What to Expect with Late Stage Dementia Symptoms (My Experience)
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- เผยแพร่เมื่อ 1 มิ.ย. 2020
- Download 2 FREE dementia cheatsheets at this link: dementiasuccesspath.com/yt-cs
1- Activities Ideas
2- What to say/do for specific Challenging Behaviors
Thanks for watching! In this video, I go over what to expect with late stage dementia symptoms and my experience with them and cover things like: how long they will be in this stage, what symptoms look like day to day and how to connect with your LO.
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Whether you plan on caring for your loved one during the late stage of dementia at home until their dying day or planning on placing them, it is good to know what to expect and what you are taking on.
The life expectancy for dementia can be as short as a few weeks or can go as long as several years depending on your loved one.
For example, lewy body or vascular dementia folks go through it quickly. Several families of lewy body dementia patients talk to me about how quickly they declined On the flip side, alzheimer dementia folks go through it slowly and their families comment on how long they have been caring for them.
Neither of these are a hard fast rule. Here is a late stage dementia timeline if you want more exact number: www.dementiacarecentral.com/a...
End stages of dementia folks need 24/7 care and full assistance with things like eating,walking going to the bathroom.
It is a ton of work to take on to be a 24/7 caregiver. It's all about what you can handle.
Finally, the last thing to know is that in the last stages of dementia, they connect with you and the world through their senses.
At this point, late stage dementia people have lost their ability to communicate with the outside world.
Playing their favorite music,rubbing lotion on them, brushing their hair, having them sit outside in the sun are all ways you can help them continue to experience the world and be with you.
Thank you for watching! Check us out our blog at www.dementiasuccesspath.com
As a retired speech language pathologist we know the right aide of the brain is the music side and use that for aphasia therapy. I spent two years in a nursing home bedridden, aphasic, hallucinating, tremoring, paranoid and emaciated until all 30 medications I was on were removed when put on hospice. I'm home, feeling fine walking with a walker writing my memoir.
Wish I had seen this comment four months back.
I took early retirement as the Dementia care facility where we placed my mother was urging me to place her in hospice. After just a few weeks of seeing her different times of the day I felt that she was overmedicated. I insisted they stop a heavy antidepressant and an antipsychotic med! After weaning off the later my mom was back to "herself" other than memory loss. She is 87 and without the unnecessary meds will be with me much longer than had I not intervened. I'm sure it is easier for staff to have medicated patients but it is not ethical nor in their best interest. Glad to hear you are doing well and your comment ...30 meds removed really got me as others in the facility (as well as thousands across the country) are probably over medicated and their families don't even realize it.
Hallelujah!!!
Gotta watch the medications these drug dealers give you - drs kill be careful
The same thing happened with my Mom she is in 24/7 care and is 92. My Daughter and I sang you are my Sunshine to her and we’re done and she sang the next verse, word for word ❤️
My sister had Lewy Body Dementia. She had round the clock caregivers at her house in Ridgefield, CT. Her last 3, were at The Residence, an assisted living facility, in Darien, CT. She passed away peacefully, on Jan 27, 2021. I salute the medical staff, including caregivers and hospice, for taking such good care of my sister. God bless u all!
I enjoyed this very much. My husband was diagnosed a couple of years ago, but it is only now beginning to get real. And it seems to be advancing pretty quickly. This is such a unique journey it is really hard to know what to do. Thanks for doing this.
I absolutely love this! I have had so many positive experiences in relating to dementia patients with singing to them. It amazes me how many them love the old hymns! One night on my shift in longterm care an old lady was trying to 'go home' and her caregiver was struggling to get her away from the front door. I started singing Be still my soul , the Lord is on thy side... the lady's hands relaxed and dropped from the door handle, and she allowed the caregiver to lead away from the front door.
