnosed with ADHD at age 57 after a two year wait. I've now been on the waiting list for an autism assessment for 18 months. The letter they sent me stated they offer diagnosis only and no support, I tried to get help from the mental health service and was told there is none. My physical health has been destroyed because of the difficulties of trying to function in the world with these undiagnosed conditions.

    • @J4sonkempson
      @J4sonkempson 3 หลายเดือนก่อน +2

      @truthmerchant1 thanks for that, makes me a bit more hopeful. I think you really need to help yourself, I've spent a lifetime as a square peg being hammered into a round hole. Accept your limitations and be kind to yourself, I know we can be very mean to ourselves 😢

  • @lindalaker3665
    @lindalaker3665 3 หลายเดือนก่อน +2

    I think my granddaughter is autistic, but we just accept her as she is and love her. A diagnosis would make no difference.

    • @bonaparte1988
      @bonaparte1988 3 หลายเดือนก่อน

      That is a very positive way of thinking.
      Cause after the diagnosis,all they are gonna do is prescribe medication which is basically artificial chemicals that will mess with the brain.
      It's sad to see so many little children being started on o these chemicals.

    • @angelaregan475
      @angelaregan475 3 หลายเดือนก่อน +6

      Yes, it would. She would get the expert help she needs.

  • @traceyjayne4636
    @traceyjayne4636 3 หลายเดือนก่อน +2

    Yes it's taking a lot longer than a year, told up to a 5 year waiting list.

  • @alexandrarohla1531
    @alexandrarohla1531 3 หลายเดือนก่อน +4

    Nothing new here at all some people wait years schools don't need this extra stress, school referrals don't mean a thing too slow too little too late

  • @Ravenswalk
    @Ravenswalk 3 หลายเดือนก่อน

    I’m in Canada and my granddaughter is waiting to be assessed we have been told it will be three years before we get to see a specialist.

  • @pschin348
    @pschin348 3 หลายเดือนก่อน +1

    We waited 5 years for our son’s diagnosis. Even after diagnosis they still reject our application for healthcare plan to support.

    • @magusl9628
      @magusl9628 3 หลายเดือนก่อน

      On what grounds do they reject it?

    • @pschin348
      @pschin348 3 หลายเดือนก่อน

      @@magusl9628 not severe enough to require funding. He is not self harming nor disruptive.

  • @kellykreqeli8924
    @kellykreqeli8924 3 หลายเดือนก่อน +5

    I was not diagnosed with adhd until I was 36 and I went to state school had not help and struggled and was always labelled a bad child and was made to feel that it was my fault I was this way
    It’s important to diagnose someone as early as possible which was why I fought so hard for my son to be diagnosed

    • @leighannclements7849
      @leighannclements7849 3 หลายเดือนก่อน +2

      That’s horrible feel so sorry for you my son gets labelled with that too even by family members 😭

  • @Awesomeautisticgirl
    @Awesomeautisticgirl หลายเดือนก่อน

    I was diagnosed with autism back in 2019 aged 28. It took me twenty years to get formally diagnosed with autism

  • @samglazier1433
    @samglazier1433 3 หลายเดือนก่อน +1

    A diagnosis is only provided to individuals whose life is severely impacted.
    Social anxiety and difficulty making friends should not be a reason for diagnosis.
    It’s now labelled SAD
    Those with autism and other mental health needs need support to understand themselves and feel understood by others but full individual plans are not helping the child or school systems.
    Sensory issues can be supported without removing individual from the social environment.
    I worked with individuals for years and I don’t recall a single person who feels better having a diagnosis.
    Tony Atwood was the world’s leading authority until he admitted that the spectrum will cover around 25% of human beings.
    SPS sensory perception sensitivity needs to be understood and talked about more.
    This is often confused with autism but is actually different. Yes you can have both.
    Once you understand yourself as a unique individual who can grow, evolve and overcome, a diagnosis of any kind can restrict this.

  • @baffledmouse
    @baffledmouse 3 หลายเดือนก่อน +3

    I was diagnosed at 27 after doing my own research and asking to be referred. I believe it took about a year to get diagnosed.

