My 88 yr old daddy’s Alzheimer’s journey ended last night at 11:28. He no longer has to suffer the indignities of this horrible disease. Thank you Natalie for your videos that helped me understand what to expect along daddy’s journey. Keep up the good work ❤️ 4:32
I wished I had known these symptoms before my mom's actual diagnosis of vascular dementia. She couldn't remember how to turn on the shower, use a remote, phone, opening my car window, using a seatbelt, and was hiding my dad's keys and cell phone, in the yard and other places. It was puzzling and frustrating at the time, but now I understand.
Watching MLWD trying to brush her teeth is heart breaking. She has used an electric toothbrush for over 30 years. She used to be really good at it. I know because that was my profession. She now does it like a disinterested child. Her oral hygiene is therefore poor, her decay rate has gone up and has active gum disease which on bad days reeks. I've got her on 5000ppm fluoride tooth paste to try to arrest the caries and regular hygienist sessions. Trying to get the hygienists to understand she will remember nothing about brushing minstrel just get on with the scaling is a bit frustrating. It's a bit veterinary in approach. I dread her losing teeth, she'd find that very difficult......
I was married 34 years. While I was still married he became belligerent, volatile, aggressive, etc. I felt like I was living with Dr Jekyll and Mr Hyde. Eventually, he filed for divorce and I saw it as my way out of the nightmare. Taking care of him for 24/7 was exhausting. Mentally. Emotionally. Physically. He was diagnosed with young onset Parkinson's disease 10 years. He was also diagnosed with psychosis and schizophrenia and placed on antipsychotic medications. He became extremely volatile that I feared for my life. I walked on egg shells everyday. Eventually, I left MY house due to his aggressive and volatile behavior. I appreciate your videos. For me, it is too late because I didn't see any of these videos before. I pray that those who are in the shoes I was in will get the support and help they require. I had no help. No support. Although he had family in the same state no one ever offered to give me a break from taking care of him 24/7
I strongly wish to you that you are able to live your life now, maybe with the scar of all these years, but nontheless, you and your own life are to be cherished, lived and enjoyed. Thank you so much for sharing your experience. As a matter of fact, I also notice that when one truly needs help, everyone looks somewhere else and public services do not exist anymore😡
I experience all of those things with my loved one , the most disturbing is when she is convinced of other people interacting with her, It happens often and they will always be people that have passed . Sometimes she becomes annoyed with them saying they wont leave . Very strange at times . I never react negatively just ask who they are and quietly try and change direction .
My mom keeps talking with her childhood friends Sometimes it's acceptable as i like that they keep her company But sometimes she start yelling loud at night wich could be very disturbing
I have seen 3 of these with my dad. It was really hard with dad being inappropriate with me as his daughter. And my husband who may himself be in the early stages couldn't understand the apraxia. Dad is in a care home now that understands his needs genuinely cares for him.
YES!!! My mom was showing some minor signs of dementia, then experienced some extremely hurtful treatment by a close friend. This has thrown her into moments of rage, depression, paranoia, delirium, and even imagining that my 2 sisters and I are ganging up against her taking the side of the ex-friend. She has said some very hurtful things to us these past 5-6 months.
Thank you for your videos.I’d love for you address how to approach doctors appointments giving them a clear picture of what I see for the patient, my mom in this case, hearing all I need to say. I generally write a note and give it to the nurse ahead of time, but perhaps you have insights.
My wife hides her toothbrush. She is convinced that if she doesn't the cleaner will use it to clean the bathroom. She has lost the ability to do the simplest of tasks on her phone and can't put on her own seatbelt. She went through a stage with foul language but I rarely see it now.
Same with my mom, #1 was one of her first symptoms about 4 years ago she will hide things to "keep them safe" and she will forget she would do that and will blame every member of the family of stealing her things. Also for the last two years when when she is with me she seems not to be able to do the most basic things like changing on her turning off and on the water for her bath even grabbing her clothes from her drawer but when she stays with my brother on the weekends she does all of that on her own and it is frustrating because I tell him how hard it's getting to take her on my own during the week because she needs alot of assistance and it is hard for him to believe me because for him her dementia it's not that bad it's (moderate) I have my family to also take care of and I feel so overwhelmed sometimes. 😔
Hi, The hiding things to keep them safe is something I have found my mother did nearly twenty years ago, she died ten years ago. When I was out shopping she would collect the mail including mine as I lived with her. She would open my mail and then hide it. Most unhelpful because it was cheques which of course became stale cheques and I only found them recently.
Is giggling after they say something that’s not in a funny context or comment a symptom also ? It’s almost like they’re proud they said what they said but weren’t joking or making a funny comment-so it’s out of context with what was being said ?