Thank you for this video. I care for my 81 year old mom, with advanced dementia, 24/7 at home. And I also care for my 87 year old disabled dad. Double whammy. She was diagnosed about 4 years a go. But is getting worse in the last year and starting to get very angry and physically aggressive. Music helps her a lot. Her go to music is Johnny Cash or George Beverly Shea's hymns. She was never very religious as a pre dementia adult, but she loves it now. And sometimes I see hints of the mom that used to be. You are right! They are still in there somewhere!
I saw something similar with a man whose daughter started playing jazz for him since he used to be a musician. He was able to sing and follow melodies.
Nursing facilities are so overwhelmed in our area. Staffing is quite short but they do an amazing job. They have so many patients to take care of. We have been very blessed to be in a situation where Mom can remain with us until her end. But we have many friends who are not as lucky. God bless those that are witnessing this horrible disease. You are not alone.
The story of the singing lady got me teary eyed.That is beautiful.There is a woman in the memory care where I work who talks nonstop very loudly and is disrupting everyone there, residents and activities people.We need a solution to this issue.She's deaf and is totally focused on herself, not unferstanding that her behavior is disruptive.Any suggestions?Maybe singing would help?
Thank you! I am desperate. I cant go on any more. Only child to my mother with such a state of dementia. Many complications and no solution for me, no even health insurance for her. I had to quit my job. Only God has stregthen me. No support whatsoever.
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I pray god gives you strength 🙏🏼.
I pray for you!
Enjoyed the singing stories. My brother has told me a similar story with Mum recently. I sang some Christmas carols with Mum last year and she really enjoyed that.
Great story at the end. Tear jerker. I'm a CNA working with a man now with dementia and regular evening sundowning. He is probably in the 5th and 6th stages of dementia (out of 7 stages). Music from my phone helps relax him. He melts when the music starts.
Thank you so much for these videos. I've just been introduced to your channel this week and looking forward to viewing all your videos. Hope you have a lovely Christmas.
I know one thing when they are shut on a ward 24/7 they rapidly go down hill and a doctor can’t even tell you when they will be able to go to a care home because the psychiatrists are inundated. When they are in bed all day they end up not being able to walk and don’t even have a tv to watch. This is going backwards not forwards in caring for our loved ones
The story about the woman you connected with through song brought tears to my eyes. Thank you for seeing the humanity in all of this.
I was feeling kinda down this morning and wondering if I was burning out. It took a while before I finally was able to head on over to my mom’s house to relieve one of her caregivers. … I felt better once I saw my mother. I just settled into bed for the night and saw your video. I lover your energy and positive attitude. Of this video, the part that I love the most was the story where you were able to find a connection with your patient. It moved her to know that you found a way to let what inside the lady out in such a heartfelt way.
I don’t know for sure if my mother has dementia. Some doctors think so, but others don’t. I just want to be ready, just in case….
A great Song Story! Thank you for you encouragement.
Thank you my dear. This video was very important for me !
Thank you - your video's are so helpful! I am a new sub and have been going through your videos getting tips
P.S. I love your 'shorts' videos, they are great reminders💜
Thanks so much for your video!
Beautiful story!
Love your story. I heard stories I never knew about her growing up in the blue ridge mtns. A relative of moms had just finished her house a d it was a grand place. They had not moved in yet. The lady wanted to plant some flowers out around the big front porch, 1896 or so was the year. And you know mom said.she heard a lady across the mountain yelling and soon saw uher coming,, riding her horse, asking for help and her house was on fire! If burnt down to the ground as no fire engines then It was everyone gab a bucket and.come help. And it seems I got told cause this lady was married to my husband's family. It was so strange to never had heard this and even the lady was naked Missouri. But I know we had many mountain people telling such stories. I loved listening to all of them and mom was the last one of her generation to die at 94. I sure she was maybe telling it from HeR point of view as she heard it as a child or she got the date wrong. My granddaddy was the first one with a caring the area when she was about 3.seen pictures of that with mom.
Named, not naked, I getting to need to only hit the like button, and I am rambleing on.