    • @someonesomeone25
      @someonesomeone25 3 หลายเดือนก่อน +1

      A year is very quick compared to many. But even that is far too long.

  • @MQtheAI
    @MQtheAI 3 หลายเดือนก่อน +1

    Been waiting since october 2022, completely in the dark no support offered.

  • @jiartwork5880
    @jiartwork5880 3 หลายเดือนก่อน +2

    I have autism I live in Australia we have the same problem there is such a wait to get a diagnosis I was lucky but it is important cos you then understand why you do the things you do made sence

  • @magentamagenta1274
    @magentamagenta1274 2 หลายเดือนก่อน

    I’m 65 and still waiting for a diagnosis of ADHD 🤔 I may also be autistic but doctors haven’t got a clue about what to look for.

  • @bear4772
    @bear4772 3 หลายเดือนก่อน +1

    2 and half years in wales and still waiting for the assessment

  • @mightymo8699
    @mightymo8699 3 หลายเดือนก่อน

    I know a lady with 2 sons with this problem n her new partner also but they have been waiting for YEARS to get assessed!! My son was put off for years n was 28 when he went n sorted it himself . The system is broken n many suffer with mental health now. I even know a lady in her 70's who has never been diagnosed n suffers greatly!!

  • @outlaw6421
    @outlaw6421 3 หลายเดือนก่อน

    Sue the education authority with child law and human rights laws,they soon comply and a appointment .its like doing to hospital with a broken arm and them not telling you ,you have a broken arm..

  • @ajarnwordsmith628
    @ajarnwordsmith628 3 หลายเดือนก่อน

    The mother...very intelligent/caring mum

  • @mumsywiggly
    @mumsywiggly 3 หลายเดือนก่อน

    As a Autistic adult, good morning britain needs to understand that this interview is very derogatory. Please include more autistic people in this conversation. Chris peckham is exemplary as usual.

  • @32446
    @32446 3 หลายเดือนก่อน

    Took about 5 years to get my son diagnosed.

  • @kellykreqeli8924
    @kellykreqeli8924 3 หลายเดือนก่อน

    My son was diagnosed until he was 13 and we know from the age of 3 and he has high functioning asd and it effected his scolding as he was not put in the right placement once he was diagnosed and they sure how badly it was effecting him after two school placements were not right I sat down kcc he was lucky he got home tutoring as he could not be around other children even though he was at play groups and around kids all his life
    My son has no friends the only friend he has is his tutor and struggles socially going to the shops alone paying for a train ticket and paying for things at the shop
    He is 20 this year
    It’s sad cause he passed his English and maths and is now doing a computer hardware courses of he is this way I’m worried this will affect his career as a young person trying to live a normal life in society
    My son can’t handle crowded places loud noise bright lights and certain smells effect him and can cause a melt down which is why we are careful when he does come out with us

  • @KEZAMINE
    @KEZAMINE 3 หลายเดือนก่อน

    Me: years 😐
    Others kids: 2 weeks 🙂

  • @thevindex
    @thevindex 3 หลายเดือนก่อน

    I was meant to be diagnosed at 5, but they lost the referral. I put my name down again in 2020, they lost the referral again. I’m 39 so I’ve been waiting 34 years.

  • @josefschiltz2192
    @josefschiltz2192 3 หลายเดือนก่อน

    In 2018, I only had to wait a few weeks and the interviews were in quick succession.

  • @paddy4chenny
    @paddy4chenny 3 หลายเดือนก่อน

    Im 38 ive struggled with this all my life and will never be diagnosed as i dont trust the doctors especially after the covid scam

  • @christiedennis1741
    @christiedennis1741 3 หลายเดือนก่อน

    We had to wait over 7 years from assessment to diagnosis of autism with our son.