Yes, yes, yes. There us a guy on TH-cam following 3yrs wife's alz.journey and that's all she does...a fake almost, mocking sounding laughing to every question, it's her response walking around alone too. She no longer has words at all.
These are so interesting. The first one made me laugh because my Mother-in-law went through a bout of this and I was so confused. One instance was when she hid her water bottle from the caregiver because she thought she was drinking out of it.
My ex-husband has been in Hospice since September 2023. He is in a private Memory Care facility. Prior to Memory Care, he was in a nursing home for 3 months. He was kicked out of the nursing home for punching a Nurse in the face. Her nose was bloodied and he broke her glasses. His volatile behavior continued despite being placed on antipsychotic medications. Being a full time caretaker definitely takes a toll on a human being. IF YOU CAN, get help and have someone come to your home to help take care of your loved one. Today, he is still in hospice care.
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My 88 yr old daddy’s Alzheimer’s journey ended last night at 11:28.
He no longer has to suffer the indignities of this horrible disease.
Thank you Natalie for your videos that helped me understand what to expect along daddy’s journey.
Keep up the good work ❤️ 4:32
R.I.P to your father and much love and strength to you and your family.
@@sammyrichardson7305 ❤️
I'm so sorry ❤
@@nancyayotte2297 🥹thank you
Hugs A blessing and a loss
My husband does all of these.😢😢💔💔
❤️🩹❤️🩹
Same
I wished I had known these symptoms before my mom's actual diagnosis of vascular dementia. She couldn't remember how to turn on the shower, use a remote, phone, opening my car window, using a seatbelt, and was hiding my dad's keys and cell phone, in the yard and other places. It was puzzling and frustrating at the time, but now I understand.
The hiding of items to keep them "safe" is maddening and such a vicious cycle for the person with dementia. Been there.
My dad hid cake in his boots so the thieves wouldn’t find it….we now refer to lemon cake as “boot cake”. Love you dad. RIP
❤
Watching MLWD trying to brush her teeth is heart breaking.
She has used an electric toothbrush for over 30 years. She used to be really good at it. I know because that was my profession.
She now does it like a disinterested child. Her oral hygiene is therefore poor, her decay rate has gone up and has active gum disease which on bad days reeks.
I've got her on 5000ppm fluoride tooth paste to try to arrest the caries and regular hygienist sessions. Trying to get the hygienists to understand she will remember nothing about brushing minstrel just get on with the scaling is a bit frustrating.
It's a bit veterinary in approach. I dread her losing teeth, she'd find that very difficult......
I was married 34 years. While I was still married he became belligerent, volatile, aggressive, etc. I felt like I was living with Dr Jekyll and Mr Hyde. Eventually, he filed for divorce and I saw it as my way out of the nightmare. Taking care of him for 24/7 was exhausting. Mentally. Emotionally. Physically. He was diagnosed with young onset Parkinson's disease 10 years. He was also diagnosed with psychosis and schizophrenia and placed on antipsychotic medications. He became extremely volatile that I feared for my life. I walked on egg shells everyday. Eventually, I left MY house due to his aggressive and volatile behavior. I appreciate your videos. For me, it is too late because I didn't see any of these videos before. I pray that those who are in the shoes I was in will get the support and help they require. I had no help. No support. Although he had family in the same state no one ever offered to give me a break from taking care of him 24/7
I strongly wish to you that you are able to live your life now, maybe with the scar of all these years, but nontheless, you and your own life are to be cherished, lived and enjoyed.
Thank you so much for sharing your experience.
As a matter of fact, I also notice that when one truly needs help, everyone looks somewhere else and public services do not exist anymore😡
My friends husband is starting to do these things. Thank you for all your valuable education 💕🎉❤️
You are so welcome!
Good to see you still working hard on dementia care. never stop.
I experience all of those things with my loved one , the most disturbing is when she is convinced of other people interacting with her, It happens often and they will always be people that have passed . Sometimes she becomes annoyed with them saying they wont leave . Very strange at times . I never react negatively just ask who they are and quietly try and change direction .
My mom keeps talking with her childhood friends
Sometimes it's acceptable as i like that they keep her company
But sometimes she start yelling loud at night wich could be very disturbing
I have seen 3 of these with my dad. It was really hard with dad being inappropriate with me as his daughter. And my husband who may himself be in the early stages couldn't understand the apraxia.
Dad is in a care home now that understands his needs genuinely cares for him.
I found this to be extremely informational. Thank you for this list of modifiable factors.
Really practical insights, confirming my observations. Thank you
Could you do a video talking about dementia’s acceleration with trauma and grief?