Music is the international language.I used to drive a school bus with autistic children. Non- verbals started to sing along with me in my “ musical school bus”. I would just go through broadway musical albums from memory. I was exhausted by the en$ of the day, but they were happy.
Wow!! What a great story! Useful to me because my client likes to yell loudly in the aftwrnoons.
Thank you for the video this is a blessing keep making videos:)
Thank you!
Thank you so much.
Thank you 😊
Well organized information. Thank you for posting it. My wife is in the later stages of this disease and it is a challenge. I was not expecting the patient to not eat or drink. If anyone have any ideas please let me know.
Wonderful and informative video👍 my grandmother was actively screaming all the time but now she has lost her ability to say anything or scream. We have been caring for her since last 10 years.
I’m so sorry that has happened to your grandmother. I hope the story in the video gives you hope on your ability to connect with her.
My Grammy Giggey (mom's maternal grandmother) died from Alzeimers in April 2005 and now, my Grammy Carlyle (mom's mom) has been diagnosed with mild approaching moderate Alzheimer's as of 4/6/2022.. I HATE this disease so much!!!
Thank you so much. My mom has vascular dementia and Alzheimer’s. We placed her in a memory care unit 8 weeks ago. They are wonderful there. I saw her for the first time last week and then today. I am shocked with her decline. I would like some pointers on the process. If you are available to talk- I would love to connect. Blessings, Nicole
My mother has vascular dementia too shes 90 her anxiety is so bad its been years so i really don’t know what stage. This is so bad im so afraid ill get it
Thank you for the video. How do you know which type of dementia someone has? Or at what stage they are in? Please and thank you.
They enjoy music and little close dances too.
My 93 year old mother has stage 4-5 Alzheimers and has lived alone since 1990 after the death of my dad. Mother is in constant denial of her conditions and says that she can manage her house and herself. Due to her stubborn and non- compliant attitude, mother is now on her third set of carers who she insists never turn up and what are they here for anyway. Mother is deaf but refuses to wear hearing aids. She has osteoarthritis in her knee but refuses to use a walking stick. Her carers come twice a day to assist her in household tasks, medication and meal preparation. All of which mother says she does not need or want. I am tired of her negativity, as are all my siblings, and am trying to enrol her into a Care Home which will accept her. Mother is under the Adult Social Care Services and they are most helpful but they do not witness the confusion, anxiety and obsessive traits which we see regularly. Mother is now becoming more incontinent and refuses to acknowledge her condition. She is a constant source of worry and concern but continues to exist in her bubble of ignorance and contentment.
No
suggest you video tape episodes for evidence to services of her condition.
Your mother sounds very much like mine. She could have anosognosia, meaning that the part of her brain that can accurately process her capabilities and limitations is no longer working. While she may seem stubborn and negative, it's the fear of change and loss of control over her body that frightens her. It must be such a horrifying experience for her to watch her mind and body (slowly)) deteriorate. Wishing you and Your family strength and courage to deal with this horrific disease.
@@kathleenmcintyre4058
Might not even be a problem anymore.
I have stage 4 cortical basal degeneration dimentia. What shoud I expect from this stage. Wht should my family and I expext from this stage and also from next
Gestures help!
My 81 year old best friend has advanced dementia and almost total loss of speech. I’m one of just a couple of people she recognizes. I want to visit her but it’s so hard to know how to connect when she cannot speak or even comprehend most of what I say! And sadly I cannot sing 😕
My mom has been very receptive and will sing softly to music and gets excited. The rest of the time she is non responsive just in her head or spaced out but sometimes she will be totally alert but hard to understand, other times a little easier to understand. She does still have a great sense of humor. So I know she is there it's just taking longer for signals. She is obsessive we don't touch her papers or napkins she stacks. She insists on throws her used Kleenex in the garbage and she will freeze up and it will take 10 minutes frozen but she won't stop, unless you yank the kleenex. I mean I would let her if she unstuck after a bit but we would be there all day, and I'm usually rushing her to the bathroom and she has no continence control with the Parkinsons at this stage her brain isn't sending the message to her autonomic system. But sometimes she will hallucinate which is new. Like she thinks she saw a friend was over. Or my dad had something he was hiding. I question her daily so I make sure she is safe. And she is tuning out more and more on us. I just pray, and we may adjust meds or see what's next. I loved your story. and your ideas thank you.