  • @outlaw6421
    @outlaw6421 3 หลายเดือนก่อน

    It's always bern bad my nephew took 5 yrs yo be assessed this was 3 yrs ago,lockdiwns made no difference the tories have bern strangling this service for over 10 yrs

  • @distorbia20
    @distorbia20 3 หลายเดือนก่อน +1

    Richard kids need diagnoses so they can get the help and support. Schools can provide loads support so helps to get the diagnoses

  • @Oceanstarz
    @Oceanstarz 3 หลายเดือนก่อน

    Chris, do you know any excellent Solicitors who deal with the Court of Protection and Judicial Re Judicial Reviews? Fighting for freedom for my Autistic Relative, with Autism myself … a challenge but I’m not giving up ✨⚖ All ideas welcome. And brilliant that you keep pushing forward regardless ⭐

  • @mfslots
    @mfslots 3 หลายเดือนก่อน

    i was assessed and diagnosed twice!

  • @An-Alien-On-Earth
    @An-Alien-On-Earth 3 หลายเดือนก่อน

    I had to wait over two years for mine, only got my results a week ago

  • @outlaw6421
    @outlaw6421 3 หลายเดือนก่อน

    2 yrs we have waited for the autism assessment

  • @someonesomeone25
    @someonesomeone25 3 หลายเดือนก่อน +1

    Adult autism diagnosis can be multiple years.

  • @christineclifton7191
    @christineclifton7191 3 หลายเดือนก่อน

    I am not diagnosed but highly suspected of adhd and autism i am trying to go down the private root due to how long the waitng is i also suspect something is wrong with my disks the health care is dismismisive i had the head of the practice have ago at me due to struggling to fill paper work and i needed help also have dyslexia and was asking for an adhd refural i also informed my therapist has diagnosed me with cptsd i spoke carmly and pointing out she was raising her voice at me and continuing and then said i cant wave a magic wand i then put in a formal complaint and i got no reply no apology it made me fearful of the nhs and i am also not being supported by my work place dispite i have flares of three month chronic pain at a time make it impossible to stand they have refused a chair basically i dont have an official diagnosis, i have been over worked expressed going into burn out i am told to wait till ir convenient for them my therapist says my body will chose to give up if i dont sign of but i also have responsibility so i am trapped not having any official diagnosis despite i am affected daily

  • @thomaskeyton7771
    @thomaskeyton7771 3 หลายเดือนก่อน

    They literally can't keep up with anything anymore in health even me getting my anti psychotic changed or upped or downed can take much longer then it should depending on medication. They are having med shortages right left and not enough doctors people have to set up appointments months ahead just to get seen.

  • @colettemikaelson160
    @colettemikaelson160 3 หลายเดือนก่อน

    4 years my child was on the waiting list and 11 years trying to get professionals and school to take us seriously.

    • @Felled-angel
      @Felled-angel 3 หลายเดือนก่อน

      So pay for a private one they are 1-2k if it's your child take responsibility into your own hands.

    • @leighannclements7849
      @leighannclements7849 3 หลายเดือนก่อน +3

      Oh yeah coz everyone has the money to do that 🙄

    • @colettemikaelson160
      @colettemikaelson160 3 หลายเดือนก่อน +2

      @@Felled-angel try 3k and that was 3 years ago. Not everybody is in a position to do that.

    • @Felled-angel
      @Felled-angel 3 หลายเดือนก่อน

      @@colettemikaelson160 my mother was very poor she went out to charities asked help she went to preist and begged them for whatever they could give she sold everything but the clothes on her back including my PlayStation I got for Xmas and I was happy to let it go don't assume we had anything more then food on our table but your right i was too harsh and time's have changed so I apologise my mother raised me better so I should know better.
      It was for my baby brother not me for all the difference it made he killed himself last year at 25 years old.

    • @colettemikaelson160
      @colettemikaelson160 3 หลายเดือนก่อน

      ​@@Felled-angelcool story bro

  • @ArchieKenny
    @ArchieKenny 3 หลายเดือนก่อน

    A year, here in norfolk its a 6 year wait .

  • @Micheal-Knight-
    @Micheal-Knight- 3 หลายเดือนก่อน

    This must be why he ripped up a friend's child's painting pinned on there fridge.