YES!!! My mom was showing some minor signs of dementia, then experienced some extremely hurtful treatment by a close friend. This has thrown her into moments of rage, depression, paranoia, delirium, and even imagining that my 2 sisters and I are ganging up against her taking the side of the ex-friend. She has said some very hurtful things to us these past 5-6 months.
OMW, everything except the hypersexaulism which is just as well because I have had radical prostatectomy because of Malignant Prostrate Cancer! 🙈
I have an ongoing daily experience of four of these, but not the hyper sexualising symptoms
Thank you for your videos.I’d love for you address how to approach doctors appointments giving them a clear picture of what I see for the patient, my mom in this case, hearing all I need to say. I generally write a note and give it to the nurse ahead of time, but perhaps you have insights.
My mom hides things and is starting to not remember how to use common objects or remember that things in her room are hers.
Number one was my first thing that my husband problem
Was hiding his wallet, and say, someone stole it .e
Thank you!
All of them😢
Mom would always hide her wallet and has recently stopped. Diagnosed with Alzheimers.
My Husband is experiencing these sexual habit now.
Guests with special expertise in certain aspects of the culture, would be great.
I hide things from my spouse who has dementia, then I forget where I hid them. LOL
My wife hides her toothbrush. She is convinced that if she doesn't the cleaner will use it to clean the bathroom.
She has lost the ability to do the simplest of tasks on her phone and can't put on her own seatbelt.
She went through a stage with foul language but I rarely see it now.
ALL!!!
All but not recognizing himself in the mirror.
2 of the 5 so far with my mother in law. #1 and #5
Same with my mom, #1 was one of her first symptoms about 4 years ago she will hide things to "keep them safe" and she will forget she would do that and will blame every member of the family of stealing her things. Also for the last two years when when she is with me she seems not to be able to do the most basic things like changing on her turning off and on the water for her bath even grabbing her clothes from her drawer but when she stays with my brother on the weekends she does all of that on her own and it is frustrating because I tell him how hard it's getting to take her on my own during the week because she needs alot of assistance and it is hard for him to believe me because for him her dementia it's not that bad it's (moderate) I have my family to also take care of and I feel so overwhelmed sometimes. 😔
Yes, HWD can tell me they know it is not right, but constantly gets angry and swears.
❤ such good heads up info. Almost all of this happened and you have always made this journey easier
The most surprising symptom is the belief the patient has total immunity!
It's the apraxia and family members do not believe or is not aware of apaxia
Can these same symptoms be found in Lewy Body Dementia?
Yes.
Hi, The hiding things to keep them safe is something I have found my mother did nearly twenty years ago, she died ten years ago. When I was out shopping she would collect the mail including mine as I lived with her. She would open my mail and then hide it. Most unhelpful because it was cheques which of course became stale cheques and I only found them recently.
Is giggling after they say something that’s not in a funny context or comment a symptom also ? It’s almost like they’re proud they said what they said but weren’t joking or making a funny comment-so it’s out of context with what was being said ?
Yes, yes, yes. There us a guy on TH-cam following 3yrs wife's alz.journey and that's all she does...a fake almost, mocking sounding laughing to every question, it's her response walking around alone too. She no longer has words at all.
Thank you thank you you're awesome😊
My mom sometimes tries to use her cutlery as a straw but doesn’t always remember how to drink from an actual one.
Light switch- we had to show my father turn on the lights- every day.
Thank you 😊
Is it spelled "apraxia"?
Yes
Yes.
These are so interesting. The first one made me laugh because my Mother-in-law went through a bout of this and I was so confused. One instance was when she hid her water bottle from the caregiver because she thought she was drinking out of it.
Apraxia! Mom can’t use the phone. She always says that it is broken.
Dealing with sexual issues. Just ask for sex. Told him due to health issues...I can not.
Also cant go out much. Cursing.
Bless all. ❤
All of them
When my mother with dementia sees herself in the mirror she says "I am so ugly" or "I am so old." 😢
My ex-husband has been in Hospice since September 2023. He is in a private Memory Care facility. Prior to Memory Care, he was in a nursing home for 3 months. He was kicked out of the nursing home for punching a Nurse in the face. Her nose was bloodied and he broke her glasses. His volatile behavior continued despite being placed on antipsychotic medications. Being a full time caretaker definitely takes a toll on a human being. IF YOU CAN, get help and have someone come to your home to help take care of your loved one. Today, he is still in hospice care.
I am sending so much love to you and your ex-husband. I'm sorry to hear about the situation with the nurse. ❤️🩹😢
My MIL has all except #4.
mahalo
All except 4
Thanks
I’m starting to lose my filter as a caregiver…🫠