The music remains.
Reason’s why you need long term insurance.
100%
From what I can tell my dad seems to be in Alzheimer's disease stage 5-6. My mother recently passed and I move him in with me and my family. Every time I try to engage him in a simple activity he refuses. He is very sweet but only wants to watch tv and take naps but is obviously bored and THE ONLY thing he likes is for me to drive him around in the car aimlessly. If I offer to go to the park he says its too windy, or cold or hot. Any ideas ??
What did he like to do before or at any stage in life? What did he do for a living? remote control car.
try telling him, not bossy like, but say, “ let’s go, we’re going to the park, the lake in the park” whatev does he like to go out to eat? did you’ll do things like go fly kites, fish, simple puzzles.
Was he working all time. Get the items he used at work and recreate that a similar work/play space. Books or books on tape
What do you do when your late stage family member is violent and combative. Keeps trying to get out of bed and falling. Is literally trying to make everyone miserable….. it’s not their fault but it is making it hard on everyone.
I need to know my husband has dementia and recently he became tired when walking he puffed then I read about haloperidol and it's for sycotic treatment and causes Hart failure can you advise me plse
I recommend leaving as be, treatment seems like hope, but it’s just peoples scam, I study protein misfolding and dementia, you have to wait, allow him to meditate, it’s the best care and treatment out there, except exercise, but without being able to walk well, it’s best to not use exercise any longer, dementia is hard and I hope you end up having a perfect end, at least a peaceful death with his beloved, my best of wishes that he doesn’t get any worse
they also might remember your words or even your name but they will remember how you make them feel.
I'm struggling with my friend who has dementia. He calls me as often as six times a day. At unreasonable times such as 3:00 in the morning just to say hi. Can dementia be caused by taking long term (10 yrs.) psychotropic drugs?
You can block your number from their phone & call them everyday at a time that's good for you.
That's what had to happen with my husbands mom. She would call hom 10 - 14 times a day while he was at work & cry or be angry. It was really messing up his work. She has a caregiver who would put him the phone if there was a problem & he would call her every morning & evening. He had to do it to save his sanity. When she asked him why she couldnt call, he would blame it on the phone company.
Put your phone on night mode
My mom can say a full prayer and a couple religious songs .
How would you feel if you got a diagnosis of dementia or your parent, knowing what you know now.
If it's my parent:
Urge them to take care of legal business while they still can.
If I'm the one afflicted:
Take out life insurance on myself. Write a confidential goodbye note to the family. Go mountain climbing, find a nice cliff and play Will E. Coyote.
My mom doesn’t recognize me . What stage does that fall on
I usually see that in the middle stages. That is hard on everyone. What I’ve noticed is that our folks may forget our name or the title we hold in their life but they can feel if you have a bond with them or not and they know how they are being treated. Dementia can’t take away the bond you have with your mom, just the titles
@@dementiasuccesspath2239 my husband is in hospice here at home.
Has colon cancer. He cries often.
What stage of dementia would that be?
Joyce Valentine usually when folks are on hospice they are in the middle to late stages.
Thank you.
@@dementiasuccesspath2239 Thank you 🌟 I felt that with my Dear Mother ❤😢
😔😭😭 my dad is getting to the late stages. I’m super sad
Hugs to you😢..my mom as well..your not alone I feel your pain😢
It’s shouldn’t be so hard to diagnose this disease. As a lay person (non medical professional) I have noticed signs, why can’t the doctors?
How does one get a loved one assessed for possible dementia?
I have taken my brother to the doctor several times and no matter how many times I ask him if my brother has dementia, I just get the run around. So, I don't know if my brother has dementia, or if he is just nuts.