  • @user-vl5xo8og8s
    @user-vl5xo8og8s 3 หลายเดือนก่อน

    Too many opportunities I believe. Science and recognition of issues has outpaced the system. In the 60s we were just classed as thick or different. Some were able to pay for assistance, some schools offered help. Some of us survived and some did not. But the country does not owe us help, we must seek it for ourselves. Any help is a bonus. Remember a true friend stays with you in good times and bad. The country cannot afford to help everyone. I think this also opens other issues when one sees so much money being wasted on illegal immigration.

  • @gooderspitman8052
    @gooderspitman8052 3 หลายเดือนก่อน

    In a country where the plebs are on the breadline, sadly a diagnosis is the only way of increasing your income. P.S It took me 63 years to get a diagnosis.

  • @Beyond_Belief534
    @Beyond_Belief534 3 หลายเดือนก่อน +3

    What is the relationship between childhood vaccines and autism?
    Why don't you speak the truth on it?

  • @stevenhull5025
    @stevenhull5025 3 หลายเดือนก่อน +2

    The big question we should be asking is why this massive rise in ADHD in recent times??? Are "modern" foods we give our kids the cause?? Seed oils?? Confectionary?? Grains?? Sugar?? Those chemical "E's" on a list as long as your arm on packaging of processed foods??

    • @angelaregan475
      @angelaregan475 3 หลายเดือนก่อน +1

      All of those, plus MMR jabs.

    • @rosarose3443
      @rosarose3443 3 หลายเดือนก่อน

      🤔 Better understood and picked up. Years ago it was not. Did you watch the interview?

  • @URFUTUREUK
    @URFUTUREUK 3 หลายเดือนก่อน

    These parents have decided befoe the professionals that rhe child is autistic 😆 this country needs a shake up. She wants a diagnosis cause she wants the benefits.

  • @TrevorHerbert-dj1jl
    @TrevorHerbert-dj1jl 3 หลายเดือนก่อน

    Well done ❤❤❤❤❤❤❤❤❤❤🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏 good clip. 😊😊😊

  • @Robobongo88
    @Robobongo88 3 หลายเดือนก่อน

    I dont belive that number at all. Iv met people who arent autistic who claim to be because they think its some sort of quirk😂

  • @Wishing_you_peace
    @Wishing_you_peace 3 หลายเดือนก่อน

    Several years in some places.

  • @beewa8840
    @beewa8840 3 หลายเดือนก่อน +1

    Mum seems a bit touched by ADHD.

    • @franm.8343
      @franm.8343 3 หลายเดือนก่อน

      I think it's common in society and has probably been around since the beginning of time. Most people learn to cope over time, but it can affect sufferers education attainment and decision making skills and can cause them many difficulties.

  • @wearetheremnants1615
    @wearetheremnants1615 3 หลายเดือนก่อน

    172000 people could find out they dont have it .. that would be relieving..

  • @user-ty5ys2zz8d
    @user-ty5ys2zz8d 3 หลายเดือนก่อน

    money grabbing parents. There are genuine diagnosis then there are the ones jumping on the bandwagon. I personally know one. Her teacher says i should report mother to child services.

  • @richlondonrich
    @richlondonrich 3 หลายเดือนก่อน +1

    I'm waiting to find out if I have cancer. Wasting money on autism and trans and depression hits different when the cancer waiting lists increase

  • @Paul-pf6rm
    @Paul-pf6rm 3 หลายเดือนก่อน +2

    There's lots of excuses for bad behaviour these days...

  • @dainhea-marciamiller.3824
    @dainhea-marciamiller.3824 3 หลายเดือนก่อน

    Corona damage. Crown damage.

  • @bethanellisjones6723
    @bethanellisjones6723 3 หลายเดือนก่อน +1

    I was told it will be years until we are seen

    • @amanda.s9948
      @amanda.s9948 3 หลายเดือนก่อน

      Just go private

  • @el7h3773
    @el7h3773 3 หลายเดือนก่อน +2

    It took us 9 months from start to finish for My 3 year old to get diagnosed. Never had an issue.
    The thing is there are so many adults who all 'think' they are autistic because they don't fit or watched tik tok videos clogging up the waiting list for genuine cases
    Same with some parents also who won't stop until they get a diagnosis on paper even AFTER their child has been assessed and not met the criteria. A diagnosis isn't even a guarantee you get support, an ehcp is more valuable in that sense but now everyone wants one of those aswell. Sorry but its obviously going to take ages when everyone thinks they have it. But do they really?

    • @OptimisticAutistic
      @OptimisticAutistic 3 หลายเดือนก่อน +2

      Tiktok right now is the leading, cutting edge of scientific discussion and analysis of autism diagnosis by autistic people. The information I found there far surpassed anything available at NYU Silver School of Social Work or at Columbia University, where I got my bachelor and masters degrees. I would caution against making assumptions like this without first looking into the inadequacies of the criteria itself. Many doctors do not understand how to recognize or diagnose patients who aren’t white males, and the DSM is very difficult to update quickly.

  • @vincentblack7467
    @vincentblack7467 3 หลายเดือนก่อน

    Well it hasn't held Chris back as it, he found out in his 40s, tuck him long enough never saw the thing sooner..

  • @vincentblack7467
    @vincentblack7467 3 หลายเดือนก่อน +8

    Everyone is a victim and like being a victim...

    • @willneilos2163
      @willneilos2163 3 หลายเดือนก่อน +2

      How?

    • @jameswashington1163
      @jameswashington1163 3 หลายเดือนก่อน +5

      What type of reaction are you waiting for with your comment? a high 5?

    • @nintymark64
      @nintymark64 3 หลายเดือนก่อน +8

      As a 33yo autistic guy, it’s not about enjoying being a victim, it’s extremely difficult to navigate a world that is not built for us. For those without autism will never get it, and that’s fine but you don’t need to post moronic comments like this. We’re not actually asking for all that much

    • @AH--173
      @AH--173 3 หลายเดือนก่อน +3

      It's not about victimhood

  • @joanne26
    @joanne26 3 หลายเดือนก่อน +4

    Growing up in the 70’s/80’s I never heard of Autism and being Autistic.
    There are now so many who have it and have either waited years and diagnosed or still waiting
    I have no family who has this but have the medical profession explained why young people get this
    🫤🫤🙏🙏❤️❤️

    • @leighannclements7849
      @leighannclements7849 3 หลายเดือนก่อน

      It’s not the flu they are born with this condition.

    • @aa-fw2pw
      @aa-fw2pw 3 หลายเดือนก่อน +1

      I was just thinking this. I grew up in the 90s and didn't hear much about it then either.

    • @joanne26
      @joanne26 3 หลายเดือนก่อน

      @@aa-fw2pw another point I forgot to add is about the time it take’s for doctors to diagnose
      I remember also in the 90’s I first heard of ME - chronic fatigue syndrome
      The medical profession across the 🌏have not got to grips with a diagnosis yet
      As I do not have any family that suffers with anything like this I cannot relate to families that suffer
      How many ‘grow out’ of autism?
      Is it to do with puberty/hormones
      🥴🥴🫤🫤😃❤️

    • @aa-fw2pw
      @aa-fw2pw 3 หลายเดือนก่อน

      @joanne26 My 15 year old niece suffers from borderline personality disorder and autism. But she has been through immense trauma, as my brother (her father) got diagnosed with kidney failure when she was just three years old, and he passed away in 2021 when she was 12 years old. So I think that has a lot to do with her conditions, particularly her BPD. But I am not a medical professional so I could be wrong, of course.

    • @bonaparte1988
      @bonaparte1988 3 หลายเดือนก่อน

      It's just another conspiracy.
      These children in 20-30 years down the line will not be seen fit enough to run the world.
      They want to control them and rule them.
      I was told I have ADHD not formally diagnosed but I don't want that label on me because I can control myself.

  • @wiiliamnoel5250
    @wiiliamnoel5250 3 หลายเดือนก่อน

    MI5 CALL TO MARK SEXTON 10.25AM WEDNESDAY 20TH OF MARCH 2024 .BITCHUTE . Responsibly Liberty .