Do people in the late stages still know who other people are?
yes
Coco ending confirmed.
My mother-in-law is 86. Currently she is in rehab facility. She broke her hip. She has an adult dementia. She doesn’t wanna eat and she drinks very little. She loves you walking. Her daughter who lives in New York wants to push the hospice sooner that means give her narcs or I don’t know what they give it to keep her sleep and she said she will die within a week. I feel like it is inhumane because I feel my mother-in-law still has a little life left and they want to be taking care of her for 10 years, if you can comment read my message and you can come in these. Please appreciate it if you know people, they do that to the loved ones to end their misery.
I stumbled across your channel and am wondering about the moral implications of all these little white lies, realizing you're likely very much in the right here. Just philosophically, I find some of the 'tips and tricks' a bit morally rocky, to suggest you constantly tell outright lies to your loved one, to get them to act more conveniently. That said, again, I don't think you're doing anything wrong, just it's an interesting dilemma, and a genuine one.
Same as I struggle with a family member to figure out what to reveal to them about how I'm doing struggling w personal issues, when his mental state is changing a bit bc of a related neurological condition. I want to be honest w my loved ones, but also helpful. Your tips and tricks sometimes veer too much into dishonesty at times, it feels like at first glance--but I think the situation might call for it as a lesser evil than things falling apart. What d'you think?
How cold you are! You speak as a "worker" & the "screaming, non-stop driving you nuts." Yet I witnessed that w/my father 2day for the 1ST TIME in 7 yrs of me (a SOLE, 100% DISABLED, CAREGIVER), & YOU act like IT'S A JOKE?! When I was out reading poetry to my mom. (who also has a lesser, age-related dementia), while my father has had vascular dementia 9+ yrs, & his skin-picking that went UNTREATED bt the Nurse, til it CAUSED basal cell skin cancer w/tendrils of it digging n2 his teeth, roots, & head, was screaming for the 1ST TIME TODAY, & IT BROKE MY HEART!!! Yet I'm looking for HELP & COMPASSION & you ate "GIGGLING" as a WORKER! Just wait til it is YOUR PARENT SCREAMING IN PAIN, UNABLE TO HEAR, UNABLE TO SEE (AS THE ASST'D LIVING LOST HIS ONLY GLASSES & THEY NEVER PUT IN HIS HEARING AIDES - WHICH EVEN THO' I'VE BEGGED 1 AT LEAST BE USED, NONE AT USED, NEVER DONE)! SO DAD IS BLIND, DEAF, + HAS END-STAGE VASCULAR DEMENTIA, & IS IN SEVERE PAIN!! I KNOW IT IS THE WORST CASE SCENARIO! THIS IS IT. YET YOU GIGGLE & LAUGH cause YOU ARE a EMPLOYEE & IT IS NOT YOUR PARENTS! Shame on YOU! YOU LAUGH WHILE WE FAMILY, CRY, GRIEVE FOR YEARS!!! SHAME ON YOU!😢
Stop the projection. You are stressed and carrying martyr syndrome. It's a tough road and this video was only trying to share suggestions.
I am so sorry to see you are experiencing stored trauma from your circumstances.💔 Projecting your emotions through blame and offense are tell-tale signs that your fear and anger are erupting and being displaced on this gal and her video which was intended to be a helpful tool for many exhausted caregivers and children of parents who now find themselves in a reverse role as the Parent to their parent. Pleas know - You have every right to feel what you are feeling!! Our emotions - good, bad or indifferent - are never wrong. They are a barometer that indicates where we are on the emotional scale. When triggers like this video, unleash the deep emotional pain stored in our physical DNA, it can still serve us well in that it shines the light on the contrast of what we no longer want to endure. It helps us define what we DO want which I'd say in every case is for our loved one to be at peace and free from pain. I pray you are able to get the help you need for yourself as well as your loved one. You make a difference! Just as well as this young lady's videos make a difference for so many who are seeking answers. 💜💜💜